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Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #bliss ters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior 3h

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5/25/2024, 4:00:31 PM

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5/19/2024, 4:00:37 PM

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5/18/2024, 4:00:31 PM

@ebloppet.se Anmälan har öppnat! www.ebloppet.se Den 14 september klockan 11:00 i Kåsjön, Partille är det dags. Hoppas vi ses där - detta är det sista loppet vi arrangerar och visst vore det häftigt att avsluta med en grande finale?! • Vi tycker verkligen att du ska ta chansen att vara med i år, på just dina villkor. Spring/jogga/gå/rulla detta familjära lopp där alla kan vara med. Välj mellan tre sträckor: 3,1 eller 10,5 eller 15,5km. • Det viktigaste är inte att springa, det viktigaste är att bidra till forskningen. Om du inte kan komma den 14:e så går det jättebra att enbart skänka en slant. Som företag kan ni gå in som sponsor, mer info på hemsidan. • Swish: 1230206490 Bankgiro: 5149-9028 www.ebloppet.se • #Ebloppet #run4ebsweden #cureeb #healeb #fighteb #stopeb #epidermolysisbullosa #butterfly #butterflychildren #fjärilshud #fjärilsbarn #välgörenhet #välgörenhetslopp #partille #göteborg #öjersjö #kåsjön #älskalöpning #trail #trailrunning #springigbg #löparglädje #trailrunningsweden #löpning

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5/15/2024, 10:11:56 PM

Posted @withregram • @ebloppet.se Anmälan har öppnat! www.ebloppet.se Den 14 september klockan 11:00 i Kåsjön, Partille är det dags. Hoppas vi ses där - detta är det sista loppet vi arrangerar och visst vore det häftigt att avsluta med en grande finale?! • Vi tycker verkligen att du ska ta chansen att vara med i år, på just dina villkor. Spring/jogga/gå/rulla detta familjära lopp där alla kan vara med. Välj mellan tre sträckor: 3,1 eller 10,5 eller 15,5km. • Det viktigaste är inte att springa, det viktigaste är att bidra till forskningen. Om du inte kan komma den 14:e så går det jättebra att enbart skänka en slant. Som företag kan ni gå in som sponsor, mer info på hemsidan. • Swish: 1230206490 Bankgiro: 5149-9028 www.ebloppet.se • #Ebloppet #run4ebsweden #cureeb #healeb #fighteb #stopeb #epidermolysisbullosa #butterfly #butterflychildren #fjärilshud #fjärilsbarn #välgörenhet #välgörenhetslopp #partille #göteborg #öjersjö #kåsjön #älskalöpning #trail #trailrunning #springigbg #lö parglädje #trailrunningsweden #löpning

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5/15/2024, 9:31:36 PM

@ebloppet.se ⭐️Nu är vi lite extra stolta!! ⭐️ • 2023 samlade EB-loppet med hjälp av alla er fantastiska välgörare in 185000kr till forskning - STORT TACK!! Efter dialog med vännerna i Debra Österrike kring aktuella studier som pågår så valde vi att för tredje året i rad att skänka pengarna till ”Leon 1” - läs gärna mer på vår hemsida. Totalt sett har vi då med er hjälp finansierat så mycket som 1/3 av hela projektet, visst är det häftigt?! • ”DEBRA Austria, Prof. Carlos Leon, and his team are grateful for your contribution. It is exceptional how much funds you raised for EB research. What you achieved in providing almost EUR 50.000 for a research project is incredible.” • #Ebloppet #run4ebsweden #cureeb #healeb #fighteb #stopeb #epidermolysisbullosa #butterfly #butterflychildren #fjärilshud #fjärilsbarn #välgörenhet #välgörenhetslopp #partille #göteborg #öjersjö #kåsjön #älskalöpning #trail #trailrunning #springigbg #löparglädje #trailrunningsweden #löpning #debraaustria #debrainternational

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5/13/2024, 7:49:16 PM

⭐️Nu är vi lite extra stolta!! ⭐️ • 2023 samlade EB-loppet med hjälp av alla er fantastiska välgörare in 185000kr till forskning - STORT TACK!! Efter dialog med vännerna i Debra Österrike kring aktuella studier som pågår så valde vi att för tredje året i rad att skänka pengarna till ”Leon 1” - läs gärna mer på vår hemsida. Totalt sett har vi då med er hjälp finansierat så mycket som 1/3 av hela projektet, visst är det häftigt?! • ”DEBRA Austria, Prof. Carlos Leon, and his team are grateful for your contribution. It is exceptional how much funds you raised for EB research. What you achieved in providing almost EUR 50.000 for a research project is incredible.” • #Ebloppet #run4ebsweden #cureeb #healeb #fighteb #stopeb #epidermolysisbullosa #butterfly #butterflychildren #fjärilshud #fjärilsbarn #välgörenhet #välgörenhetslopp #partille #göteborg #öjersjö #kåsjön #älskalöpning #trail #trailrunning #springigbg #löparglädje #trailrunningsweden #löpning #debraaustria #debrainternational

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5/13/2024, 10:32:16 AM

Happy Mother's day to all EB Moms ❤❤❤ #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #bliss ters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior💪

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5/12/2024, 4:00:45 PM

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5/11/2024, 4:00:37 PM

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5/5/2024, 4:00:41 PM

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5/4/2024, 4:00:35 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/28/2024, 4:00:19 PM

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4/27/2024, 4:00:16 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/21/2024, 4:00:12 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/20/2024, 4:00:11 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/14/2024, 4:00:12 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/13/2024, 4:00:13 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/7/2024, 4:00:14 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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4/6/2024, 4:00:16 PM

Happy Easter 🐰 to all EB Families! Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/31/2024, 4:00:22 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/30/2024, 3:00:32 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/24/2024, 3:00:39 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/23/2024, 3:00:17 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/17/2024, 3:00:45 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/16/2024, 3:00:25 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/10/2024, 3:00:44 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/9/2024, 4:00:42 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/3/2024, 4:00:26 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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3/2/2024, 4:00:34 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/25/2024, 4:00:29 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/24/2024, 4:00:18 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/18/2024, 4:00:28 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/17/2024, 4:00:40 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/11/2024, 4:00:31 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/10/2024, 4:00:32 PM

"Mum when re we landing?" 1th flight. Done 🦁 #mumandson #meandmyboy #mumlife #mybabyboy #1thtime #eb #epidermolysisbullosaawareness #stopeb #lifewitheb @ieb_debra

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2/7/2024, 3:57:44 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/4/2024, 4:01:08 PM

Make a smile #mylion #mylife #mumlife #mumandson #photooftheday #meandmyboy #myboy #lifewitheb #stopeb #schmetterlingkinder #schmetterlingkind #epidermolysisbullosa

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2/3/2024, 8:41:40 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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2/3/2024, 4:00:31 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/28/2024, 4:00:39 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/27/2024, 4:00:41 PM

#Repost @ebinfoworld Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/24/2024, 5:59:32 AM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/21/2024, 4:00:33 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/20/2024, 4:00:57 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/14/2024, 4:00:46 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/13/2024, 4:00:49 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/7/2024, 4:00:46 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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1/6/2024, 4:00:26 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/31/2023, 4:00:45 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/30/2023, 7:13:03 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/23/2023, 7:16:46 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/17/2023, 7:17:38 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/16/2023, 6:36:36 PM

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12/13/2023, 1:30:42 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/10/2023, 6:23:16 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/9/2023, 7:23:03 PM

Help us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/3/2023, 6:55:21 PM

elp us raise awareness for Epidermolysis Bullosa and let's find a cure!! #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicpainwarrior

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12/2/2023, 8:10:37 PM

@stric.podd Avsnitt 2 ute nu, historien om EB-loppet! En idé som blev verklighet - men första året gick ju faktiskt inte alls som bröderna trott. • Följ podden på t.ex. Spotify så du inte missar något avsnitt. Länk till Podbean finns i vår bio, där ser du också vilka podcastplattformar vi finns på (fler kommer). • #Ebloppet #run4ebsweden #cureeb #healeb #fighteb #stopeb #epidermolysisbullosa #butterfly #butterflychildren #fjärilshud #fjärilsbarn #välgörenhet #välgörenhetslopp #partille #göteborg #öjersjö #kåsjön #älskalöpning #trail #trailrunning #springigbg #löparglädje #trailrunningsweden #löpning #stricpodd #podd #nypodd #podcast #läsamellanraderna #hursvårtkandetva

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11/23/2023, 6:23:21 PM

Posted @withregram • @stric.podd Avsnitt 2 ute nu, historien om EB-loppet! En idé som blev verklighet - men första året gick ju faktiskt inte alls som bröderna trott. • Följ podden på t.ex. Spotify så du inte missar något avsnitt. Länk till Podbean finns i vår bio, där ser du också vilka podcastplattformar vi finns på (fler kommer). • #Ebloppet #run4ebsweden #cureeb #healeb #fighteb #stopeb #epidermolysisbullosa #butterfly #butterflychildren #fjärilshud #fjärilsbarn #välgörenhet #välgörenhetslopp #partille #göteborg #öjersjö #kåsjön #älskalöpning #trail #trailrunning #springigbg #löparglädje #trailrunningsweden #löpning #stricpodd #podd #nypodd #podcast #läsamellanraderna #hursvårtkandetva