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Spoonie

Sei immer Du selbst. Außer Du kannst ein Zebra sein, dann sei ein Zebra. 😜🦓 #bessergestreiftalskleinkariert

Spoonie

idk this made sense in my head at first but now I’m questioning everything, what do you think?? 🤪🥄 (also - this in no way, shape, or form is supposed to put a limit on what it means to be a “spoonie”. Obviously not all spoonies have a pet! This is just supposed to be a fun relatable graphic 🙂)

Spoonie

D I S A B I L I T Y 👩🏾‍🦽⁣ ⁣ Do you refer to sickle cell as a disability?⁣ ⁣ I feel like the language used to describe sickle cell is a large grey area.⁣ ⁣ In the UK, disability is defined as “a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities”, if that doesn’t describe sickle cell then I don’t know what does. Unfortunately, even though sickle fits this description like a glove, it is often still a challenge to have sickle cell recognised as a disability, as determining this is done on a case-by-case basis, things such as government benefits require applications and assessments, which I don’t think is fair, especially as the people assessing us are unfamiliar to what sickle cell is & what life with sickle cell is like.⁣ ⁣ On the flip side, I feel like culture has a hugeee part to play when it comes to how we refer to sickle cell. Growing up in a Christian Nigerian household, my parents made sure that I understood the power of the tongue, and they wanted the language I used when it came to me and my health was positive. This was evident in the way I was taught to speak about sickle cell, I was told to never refer to it as “my sickle cell” or “my disability”, the language I used while talking about sickle cell was never personalised. And I get why they did this, they were protecting me and didn’t want my identity to be rooted in my health condition. ⁣ ⁣ Yes sickle cell affects each person differently, but even still, life is harder because we have sickle cell, that’s just a matter of fact, and because of this, I personally think that sickle cell should be part of the list of conditions that automatically qualify as a disability.⁣ ⁣ This has turned out to be a really long post (my bad 😅) so imma cut it here, but I’ll definitely write a full blog post on this one day. ⁣ ⁣ What are your thoughts? Do you refer to sickle cell as a disability? If not, what is your preferred term? ⁣ ⁣ ⁣ #HerSickledJourney #SickleCell #SickleCellAwarenessMonth ⁣

Spoonie

Have you ever felt alone in your illness? I lived with my invisible illnesses for years before deciding to share more. When I started sharing, I instantly found friends all over the world who understood my pain! I never knew the community was so large! Now, there is no right time or requirement to share. Each journey is different and each story is your own, but whichever path you take, we created our INvisible community to make sure everyone has a safe place to come and find friendship, empowerment, and support. SHARE this post to help other Spoonies feel 💜 & SAVE to remind yourself whenever you need it. COMMENT “IN” to learn more about how you can get involved 🤩

Spoonie

Hello ! Aujourd'hui je vais aborder mes propres symptômes du SEDh, n'étant pas qualifiée professionnellement pour parler du SED au nom de tous.tes. De plus, les symptômes, bien qu'ils en existe un tronc commun, ne sont pas les même chez chaque personne atteinte du Syndrome d'Ehlers Danlos, ce qui en fait d'ailleurs un syndrome difficile à diagnostiquer mais j'y reviendrai ! Je ne parlerai pas des comorbidités car il en existe tellement et je suis toujours en attente de diagnostic pour certaines. (La suite en commentaires) - AVF (Algies Vasculaires de la Face) : migraines très très intenses = possibilité d'avoir le visage plus ou moins temporairement défiguré, sensation de milliards de pics dans l'oeil, douleurs sur un côté du visage en particulier + photophobie, hyperacousie et hyperosmie - Cicatrisation compliquée et inesthétique - Douleurs chroniques généralisées - Dysautonomie : gestion du thermomètre du corps qui est sans dessus dessous = problèmes vasculaires, de circulations avec la régularisation de la température du corps, problèmes de respiration - Dyspnée : sensation de gêne respiratoire = impossibilité d'inspirer à fond, sensation de blocages - Dystonie musculaire : contractions musculaires involontaires (spasmes, tremblements, tensions) = douleurs musculaires, globalement TOUS les muscles hyper tendus en permanence, trouble de la déglutition, forçage des muscles qui entourent le larynx, contractions du périnée et de l'utérus, vaginisme - Épigastralgies : douleurs digestives - Fatigue - Hyperlaxité : élasticité des tissus, notamment articulaires (tendons, ligaments etc) = entorses, tendinites, sub/luxations Ou encore des organes (peau, yeux etc) = Peau élastique fragile et fine, vision floue, dysfonctionnements/douleurs aux organes Si vous avez des questions, remarques, n'hésitez pas à les laisser en commentaire ou à me contacter par message privé mes DM sont ouverts 🤗 En espérant vous avoir éclairé.e.s ne serait-ce qu'un peu sur le sujet ✨ __#__ #sed #avf #rgo #hyperlaxité #handicap #nodules #dystonie #dystoniemusculaire #douleur #douleurchronique #chronicillness #chronicpain #maladiechronique #jointhypermobilitysyndrome #spoonie

Spoonie

Looking sort of like I just crawled out of the ground to say hi (I 100% used that walking stick to help me get up). One of my reels did that thing again, where it gets significantly more interest for seemingly small reasons, and it means: 1) there are some new people here! (Who probably won’t have a clue who I am popping up on their feed, because my hair is tied back and I’m not wearing a swishy skirt while talking about chronic illness) and 2) I’ve been lost on what to post next, since I can near-guarantee it won’t get the same reception (and much as I pretend I don’t, I have rather enjoyed the dopamine rush of a popular post). So, firstly, hello! It’s weird and nice to have you here (I’m used to knowing everyone who follows me pretty well, and that’s changed in the past year or so. It’s lovely to speak with more people. Just in a different way!). And secondly, I’m going to continue posting the usual- thoughts on life that sometimes resemble poems and sometimes don’t, cool vintage skirts, chronic illness moments and a lot of “come to my gig” posters. (I’m a singer/songwriter, but Instagram seems to only like telling people about the other stuff!). Oh, and 80% of my selfies will probably be in this @oliveklug tee for the foreseeable future, because I went to their gig last week and bring it up in every conversation. Thanks for being here, and if you want to say hi in the comments, do!!! I answer most of them, energy allowing. And it’s nice to know who’s here 🥰🌻 -Sakara Image description: selfie of Sakara lying on the grass, photo has been made black and white. They wear a black T-shirt with the name Olive Klug written on it, surrounded by bugs (and one fairy, spot the fairy!!), there’s a walking stick lying next to them on the ground and their expression isn’t smiley, but isn’t unfriendly either. Sakara is a white (in this photo, grey) person with brown hair and mottled glasses. [end description] Hashtags: #SingerSongwriters #CottageCore #FairyPunk #FairyCore #ChronicIllness #ChronicLyme #MEcfs #hEDS #Spoonie #BabesWithMobilityAids #DisabledAndCute #GetToKnowMe

Spoonie

Living with chronic illness is like being fluent in a language no one around you understands. It's a constant battle of trying to translate the untranslatable and longing for a support system that speaks our unique dialect. But hey, we're here to educate and elevate, right?! 💪🌟❤️ #LostInTranslation #ChronicIllnessChronicles #disconnected #failuretocommunicate #communication #spoonie #sickchick #chronicillness #chronicpain #chronicallyill #insider #spooniesecrets #spoons #spoonielife #fluentinspoonie #health #truestory #overcomer #lifestyle #hardknocks #terminalillness #medical #medicallanguage #bilingual #thursdaythoughts #follow #thursdaymood #spooniesisterhood #lifeasweknowit #facts

Spoonie

Håp✨ Jeg syntes noe av det aller vanskeligste med sykdom er all uvissheten. I mange måneder har min mamma vært igjennom en overraskende stor mengde utredninger, prøver og blitt scannet i mange ulike maskiner, mens helsepersonell har kommet med vage tilbakemeldinger om at vi bare må ta noen tester til så finner vi nok ut akkurat hva det er… Jeg kan kjenne meg igjen i det, det tok hele 7 år før jeg fikk min diagnose❤️‍🩹 Men likevel har jeg og mamma klart å ha det så fint oppi alt dette, mye fordi vi er fulle av HÅP!🌟 Til tross for skumle beskjeder finner vi likevel alltid de glimtene av håp som er der og holder oss fast i dem, for det er ALLTID håp❤️ Både for pårørende og syke er dette ekstra viktig å huske på, derfor lagde jeg dette smykket da mamma fikk diagnosen for å bære denne påminnelsen under behandlingsprosessen hennes✨

Spoonie

Sorry I’ve been so quiet lately, it’s been a rough few weeks and this heat in the UK is really affecting me 🤒 Hope everyone else is doing ok in this heatwave ❤️‍🩹 - - - - - Photo credit: yourmentalhealthsafeplace 📸 - - #chronicillness #chronicillnessawareness #longcovid #longcovidawareness #longhauler #invisibleillness #spoonie #spoonielife #spooniesupport #spoonies #invisibledisabilityawareness #invisibledisability #chronicfatigue #chronicillnesswarrior #chronicillnesslife #chronicillnesscommunity #longcovidrecovery #dysautonomia #dysautonomiaawareness

Spoonie

Living with chronic pain, fatigue, and sleep problems mean that it is 💯 human to 1️⃣ focus on your body, 2️⃣ notice how severe the pain is, and 3️⃣ wonder how much you can and cannot do. Let's work smarter 🧠 not harder 💪. Distraction is a form of intentional focus. Diverting your focus, even for just a little bit, lets you use your brain to turn down the pain volume🔕 Distraction is a skill that takes time and practice to improve. A change of scenery, getting out of a rut, or doing something nice gives you a boost. You can also try journaling ✍️ painting🎨 walking🚶 knitting 🧶 or just going for a drive🚗 Need a guide? 🧭 👉 Book a free consultation, develop a plan, and turn down your pain volume 🔇 #qualityoflife #qualityoflifematters #pacing #pain #backpain #back #injury #injuryrecovery #spinepain #spine #painrelief #painreliefoptions #chronicpain #painmanagement #chronicfatigue #fatigue #fibromyalgia #spoonie #invisibleillness #autoimmunedisease #lupus #notalone #iseeyou #chronicillness #chronicmigrane #chronicdisease #chronicpainsucks #painvolume #paincouple #painpartner

Spoonie

🌟 New nails alert! 💅🏼🎨 A couple of weeks back, I had a fabulous nail makeover. I opted for a fresh shade of green with a stunning mandala design on one of my nails. 💁‍♀️ And guess what? I treated myself to a lovely pedicure too! 🦶 I’ve noticed a fantastic bonus – my feet tend to ache less after a pedicure. So, it’s all about having pretty nails and feeling less pain. Double win! 🙌😄 #NailLove #PedicurePerks #LivingWithPsoriaticArthritis #chronicillnesswarrior #chronicillnessawareness #nevergiveup #chronicpainsucks #chronicillness #disability #autoimmune #autoimmunedisease #spoonie #chronicpainwarrior #autoimmunediseasewarrior #psoriaticarthritis #jointpain #chronicpain #arthritis #hospital #spoonielife #spoonieproblems

Spoonie

Currently in the midst of a flare up… Keeping my chin(s 😆) up by wearing my absolute favourite new tshirt from @emilycoleillustrations 😍 #flareup #cfsme #chronicfatigue #chronicfatiguesyndrome #myalgicencephalomyelitis #invisibleillness #butyoudontlooksick #tired #insomniac #spoonie #spoonielife #horsegirl #ponygirl #equestrianbusiness #equestrianbrand #lookgoodfeelgood #emilycole #emilycoleillustrations #showjumping #showjumper

Spoonie

Need a reason to go to horror nights, here’s your sign 🤓🥁 (heavily influenced by BF’s dad jokes dont @ me) 16 years of tradition & counting 🧡 . . . . . . . . . . . #hhnorlando #hhn32 #horrornights #universalorlandoresort #taurusgang #scarezone #scareactor #fxmakeup #uoap #spookyseason #halloweeneveryday #horrorcommunity #dadjokes #t1dlookslikeme #autoimmunewarrior #chronicillnesscommunity #invisibleillnessawareness #invisibledisabilityawareness #spoonie

Spoonie

I got my sewing machine out today to finish this top. I had to work in small stages this last few weeks and it's frustrating AF having to be constantly mindful of body AND brain. It's impossible to figure out the activity "hangover" in advance and plan accordingly. Especially hard having the discipline to stop when you are in the zone because the body is about to crap out. Mixed feelings but pleased with the result. #EhlersDanlosSyndrome #HypermobiltySpectrumDisorder #HSD #hEDS #EDSawareness #Zebrastrong #Hypermobility #notalldisabilitiesarevisible #invisibledisabilities #invisibleillness #JointHypermobility #ChronicInstability #audhd #neurodiversity #babewithamobilityaid #chronicPain #ChronicIllness #Chronicpainawareness #Chronicfatigue #spoonie #spoonielife

Spoonie

Ja richtig gelesen, du brauchst einen Plan. Dieser sogenannte 🆘 Notfallplan 🆘 erstellst du zusammen mit deinem Rheumatologen. Er ist individuell aber folgende Punkte sollten unbedingt besprochen werden: ➡️ Wer schreibt Dich krank ? ➡️ Wo kannst du dich bei Unsicherheiten melden ? ➡️ Welche Bandagen, Orthesen oder sonstige Hilfsmittel solltest du vorrätig haben ? ➡️ Welches zusätzliche Schmerzmittel ist für dich geeignet ? ➡️ Wann könnte Kortison zum Einsatz kommen und in welchem Schema sollst du es einnehmen ? ➡️ Welche anderen Maßnahmen werden ärztlicherseits empfohlen ? ➡️ Lass dir unbedingt ein Rezept über die besprochenen Medikamente geben, damit du schnell entsprechend reagieren kannst ! Merke: Je länger das Entzündungsfeuer aktiv ist und dieses falsch, gar nicht oder nicht effektiv genug behandelt wird … Desto mehr kann es sich im Körper ausbreiten und den ganzen Körper beeinträchtigen. Je höher die Flammen 🔥 desto schwieriger wird es dem Einhalt zu gebieten. #notfallplan #sos #plan #behandlungsplan #planung #entzündungsfeuer #rheumaschub #krankheitsschub # #spondylarthritis #dvmb #spondyloarthritis #schub #rheuma #morbusbechterew #spondylitisankylosans #ankylosingspondylitis #bechterew #lebenmitrheuma #lebenmitmorbusbechterew #rheumacommunity #rheumaliga #autoimmunerkrankung #autoimmunity #autoimmunedisease #autoimmunlife #spoonie #spoonslife

Spoonie

Hm. Jetzt bin ich wieder Single. Mein nun Exfreund hat mich verlassen. Schön wäre es, wenn ich mir nun wie im Comic ein schönes Leben machen könnte. Meine Erkrankungen sind irgendwie dagegen… Dennoch sind nun ein paar Energien frei geworden, die ich bisher in die Beziehung steckte. Hoffentlich reicht es aus, um nun alleine irgendwie klar zu kommen. Ich hab Angst und bin traurig… immerhin ist das Wetter noch so sxhön dass ich in den Garten gehen kann und nicht den ganzen Tag im Wohnzimmer liegen muss… Schwere Zeiten gerade… #trennung #trennungsschmerz #verlassenwerden #traurig #chronischeerkrankung #chronischeschmerzen #wirsindsichtbar #mecfs #mecfsawareness #mecfswarrior #millionsmissing #myalgischeenzephalomyelitis #chronischesfatiguesyndrom #chronicfatique #postcovid #longcovid #postcovidsyndrom #fatigue #nichtgenesen #belastungsintoleranz #postexertionalmalaise #chronischkrank #chronicillness #ehlersdanlossyndrom #spoonie #lowonspoons #endometriose #adenomyose

Spoonie

So lucky that my dad still makes up stories for me 🥰 but instead of little bedtime tales they’re now full-blown novels that he gets printed! ~ #bookstagram #bookstagrammer #currentlyreading #scifi #scifibooks #selfpublishing #bookobsessed #bookaddict #bookworm #bookdragon #books #booktok #tbr #tbrpile #lucky #spoonie #spoonielife #chronicillness #chronicillnesswarrior #chronicillnessawareness #disabilty #bestdadever

Spoonie

Purchase this lightweight, incredibly cute crossbody messenger bag and @boochaces will get 100% of the sale. $100 (or $65 with coupon) plus shipping Www.Bennyandmegifts.Com Shop with Benny & Me Gifts that Give Back and help animals! www.bennyandmegifts.com 💜 #bennyandmegiftsthatgiveback #bennyandmegifts #giftsthatgiveback #bmg #bmggtgb #bmghelpaherocollection #jewelry #crystalhealing #animalreiki #manifestationsart #vegan #shopcrueltyfree #supportsmallbusiness #survivor #spoonie #positivity #faith #ahimsa

Spoonie

Summer35 is the code! The BMG Help a Hero Collection has bags and accessories created by Janet McKinstry Designs. This wearable art is handmade from repurposed materials, vegan, cruelty-free and each piece is one of a kind. A portion of the sale will be donated to animal rescue and sanctuary heroes 🥰 Shop with Benny & Me Gifts that Give Back and help animals! www.bennyandmegifts.com 💜 #bennyandmegiftsthatgiveback #bennyandmegifts #giftsthatgiveback #bmg #bmggtgb #bmghelpaherocollection #jewelry #crystalhealing #animalreiki #manifestationsart #vegan #shopcrueltyfree #supportsmallbusiness #survivor #spoonie #positivity #faith #ahimsa

Spoonie

Hey dooods ! Been a minute. Lots of big life changes for me lately- I've moved out into my own apartment for the first time! Also finally got to shave my head again for the first time since college 2 years ago. Woop woop! Anyways heres a dex and site update 🫡 I'm so surprised with myself for not really minding tummy dex spots #dexcom #sensor #cgm #continousglucosemonitor #flylikeag6 #g6 #dexcomg6 #diabetic #diabeticaccount #diabetesawareness #diabuddies #diabetes #teamtandem #typeone #typeonediabetic #t1d #t1 #insulinpump #chronicillnesss #disabilityawareness #spoonie #medicalequipment #insulin #insulinsyringe #needles #tandemdiabetes #tslim #sitechange 💉

Spoonie

It drives me, drives me to the brink, I look into the abyss you see, everyday I stare it down and never blink, it hurts somedays to even think, I’m amazed it hasn’t driven me to drink, but this pain will never make me blink #landscape #mountain #clouds #green #sonya7iv #lake #spoonie #connemara #raw_community_member #Your_Skies #poetry #IrishPassion #song #morning #clouds #nofilter #verse #mecfs #discoverireland #countymayo #ireland #boutyeh #meawareness #riverfog #raw_ireland #insta_ni #raw_allnature

Spoonie

#2000spoons #1712 This sudden tropical heat is heavy to walk in. But, It's very nice mentally after this autumn holidays😀 I walk as early as possible and the shade is the best in the park But In the evening my veins are totally blown up The sun makes me not being able to touch fabrics Which is not possible when you lay down in bed. Unless you can fly And sleep at the same time. #crpsawareness #nicemoment #chronicallyillawareness #funwithcrps #vegan #kids #painreaction #spoonie #countyourblessings #crpstricks #veganize #Amsterdam #pain #invissibleill #nospoons #fightforacure #mommy #momsofinstagram #mom #pain #spirituality #writer

Spoonie

Fatigue… really feeling it this week. This heat has totally exhausted me. Sending love to all who struggle to cope in the hot weather x Read the blog: https://chronicillness.co.uk/2022/01/16/fatigue/ #onsteroids #vasculitis #rituximab #vasculitisuk #vasculitiswarrior #vasculitisawareness #raredisease #rarediseaseday #rarediseases #autoimmunedisease #autoimmunewarrior #immunesystem #immunesuppressed #rheumatology #writerscommunity #writersofinstagram #authorsofinstagram #spoonielife #spoonie #prednisolone #smile😊

Spoonie

I should be getting back to working out but my leg still isn't happy. They also started painting in the apartment beside us so ours smells like paint thinner. What's a girl to do but try out her new airmen time shirt from her brother on a work it out Wednesday 😆 🥂❤️. Monday and normal life will be here soon enough. #slowandsteady #makingmyfourtieslookgood #legisrecovering #painting #apartmentlife #paintthinner #tshirt #brother #airmentime #workitoutwednesday #myjourney #spoonie #crpswarrior

Spoonie

The iced oat milk latte of my dreams

Spoonie

*SIGH* Meditation practice has saved me today. Reminding me that nothing is permanent. I am not my thoughts. And that resting is a radical act of self-care and self-love. Living with a long term health condition is a constant battle and days like today make it even harder. #covid #covid_19 #meditation #mindfulness #resting #selfcare #selflove #emotionalintelligence #wellbeing #spoonie #t1d #typeonediabetes

Spoonie

🍂 It's that time of year 🍂 Pinecone season! (Charlie's favorite). Update: College has been a huge adjustment for me and Charlie both. Navigating school with a chronic illness can be really difficult, but I'm determined to get my degree. Charlie has been doing much better and I think he has gotten over his stress colitis. He is eating, drinking, playing and using the restroom normally now. My health has been a wild ride since I've gotten here. From stress migraines to excruciating EDS muscle spasms, horrible POTS episodes and temporary paralysis spells in my hands... I'm honestly struggling a bit. Luckily, thanks to my amazing RA, I do have the name of an EDS specialist that I am going to try to get in to see. I appreciate all of the prayers and well wishes you guys have sent. Your support through this journey is extremely motivating and helps me get through the day. I love you all and remember: Your disability doesn't define you! ❤️ #servicedog #servicedoggear #potssyndrome #posturalorthostatictachycardiasyndrome #goldendoodle #myservicedog #servicedogintraining #servicedogtraining #servicedogs #servicedogssavelives #servicedogsofinsta #trendingaudio #doodlepurfect #spoonie #spoonies #chronicillness #chronicillnesswarrior #spoonielife #servicedoggear #servicedoggearshop #servicedoggearaddiction

Spoonie

Working on making peace with my body, whether it’s letting me go for 12 mile hikes in the mountains 🏔️ or stuck at home on the couch 🤒 The ups and downs and inconsistency of living with chronic illness can be exhausting in itself (on top of the exhaustion we feel from the usual!) and I’ve found that accepting that I have a chronic illness and building my life around that, the better I do. It’s not easy. I don’t want to accept it. Not at all. I want to fix it. I want to get better. I want to be better. I don’t want to have to accommodate my illness. 😩 But, I’m learning that it’s possible to do both. Accept AND strive to feel better. 😌 We don’t have to be sick or healthy. We don’t have to have a healthy life or a sick life. We can just live. Here’s to working on building a life of living well on the good days and the not so good days. ☀️ Both, at the same time. If you’re out there doing the both, I see you. One step at a time, everyday. 💛 . . . . #invisibleillness #spoonie #spoonielife #potsie #potsielife #zebrastrong #posturalorthostatictachycardiasyndrome #heds #hypermobileehlersdanlossyndrome #mastcellactivationsyndrome #chronicfatiguesyndrome

Spoonie

Second sea swim of summer, will I manage a third before it gets too cold and I bottle it! #swimming #seaswimming #wildswimming #outdooradventure #outdoors #ehlersdanlossyndrome #eds #zebrawarrior #zebrastrong #Fibromyalgia #LifeWithPain #chronicfatigue #spoonie #spoonielife #spoontheory #invisibleillness #hiddendisabilities #anxiety #mentalhealthmatters #autism #asd #ADHD #visitlossiemouth #VisitMoraySpeyside

Spoonie

SPOONIE BOXES GIVEAWAY !!! ✨For a while now I’ve been wanting to send our care packages to chronically ill teens. So after some time thinking about it, I’ve decided to do it! I understand the hopelessness of being sick, and I want to be an outlet to brighten their days. I will be starting out with 18 free, personalized packages. And I thought I’d be fun to do a giveaway! ✨Requirements: You must live in the U.S. to enter! You are living with chronic illness or disability! You are a teen or somewhere close to that age! ✨Here's how you can enter! 1. Make sure you're following me, @yourpainhasapurpose 2. Tag at least four friends in the comments! 3. Like this post AND share it to your story! 4. Feel free to nominate people! ✨Simple as that! I really hope these spoonie boxes will support and uplift those battling hard health times. ✨This giveaway closes Thursday, September 13th. Once the giveaway closes, the winners will be randomly picked! And I will tag you in a story if you have won. I’m excited! I hope you are! Good luck my friends! 🤍🤍 ✨Also, I would love your help to be able to keep doing these. The cost can be a lot, especially due to shipping. You can donate on the go fund me page I made (link in bio) in hopes to raise money. Other donations and prayers are appreciated too. I want to bring joy to those struggling and share the love of God. I know He will provide. my personal is @oliviardennis Sending y’all love! 💗 #giveaway #carebox #spoonie

Spoonie

Join the ranks of 100,000+ happy customers who've discovered relief with Migratone! 🌟 ⁣ ⁣ Our powerful formula has been a game-changer for countless individuals seeking natural relief from migraines. ⁣ ⁣ Don't miss out on the opportunity to be a part of our growing community. Your journey to a migraine-free life starts here – order Migratone today and experience the difference for yourself! 💜🙌⁣ ⁣ LINK IN BIO!!⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ ⁣ #Naticura #NaticuraSupplements #Migraine #MigraineAwareness #MigraineSelfCare #HeadacheAwareness #MigraineRelief #MigraineAwareness #Migraneur #VestibularMigraine #Spoonie #SpoonieLife #ChronicIlness #InvisibeIllness #ChronicPain #Migratone

Spoonie

Patients are tired of having to lift up or stretch out their clothes while trying to access their port! We realized that! We've created t-shirts that make port access easier. Check them out and learn more about how you can help make port access more comfortable - your patients will thank you! #HappyCloud #portcomfort⁠ #childhoodcancerawarenss

Spoonie

After our recent scares with Josh’s health at the hospital we decided now it might be a good time to not only thank everyone for the love and prayers but to share some very good news.❤️ Let me introduce you to one of the newest specialists for Amita at St. Joe’s - Dr. Joshua Webb 🎊 SpecializIng in trauma and psychiatry he will be working in the ER, on call and urgent care eventually expanding to include other affiliated hospitals and additional possible specialities. He is also working part time as a TA for the University of Phoenix. This man is dedicated, intelligent, compassionate and willing to do what it takes to make his dreams come true. Nothing can stop him. I am so proud of him. Please help me congratulate him on his very hard earned and well deserved success!!!🫶🏼 #doctor #success #future #disability #disabilitypride #disabilityawareness #chronicpain #chronicillness #spoonie #spoonies #spoonies_united #spoonies_matter #youmatter

Spoonie

Starbies & reading is like the most perfect combo of combos in my humble opinion.🫣 Need an IV of espresso to keep you on your toes during a chapter? Need a small snackie to keep you from dry heaving? 🤠 (cake pops are my go to) Want to people watch with your headphones in while listening to an audiobook? - Never the less, it’s one of my favorite places to unwind and just take a moment to be with myself.🫶🏼 - 𝗤𝗼𝘁𝗱: where’s your favorite place to sit and read for a while to unwind? - - - - - - - - - - - #bookstagram #bookstagrammer #bookstagramcommunity #readersofinstagram #readingcommunity #reading #bookish #bookishaf #bookishcommunity #bookishpost #booktok #booktokrecommendation #spoonie #spooniebookworm #spooniecommunity #bookishspoonie #bookworm #booknerd #bibliophile #bookaholic #bookcommunity #readmoreromance #romancebooks #audiobooks #audiobookstagram #audiobooksofinstagram #audiobooklove #romancereader

Spoonie

My human wasn’t feeling sprightly today so she said we’d do our training from her bed 🤔 I had 2 thoughts about this suggestion: 1) she’s just being lazy and 2) she told me not to jump on beds as a puppy! She’s changing the rules! 😮She said that disabled people lying down or napping in the day is NOT a sign of being lazy, and is actually a lot more sensible than pushing herself and ending up in hospital 🙃 But that I might have a point about contradicting her earlier rule of no jumping on the beds(I win!)😉. To be a 🚨medical alert dog🚨, I might have to give her alerts while she’s asleep, so I have to know that it’s ok to jump on her bed to tell her. I sleep in the same room as her, but I prefer to sleep on the floor next to my very comfy dog bed 🙈 By practising settling on her bed while she’s lying in it during the day, it’ll mean that I see it as an ok thing to do and will know that I’m allowed to go on her bed if I need to 👍 I still think she’s being a tad lazy 🤭 but she was feeding me cheese so who am I to argue! 😋😂 Image description: a black labradoodle lying on a pink crocheted blanket on a bed #assistancedog #assistancedogintraining #puppy #puppylove #puppytraining #dog #dogtraining #dogsofinstagram #puppiesofinstagram #labradoodle #chronicillness #chroniclife #spoonie #spoonielife #disabled #disability #adrenalinsufficiency #servicedog #servicedogintraining

Spoonie

“…I woke up one cold morning in New York not being able to see properly. My eyesight was blurry and it would come and go. On top of it being blurry, I would experience this bizarre vision interruption (the best way to explain it would be when a television is all fuzzy trying to get to the appropriate channel)… …What I was starting to find out is that I might have the unexplained lyme disease… …I almost lost my vision and succumbed to a diagnosis that wasn't the actual diagnosis, this is why I am so passionate about going with your gut/inner knowing, managing your stress levels, and most of all relying on prayer and your faith to pull you through. I am now healing from Lyme Disease, Co-infections, and Mold…” To read Dianna’s full story, click the link in our bio!

Spoonie

My first chronic illness diagnosis was thyroid disease at 20. I honestly didn’t think much of it and figured it was a pretty easy thing to manage as long as I took my medication. Boy, was I wrong 🥴 I did not realize that the thyroid affects EVERY bodily function. When my levels are off, everything in my body goes out of whack. My medication dosage has gone up and down so many times over the years. I got really sick with thyroiditis in the spring. My lymph nodes were so swollen and painful, I was losing my voice, and my levels shot up high enough to trigger heart issues that landed me in the ER 😮‍💨 I am thankful that my levels have come down, and me and my endocrinologist are slowly adjusting my medication dose until we get it right 🫶Do not discount that tiny little butterfly shaped gland in your neck. It does way more than you realize 🦋. #chronicillness #chronicillnessadvocate #chronicillnessawareness #chronicpain #spoonie #pots #potssyndrome #thyroidproblems #hypothyroidism #hashimotos #gravesdisease #lupus #raredisease #blooddisorder #fybromyalgia #multiplesclerosis #polycythemia #eds #invisibleillness #invisibledisability

Spoonie

So.. I’ve legit been resting for a month in preparation for this weekend that I’ve booked since February 🤦🏾‍♀️ But it will totes be worth it to be with everyone again! These are from the 2022 Christmas Party I hosted in appreciation for @jamesduncan_live & @fuhad_ and the entire Cult Fam! 🤗 I said I was going to be open and be honest with my #Spoonie story. Background on why these guys and their @shxtsngigs podcast actually means something to me. Not as like some icky fangirl or someone who wants/needs something from them. 🙄 No, I just saw them as chill dudes I could have a laugh with, simple. (They don’t know this next bit) On July 17, 2022 was the morning I decided to end my life that very day. I was set on my decision. I’d been in pain, trauma, lonely and suffering unknown diseases all of my life. Emotionally I just didn’t feel like my true Cassy self anymore. I had turned on YouTube for some background distraction as my ADHD and anxiety were going crazy at the time. I listened for juuuuust a moment. In the midst of my head being a complete mess, hysterically in tears, more pain than I could physically, mentally or emotionally handle; something happened…. I F*CKIN LAUGHED!!!! 😂🙌🏾 I laughed at something so incredibly stupid too! But damn, those 2 dudes chatting shite reminded me of how silly my friends and I are.. I think that spark ✨ of love I have for my friends and the shenanigans we have yet to share together, really hit in that moment. I binged for hourssss, just laughing!! That day was a massive turning point from wanting to take my own life, to gaining the inspiration to fight for my life instead.. It goes deeper than that but blah blah right? Lol So now you all know! I’ve met epic people because of this podcast. THANK YOU, Thank you, thank you!!!You Cult Babies kept me going this past year. What that Discord server has done for me personally, is insane! (I mean,I met the love of my life & my besties by chirpsing away 😘) And of course, the biggest thank you to @remskkii for everything you do! 🙏🏾 I LOVE YOU ALL! 💚 Ok off to pack for Manny tomorrow and be reunited with these badass peoples!! 😝✌🏾