💙Today marks #InternationalPompeDay and this year’s theme is, “Together We Are Strong”. Established by the International Pompe Association (IPA), and supported by numerous rare disease organizations across the world, this day serves as a beacon of awareness, inspiration, and support for those affected by this rare disease. In support of this awareness day, we are highlighting the latest medical news, patient perspectives, and resources with our rare community. Whether you are battling this rare disease, advocating to make a difference, or fighting to find a cure, we’d like to take the time to remind our rare disease community that— Together We Are Strong. To learn more about Pompe disease click the link in bio! #PompeDisease #Pompe #InfantileOnsetPompeDisease #IOPD #LateOnsetPompeDisease #LOPD #EarlyOnsetPompeDisease #EOPD #PompeStrong #GreaterThanPompe #PompeAwareness #GlycogenStorageDisease #TimeIsMuscle #PompeDay #MoreThanRare
Today is Pompe Awareness day! It was once thought that Pompe affected 1:40,000 people, but newborn screening in the US has shown that it is thought to be closer to 1:18702. We send sloths out to recently diagnosed children and our Hope Travels map is already showing the positive effects of newborn screening. Time is muscle, The earlier the diagnosis The better the prognosis And lives are saved too. #PompeDay #NewBornScreening #TimeIsMuscle
Join us on 04/21/2024 and get learn how to provide first aid, CPR and use an AED. Email our team at [email protected] for more information or to register. #trumbullemergencymedicalservices #trumbullct #onetownoneteam #community #temsvolunteers #cprsaveslives #earlydefibrillationmatters #timeismuscle #aha #communityfirstresponders 💙🧡🚑
Next up is Carleen. Carleen is crushing her fundraising goals and getting so creative doing so, we couldn’t be more proud to have her on #TEAMDION 🏃🏻♀️The big day is just 1 WEEK OUT!! LETS GO CARLEEN!! CARLEENSWHY ⬇️ 🏃🏻♀️Why are you running on Team Dion?? Carleen: This will be my first time running the Boston Marathon and I am running for The Dion Foundation. The thoughts of innocent children losing the basic ability to walk, is truly devastating. I admire the tenacity and will these parents have to advocate for their children. They are working tirelessly to get the funding needed for clinical trials in hopes to find a cure for these rare diseases in addition for being the primary caretakers of their children batting this disease. Time is literal muscle for these children and I wanted to do my part to help spread awareness and advocate for them. Training for a marathon while/ spreading awareness has been a humbling experience; I have been reminded how it is truly a gift to be able to run when there are those who can’t. So this year, I am running Boston for those who can’t all the while being an advocate for children with rare diseases. 👨👩👧👦 What’s something about yourself? Carleen: My name is Carleen Cox and I will be participating in the 128th running of the Boston Marathon. I reside in North Andover, MA with my husband, Brendan, and our two children Connor (three years old) and Camryn (one year old). I am a Professor in the School of Nursing and Health Sciences at Merrimack College and I also practice as a Nurse Practitioner in the Cambridge Breast Center through Cambridge Health Alliance. I love spending time with my family, reading, going to the beach and exercising. I played basketball for Saint Anselm College and still enjoy to play with my former teammates. It’s truly heartening to witness individuals like Carleen committing their time and energy to our cause. As she enters her final week before the marathon, let’s stand behind her and offer our support, cheering her on as she races for a cause larger than herself. If you’re able, consider donating to support her journey!! LINK IN BIO #bostonmarathon #timeismuscle #TEAMDION
STRONGER THAN MUSCULAR DYSTROPHY Kids with muscular dystrophy face unique challenges daily. Our goal is to continue to fund research for treatment to increase their quality life and their chance of survival. All children deserve that. Visit our website to learn more! #timeismuscle #ourmissionyourhelp
High Bar is mental for me. Getting better at it though. We gon keep grinding through. #powerlifting #highbarsquats #sqauts #legs #keepgoing #fitness #fitlife #gripandrip #timeismuscle #eat
𝐈𝐦𝐩𝐨𝐫𝐭𝐚𝐧𝐜𝐞 𝐨𝐟 𝐭𝐢𝐦𝐞 𝐢𝐧 𝐇𝐞𝐚𝐫𝐭 𝐀𝐭𝐭𝐚𝐜𝐤 After heart attack symptoms, the gold standered treatment of primary angioplasty, done within initial few hours can save heart muscle from damage and prevent cardiac arrest. #timeismuscle #heartcareinaheartbeat #heartattack #drmridulbhushan
𝐈𝐦𝐩𝐨𝐫𝐭𝐚𝐧𝐜𝐞 𝐨𝐟 𝐭𝐢𝐦𝐞 𝐢𝐧 𝐇𝐞𝐚𝐫𝐭 𝐀𝐭𝐭𝐚𝐜𝐤 After heart attack symptoms, the gold standered treatment of primary angioplasty, done within initial few hours can save heart muscle from damage and prevent cardiac arrest. #timeismuscle #heartcareinaheartbeat #heartattack #drindrajeetahuja
We are in this together 🌈 *PLEASE READ* Thank you @roseandresilience for finding an amazing way to spread awareness and raise funds towards research for LGMD2C! All profits from the #BRAVECAMPAIGN benefit the LGMD2C research project at VCU 🙏🏻 (more info coming soon!) please take a moment to check out these adorable bracelets and C’s story over at R&R 🎀 In a world of unknowns & navigating an ultra-rare devastating disease diagnosis - finding another child and another family facing the same challenges is priceless. We are in this T O G E T H E R. We are stronger together. 💪🏻 And we WILL make a difference for beautiful children like C, Peter and Maggie - who are all waiting for a treatment. 🩵💙💜🩷🧡💛 No Child Left Behind #musculardystrophyawareness #timeismuscle #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Sharing this post that blew my socks off - from Facebook group. (Anonymous unless the author wants to identify themselves 💚🌈) “PSA: Buy the men in your life a bracelet. We are loving wearing our Brave Campaign bracelets every day at the hospital, and I really enjoy talking about the cause. BUT, I always have to bring the topic up because no one bats an eye at the bracelet on my wrist. My husband, on the other hand, gets asked multiple times a day if his daughters made the bracelet for him (or they ask if he is a Swiftie 😆). He explains about C and LGMD2C...AND THEN THEY ASK FOR INFO ON HOW TO JOIN IN! So yeah, buy the men all the bracelets (large works great for mine) and send them a snapshot of the info card. Seriously, let’s get more people talking about this in the absolute EASIEST way possible!” Thank you for including your whole families in this effort. Thank you for sharing about Charlotte wherever you go. One of the hardest parts of trying to raise funds for rare disease is that it’s so hard to get the word out - so thank you for helping us tell the world about lgmd2c, Charlotte, and all the other kids that deserve a future they can dream about. #musculardystrophy #lgmd #timeismuscle #tayorswift #handmade #shopsmall #thebravecampaign #letthembelittle #righttochildhood
💡Fact Friday: 95% of rare diseases do not have a treatment readily available. Nearly 10% of people in this country have a rare disease — that’s about 30 million people. But safe, effective treatments exist for only a few hundred out of thousands known rare diseases. Why? The number of people with each rare disease is small, so many drug companies don’t invest the millions of dollars needed to develop treatments for rare diseases. Thats why we created The Dion Foundation. A place where we can drive change because every patient deserves access to treatment. #timeismuscle #strongertogether #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Just some bracelets ready to be made - any guesses on what they are? I’ve got two samples ready to send to the first people who guess right! 🤔💚🌈✨ #musculardystrophy #timeismuscle #taylorswift #handmade #letthembelittle #shopsmall #thebravecampaign
I think 95% of my favorite ideas have been collaborations with the unbelievable @kristinhinnant. She just takes this unfocused vision and turns it into magic. Just a little sneak peak of something we are working on 💚🌈✨🥹 #mine #taylorswift #musculardystrophy #timeismuscle #lgmd #letthembelittle #righttochildhood #handmade #shopssmall
The Dion Foundation merch all the way in Hawaii 💙 We have a full swag shop on our website, check it out! #timeismuscle #strongertogether #thedionfoundation
Epicardial fat 🐷 #cardiology #ctscan #ccta #cardiologyresident #epicardialfat #afib #ccs #heartfailure #heart #adipokines #coronaryarterydisease #timeismuscle #ablation #imaging #cardiovascularimaging
Plane ride. Doctors appointment. Blood draw. Tests. More tests. More appointments. Plane ride. Car ride. Orthopedic appointment. Brace fittings. Physical therapy. Plane ride. More doctors appointments. More Blood drawn. More car rides. More plane rides. It’s been one year of continuous visits to out of state hospitals and although every appointment is different, one thing always remains: the bravery behind the smiles on these faces. Doctor appointments are unpleasant enough never mind traveling across country to get there. These two display strength in every form all day everyday and it’s beyond admirable. #timeismuscle #strongertogether #thedionfoundation
⏱️Every Second Counts: Opening the Coronary Artery during a STEMI ⏱️ Did you know that in a heart attack, time is muscle? ⚡️When someone experiences a ST Elevation Myocardial Infarction (STEMI), swift action is crucial. 🚨🚑 Opening the blocked coronary artery ASAP can save heart muscle and lives. 🫀 Let’s raise awareness about the importance of timely intervention in heart emergencies! #TimeIsMuscle #HeartHealth #STEMIawareness #KnowTheSigns
Santa brought some good swag this year! 🎅🏽 🎁 THANK YOU everyone who has purchased our merch and have been so proudly wearing it- sharing our cause and our mission! Raising awareness is so important for these rare diseases - TOGETHER we are STRONGER 💪🏻 Visit the link in our bio to purchase and be sure to send/tag us in your #TDFSWAG 🤍🤍🤍 #MaggiesRunningTips #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #timeismuscle #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Thank you all for your prayers, support, and compassion on Giving Tuesday! Because of your generosity, KOMD was able to raise over $65,000 with the match! We are grateful to every one of you and feel blessed to have so many difference makers on our team! These funds will be directed by KOMD to critically needed cutting edge DMD research to develop treatments and a potential cure! You are going to be a big part of meaningful life changes for Conner and thousands of other kids that suffer from Duchenne. Special thanks go out to our 3 anonymous matching donors – your generosity drove some incredible giving! Thanks for the match! Thanks every one for your support and kindness! We are truly humbled by the kindness you have shown!! Have a wonderful Holiday Season! God Bless you all!! #thankyougodforanotherday #timeismuscle #givingtuesday #komd
ASA 💊 #cardiology #medicine #drug #asa #antiplatelettherapy #heart #timeismuscle #ppi #bleeding #cox #currentoasis #pepticulcer
On this world kindness day, let’s remind everyone that kindness is a language everyone understands. 💙 #timeismuscle #strongertogether #thedionfoundation #worldkindnessday #HustleForTheMuscle #golftournament #charitygolftournament #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
One week later and our hearts are still so full. Our first 'Par for the Cure' golf tournament was a hole-in-one success! Just WOW. Thank you to the incredible support of our sponsors, generous raffle ticket sales, an exciting live auction, and heartfelt donations, we raised $75K!!! These funds are our driving force to advance scientific research and get us closer to a cure for children like Peter and Maggie. THANK YOU for making this possible, people like you are what drive our mission forward Our mission, your help 💙 No child left behind #timeismuscle #StrongerTogether #parforaccure #HustleForTheMuscle #golftournament #charitygolftournament #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Criteri di Duke per la diagnosi di endocardite infettiva 🧫 #cardiologia #medicina #endocardite #dukecriteria #staphylococcusaureus #streptococcus #timeismuscle #cardiology #hacek
RTD bersama dr. Zulfan Efendi, Sp. JP Terima kasih dok 🙏🏻👍🏻 #TimeIsMuscle
𝐈𝐦𝐩𝐨𝐫𝐭𝐚𝐧𝐜𝐞 𝐨𝐟 𝐭𝐢𝐦𝐞 𝐢𝐧 𝐇𝐞𝐚𝐫𝐭 𝐀𝐭𝐭𝐚𝐜𝐤 After heart attack symptoms, the gold standered treatment of primary angioplasty, done within initial few hours can save heart muscle from damage and prevent cardiac arrest. #timeismuscle #heartcareinaheartbeat #heartattack #drvishalgupta
People backstage were calling me Mr. Plastic with this conditioning 🤣😆😉….. #flexfriday #mensphysique #bodybuilding #tbt #gymmotivation #timeismuscle
Today is the International Restart a Heart Day. The message is clear: if you see a person unresponsive, no pulses felt, call emergency and start chest compression immediately… as we say in Cardiology: Time is Muscle ❤️ #heart #cpr #savinglives #Cardiology #chestcompression #stayingalive #nopulse #timeismuscle #heartbeat #emergency #basiclifesupport
Guess the size of my waist in this photo… 🤔 🧐 #teamnowaist #abdominales #sixpackabs #shredded #bodybuilding #mensphysique #timeismuscle #gymmotivation
At #thedionfoundation Fridays are for spreading kindness and giving thanks to our amazing volunteers! We couldn’t do this without you! 🙌💙 "Alone, we can do so little; together, we can do so much." Our mission, your help 💙 No child left behind #timeismuscle #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
The first step is to always envision the look that you want to present on stage… #bodybuilding #oldschoolbodybuilding #mensphysique #classicphysique #gymmotivation #timeismuscle
It’s been over a week since our inaugural Hustle for the Muscle 5K Fun Run/Walk and we want to extend our heartfelt appreciation for all of the generous support. Your participation, sponsorship or valuable in-kind donation played a pivotal role in making our event a resounding success. Thanks to your generous contribution, our race was able to raise an impressive sum of over $55,000!! These funds will be instrumental in raising awareness for Limb Girdle Muscular Dystrophy and expediting treatments for children battling this life-threatening condition. We had a total of 452 participants and were so fortunate to have more than 50 dedicated volunteers who joined forces, all united by a common goal – raising funds and awareness for LGMD! Your unwavering support has truly made a difference, and we cannot thank you enough for being a part of this meaningful cause. Once again, our deepest gratitude for your generosity and commitment to our mission. We couldn’t do this without you. Our mission, your help 💙 No child left behind #timeismuscle #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Retired physique? What you think? que piensas? 😉 No trt no nada @89kg💪🏻😃 físico actual post entreno hoy. empiezo nueva dieta hoy y tengo muchas ganas. vuelta comiendo antes entrenando también por cierto. Physique update @89kg 💪🏻😀 feeling good! New diet starting today. Rebote/rebound =hecho con éxito/done. No show dates just family dates atm 😉 perdóname para mi Spanglish 😆 #timeismuscle #bodybuilding #mensphysique #gymmotivation
Maybe gods plan is a better one than the one you had in mind 😉 #mensphysique #bodybuilding #gymmotivation #timeismuscle
Our sweet Peter is 1️⃣1️⃣ Wishing this beautiful soul the Happiest Birthday today! 11 years ago, October 7th, the heavens smiled as you graced us with your presence. Since that day, you have been nothing short of a dream come true. A true Libra: you are the kindest, sweetest, smartest, funniest, and STRONGEST little boy we have ever met! Your strength and determination is unrivaled - you have been battling quietly for 11 years, never complain, and always remain happy and smiling. Your strength and stoicism gives us, The Dion Foundation, the strength to fight this battle with you - to find and fund a treatment to keep you forever smiling and happy 💙 you deserve the world, Angel Boy 🌎 🏔️ 🌊 🌙 ✨ #MuscularDystrophyWarrior #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #timeismuscle #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic #lgmdr5
Don’t care what no one says IMO you make the most progress when you are happy #bodybuilding #flexfriday #gymmotivation #timeismuscle
This is my new benchmark… The aim is simple… Come back better than this… #timeismuscle #nevergiveup #mensphysique #bodybuilding #gymmotivation
When your peeled your peeled…. #nevergiveup #mensphysiquepic #mensphysique #bodybuilding #timeismuscle
Wow. What a day! We are deeply touched by the incredible support we witnessed at our inaugural 'Hustle for the Muscle' 5K yesterday. The outpouring of love and support from our community has left us overwhelmed with gratitude. Special thank you to our very own race director, Leah Santo, all of our volunteers, the Mighty Squirrel Brewery, all of the generous sponsors and donors, and every single person who showed up yesterday in person and virtually. As we line that battle field for the fight of our lives, you are all our army behind us. So thank you, we could not do it without you! See you next year!!! Our mission, your help 💙 No child left behind #timeismuscle #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
It’s Limb-Girdle Muscular Dystrophy Awareness Day! 💚 Today, we acknowledge the challenges, the strength, and the unwavering spirit of those affected by LGMD. We shine a light on this rare childhood disease, and while the journey is challenging, it's filled with hope for a future where foundations like ours are no longer needed. While we may not have much to celebrate in the traditional sense, together, we celebrate resilience and raise awareness, taking steps toward a brighter tomorrow. 💪💙 #LGMDAwareness #nochildleft Our mission, your help 💙 #timeismuscle #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Setbacks make the best comebacks… #timeismuscle #itsnotover #bodybuilding #gymmotivation #ifbbspain #npcspain #nevergiveup #lucharportussueños #noterindas #mensphysiquepic
#PompeDisease #NBS2023 #newbornscreening #IOPD #LOPD #raredisease #Disability #TimeIsMuscle
“See, to live is to suffer But to survive... Well, that's to find meaning in the suffering” - DMX #flexfriday #beyourself #timeismuscle #gymmotivation
todos las limitaciones en esta vida solo existir en su mente. si quieres más demanda más de tú mismo #itsnotover #nevergiveup #timeismuscle #bodybuilding
Kids helping kids 🤩 These wonderful young boys and girls made bracelets, sold them and spread awareness (and kindness!) for Limb-Girdle Muscular Dystrophy. Thank you for you thinking of #thedionfoundation and for all of your hard work! Our mission, your help 💙 #timeismuscle #StrongerTogether #RunForPeterandMaggie #HustleForTheMuscle #5kVolunteers #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
We’re excited to share that Kindness Over Muscular Dystrophy (KOMD) is creating more impact through innovation this year. In order to increase our mission’s reach, we’re accepting donations of U.S. Stocks and over 100 different cryptocurrencies. Help us celebrate by donating stocks or crypto today LINK IN BIO. #Crypto #Bitcoin #Ethereum #DonateStocks #KOMD #TimeIsMuscle #BuildStrengthWithKindness
Incrementare l’educazione e la formazione sul riconoscimento e il trattamento tempestivo dell’arresto cardiaco, a cominciare dalle scuole, dev’essere un obbiettivo condiviso di SIAARTI, AAROI-EMAC e CPAR (Collegio Professori Anestesia Rianimazione) affinché ogni cittadino possa fare la differenza sul territorio prima dell’arrivo dei professionisti. #timeismuscle #rcp #blsd #educazione #formazione #condivisione #siaarti #aaroiemac #cpar #strongertogether2527 Prof. Maggiore | Dr. Vergallo | Dr. Semeraro
When that thin layer of tan still remains with just the right amount of goon light post workout 👌🏻 #timeismuscle
September is new born screening awareness month. #TimeIsMuscle #nbs2023 #PompeDiseaseNBS #Disability #RareDisease #IOPD #LOPD
Fact Friday: Muscular Dystrophy Awareness 💙 Did you know that the percentage of females affected by muscular dystrophy is relatively low compared to males? Muscular Dystrophy predominantly affects males due to genetic factors but we are here to raise awareness for the girls, too! This condition serves as a reminder of the importance of raising awareness and supporting research for both genders #MuscularDystrophyAwareness #FactFriday #timeismuscle #mightybeyonmuscles #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic #limbgirdlemusculardystrophy
September is Muscular Dystrophy Awareness Month, a time to shed light on the challenges faced by those with this condition. Learn the facts, spread awareness, and support research for a brighter future! 💪💙💚 #MuscularDystrophyAwareness #timeismuscle #mightybeyonmuscles #timeismuscle #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic #limbgirdlemusculardystrophy
Huge turnout last night at the #KOMD ANNUAL BENEFIT! Thanks to the generosity of all in attendance, they raised over $150,000 to continue vital research to find a cure for Duchenne Muscular Dystrophy. #timeismuscle
🌟 Dressed for a very important cause last night 💖 @kindnessovermd 💖 Head to toe from @thisandthatvintagefrills (earrings too!!) Perfect transitional outfit for this crazy NY weather. White Bodysuit from @target. Neck mess always from @bijouofkatonah #komd #timeismuscle #coletteelenastyle
The strength of mothers never cease to amaze me. (Esp in 90 degrees and 100% humidity 🤣) The message of #hope at last nights’ #KOMD fundraiser was one that will stay with me. Thank you to the entire Curran family and @kindnessovermd for all your hard work, dedication but above all, your message of faith & hope. That message is the biggest gift of all. You are a true example of #momstrong and we will continue to have hope and pray for Connor. #community #momlife #timeismuscle #gala #local #kindnessovermusculardystrophy #alwayshavehope
Peter, age 10. One year since Muscular Dystrophy Diagnosis As another school year has commenced, we are reflecting on the last year since our diagnosis. A new grade, a new teacher, new challenges, and the same uncertainty of the future. One word comes to mind: sto·i·cism /ˈstōəˌsizəm/ noun: the endurance of pain or hardship without the display of feelings and without complaint. Peter - our stoic warrior. For nine years, prior to your diagnosis with muscular dystrophy, you never once complained or showed any sign of defeat. While you couldn’t run, play sports, and keep up with your peers, you never once complained or took pity upon yourself. Your positivity and happiness always just radiated from your soul like a beam of sunshine. ☀️ Last August, after watching you struggle to do things you loved over the summer - we had the gut wrenching feeling something wasn’t right. We learned of your muscular dystrophy diagnosis and our worlds stopped turning. But YOU, and your beautiful smile continued to be the light to our darkest days. After a whirlwind of doctors appointments, lab tests, blood draws, traveling to different states for doctors visits and very hard discussions: you still radiate happiness and positivity. As another school year begins, we could not be more proud of your courage and strength as you face daily challenges with everyday tasks. We couldn’t be more proud of your love for life and your constant smile and positivity. We couldn’t be more proud of your kind soul, as we see the friends ring the doorbell one after another looking for you. YOUR strength is what gives US the tenacity to fight for your rare disease. YOUR courage is what makes US take no for an answer. And YOUR smile is what makes US appreciate the days that we have today and to continue to have ✨ hope ✨ for the future. Thank YOU Peter, for being so remarkable. We will move mountains for you and never stop fighting to keep you smiling. 💙no child left behind #timeismuscle #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
Thank you to all of our Par For The Cure sponsors so far! If you’re interested in sponsoring, please reach out to us 💙 Our mission, your help. No child left behind #timeismuscle #thedionfoundation #mda #neuromusculardisease #neuromuscular #LGMD #musculardystrophy #nochildleftbehind #lgmd2c #genetherapy #cureraredisease #ultrararedisease #rarediseaseawareness #genetic
ریسک فاکتورها و علایم سکته قلبی را بشناسیم. در مواقع بروز حمله قلبی و درد و سنگینی در قفسه سینه خونسردی خود را حفظ کنید، از انجام هرگونه فعالیت خودداری کنید. سریعا با ۱۱۵ تماس بگیرید در صورت نداشتن حساسیت به داروی زیرزبانی تا سه بار درصورت بهتر نشدن درد میتوانید استفاده کنید همچنین درصورتی که حساسیت به آسپرین ندارید سه عدد ۱۰۰ میلی گرم جویدنی مصرف کنید و منتظر بمانید همکاران ۱۱۵ بر بالین شما بیایند. #Nursing #shahidbeheshtiuniversity #school nursing and midwifery shahid beheshti #emergencymedicalsistem #ShirazUniversityofMedicalSciences #emergencynursing #Tehran #NursingandMidwiferyschool,ShahidBeheshtiUniversityofMedicalSciences #cpr #Americanheartassociation #Lifeiswhy #whotosavealife #mohammadjj_ #timeismuscle #پرستاری #احیای_قلبی_ریوی #پزشکی #اورژانس_پیش_بیمارستانی_115 #محمدجوادجوکار