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#food #travel #sports #news #april #sunday

June is Myasthenia Gravis awareness month! MG is known as the snowflake disease because individuals exhibit different symptoms as well as responding to treatments, just like a snowflake! I may look like there is nothing wrong if I post on social media, but what you don’t see is what it takes for that one photo. One of my most frustrating things about MG is the unpredictability of my symptoms. I asked my sister @debbiedivis #fantasiesmusephotography to take a photo for me. The end results are fantastically well done. What you do not see are all of the rejected photos where I can’t make both eyes focus on the camera, my cheeks/ lips twitching from weak facial muscles, resting my face between each attempt or the 6 hours of recovery from focusing for a few minutes. Myasthenia Gravis is a silent disease where my immune system creates antibodies that attack my nerve and muscle receptors. Help bring attention to this disabling disease by wearing teal, the color of MG or make a donation to MGFA Donation Form | Myasthenia Gravis Foundation of America #myastheniagravis #mgstrong #mgwarrior #chronicillness #disabled #wearteal #raredisease #daretocare

6/2/2023, 3:17:05 AM

Went to #santacruzbeachboardwalk and all I could picture was how it would look #colorisolationphotography #fantasiesmusephotography #santacruz #mysantacruztrip

1/9/2023, 7:06:47 PM