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Day 3- Post Op- slow, but determined. 🤞🏼 My Alpha-1 disease complicates every little thing that happens to my body. It’s the main reason why I need to be monitored closely for anything that could hit me with an infection, because it takes my body longer to fight back, & it creates far more extraordinary issues. For instance, medicine that would help a “normal, healthy “ patient doesn’t work the same on me so the doctors have to jump through hoops trying to figure out what will. I’m being told it’s the path I’m on and all I can do is roll with the changes and the upheavals. Meantime, I do what I can to keep my body strong; Walking, eating a high protein diet, less carbs, minimizing social activities where crowds of ppl can and will make me sick, and being in tune to any new changes which might be threatening to my well being. It’s a tall order of do’s and dont’s, restricting me from living my life in the quality that I’ve become accustomed to, but in the end it’s little to pay to maintain and keep myself healthy. What’s that old saying: no risk, no reward”?! Thank you all for your love, understanding, support, prayers, encouragement and your humor. 🩷🙏🏼 Onward! 👉 #alpha1antitrypsindeficiency #livingwithalpha1 #raredisease #liverdisease #lungdisease #livingwithpain

4/10/2024, 5:37:02 PM

It’s been a while since I’ve really sat down to write and I miss it. I’ve been thinking about ways I can advocate by writing along with working full time and taking care of personal things. I also want to edit my books that have been published so they stay up to date. “Living with Endometriosis” has almost been published for 6 years, “Living with Alpha-1” has almost been published for 5 years, “Living with Endometriosis Workbook” has almost been published for 4 years, and “Living with Kidney Stones” has almost been published for 3 years! I haven’t finished writing “Living with Gallbladder Issues”. I was googling my books and found them available in the Harvard Book Store! What would you like to see? Sending hugs and love 💛💜💚🩷❤️🧡🩵💙🖤🩶🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masteroflegalstudies #healthcarelaw #mls #mph #masterofpublichealth

1/23/2024, 1:22:08 AM

I’ve been trying to get out and do more, but I’ve had some type of respiratory infection at least 5 times this year and currently have a cough that doesn’t seem to want to go away. I usually need steroids and antibiotics to clear them up and received them over the weekend. I haven’t been to my pulmonologist office in over three years. Even though my insurnace doesn’t require a referral to see specialists and my doctor office knows my history and family history, the doctor office requires a referral. This is a reminder that insurance companies and doctor office criteria may be different. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis

1/9/2024, 4:39:13 AM

📚These books are for those trying to find answers for their chronic symptoms. 📚These books are for those trying to find relief. 📚These books are for those going from doctor to doctor, feeling like they aren’t being listened to. 📚These books are for those advocating for themselves. 📚These books are to let you know you aren’t alone. 📚These books are to help others navigate the health care system. 📚These books are to help others learn about chronic illness. @hatherleighpr @penguinrandomhouse #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones

12/30/2023, 4:38:33 PM

For most of 2019, I was unable to work because of my pain and symptoms. Because of that, I didn’t have health insurnace. I needed to have surgery and so thankful my family was able to help me do that. Because of my financial situation, I was approved for financial assistance. I received a letter a month ago from a collections agency that I have an account with them. The service date was April 2019. I knew this was when I was approved for financial assistance and started looking through my medical records. I found what I was looking for and wrote a letter disputing the account and provided an explanation. I didn’t know anything about this account. I didn’t receive anything from the hospital or doctor office about this bill. I’ve called the collection agency at least once a week since mailing the letter and found out Thursday the account has been closed. It’s okay to ask for help. Keep all of your medical records even if it’s been a few years since you’ve needed them. This is a reminder that doctor offices and hospitals offer discounts and financial assistance for those without insurance or have low income. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

10/21/2023, 4:57:46 PM

It’s been 10 years since I started writing. I never thought it would take me where it has. I’m so thankful for my family, friends, and the support I’ve had along the way. While I don’t think I’ll ever fully come to terms with everything that endometriosis and chronic illness has taken from me, I’m very thankful to be able to share my story and what I’ve learned along the way in the hopes of helping others. Sending hugs and love 💛💜💚💙🩷❤️🧡🩵🖤🩶🤍🤎 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

10/21/2023, 4:34:09 PM

It’s been a while since I’ve done an introduction, so I thought I would do one today for any new friends😊: 🌎My name is Samantha, I live in South Carolina, and I’m 32 years old 💛I was diagnosed with endometriosis in 2010 and later other illnesses, which has led me to use my experiences to help others. I had a complete hysterectomy in 2014 at 23 years old and still had to have 2 more surgeries after due to endometriosis not being excised and there is no cure for endometriosis. 👩‍🎓I have a Master of Legal Studies in Health Care Law and a Master of Public Health degrees ✍️I’m the author of four books- “Living with Endometriosis”, “Living with Alpha-1 Antitrypsin Deficiency”, “Living with Endometriosis Workbook and Daily Journal”, and “Living with Kidney Stones”. All four are published by Hatherleigh Press, distributed by Penguin Random House, and can be purchased anywhere books are sold. I also have signed copies for sale 👩‍💼I’m the owner of Chronic Illness Support, LLC; 📢and patient advocate 🔆my mission is to help educate people about endometriosis, alpha-1 antitrypsin deficiency, and other chronic illnesses as well as to provide support for those suffering and awareness. 👩‍💻I’ve been working full time as a receptionist at a local law office for 4 months. This is the longest I’ve been able to work full time since 2013 because of my health, something I wasn’t sure I would ever be able to do again🙏 📖I’m an open book (pun intended 😂) so ask me any questions you have! @hatherleighpr @penguinrandomhouse #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #introduction #businessowner

8/14/2023, 2:51:47 AM

I have made the difficult decision to deactivate my website SamanthaBowick.com for now because I don’t have the time to devote to it. I’m still available through social media and will have my Chronic Illness Support, LLC Facebook page. Know I’m still here advocating, but it just looks different. I greatly appreciate everyone’s support over the years. Sending hugs and love. 💛💜🩵💚💙❤️🩶🤍💖🤎🩷🖤🧡 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

5/15/2023, 4:42:31 AM

Tomorrow is the 10th Mother’s Day I’ve had since having a hysterectomy. I wish I could say it gets easier with time, but it doesn’t. This picture is from 2014, the year I had my hysterectomy. This smile hid so much struggle. I wish I had all the answers to make our lives easier. Here are some tips when talking to others on Mother’s Day (or really any day): 🩵Don’t assume every woman you encounter on Mother’s Day has children. 🩵Don’t tell every woman you encounter on Mother’s Day “Happy Mother’s Day”. 🩵Don’t tell someone who doesn’t have children “you can just adopt” or “you can borrow my children” or “you’re lucky you don’t have children”. 🩵Don’t ask why someone doesn’t have children. If someone wants to bring it up and talk about it, they will. 🩵If you don’t know their situation, don’t say Happy Mother’s Day. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

5/14/2023, 4:08:19 AM

Opinion Health is conducting a study in the United States for Alpha-1 Antitrypsin Deficiency. The study is a 75 minute online interview and this interview can be split up if needed. @opinion.health Link: https://survey.opinionhealth.co.uk/uc/16006/ospe.php?SES=25ce4f35a026818f8642a44234c5e109&syid=52267&sid=52268&act=start&js=16&flash=0&devicetype=1 #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #chronicillnesssupport #writersofinstagram #authorsofinstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #researchstudy #opinionhealth

5/13/2023, 3:04:48 PM

WEGO Health holds nominations and awards every year for patient advocates. “The Social Health Awards empower and celebrate those leading the online health community – because the work of patient leaders is something to celebrate!” Is there a patient advocate you would like to nominate and recognize? If so, you can do so here: https://www.wegohealth.com/awards #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

5/9/2023, 2:50:24 AM

It’s been a while since I’ve done a medical update, partly because I’ve been taking estrogen and I still equate estrogen with endometriosis even though my body needs estrogen and I haven’t had endometriosis pain since 2015 when I had a laparoscopic surgery done with an endometriosis specialist who uses excision. About 3 weeks ago, I had my first appointment with a functional medicine doctor in the hopes to start bio-identical hormones again. I used bio-identical hormones before my hysterectomy in 2014 and haven’t used them since. I had blood work done that showed testosterone, estrogen, and progesterone were all zero. I already knew they were going to be because I’ve had my uterus and both ovaries removed. I have been using progesterone and testosterone creams and estrogen troches since I’ve had problems with extreme nausea on other forms of estrogen. I’ve changed my vitamin d to drops that also have k2 and have added Methyl-Guard plus to help with heart and bone health as well as Butyrate with magnesium and calcium to help with my gut issues. I also am trying to eat out less and eat more fruits and vegetables. Overall, I feel much better. My gut health has improved drastically. My joint pain hasn’t improved yet, but we are hopeful that it will soon. I’m very thankful to my family member who recommended this doctor to me. I wanted to do this update to provide hope to those who may feel stuck and don’t see a way out for their pain and symptoms. I know it’s exhausting, but keep pushing to find answers 💛you deserve answers and relief. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth #functionalmedicine #bioidenticalhormones

5/7/2023, 5:57:06 PM

It’s been a while since I’ve done an introduction, so I thought I would do one today for any new friends😊: 🌎My name is Samantha, I live in South Carolina, and I’m 32 years old 💛I was diagnosed with endometriosis in 2010 and later other illnesses, which has led me to use my experiences to help others. I had a complete hysterectomy in 2014 at 23 years old and still had to have 2 more surgeries after due to endometriosis not being excised and there is no cure for endometriosis. 👩‍🎓I have a Master of Legal Studies in Health Care Law degree and have a Master of Public Health degree ✍️I’m the author of four books- “Living with Endometriosis”, “Living with Alpha-1 Antitrypsin Deficiency”, “Living with Endometriosis Workbook and Daily Journal”, and “Living with Kidney Stones”. All four are published by Hatherleigh Press, distributed by Penguin Random House, and can be purchased anywhere books are sold. I also have signed copies for sale 👩‍💼I’m the owner of Chronic Illness Support, LLC; 📢and patient advocate 💻https://www.samanthabowick.com 🔆my mission is to help educate people about endometriosis, alpha-1 antitrypsin deficiency, and other chronic illnesses as well as to provide support for those suffering and awareness. 📖I’m an open book (pun intended 😂) so ask me any questions you may have! @hatherleighpr @penguinrandomhouse #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #introduction #businessowner

4/23/2023, 3:17:41 AM

Yesterday I was feeling a lot better and stronger, so hubby took me to Tarpon Springs to put my feet into the warm bath water. Salt water and sunshine is definitely “soul healing” ☀️❤️‍🩹 #tarponsprings #floridalifestyle #feelingstronger #wellness #alpha1antitrypsindeficiency #livingwithalpha1 #onedayatatime #health

4/2/2023, 5:02:53 PM

My last day at a job I’ve had for 3.5 years with people who have become family and I miss was last Wednesday😭❤️It’s the longest job I’ve had since 2010 because of my health. Yesterday I started a new job that’s full time and everyone has been great🤍I haven’t worked full time since 2017 and that only lasted about 3 months before I had to leave. It was more physical and strenuous than my current job will be so I’m hoping for the best 🙏 I’ve been sick since Sunday with some type of respiratory infection. It’s not strep, Covid, or the flu. My chest and neck are also very tight. Last night after I got home, my throat was very sore and it felt like I had something stuck that needed to go down and wouldn’t so I went to prompt care this morning. Time to rest and attack it with Flonase, Allegra, mucinex, and amoxicillin. Know that I’m still here advocating even though it may not be as present on social media. Sending hugs and love 💛💜💚🩷❤️🧡🩵💙🖤🩶🤍💖 *picture taken yesterday #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

3/30/2023, 4:47:54 PM

This past year has been really hard and I don’t really talk about my mental health even though I should. I’ve watched family members go through life threatening issues, be hospitalized, and thankfully able to come home. I’ve had to leave family members in the hospital overnight wondering if they are receiving the care they need and deserve. Unfortunately, some didn’t and that has taken a toll. I haven’t really had time to myself to process what’s happened and what we’ve been through. I decided to ride my bicycle this afternoon to get outside hoping it would help since I can’t get to the beach right now. Would I have done things differently and not be there for my family? Absolutely not. I’m thankful I was able to be there and wish I would have been able to prevent some of the things that happened. That’s what’s taken a toll on me; not being able to stop the subpar care. I don’t ever want anyone to go through anything similar and that’s why I make myself available to others. Here’s a reminder to take care of your mental health just as you do your physical health. Sit outside, read a book, talk to a therapist. Do whatever it is that helps you process trauma. Sending hugs and love. 💛💜❤️🧡💚💙🖤🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth #mentalhealth

2/22/2023, 12:37:34 AM

I’ve been wanting to edit/add to “Living with Endometriosis” and “Living with Alpha-1 Antitrypsin Deficiency” for a while now, but I’ve been putting it off. Sometimes it’s hard reading what I/we’ve been through and can even be traumatic. But a lot has changed in 4 to 5 years since both books were published and I want them to stay as up to date as possible to help others. Here’s to putting pen to paper today and making it happen. What the health care system puts us through is traumatic. We see you. We hear you. We believe you. We are here for you. Sending hugs and love 💛💜💚💙❤️🧡🖤🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

1/26/2023, 8:27:47 PM

I just registered for the Law School for Non-Lawyers course at Aiken Tech and was asked what I hope to gain from this course. Sometimes you’re in the right place at the right time. The advisor who asked me is also in health care and we shared stories of how the medical system has impacted us and our loved ones. Here’s to learning more and connecting with South Carolina lawyers. #aikentech #southcarolinalawyers #nonlawyerscourse #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mph #masterofpublichealth

1/24/2023, 4:43:39 PM

Sometimes you have to stand your ground in a professional manner. Sometimes you have great opportunities, but things don’t continue clicking in place for you to continue. Sometimes people don’t understand why you do the things you do, but don’t change for them. Stand your ground. Stand up for what you believe in. Stand up for the people you love. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

1/21/2023, 4:41:26 AM

Along with staying in communication with family and friends while being isolated with Covid, something that has helped has been reading and writing. I’m trying to get back into the daily habit of that with these 3 books. What helps you stay connected and more like yourself even when things are changing? Sending hugs and love 💛💜❤️🧡💚💙🖤🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis

1/11/2023, 3:59:15 AM

Usually in the car I’m listening to 90s music, but I decided to change it up today. It was the best decision. I haven’t listened to the Daigle Bites podcast by Lauren Daigle in a while and there was a new season. I started the first episode of season 2 and her guest is Lori Gottlieb @lorigottlieb_author, the author of “Maybe You Should Talk to Someone”. I read this book a while ago and loved it. Lauren and Lori talk about therapy, why people go, how it helps to know you aren’t alone, how we don’t treat our emotional health the same as we do physical health, and so much more. I can’t recommend this book and podcast more. We are all struggling with things others don’t know about. Sending hugs and love ❤️ #daiglebites #maybeyoushouldtalktosomeone #laurendaigle #lorigottlieb #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #mentalhealth

1/5/2023, 3:04:28 PM

2022 has had some of the highest highs and lowest lows. Going into 2023: 🎶”Don't just stand there in the storm Walk toward the light till you find the sun And you'll be better off in the long run”🎶 -Reba I hope everyone has a happy and safe New Year!🎉 #happynewyear #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth #reba

1/1/2023, 4:21:04 AM

From now until Monday November 28th at 11:59pm EST, all of my books will be buy one, get one at 25% off (equal or lesser value) in the USA! I can sign every copy, ship using USPS Priority Shipping, and accept PayPal, CashApp, and Venmo. Message me with any questions and orders 💛💜💚 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth

11/25/2022, 1:57:53 AM

Today’s issue of The Medical Examiner contains an article about alpha-1 antitrypsin deficiency 💜 Link: https://issuu.com/medicalexaminer/docs/11.18.22?fbclid=IwAR2a_-C9DAbTXIh4EhTvRUGcFWkgp1GZ0FUJSErLgfjiFyYAhu8i-uqYOfI&mibextid=Zxz2cZ #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #medicalexaminer

11/18/2022, 11:24:27 PM

I haven’t posted a lot about alpha-1 awareness month because the last three months have been hard. It’s hard to talk about and still trying to figure out what I can do about how we were treated. While November is Alpha-1 Antitrypsin deficiency month, education, advocacy, and awareness don’t stop for us. Thankful South Carolina is recognizing November as alpha-1 antitrypsin deficiency awareness month 🙏💜 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #doctors #masterorlegalstudies #healthcarelaw #mls #mph #masterofpublichealth #presidentialmanagementfellowship #pmf

11/18/2022, 4:14:56 AM

When you go in your closet and your costumes are on the floor because straps broke from hanging so long, you know you’re old 😂and then you realize you haven’t grown in 20 years 😳🩰💃 #ballet #costume #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #osteoporsis

11/5/2022, 7:48:51 PM

Heading to the Country Club to have lunch with my friend Maribeth who’s visiting from Texas. Today is a very good day for me, so I’m going to enjoy it to the fullest. ♥️ #health #myhealth #alpha1antitrypsindeficiency #livingwithalpha1 #gooddays #sunnyday #lifeisgood #appreciation #appreciatethesmallthings #ootd

11/5/2022, 5:27:10 PM

While November is Alpha-1 Antitrypsin Deficiency Awareness month, we advocate every day for better understanding, better treatment options, more compassion, and less judgement. I think the hardest part of our journey has been when my mom was recently in the hospital with RSV. I’ve seen many posts in the past week of people with RSV not making it. Alpha-1 made her fight with RSV harder. The hospital stay was horrendous to stay the least. I have seen my mom fight like never before and so thankful she’s still here with us. 💜🙏 Link: https://www.samanthabowick.com/blog/why-i-advocate-for-alpha-1-antitrypsin-deficiency #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #chronicillnesssupport #writersofinstagram #authorsofinstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy

11/5/2022, 2:45:46 PM

I’ve never excelled at taking standardized tests (cue anxiety from PACT and SOAR testing in elementary school 🤯) so when I learned that the fellowship I was applying for would have timed testing, I figured I wouldn’t advance to the next stage as a Semi-Finalist. I applied anyway and so glad I was wrong! One step closer to effecting more change. 🙏 #pmf #semifinalist #masteroflegalstudies #healthcarelaw livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis

11/1/2022, 7:39:11 PM

Should patients be required to pay medical bills BEFORE their insurnace has paid their portion to keep the bills out of collections? I was told by a hospital this should be done for a bill I called about that’s from 8 months ago and insurnace payments are still pending. Definitely going to do some digging to find out. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #medicalbills #insurance #medicare

10/27/2022, 11:09:27 PM

Be mindful of what hospital you chose for an emergency. Be mindful of what doctors you chose to receive care from because they may not be affiliated with the hospital you chose and may not have privileges there. Sending hugs and love 💛💜❤️🧡💚💙🖤🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis

10/15/2022, 7:42:33 PM

Have you ever wondered what your rights are as a patient? In yesterday’s issue of Augusta Medical Examiner I describe some of those rights. I hope you find it helpful 💛💜❤️🧡💚💙🖤🤍🤎💖 https://issuu.com/medicalexaminer/docs/10-07-22 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #augustamedicalexaminer

10/9/2022, 2:47:04 AM

Never thought I would be using a walker before my 32nd birthday because I can’t stand up straight, but here I am thanks to my back and osteoporosis. It looks like I pulled muscles and a steroid dose pack should help. If not, I go back for an MRI and go from there. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #osteoporsis #sphincterofoddidysfunction

9/30/2022, 5:53:23 PM

A company that creates audiobooks reached out with their pricing and what all it entails. If this is something I could do in the next couple of years for my books(💛Living with Endometriosis, 💜Living with Alpha-1, 💛Living with Endometriosis Workbook and Daily journal, and 💚Living with Kidney Stones), would you be interested? #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones

9/30/2022, 5:52:10 PM

When you have to travel an hour one way to hopefully find a doctor who will listen to you. I love living in a small town, but when it comes to specialists, there aren’t many, if any. How far have you had to travel to receive care? I think the most I’ve traveled is 5 hours one way. It’s awful. Sending hugs and love 💛💜❤️🧡💚💙💜🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #vitaminddeficiency

9/21/2022, 6:05:45 PM

“Be the change you wish to see in the world.” —Mahatma Gandhi My, my family’s, and the chronic illness community’s journeys have opened my eyes about how much needs to be changed in so many systems that are broken within health care and outside of health care. That’s why I’ve decided to apply to the Presidential Management Fellows Program. If I’m accepted as a Finalist in February, I will have a year to be accepted as an employee at a governmental agency. There are so many choices and I haven’t decided which I will apply to yet if I’m accepted. Here’s to the future and change, and hoping I get accepted🥂 💛💜❤️🧡💙🖤🤍🤎💖 #pmf #presidentialmanagementfellowship #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis

9/17/2022, 4:39:47 PM

This is what attending college with a chronic illness looks like. I have been in and out of college since 2009. I just knew what I wanted to do with my life when I graduated high school in 2009: be a pharmacist. However, there were other plans. It’s difficult having your entire world turned upside down because you have to plan every aspect of your life around a chronic illness. I would like to say I’m finished with school after 27 years of my life 😂 and never going back, but the saying goes “never say never” and I will still be learning even if not in a school setting. I’m thankful I have been able to graduate with 3 degrees and continue to help people even if it’s in a way I didn’t plan for. #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction

9/8/2022, 2:45:11 PM

When a patient asks for ALL records, that means they want ALL of their records no matter how many pages it is. Three weeks in, and still haven’t received all of the records we have requested. In case you’re in SC, under South Carolina Code of Laws Section 42-15-95 - Release of medical records, a health care facility or provider has 30 days from the date of the request to send medical records that are requested. It’s the law. Each state may be different. #sclaw #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #medicalrecords

9/6/2022, 9:16:39 PM

“I wonder if it’s sometimes hard to allow ourselves to drop to our knees under the weight of what we’re going through because we feel like if we fall, we might never stop falling. We might never reach the end of our sorrow. So instead, we ignore the shadows because we fear they might consume us. We forget the power of light” —Morgan Harper Nichols @morganharpernichols #morganharpernichols #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #osteoporosis #mentalhealth

9/5/2022, 12:49:15 AM

When you can’t really talk about things you need or want to talk about because you’re not sure what will come of it or don’t know how to talk about it or don’t have all the time you would like to process it, you write. This last month has been hell, but we are making it to the other side 🙏💛💜❤️🧡💚💙🖤🤍🤎💖 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #mentalhealth

9/4/2022, 8:50:17 PM

After some of the things I witnessed recently, I decided to write this article for The Medical Examiner. I hope you find it helpful 💛💜❤️🧡💚💙🖤🤍🤎💖 Link: https://issuu.com/medicalexaminer/docs/09-02-22 #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #doctors #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #sphincterofoddidysfunction #hospitalization

9/2/2022, 9:34:56 PM

It’s been a while since I’ve done an introduction, so I thought I would do one today for any new friends😊: 🌎My name is Samantha, I live in South Carolina, and I’m 31 years old 💛I was diagnosed with endometriosis in 2010 and later other illnesses, which has led me to use my experiences to help others. I had a complete hysterectomy in 2014 at 23 years old and still had to have 2 more surgeries after due to endometriosis not being excised and there is no cure for endometriosis. 👩‍🎓I just completed my Master of Legal Studies in Health Care Law degree and have a Master of Public Health degree ✍️I’m the author of four books- “Living with Endometriosis”, “Living with Alpha-1 Antitrypsin Deficiency”, “Living with Endometriosis Workbook and Daily Journal”, and “Living with Kidney Stones”. All four are published by Hatherleigh Press, distributed by Penguin Random House, and can be purchased anywhere books are sold. I also have signed copies for sale 👩‍💼I’m the owner of Chronic Illness Support, LLC; 👩‍💻blogger; and 🎤podcast host (going to start it back up soon)💻https://www.samanthabowick.com 🔆my mission is to help educate people about endometriosis, alpha-1 antitrypsin deficiency, and other chronic illnesses as well as to provide support for those suffering and awareness. 📖I’m an open book (pun intended 😂) so ask me any questions you may have! @hatherleighpr @penguinrandomhouse #livingwithendometriosis #endometriosisawareness #chronicillnesssupport #writersofinstagram #authorsofinstagram #bookstagram #peoplehelpingpeople #publichealth #healtheducation #periodtalk #advocacy #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #workbook #dailyjournal #kidneystones #introduction #businessowner

8/28/2022, 11:31:52 PM

Over the last two weeks, we have watched my mom fight like hell to beat RSV. There were times I thought she wasn’t going to make it. Despite everything that happened in the hospital, she is here and we couldn’t be more thankful 💜🙏 🙌thank you all so much for your prayers, good vibes, and well wishes. Thank you so much to everyone that’s visited, reached out to check on us, and helped us settle at home (even though we popped the air mattress 😭). We felt them and are so thankful for our tribe. She still has healing to do, but she is on the mend. Thank you so much to the amazing doctors and some amazing nurses she had while at the hospital. Thank you so much to the amazing pharmacy who hurried to get her prescriptions ready because she was discharged during the weekend. ❤️🙏 *these are old pictures @bowickj #rsv #livingwithalpha1 #alpha1antitrypsindeficiency #copd #emphysema #asthma #liverdisease #chronicillnesssupport #writersofinstagram #authorsofinstagram #peoplehelpingpeople #publichealth #healtheducation #advocacy

8/22/2022, 3:19:41 PM