BIRDS & BEER ✨️𝐖𝐀𝐑𝐑𝐈𝐎𝐑 𝐒𝐏𝐎𝐓𝐋𝐈𝐆𝐇𝐓 ✨️ Meet Keely Bergman, our Pediatric Cancer Warrior 👋 If you're joining us at the Birds & Beer event tonight, you'll learn a bit about her pediatric cancer battle, how she's doing today and the contribution Angels Among Us made in her remarkable journey. Angels Among Us provides support, comfort and hope to families battling pediatric cancer… it’s our mission. Birds and Beer isn't just about good food and drinks - it's about DOING GOOD for the families we support and we hope you feel awesome about being part of it😊 💛 THANK YOU! @nebraskabrewing
I wish there were words that could adequately describe the love and gratitude that I have for the cancer organizations that support Desmond and myself throughout this journey. Desmond's wildest dreams will come true today because of all of you. You helped this single Momma create so much Christmas magic for my baby boy. I was over here in literal tears, putting all the gifts under the tree. Before Desmond relapsed, I had just begun to Christmas shop, and while I did wrap one or two of those to give myself some normalcy, the rest I put away for Desmond's birthday. Usually, the donors from @puntpediatriccancer are anonymous - but I know this year Desmond's school adopted us. To our South Davis family and the Orchard Park community - we love you, and we most graciously thank you. You are all holding us up more than you can even imagine. To Sophia's family - please know that we are sending you all so much love and gratitude. For reminding me to breathe and take this moment by moment. The surprises we both will receive...we are forever grateful🥰🤗 Our goal is to continue paying it forward in the future for all pediatric cancer families. To ease the burden of what we go thru day in and day out is my lifelong goal. In any way, shape, or form! Desmond has a long, hard road set before him; he is the strongest little boy, and with this army of all of you behind him, he will perservere. Please continue to pray and send all the posivite vibes his way. Thank you for giving us some joy for a day where we will attempt to not even think about what lies ahead but to enjoy every single moment. Each of which will be filled with so much love. Merry Christmas 🎗🧡 @puntpediatriccancer @sophiathefierceinc @courageofcarly @newerabuffalo Stones Buddies #desmondstrong #christmas2023 #buffalove #noonefightsalone #pediatriccancerwarrior
📣 Exciting News! 🎉 We’re thrilled to announce that Ayden has been officially cleared to begin his journey playing sports! 🏀⚾️ Not only that, but Ayden has also been awarded our Exercise & Wellness Scholarship to play basketball and baseball. 🎗️ As a nonprofit organization dedicated to supporting pediatric cancer warriors, we understand the importance of providing guidance and support during the recovery process. Studies have shown that returning to a normal physical activity routine after cancer treatment requires careful consideration. That’s why we’re here for Ayden every step of the way. 💪 In preparation for the upcoming season, Ayden will be receiving one-on-one baseball lessons from the incredible Hector and Danny. 🤩 These two amazing coaches will help Ayden develop his skills and build confidence on the field. We can’t wait to see him shine! ⚾️✨ If you’d like to show your support for Ayden’s scholarship and help us make a difference in his life, please comment below or DM us. Your contribution will go a long way in empowering Ayden and other young cancer warriors. 🙏❤️ Stay tuned for more updates as we introduce you to Hector and Danny. They are not only talented coaches, but they also have something extra special that sets them apart. We can’t wait to share their inspiring stories with you all! 😊 #PoweredByCancerFit #CancerFit #CancerFitKid #ExerciseAndWellnessScholarship #PediatricCancerWarrior #SportsJourney #ChildhoodCancer #LeukemiaWarrior #BoneMarrowTransplantWarrior @Iliana_paola_lozano
A Titanic reference, @buffalobills themed t-shirt that benefits our friends at @puntpediatriccancer = 100% yesssss!!!!! Thank you @sweetbuffalo716 for sending us this matching game day fit for Desmond!!!! 🏈💙❤️🏈 @26shirts #desmondstrong #acutelymphoblasticleukemia #myfavoritesuperhero #pediatriccanceradvocates #pediatriccancerwarrior #remission #bravestboyiknow #titanicaficionado #joshie #drawmwlikeoneofyourbuffalo #26shirts
#pediatriccancerwarrior #wilmstumorsurvivor #morethan4🎗
We hope you're all smiles as you slide 🛝 into the weekend 🎉 . . . . . . . . . #CampCasco #slipnslide #slideandslide #weekendvibes #summercamp #pediatriccancersurvivor #pediatriccancerwarrior #BostonSummer #Massachusettsnonprofit #Massachusettssummercamp #childhoodmagic
#morethan4🎗 #pediatriccancerwarrior #wilmstumorsurvivor
Huge THANK YOU to the @stuffthesleigh team for this amazing 'Christmas in July' event! Naevia (and her Godsister) had a great time this lovely Sunday afternoon. Families had a private theater showing of the new @disney movie, Elemental @pixarelemental and it was such a cute movie with a powerful message! Kiddos recieved Back to School supplies and other goodies to step into the new school year ready! Stuff the Sleigh is a non-profit org dedicated to spreading the joy and spirit of Christmas through year-round giving to pediatric cancer and hematology patients.
We visited superhero Anthony to celebrate the clear scans he received. He is now cancer free for the last 2.5 half years! At SBMH we provide tailored support to children with cancer and their families. We are with them through their entire journey, no matter what that journey looks like for them. Please visit our website https://www.smallbutmightyheroes.org/ to learn more about us and donate. #smallbutmightyheroes #volunteer #childhoodcancerawareness #cancesupport #cancerfight #pediatriccancerwarrior #beatcancer #ned
Missing Jojo’s infectious laughter and unique perspective today. Remembering when he thought his hard-boiled egg was ‘catching’ when he cracked it by accident. His excitement and joy in such simple moments continue to lighten our days. #JoyfulJojo #PediatricCancerWarrior
Meet Devy, our brave little warrior, battling pediatric cancer with strength and courage. 💛 ✨ Despite the storms she faces, Devy shines brightly, reminding us all of the power of resilience and love. We are grateful for the opportunity to share in her journey and fill her world with Bundles of joy. Sending all the hugs and positive vibes to our inspiring little friend. You are truly a ray of light, Devy! Keep shining, beautiful soul. 🌟💕 #HappyBundles #DevysJourney #PediatricCancerWarrior #NeuroblastomaFighter #childrengetcancertoo #ChildhoodCancerAwareness #SuperheroInTraining
Only 1 more infusion visit of Ellix’s protocol. 1 more procedure!!! Labs are stable, ANC is staying right at 1500 where it needs to be to maintain his current dose of chemo. All other labs are in good range and no transfusions needed. He seems pale but par for the course, I suppose. Our family is feeling very grateful. We have even had conversations about being done with sergeant chemo and having his port removed! Something I never thought we would have a conversation about. July 2023 🔔 he will be ringing the bell. The symbolism behind it is so significant in the cancer world. Ellix understands how special it is that he gets to ring the bell. Continuing to feel hope but also conflicted about letting my guard down. The reality is, this is not 100% though we are blessed it’s close to that. There is always that small percentage that things don’t go the way we want somewhere down the line. When your kid has cancer and you’ve already experienced that “less than likely” experience. It’s always there taunting you. The best I can do is live life in the moment. Not take anything for granted and leave no room for regretting lost time. But for now and forever, Bye bye bad blood! 🩸 #forellix #byebyebadblood #almost #pediatriccancer #pediatriccancerawareness #leukemia #acutelymphoblasticleukemia #leukemiawarrior #pediatriccancerwarrior
Marie's strength and courage in the face of pediatric cancer is nothing short of inspiring. ✨ It's heartwarming to see her light up as she explores her Happy Bundle, a special gift of love that hopefully brings a little joy and comfort to her during her challenging journey. Our thoughts and prayers are with you, Marie, and all those fighting this battle. 🎗️ _ #PediatricCancerWarrior #MarieStrong #childhoodcancer #childrengetcancertoo #ChildhoodCancerAwareness #HappyBundles #CancerFighter #NeverGiveUp #SpreadLoveAndHope #TogetherWeCanBeatCancer
We’ve been taking time… Time to process… Time to grieve… Time to heal… Time to be together… Time to cry… Time to scream to god… Time to laugh… Time to pray… Thank you to all of those who have continued to support and love us through this. They say time heals all, and we are keeping that faith 🫶 One day when the dust settles, we will find a way to give back, and be there for other families who have had to go to hell and back against this disease.. #ependymomawarrior #pediatriccancerwarrior #myhero
Meet Violet aka “V”! V was diagnosed with leukemia in May of 2021. V was nominated by Team Summer kid Haylee after their moms were connected at the infusion clinic in the hospital. She was gifted an outdoor dome climber with hanging hammocks for playing and relaxing at home in between her trips to the hospital.🧡 #teamsummer #kidshelpingkidswithcancer #leukemiawarrior #pediatriccancerwarrior
Today the beautiful Evie received her tote bag! Look at that amazing smile! 😍 Now you always have a bag for the hospital, park or traveling! Enjoy! 💗🌟☘️💪🏻⭐️🌼🍄💫 #oliverpatchproject #patchesequalpower #powerofpositivity #cancerwarriors #pediatriccancerwarrior
Had the best day at the Canes Game with our fav Duke CHC crew! These girls will forever hold a special place in our hearts 💙 #caniacsmiles #carolinahurricanes #dukechildrenshospital #pediatriccancerwarrior
✨PLEASE SHARE! Calling all pediatric cancer warriors! Join us for this very special event, created just for you! Become your hero for the day! A day of wonder, excitement and inspiration awaits! Email [email protected] for registration link. 💜🦋🎗 So Many Angels takes photos of children with cancer and transforms them into whatever or whoever they want to be when they grow up. Our editors use their creativity and editing skills to produce works of art, and we present the families with a canvas print they can treasure forever. We help children to feel like the superstars they are during their photo sessions. We help parents enjoy watching their kid be a kid during their photo sessions, instead of a child battling an illness. Visit: www.somanyangels.org Www.themyalinterryfoundation.org Follow: @themyalinterryfoundation @somanyangels
✨PLEASE SHARE! Calling all pediatric cancer warriors! Email [email protected] for registration link. 💜🦋🎗 So Many Angels takes photos of children with cancer and transforms them into whatever or whoever they want to be when they grow up. Our editors use their creativity and editing skills to produce works of art, and we present the families with a canvas print they can treasure forever. We help children to feel like the superstars they are during their photo sessions. We help parents enjoy watching their kid be a kid during their photo sessions, instead of a child battling an illness. Visit www.somanyangels.org Www.themyalinterryfoundation.org @themyalinterryfoundation @somanyangels
#ChildhoodCancerAwareness #KidsGetCancerToo #CancerDoesntDiscriminate #GoldRibbonForChildhoodCancer #PediatricCancerWarrior #SmallButMighty #SupportForChildhoodCancer #NeverGiveUpNeverSurrender #FightForACure #ChildhoodCancerSurvivors #RememberTheKids #HopeForChildhoodCancer #MakeAChangeForChildhoodCancer #CancerSucksButKidsRock #ChildhoodCancerResearch #TogetherWeCanMakeADifference #ForTheKidsFightingCancer #KeepTheHopeAlive #ChildhoodCancerCommunity #PediatricCancerAwarenessMonth
LINK IN BIO TO DONATE #deca #decadirect #decanyc #pediatriccancer #pediatriccancerawareness #pediatriccancerawarenessmonth #pediatriccancerresearch #pediatriccancerfoundation #pediatriccancercenter #pediatriccancerisnotrare #pediatriccancerisnotrare #pediatriccancerawareness🎗 #pediatriccancerawareness🎗 #pediatriccancerwarrior #pediatriccancerpatients #nationalpediatriccancermoms #pediatriccancerheroes #pediatriccanceradvocate #nationalpediatriccancerfoundation #nationalpediatrichospital #nationalpediatriccancermonth #decasocial
Back at it! The place we know so well. Ellix has labs, pentamidine and an oncology visit today. Hoping for all good numbers. Continuing our steps towards the end of Ellix’s treatment. 1 of supposed to be 6 visits left in this protocol. Spanning over the next 6ish months. Which feels so opposite of real. When we started this and they told us how long the potential treatment would be, it sounded like forever. It is forever! Some moments feel like they will never end. Some moments feel like they are the end. Some moments will never end. But the reality is there is an end to his treatment at this moment and for that we are forever grateful to God. Looking back at what my son has been through, I can’t believe he has been going through it for as long as it’s been. He is a super hero and I am proud to be his Mom. 🕸 💛🧡🎗 #forellix #superspideyellix #iviginfusion #leukemia #leukemiawarrior #acutelymphoblasticleukemia #pediatriccancerawareness #pediatriccancerwarrior #lifewithanillness #fightforacure #fightforourkids #withgod #prayerispowerful #prayingforhisfuture
As our namesake and the inspiration behind this awareness campaign, our first “more than” child is our son, Callahan Hare. Info on Cal’s disease and all his sweet little bits that make him, him are in the slides. Below is a bit more background on Callahan’s story and how that led to this effort. Those who have been along for our journey know that Callahan was diagnosed with infant acute lymphoblastic leukemia shortly after birth. To date he has responded well from an oncology standpoint, and endured a couple infection and virus related setbacks, but continues to persevere. He is slated to be done with chemotherapy in April 2023. I remember sitting with our team just shy of 48 hours after delivery walking through Callahan’s induction treatment plan. After learning what infant leukemia was and hearing that the odds “were not in his favor” my mind spun. I thought it was over before it even started. I couldn’t stop thinking about this little baby I’d just met, and wondering, “will I ever know him?” For us, there was no “before diagnosis” Callahan. Being treated for cancer and managing everything that comes with that is all we have known with him. I was thinking about this recently, wondering who he was going to be once cancer is *hopefully* out of our life. That’s when it hit me. I was getting sucked into thinking his entire existence is cancer and that he (and we) have been robbed of the first two years of his life. But we haven’t been robbed. Despite how challenging the last 21 months have been, and regardless of where our path leads, we have *had* this time. The little boy he is showing us glimpses of through all these challenges should not be lost in that. Why am I acting like his life won’t begin until he’s done with treatment? He’s here now and that should be celebrated regardless of what this time looks and feels like. The same is true for every other pediatric cancer patient. Regardless of their journey, these kids are not defined by their cancer. They have/had an existence outside of their diagnosis. They have/had cancer, but they are *so much more* than that.
💫Life is tough my darling, but so are you.💕 We are celebrating a wonderful milestone today for our number one girl!!! This year marks T H R E E years of Ava being in remission from ovarian cancer! 🎗 Thank you for all of the unconditional support, love, positive vibes and prayers over the past few years as we have navigated this journey!🫶🏻 @dmbmoose30 #avastrong #avamadison #avabear #gerty #curlygirly #dolly #3yearscancerfree #pediatriccancerwarrior #oldsoul #ovariancancersurvivor #onetoughcookie #3yearsinremission
Ellix has an appointment at the oncology clinic tomorrow. It’s one of the appointments we refer to as the BIG appointment. But in all actuality every appointment related to cancer is a big appointment. Ellix will be getting intrathecal (spinal) Methotrexate chemotherapy, IV Vincristine chemotherapy, IV antibiotics, start a steroid pulse for 5 days and have his spinal fluid tested. They perform the above every 3 months. They pull spinal fluid from his spine to make room for the poison they have pump into his spine. This “medicine” gets pumped into his spine and goes into his brain fluid space. This has been discovered to lower to risk of relapse, which commonly occurs in the cerebral spinal fluid in patients with Acute lymphoblastic leukemia. Every time I think about these things he has to go through I feel so many emotions. Immense gratitude that he has this option (one that’s only been an option for less then 20 years if you include the clinical trials that introduced the idea) Fear. Every time I have to watch his little body go limp and his eyes roll back from the propofol pumped into his body. Or return to his bedside while he sleeps so peacefully with oxygen attached. Pain. When I watch him suffer from the “medicine” side effects. The vomiting, the pain and loss in mobility to his left leg, the tummy aches, the sleeplessness. So much the pain. Dare I say, Hope? Maybe it’s the 5 stages of grief mixed with fight or flight coping mechanisms. But every visit and procedure and dose of the poison “medicine” is one less on his protocol. It is very hard to watch your child start to be a child, feel better and have some LIFE to them only to be brought back down by the “medicine” saving his life. My boy with God you will move mountains. Please think of and pray for our little guy tomorrow as he faces his cancer monster battle. We are fortunate enough to spend a majority the battle out of the hospital and I am grateful that this will be an outpatient day. #forellix #superspideyellix #christmastimeinthehospital #fightingleukemia #fightingcancer #pediatriccancer #pediatriccancerawareness #pediatriccancerwarrior #pediatriccancerresearch
We got to meet Santa last weekend! Ellix has labs tomorrow. Please send some good thoughts, good vibes and prayers out for us. We’re holding his cortef (adrenal/cortisol/glucose stabilizer) and checking his cortisol levels. They’re also going to be checking the standard lab work to see if his counts are okay to continue treatment. He always gets a little more anxious leading up to appointments. He some how knows without us telling him, that an appointment is coming up. I can tell by his behavior he knows. I’ve been feeling anxious too. So maybe he can tell by my behavior? Fortunately work this week has kept me pretty distracted from all the what ifs. We really want Ellix to be able to remain on chemotherapy (no hold) have good cortisol output naturally and have good looking lab values overall. 💛 #forellix #superspideyellix #fightingcancer #fightingleukemia #negu #pediatriccancerawareness #pediatriccancerwarrior #leukemiawarrior #santa #merrychristmas
We made it through the night without a spike in Ellix’s temperature, which meant no ER visit last night! Unfortunately he's still at 100. Highest being 100.8(that’s 101 if you ask me but I’m no Doctor 🤷♀️) lowest being 99.9 But as long as he does not get to 101 we get to stay home. Because he was just at the ER about a week ago and had iv Cefipeme and was not neutropenic at last lab check, the team doesn’t see a need to give him more iv antibiotics or admit him for a low grade fever. BUT if his temp gets to that 101 number we will have to take him to ER because they then will want to check for sepsis, organ issues, other infections, etc. So for now we just wait and hope temp goes down. Here we are again in the never ending gray area and waiting that is pediatric cancer… Dear Cancer, WE HATE YOU! #forellix #pediatriccancerwarrior #acutelymphoblasticleukemia #wehateyoucancer #leukemiaawareness #pediatriccancerawareness #fightingcancer #superspideyellix #superpowers #ifightcancer #ifightcancerwhatsyoursuperpower Does anyone else hate thermometers?
We’re once again watching a fever climb in our little guys body😭 This morning while I was getting ready for work I noticed Ellix felt warm. Checked his temp… 99.9 I had hoped he had just been bundled up too much in blankets. Unfortunately it got higher and I had to leave work. He’s now at 99.9 again but it’s clear he’s feeling the effects of a fever and sounds miserably uncomfortable while he sleeps. I am honestly in disbelief that Ellix already has another infection or at the very least a fever of unknown origin. As of right now the plan with our team is heading to the clinic tomorrow and we’ve held both chemotherapy treatments for the night, by direction of our nurse. Unfortunately if he spikes any higher or develops any other symptoms we have to go to the local ER for evaluation. Just a week ago when we went to the ER because of Ellix having covid, I had to break my sons heart. He pleaded with me not to take him to the doctors, to let him just wait a day, to give him a break and some time. None of which I could do because of what a fever could mean to his little body. Then I had to restrain my tiny son alongside 3 other nurses while they accessed his port and he fought like I’ve never seen him fight before. While he screamed that he was scared and that it hurt so bad and that he wants to go home. He always feels betrayed after. I always feel defeated and we both always feel broken. I think back to the beginning of this diagnosis and how far he has come and how much healthier he is. Then experiences like this remind me that we don’t get to feel safe and comfortable in life anymore. That he still very much isn’t healthy. In fact quite the opposite because we have to poison his cells to make them work. Since maintenance phase began for Ellix, in January, he has had 6 known and diagnosed infections and 4 undiagnosed fever episodes. All resulted in hospitalization and chemo holds of some sort. Along with copious amounts of medications and antibiotics. The question about cancer returning does not fall short on me every single time. WE. HATE. THIS. #forellix #fightingpediatriccancer #pediatriccancerwarrior #ihatecancer #acutelymphoblasticleukemia
Thanksgiving 2022🍁 Our table was smaller then planned because of germs we didn’t get to have our extended family visit. We still had an amazing holiday. We went around and said what we were grateful for this year. We laughed. We had fun. We ate yummy food. We colored our fun table cloth. We played board games. We spent time together. It wasn’t the holiday we had planned but it was still filled with joy because we spent it together. I am thankful for my family and the love we share. I am thankful for life. #grateful #forellix #thanksgiving #pediatriccancer #pediatriccancerfamily #pediatriccancerwarrior #acutelymphoblasticleukemia
Our nations blood supply is low. Pediatric cancer patients rely on blood products to continue needed chemotherapy and surgical procedures. That’s just one of many reasons to get out there and donate! Here are a few more: 🩸EVERY 2 SECONDS someone in the US needs blood! 🩸 29,000 units of red blood cells and 5,000 units of platelets are used every day in the US! 🩸 Red blood cells can only be stored for 42 days and platelets can only be stored for 5! 🩸Approximately 1.8 million people will be diagnosed with cancer this year. Of those numbers some cancer patients will require blood products DAILY during their chemotherapy treatments! Give the gift of life this holiday season! Link in my story or on the linktree in bio. I have listed 3 different link options for donation organizations! Do it #forellix this holiday season. #redcross #lifestream #sandiegobloodbank #blooddraw #blooddonor #donateblood #pediatriccancer #leukemia #pediatriccancerwarrior #fightforourkids #givelife
Congratulations to brave Teddy Bear kiddo Thiago who rang his end of chemo bell last week, surrounded by his loving parents, brothers and sister. After years of treatment, Thiago and his family can’t wait to get back to enjoying their post-treatment lives together. We are so proud of you, Thiago!!!!!!!!! 🎗️🥰👏🎉 #pediatriccancerwarrior #santabarbara #teddybearcancerfoundation
Update on little guy and the rest of us. He tested positive for covid… again 😞 His lactic acid levels went down after 2 different hydration drips, stress dosing of cortef and the usual Cefipeme to prevent sepsis. So grateful for that! We spent close to 14 hours in the ER. Fortunately in an isolation room, not so fortunately with a very small bed. The hospital was full in hem/onc side so they held us at ER instead. I was given the choice to stay and be admitted once a bed opened or go home. They were able to stabilize his blood levels and reduce his fever. His delirium resolved after his fever went down. I chose to take Ellix home. Ellix has a difficult time staying calm in a hospital setting. In fact yesterday was the worst port access he’s ever had. By no fault to his nurses. I’ve never had to restrain him so forcefully. It escalated his heart rate to 200’s He looked like he was convulsing at times from shaking due to his temperature and stress. But this morning he looked much better. They suspect the lactic acid was elevated to 7.7 due to dehydration fortunately not due to septic shock or organ issues. He’s developing the rash again to his face. They didn’t seem concerned with it. But I am because this shows up pretty frequently. No petechiae as of yet. My oldest is finally feeling better, youngest still has a fever and Ellix still has one as well. But all in all they’re all doing okay. Fortunately Dad and I are still symptom free. Hopefully to stay that way. Some sweet friends of ours bought us delicious diner and soup to help with the germs! We love them and their kind gestures. A BIG THANK YOU TO THEM! It helped so much after 14hours in the hospital and a 4 hour drive home to be able to get home sit down and eat a well needed meal. Thank you to everyone who has reached out and sent us love! Your prayers and kindness are so appreciated ❤️ #forellix #superspideyellix #pediatriccancerawareness #pediatriccancerwarrior #leukemiawarrior #cancersucks #leukemiasucks #covidsucks #fightingforellix #nevergiveup
I’ve been trying to write an update for Brycie since Friday but life has been busy with the boys. Bryce walked into the appointment with nothing but smiles. He had a surprise EKG that we knew nothing about. Bryce was anxious about but talked his way through it like the champ he is. The oncologist visit went great and she was so happy with how well he is doing. Everything went great until the blood draw. Usually Bryce just laughs and chats his way through the pokie, just not this time. This time was a big 15 minute temper tantrum, big tears and even bigger emotions before giving in. There was a break walking down the hallway for big sighs and even bigger hugs. And if you know me, Bryce wasn’t the only one with tears. We ended the visit with a big tear filled requested mama and Brycie time. I’m not sure who needed it more. Bryce’s tumor marker came back negative and the EKG came back good. The only thing they are concerned about is Bryce’s high blood pressure for his age. There’s another checkup in a couple weeks for that. Brycie doesn’t have another pokie till March 2023 and we’re all so excited about that. #brycestrong #hepatoblastoma #pediatriccancerwarrior
🙌🏻Lots to be thankful for today with our beautiful girl!!! 🎗Ava’s scans are now being done locally! Oncology appointments with Boston Children’s can now be virtual. *PLUS* Rather than a CT scan, Ava only needs to do blood work, an abdominal pelvic Ultrasound and a chest X-Ray today. 🎉 Prayers and positive vibes are always appreciated. 💛Thank you all for the continued unconditional support for our Ava bear!🌸 #avamadison #avastrong🎗 #avabear #gerty #ovariancancersurvivor #pediatriccancerwarrior @dmbmoose30
Yesterday’s appointment went well! Ellix went with Dad. All blood levels were looking good. Ellix’s rash is clearing up and the petechiae must have been from low platelets rather then first sign of relapse. His anc was 1500! He’s on a 75% reduced dose from where he started as far as chemo. He’s only getting 25% of the recommended dose for however they calculate chemo with a child his age. Which is scary but unfortunately in blood cancer treatments you have to watch the blood to see the effectiveness of the treatment rather then a standard dose of chemo. He’s gained weight as well! This hold was what his body needed and I’m truly hoping it did all good things so we can continue on a positive path moving forward. Thankful and grateful to God! ⭐️Rejoice in hope, be patient in tribulation, be constant in prayer l. Romans 12:12 it’s not something I’m very good at but I’m learning. I figured I share with you all too. In case someone needs the reminder, like myself. It is much easier to praise God when things are going smoothly but it’s the praise we find in the hard times that truly build us in our faith with the holy spirit. Back on topic Ellix didn’t need a chemo hold, or any form of transfusions. He had his every 3 month spinal tap with Methotrexate and IV Vincristine, Pentamidine and will start a 5 day steroid pulse of Dexamethasone (out comes the Hulk)I believe they ran our genetics testing request this visit so I will be waiting to find out the result of that by the next visit, if it was in fact sent for testing. He is noticeably fatigued, extra nauseous and has a sore back and legs but is doing okay. This journey is a roller coaster. But I am extra thankful things are going well. 🎢 Our thoughts are with Florida today. I can not imagine being a pediatric cancer family in the storms pathway. Please think of those in Florida when you’re reflecting on your day and say a little prayer for them. 💛🎗 #forellix #pediatriccancerresearch #pediatriccancerresearch #pediatriccancer #pediatriccancerwarrior #leukemiaawareness #leukemiawarrior
This beautiful very energetic two year old lover of animals, the outdoors, and all things Disney who also happened to be a #pediatriccancerwarrior. She was diagnosed with stage four whelms tumor in February 2022. Her treatment so far has consisted of surgery, radiation and a combination of inpatient and outpatient chemotherapy. Her treatment is almost finished and today, you all get to follow along with her parents a day in the life from my second to last day of chemo at the at patient clinic! #childhoodcancerawarenessmonth #wilmstumor #childhoodcancersucks #childhoodcancerawareness #MoreThan4 #childhoodcancerresearch #christinalamarca #perlmuttercancercentermineolanewyork
𝙵𝚛𝚘𝚖 𝚏𝚒𝚛𝚜𝚝 𝚍𝚊𝚢 𝚘𝚏 𝚜𝚌𝚑𝚘𝚘𝚕 𝚎𝚟𝚎𝚛 𝚝𝚘 𝚝𝚘𝚍𝚊𝚢𝚜 𝚏𝚒𝚛𝚜𝚝 𝚍𝚊𝚢 𝚊𝚜 𝚊 𝟸𝚗𝚍 𝙶𝚛𝚊𝚍𝚎𝚛 𝚊𝚗𝚍 𝚊 𝙺𝚒𝚗𝚍𝚎𝚛𝚐𝚊𝚛𝚝𝚗𝚎𝚛 🥲 𝙼𝚢 𝚘𝚑 𝚖𝚢 𝚍𝚘 𝚝𝚑𝚎 𝚍𝚊𝚢𝚜 𝚜𝚎𝚎𝚖 𝚕𝚘𝚗𝚐 𝚋𝚞𝚝 𝚝𝚑𝚎 𝚢𝚎𝚊𝚛𝚜 𝚊𝚛𝚎 𝚜𝚘 𝚒𝚗𝚌𝚛𝚎𝚍𝚒𝚋𝚕𝚢 𝚜𝚑𝚘𝚛𝚝. 𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚝𝚠𝚘 𝚂𝚊𝚝𝚝𝚕𝚎𝚛 𝚜𝚒𝚜𝚝𝚎𝚛𝚜 𝚖𝚘𝚛𝚎 𝚝𝚑𝚊𝚗 𝙸 𝚊𝚖 𝚌𝚊𝚙𝚊𝚋𝚕𝚎 𝚘𝚏 𝚎𝚡𝚙𝚕𝚊𝚒𝚗𝚒𝚗𝚐. ❤️𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚠𝚑𝚎𝚗 𝚢𝚘𝚞𝚛 𝚑𝚊𝚙𝚙𝚢 ❤️𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚠𝚑𝚎𝚗 𝚢𝚘𝚞’𝚛𝚎 𝚜𝚊𝚍 ❤️𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚠𝚑𝚎𝚗 𝚢𝚘𝚞’𝚛𝚎 𝚐𝚘𝚘𝚍 ❤️𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚠𝚑𝚎𝚗 𝚢𝚘𝚞’𝚛𝚎 𝚖𝚊𝚍 ❤️𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚠𝚑𝚎𝚗 𝚢𝚘𝚞 𝚜𝚖𝚒𝚕𝚎 ❤️𝙸 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚠𝚑𝚎𝚗 𝚢𝚘𝚞 𝚙𝚘𝚞𝚝 ❤️𝙸’𝚕𝚕 𝚕𝚘𝚟𝚎 𝚢𝚘𝚞 𝚏𝚘𝚛𝚎𝚟𝚎𝚛 𝚋𝚎𝚌𝚊𝚞𝚜𝚎 𝚝𝚑𝚊𝚝’𝚜 𝚠𝚑𝚊𝚝 𝚋𝚎𝚒𝚗𝚐 𝚊 𝚖𝚘𝚖𝚖𝚢 𝚒𝚜 𝚊𝚕𝚕 𝚊𝚋𝚘𝚞𝚝❤️ 𝚈𝚘𝚞 𝚝𝚠𝚘 𝚊𝚛𝚎 𝚖𝚢 𝚊𝚋𝚜𝚘𝚕𝚞𝚝𝚎 𝚠𝚘𝚛𝚕𝚍. 𝙼𝚢 𝚛𝚎𝚊𝚜𝚘𝚗 𝚏𝚘𝚛 𝚋𝚎𝚒𝚗𝚐 𝚙𝚞𝚝 𝚘𝚗 𝚎𝚊𝚛𝚝𝚑. 𝙼𝚢 𝚍𝚛𝚒𝚟𝚒𝚗𝚐 𝚏𝚘𝚛𝚌𝚎 𝚝𝚘 𝚔𝚎𝚎𝚙 𝚖𝚘𝚟𝚒𝚗𝚐 𝚏𝚘𝚛𝚠𝚊𝚛𝚍. 𝚃𝚘 𝚔𝚎𝚎𝚙 𝚙𝚞𝚜𝚑𝚒𝚗𝚐 𝚝𝚑𝚛𝚘𝚞𝚐𝚑 𝚠𝚑𝚎𝚗 𝚝𝚒𝚖𝚎𝚜 𝚊𝚛𝚎 𝚝𝚘𝚞𝚐𝚑. 𝚈𝚘𝚞 𝚕𝚊𝚍𝚒𝚎𝚜 𝚊𝚛𝚎 𝚖𝚢 𝚊𝚋𝚜𝚘𝚕𝚞𝚝𝚎 𝚎𝚟𝚎𝚛𝚢𝚝𝚑𝚒𝚗𝚐. 𝙸 𝚑𝚘𝚙𝚎 𝚜𝚘𝚖𝚎 𝚍𝚊𝚢 𝚢𝚘𝚞 𝚔𝚗𝚘𝚠 𝚝𝚑𝚎 𝚖𝚊𝚐𝚗𝚒𝚝𝚞𝚍𝚎 𝚘𝚏 𝚞𝚗𝚌𝚘𝚗𝚍𝚒𝚝𝚒𝚘𝚗𝚊𝚕 𝚕𝚘𝚟𝚎 𝚠𝚎 𝚑𝚊𝚟𝚎 𝚏𝚘𝚛 𝚢𝚘𝚞. 𝚈𝚘𝚞 𝚐𝚒𝚛𝚕𝚜 𝚑𝚊𝚟𝚎 𝚝𝚛𝚒𝚞𝚖𝚙𝚑𝚎𝚍 𝚍𝚞𝚛𝚒𝚗𝚐 𝚜𝚘𝚖𝚎 𝚟𝚎𝚛𝚢 𝚑𝚎𝚊𝚟𝚢 𝚝𝚒𝚖𝚎𝚜. 𝚈𝚘𝚞 𝚖𝚊𝚢 𝚗𝚘𝚝 𝚔𝚗𝚘𝚠 𝚝𝚑𝚒𝚜 𝚗𝚘𝚠 𝚋𝚞𝚝 𝚒𝚝 𝚒𝚜 𝚢𝚘𝚞 𝚝𝚠𝚘 𝚠𝚑𝚘 𝚙𝚞𝚕𝚕𝚎𝚍 𝚖𝚊𝚖𝚊 𝚝𝚑𝚛𝚘𝚞𝚐𝚑 𝚝𝚑𝚎𝚜𝚎 𝚙𝚊𝚜𝚝 𝚏𝚎𝚠 𝚢𝚎𝚊𝚛𝚜. 𝙸𝚝’𝚜 𝚢𝚘𝚞 𝚝𝚠𝚘 𝚠𝚑𝚘’𝚜 𝚑𝚞𝚐𝚜 𝚊𝚗𝚍 𝚔𝚒𝚜𝚜𝚎𝚜 𝚖𝚎𝚕𝚝 𝚊𝚠𝚊𝚢 𝚊𝚕𝚕 𝚖𝚢 𝚒𝚗𝚜𝚎𝚌𝚞𝚛𝚒𝚝𝚒𝚎𝚜. 𝙸 𝚌𝚊𝚗’𝚝 𝚠𝚊𝚒𝚝 𝚝𝚘 𝚑𝚎𝚊𝚛 𝚘𝚏 𝚊𝚕𝚕 𝚢𝚘𝚞𝚛 𝚊𝚍𝚟𝚎𝚗𝚝𝚞𝚛𝚎𝚜 𝚊𝚗𝚍 𝚝𝚑𝚎 𝚗𝚎𝚠 𝚏𝚛𝚒𝚎𝚗𝚍𝚜 𝚢𝚘𝚞 𝚑𝚊𝚟𝚎 𝚖𝚊𝚍𝚎 𝚝𝚘𝚍𝚊𝚢. 𝙸 𝚑𝚘𝚙𝚎 𝚢𝚘𝚞𝚛 𝚍𝚊𝚢 𝚒𝚜 𝚊𝚜 𝚊𝚠𝚎𝚜𝚘𝚖𝚎 𝚊𝚜 𝚢𝚘𝚞 𝚊𝚛𝚎. #gogoldforchildhoodcancer #pediatriccancerwarrior #cancersiblings #firstdayofschool #privelegedtobetheirmom #bestkidsever #sistersquad
My baby is growing up and had to get glasses 😭😭🥺🥺 #boymom #glasses #pediatriccancerwarrior #myamazingson
It's Smile Day!! The clouds are parting and the weather is going to be PERFECT just in time to celebrate an amazing superhero and her sis! We can't wait to see you Lainey and Lexi!!! 🙂 #summersmiles #pediatriccancerwarrior #keysprogram #itsallaboutthesmiles
The words say it all. We don’t need silence. We need whatever voice you can give. Fight like it’s your kid! #fightforourkids #forellix #pediatricwarriors #pediatriccancer #pediatriccancerresearch #weneedmore #givebackthefuture #speakup #standup #fightforellix #fightforourfriends #pediatriccancerwarrior
After a LONG day; a clinic visit at 8:30am, then over to the hospital for CT and wasn’t able to start our MRI until 1pm. We were all antsy, HUNGRY, and just ready to be home by the end of the day…. But it was worth it because her results came in and Elliott is NED! CLEAR SCANS!!!Thank You God, and thank you to everyone who continues to pray on her behalf 🤍🎗 #PraiseLikeElliott #cancersurvivor #pediatriccancerawareness #pediatriccancerwarrior #pediatriccancer #childhoodcancer #gogold
Today is the day!!! 👑🏌️♀️💜🎗. Our first annual golf outing is in progress! Thank you to everyone who came out to support @sooniwillrun and #princesszoey!!! We love you all! 🥰 #sooniwillrun #pediatricbraincancer #pediatricbraincancerawareness #pediatricbraincancerresearch #morethan4
After lab work, Cefipeme (to prevent sepsis and bacterial port infections) iv fluids and a Positive Cvid test… he gets to go home. No transport. We will monitor him at home. Hopefully, we will not need to return to our local ER over the weekend and symptoms will run the course. Thank you for your love and prayer. Please continue to do so for our family as we are all recovering from covid. Besides our oldest who, somehow, is still fine? #forellix #ellixssupportsquad #pediatriccancerawareness #pediatriccancerwarrior #leukemiawarrior #covidsucks
This is #4 #ForEllix #pediatriccancerwarrior
After a relapse of her osteosarcoma last August, #BBFkiddo Natalie underwent limb resection surgery two weeks ago. She now has more metal in her leg to replace the tibia they removed and had additional surgery this past week to assist in the healing. This relapse has been hard on her physically and emotionally. #BEEhive, please surround this brave #pediatriccancerwarrior and her family with your love and prayers. 🐝 💛🎗 @jaldana__
Ellix’s support squad BLOOD DRIVE August 27th 10:00am-4:30 pm for more details LINK IN BIO! Join us in helping to save some lives. One whole blood donation has the potential to save 3 lives! 29,000 units of blood are needed daily in our nation! Annually, 16 million blood components are transfused in our nation! Our nation is facing a blood shortage crisis. One unlike any other in history. There are children and adults who have had to have extended waits for transfusions. Which can be life threatening and delay life saving procedures or medicines. Please join us in this fight against this! We are hoping to get lots of support in Ellix’s honor! Help us get media attention and our local baseball team storm. We have written to press enterprise, ABC 7, San Diego padres, storm stadium and ballast point! Write them on our behalf and tell them how much this cause means to us all. Tag them in your posts when you share, tag them in our posts on our comments. #letsdothis #forellix #give #donate #forourfriends #dowhatyoucan #redcross #nationalbloodshortage #pediatriccancerawareness #leukemiaawareness #leukemiawarrior #pediatriccancerwarrior #wefight #donatebloodsavelives #abc7eyewitness @abc7la @ballastpointbrewing @sdredcross @padres @lakeelsinorestorm @pressenterprise
Extra prayers tonight please for my sweet baby…. They are doing an ultrasound shortly to check for VOD - Bodie had this after BMT #1. And god spared him with a very mild case. But I’m panicking currently that we won’t get spared as easily this time. Veno Occular Disease is a liver infection that is VERY dangerous…. Bodie has been on difibrutide (the only medicine that treats it) profilactically since day 1 of BMT #2. We’ve all been hoping it wouldn’t come back…. He has a swollen tummy, enlarged liver, is needing platelet transfusions, and his weight went up 1 full kilogram in 8 hours. Momma is scared…. #nueroblastoma #pediatriccancerwarrior #BodietheBrave #superhero #pleasepray
I didn’t get any pictures from today, aside from these 2. Ellix said it was another best day ever! I wish I had captured more! We got to visit @brodinicholas @campaignoaat @spreadgoodsquad office! Ellix and his sisters had fun meeting these cool guys behind COAAT. The ones creating all the magic! We were also able to gift them with a fish tank that we customized, so they won’t forget our family when they become a billion dollar non-profit helping the world 😉 Thanks for the fun day! We hope there is many more to come. If our family can ever help you to make magic for families, let us know! It was a pleasure getting to hear your stories and get to know you all a bit! #forellix #dreambank #dreamtrip #coaat #spreadgood #spreadgoodsquad #pediatriccancerawareness #pediatriccancer #leukemiaawareness #leukemiawarrior #pediatriccancerwarrior
We love our nurses here. Though we have to be patient for lab results. The nurses are always so quick to take care of my little guy 💛 🧡 ✔️ Blood cultures ✔️ respiratory swab ✔️ other blood work. Of course the moment we enter the doors of the hospital, it never fails, his temp drops. Which is great for him but not great for nursing when they’re trying to figure out what’s wrong. We aren’t able to give him fever reducers before visiting, we had to double the dose of his low steroids as a precaution for his endocrine system. Which has only added to his already grumpy state. Fortunately all looked well in the cbc, it appears his ANC (immune cell) has jumped from yesterday a lot, which is a pretty big indicator that his body is doing it’s job to identify and get rid of the invader. We are staying out here for the night, if he’s not admitted, then at a hotel, as a precaution in the event the blood cultures (which take a minimum of 24hours) show any sign of blood infection per Doctors suggestion. He is getting IV ceftriaxone (strong broad range antibiotic) via port as a prophylactic measure and some extra hydration because all he’s done is sleep off and on. So he hasn’t had much to drink or eat. Haven’t slept much since about 3:00am so we’re both feeling that. He’s incredibly angry we aren’t home and his dad and myself aren’t both in the room. Dad is with our other kids. #toddlerlife #toddlertantrums #toddlercancer #effpediatriccancer #forellix #pediatriccancer #pediatriccancerwarrior #leukemiaawareness #leukemiawarrior #acutelymphoblasticleukemiaawareness
WARNING ⚠️ 🤮 STORY BELOW Ellix had his monthly clinic labs and doctors visit today. Labs looked well, thankfully. We have been able to reduce his low dose steroid. Which he has been taking to manage his adrenal insufficiency and glucose! Ellix gained weight. He’s officially 30lbs! He also did so well with his super hero heart access (port access) instead of having to completely restrain him, he squeezed my hands, cried a little quieter and stayed still all on his own. So unfair but also so incredibly proud of him. Now to talk about the day. The drive there had copious amounts of traffic and vomit. It’s not like Ellix to vomit very frequently. He’s been fortunate to not have too many episodes of that through the whole chemo process. Just here and there. It took nearly 4 hours to get to our Hem/Onc clinic and smelled like barf 🤢 both there and on the drive back home. Fortunately on the way home we didn’t sit in nearly as much traffic. Ellix had what I am guessing is a migraine, despite all his meds to manage chemo side effects. Including Zofran and Ativan. He still had a terrible head ache that brought him to tears and then vomited all over the back seat, his car seat and himself. Being the always under prepared mom when I need to be prepared (and overly prepared when I don’t need to be 😂) I had no change of clothes and nothing for him to vomit in. I attempted to toss him an empty Starbucks paper bag while stuck in the farthest lane from an exit on a 5 lane freeway in stopped traffic 😅 The old me would have gotten so stressed and anxious about that situation. But due to forced perspectives from this last year, I no longer care about the small stuff so to speak. As long as my kids are okay, I don’t dwell on the rest. At least I try not to. Thankfully our hospital still wears masks at all times, so no one knew what we really smelled like. Anyone that knows me. Knows that my biggest weakness is barf. I am shocked I got us to the appointment without also vomiting. #dontsweatthesmallstuff #forellix #leukemiawarrior #pediatriccancer #pediatriccancerawareness #pediatriccancerwarrior #cancersucks #effcancer #fucancer #curepediatriccancer
🎗Boston for Ava’s scans and oncology appointment. 🏩 I wish I could say this gets easier each time but it doesn’t. Prayers and positive vibes are much appreciated. ♥️ Thank you for all the unconditional support! @dmbmoose30 #avamadison #avastrong #avabear #gerty #survivor #pediatriccancerwarrior
PART 2: There are positives in our life. God is good. We’re so grateful for the life we’re in right now, the time we’re given. Pediatric cancer doesn’t get that credit. We’ve created that in spite of pediatric cancer. But, make no mistake, this life, this battle, nothing can define it. There are reasons us cancer parents fight so hard and share so endlessly. You don’t want to understand it on our level. You don’t want to be apart of this club. No offense, we don’t want you to be. We will welcome you with open arms if you’re forced to this place but it’s not somewhere we want you to be. We fight so hard for you to realize how REAL and COMMON and PAINFUL it is. It’s not Easy. It’s not rare. IT IS LIVING A NIGHTMARE WITH NO END! Since Ellix has been in battle, 300,000 kids have been diagnosed. Yes, you read that correctly. Now read that again, 300,000 children have been diagnosed since my son began this battle. Don’t look away, don’t forget. In 1 year 300,000 children and their families around the world will hear and experience similar things that I have written above. Some worse. 300,000 families will feel heartbreak beyond definition. They will feel fear so deep, pain so raw, and lose all hope on existence. Please help us change this world! TALK ABOUT IT EVERYDAY UNTIL IT CHANGES! #forellix #FUpediatriccancer #EFFyour4percent #greaterthan4 #notrare #leukemiawarriors #cancerkidclub #pediatriccancerwarrior #onceawarrioralwaysawarrior #gogoldforlife #nokidfightsalone
Maintenance cycle 2 day 1 TODAY. No judgment to anyone who does capture the rough and the raw. It is so important as it gives a glimpse of the reality of our kiddos and even us parents as we go into battle with our children. As much as I like to advocate for my son and all of these kids. I cant bring myself to capture that side of things on my sons behalf. I truly don’t think anything negative towards anyone that does. I know it’s important. I just can’t bring myself to capture it. So here’s us for the day. The wait begins. Waiting on labs. Nothing by mouth after 9, until after his spinal tap and chemo. Unless his labs tanked too low, in which case he won’t get the procedure and he will get blood instead. We will see. Probably in an hour to hour and a half. He did incredibly well today on access (needle in to chest) and covid swab. He’s usually the loudest in clinic. But with time he has grown more used to the wave of fear and various emotions that crash over him every visit. It used to take Ellix half the day sometimes the entire visit to accept what was happening to him at a visit. He would absolutely loathe the situation. He would cry non stop, not allow anyone to speak to him and get scared every time someone came to his bedside. Now it’s a short moment of detesting and then he moves on. He plays with toys,colors, watches shows. So grateful for that. One of the many things that, as a cancer parent, you learn to be grateful for, when you shouldn’t have to. It’s weird to be grateful my son is used to getting stabbed with needles and prodded with culture swabs. Yet here we are in our journey. Grateful. Also immensely happy he has treatment at this hospital, with these doctors and med team! They treat us with so much kindness ❤️ #forellix #ellixssupportsquad #leukemiawarrior #pediatriccancerawareness #pediatriccancerwarrior
Our little Spidey has a spinal procedure, chemo, and labs tomorrow. Please send some goodness out for us, say a little prayer and anything in between. He’s definitely having some symptoms of tanking blood levels. He’s had fatigue, lower then usual appetite, easy bruising, loss of color, dark urine and abdominal discomfort. All of these are definitely signs for him that he’s starting to be off on something; liver, platelets or hemoglobin. Hoping and praying he’s above the threshold for a blood transfusion. I also felt a bump under his jaw/neck line while doing my mommy lymph node checks. Hoping I’m just overly paranoid. 🙏 #forellix #ellixssupportsquad #leukemiawarrior #FUpediatriccancer #pediatriccancerwarrior #prayerplease #childhoodcancersucks #childhoodcancer #childhoodcancertrauma #EFFyour4percent @spreadgoodsquad 👀 check the shirt! Our whole family wore them to meet Spider-Man!!! 🕸 🕷 We were lucky enough to meet spider man while on our amazing trip sponsored by Campaign one at a time and their/our donors. My little dude had all his dreams come true in 1 trip! He was able to see animals, feed sharks(sort of), meet Spider-Man,Goofy, Mickey, Minnie, Donald, Daisy, Chip and Dale. He lived the dream these last 3 weeks. Unfortunately, tomorrow puts us right back into the pediatric cancer life reality.
Something great is coming Tuesday! Stay tuned for more info coming soon… kellyripa @ryanseacrest @livekellyandryan @nbc #henrysheart2011 #henrysheart #pediatriccancerwarrior #pediatriccancer #yougotthis #staytuned #somethingbigiscoming
We got to meet Mickey and Minnie today. We’re a few weeks too early to actually hug them 😞 BUT it’s still pretty magical ✨ #forellix #disneyworlddreamtrip #dreambank #oaat #campaignoneatatime #pediatriccancer #pediatriccancerwarrior #leaukemiawarrior #somuchfun #mickeyandminnie #hollywoodstudios #dreamcometrue #disney #disneyworld #gktw #givekidstheworld
I’m grateful for my children. They show me what strength is. This first image is of Ellix and his sister climbing stairs. Why? Because Ellix wanted to show his weakness who is boss! He barely walks, maybe a few steps, then has us carry him. BUT he insisted on climbing these stairs holding his sisters hand. Then rejoiced in his accomplishment. #forellix #cancerwarrior #pediatriccancerwarrior #epicroadtrip #ForEllix #ellixssupportsquad #disneyworld #coasttocoast #california
Sterile-grade home cleanings are one of the many services we can provide to families. We know that cleaning isn't enough and we are happy to help by hiring a qualified team to come to remove bacteria from your home via a sterile-grade cleaning. #mvpediatriccancer #idahopediatriccancer #idahononprofit #twinfallscityhall #pediatriccancerawarenessmonth #pediatriccancerresearch #pediatriccancerfoundation #pediatriccancersupport #pediatriccancerwarrior #twinfallsidaho #idahocancersupport #idahocancermomsquad #magicvalleypediatriccancercoalition
Admiring the Grand Canyon. His dad carried him the entire time and that’s okay. When I asked him what he thought of the Grand Canyon. He said “It was the best” It really was breathtaking. Even Ellix’s baby sister found beauty in it. I found myself in awe at almost every viewpoint we reached. I got lost in the depth and dimension. The turquoise winding waters, copper mountains. Layers upon layers of history. The Godliness of it. The land has been perfectly designed to surpass time and sustain itself infinitely. It is perfectly made, no question about it. Even in 39 degree weather, it was worth every second. Through out our trip, I wasn’t able to forget about Ellix’s cancer journey. I was, however, able to reflect on how lucky we are in every second of every moment we lived this last week. It’s painful to wonder if we will share these memories later in life or return all together when I’m old and gray. It hurts. I hope to share these memories with Ellix when he’s grown. Maybe he will be helping me walk through it next time. Either way he is right. It was the best. #corememory #forellix #pediatriccancerwarrior #grateful #thankyougod #everydayisablessing #everydayisanadventure #leukemiawarrior #negu #neverevergiveup
My little dude was so excited to stand in a hole in the side of a red rock at Red Rock state park. Being Spider-Man of course! #forellix #spidermanislife #thenextavenger #pediatriccancerwarrior #childhoodcancerwarrior
Your financial support starts a domino effect of hope to the families we are giving tangible support to. Every cent, every dollar meets a need.
@brodinicholas @campaignoaat @oaatwest thank you for choosing us and helping us to on our dream trip to @waltdisneyworld 😃 #forellix #childhoodcancerwarrior #pediatriccancerwarrior #leukemiawarrior #cutekid #dreamtrip #disneykid #disneydreaming
@campaignoaat @oaatwest thank you for choosing us and helping us to aim for our dream trip @disneyworldflorida_ 🤗 #forellix #childhoodcancerwarrior #pediatriccancerwarrior #leukemiawarrior #cutekid #dreamtrip #disneykid #disneydreaming
⭐ The virtual stage is set... Our Finalists are ready, are you? See you at 6:45 p.m. EST tomorrow! Tag someone to share this experience with you! Finalists: @cpbobick @fraziermikayla @molly.oldham @njhooper22 @sara.marie2_ Host: @sherilynch1 Judges: @mboudin @wesleyscottcooper @scottdefalco @shana.fox @glennscarpelli . . . . . #HandsForHolly #PediatricCancer #ChildhoodCancer #CancerSupport #CancerStories #CancerFacts #KidsWithCancer #CancerFamilies #FamiliesFightingCancer #CancerFinancialAid #CancerFinancialAssistance #CancerFinances #CancerFinancialHelp #ChildhoodCancerSupport #ChildhoodCancerFighter #ChildhoodCancerFacts #ChildhoodCancerJourney #PediatricCancerWarrior #ChildhoodCancerWarrior #CancerMom #CancerMoms #CancerMomLife #CancerFamilySupport
Travel Assitance: gas money, car repairs, booking and paying for airplane tickets, replacing tires, and more. We have the funds to help you get to where you need to be and get there as safely as possible.
Whatever your need is, we will do our best to help meet it. ✔️Groceries ✔️Bills ✔️Travel expenses ✔️Wifi Hotspots ✔️Gas cards ✔️and MORE Each family presents a unique set of needs and we do all we can to help in all the ways possible. Head to our website or send us a message here on Instagram if you or someone you know could use our support.
It's the "Love Month," and our website has 4 Instagram-ready posts for you to share this month! Even easier, swipe to see your favorite one and then share it to your stories! Let's share the love with our MVPCC's families this month!
Not everyone's journey looks the same and not everyone's available care is the same. We are forever grateful for the team of care and treatments that Ella is able to receive to help her to fight her battle. Sadly so many don't have the care that they need and deserve to fight. Today and always we are thinking about those fighting for their lives, remembering those who have fought hard and lost their battles, and celebrating with all of those survivors who overcame. We are praying for everyone who have ever heard the words "it is Cancer". We've lost too many that we've loved and we know so many more fighting Cancer. It seems every day we know someone else facing a cancer diagnosis. We pray that someday no one will have to face a battle with Cancer and no one will ever have to watch their loved ones fight for their lives. #worldcancerday2022 #pediatriccancerwarrior #worldcancerawareness #noonefightsalone🎗 #ellagracehunter #ellagracesjourney #findacure #preventiondetectiontreatment #closethecaregap
We literally can't do this without you! Your support from loose change to recurring donations changes lives. Text 'give' 208.203.7250 to make a donation or visit our website!
We are few weeks into 2022 and are getting excited about the events and fundraisers we have planned this year. If you would like to have more information on volunteering for the Magic Valley Pedatric Cancer Coalition, would you drop a 🙋🏽♂️or 🙋🏼♀️ (or just tell us) in the comments? Tag a friend who may want to join you too!
Here are a few practical ways to send love to someone walking through pediatric cancer: 1. Write them a note letting them know you see them and are here for them. 2. Offer to bring dinner or have dinner delivered on a specific night. 3. Send a care package. Snacks, puzzles, treats, coloring pages, a new book, lego set, at-home manicure set, or anything you think they would enjoy! 4. Give them a gift card for an at-home movie streaming service. 5. Help with chauffering, lawn care, or any other tangible thing they may need. Giving our friends walking through something hard options to choose from is far more helpful than asking what they need. They may not know what they need or want to admit they need it. Options bring solutions!