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Stars of the show: @glamlite Rick & Morty palette with @clionadhcosmetics Mural on the lid ๐Ÿงก๐Ÿฉต Chatting about my experience with iron infusions in this week's video! โ€ข โ€ข โ€ข #makeup #makeuplook #muaunder1k #muasunder5k #muasunder10k #eyeshadow #eyeshadowlook #glamlite #clionadhcosmetics #chronicillness #chronicallyill #chronicallyawesome #cfsme #myalgicencephelomyelitis #anemia #fibro #fibromyalgia #chronicpain #endometriosis #migraine #spoonielife #spoonie #disabledandcute

5/12/2024, 2:16:25 AM

Best thing Iโ€™ve bought for my house!! Love that I can do physio whenever I feel my body needs it now My crps has been playing up lately- it feels like - ๐Ÿ“ธ Source: @ amyepohl on TikTok (Dm for credit or removal / All rightsยฎ are reserved & belong to their respective owners) - โœ”To order or see more products, ๐Ÿ‘‰ Check the LINK IN OUR BIO๐Ÿ‘† - - - - #diabetesawareness #chronicfatigue #butyoudontlooksick #cfs #rheumatoidarthritis #fibro #endometriosisawareness #chronicallyill #dysautonomia #fibrowarrior #gastroparesis #spoonies #chronicpainwarrior #ableism #spooniesupport #fibromyalgi #crpsawareness #chronicallyawesome #fibrosucks #chroniclyme #chronicpainawareness #painwarrior #youdontlooksick #chronicpainsucks #edsawareness #spooniesisters

5/12/2024, 1:39:05 AM

Do you use bleach in your home? Bleach creates Chloramine gas which is extremely irritating to the skin and lungs. Also the other fumes from bleach have been linked to cancer, DNA damage, asthma, and a host of other illnesses Here are some of our favorite swaps! Which do you use? . . . . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #chronicallyill #healthtip #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #toxins #detoxyourbody #detoxyourlife #biohacking #biohacks #rootcausemedicine

5/12/2024, 12:25:55 AM

My #raybanmeta glasses came in! So excited. They are a bit heavier than any of my previous glasses so itโ€™s going to be an adjustment for sure. I went through a small business to get them and Iโ€™m glad I did. Great service. ๐Ÿ’œ #civileyesdoptical @civileyesdoptical #rayban #raybans @raybanmeta #chronicillnessbaddie #chronicallyawesome

5/11/2024, 10:10:19 PM

When you and the wifey @salli_maddalo_ have THE best day with @witteringsup learning how to paddleboard ๐Ÿ„๐Ÿฝโ€โ™€๏ธ I've wanted to do this for YEARS, but I didn't have the faith in my body to be able to do it without setting off the tremors or spasms ๐Ÿ™„ Today, I finally got to โœ…๏ธ tick it off the list of 'shit I couldn't do' ๐Ÿ’ƒ๐Ÿฝ๐Ÿซถ๐Ÿฝ 3 hours of just pure awesomeness, and I didn't even fall in ๐Ÿ™Œ๐Ÿผ I did, however, choose to jump in at the end because, well, it would have been rude not to ๐Ÿ’ฆ๐Ÿ™Š If you're around the cotswolds area, I highly recommend @witteringsup they were amazing!! They had a great sense of humour, knew exactly what they were talking about, and explained everything in a way that was so easy to understand โœจ๏ธ #chronicallyawesome #chronicillness #myalgicencephalomyelitis #fibro #pots #chronicfatiguesyndrome #spoonie #selfhealing #recovery #sup #paddleboarding #cotswolds #weekendvibes

5/11/2024, 10:07:51 PM

Today was AMAZING โค๏ธ We got up early, packed our breakfast boxes and headed out for a day of adventures โ˜€๏ธ First stop was a beautiful walk at #karlstrupkalkgrav ๐Ÿ˜ We had our breakfast there, enjoyed the view and the morning birds chirping ๐Ÿฅฐ After a good hike all around the lake, we went back on the go and drove to #stevnskoldkrigsmuseum A museum showing how a concealed military base worked back in the day. We had an amazing guide that used to work for the Danish airforce and she was an inspiring talker and teacher. Then off to see the old church or #stevnsklit before taking the steep steps down to walk by the sea and see the cliffs tall and wondrous wall as the wave sound calmed down our entire system. A beautiful sunny day, being active, singing in the car, laughing and enjoying nature together โค๏ธ Ended my day with a pm #peterwaltersyoga yoga session. Stretching my tired body. Giving love and thanks back for having carried me through the whole day ๐Ÿ™๐Ÿป #togetherisourfavoriteplacetobe #ilovemyfamily #fibromom #enjoyingnature #letgohiking #exploreingtime #fibrowarrior #chronicallyawesome #livetmedfibromyalgi #fibromyalgiawarrior #fibrowarrior #limitationswontstopme #kneeinjury #woondedwarrior #aintnothinggonnaholdmedown #feelgoodyoga #latenightyoga #grateful

5/11/2024, 9:46:56 PM

Allodynia ๐Ÿ’œ Raising Awareness. - ๐Ÿ“ธ Via ๐Ÿ“ทUnknown, tag to Credit:! - Tag someone who needs to see this๐Ÿ’™ - ๐ŸŽŠ๐˜พ๐™๐™š๐™˜๐™  ๐™ค๐™ช๐™ฉ ๐™ค๐™ช๐™ง ๐™จ๐™ฉ๐™ค๐™ง๐™š ๐™ž๐™ฃ ๐™ฉ๐™๐™š ๐™—๐™ž๐™ค๐Ÿ‘† - - - - #chronicallyfabulous #spooniewarrior #chronicillnessawareness #spooniesupport #fibromyalgi #chronicallyawesome #fibrosucks #chronicpainawareness #chronicpainsucks #spooniesisters #fibromyalgiasucks #fibromyalgiafighter #fibrostrong #spoonieartist #chronicillnesssupport #fibromyalgiaproblems #fibromyalgiasupport #chronicillnessproblems #spooniegirl #fibromyalgiapain #fibromyalgialife #chronicpainsufferers #fibromyalgiadiet #chonicillness

5/11/2024, 9:23:04 PM

This has been a wearying series of posts to put together. In previous years Iโ€™ve done a whole month of posts about MECFS but this year, itโ€™ll be just a week, and that is enough. Itโ€™ll be the last day tomorrow as it is MECFS awareness day. I have called this portrait, โ€˜Not a scream, but a yawn.โ€™ High levels of emotion are very exhausting for me, to scream would actually be detrimental. I have tried to find the latest numbers on MECFS and the prevalence thereof in the world and they are hard to track down, the most up to date is from 2015 and that study estimates that there were 561,500 Canadians living with ME, worldwide that number was 15-30 million people. It is many more now with the addition of Long Covid. There is more research being done than previously, thanks to Long Covid to some extent but it is still woefully low compared to the disease burden. There are campaigns happening, there was one in Vancouver yesterday at our premiers office, and I would have loved to have gone but it is hard to get to these things when you are sick. Advocacy is hard work and tiring but while we have no diagnostic test, no real treatments and no cure, I guess weโ€™ll keep going. #chronicillnessandme #mecfsawarenessmonth #mecfs #spoonielife #chronicallyawesome #millionsmissing #millionsmissingcanada #goblueformecfs #selfportrait

5/11/2024, 8:46:49 PM

Ehlers Danlos awareness month, day 10 ! Social media challenge โžก๏ธ hosted by @ehlers.danlos What you see, what you don't #myEDSchallenge Mois de sensibilisation au SED, jour 10 ! Dรฉfi rรฉseaux sociaux Ce que vous voyez, ce que vous ne voyez pas #chronicallyill #maladiegenetique #myhsdchallenge #ehlersdanlos #ehlerdanlossyndrome #ceds #heds #hypermobilityspectrumdisorder #chronicallyill #chronicallyawesome #invisibleillness #chronicillnesswarrior #fighter #chronicpain #maladierare #handicapinvisible

5/11/2024, 7:50:23 PM

Do you use bleach in your home? Bleach creates Chloramine gas which is extremely irritating to the skin and lungs. Also the other fumes from bleach have been linked to cancer, DNA damage, asthma, and a host of other illnesses Here are some of our favorite swaps! Which do you use? . . . . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #chronicallyill #healthtip #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #toxins #detoxyourbody #detoxyourlife #biohacking #biohacks #rootcausemedicine

5/11/2024, 4:23:31 PM

Can anyone relate ? - ๐Ÿ“ธ Via By Unknown, tag to credit! - Tag someone who needs to see this๐Ÿ’™ - ๐Ÿ‘‰๐™‚๐™š๐™ฉ ๐™œ๐™ž๐™›๐™ฉ๐™จ ๐™—๐™ฎ ๐™ฉ๐™๐™š ๐™ก๐™ž๐™ฃ๐™  ๐™–๐™ฉ๐™ฉ๐™–๐™˜๐™๐™š๐™™ ๐™ž๐™ฃ ๐™ฉ๐™๐™š ๐™—๐™ž๐™คโค๏ธ - - - - #chronicillnessawareness #spooniesupport #fibromyalgi #chronicallyawesome #fibrosucks #chronicpainawareness #chronicpainsucks #spooniesisters #fibromyalgiasucks #chronicillnesssupport #fibromyalgiaproblems #fibromyalgiasupport #chronicillnessproblems #spooniegirl #fibromyalgiapain #fibromyalgialife #chronicpainsufferers #fibromyalgiadiet #chonicillness #fibromyalgiastrong #fibromyalgiarelief #chronicpainproblems

5/11/2024, 3:02:10 PM

Practice kindness and self-care this Saturday and every day. Book the ultimate stress and pain relief massage experience in Auburn-Opelika. We all deserve self-care, close parking, and effective treatment. Soothing smells. Clean linens and toasty massage tables. Schedule online 24/7 or call 334-476-1857. Telephone hours are 10 am-5 pm Monday-Friday. If you reach the voicemail, please leave a message. The professional clinic is open 7 days a week by appointment. We'll see y'all soon. #massagemagic #betterbodiesal #shopauburnopelika #auburnopelikatourism #massagetherapy #betterbodiesal #professionalmassage #integrativemassagetherapy #opelikaalabama #wellness #painrelief #auburnalabama #anxietyreduction #saltstonemassage #deeptissuemassage #painrelief #chronicallyawesome #wellness

5/11/2024, 2:53:44 PM

She deserves some love๐Ÿซถ๐Ÿผ OCC @reaandjuni #e - ๐Ÿ“ธ Source: @ alisonmaxwell.ll on TikTok (Dm for credit or removal / All rightsยฎ are reserved & belong to their respective owners) - ๐Ÿ‘‰You can order it on the link my home pageโค๏ธ - - - - #disabled #spoonielife #crohns #eds #diabetesawareness #chronicfatigue #butyoudontlooksick #cfs #rheumatoidarthritis #fibro #endometriosisawareness #chronicallyill #dysautonomia #chronicmigraines #feedingtube #spoontheory #notalldisabilitiesarevisible #ableism #spooniesupport #fibromyalgi #crpsawareness #chronicallyawesome #fibrosucks #chroniclyme #chronicpainawareness #painwarrior

5/11/2024, 10:35:10 AM

Amen to that! - ๐Ÿ“ธ Via ๐Ÿ“ทUnknown, tag to Credit:! - Tag someone who needs to see this๐Ÿ’™ - ๐Ÿ‘‰๐–„๐–”๐–š ๐–ˆ๐–†๐–“ ๐–”๐–—๐–‰๐–Š๐–— ๐–Ž๐–™ ๐–”๐–“ ๐–™๐–๐–Š ๐–‘๐–Ž๐–“๐– ๐–’๐–ž ๐–๐–”๐–’๐–Š ๐–•๐–†๐–Œ๐–Š๐Ÿ›๏ธ - - - - #spooniesupport #fibromyalgi #chronicallyawesome #fibrosucks #chronicpainawareness #chronicpainsucks #spooniesisters #fibromyalgiasucks #chronicillnesslife #spooniesunite #fibrofog #spooniefamily #spooniemom #fibrowarriors #spoonielove #spoonieblogger #fibroawareness #costochondritis #spooniesisterhood #chronicillnessfighter #spoonieprobs

5/11/2024, 8:40:52 AM

Some days I rlly wish I had a time machine - ๐Ÿ“ธ Source: @ alina.sara1 on TikTok (Dm for credit or removal / All rightsยฎ are reserved & belong to their respective owners) - ๐Ÿ›’๐—ฆ๐—›๐—ข๐—ฃ ๐—ก๐—ข๐—ช ๐—Ÿ๐—œ๐—ก๐—ž ๐—œ๐—ก ๐— ๐—ฌ ๐—•๐—œ๐—ข ๐—ช๐—ผ๐—ฟ๐—น๐—ฑ๐˜„๐—ถ๐—ฑ๐—ฒ ๐—ฆ๐—ต๐—ถ๐—ฝ๐—ฝ๐—ถ๐—ป๐—ด๐ŸŒŽ - - - - #invisibleillnessawareness #fibromyalgiawarrior #potssyndrome #rawarrior #chronicallyfabulous #neuropathy #cfsme #psoriaticarthritis #spooniewarrior #fibromyalgi #crpsawareness #chronicallyawesome #fibrosucks #chroniclyme #chronicpainawareness #painwarrior #youdontlooksick #chronicpainsucks #edsawareness #spooniesisters #fibromyalgiasucks #chronicwarrior

5/11/2024, 7:06:54 AM

Pretty much how I feel today๐Ÿ–•๐Ÿป - ๐Ÿ“ธ Via ๐Ÿ“ทUnknown, tag to credit! โ€ข (Dm for credit or removal / All rightsยฎ are reserved & belong to their respective owners) โ€ข ๐Ÿ›’๐—ฆ๐—›๐—ข๐—ฃ ๐—ก๐—ข๐—ช ๐—Ÿ๐—œ๐—ก๐—ž ๐—œ๐—ก ๐— ๐—ฌ ๐—•๐—œ๐—ข ๐—ช๐—ผ๐—ฟ๐—น๐—ฑ๐˜„๐—ถ๐—ฑ๐—ฒ ๐—ฆ๐—ต๐—ถ๐—ฝ๐—ฝ๐—ถ๐—ป๐—ด๐ŸŒŽ โ€ข โ€ข โ€ข โ€ข #cfs #rheumatoidarthritis #fibro #endometriosisawareness #chronicallyill #dysautonomia #fibrowarrior #gastroparesis #spoonies #chronicpainwarrior #chronicillnesswarrior #crps #raisingawareness #crpsawareness #chronicallyawesome #fibrosucks #chroniclyme #chronicpainawareness #painwarrior #youdontlooksick #chronicpainsucks #edsawareness #spooniesisters #fibromyalgiasucks #chronicwarrior #spooniecommunity

5/11/2024, 2:44:00 AM

Every single day lately I see a variety of misinformation regarding endometriosis. And every single day since opening up online about my personal journey and after multiple in-depth discussions with my endometriosis specialist, the best choice in my journey was a hysterectomy, as I also have adenomyosis which during ovulation became unbearable. This decision was not taken lightly. A multitude of medications and therapies were attempted over the past 4 years. Regardless, this was the best choice for me and my body. I have received many and I mean many, dmโ€™s and comments from people snapping at me saying that a hysterectomy is not a cure for my endometriosis. I want to say it once and for allโ€ฆ you are unequivocally correct. A hysterectomy is NOT a cure for endometriosis. I, of course, know this. I do my diligence as a chronic illness advocate every day. I research multiple articles throughout the day, I connect with endometriosis specialists to have difficult and challenging conversations, I speak on various podcasts to discuss my journey to raise awareness, I connect and check in with endometriosis patients that I help coach 100% out of the kindness of my own heart, in hopes that I can help reduce the debilitating medical gaslighting and trauma I experienced since I was 11 years old. I do this because I want to learn. I want to educate. I want to be the best version of me and I want to make a long-lasting impact in the future of endometriosis care. In future, when I am ready and able, I will be doing an in depth discussion about my hysterectomy journey but, until then, I recently did a live with my friend Sarah @sippinteawithsarah so please visit her instagram and check it out to learn more.๐Ÿ–ค๐ŸŒ™โœจ . . . #endometriosis #endometriosisawareness #endobelly #endo #endometriosissucks #endometriosissurgery #endometriosishasnocure #endowarriors #endostrong #endometriosissupport #adenomyosis #adeno #adenomyosisawareness #adenomyosiswarrior #hysterectomy #chronicpainawareness #chronicpelvicpain #chronicpainwarrior #chronicpainmanagement #chronicillness #chronicillnessawareness #chronicillnesscommunity #chronicallyill #chronicallyawesome #mybodymychoice

5/11/2024, 1:42:14 AM

Hahaha. Truth! #chronicillnesshumor #chronicallyawesome

5/11/2024, 1:04:41 AM

Day ten: What my body does, while I work from home . My body identified the myelin on my nerves as a foreign body that shouldnโ€™t be there. Since the human bodyโ€™s immune cells code for certain defenses, it coded for myelin and went on the attack. This exposed the axons, causing damage to the conduction part of my nerves. This makes it nearly impossible for my brain to get messages to my muscles. My immune system will always code for this, so yes, Iโ€™ll have this forever. . Donโ€™t ask me why, because nobody really knows why. Itโ€™s just a thing that happened through no fault of my own. I didnโ€™t cause this, and it was kind of inevitable. Something triggered my immune system. For some people it may be a cold, others it may be a vaccine, others may be general stress on the body. . #cidp #awareness #chronicpatient #disabled #cidpwarrior #chronicillness #chronicinflammatorydemyelinatingpolyneuropathy #cidpfoundation #warrior #chronicallyill #chronicallyawesome #cidpgbs #gbs #permanentpatient #rarediseasewarrior #raredisease

5/11/2024, 12:07:56 AM

Days like this still blow my mind ๐Ÿคฏ I have washed my hair, put make-up on, driven 3 hours, picked the 'wifey' up, done a shop, and a little walk ๐Ÿ˜ณ๐Ÿ’๐Ÿฝโ€โ™€๏ธ ALL IN ONE DAY!!!!! The wifey and I were talking about how far we've come over the last few years The days when it was just being able to wash my hair - Gone The days of severe anxiety and not being able to drive far on my own - Gone The days of barely being able to walk around the house - Gone I am so grateful for who I've become, especially when it was just a few years that I thought that it was impossible to get better ๐Ÿฅฐ #chronicillness #chronicfatiguesydrome #myalgicencephalomyelitis #fibro #selfhealing #chronicallyawesome

5/10/2024, 11:16:44 PM

Itโ€™s been a mad week, but #friday has ended on a big high! ๐Ÿ˜„ TLDR, I took a well-known #chronicillness #meme and turned it into a 15-minute #animation #script aimed at 4-6 year-old children. And it was age-appropriate - but very @pixar! My agent @visablepeople asked me to write a script over #easter, for this demographic, and this is what I came up with. But thatโ€™s all this was meant to be, something new for the slate. Nothing more than that. Only it turned out to be exactly what a #tvproduction company wanted - theyโ€™re keen to hire more #disabledwriters for a new show! I had a meeting today with them, and as first impressions go, I seemed to create a good one. Not always easy to tell, but they seemed interested in my writing and the stories I want to tell. And after trying to break into TV writing for a few years now, this feels like a bolt from the blue, or an answered prayer - because I nearly gave up trying after a couple of near-misses. And when youโ€™re #chronicallyawesome, it takes a LOT of energy to get through a single day - let alone put yourself out there professionally. Having this #goodnews so close to May 12th in #meawarenessmonth is also a bonus. Where Iโ€™ve got time Iโ€™ll also be spreading some more #meawareness over this month too.

5/10/2024, 10:35:10 PM

๐ŸŒŸ DAZZLE WALK - MILE 10 ๐ŸŒŸ Ahh what am I gonna do now Iโ€™ve ran out of fingers to hold up?!๐Ÿคฃ๐Ÿคช Bloody hell it was another hot one today ๐Ÿฅต๐Ÿคฃ. I did the mile walk straight from work but luckily this time my mum met me and took home my laptop and backpack - thereโ€™s no way I would have coped with them๐Ÿ˜ฉ. In order to get through this mile, I bribed myself by getting an ice lolly and cold drink to have on the way round๐Ÿ˜…. That deffo made things a bit easier ๐Ÿ˜‹. Luckily there was a bit of a breeze so todayโ€™s wasnโ€™t too bad and I was strutting to some tunes ๐Ÿ˜Ž. Although I am exhausted after this week โ€ฆ thank god itโ€™s Friday! I am just ยฃ12 away from my next fundraising target if anyone can spare a pound or two - link in bio ๐Ÿฆ“ #EDSUKDazzleWalk #dazzlewalk #ehlersdanlossyndrome #ehlersdanlos #EDS #hypermobiltyspectrumdisorder #HSD #chronicillness #chronicallyill #chronicallyawesome #ME #myalgicencephalomyelitis #babewithamobilityaid #fundraising #lfl #spoonie#๐Ÿฆ“ #mobiltyaid #mobilityscooter @ehlersdanlosuk

5/10/2024, 10:11:55 PM

Uhhhweeeee todayโ€™s workout was killer! @ackdntstp challenged me to up my weight load, so I did โ˜บ๏ธ It was a challenge, everything burned, I growled a bit, I huffed and puffed, pushed and pulled and got it done ๐Ÿ™Œ๐Ÿป I was able to do more than I thought and ended up feeling proud, accomplished and strong afterwards. Didnโ€™t always look pretty though ๐Ÿคช๐Ÿ˜‚ but who cares right ๐Ÿ’ช๐Ÿป I had a great time with the challenge and itโ€™s definitely not gonna be my last time with this combination of workouts ๐ŸŽ‰ #aaptiv #teamaaptiv #doingwhaticanwhenican #gettingstronger #goalsetting #noexcuses #chronicallyawesome #trรฆnermedfibro #workingoutwithfibro #fibromom #fibromyalgiawarrior #fibrowarrior #limitationswontstopme #kneeinjury #woondedwarrior #aintnothinggonnaholdmedown #fitover40 #fitmom #createthelifeyouwant #olderstrongerfitter #consistency #strongereveryday

5/10/2024, 9:36:01 PM

Today Iโ€™m greatfull for: Fri-yay! ๐Ÿ’ช๐Ÿป Happy fri-yay folks! What are you doing that brings you joy this weekend? Today Iโ€™m having an arm day, treadmill strut session Sunday, and then just resting Saturday. I might also make the secret group chat for my 30th birthday in December hehe As always wonderful people, stay happy, healthy, and humble xx #stayhappy #stayhealthy #stayhumble #spoonie #spoonielife #spooniewarrior #ehlersdanlossyndrome #ehlersdanlos #eds #fibro #fibromyalgia #fibromialgia #chronicillness #chronicallyawesome #gym #gymmotivation #girlswholift #girlswholiftheavy #girlswholiftweights #iifym #iifymgirls #iifymwomen #gymgirl #gymaddict #gymaddict #gymlover #gymworkout #gymgirls #gymfreak #gymtime #gymrats

5/10/2024, 8:21:36 PM

Birb fountain, hehe. Hummers like the bubbling style. Can't quite see it from the window, but hoping they will enjoy it. Going to work in the studio today, getting it cleaned up for next week. Today I am having to stop a lot of my medications for pain, etc. (More on that later) Trying to make the most of the moments before the mountain of meds that keep me moving wear off! Clock is ticking! . . #hummingbirdbubbler #birdfountain #lifehappens #chronicallyawesome

5/10/2024, 7:20:01 PM

Do you use bleach in your home? Bleach creates Chloramine gas which is extremely irritating to the skin and lungs. Also the other fumes from bleach have been linked to cancer, DNA damage, asthma, and a host of other illnesses Here are some of our favorite swaps! Which do you use? . . . . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #chronicallyill #healthtip #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #toxins #detoxyourbody #detoxyourlife #biohacking #biohacks #rootcausemedicine

5/10/2024, 6:22:42 PM

Dealing with chronic illness means constantly educating those around me that my needs canโ€™t be fixed with quick solutions or temporary comforts. No amount of naps is gonna fix this ๐Ÿ˜„ #chronicillness #chroniclyillandhappy #chronicillnessawareness #chronicallyill #chronicdisease #chronicallyawesome

5/10/2024, 6:00:00 PM

PEM is Post Exertional Malaise, also known as PENE (Post Exertional Neuroimmune Exhaustion) is a sneaky rude word. It is what happens if I push outside of the energy I was talking about before. It happens if I push past my limit and the words, โ€˜just one moreโ€ฆโ€™ pass through my mind. Just one more anything can be one thing too many. And then I wait because, like I said, itโ€™s sneaky. It can wait 24-48 hours to catch up with me. PEM is an exacerbation of symptoms that can be, for me, fatigue, cognitive disfunction, pain, insomnia, flu like symptoms, low grade fever, that horrible wired but tired feeling, headaches, an increase in my resting heart rate, palpitations and GI issues. All of this comes with the anxiety and tightrope walk of โ€˜will this lower my baseline?โ€™ Because sometimes it does, sometimes it lowers it for a week, sometimes for longer, and I hope it isnโ€™t true, but sometimes forever. The only answer, when PEM hits is to do Aggressive Rest Therapy, ART, thatโ€™s an acronym I like but an action I donโ€™t love. ART means stopping, see this sofa Iโ€™m lying on? Thatโ€™s it. Stop. Do not pass go, do not collect $200. Delete anything that can be deleted, delay anything that canโ€™t, and delegate anything essential to anyone who might help. This push crash cycle is to be strongly avoided and the way to avoid it is to pace very, very carefully and preserve the health that I have. The portrait: โ€˜This might take some timeโ€™ Image Description: Sarah lies on her side on a sofa with one hand tucked under her head and the other resting on her elbow. She is looking straight at the camera. She is blending into the sofa she is lying on. The image is created with blue acrylic paint. #chronicillnessandme #mecfsawarenessmonth #mecfs #spoonielife #chronicallyawesome #millionsmissing #millionsmissingcanada #goblueformecfs #selfportrait

5/10/2024, 5:28:05 PM

๐’ฏ๐’ฝ๐‘’ ๐’ป๐’ถ๐’ธ๐‘’ ๐‘œ๐’ป ๐’ป๐’พ๐’ท๐“‡๐‘œ๐“‚๐“Ž๐’ถ๐“๐‘”๐’พ๐’ถ. This is the face when fibromyalgia catches up with you. This is the face when youโ€™ve taken on too much. This is the face when you yell and scream at your husband because you donโ€™t want to admit your stressed.This is the face of being in constant pain and not giving in. This is the face when your husband just gives you a coffee, a hug and tells you to sit in the sun.This is the face of embarrassment that your body is failing and you canโ€™t do anything to stop it. - ๐Ÿ“ธ Via Credit: @originalmrsa - Tag someone who needs to see this๐Ÿ’™ - ๐Ÿ’ฅ๐†๐จ ๐ญ๐จ ๐ญ๐ก๐ž ๐ฐ๐ž๐› ๐ฉ๐š๐ ๐ž ๐‹๐ข๐ง๐ค ๐ข๐ง ๐๐ข๐จ ๐ญ๐จ โ–ถ๏ธ๐๐ฎ๐ซ๐œ๐ก๐š๐ฌ๐ž ๐ข๐ญ! - - - - #chronicallyfabulous #spooniewarrior #chronicillnessawareness #spooniesupport #fibromyalgi #chronicallyawesome #fibrosucks #chronicpainawareness #chronicpainsucks #spooniesisters #fibromyalgiasucks #fibromyalgiafighter #fibrostrong #spoonieartist #chronicillnesssupport #fibromyalgiaproblems #fibromyalgiasupport #chronicillnessproblems #spooniegirl #fibromyalgiapain #fibromyalgialife #chronicpainsufferers #fibromyalgiadiet #chonicillnesshumor

5/10/2024, 4:52:20 PM

Joy matters ๐Ÿ’“ @battling2breathe #DigitalArt #CreateJoy #DisabledJoy

5/10/2024, 2:47:06 PM

Day 10 of #myedschallenge What you See and What you Donโ€™t After becoming chronically ill you realize you have two options; sit back and lay down and watch the world move around you OR make the decision to be as happy as you can enjoy the life you have and cherish every moment. The latter is much better! ๐Ÿงก ๐Ÿฆ“ ๐Ÿงก #mylife #chronicillness #chronicpain #chronicfatigue #chronicpainwarrior #chronicillnessawareness #chronicillnesswarrior #warrior #fighter #livelifetothefullest #livelifehappily #chronicallyawesome #chronicallybeautiful #disabledbodiesmatter #disabledandbeautiful #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlossociety

5/10/2024, 2:36:23 PM

Keep moving forward, one step at a time.

5/10/2024, 2:29:21 PM

Strength isn't about hiding our vulnerabilities or pretending to have it all together โ€“ it's about embracing our flaws with courage and resilience. My story isn't sad โ€“ it's a testament to the resilience it takes to navigate life's challenges as a disabled person. I have chosen to redefine strength and celebrate the realness of my journey. #ResilientJourney #MyStoryIsStrength #chronicillness #chronicpain #invisibleillness #autoimmunedisease #painmanagement #chronicallyill #chronicallysick #chronicallyawesome #chronicallyillmom #chronicillnesswarrior #chroniccommunity #chronicillnesssucks #silentillness #hiddenillness #wheelchairuser #disabledcreator

5/10/2024, 2:10:09 PM

#BIIIIIITCH I DON'T NEED A SEATBELT EXTENDER!!! #20LbsDown #GeekMom #ChronicallyAwesome #TrashPanda

5/10/2024, 3:16:21 AM

Be kind to yourself. You're allowed to emotional. You're allowed to have needs. You're allowed to need space. You're allowed to crave closeness. You deserve to be happy. You deserve rest. You deserve to take up space in this world. You deserve a support system that makes you feel all of these and more. Find your people and remind them today how much you appreciate them.

5/10/2024, 3:14:28 AM

to anyone going through the same thing you are so strong, the fact you wake up everyday makes me so proud, youre doing amazing 3 - ๐Ÿ“ธ Source: @ advil.liquid.gel on TikTok (Dm for credit or removal / All rightsยฎ are reserved & belong to their respective owners) - โœ”To order or see more products, ๐Ÿ‘‰ Check the LINK IN OUR BIO๐Ÿ‘† - - - - #potssyndrome #rawarrior #chronicallyfabulous #neuropathy #cfsme #psoriaticarthritis #spooniewarrior #crpsawareness #chronicallyawesome #fibrosucks #chroniclyme #chronicpainawareness #painwarrior #youdontlooksick #chronicpainsucks #edsawareness #spooniesisters #fibromyalgiasucks #chronicwarrior #spooniecommunity

5/10/2024, 2:09:53 AM

Did you know that yoga ๐Ÿง˜๐Ÿพโ€โ™€๏ธ - can decrease inflammation by nearly 50% after just 6 weeks? - can improve sleep quality and quantity? - has been found to decrease stress, anxiety and depression? - helps 89% of people better cope with pain? Discover what yoga can do for you with our diverse offerings of accessible yoga practices at @letscope_org. #themoreyouknow #cope #copetalism #easingthepath #mindfulness #meditation #mindset #intention #manifestation #couragemeetsintention #nervoussystemregulation #chronicillness #chronicillnesswarrior #chronicallyawesome #invisibleillness #illnesshacks #traumahealing #traumainformed #advancecareplanning #livewell #breathwork #autoimmunedisease #chronicpain

5/10/2024, 12:01:30 AM

๐ŸŒŸ DAZZLE WALK - MILE 9 ๐ŸŒŸ Ahh another tricky one! As a natural redhead girlie, this hot weather is NOT NICE ๐Ÿฅต. The sudden temperature is flaring up all my conditions and I feel exhausted and achey ๐Ÿ˜ฉ. So I did todayโ€™s mile on Wheelie๐Ÿ›ต. My mum came with me and we went round a cute little town doing in all the charity shops and getting some cute things for our holiday. This mile was definitely my slowest cos of all the thrifting haha, but I never said I was gonna be quick๐Ÿคฃ. Itโ€™s getting harder and harder as Iโ€™m getting more and more tired as the days go on. But Iโ€™m determined to push myself and Iโ€™m really pleased to be raising money for @ehlersdanlosuk. That being said, Iโ€™m REALLY close to reaching my next fundraising target of ยฃ200 so if anyone reading this has a pound or two to spare, Iโ€™d really appreciate the donation - the link is in my bio ๐Ÿค #EDSUKDazzleWalk #dazzlewalk #ehlersdanlossyndrome #ehlersdanlos #EDS #hypermobiltyspectrumdisorder #HSD #chronicillness #chronicallyill #chronicallyawesome #ME #myalgicencephalomyelitis #babewithamobilityaid #fundraising #lfl #spoonie#๐Ÿฆ“ #mobiltyaid #mobilityscooter @ehlersdanlosuk

5/9/2024, 9:46:13 PM

EDS awareness month, day 9 ! Social media challenge โžก๏ธ hosted by @ehlers.danlos Throw Back Thursday #myEDSchallenge Mois du SED, jour 9 ! Dรฉfi rรฉseaux sociaux Jeudi Flash Back #edsawarenessmonth #eds #ehlersdanlossyndrome #ehlersdanlos #sed #chronicallyill #chonicillness #chronicallyawesome #chronicallyfabulous #maladiegenetique #raredisease

5/9/2024, 9:03:28 PM

So not only do we have to navigate the huge changes that chronic illness made to our lives, manage the chronic illness itself, manage symptoms/supplements/meds/doctor visits, and more daily...we have to manage the emotions that come from the daily reminders of what life used to be like. Let yourself grieve and feel your feelings today, friends. #chronicillness #chronicpain #invisibleillness #chronicillnesshumor #autoimmunedisease #painmanagement #chronicallyill #chronicallysick #chronicallyawesome #chronicallyillmom #foodrestrictions #gutissues #glutenfree #dairyfree #sugarfree #fodmapfree #chronicillnesswarrior #chroniccommunity #chronicillnesssucks #silentillness #hiddenillness

5/9/2024, 8:00:29 PM

An Anti-Inflammatory Diet for Chronic Pain Discover how an anti-inflammatory diet can help you manage chronic pain and enhance your well-being. Learn which foods to prioritise and how they work together to reduce inflammation. Ready to start your journey to a healthier, pain-free life? Check out our blog post and sample meal plan now! https://www.naturespurelove.uk/eat-your-way-to-relief-an-anti-inflammatory-diet-for-chronic-pain

5/9/2024, 7:00:18 PM

โœจ What a month April was! Very much ready for endless sunshine now, anyone else? Just a few of our highlights from the last month: ๐ŸŒˆ We launched our Kids Crutches ๐Ÿ’œ Amelia was invited to film some content with Small Business Britain for The Lilac Review (if you havenโ€™t read about The Lilac Review and the incredible things SBB are doing to support disabled entrepreneurs definitely check out the blog for all the details ๐ŸชปWe launched our new Spring Collection ๐Ÿฐ We had a little break over Easter celebrating together ๐Ÿ“ฃ Last but my no means least, we launched our Disability Benefits Guide - a one stop shop for ALL info you need to know about benefits you could be entitled to and exactly how and who can help you apply to ensure you maximise your chances of receiving the support you not only need but deserve! You can download it now via the website or hit the link in our bio Have you found any of these particularly helpful? We would love to know please do let us know, comment below so we can try to create more of what you love ๐Ÿ‘‡ #CoolWalkingStick #CoolCrutches #Chroniclllness #Chronicallylll #ChronicallyAwesome #ChronicallyFabulous #ChronicPainWarrior #ChronicPain #ChronicFatigue #Fibromyalgia #EDSAwareness #EhlersDanlos #BabeWithAMobilityAid #MobilityAids #MobilityAid #Disabled #Disability #DisabledAndProud #DisabilityPride #DisabilityAwareness #ArthritisRelief #Arthritis #Amputee #AmputeeWoman #AmputeeLife

5/9/2024, 6:48:58 PM

Energyโ€ฆ Unrefreshing sleep (see yesterday) leaves me with less energy for the day than I should have. Iโ€™d ideally like 100% charge but generally have 40-50% instead, sometimes less, rarely more. I can top up maybe 10% with an afternoon nap. This is the amount of energy I have to distribute through my day for all the things. I decided a long while back now that I needed to switch up my perspective. I needed to look at it as having 100% of the 40% available to use and not having only 40% of 100%. Itโ€™s a subtle shift but itโ€™s helpful trick for my brain and emotions. To have 100% of 40% available feels much better to me than the other way around. Energy can be used in four ways: physically, cognitively, emotionally, and environmentally - that last one is different but slightly in my control. They all dip into the same pot of energy, there isnโ€™t 40% for each, but 40% split between them and some energy types take more from the pot that others. This is different for everyone, I am only telling you how my body works, but for me the highest energy type usage is emotional. Emotional energy drains my pot the fastest. Then physical and cognitive energy tie for second place and the environment plays into everything and can be bigger than them all if Iโ€™m not careful. Continued in comments

5/9/2024, 6:35:06 PM

Some days, the gap between my reality and your understanding seems vast. But every effort you make to bridge it is a balm to my weary heart. โค๏ธโ€๐Ÿฉน #chronicillness #chroniclyillandhappy #chronicillnessawareness #chronicallyill #chronicdisease #chronicallyawesome #building

5/9/2024, 6:35:00 PM

Spooky szn ๐Ÿ‘ป๐ŸŽƒ this is our typical Friday night activity - this paleo apple crumble was so good DM for the recipe ~ . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #autoimmunedisease #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #fallnights #autumnvibes

5/9/2024, 4:46:02 PM

The body can naturally detox on its own UNLESS itโ€™s overburdened and your toxic load is too high. In that case youโ€™ll start experiencing some of these symptoms- think of it as a way your body is trying to signal for help ๐Ÿšจ๐Ÿšจ If you feel like you deal with some of these and want your own custom detox protocol shoot us a DM! . . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #autoimmunedisease #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #toxins #detoxyourbody #detoxyourlife #biohacking #biohacks #rootcausemedicine

5/9/2024, 4:45:44 PM

Spooky szn ๐Ÿ‘ป๐ŸŽƒ this is our typical Friday night activity - this paleo apple crumble was so good DM for the recipe ~ . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #autoimmunedisease #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #fallnights #autumnvibes

5/9/2024, 4:31:17 PM

The body can naturally detox on its own UNLESS itโ€™s overburdened and your toxic load is too high. In that case youโ€™ll start experiencing some of these symptoms- think of it as a way your body is trying to signal for help ๐Ÿšจ๐Ÿšจ If you feel like you deal with some of these and want your own custom detox protocol shoot us a DM! . . . . . #biohacking #biohacker #rootcause #detoxing #toxins #autoimmuneprotocol #autoimmunedisease #chronicillnesswarrior #mold #moldtoxicity #heavymetals #chronicallyawesome #nontoxic #nontoxichome #nontoxicliving #nontoxiclifestyle #toxins #detoxyourbody #detoxyourlife #biohacking #biohacks #rootcausemedicine

5/9/2024, 4:30:04 PM