May I have felt this month coming up on me, I have felt it pulling towards me and me trying my best to run from it. May last year our world shattered into a million pieces forever broken. I entered this month last year hopeful and happy, completely unaware that my beautiful amazing boy would be taken from me. As Ezra’s angel anniversary creeps up I can’t believe it has almost been 1 year. 1 year since I saw his beautiful blue eyes or kissed his cheeks and snuggled his neck. Bereaved parents get asked a lot ‘how do you manage or how do you get through the day with such unimaginable loss. Honestly I don’t know I don’t know how I wake up each morning still breathing, I don’t know how my heart is still beating when it is shattered. Dissociation has played a part, not healthy but a necessity to survive this for my other son. Somedays I feel like this is not my life, like I am floating above watching someone else’s life unfold. I think this is my brains way of keeping me somewhat sane. I can’t always fathom the trauma that we witnessed or the flashbacks of watching my son take his last breath and so my brain will dissociate so that it can function and when it’s strong enough the grief will flood in forcing me to work through it and those will be the days it is completely agonising and difficult to get through. I dont know how I have lived nearly a year like this or that I have lived nearly a year without Ezra, every part of me missing him and desperately wanting to be with him. I try everyday because I know he would want me too and I know we will be together again. #childloss #childlossawarness #childlossmother #infantloss #infantlosssupport #bereavedmother #bereavedparents #chd #chdangel #grief #griefjourney #griefandloss #griefshare #lovemyson #angel
*pretend the cart is full* Today marks 2 years since Eli’s first open heart surgery. Yesterday, I had the privilege of stopping by @margaretscloset.chd at @vumcchildren and dropping off over 140 items to honor our sweet boy. We are forever appreciative of the #PCICU and the donations we received while Eli fought. We hope our small token will bring smiles to many faces, just as Eli did. #chdwarrior #chdangel
A little family birthday "cake & ice cream" on Wednesday night for Andy!!! 🎈🎂 We use to always go out to eat for everyone's birthday until Covid then on our weekly Wed dinner nights, we always celebrated whoevers birthday at Grandma & Pop's..And this year for Andy, it was no different! ☺️ We had his favorites - Dinosaur chicken nuggies & pizza! 🦖🍕 My mom got the cutest balloon cake!! The kids went swimming & we did a balloon release with biodegradable balloons! It was emotional yet beautiful at the same time for all of us! My heart just aches everyday.. I wish we could wake up to his smiling face again.. My double digit 10year old baby with the cutest freckled nose! Love & miss forever...... 💚 #andysheartjourney #happyheavenlybirthday #doubledigits #chdangel
It's that time again! We will be having Ryder's 8th annual blood drive on what should be his 9th birthday. Donating blood saves 3 lives. Please help us celebrate/honor Ryder and all he fought for by making this another successful blood drive. Ryder's Blood drive will be on May 9th, 2024 at the Elk's Lodge in Santa Maria from 11:00-2:30. Appointments are encouraged but walk-ups will be welcomed. #TeamRyderForever #CHDANGEL #Mylittlehero #ForeverMyLittleHero https://donors.vitalant.org/dwp/portal/dwa/appointment/guest/phl/timeSlotsExtr?token=0YO8I8VZjuKEK%2Fo%2BATbBtyhw0bGNc9itTZUnNubUxbk%3D
Today we donated 231 books to UCSF Children’s Hospital! Thank you to everyone who donated a book in honor of Gwendolyn’s Birthday. The fact that so many people love and remember her means the world to us. #chdawareness #chdangel #ucsfbenioffchildrenshospital #nicu #childhoodliteracy #bookstagram
This little Scar Buddy recently left to meet their Warrior ♡ #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
Share this heart if you love someone born with a congenital heart defect (CHD). Let’s see how far CHD goes. Comment below with their name! 1 in 100 🫀 #chd #chdawareness #chdvoice #chdwarrior #chdangel #congenitalheartdefects #congenitalheartdisease #heartmom #heartangel #heartwarrior
Scar Buddies headed out to meet their warriors ❤️💙 #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
Attention loyal donors and sponsors! James Doss Memorial Foundation is in the works to gift 15 care packages to CHD Angel Mama’s for Mother’s Day! We need your help! Help us fill the boxes! If you would like to help us by purchasing items from our Amazon Wishlist, please comment below and we will DM you the link! It takes a village! Help us show these Mama’s that they are surrounded by love and support during one of the hardest days of the year for loss families. Comment below to help us! Packages will be shipped out May 1st so we need items by mid April! If you would like to make a monetary donation or specific item donation, please comment below and we will DM you! #cincinnati #ohio #chd #chdawareness #chdwarrior #chdangel #loss #childloss #infantloss #grateful #jdmf
About 1 in 3,800 babies are born with hypoplastic left heart syndrome each year in the U.S. #HLHS #hlhsawareness #hlhsangel #awareness #chdawarness #chdbaby #chdangel #elliheartstrong
February Heart Warriors, strong beautiful children❤️ All of them. Carmen is our beautiful heart warrior Angel 😇. They will all receive special boxes from Myanna. We just got our shipment of shirts in so we can mail them out soon!! Keep them all in your thoughts and prayers🙏❤️ @carmensmiraclemakers @kelseyjeanferguson #givingback #payingitforward #sendinghopeandlove #sendingsmiles #sendingcomfort #bereavementbox #heartwarriorofthemonth #heartwarriorangel #chdangel #heartangel #heartawarenessmonth #Februaryisheartmonth #openheartsurgery #congenitalheartdefects #1in100 #zipperclub #strongerthanmystorm #hearttotes
Day 26: Share a photo that defines CHD for you. This photo. All of those wires. Finding any opportunity to safely hold your newborn baby. Being terrified that a simple snuggle would cause him pain or pull on a chord. CHD is a world of new and unknown. Its joy and fear in the same breath. Scary and beautiful. A newborn child with a broken heart. #chdawareness #heartmom #heartdad #heartwarrior #heartangel #lossmom #angel #chdstrong #chdwarrior #chdangel #greif #ohio #cincinnati
#RIP412FAN #chdawarenessmonth Daniel Westfall #CHDANGEL 🖤💛🖤💛
Happy 1st birthday to my beloved angel Gwendolyn Isabella. We love and miss her every second. I will always wonder what you would be like today. We both took a personal day, and got a little cake from Oliver’s for her. We also went through her hospital memory box. Thank you to everyone who has taken time to message us, send flowers and donated books. I am happiest when someone tells me they remember Gwen 🌸 #infantloss #chdangel
Absolutely love this little deer scar buddy ❤️ 💙 #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
It's been awhile..getting back to posting again ♡ it's been busy ♡ #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
Day 16: what are your favorite remembrance items? These molds that Child Life helped us create with James! They are absolutely beautiful and my prized possession of his. It’s incredible to look at how tiny his feet were and a reminder of what he endured at such a young age. The bravery that CHD kids have is absolutely admirable and their courage being more than most adults would have. 💕 Heart Month: Angel Edition (day 16 of 29) #chd #chdawareness #chdwarrior #chdangel #heartmom
Today we remember 🫀❤️💙 #chdangels #lightacandleforchdangels #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
It’s a bittersweet day for us as we celebrate Kristen’s successful surgery and mourn with Ian’s family and all the families who have suffered loss to 💔 CHD! We met precious Ian just over a week ago at clinics, sadly it was too late. 😭 #chdangel #chdawareness #congenitalheartdisease #chdweek
Inspired by TAPVR warrior McKenzie ❤️🖤💛🐭 #tapvrbaby #tapvr #heart #heartart #art #artworks #artistsoninstagram #artofinstagram #digitalart #mickeymouse #disney #disneyart #disneyworld #mickeymouse #chd #chdawareness #chdwarrior #chdangel #infantloss
Chicks Dig Scars ❤️💙 #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
She will always be a Heart Warrior, but now a Heart Angel. Heart awareness will always be a something to fight for. Echos for infants are so important!!! #sammiestrong💜 #chdawareness #chdangel #heartmom
Today, @govkemp proclaimed that February 7-14 will officially be Congenital Heart Disease Awareness Week in Georgia! How amazing is this?! I know it may not be much for some but for warriors and families in the CHD community, this means more chances for awareness! More awareness means more funding for research! Research is so important for these kiddos and their families! Here are some ways to help spread awareness: share these warriors photos and stories (with permission from their parents, of course), talk about CHD, write to your legislators, donate to CHD research, and so much more. I’m so thankful I got to be there at the capitol today with my sweet Hannah and some of her heart friends and their families and the Heart Center! What a way to start Heart Week! #chd #chdawareness #chdawarenessweek #georgiaproclamation #chdangel #chdawarenessatthecapitol
DAY 7: Gone Too Soon. Too many 💙 Looking at these photos, it's impossible not to get emotional. So many Heart Warriors are losing their battle against Congenital Heart Defects, and these are only the ones that I know of. Myanna and I have "met" children who are no longer with us. We want to share these children with you today. Please take a moment and say a prayer for them. The broken hearted mommies and daddies who have fought so hard for their babies. We see you. We mourn with you. We love you and your children. ❤️ The children in our extended heart families, we pray for. We watch them go through so many procedures. Sometimes they get to go home and enjoy life outside of the hospital... Sometimes, their lives are cut short. They didn't pass away because they were not strong enough. I've never seen children fighting so hard in their lives... But, their heart was not strong enough. The word I use most often to describe CHD life, is Unpredictable. It's cruel. It's unforgiving. It's terrifying. CHDs do not discriminate. These birth defects do not care where you are from, what gender you are or what ethnicity. In the United States, twice as many children die from CHDs each year than from all forms of childhood cancer combined. #chdloss #congenitalheartdefect #heartangel #februaryisheartmonth #chdangel @conqueringchd #heartwarriorangel #gonetoosoon
It’s been really hard trying to celebrate this month knowing that the one we are honoring is no longer here with us. However, even though she’s no longer here, these conversations are still needed to be had. We still need to bring awareness to CHD so that there are hopes for other heart warriors like Hannah. I may not be posting like I did the last couple of years but I am always open to talk about her with anyone who’s willing to listen. #chdawareness #chdangel #heartangel #chdawarenessmonth
Not sure how many years in a row but at least 11! #CHDAwarenessWeekProclamation #CHDAwarenessWeek #HeartMonth #congenitalheartdefectawareness #CHDREDNAIL since 2019! #CHDWARRIORS #chdangel #RIP412FAN Team Dan's Army Kayla Michelle Keller Jason Westfall Lisa Lisa Rick Westfall
Today, we wore red for our best girl! To everyone who wore red for our Hannah and her heart friends, thank you for helping bring awareness to CHD. #heartsforhannah #chdawareness #chdawarenessmonth #chdangel #heartangel
Today we wear RED for our heart warrior Jeremiah ❤️ all other CHD warriors, and CHD angels ❤️💙 Who do you wear RED for? #wearred #heartmonth #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
Happy Heart (CHD) Month from my 3 warriors! We miss Hope every day and feel her presence near us all the time. 💜 Hope lived for 17 days until going in sudden cardiac arrest and passing away. She had HLHS and would be turning 8 this October. 💚 Oliver is 5 and starts kindergarten this fall. He was diagnosed at 7 days of age with Coarctation of the Aorta. He immediately was hospitalized and had a heart repair surgery. His condition is monitored every 6 months by a pediatric cardiologist and managed at home with medication. 🧡 Brooklyn is 2. She is my last child (of 6) and has the most sweetest spirit about her. She had 2 echocardiograms as a newborn baby and has been diagnosed with bicuspid aortic valve and atrial septal defect. She will be seen by a cardiologist at the age of 3 and then we will determine the status of her heart again. Both of my warriors will have a lifetime of heart visits to maintain the best quality of life. We pray that as time goes on the advancements of medicine can offer these two, long term benefits and many, many years of memories. #chdawareness #chdwarriors #chdangel #haveavoiceandbeheard #awarenessmatters
#heartmonth #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
#wearred #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
Because of you I believe in angels ♥️ Shirt Available in heather charcoal tee. 💴tees $21.99 sizes XS-3XL To order, comment 👇, DM, or shop through our 🔗 in the comments #chd #chdawareness #chdangel #chdmom #awareness #congenitalheartdefect #tee #emmerlylane
Sending bereavement boxes is something we will always do. I can't imagine what these families are going through and Myanna finds the sweetest gifts to place in the boxes for them. You are so welcome @tessamilllller Our thoughts and prayers are with you. 💙❤️🙏💓 #bereavement #bereavementgifts #bereavementbox #gonetoosoon #infantloss #chdangel #heartangel #chdloss #chdawareness #heartofawarrior #heartwarriorangel
Happy Christmas baby girl 2nd one away from home and it hasn't gotten any easier ❤️ 🎅 🌟 😇 #christmasinheaven #missingyou #chdangel
💖😇 🎄 🎅 #missyou #babygirl #christmas2023 #chdangel #22qangel #loveyoualways
One of our biggest events of the year is coming, and we'd love for you to be a part of the magic! This is YOUR official invitation to help create and/or ride on our Rock-n-Roll Christmas/ #RockYourScar float for the Colorado Springs Festival of Lights Parade. This invitation is for ALL Heart Warrior and Angel families, friends, and supporters. So, yes, this means YOU! Please RSVP here letting us know how you would like to participate or support this exciting project. PARADE IS ON SATURDAY, DECEMBER 9th *CHD Warriors of ALL ages, show us how you embrace your CHD! We would love to include #RockYourScar photos of all who have been diagnosed with CHD in our parade entry; we acknowledge that not all scars are visible, and submissions need not include physical scars. The Mended Little Hearts® Rock Your Scar Photo Contest and National CHD Awareness campaign starts on January 1, 2024. We welcome photos of your Warrior/Angel at any age, and also encourage current photos that may be entered in the upcoming contest. Please include photo in a comment, message, or with your event RSVP on our website (bio). Mended Little Hearts® recognizes and honors that not all who have been diagnosed with CHD are still with us, and we strive to always remember our Angels and their families. If you would allow us to honor your child lost to CHD in our parade entry, please include their name and/or photo in a comment, message, or with your event RSVP on our website (bio). #MLHofCO #MLH #chdaware #chdmom #chddad #chdwarrior❤️ #heartfamily #heartangel #heartmom #heartwarrior #heartcommunity #chdawareness #chdsurvivor #heartwarrior #chdbaby #chdangel #chdandme #yourwhy #chdwarrior #chdcommunity #coloradosprings #coloradospringsfestivaloflights #festivaloflights #festivaloflightscoloradosprings #holidayparade #rockyourscar #Rock-n-Roll #rockyourscar2024
#infantloss #infantlossawareness #Childloss #Chd #chdaware #chdawareness #chdangel #FaithMarie
My Beautiful Girl, today would be your 16th birthday. I miss you💜🌻and will always have you in my heart and mind. I hope in heaven you are singing, dancing and listening to Aerosmith🤘 #sammiestrong💜 #chdangel #chdmom
Mark your calendars!!!! Our 2024 fundraisers are booked! Watch for more information on them here and on our website! We are so excited for 2024!!! #hlhswarrior #hlhs #chd #chdvoice #chdawareness #chdwarrior #chdangel #chdsucks #chdsurvivor #chdbaby
Myannas Heart Totes heart warriors for November. Myanna will send gifts to the children and a special bereavement box to Becca's family💙 Awaiting for a list from Inova Children's Hospital to bring the pediatric cardiac patients heart totes, as well. ❤️ Your tax deductible donations help fund this project. Thank you for your support🥰 Link in bio: https://www.facebook.com/donate/1072463893782482/?fundraiser_source=external_url #sendingsmiles #sendinghopeandlove #sendingcomfort #heartwarriorofthemonth #givingnovember #novemberfundraising #heartwarrior #heartwarriorangel #heartsuperhero #chdwarrior #openheartsurgery #zipperclub #chdawareness #chdangel @beccatheheartwarrior @oneluckyheart_
Myannas Heart Totes heart warriors for November. Myanna will send gifts to the children and a special bereavement box to Becca's family💙 Awaiting for a list from Inova Children's Hospital to bring the pediatric cardiac patients heart totes, as well. ❤️ Your tax deductible donations help fund this project. Thank you for your support🥰 Link in bio: https://www.facebook.com/donate/1072463893782482/?fundraiser_source=external_url #sendingsmiles #sendinghopeandlove #sendingcomfort #heartwarriorofthemonth #givingnovember #novemberfundraising #heartwarrior #heartwarriorangel #heartsuperhero #chdwarrior #openheartsurgery #zipperclub #chdawareness #chdangel @beccatheheartwarrior @oneluckyheart_
Did you know? One in 125 babies is born with Congenital Heart Disease (CHD) More than 6,000 babies are born with major CHD each year in the UK. It is important to spread awareness on CHD , CHD Awareness is important because vital research is underfunded, and we need this for our kids to live long, healthy lives. #chd #chdawareness #chdresearch #chdwarrior #chdangel #babies #congenitalheartdefects
In 5 days we will be taking part in the @heartkids #twofeetandaheartbeat 4km walk in memory of our little man Kynan and the other 4 precious lives lost each week in Aus to CHD. You can support our walk by donating to our fundraising page we have created In Memory of Kynan (link in bio and comments) or you can even register to join and walk with us 💙❤️ if you have already donated, thankyou so very much 🙏🏼 it means so much to me!! #chd #chdawareness #hlhs #hlhsawareness #chdangel #hlhsangel #1in4 #congenitalheartdefects #noknowncure #8toomany #4liveslost #myheartangel #heartangelmum #heartkids #heartangel #angelmum #mumofanangel #bereavedmum #childloss #heartkids #chdvoice
October is Pregnancy and Infant Loss Awareness Month. At The Children's Heart Foundation, we're dedicated to funding research into congenital heart defects so that all babies born with #CHDs can live longer, healthier lives. ❤️ . . . #pregnancyandinfantloss #heartangel #CHDangel #CHDs #chdawareness #heartwarrior #infantloss
Happy World Heart Day 🫀 #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
A mother instinctively protects her child. A bereaved mother instinctively protects her child’s memory. Family and friends, you all know how passionate I am about doing yearly fundraising for @heartkids This year I have registered to participate in the Two Feet and a Heartbeat charity walk again. In 2021 we raised a huge $1933. This year it is my goal to beat that! I know in this day the costs of living are a nightmare but if you can contribute even a couple of dollars towards my fundraiser I would be so very grateful. Every bit counts and helps me reach my goal. You just need to follow the link in my bio to donate. From the bottom of my heart, Thankyou ❤️💙 (Feel free to share) #chd #chdawareness #hlhs #hlhsawareness #chdangel #hlhsangel #1in4 #congenitalheartdefects #noknowncure #8toomany #4liveslost #myheartangel #heartangelmum #heartkids #heartangel #angelmum #mumofanangel #bereavedmum #childloss #heartkids #chdvoice #twofeetandaheartbeat
Behind every dark cloud, there’s always a rainbow 🌈 🙏🏻❤️💙 A year ago Last night at 11:08PM Adalynn left this earth to be with our Heavenly Father! This year without her has been hard. I’ve tend to keep myself busy especially with my other two girls, sometimes I feel like I do that to help me not feel the pain… This entire year I’ve been fighting a spiritual battle within myself that has been hard…there are times that I wonder how I’m going to continue to hold on.. But.. Life is hard, no matter what you’re going through but know this… KNOW that God is the Alpha & Omega, Beginning and the end. KNOW that God does NOT ever leave you even though you might feel hopeless and alone. KNOW that this world is just temporary, one day we will live with our Heavenly Father in paradise..no more pain or sadness To be honest I can’t wait until that day.. Also, KNOW that behind every dark cloud there is always a rainbow…there is always God’s promise that everything is going to be okay.. I hold on to that promise everyday and have to remind myself everyday.. Adalynn, we miss you baby girl but I know you are living your best life and mommy, daddy & your sisters can’t wait to be where you are one day! Love you baby girl! ❤️💙🙏🏻🌈 #hlhswarrior #chdawareness #chdangel #chdwarrior #twin #godisgood #goodgoodfather #angel #chdmom #chdfamily #sisters #walkbyfaith
💞 Remi Belle 💞 19/04/21 -- 29/08/22 Love you always my beautiful brave girl xx #1anniversary #1yearawayfromhome #babygirl #chdangel
Did you know today is National Nonprofit Day? It seems like a great day to celebrate The @graememcdanielfoundation , as the foundation is officially 2 YEARS old this month! We have been fundraising since the day our son was born, and we learned what a congenital heart defect was. In order to broaden our impact, we knew starting the GMF was the right direction for us. Graeme is not with us anymore due to the complex congenital heart defects he was born with. The thought of this happening to another family left us trying to fix it. This has been a beautiful way for us to continue to share Graeme, remember all of the heart angels gone too soon, celebrate heart warriors, and make a difference in their memory or on their behalf. One day we will experience the most beautiful reunion, but until then, we will raise every dollar we can to save someone else's heart baby. Thank you for joining us in this mission to fund congenital heart defect research. #graememcdanielfoundation #chdawareness #chdbaby #CHDResearch #chdangel #fundingchdresearch #missingourmiddle
Imagine ☁️🤍 #chd #chdawareness #hlhs #hlhsawareness #chdangel #hlhsangel #1in4 #congenitalheartdefects #noknowncure #8toomany #4liveslost #myheartangel #heartangelmum #heartkids #heartangel #angelmum #mumofanangel #bereavedmum #childloss #heartkids #chdvoice #pregnancyloss #silentmiscarriage #pregnancyandinfantloss #paila #neonataldeath #angelbabies #stillborn
Our smiley girl ❤ #chdangel #childloss #mygirl
Hi Everyone! We are hosting a panel over Zoom this Sunday, August 13th at 3:00pm EST. We will be having 6 guest speakers talking about their CHD journey and experiences! Please join us to hear their stories, seek advice, and learn more about how we can advocate for CHDs! •••••••••••••••••••••••••••••••••••••••••••••••••••• #chd #chdawareness #chdwarrior #chdmom #chdsurvivor #congenitalheartdefect #congenitalheartdisease #chdvoice #communityservice #chdaware #chdbaby #chdwarriors #chdangel
NEW!!! Check out Fawn our newest Scar Buddy! Available now in my Etsy Shop! #chd #chd1in100 #chdstrong #chdbaby #chdaware #chdwarrior #chdhearts #chdawareness #chdlove #chdcustom #chdhero #heartiversary #hearthero #heartawareness #scarbuddies #scarbuddy #heartbuddies #heartbuddy #chdgift #chdkids #heartwarrior #chdangel #chdsurvivor #chdscar #chdfamily #chdlife #chdcustomorder
Get your tickets today!! Help us raise money for families with congenital heart defects! 100% of our funds raised go directly to families to help them navigate life with a medically complex child! Link in bio! . . . #hlhs #hlhsmom #hlhsangel #chdawareness #chd #chdwarrior #chdsurvivor #chdangel #donatelife #organdonation #chdaware #chdbaby
Did you know…. Every year, nearly 1 in 100 babies are born with some type of congenital heart defect Nearly 1 in 3800 babies are born with Hypoplastic Left Heart Syndrome (HLHS) (meaning half a working heart) And yet…nearly NO ONE talks about this. 🫀 When you think of having children, typically you only think about whether or not it’s a boy or girl or what they will grow up to be someday. You get excited with your spouse and family as you happily plan out what their room will look like. Or what cute clothes to dress them in. Or best of all, what stories to read them at bedtime to excite their minds before they start to count their sheep 🛌 😴 🐑 You don’t think about what will happen if they have severe medical issues, or if they will need surgery throughout their life, or worst of all, if they die in your arms at 8 days old. Though Eric and I didn’t know we were pregnant due to lack of symptoms, we knew God had entrusted us with a miracle baby the second our little Evan Kenneth was born. Despite his life limiting diagnosis, he was surely a strong fighter throughout his time on Earth! 🤜 ❤️ 💙 I wanted to give one of my favorite tattoo artists @judahhelsel of @atlasandanchortattoo a huge shout out and thank you for the care, artistry and love that went into making this tattoo to honor my firstborn son and his journey with HLHS. CHD parents of all kinds out there, whether your children are fighting, thriving or flying high with the angels in the sky, remember, you are strong and your children are loved💪🏻 💕 🔥
Got outside with mom and pepper today. Happy July. Saturday July 1st 2023 What is on my mind tonight? Happy Heavenly 33rd Birthday to David J.W. I hope that you are celebrating big today. A Memory I still have is You were showing me your space , just had moved to Kalamazoo, we had gotten Hungary so we opened your mini fridge and had salmi, peperoni, mustard and bread and made sandwiches. Went to store next day to restock the mini fridge. I hope that Sarahmarie was apart of the cerebration and you could share positive memories of us. I hope my heart is there sharing positive memories with her too. As of last year around this month my heart was replaced and did not meet you so my brains done all of the thinking. The human heart really does also hold memories. DJW- Thank you for the five years, But Thank you for letting me go and finding my best friend and soulmate a few years later. #chdangel #chdawareness #outsidetime☀️ #timewithmymomma #transplantedheart #transplantsurvivor #thatsme
Today is 6 years later the grief isn’t the same but the pain /sorrow is just as intense. As I buried my head under the covers and didn’t want to come out I know I can’t keep these days from coming but I can decide how to approach them. One year I went to work thought it was “time “ to , at the end of that day I decided work is not the place to be on a heavy grief day which is what June 26 will forever be. Everyone’s grief is not the same just as life is not the same. 💔😢❤️💙 #chdangel #forever30 #griefjourney
Just some of the things that make me think of you both 🪽🦋👼🏼🤍 what are some of the things that remind you of your angel? #chd #chdawareness #hlhs #hlhsawareness #chdangel #hlhsangel #1in4 #congenitalheartdefects #noknowncure #8toomany #4liveslost #myheartangel #heartangelmum #heartkids #heartangel #angelmum #mumofanangel #bereavedmum #childloss #heartkids #chdvoice #pregnancyloss #silentmiscarriage #pregnancyandinfantloss #paila #neonataldeath #angelbabies #stillborn
My beautiful Mermaid🌻💜 #sammiestrong💜 #chdangel
This is the last pic I snapped the night before I as a person changed forever. Something in me knew it was going to be one of the last I would ever take of our sweet boy. Brian kept asking me why I insisted on taking photos that night as evidenced in his chessy forced grin, but I couldn't give an answer other than "you never know". Thankfully, he obliged. The next day, we woke up and drove to the hospital as we did many, many times over those 4½ months not knowing we'd be leaving later that evening with an empty car seat. I somehow lost a year because up until a few days ago, I was thinking it has been 10, but it's been 11 years. He would've just finished 5th grade. I share Landon's Story tonight because tomorrow we are choosing to celebrate life! It's Addie's ½ Birthday and she's always wanted to celebrate. ❤️ #landonryderslegacy Congenital Heart Defects ~ https://www.childrensheartfoundation.org/about-chds/ Landon's Story ~ https://www.clickondetroit.com/news/2015/04/01/landons-legacy-family-hopes-to-save-babies-from-heart-defects/
3 years passed. You are my masterpiece. Thank you for showing me how to be brave, strong and patience. I never thought I could love the way I love you. I am so very grateful you picked me to be your Mom💜🌻😘 #sammiestrong💜 #chdangel
My Family ❤ Remi will always be included in every occasion big or small. We miss you so much beautiful girl 💞 #family #chdangel #missingyou
Happy Birthday Nora 🕊️ Mother’s Day was hard this year. Today is even harder. Ohh how we wonder what life would be like with you here 💕 We know you’re in heaven dancing with Jesus ✨ Until we meet again 👼🏻 We love you sweet girl🫶 #chdawareness #chdangel #infantloss #heavenlybirthday #sunshine
I miss your beautiful green gray eyes and that cute little smile of yours, my sweet boy! 🤍 I cannot believe it has now been 68 weeks since I last held you in my arms. I miss you beyond words, my sweet, beautiful Brexton! 👼🏻
Mother's Day is a day of appreciation and respect. I can think of no moms that are more deserving than those who have suffered through the loss of a child. I sit and hold you all in my heart today; All of you today... And again next week. But actually, I should think of you everyday. Because everyday you find the strength to get out of bed, smile occasionally, laugh in happy moments and LIVE. You have a strength that deserves honor after an unimaginable and unfathomable loss. My heart breaks for you. You are not invisible, I see you.❤️ We have a word for a person after a husband or wife passes on, you are a widow, a widower...a child who loses a parent is an orphan. But what are you after the loss of a child? They now have a name: "In the past year, this word is gaining acceptance and is building a community around itself. The term “Vilomah” describes a parent who has lost their child. Life has its natural order, and in that order, children are supposed to outlive their parents. But sometimes there comes a time when parents have to bury their children." 💙💙💙 Sending you hugs and much love this mother's day 💐 #childloss #bereavedmother #internationalbereavedmothersday #infantloss #gonetoosoon #childinheaven #motherslove #vilomah #mothersloss #chdangel #heartangel #sids #bereavedmothersday
I got a lot of supportive messages today, some along the lines of “thinking of you on this difficult day…” You know what though? It wasn’t any more difficult than other days this year. It was emotional, but there were plenty of positive emotions along with the sadness of not having her here to celebrate, and of not know what she would be like as a 3-year-old. I think it was nice today to have the opportunity to talk about Iris being born instead of only mentioning that she died. It was nice to remember the day she was born, the day I first met my only daughter. And it’s the start of what has become my favorite time of the year… late April and May, when my phone shows me memories of, and the flowers and trees blooming outside remind me of good days we had with Iris. I’m sure the grief hangover is coming, but as for today, it was good to celebrate my girl. 💜
Sweet Gwen’s obituary will be published in the Friday April 14 editions of the Sonoma Press Democrat and Rohnert Park’s Community Voice. Link in Bio. https://www.legacy.com/us/obituaries/sonomanews/name/gwendolyn-eynon-obituary?id=51613524 #sonomacounty #ucsfbenihoff #chdangel #nicuangel