Have you heard of Prader-Willi Syndrome (PWS)? Many have not heard of this rare genetic disorder that impacts individuals in many aspects including learning and socializing abilities. Spreading awareness on Prader-Willi Syndrome Awareness Month! (Shoutout to @pwsausa for leading the charge and to our local Prader-Willi California Foundation @praderwillicalifornia!) #PraderWilliSyndrome #PWS #PraderWilliSyndromeAwareness #PraderWilliSyndromeAwarenessMonth #RareGeneticDisorder #GeneticDisorder #DabsInc
THIS SATURDAY! We are SO excited to see you at our Run for A-Rare-Ness and Wiffle for a cure THIS Saturday! Be sure to tag us in any of your photos from the weekend! #curehurler2025 #fightmps1 #raiseawareness #prayersneeded #raredisease #rarediseasewarrior #fightforacure #findacure #mps1 #hurlersyndrome #withawarenesscomesacure #disabilityawareness #disability #prayer #prayforacure #disabilitysupport #disabilitycommunity #disorder #disability #disordersupport #disordercommunity #rarediseasedisorder #geneticdisorder #genetics #research #disabilitylife #weneedacure #livingwithdisability #mps #hurler
ANNOUNCEMENT!!! I AM AN AUTHOR!!! I have written books before, but this one is different because it is a full length book that will be available on Amazon, Walmart, Target, Barnes and Noble, as well as our website! And you can go ahead and pre-order the book through my website right now, and it will be mailed out within the next few weeks!! The book is for parents and practitioners to paint a different picture for how we can conceptualize supporting all children better so they can grow into their best selves!! https://amybodkin.com/product/special-needs-kids-are-people-too-book/ #SpecialNeedsKidsArePeopleToo #Autistic #ADHD #LearningDisabilities #Dyslexia #Dysgraphia #Dyscalculia #DownSyndrome #CancerKids #ChronicIllness #Autoimmune #Trauma #Adoption #Allergies #Disabilities #GeneticDisorder #EhlersDanlos #Dysautonomia #MastCellActivationSyndrome #Neurodivergent #Anxiety #Depression
Comment your thoughts!💖 - 📸 Via Comment your thoughts!💖 - Tag someone who needs to see this💙 - 💥𝐆𝐨 𝐭𝐨 𝐭𝐡𝐞 𝐰𝐞𝐛 𝐩𝐚𝐠𝐞 𝐋𝐢𝐧𝐤 𝐢𝐧 𝐁𝐢𝐨 𝐭𝐨 ▶️𝐏𝐮𝐫𝐜𝐡𝐚𝐬𝐞 𝐢𝐭! - - - - #epilepsi #epilepsyeducation #cerebralpalsy #epilepsyadvocate #seizures #epilepsymom #cureepilepsy #epilepsia #infantilespasms #epilepsysucks #epilepsyfoundation #epilepsylife #geneticdisorder #epilepsymonitoring #epilepsyfoundationofamerica #epilepsywalk #temporallobeepilepsy #epilepticseizure
7+2 PROMO (6-MONTH THERAPY) SUCCESSFULLY DELIVERED TO BACOLOD ⭐⭐⭐⭐⭐ First client natin this month na nag avail ng 7+2 PROMO. Thank you so much po ma'am sa tiwala. Praying that you'll achieve better health with Elixir Placenta Premium 😇🙏 We have on going Promo 7+2 😍 BUY 7 Bottles GET 2 Bottles FREE For Orders and Reservations, Direct message nyo po ako o tawagan sa number na ito 📞 0905-1685-841 We Offer: ✅Personal Delivery within Metro Manila and Nearby Areas ✅Cash On Delivery ✅Cash On Pick Up Visit our Website: www.elixirplacentapremium.com #stemcell #stemcelltherapy #stemcelltreatment #antiaging #antiinflammatory #AntiinflammatoryTherapy #DNATherapy #DNA #genetics #geneticdisorder #diabetes #cancer #placenta #placentaencapsulation #arthritis #leukemia #chronickidneydisease #chronicdisease #multiplesclerosis #stroke #strokerecovery #braintumor #hope #faith #hearthealth #lifestyle #antioxidants #elixirplacenta #elixirplacentadistributor #MarylJasmin
A little walk and picnic at the playground this morning 🥰 rs is such a blessing, zigzagging through all those strollers 🤭 ~ ~ ~ ~ @SolnceSlings Fern Gulf Coast 🤱 #babywearing #Babywearinglove #wearallthebabies #Solnce #SolnceSlings #draagdoek #wrapcuddles #solncelove #toddlerwearing #solncemagic #closeenoughtokiss #keepthemclose #proudmama #Dragenmetliefde #Genietmoment #genietmomentje #genieten #babyopkomst 📸 #babywearingselfie #zewordenzosnelgroot #babydragen #babywearingmama #peuterdragen 🌿 #SolnceFern #SolnceFerns #ferngulfcoast 🌿 #developmentaldelay #geneticdisorder #adnp #solncerepost
📣 Her 8 kadından 1’i MEME KANSERİ!! 📣 Kalıtsal meme kanserlerinin yüzde 80’inden sorumlu iki gen var: BRCA-1 ve BRCA-2. 📣 BRCA-1 geninde bozukluk (mutasyon) olan kadınlarda 70 yaşına dek meme kanseri gelişme riski yüzde 85, over (yumurtalık) kanseri riski ise yüzde 45. BRCA-2 gen mutasyonu taşıyıcılarındaysa, 70 yaşına dek meme kanseri riski yüzde 84 ve yumurtalık kanseri riski yüzde 76. 📣 BRCA1 ve BRCA2 genlerinin neden olduğu diğer kanserler: -Erkekte meme kanseri -Prostat kanseri -Pankreas kanseri -Melanom ‼️ İki veya daha fazla yakın akrabanın (anne-baba, kardeşler, çocuklar) 50 yaşından önce meme kanseri öyküsü olması, ‼️ Erkek akrabada meme kanseri varsa ‼️ Bir kadın akrabada hem meme hem de yumurtalık kanseri olması, ‼️ İki akrabada yumurtalık kanseri varsa, ‼️ Akrabasında BRCA-1 ve BRCA-2 genlerinde mutasyon saptanan kişiler ve yine yakınları varsa mutlaka genetik danışmanlık ve test için yönlendirilmelidirler. Kanserlerde ERKEN TANI çok önemlidir. Bu nedenler ailede kanser öyküsü olan bireyler mutlaka danışmanlık almalıdırlar. #genetik #genetic #van #alfagen #genetiklaboratuvari #genetikhastalik #geneticdisorder #cancer #kanser #memekanseri #breastcancer #overiancancer #yumurtalıkkanseri #kadınsağlığı #prostatkanseri #pankreaskanseri #melanom
This 🙌🥰💛🎗️🩷 Posted @withregram • @the.chronic.wanderer You didn’t do anything to deserve your chronic illness or pain. There’s so much external messaging from doctors and society as a whole that blame patients for their conditions. Doctors will lecture you about “stress management” or “sleep hygiene” as ways to shift the blame to you when their proposed treatments don’t work. Society will make you feel like you’re lazy or worth less than others because you’re chronically ill and can’t hold down a job or need disability benefits. It’s so easy to internalize these messages, but none of it is true. You didn’t do anything to deserve being chronically ill or in pain. Maybe you don’t spend as many hours a day doing PT as would be ideal for all of your issues or sometimes you eat things you know will make you sick, but no one’s perfect. Expecting chronically ill patients to constantly be managing their symptoms leaves no time to actually live your life. As important is it is to manage my health, it’s also important for my mental health not to feel like a patient 24/7. And to give my mind and body some breaks so I can experience joy amidst all the pain. Sure it would probably be better for my body if I was constantly at home, especially now that it’s getting warm out which is a trigger for me. But I’d much rather be having a hard Monday after spending a wonderful weekend in LA with my family than if I had skipped the baby shower because it could flare my symptoms up. No matter what decisions you make in order to add as much happiness and joy to your chronically ill life are perfectly ok, and they don’t mean you deserve to be sick. You’re doing the best you can and that’s all you can ask for. Does anyone else struggle with feeling like their illness is their fault? Especially if you aren’t doing everything “perfectly” to manage your health? Leave a 🩵 or comment! #chronicpain #chronicillness #autoimmune #disability #raredisease #geneticdisorder #spoonie #spoonielife #spooniecommunity #spooniesupport #medicallife #medicallifestyle #joyandpain #patientblaming #medicalgaslighting #chronicillnessawareness #chronicillnesslife #chronicillnesscommunity #chro
In this Part 1 of a two part story, Nicky and Matt share their experience receiving a devastating diagnosis during the second trimester of their pregnancy. Their much-desired daughter, Lucy, has Trisomy-9, a chromosomal disorder that is often incompatible with life. Language barriers, Nicky’s rare blood type, and many other factors complicate their journey. While their story has a positive ending, in the interview we discuss the topics of miscarriage, the rhogram shot, abortion, and amniocentesis, as these are real issues and considerations they had to face along the way. If you find any of these topics emotionally triggering, we encourage you to put a pause on the episode and come back at another time. In addition, you may consider reaching out to a licensed counselor. Listen to Part 1 of their story this week, then come back next week for Part 2-featuring an induction, working with a virtual doula and IBCLC, their breastfeeding/pumping journey, and an update on how their beautiful daughter Lucy is today! Many thanks to Matt and Nicky for sharing your story! #havingababyinchina #havingababyinchinathepodcast #trisomiy9 #trisomia #rhogam #anegativebloodtype #amniocentesis #miscarriage #virtualdoula #virtualibclc #geneticdisorder #genetictesting
May is EDS awareness month. The more I speak about my journey with Ehlers Danlos… the more people I learn also have it. It’s more prevalent than one thinks. Many people either don’t know, or they hide it well. #eds #ehlersdanlos #ehlersdanlossyndrome #ehlersdanlosawareness #zebra #genetics #geneticdisorder #geneticdisorders #raredisease
ATRx awareness is May 10th so I’ll be showing off my little warrior for the whole month ❤️ #atrxsyndrome #atrxawareness #geneticdisorder #atrx
Selfie. #ehlersdanlossyndrome #eds #chronicillness #edsawareness #edsawarenessmonth #hEDS #thisisEDS #🦓 #hypermobilityproblems #edsproblems #ehlersdanlos #geneticdisorder #geneticdisease #allthebraces
Miss Intercontinental Great Britain 7 Day Countdown 🇬🇧 Day 2 - Why MIO GB? First and foremost the Miss Intercontinental GB system is about sisterhood, I love that three titleholders are crowned and travel to internationals as a team, to me that is the epitome of what pageantry stands for, women supporting women! I love that there is the opportunity to represent England, Scotland and Wales. A little fun fact about me is that I come from a family of empowered Scottish beauty queens, my mum being Mrs Galaxy Great Britain, my Nan and Great Nan also being former Scottish beauty queens. It would be a dream to carry on this tradition in my family 🏴 As a small business owner and author I felt particularly drawn to MIO as this system celebrates independent business women. My sustainable business Winning Wardrobe Rentals allows pageant girls to wear couture gowns at an affordable price and allows them to feel like the best version of themselves during their competitions. As a future lawyer who dreams of starting her very own firm I truly resonate with the message MIO stands for. There is no specific charity that MIO GB supports meaning I could use my sash to its full potential raising awareness about rare genetic disorders in honour of my little sister. The Power of Beauty 2022 winner Emmy Carrero is inspiring to me as a children’s author, business woman and creator of a nonprofit organisation. I saw myself reflected within the titleholders of this incredible organisation and that is why I entered MIO GB 🇬🇧 Miss Intercontinental GB Final 🇬🇧 Saturday 4th May 2024 The Radlet Centre 📍 @missintercontinentalgb #missintercontinentalgb #missintercontinental #powerofbeauty #beautifullyinspiring #pageantry #pageantsisters #timefortalk #advocacy #geneticdisorder #pageantfans
Fifteen Days of Facts for a Cure #iamtsc #tscwarrior #tscstrong #tuberousslerosiscomplex #beckettsbeehive #tsc #geneticdisorder #raredisease #goingblue4TSC #goingblue4acure #hopeisnotcomplex #themoreyouknow #knowledgeispower #tscawarenessmonth #tscglobalawarenessday #findacure #tscalliance
YAY!! IT’S OFFICIAL! IN KENTUCKY, MAY HAS BEEN DECLARED NF AWARENESS MONTH! Thanks to Governor Beshear for making this happen for the Children’s Tumor Foundation and me! A few weeks ago, I requested a Proclamation and I received the official proclamation in the mail the day before my birthday declaring May as NF Awareness Month in Kentucky. Neurofibromatosis (NF) encompasses a group of genetic conditions, such as neurofibromatosis and schwannomatosis, characterized by the growth of tumors on nerves throughout the body. NF affects people of all backgrounds equally, yet its manifestations vary widely among patients. While some individuals may exhibit visible signs of NF, others may experience manifestations that aren’t as noticeable. This diversity in presentation poses unique challenges; patients with VISIBLE signs may struggle to be seen beyond their condition, while those with LESS OBVIOUS manifestations or those whose NF is INVISIBLE may find it difficult to convey the impact of NF to others and get them to understand. NF Awareness Month provides a vital opportunity to highlight the experiences of all NF patients through initiatives like ‘Make NF Visible,’ which amplify their voices and foster understanding and support. The Children’s Tumor Foundation is the world’s leading nonprofit dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide living with NF. One in every 2,000 people is born with some type of neurofibromatosis or schwannomatosis, which may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, or cancer. I’m so excited to share more this month about some cool things that I have been working on!! Dates to remember: May is NF Awareness Month (and it’s official in Kentucky!) NF1 Awareness Day is on May 17 NF2 Awareness Day is on May 22 As always, I want you to see me and see NF! 🫶🏻🫶🏻🫶🏻 #nfadvocate #nfadvocates #endnf #makenfvisible #neurofibromatosis #neurofibromatosistype1 #nfawareness #nf1 #bornafighter #geneticdisorder #advocacymatters #nfstrong
Having a chronic illness makes every single thing you do more challenging. I just finished a dentist appointment, which is something I used time just do twice a year without any though. Today, I made sure to premeditate with CGRPs, muscle relaxants, and extra pain meds knowing that the dentist can be really hard on my migraines, my occipital neuralgia, and my neck. I also brought ice packs for my head and sunglasses to block out the bright light. I had my headphones in as well so I could focus on my music instead of the loud noises in my mouth. This is just one example but it feels like literally everything I do these days takes so much extra effort. Just leaving the house I have to bring so much with me to manage my symptoms. And I have to think about rationing out my energy and setting aside time to rest. Even just doing small things around the house is difficult. If I want to do laundry, I have to break it up into steps because I get exhausted even lugging the laundry basket down the stairs. And my back hurts if I put all the clothes away at once so I have to rest in between. There’s so much mental preparation and vigilance that comes with being chronically ill. Every time you do something you’re constantly monitoring your pain, symptoms, and energy and you have to make sure you have what you need if anything flares. It can be completely exhausting. I wish that my health didn’t complicate everything I do. Can you relate? Leave a 💛 or comment! #chronicpain #chronicillness #autoimmune #disability #raredisease #geneticdisorder #spoonie #spoonielife #spooniecommunity #spooniesupport #medicallife #medicallifestyle #chronicpainandfatigue #chronicfatigue #chronicillnessawareness #migraine #heds #ehlersdanlossyndrome #neuralgia #occipitalneuralgia #chronicillnesswarrior #chronicillnesslife #chronicillnesscommunity #chronicillnesses #chronicpainawareness #chronicpainlife #chronicpainsupport
Today I step forward for all the parents navigating their child’s diagnosis. Despite how long or short the journey to a diagnosis is, the results still leave us all in the same place - looking for a community, looking for families that have been through this, and looking for a life that symbolizes what our future holds for us. Today and every day, we step forward with you. #iamtsc #tscwarrior #hopeisnotcomplex #tuberousslerosiscomplex #tsc #beckettsbeehive #geneticdisorder #stepforwardtocureTSC #tscstrong #fundraisingevent #raredisease #stepforward4tsc #tscalliance #tscawarenessmonth #tscglobalawarenessday #findacure #charityevent #shepherdstown #jeffersoncountywv
Mei is #WilliamsSyndromeAwarenessMonth ☀️ De maanden na de diagnose en het lezen van de kenmerken van het Williams syndroom waren we verbaasd dat Luciën geen huilbaby was en zijn ontwikkeling / borstvoeding zo goed bleef gaan. Een uitspraak van de kinderarts die mij is bijgebleven is “Luciën heeft het Williams Beuren syndroom maar is niet het syndroom.” En dat is goed om te onthouden. Hij kan bepaalde kenmerken hebben die andere met het syndroom ook hebben maar heeft nog veel meer kenmerken van mij en Marvin. Er zijn heel veel verschillen tussen mensen met Williams. Luciën is cognitief goed ontwikkeld maar heeft lichamelijk meer uitdagingen. Waar andere lichamelijk geen afwijkingen hebben maar nauwelijks kunnen praten. Het belangrijkste is dat het niet uitmaakt waar je goed in bent maar dat je gelukkig bent en vooral wordt geaccepteerd zoals je bent☀️. Door ons en onze lieve mensen om ons heen is Luciën zo enorm geaccepteerd en geliefd, het fijnste wat er is 🤎! #williamssyndrome #williamsawareness #williamssyndromeawareness #síndromedewilliams #wsawareness #wsawarenessmonth #wsaware #williamsbeurensyndrom #williamsbeurensyndroom #williamssindrome #syndrome #inclusion #syndromeawareness #inclusie #geneticdisorder #eigenontwikkeling
Permanent jewelry was a hit at Tea for Blu! Thank you to @daintydiamondd . . 📸: Melissa D’Souza @msmdsouza . . #BluGenesFdn #babies #children #raredisease #taysachsdisease #infant #blugenes #geneticdisorder #infancy #hope #taysachs #showyourrare #research #equity #RBC #BMO #sponsorship
I’ve talked a lot about how it’s sometimes hard to hear “you’re so strong” - but the reality is that a lot of us have been through a hell of a lot. I think back to the younger version of myself - and maybe you’re in the thick of it right now - but I remember navigating the hardest situations I’d ever faced. Having a baby in the NICU, receiving a devastating diagnosis for my baby - and then having my life thrown upside down as the caretaker to a medically fragile infant. It almost broke me, seriously. But - I made it! And I did it. And I’m DOING it, still! What are you celebrating today? Where are your wins? This caretaking life is real hard, but you’re doing it! . . . . #amotherslove #griefsupport #disabilityparenting #honestparenting #parenting #ptsd #traumarecovery #traumahealing #therapist #geneticdisorder #geneticcounseling #pediatrictherapy #disabilityrights #disabilitypride #inclusion #praderwilli #chromosomes #disabilitylife #anxietyawareness #depressionsupport #togetherstronger #momssupportingmoms #parentingtips #pediatricphysicaltherapy #pediatricspeechtherapy #emotionregulation #specialeducation #specialeducationalneeds #honestmotherhood #griefandloss
(ولا تيأسوا من روح الله إنه لا ييأس من روح الله إلا القوم الكافرون) يمكن ألا يسير إي شيء في صالحك، لكن ثقتك في الله هي التي تجعلك قادر على تجاوز ذلك، فرب الخير لا يأتي إلا بالخير. #Julia #Julia_Ayoub #larsen_Syndrome #larsensyndrome #genetic_disorder #genetic_disease #raredisease #cervical_kyphosis #cervicalkyphosis #peopleofdetrmination #people_of_detrmination #motordevelopmentdelay #pediatricphysiotherapy #DMIEGYPT #dontworry #behappy #spinalcordinjury #disability #spinalcordunjuryawarness #disabilityawarness #geneticdisorder #geneticdisease #spinalcordcompression #spinalcordrehab
Continuing our “Quotes of Hope” series! 💫 Today we have Lucia, mom to Jimena (2.5yrs old): “Research is fundamental in order to provide our kids with the best life. Hope is what fuels us to pursue it” 💚
In 2022, the SHINE Syndrome Foundation started the process of requesting and ICD-10 code for the DLG4 patient community. To this date, we have not yet been granted a code. The Center for Disease Control oversees the creation and management of ICD-10 codes and they have been reluctant to add codes for rare neurodevelopmental disorders. This is ironic and frustrating because there are codes for very niche events like being hurt by walking into a lamppost or at the opera, and 10 different codes for shark bites. An ICD-10 code is an internationally accepted diagnostic code used to describe and track a disease within a population. It is used by clinicians when they see a patient to characterize the reason of their visit and stored in their medical records. For neurodevelopmental rare diseases, like SHINE Syndrome, it would allow us to identify patients more quickly, connect them to their community, standardize the protocol of care, strengthen research efforts and link patients to projects and trials. Many neurodevelopmental disorders have been requesting codes and are being delayed or denied based on vague reasons and the CDC has not offered a solution. In support of our growing concerns and advocacy efforts, Dr David Berglund from the CDC proposed the creation of a new code category for a series of genetic neurodevelopmental disorders which he presented at the March 2024 ICD-10 Coordination and Maintenance Committee Meeting. We need to support Dr Berglund’s proposal and urge the CDC to agree to the addition of this new code by May 17th! The SHINE Syndrome Foundation will be sending a letter of support. Would you agree to help us and add your name to the letter? If yes, please follow the link to read the letter and fill the form before May 10th: https://forms.gle/cXCW2U5d7uyXo5qA6 (Link also in first comment and in stories). #RareDisease #DLG4 #SHINESyndrome #curedlg4 #epilepsy #eses #deeswas #RareEpilpesy #RareEpilepsies #genetics #research #autism #Specialneeds #IntellectualDisability #neurology #seizures #GeneticDisorder #DisabilityAwareness #hope #awareness #rare #health #nonprofit #ICD10 #ICD10code #CDC @cdcgov
🌿 Happy PKU Awareness Month! #pku #phenylketonuria #pkustrong #pkufitness #pkuadvocate #pkupregnancy #pkuawareness #maternalpku #lowprotein #geneticdisorder #metabolicdisorder
It's time for our Annual Birthday Fundraiser! This Fundraiser goes from today through June 30th! If you would like to donate in honor of our Birthdays, go to the link in our bio! #curehurler2025 #fightmps1 #raiseawareness #prayersneeded #raredisease #rarediseasewarrior #fightforacure #findacure #mps1 #hurlersyndrome #withawarenesscomesacure #disabilityawareness #disability #prayer #prayforacure #disabilitysupport #disabilitycommunity #disorder #disability #disordersupport #disordercommunity #rarediseasedisorder #geneticdisorder #genetics #research #disabilitylife #weneedacure #livingwithdisability #mps #hurler
School Genomics Do you know? Ages 5- 16 are critical years of a child's growth and development where adequate nutrition ensures long-term health and well-being. Nutritional deficiencies during formative years can predispose to chronic diseases and a failure to thrive mentally, physically and academically. Nutrients are necessary not just for growth and a strong immunity, but also for concentration, memory and academic performance. #gene #genes #genetics #geneticscreening #geneengineering #geneticsresearch #geneticvariation #geneticvariant #geneticdisorder #genetic #geneticcounseling #genetictesting #geneediting #geneeditingtechnology #dna #genomics #genomicsresearch #humangenetics #humangenetic #molecularbiologymemes #microbiology #genetherapy #biotechnology #biotechnology_science
CLC MEMBER FEATURE: Hi, I’m Lauren! I’m 34, live near Toronto, Canada, and I’m a frequent yay-sayer and glitter enthusiast 🙂✨ I was born with Central Core Disease (CCD), a rare neuromuscular disorder where the mitochondria in my muscle cells is depleted. You might have seen the meme, or remember from science class, that the mitochondria is the powerhouse of the cell - converting food into energy, and energy into strength. My own strength is about 33% of the average person, so I’ve had to be my own powerhouse. When I was 10 days old, I had my first muscle biopsy, but it was inconclusive, as was my second at 12. At 21, I had a third biopsy and was finally diagnosed. For me, CCD is an invisible disability. Walking up a flight of stairs, opening a heavy door, and getting up from sitting on the ground are difficult for me, but I spent 30+ years trying to hide it. Partly because without a diagnosis for so long, I didn’t know how to explain it to people - but even after that, I rarely talked about it because I was worried people would see me differently. Up until a year and a half ago, when I realized there are people who feel the same. Ever since I first “came out” about my disability in an inspirational speaking competition, my life has changed, I went from hardly ever talking about it, to becoming the only Canadian ambassador for the Invisible Disabilities Association (IDA), the first Canadian to win the IDA’s Inspiration Award (which has past winners like Wayne Brady and Yolanda Hadid), and the #2 Inspirational Speaker of the Year at Speaker Slam, North America’s largest inspirational speaking competition. I’ve also been featured in multiple TV interviews and online media. And my friends say I’ve started wearing brighter colours, probably because I’m not trying to hide who I am 🙂 I used to spend a lot of energy trying to be “normal,” but now realize there is no normal, there’s just us and what we do with what we’ve been given. I hope my journey encourages others who might be hiding it, to embrace and own their story too. I didn’t expect that talking about my disability would feel so freeing, but life is much better on this side! 💃
(ENG) 🕊️ Unlocking the Genetic Mystery of Pigeon Backflips Insight into the genetic reason behind why some pigeon breeds do backflips For more information, please refer to the NewSauce website in the profile link! Reporter - @rhiddl13 Editor - @jqwii3_ Citation 🌐 Science News (https://www.sciencenews.org/article/why-roller-pigeons-backflip-bird-animal 🌐 Wikepidia (https://en.wikipedia.org/wiki/Birmingham_Roller) 🌐 Wikipedia (https://en.wikipedia.org/wiki/Parlor_Roller ) 🌐 Collins Dictionary (https://www.collinsdictionary.com/dictionary/english/gene-activity#:~:text=noun,Collins%20English%20Dictionary.) 🌐 News Medical (https://www.news-medical.net/news/20200107/Scientists-uncover-new-types-of-brain-activity-that-may-be-key-to-human-intelligence.aspx) #Pigeon #Genes #Backflip #GeneticDisorder #Recessive
Day 1 of TSC Awareness Month, and we want to dedicate today’s thank you post to our incredible medical team out of @texaschildrens for standing by us, rooting for us, and ensuring we find the best possible treatment options available for Beckett. You have been the rainbow at the end of a long diagnostic journey, and we wouldn’t be where we are without you! #iamtsc #tscwarrior #tscstrong #tuberousslerosiscomplex #beckettsbeehive #tsc #geneticdisorder #raredisease #goingblue4acure #goingblue4TSC #hopeisnotcomplex #themoreyouknow #knowledgeispower #tscawarenessmonth #tscglobalawarenessday #findacure #tscalliance #texaschildrenshouston #stepforwardtocureTSC #charityevent #shepherdstown #jeffersoncountywv #fundraisingevent #stepforward4tsc
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TW: loose/unstable joints shown in this post! Fellow Zebras! I am really pleased to be joining you all from Manchester, UK to raise awareness on Hypermobile Ehlers Danlo’s Syndrome (hEDS) throughout May. My name is Indiana, I’m 31 years old and I only received my diagnosis this year after many years of experiencing joint pain/stiffness, injuries, fatigue and digestive issues. I had actually never heard of hEDS until recently and came across this through my own research and so asked my doctor about if. It’s obvious to me now, looking back and realising I have had symptoms ever since I was a kid that I should have received this diagnosis a long time ago but unfortunately no one picked up on it. It probably seems strange to my friends and family that all of a sudden if I have this genetic life long disability because I never really spoke about how it was affecting me. I genuinely thought it was just normal (for me) to have to pop my shoulder back in place now and then and to have constant aching joints and injuries! Now I understand it is definitely not normal and it’s ok to get the support I need going forward. I’ll be taking part in the 30 day social media challenge this month with @ehlers.danlos to help spread awareness. 🧡 - - - #MyEDSChallenge #MyHSDChallenge #ehlersdanlossyndrome #ehlersdanlos #heds #hypermobility #dynamicdisability #disability #disabilityfriendly #chronicillness #chronicillnessawareness #potssyndrome #raisingawareness #geneticdisorder
Deliver muna ulit tayo ng 1 bottle sa Marikina. Pangatlong repeat purchase na ito ni sir sa atin ng Elixir Placenta Premium. Maraming salamat po sa tiwala at looking forward sa tuloy tuloy na pagbuti ng inyong kalusugan 😇🙏 We have on going Promo 7+2 😍 BUY 7 Bottles GET 2 Bottles FREE For Orders and Reservations, Direct message nyo po ako o tawagan sa number na ito 📞 0905-1685-841 We Offer: ✅Personal Delivery within Metro Manila and Nearby Areas ✅Cash On Delivery ✅Cash On Pick Up Visit our Website: www.elixirplacentapremium.com #stemcell #stemcelltherapy #stemcelltreatment #antiaging #antiinflammatory #AntiinflammatoryTherapy #DNATherapy #DNA #genetics #geneticdisorder #diabetes #cancer #placenta #placentaencapsulation #arthritis #leukemia #chronickidneydisease #chronicdisease #multiplesclerosis #stroke #strokerecovery #braintumor #hope #faith #hearthealth #lifestyle #antioxidants #elixirplacenta #elixirplacentadistributor #MarylJasmin
Here is an interesting and pretty wacky tooth story for you. To put it into perspective, the average child has 20 teeth and adults have 32 teeth but a 7-year-old boy in India complaining of jaw pain was found to have 526 teeth inside his mouth. When doctors scanned and x-rayed his mouth, they found a sac embedded in his lower jaw filled with “abnormal teeth”. There were a total of 526 teeth ranging from 0.1 millimeters (.004 inches) to 15 millimeters (0.6 inches). Doctors found that the boy was suffering from a very rare condition called compound composite odontoma. What caused the condition is unclear, but it could be genetic or it could be due to environmental factors like radiation. We have to wonder how much he got from the tooth fairy. . . #teeth #526teeth #panoxray #oralsurgery #rarecondition #compoundcompositeodontoma #geneticdisorder #environmentalfactors #radiation #teeth #dental #dentist #brianscaffdds #austindentist #northwestaustindentist #keepaustinhealthy #keepaustinsmiling #austinmoms #austinmomsblog
Beckett’s Beehive is GOING BLUE! In support of Tuberous Sclerosis Complex Awareness Month, our feed is going to turn blue. We will be sharing facts, knowledge, information, and stories! #iamtsc #tscwarrior #tscstrong #tuberousslerosiscomplex #beckettsbeehive #tsc #geneticdisorder #raredisease #goingblue4TSC #goingblue4acure #hopeisnotcomplex #themoreyouknow #knowledgeispower #tscawarenessmonth #tscglobalawarenessday #findacure #tscalliance
You can't always control what life throws at you. What you can control is how you react. With epilepsy there are a lot of things you just can't control physically. At times it can feel like complete chaos! But no matter how rough things get as long as you are still breathing there is something to be thankful for. So when you are faced with challenges try to focus on what you CAN control and what you ALREADY have that makes you happy. Once you can do that everything changes. It is amazing the things you will find. What is something in your life that you are thankful for ? . . . - 📸 Via You can't always control what life throws at you. What you can control is how you react. With epilepsy there are a lot of things you just can't control physically. At times it can feel like complete chaos! But no matter how rough things get as long as you are still breathing there is something to be thankful for. So when you are faced with challenges try to focus on what you CAN control and what you ALREADY have that makes you happy. Once you can do that everything changes. It is amazing the things you will find. What is something in your life that you are thankful for ? . . . - Tag someone who needs to see this💙 - 👉𝖄𝖔𝖚 𝖈𝖆𝖓 𝖔𝖗𝖉𝖊𝖗 𝖎𝖙 𝖔𝖓 𝖙𝖍𝖊 𝖑𝖎𝖓𝖐 𝖒𝖞 𝖍𝖔𝖒𝖊 𝖕𝖆𝖌𝖊🛍️ - - - - #epilepsysucks #epilepsyfoundation #epilepsylife #geneticdisorder #epilepsyfighter #epilepsy #epilepsysupport #epilepsycommunity #epilepsyfamily #epilepsyinjury #epilepsymemes #epilepsylifestyle #epilepsysurvivors #nonepilepticseizures #epilepsias #epilepsyphotochallenge #seizurestrong #medicationsideeffects #sudepawareness #epilepsylivesmatter #epilepsyaware #epilepsyinmotion
LINK IN BIO Follow us on Instagram @paincare_trust 𝐃𝐎𝐍𝐀𝐓𝐄 𝐍𝐎𝐖 https://paincaretrust.com/cause/2198 *Please take a movements to share with love one & ask for their support* *Savelife of 8 month Baby Hadi from Pompe Rare Genetic Disease* Little Hadi Shah, just 8 months old, is facing a formidable battle against Pompe disease. Born to Fauziya and Shah Fahad, Hadi has been struggling with delayed milestones and breathing difficulties for the past two months. Pompe disease, a genetic disorder, disrupts the body’s ability to process sugars, leading to dangerous accumulations in vital organs, particularly the heart and muscles. Enzyme therapy stands as the only beacon of hope for Hadi, but its staggering *cost of Rs 75,000 per 50gm vial* is a mountain too steep for his family to climb alone. Each dose, administered intravenously every two weeks, is essential for his survival. Additionally, Hadi will require ongoing medical support and physiotherapy to manage the disease’s complexities. Every gesture of assistance, no matter how small, could make an immeasurable difference in this brave family’s journey. Please, let’s come together to offer Hadi the chance he deserves to thrive. Your compassion could be the lifeline he desperately needs. Visit website www.paincaretrust.Com #paincaretrust #raredisease #pompedisease #geneticdisorder #breathlessness #musclechallenge #hearthealth #vitalorgan #enzymetherapy #babyhelp #savelife #contribute #hospitalbills #medicinebills #costlytreatment #support #SHARES #LIKES #COMMENTS #CONTRIBUTE
LINK IN BIO Follow us on Instagram @paincare_trust 𝐃𝐎𝐍𝐀𝐓𝐄 𝐍𝐎𝐖 https://paincaretrust.com/cause/2198 *Please take a movements to share with love one & ask for their support* *Savelife of 8 month Baby Hadi from Pompe Rare Genetic Disease* Little Hadi Shah, just 8 months old, is facing a formidable battle against Pompe disease. Born to Fauziya and Shah Fahad, Hadi has been struggling with delayed milestones and breathing difficulties for the past two months. Pompe disease, a genetic disorder, disrupts the body’s ability to process sugars, leading to dangerous accumulations in vital organs, particularly the heart and muscles. Enzyme therapy stands as the only beacon of hope for Hadi, but its staggering *cost of Rs 75,000 per 50gm vial* is a mountain too steep for his family to climb alone. Each dose, administered intravenously every two weeks, is essential for his survival. Additionally, Hadi will require ongoing medical support and physiotherapy to manage the disease’s complexities. Every gesture of assistance, no matter how small, could make an immeasurable difference in this brave family’s journey. Please, let’s come together to offer Hadi the chance he deserves to thrive. Your compassion could be the lifeline he desperately needs. Visit website www.paincaretrust.Com #paincaretrust #raredisease #pompedisease #geneticdisorder #breathlessness #musclechallenge #hearthealth #vitalorgan #enzymetherapy #babyhelp #savelife #contribute #hospitalbills #medicinebills #costlytreatment #support #SHARES #LIKES #COMMENTS #CONTRIBUTE
IVF Treatment Steps From Dream to Reality! A family isn't complete without a child in the house! With the modern technology Sree Prathyusha Hospitals, comfortably fulfil your dream of a complete family! Book an appointment Now! ☎️:8608-95-8608 Follow us more for updates 👍 @sreeprathyushahospitals Disclaimer: This video is for information purposes only and not for personal treatment. Kindly consult your doctor for treatment related queries 😊 #sreeprathyushahospitals #prathyushahospitals #ladies #ivf #ivftreatment #ivfpost #geneticdisorder #genetics #folicacid #pregnancydiary #pregnancyannouncement #trendingreels #trending #maternityphotography #maternityshoot #pregnancyannouncement #newbornphotography #happypregnant #telugugynaecologist #telugureels❤️
Mostly this. Let’s do all we can to make things better. #senparenting #senparent #sensupport #geneticdisorder #asd #neurodiversity #parentsincrisis
Clinical features - greasy foul smelling stool , nasal polyps , recurrent respiratory infections , fail to gain weight despite voracious appetite. #cysticfibrosis #medicine #pediatrics #genetics #geneticdisorder #mbbs #neetpg
Day 1: Share a selfie! I’m Jayde 👋🏼 🦓 May is Ehlers-Danlos Syndrome Awareness Month. After more than 30 years of living with severe kyphoscoliosis and many of the comorbidities associated with EDS, I was diagnosed last year with EDS Type 6. 🦄 In light of EDS month, here’s a photo of my cat and I while I was recovering from hip surgery in November 2023. 🥄🐈⬛ Bilateral hip dysplasia, cam morphology and coxa valga are some of the hip problems associated with EDS I have. In a nutshell, my hips are deformed. My femur hip joints are jagged instead of round, which mean they catch onto the surrounding connective tissue and cause painful labrum tears, my hip sockets don’t connect properly, and my hips tilt forward which puts extra pressure on my lumbar and sacral spine, and my joints, legs, knees, ankles and feet. I need a full hip replacement, but my surgeons are trying to bide me more time with smaller procedures because I’m high risk. I’ll be having my next hip surgery in June. 🏥 EDS is a horribly under diagnosed and misunderstood condition affecting the connective tissues, joints, muscles, organs and bones. Let’s raise awareness and change lives around the world. #TogetherWeDazzle ✨ . . [Image ID: Post-surgery recovery selfie of myself and my black cat Troy watching over me. I’m laying on the couch looking unimpressed with the pain and amount of medication doctors had me on, patting Troy with a pile of books in the background] . . . #ehlersdanlossyndromeawareness #eds #edsawarenessmonth #zebrastrong #ehlersdanlossydrome #connectivetissuedisorder #geneticdisorder #rarediseaseawareness #invisibledisability #twistedbendyrare #zebrastrong🦓 #benddontbreak #hypermobileehlersdanlossyndrome #edstype6 #raregeneticdisorder #hipdysplasia #hipsurgeryrecovery #furryfriend #mystory #hypermobility #hypermobilitysyndrome #myedschallenge
Achondroplasia is a genetic disorder causing dwarfism. It affects bone growth, resulting in short stature. Learn more about it to understand its impact. 📌gynecologistwakad.in 📲9503214372 ✉ [email protected] 📍 https://goo.gl/maps/tMz9Yvts7J8QneT59 📍 110, KHINVASARA TRADE CENTER, Datta Mandir Rd, Mangal Nagar, Thergaon, Pimpri-Chinchwad, Maharashtra 411033 #DrRajeevNirawane #AchondroplasiaAwareness #GeneticDisorder #DwarfismAwareness #BoneGrowth #ShortStature #MedicalEducation #HealthAwareness #UnderstandingAchondroplasia #RareDisease #HealthKnowledge #PuneOrthopedics #PCMCOrthopedics #OrthopedicSpecialistinwakad
G’day! Were Dinkum Disability, a brand new organisation in South East Queensland. We are creating a community for families facing childhood-onset progressive genetic conditions. Here, you’ll connect with others who understand, share experiences, and find strength together. We empower children to thrive and families to navigate this journey with confidence. #dinkumdisability #disability #accessibility #geneticdisorder #childhooddisability #supportgroups #community
How do we define the impact of trauma? How we define pain? How do we define heartbreak and grief? And how do I prove to someone how deeply I’m hurting? Well I’m here to say you shouldn’t have to prove your pain to anyone. The grief of watching your child navigate a world that wasn’t designed for them is devastating - over and over. I’ll never get used to watching my child suffer through medical procedures or try to communicate his needs and be constantly misunderstood. We don’t need to compare who has it worse, that won’t take away either of our pain. I’m here to say I see your heartbreak and grief. I see your child’s suffering and the inequitable circumstances for disabled people - and it’s unfair. Your grief is valid here. ❤️🩹. . . . . #amotherslove #griefsupport #disabilityparenting #honestparenting #parenting #ptsd #traumarecovery #traumahealing #therapist #geneticdisorder #geneticcounseling #pediatrictherapy #disabilityrights #disabilitypride #inclusion #praderwilli #chromosomes #disabilitylife #anxietyawareness #depressionsupport #togetherstronger #momssupportingmoms #parentingtips #pediatricphysicaltherapy #pediatricspeechtherapy #emotionregulation #specialeducation #specialeducationalneeds #honestmotherhood #griefandloss
Strap yourselves in its Ehlers Danlos Syndrome awareness month! I was lucky enough to be born with a fun genetic connective tissue disorder (hypermobile) EDS which causes faulty collagen throughout the body. The list of symptoms and comorbidities is utterly ridiculous and this coupled with more women suffering it means we are regularly labelled hypochondriacs & are often subjected to medical gaslighting. Imagine going to a doctor to be told it’s all in your head or you’re just depressed or you’re just hyper mobile if you do aerobic exercise you will recover (all things that have actually been said to me). If you have hypermobile joints you may in fact have HEDS and have an explanation for your pain and multiple issues Were meant to be rare but it’s more likely we’re just rarely diagnosed https://www.ehlers-danlos.com/what-is-eds/
yay!!!! i am soooooo happy that i was able to meet my favorite minnie mouse 🫶 she is my favorite! love her so much and she makes me soooo happy! best day ever! we went to magic kingdom and we have been there the whole day (also Hollywood studios). 🥰 a dream came true . yoohoo! Ich bin sooooo glücklich, dass ich meine geliebte Minnie Mouse treffen durfte! ich liebe sie sooo und sie macht mich sooo glücklich 🫶 wir waren den ganzen Tag im Magic Kingdom und Hollywood Studios. 🥰 Ein Traum ist mit diesem Ausflug wahrscheinlich geworden #geneticdisorder #gendefekt # #microcephaly #mikrozephalie #hypotonia #hypotonie #ataxia #ataxie #globallydelayed #entwicklungsverzögerung #disabled #Behinderung #brainatrophy #hirnatrophie #minniemouse #dreamcometrue #magickingdom #waltdisneyworld #hollywoodstudio @waltdisneyworld @minniemouse
Tomorrow is May 1st meaning it's Neurofibromatosis or NF awareness month. All of May I will be posting about NF and how much my life has been effected because of it. #NF #neurofibromatosis #NF1 #tillacureisfound #Chronicpain #geneticdisorder
Miss Intercontinental Great Britain 7 Day Countdown 🇬🇧 Day 3 - Charity work Over my eight years in pageantry I have worked closely with many different charities including Together for Short Lives, ICAN, Jeans for Genes, Marie Curie UK, Genetic Alliance UK, Clatterbridge Cancer Charity, Cancer Research UK and The Christie Charity. I am proud to have raised over £3,000 for multiple charities during my years in pageantry. I volunteer each year for the Marie Curie charity as it is close to my heart. I am an ambassador for three UK charities, Jeans for Genes, Genetic Alliance UK and ICAN 🤍 Charity work is something I am extremely passionate about and not only as my journey as a Miss Intercontinental GB finalist but throughout my pageant journey as a whole I have devoted my time to my community and beyond. Miss Intercontinental GB Final 🇬🇧 Saturday 4th May 2024 The Radlet Centre 📍 @missintercontinentalgb #missintercontinentalgb #missintercontinental #powerofbeauty #beautifullyinspiring #pageantry #pageantsisters #timefortalk #advocacy #geneticdisorder #speechdelayawareness #charitywork
Pour accéder à l'article, suivez le lien de la bio. https://noprot.softr.app/ #maladiegénétique #maladiemetabolique #homocystinurie #phenylcetonurie #pku #pkucommunity #tyrosine #leucinose #maladiedusiropderable #citrullinemie #citrullinemia #geneticdisorder #phenylketonuriadiet #homocystinuria #acidemieisovalerique #deficitenotc #otc #petitdejeuner
It was 3AM when your father and I last sampled your blood. Sitting in the middle of the kitchen, wrapped in a blanket, lying in my arms. I listened to the scream as your father jabbed your tiny foot to get the blood to drip onto the sheet. I pulled you in tight to my heart as it slowly broke trying to not let you see my hurt. We’re sorry this is your new world, William. You will bleed every week since birth so we can monitor your health, my love. Your blood is our measure if you’ll be okay or not. This envelope holds the information needed to keep you healthy each week, William. It’s also a reminder of how difficult these past weeks have been. But it’s our reality, and the reality of many parents. It’ll get better with time. #pkuawareness #geneticdisorder #newbornscreeningsaveslives #pku #pkubaby #tiredmommy #newmom #newborn
Living with thalassemia is not easy, as we have to find a fresh blood donor every 15 to 20 days. And we are blessed to have blood donors like you. Thank you to all blood donors who are the source of life for many thalassemia warriors around the world 💪🏻🌍✨ We live because you give!! I request all my dear friends to visit your nearest blood bank and lend a helping hand to save a life ❤😇✨ Do share it with others to spread the word and create awareness about Thalassemia because #indiakojagaothalassemiabhagao 😊💪 I now challenge @_siddd.24_ , @oindrila_mitra_ , @sumeet._with_.ee @stalwart_vinit ,@the_md103 ,@sayali_0509 , @sahil.narang900 to participate in the campaign #indiakojagaothalassemiabhagao & post something related to thalassemia on their feed. Rules - 1. The post should be related to thalassemia 2. Use #indiakojagaothalassemiabhagao in caption 3. Tag @hiral992020 , @harshu_.10 & @priyavaswani_23 in caption. #indiakojagaothalassemiabhagao #thalassaemiaawareness #campaign #thalassaemia #geneticdisorder #blooddisorder #blooddisorderawareness #talkthalassaemia #spreadawareness #spreadtheword #preventable #prevention #ThalassemiamuktaBharat
Pickup from daycare in Gulf Coast, finally the rain is over, enjoying the sun! ~ ~ ~ ~ @SolnceSlings Fern Gulf Coast 🤱 #babywearing #Babywearinglove #wearallthebabies #Solnce #SolnceSlings #draagdoek #wrapcuddles #solncelove #toddlerwearing #solncemagic #closeenoughtokiss #keepthemclose #proudmama #Dragenmetliefde #Genietmoment #genietmomentje #genieten #babyopkomst 📸 #babywearingselfie #zewordenzosnelgroot #babydragen #babywearingmama #peuterdragen 🌿 #SolnceFern #SolnceFerns #ferngulfcoast 🌿 #developmentaldelay #geneticdisorder #adnp #solncerepost
Facial angiofibromas are a specific type of skin disorder found in TSC patients. Read through the slides to learn more about what this condition looks like and how you can spot it for yourself! #iamtsc #raredisease #tuberousslerosiscomplex #tsc #beckettsbeehive #geneticdisorder #stepforwardtocureTSC #tscstrong #charityevent #shepherdstown #shepherduniversity #genetics #hopeisnotcomplex #tscwarrior #stepforward4tsc #tscalliance #skinandtsc #themoreyouknow #knowledgeispower
We love to see that smile! #curehurler2025 #fightmps1 #raiseawareness #prayersneeded #raredisease #rarediseasewarrior #fightforacure #findacure #mps1 #hurlersyndrome #withawarenesscomesacure #disabilityawareness #disability #prayer #prayforacure #disabilitysupport #disabilitycommunity #disorder #disability #disordersupport #disordercommunity #rarediseasedisorder #geneticdisorder #genetics #research #disabilitylife #weneedacure #livingwithdisability #mps #hurler
Rolling Over is complex! Your child doesn't just need strong core muscles to roll over. 🧠Your child's brain also needs to be able to coordinate all of their muscles to contract at the right time and release at the right time. Contract and release Allll the muscles that control the head, spine, pelvis, arms and legs. 🧠 That's a lot of muscles the brain has to coordinate! It's a beautiful dance of organized movement to Roll Over. that requires the BRAIN to be able to coordinate the entire body. ✅ Help your child with developmental delays or disabilities learn to Roll Over with the Brain-Based exercises that help the organization of all of their muscles, inside the "Rolling Over" mini course. 👉Link in bio @mindfullmoves.jen 👇 or comment "Roll Over" 👇 for link #anatbanielmethod #neuromovement #cerebralpalsy #geneticdisorder #spasticity #rollover #babymilestone #lowtone #developmentaldelay #developmentaldisabilities
@missymaesfarm , a local veteran-owned cottage food business, will be on site and offering small batch hand made goods! We can’t wait to get our hands on some locally sourced foods! #iamtsc #raredisease #tuberousslerosiscomplex #tsc #beckettsbeehive #geneticdisorder #stepforwardtocureTSC #tscstrong #charityevent #shepherdstown #shepherduniversity #genetics #hopeisnotcomplex #tscwarrior #stepforward4tsc #tscalliance #beehivesupporter
Cre @epilepsysociety What is one thing you would like others to know about living with epilepsy? 💜 - 📸 Via Cre @epilepsysociety What is one thing you would like others to know about living with epilepsy? 💜 - Tag someone who needs to see this💙 - 👉𝙂𝙚𝙩 𝙜𝙞𝙛𝙩𝙨 𝙗𝙮 𝙩𝙝𝙚 𝙡𝙞𝙣𝙠 𝙖𝙩𝙩𝙖𝙘𝙝𝙚𝙙 𝙞𝙣 𝙩𝙝𝙚 𝙗𝙞𝙤❤️ - - - - #epilepsia #infantilespasms #epilepsysucks #epilepsyfoundation #epilepsylife #geneticdisorder #epilepsyfighter #epilepsy #epilepsysupport #epilepsycommunity #epilepsyfamily #epilepsyfoundationofgeorgia #epilepsysufferer #epilepsyinjury #epilepsymemes #epilepsylifestyle #epilepsysurvivors #nonepilepticseizures #epilepsias #epilepsyphotochallenge #seizurestrong #medicationsideeffects #sudepawareness #epilepsylivesmatter
