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Hallie in the wild sighting! Early morning 7x7 tournament for her little brother - she’s napping peacefully #osteosarcoma #NotRareNotFair #kidsgetcancertoo #morethan4 #halliesheroes #futureolympian #leftlegless #childhoodcancerawareness

4/27/2024, 6:16:50 PM

As May approaches us and Mother's Day is coming up, it's only proper that we dedicate this We Bleed Soca Saturdays to the Ladies Of Soca. Tune in on May 4th at 12PM EST on Twitch for the Ladies Of Soca Edition of We Bleed Soca Saturdays! We will have 6 Plus Hours of Soca from the Ladies of Soca! The Lineup of DJ's 12 PM - The Soca Vault @thesocavault 1 PM - Kandi Sharma @kandisharma 2 PM - Mr WIB @danwi.b 3 PM - DJ K Quick @djkquicklive 4 PM - Trini Girl @trini_girl_becky 5 PM - Watty Killa @wattykilla You don't need an account to enjoy the vibes on Twitch, but it helps! Who is your favorite Female Soca Artist? #webleedsoca #soca #webleedsocasaturdays #ladiesofsoca #socamusic #socadj #vibes #twitch @webleedsoca #Barbados #Vincy #virginislands #Grenada #Trinidad #Guyana #morethan4

4/27/2024, 5:58:07 PM

Meet Toni! A special thank you to @depuycaitie for helping me pick a pattern & sharing Toni’s story with me🥰 On February 1st, Toni was admitted to the PICU after visiting the pediatrician with some concerning symptoms. Not long after that, she was diagnosed with B-Cell Acute Lymphoblastic Leukemia. She immediately began chemo and was inpatient for 30+ days of induction. Unfortunately leukemia was found in her bone marrow so she has had to undergo frequent lumbar punctures to get chemo directly into her spinal fluid. She was discharged home shortly after her port was placed and has weekly appointments at clinic to continue treatment. She is in LOVE with her new unicorn blanket as you can tell🦄💜Stay cozy & keep kicking cancers booty Toni 🎗️💪🏼 #comfortcuddlesbyerin #CCBE #wefight #nonprofit #501c3 #handmadewithjoann #childhoodcancerawareness #leukemiaawareness #acutelymphoblasticleukemia #bcellALL #cancerwarrior #morethan4 #gogold #tonistrong #bostonchildrenshospital #jimmyfund

4/27/2024, 4:44:18 PM

The first photo was taken in August of 2022. It was a little over one month post his diagnosis. He was pumped full of chemo, fluids, and steroids… which in turn made him crazy hungry. The second photo was April 15 2023. In 8 months he lost so much weight, and lost his hair. Getting intense chemotherapy. The last photo was taken tonight April 26 2024. 652 days into his journey. He looks healthy. He looks happy. He looks like your average 3 year old boy. When his legs aren’t bothering him he will tear around like any normal kiddo. You sometimes would never know about the cancer unless we told you. He’s come so stinking far. With 196 days left I feel like there’s finally light at the end of the tunnel and it feels like it’s right in our grasp. I can’t wait for him to walk away from this and never look back ✌🏼🫶💛🎗️

4/27/2024, 6:26:57 AM

We are still needing your help! We are still trying to work towards getting neuroblastoma warrior Braxston and his super sibling Payton a Nintendo Switch. Our goal is to raise $550. If you’d like to help our Venmo is @hannahshappybundles Every dollar helps so much. Yes, our next shirt fundraiser will all go towards their Switch but I am hoping to try and get it purchased before I launch the shirts. It’ll still be a while before they are launched, so any help is greatly appreciated! Thank you all so much. 🫶🏻 #helpingonechildsmileatatime #childhoodcancer #morethan4 #kidsgetcancertoo #warrior

4/27/2024, 4:24:18 AM

🌟 Sponsor Spotlight: Supporting the Giveback Gala 🌟 We are thrilled to extend our deepest gratitude to Berkshire Money Management for their generous Silver Sponsorship donation towards our upcoming Giveback Gala. This donation supports our local warriors fighting Childhood Cancer and exemplifies his commitment to making a meaningful difference in the lives of children and families affected by pediatric cancer in our community. This heartfelt contribution demonstrates an unwavering dedication to our cause. Their generosity will play a pivotal role in ensuring the success of our gala, allowing us to raise crucial funds and awareness for childhood cancer research, treatment, and support services. Thanks to Berkshire Money Management’s support, we will be able to create a memorable and impactful event that brings our community together in solidarity with those fighting childhood cancer. Their sponsorship not only provides financial support but also serves as a beacon of hope for children and families facing this challenging journey. Thank you to Berkshire Money Management #childhoodcancer #childhoodcancerawareness #pediatriccancer #pediatriccancerawareness #kidsgetcancertoo #gogoldforchildhoodcancer #morethan4 #givebackgala #gala #communitysupport #givingback

4/27/2024, 4:20:49 AM

They. Need. You. Learn how to help at the link in our bio. Thank you for sharing, @gogoldforchildhoodcancer 💕🎗 #LaylasLegacy #faith #family #cure #morethan4 #FridayFacts

4/27/2024, 3:01:50 AM

Information regarding Naomi’s 13th birthday next Saturday, May 4th. Please read! I messaged Naomi’s momma about things Naomi would like for her birthday and she said she wants stickers & candy. Didn’t say anything else specifically. She just said that. 😂 One thing I know Naomi loves is mini brands, so if anyone wants to get her some of those she would love it and appreciate it. She also loves Stitch, like me! I don’t know which specific candy she wants either, but if anyone wants to send her some gifts please message me. I’ll provide her mailing address. (Her mom gave me permission.) Let’s spoil her because she deserves it. I wish I could make it back down to her for her birthday but unfortunately I cannot due to finances. We love you, Naomi, and we will make sure everything is extra special for you. ❤️ #naomisfight #pineoblastoma #braincancer #relapse #childhoodcancer #kidsgetcancertoo #morethan4

4/27/2024, 2:46:29 AM

How are you spending your weekend?? Hallie and her new friend Theo the Turtle are camping! #osteosarcoma #NotRareNotFair #kidsgetcancertoo #morethan4 #halliesheroes #childhoodcancerawareness #leftlegless

4/27/2024, 12:19:47 AM

Last call on this one... Have you opened it and read about the anxiety I went through with my grief? Who do you know that this might help? Please share it with a friend and help them know that they are not alone. @herviewfromhome https://herviewfromhome.com/i-didnt-know-anxiety-until-i-knew-grief/ ~Sharing Christ’s Story {Because of Millie} ……….︵‿︵‿୨☆୧‿︵‿︵……… ☆。・: *:・゚★,。・:*:・゚☆ 。・:*:・゚★ I still believe in Millie’s Miracle ☆。・:*:・゚ Hebrews 11:1 。・:*:・゚☆ ……….︵‿︵‿୨☆୧‿︵‿︵……… Haven’t bought a book yet? You can find all the books on our website at: 𝗺𝗶𝗹𝗹𝗶𝗲𝘀𝗺𝗶𝗿𝗮𝗰𝗹𝗲.𝗻𝗲𝘁 • 𝗠𝗶𝗹𝗹𝗶𝗲 𝗙𝗶𝗻𝗱𝘀 𝗛𝗲𝗿 𝗠𝗶𝗿𝗮𝗰𝗹𝗲 – The children’s picture book • 𝐄𝐦𝐛𝐫𝐚𝐜𝐢𝐧𝐠 𝐀 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝟐𝟏 𝐃𝐚𝐲𝐬 𝐭𝐨 𝐀𝐥𝐢𝐠𝐧𝐢𝐧𝐠 𝐘𝐨𝐮𝐫 𝐅𝐚𝐢𝐭𝐡 𝐰𝐢𝐭𝐡 𝐭𝐡𝐞 𝐇𝐞𝐚𝐫𝐭 𝐨𝐟 𝐆𝐨𝐝 • 𝐄𝐦𝐛𝐫𝐚𝐜𝐢𝐧𝐠 𝐚 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝐂𝐨𝐦𝐩𝐚𝐧𝐢𝐨𝐧 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐍𝐨𝐭𝐞𝐛𝐨𝐨𝐤 𝐰𝐢𝐭𝐡 𝐒𝐜𝐫𝐢𝐩𝐭𝐮𝐫𝐞 𝐕𝐞𝐫𝐬𝐞𝐬 #MilliesMiracle #ChildhoodCancer #Neuroblastoma #MoreThan4 #Childloss #Forever3 #WithJesus #AGrievingMama #AGrievingDaddy #SiblingGrief #LifeAfterLoss #missingyou #sister

4/26/2024, 10:52:32 PM

✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**

4/26/2024, 9:26:00 PM

Make a difference every month by joining our Monthly Donor family! 💛 With only 4% of the annual budget for the @nationalcancerinstitute going to childhood cancer research, every dollar counts. Your consistent support helps fund life-saving childhood cancer research year-round.🎗 Check out our pinned video on how to get started, or visit our website at the link in bio! #childhoodcancerawareness #childhoodcancer #theansleyfoundation #nonprofit #nonprofitorganization #neuroblastoma #pediatriccancer #weneedacure #childhoodcancerresearch #donations #cancerawareness #cancer #morethan4 #kidsgetcancertoo #ayacancer

4/26/2024, 6:04:23 PM

Everything has changed. Being that we spend 4 to 5 weeks living at the hospital, we don’t get to create new memories or start new traditions with our daughter. Her diagnosis has also paused us to continue to grow our family. While we should be taking the time to focus solely on her, both Dad & I still need to work to pay our regular bills & now the additional medical expenses that we never anticipated.⁠ ⁠ Chemo has dimmed so much of her positive light. She used to laugh & smile all the time, but now we fight just to get a smile out of her. Adelina loves her cousins, and whenever she sees them – she lights up and laughs at everything. She loves to climb & explore, absolutely loves the outdoors, she enjoys playing with toys that she can pull apart or build back up. More than anything, she loves water! But because of her broviac, she can’t get wet. She loves to play guitar like her dad and sing, even though we have no clue what she’s saying.⁠ ⁠ ⁠ Hope session by @eganeyesphotography

4/26/2024, 6:01:35 PM

Rallying for the Halos! Baseball season is in full swing and we wanted to extend our gratitude to the @Angels for their support of the Pediatric Cancer Research Foundation. Thank you for helping us strike out cancer! Together, we are working towards happier and healthier futures for children with childhood cancers. ⚾️🎗️ #PCRFKids #PediatricCancer #NonProfitOrganization #MoreThan4 #ChildhoodCancerAwareness #AngelsBaseball

4/26/2024, 5:24:46 PM

✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM TO RESERVE YOUR VIP TEXT 678-886-7930 VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam

4/26/2024, 4:57:18 PM

We are so exited to welcome back @ajibola_rivers for Field Day! Ajibola preformed at last year’s Field Day and it was such a beautiful performance for all. Check out his bio below and link in bio to register for Field Day! Ajibola Rivers is a Nigerian-Cherokee performing artist currently residing in Norristown, PA. He received his cello performance degree from the Boyer College of Music and Dance in 2016. Ajibola is also a self- taught composer and arranger. He began informally composing during his junior year of high school. He has a unique passion for teaching, viewing it as the final evolution of performing art, and he heavily incorporates learning into both performing and composition. He wishes to revive several “unfinished conversations” in classical music, including Leonard Bernstein’s Young People’s Concerts, and to facilitate a healthy dialogue between classical music and other genres. He is developing a teaching, writing, and playing philosophy that seeks to improve the relationships between classical music and the communities it serves. #olliesorchestra #fieldday #morethan4 #childhoodcancer #pediatriccancer #atrt #abingtonpa #elkinsparkpa #cheltenhampa #jenkintownpa #philadelphia #childrenshospitalofphiladelphia

4/26/2024, 3:31:59 PM

🎗️P I L L S🎗️ . Yesterday is done and I officially only have three more spinal taps left in treatment. Yesterday also kicks off what we call a “steroid pulse.” I wrote in my post yesterday that I was going to bring you all along on a week in the life of a brave kid, and it starts with this. . This is my pillbox, which is a little extra for this week because of the steroids. I will take steroids for five straight days along with my other at home chemo medication. They’re another 5 1/2 pills not pictured that I only take on Thursdays that we keep in a separate container. . In the past this week has been very rough for me because steroids cause a lot of emotions, changes in my sleeping habits, and insane hunger at all hours. . Today we are going to go food shopping to stock up on all of my steroid craving favorite, such as potatoes and bagel bites. . I’ll definitely take a lot of naps in the coming week and my mom and dad try to keep me busy with activities plus I have football and baseball this week. . BE BRAVE STAY BRAVE 🧡 Shane and Perry (the platypus) . #Leukemia #ALL #AcuteLymphoblasticLeukemia #BCELLALL #BCellAcuteLymphoblasticLeukemia #Cancer #PediatricCancer #ChildhoodCancer #LeukemiaAndLymphomaSociety #AmericanCancerSociety #HackensackUniversity,MedicalCenter #Oncology #OncologyPatient #PediatricOncology #PediatricOncologyPatient #MoreThan4 #nfl #nflflag #49ers #christianmccaffrey #christianmccaffreyfoundation

4/26/2024, 3:04:02 PM

Radiation day 6 ✅ Ripp is officially halfway through his 12 proton radiation treatments for his NB treatment plan. He’s been feeling really good for the most part. He’s experiencing some fatigue throughout the day and needs a nap. After that though he channels all his energy and he’s nonstop until he hits the pillow. He’s loved being outside with his siblings, Nannie’s, and friends. He has been playing in so much water, his intrusive thoughts clear all of the counters, and his laugh you can hear wherever he is nonstop. We love these good days with him and will never take them for granted. He’s still struggling with sleep. Some nights are good and some nights he’s still up like a newborn. He has one more day of radiation for this week and then we are hopeful to get some much needed restorative sleep this weekend. He’s making lots of friends at Huntsman. He knows child life by name. He loves the stickers going back to the vault. And he’s in such a routine now he doesn’t scream the whole hour drive and all of waiting until sedation. He just plays his little heart out and I’m so thankful he’s settled into their care so well. #neuroblastoma #cancersurvivor #pediatrics #pediatriccancer #pediatriccancerawareness #utahmom #specialneedsmom #specialneedsdad #cancer #cancerwarrior #pediatricneuroblastoma #neuroblastomawarrior #neuroblastomaawareness # #medicallycomplex # #primarychildrenshospital #neuroblastomasurvivor #chemotherapy #chemohairgrowth #chemowarrior #pediatricchemo #momcologist #bonemarrowtransplant #stemcelltransplant #stemcelltreatment #morethan4 #itcouldbeyourbaby #kidsgetcancertoo #beourvoice #standuptocancer

4/26/2024, 4:28:25 AM

"Sometimes you will never know the value of a moment until it becomes a memory." - Dr. Seuss We wish we had more time Layla, so we are fighting for more time for all the other kids and their families fighting the battle against pediatric brain cancer. Learn more about Layla's Legacy at the link in our bio. #LaylaStrong #FightLikeAKid #NeverGiveUp #LaylasLegacy #TBT #ThrowbackThursday #Faith #Family #Cure #MoreThan4 #ChildrensCancerAwareness

4/26/2024, 2:27:46 AM

Thanks to everyone that helped run our "Cancer Sucks" Fundraising event today! We also had our Leukemia and Lymphoma Society Town Hall this morning, where we learned about the financial burden of cancer. It was an amazing opportunity for education and advocacy! These were our last events of the semester... We hope you all have a great summer, we can't wait to be back to school in August for all of the advocacy, volunteer, and fundraising events we have planned!!! #morethan4 #forthekids #childhoodcancer

4/25/2024, 11:56:27 PM

A box of two #MorgansHopeHearts were sent out to a little girl battling cancer and her brother. One of our friends shot some pictures of the beautiful little girl and we couldn’t help but want to send a little extra hope to the family. We never like the reason behind having to gift hearts - but we always send the hearts with all of the hope and love possible! Here to support everyone in any way. If you know of anyone who is need of a little extra hope in their lives due to a cancer diagnosis - please reach out as we send these gifts thanks to those who support us in our project. 💞💞💜💚 .⁣ .⁣ .⁣ .⁣ .⁣ #morganshopehearts #cancersurvivor #hope #childhoodcancersucks #gogoldforchildhoodcancer #childhoodcanceradvocate #cancersupport #childhoodcancerwarriors #kidsgetcancertoo #cancerawareness #childhoodcancerawareness #beatcancer #morethan4 #cancerwarrior #cancerfighter #gogold #cancersucks #love #childhoodcancer #childhoodcancerawarenessmonth #childhoodcancersurvivor #fightlikeakid #childhoodcancersupport #pediatriccancer #lymphoma #peripheraltcelllymphoma #bonemarrowtransplant #cancer #giveback

4/25/2024, 9:43:19 PM

In the race to cure pediatric cancer, time is of the essence. Scientists are tirelessly pushing boundaries, but they're often hindered by funding woes and bureaucratic hurdles. Imagine the breakthroughs we could achieve if we removed these barriers and provided the resources needed to fuel their research. Every moment lost to red tape is a moment a cure slips further away. Let's rewrite this narrative. Let's prioritize funding and streamline processes, empowering our scientists to make strides towards a cure. Together, we have the power to turn possibility into reality. #DIPG #dipgawareness #curecancernow #childhoodcancer #childhoodcancerresearch #childhoodcancerawareness #pediatriccancer #pediatriccancerresearch #cancerresearch #cancercommunity #morethan4 #morethanfour #kidsgetcancertoo

4/25/2024, 9:00:20 PM

Our 4th Annual Butterfly 5K & Kids Fun Run event presented by Orangetheory Fitness of Long Island last Saturday was a resounding success. A little rain was no match for the support of our incredible community! Thanks to everyone who joined us both in person and virtually, we together raised over $42,000 to directly benefit families of kids with cancer! A heartfelt thank you to every runner, sponsor, and supporter who made this all possible. Your generosity and commitment to giving back to our community are truly inspiring, and your contributions directly impact the lives of children fighting cancer. We are immensely grateful to our dedicated volunteers and board members, whose hard work and dedication played a pivotal role in the success of this event. Without their tireless efforts, none of this would have been possible. Special appreciation goes to Michael Sharinn from @mikesharinnmedia for beautifully capturing the day through his photography, Kevin Schick from @xentdjs for his fantastic emceeing, and Brendan Dagan and his team from @elitefeats for their support. All photos of the event are available through the link in our bio.

4/25/2024, 7:49:12 PM

Mercy’s journey started on January 27, 2024 with a simple fever. His family didn’t think much of it as he always seemed to get sick easily. However, after a week he was still battling fevers, and he was eating and drinking less and sleeping more. So, he was taken to his pediatrician who diagnosed him with COVID and strep throat. He was sent home on antibiotics and was told he should feel better within a couple days. Days later and Mercy’s symptoms were only getting worse. He was still having fevers, not eating or drinking, he wouldn’t/couldn’t walk, and he wasn’t going to the bathroom. Mercy was taken back to the pediatrician who sent him to the ER due to dehydration. After hours in the ER, Mercy’s mom was told he might have cancer and he would need to stay for more testing. Mercy was admitted to the hospital and three days later on February 9th he received his diagnosis: Acute Myeloid Leukemia with KMT2Ar- ELL. This puts him in the high risk category. Mercy started chemotherapy immediately and spent 34 days impatient. The first round was really hard for Mercy. He was fighting COVID, strep throat, and pneumonia on top of all the treatment he was receiving. Thankfully, after the first round he was able to go home for a week, before spending another 31 days impatient. Mercy is now about to begin round 3 of chemotherapy, which will have him impatient for at least another 30 days. After this round Mercy will be receiving a bone marrow transplant. However, Mercy does not have a current perfect match on any registrar. If you are able, please register to possibly be Mercy’s match @nmdp_org. The closer the match, the more successful the transplant odds tend to be. Mercy turns two on August 8th, and there no better present than the gift of life! He has a long way to go in his battle against cancer, and it likely won’t be easy, but Mercy has an army behind him! #aml #acutemyeloidleukemia

4/25/2024, 6:57:40 PM

Adelina has successfully completed 3 rounds of chemo treatment. Each round has been different from one another. She has received 2-3 chemo drugs over several days with each round. At the end of each round, she has an EKG and ECHO done, along with a Lumbar Puncture & Bone Marrow Aspirate. This doesn’t include all the other meds she receives daily to prevent infections.⁠ ⁠ On the few days we do get to spend at home between rounds, Adelina is mostly sheltered. We sometimes see our immediate family as long as no one is sick, but she also can’t be in crowded places or visit the local playground. When we’re impatient, she does not get the opportunity to play with other kids because all the kids on her side of the floor are immunocompromised.⁠ ⁠ ⁠ Hope session by @eganeyesphotography

4/25/2024, 6:01:31 PM

PLEASE consider joining TEAM CARMELLA! We are now accepting donated baskets and gift cards for The Third Annual Carmella Classic raffle. Please contact Michael Anthony Rossi at [email protected] or Anthony Rossi at (716) 622-4475 or [email protected]. For more information check out the official The Third Annual Carmella Classic link: https://www.classy.org/event/carmella-classic-2024/e536390 THANK YOU! CARMELLA FILOMENA ROSSI, FOREVER 3 💔💜💛🎗 #carmellaclassic #carmellagolftournament #teamcarmella #keepcarmellasmemoryalive #bebravelikeme #thisispediatriccancer #saytheirnames #morethan4 #kidsgetcancertoo #fightlikeourkids #whataboutkids #kidsdeservebetter

4/25/2024, 3:28:22 PM

Naomi is receiving a hospital bed tomorrow but she took a good fall today while going to the bathroom. That’s all her parents said, but they said to please pray for her. Naomi turns 13 next Saturday and I want to do something for her so I am trying to think of something. I am going to message her mom tomorrow and I’ll let you all know. Thank you for the continued prayers for her. ❤️ Facebook- Naomi’s Fight: Naomi Strong Her parents update a lot more on Facebook than anywhere else. #naomistrong #naomisfight #childhoodcancer #kidsgetcancertoo #morethan4 #pineoblastoma #braincancer

4/25/2024, 8:25:59 AM

Lola received her happy bundle. She loves her new baby doll and named her Sally. Thank you all so much who donated for Lola’s bundle. I am so glad she loved everything we sent her. This is what your donations do. If you’d like to donate to help another warrior receive their happy bundle our Venmo is @hannahshappybundles Thank you all for your continued support. 🫶🏻 #hannahshappybundles #helpingonechildsmileatatime #childhoodcancer #kidsgetcancertoo #morethan4 #leukemia #warrior

4/25/2024, 2:59:24 AM

🎗️LTM Cycle 4🎗️ . Tomorrow is an early day as I head into the hospital for my fourth cycle of LONG TERM MAINTENANCE which is the second phase of my treatment. The first phase, frontline, was all of last year. . Tomorrow I will have blood work done, get my IV, see my favorite nurses and doctors, get Vincristine chemotherapy, then get my spinal tap, sleep, get some fluids and then head home. Tomorrow will be my 17th spinal tap. SEVENTEENTH! I need 20 all together. . When I get a spinal tap they take some of my spinal fluid to test for leukemia cells and then they push chemo directly into my spine to prevent any cancer cells from popping up. My type of leukemia likes to hide in spines (and testicles.) . This round of chemo I’m going to document from tomorrow morning, through the day, and then for the week that follows. So I hope you join me to see a day in the life of a brave kid! Also….tomorrow is Perry’s Birthday!!!! . I’m very nervous tonight. I hope I can sleep. Think of me tomorrow and next week ❤️ . BE BRAVE STAY BRAVE 🧡 Shane and Perry (the platypus) . #Leukemia #ALL #AcuteLymphoblasticLeukemia #BCELLALL #BCellAcuteLymphoblasticLeukemia #Cancer #PediatricCancer #ChildhoodCancer #LeukemiaAndLymphomaSociety #AmericanCancerSociety #HackensackUniversity,MedicalCenter #Oncology #OncologyPatient #PediatricOncology #PediatricOncologyPatient #MoreThan4 #nfl #nflflag #49ers #christianmccaffrey #christianmccaffreyfoundation

4/25/2024, 2:54:27 AM

The neurologist called this afternoon and said the tumor board agree they absolutely wouldn’t consider surgery unless the tumor starts causing symptoms (seizures, memory or gross/fine motor problems). Currently Oliver has no symptoms that we are aware of so he will follow up with another MRI in 3 months. This decision doesn’t change the fact that there’s still a tumor growing in there but we’re very thankful he doesn’t need surgery at this point! . We’re going to be praying that this tumor shrinks on its own (which these types can do!) and that he never develops any symptoms from it! 💙 . #nf1 #iknowafighter #childrenstumorfoundation #morethan4 #iknowafighter💙💚

4/25/2024, 1:18:35 AM

It broke my heart watching Hallie watch the seasons change from a window. While passing her bus stop and seeing all her friends waiting to start the school year waiting for the bus while Hallie was silently preparing herself for another hospital visit. I would cry for her and be angry for her - like really upset that she wasn’t where we all knew she needed to be - in school, with friends and peers, growing and learning. I remember that loneliness and fear and joined a Facebook amputation group and posted that my daughter wasn’t walking or healing right - y’all know all the darkest fears you post at 2am - I really needed someone to say hey my kid had issues to but keep your head up keep climbing. Instead I got low key well my kid never had any issues healing - my kid is fine. Blah blah blah Everyone talks such a big game when things are going well - but when you’ve hit a wall of obstacles and are reaching out to find some hope and are being not just shut down but kinda looked at as a clown - F that And that was my attitude I wish someone would have passed these words down to me: “A season of loneliness and isolation is when the caterpillar gets its wings. Remember that next time you feel alone.” —Mandy Hale You’re not alone You are surrounded by warriors you just can’t see them through their own battles but they are there. Warriors who have come before and paved the way for- it’s just a little overgrown but so FIXable It’s fixable - and sometimes wings might take a little longer to come in. Anyways, I’ve been thinking a lot about how upsetting the last 3 years of her cancer journey had been - how I have lost and reclaimed faith and myself. All those years of isolation and crazy times where the walls closed in on us and now our butterfly is flying- no nets or obstacles in her path! Hallie was elected President of her High Schools FFA Chapter #osteosarcoma #NotRareNotFair #kidsgetcancertoo #morethan4 #halliesheroes #futureolympian #childhoodcancerawareness #leftlegless #childrensmiraclenetwork

4/24/2024, 11:07:11 PM

Adelina has always been a happy and energetic child. In early 2023, we felt she had never-ending cold symptoms and after taking her to the pediatrician multiple times, they brushed it off as normal. Fast forward a few weeks, Adelina began throwing excessive tantrums in which she would intentionally hit her head against hard surfaces. This led to petechiae & bruising popping up on her face, which ultimately caused concern for us (parents) and we took her to the ER. She was diagnosed with AML on May 30, 2023.⁠ ⁠ ⁠ Hope session by @eganeyesphotography

4/24/2024, 6:01:37 PM

🌟 Sponsor Spotlight: Supporting the Giveback Gala 🌟 We are thrilled to extend our deepest gratitude to Mativ for their generous Silver Sponsorship donation towards our upcoming Giveback Gala. This donation supports our local warriors fighting Childhood Cancer and exemplifies his commitment to making a meaningful difference in the lives of children and families affected by pediatric cancer in our community. This heartfelt contribution demonstrates an unwavering dedication to our cause. Their generosity will play a pivotal role in ensuring the success of our gala, allowing us to raise crucial funds and awareness for childhood cancer research, treatment, and support services. Thanks to Mativ’s support, we will be able to create a memorable and impactful event that brings our community together in solidarity with those fighting childhood cancer. Their sponsorship not only provides financial support but also serves as a beacon of hope for children and families facing this challenging journey. Thank you to Mativ! #childhoodcancer #childhoodcancerawareness #pediatriccancer #pediatriccancerawareness #kidsgetcancertoo #gogoldforchildhoodcancer #morethan4 #givebackgala #gala #communitysupport #givingback

4/24/2024, 3:06:07 PM

This is Hudson 💜🎗 Hudson is being treated for cancer in Minneapolis and just received one of our #olliesorchestra musical backpacks. His mom Nikki writes “thank you for bringing a smile to his face - he loves them [the instruments] so much” We are also so grateful to report that Hudson’s tumor is shrinking💜 Sending love and music to our fellow pediatric oncology families and to Hudson, for bringing a smile to our faces. #olliesorchestra #morethan4 #childhoodcancer #pediatriccancer #gograyinmay #musicforkids #musictherapy #remo #hohnerkids

4/24/2024, 7:40:16 AM

Remembering Kekoa on his 4th angelversary💔🤍 On April 5th, 2020, Koa began to experience a fever and congestion. From there on, Kekoa was feeling better, but not 100% yet. Then, 10 days later, another fever happened. Followed by vomiting the next day. Doctors thought it may be the strong antibiotics messing with his stomach. The next day he had a video call with a doctor. Koa had developed bruises and was unlike himself that night. His mom saw dark spots in his mouth, (bruises). After seeing a doctor in person it was said that these newer symptoms were just a secondary infection from the congestion. Energy wise, Koa was so lively, and upbeat during this appointment nothing seemed wrong. Horrifically, that evening he was rushed to the hospital as he began to seize. On April 19th, 2020, It was found that Kekoa had acute myeloid leukemia, and the leukemia caused a massive brain bleed. 8 year old Kekoa never woke up and died just 2 weeks before he would’ve turned 9 💔💔💔💔Koa’s family does amazing things in spreading awareness of childhood cancer and of their sweet boy, his legacy is so strong it is one that will never fade. Please check out @kekoastrong and see the work that they do🩵🤍 https://www.koastrong.org #kekoastrong #koastrong #canceloutbloodcancer #leukemia #acutemyeloidleukemia #AML #cerebralhemorrhage #childhoodcancer #kidscancer #bloodcancer #pediatricleukemia #gogoldforchildhoodcancer #childhoodcancerawareness #nationalpriority #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer

4/24/2024, 6:31:41 AM

another Tuesday checked off✔️ We started the day at Sloane’s school field trip and ended the day at clinic for Blythe to receive her two chemos and two IV meds. We found out that Blythe’s counts tanked alot faster than expected so we now have to go back to our bubble after this weekend to protect Blythe. With her counts being so low if she does spike a fever (100.3) she will be admitted to the hospital. Praying fiercely we can stay away from the hospital for as long as possible but ultimately leaving it in Gods hands because each day we know we are one day closer of the “really hard” being behind us. Also, the first picture is Blythe’s mood after kicking Doxorubicin in the booty! 🎉🎗️💕 . . . . #childhoodcancer #childhoodleukemia #leukemia #leukemiawarrior #leukemiaawareness #childhoodcancerawareness #childhoodcancerawarenessmonth #thisisus #dailylife #orangeout #cancerfree #battle #endchildhoodcancer #childhoodcanceradvocate #pediatriccancer #morethan4 #kidsgetcancertoo #noonefightsalone #fightlikeakid

4/24/2024, 3:40:14 AM

Who else believes that it is ridiculous that children's cancer research only receives 4% of funding here in the US? 🙋‍♀️🙋‍♀️🙋‍♀️🙋‍♀️ So what can YOU do? Here are a few ideas: 1. Ask your elected officials to advocate for more funding. 2. Share this post. 3. Donate (link in our bio) We have to do better for these kids and families. They are worth way #MoreThan4. #LaylasLegacy #GoGold #GoGoldInSeptember #faith #family #cure #FightLikeAKid #ChildhoodCancerAwareness #gogray #warriormoms #TuesdayTip #DoMore

4/24/2024, 3:24:15 AM

I just received this wonderful thank you from a mom whose child is in the midst of his cancer journey. His big brother comforts him. This is why I continue Michael’s legacy. #childhoodcancer #braintumorawareness #morethan4 Hello! @sydneybeckman_realtor is our neighbor who so kindly dropped off bags for both our boys this afternoon. As I’m sure she mentioned, our youngest son went from running around without a care in the world, to having a seizure, to finding a tumor, to major brain surgery, to having a stroke, to a cancer diagnosis, in the span of just a few days! It’s so amazing to have such a wonderful and generous community, especially people who have been through similar situations before. I am so sorry to read about the loss of your son, Michael. He sounds like one heck of a fighter and shall always be remembered as such 💛

4/24/2024, 3:07:00 AM

Income should not determine whether a child gets to live or die! Pediatric cancer🎗️deserves more than the 8%. #pediatriccancerawareness #noraswarriors #morethan8 #princessnoraswarriorfoundation #fundacure #curechildhoodcancer #pnwf #morethan4

4/24/2024, 3:01:01 AM

🎗️MRI #8🎗️ . This past week I headed in for my 8th MRI. . Back in January we learned that the brain blood clot I had been battling was finally gone! But in its place (much smaller) was a total blockage - they call it a chronic occlusion. I am not showing any signs of neurological issues or other signs of a problem so they assume my brain has grown new veins around the blockage to continue to bring blood to the blocked portion. Science is wild and my body is awesome! . We met with our neurologist who explained they wanted to watch this blockage to see what it would do once we stopped all blood thinners. So for the past three months we have waited for the next MRI. . Everything is stable! Everything remains the same. This is good news! . It sounds like I am done with MRIs every three months and will have another one in 6 months to a year. . Another step in the right direction! We pray that is continues to remain stable and that no new blood clots form. We pray that my brain continues to build up these collateral veins and this blockage does not affect me in anyway. . BE BRAVE STAY BRAVE 🧡 Shane and Perry (the platypus) . #Leukemia #ALL #AcuteLymphoblasticLeukemia #BCELLALL #BCellAcuteLymphoblasticLeukemia #Cancer #PediatricCancer #ChildhoodCancer #LeukemiaAndLymphomaSociety #AmericanCancerSociety #HackensackUniversity,MedicalCenter #Oncology #OncologyPatient #PediatricOncology #PediatricOncologyPatient #MoreThan4 #nfl #nflflag #49ers #christianmccaffrey #christianmccaffreyfound ation

4/24/2024, 1:29:53 AM

⭐️ S C A N S ⭐️ Please keep Luna in your thoughts over the next couple of days as she undergoes multiple scans and tests. We are hoping for nothing but positive results. But as you know, cancer knows no bounds. It’s evil, vicious and unpredictable. Cancer does not care how well you have been doing. 🧸💫 #BraveLikeLuna #Neuroblastoma #Cancer #Scanxiety #HighRiskNeuroblastoma #Scans #KnowNB #TreatNB #BeatNB #ChildhoodCancerAwareness #Warrior #RareCancers #KidsGetCancerToo #Rare #GreaterThan8 #MoreThan4 #Momcologist #Fighter #FuckCancer #NeuroblastomaAustralia

4/24/2024, 12:44:32 AM

✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**

4/23/2024, 10:08:42 PM

✳️Atlanta Army Fete ATLANTA’S BIGGEST CAMO FETE 12 year Anniversary Wednesday May 22nd 2024 ✅9pm-3am. Come early stay late TICKETS AVAILABLE WWW.ATLANTAARMYFETE.COM VIBES BY: LOCAL AND INTERNATIONAL DJs FOLLOW US: @atlantaarmyfete #getyourcamogearready #fetewitdearmy #atlantadowntowncarnival2024 #atlantaarmyfete #fetersarmymas #Riddimisamust #Riddimup #soca #afrobeats #jabjab #dennery #wilders #isasocating #westindians #caribbean #allislands #morethan4 #carnival #socaislife #camoisamust #bestcamowear #combatboots #shortsandboots #fetewiththefam **PLEASE SHARE**

4/23/2024, 10:07:33 PM

Radiation day 4 ✅ Ripp is doing well. He’s handling radiation well and has a smooth system down with the team there and everyone wrapped around his quick antics, intrusive thoughts, pop-eye binkie grin, and evil scientist laugh. They are quick and efficient there and we love having a different change of scenery. He is not experiencing any side effects so far and he bounces back with in an hour or so from the daily sedation. We are grateful! He’s enjoying playing, delivering a resection package to his NB friend Toby, playing outside with his siblings, and driving the bus everyday after school when his brother comes home. He also gets a few hours every Monday with his sister and an empty and clean classroom to spend some time with his teacher and goodness are we grateful for her! We sure are grateful for every good moment with our boy! Let’s go Ripp 🥊 #neuroblastoma #cancersurvivor #pediatrics #pediatriccancer #pediatriccancerawareness #utahmom #specialneedsmom #specialneedsdad #cancer #cancerwarrior #pediatricneuroblastoma #neuroblastomawarrior #neuroblastomaawareness # #medicallycomplex # #primarychildrenshospital #neuroblastomasurvivor #chemotherapy #chemohairgrowth #chemowarrior #pediatricchemo #momcologist #bonemarrowtransplant #stemcelltransplant #stemcelltreatment #morethan4 #itcouldbeyourbaby #kidsgetcancertoo #beourvoice #standuptocancer

4/23/2024, 8:19:21 PM

thank you @astateaoii for the best 4 years and the best sisterhood I could ask for! I will never truly be able to put into words how much these girls and this chapter mean to me🤍 #morethan4 #alam

4/23/2024, 7:34:31 PM

Ten years ago, Rosie Batty’s 11-year-old son Luke was murdered by his father at cricket practice. He was killed by the person he trusted the most. Someone who professed to love him. Eight months ago, Emily died when the treatment she was receiving for neuroblastoma obliterated her immune system and left her tiny body vulnerable to infection. Rosie’s Luke, who was about to start high school. And our Emily who celebrated her 5th birthday in hospital, hooked up to a bag of chemo. Two children who lost their lives in circumstances so different that any comparison seems unlikely. In fact, you’re probably thinking: you’re comparing things that can’t be compared. But tonight when I met Rosie and listened to her talk about her love for Luke, and her deep sense of sadness (and anger) that she must live in a world without her son, I realised it’s the same. When you lose a child, regardless of chance or circumstance, the pain reverberates through you forever. It changes the way your family is configured and it challenges every relationship you have. Some people will hold the course and lift you up and be there no matter what. And others who you’ve never doubted until now will be gone. When you lose a child, people don’t expect you to lose your shit. They don’t expect you to be angry. They’d never suspect that you feel bitter or resentful or guilty. They only expect you to be perpetually depressed, to be whimpering in a dark room, crying. Which is mostly correct. In the beginning, you never think the pain is going to lessen, but it does. What doesn’t pass is the feeling of unfairness—what you’ve lost and what they will miss out on—the life they will never have. So, the very thing that keeps you going is the thing that causes your grief. Which is love. Which is why grief is forever. Your grief will be with you for the rest of your life. It can never pass because it’s already past, present, and future. Grief is forever. #4Emily #Grief #Loss #ChildLoss #Hope #RosieBatty #Neuroblastoma #HighRiskNeuroblastoma #ChildhoodCancer #ChildhoodCancerAwareness #2Many2Young #MoreThan4 #GreaterThan8 #SpendMoreThan10 #KidsGetCancerToo #NotRareNotFair #NeverAlone

4/23/2024, 7:16:51 PM

Please welcome back “Two of A Kind” for Field Day! We’ve had the pleasure of knowing Dave and Jenny for years now, their non-profile, @pickleberry_pie have partnered with Ollie’s Orchestra since 2021 and have also given Ollie many magical and beautiful moments! We are so excited to welcome them back this year. Please read their bio below: An award-winning husband-wife duo, TWO OF A KIND presents concerts for families and children of all ages, including songs, puppets, movement, and stories – all with an emphasis on interaction and participation. Themes of songs and stories range from reading & books, friendship and animals to social issues such as the environment, conflict resolution and diversity. TWO OF A KIND helps audiences of all ages feel that they can create music and that they can make a difference in the world. “Our songs are written out of great respect for children – their experiences, their sophistication and their desire to explore big issues. Our goal is to provide quality music that speaks to children and adults, and helps them to become people who make a positive contribution to the world – and to have fun at the same time!” To purchase Field Day Tickets, use the link in the bio! #olliesorchestra #fieldday #morethan4 #childhoodcancer #pediatriccancer #atrt #childrenshospitalofphiladelphia #abingtonpa #elkinsparkpa #jenkintownpa #philadelphia

4/23/2024, 6:29:59 PM

Remembering baby Derek who passed away seven years ago after being born with alveolar rhabdomyosarcoma. He was just five months old. Rhabdo is an extremely aggressive form of cancer and the protocols for treating it are many years old. Derek’s cancer progressed rapidly and there was nothing his doctors could do for him. Please pray for Derek's family, it’s hard to comprehend how a baby can be born with cancer and how every single day of his life, know suffering. It's even harder to comprehend that there was nothing his Drs could do for him. We have to do better for these innocent children. Sending you so much love Elizabeth Cantor, we will never forget your beautiful little boy. There is no footprint so small that it cannot leave an imprint on this world. #GoGold #ChildhoodCancerAwareness #Morethan4 In September 2019, baby Alayah Rose was born healthy and strong and is perfect. She is a beautiful rainbow baby following the death of her older brother Derek who was born with rhabdomyosarcoma

4/23/2024, 6:22:55 PM

Because of treatment, she can’t go to school, no family visits, we can’t do activities with others, she can’t play with other kids, and no traveling.⁠ ⁠ When she started treatment, the arts & crafts were her escape materials to enjoy her time at the hospital or home. She started building her first LEGO during her first month at the hospital, by then she was able to build advanced levels of LEGO for adults and now she has a big collection!⁠ ⁠ ⁠ Hope session by @sherrycomella_photography

4/23/2024, 6:01:35 PM

Celebrating #NationalVolunteerWeek! The Pediatric Cancer Research Foundation extends heartfelt gratitude to our amazing and dedicated volunteers, whose support is essential to fulfilling our mission. Your generosity and passion make a difference beyond measure! Whether you've volunteered in the past like at this year's Reaching for the Cure presented by @AutoNationToyotaIrvine or are considering joining us now, we know your time is invaluable. Explore ways to get involved on our website and be part of our commitment to accelerating pediatric cancer research. 🧡🙌 #PCRFKids #PediatricCancer #ChildhoodCancerAwareness #MoreThan4 #NonProfitOrganization #CancerResearch #VolunteerOpportunity #CommunityService #Volunteerism

4/23/2024, 5:21:59 PM

📚Celebrate #WorldBookDay with a book that gives back! 👏 Dive into 'Amber's Way,' a heartfelt journey of love, loss, and the unbreakable bond between mother and daughter. Join Jessica and Amber as they navigate life's challenges, from grief to Amber's brave fight against neuroblastoma, with unwavering courage.🎗 Author Gloria Galloway's poignant narrative not only captivates but also supports a crucial cause. A portion of the book's proceeds will be donated to the Children's Neuroblastoma Cancer Foundation, contributing to the fight against neuroblastoma. Get your copy now at most major book retailers. • • • • • #neuroblastoma #cncfhope #wherehopeunitesus #pediatriccancer #childhoodcancer #morethan4 #fightchildhoodcancer #neuroblastomafighter #neuroblastomawarrior #neuroblastomaawareness #cancerresearch #supportcancerresearch #beatcancer #cancerfighters #childhoodcanceradvocate #cancersucks #gogoldforchildhoodcancer #thisischildhoodcancer #donatenow #nonprofitorganization #childhoodcancerawarenessmonth #gogold #childhoodcancer

4/23/2024, 5:00:30 PM

THANK YOU Western New York and beyond for again making The Third Annual Carmella Classic one of the premier charity events of the year! #carmellaclassic #carmellagolftournament #teamcarmella #keepcarmellasmemoryalive #carmellaspapa #bebravelikeme #thisispediatriccancer #saytheirnames #morethan4

4/23/2024, 12:59:22 PM

Remembering the beautiful Dana on her 5th angelversary. I remember when I first heard Dana’s story it took my breath away, it’s truly so heartbreaking. Her fight against DIPG began when she was only 17 years old when in December of 2017, she was diagnosed with DIPG. Not only that, but she was 7 & a half months pregnant with her baby girl. Dana willed herself through her pregnancy all while fighting terminal brain cancer. She gave birth to her baby girl and fought for every moment with her. Dana celebrated her 18th and her 19th birthday during her long and excruciating battle. She fought so hard to raise her baby girl and DIPG horrifically robbed her of that💔she got to spend one year with her sweet baby girl and she deserved so much more🩷💔 #DanaStrong #Forever19 #HR3433 #KidsDeserveMoreThanLeftOvers #childhoodcancerresearch #givekidsachance #givekidsachanceact #rememberthechildren #childhoodcancer #kidscancer #pediatriccancerawareness #dipg #defeatDIPG #gogoldforchildhoodcancer #childhoodcancersucks #forevergoinggold #childhoodcancerawareness #nationalpriority #gogold #childhoodcanceradvocate #kidsgetcancertoo #fightlikeakid #thisischildhoodcancer #morethan4 #pediatriccancer 🎗🎗 #NCI #nationalcancerinstitute #beboldgogold #kidsareworthmore #gogold365

4/23/2024, 6:45:46 AM

Every speech that @officer Brandi gives people ask her “how did you get involved with Hallie?” And she always leads with I sent her mom an email that was like “what can I do to help?” Everyone always seems so surprised like it’s so super simple why didn’t I think of that? We tend to do this when our friends and family are in turmoil we ask to pick up groceries, or kids, meal trains start circling around. But sometimes it’s not just the doing - it’s the start- the work behind- the push to get the ideas off the ground to keep solidifying to the community how much this little person needs help. She saw Hallie she saw us struggling and she stepped up. It’s the little things - she didn’t have to do anything but that day she said “I will help you find Hallie’s match I swear the whole #FWPD will start looking.” And they did. #osteosarcoma #NotRareNotFair #kidsgetcancertoo #morethan4 #halliesheroes #futureolympian #childhoodcancerawareness #leftlegless

4/23/2024, 3:44:43 AM

Meet Evan! In June, Evan was diagnosed with Acute Lymphoblastic Leukemia (ALL). The next day he underwent surgery to have his port placed, a spinal tap & began chemotherapy. He started delayed intensification in November, which is known to be one of the toughest treatments of the ALL protocol, but he crushed it like a champ! He continues with chemo, steroids & LPs, but still has a smile on his face. He’s expected to be done with treatment in September 2025! Til then, #FightEvanFight 🎗️💜💪🏼 #comfortcuddlesbyerin #CCBE #wefight #nonprofit #501c3 #handmadewithjoann #childhoodcancerawareness #acutelymphoblasticleukemia #ALL #leukemiaawareness #cancerwarrior #gogold #morethan4

4/23/2024, 1:30:20 AM

Always had a passion for health and wellness. That passion has gotten stronger since all of this stuff with Liam. But at the same time all this stuff with Liam has made me delay doing things for myself. Now that we are halfway through maintenance and nearing the end of treatment I decided I was going to jump back into what I’m passionate about, and that’s helping others. I’m hoping with a health and wellness background and my Momcology background I can help tons of cancer families! So excited for this new journey for myself! 🫶💛

4/23/2024, 1:24:29 AM

Happy Monday! Austin had occupational therapy this morning and Ethan had a doctor’s appointment this afternoon. Short nap for A in between and some bubbles after we were all finished. 🫧 Austin has physical therapy and speech therapy tomorrow so we will have another busy day. I’m so grateful the therapy place is close to our home! Austin is doing so well with signing (ASL) and even saying a few more words in the last few weeks! We hope you all had a great weekend! We really didn’t do much of anything but it was better than going to the ER! Austin still has a cough but it doesn’t seem to be bothering him so I guess it just lingers for a little while. Atticus is back to his old self and almost went crazy trying to catch the bubbles outside 😜. Austin’s rescheduled MRI is next Monday 🙏 . ❤️🙏🩶🎗️💛 #pediatriclowgradeglioma #PediatricBrainTumor #AustinsArmy #curechildhoodcancer #strabismus #morethan4 #cancerkids #opticpathwayglioma #childhoodcancerawareness #thisischildhoodcancer #toddleringlasses #kidsgetcancertoo #ChildhoodCancer #chemowarrior #braintumorawareness #sallysteelephotography #scanxiety

4/23/2024, 12:37:45 AM

Meet our new friend Braxston! This sweet boy is 4 years old and fighting relapsed neuroblastoma. Isn’t he just the cutest?! WE NEED YOUR HELP!! We would love to purchase a Nintendo switch for Braxston and his big sister Payton. We would need to raise $550 to make it possible. We have the switch, an extra pair of joycons for his sister, and two games. Can you help us bring them a smile? Donation information: PayPal: [email protected] Venmo: @hannahshappybundles Cash App: $hannahshappybundles Please note “Braxston” in the comment section of your donation if you contribute. Let’s bring them a smile. 🫶🏻 Also, if we raise any extra funds I was thinking about purchasing his sister her own Switch as well but it all depends on donations. 🙂 Please share to your stories and spread the word. ❤️ #helpingonechildsmileatatime #childhoodcancer #kidsgetcancertoo #morethan4 #neuroblastoma #relaspe

4/22/2024, 11:45:21 PM

Kids helping kids. It never gets old! 🥹 @khardodd ‘s daughter and her daughter’s friend set up a corner stand a couple weeks ago to raise money for Wren’s Wallets. They raised over $50 (!!!) and she matched their donation. We are so grateful for your generosity @khardodd ! 🫶🏻🦄🎗 ____ What are Wren’s Wallets? They are small pouches filled with gift cards that are delivered to families at @levinechildrens hospital who are battling pediatric cancer. Each wallet contains $250 in gift cards to help with gas, medicine, food and some fun! Interested in donating gift cards for the wallets? Our address is: Wren’s Village 1750 HWY 160 WEST Suite 101-263 Fort Mill, SC 29708 ____ PS - Please continue to share your photos or tag us if you post to social media. We LOVE seeing kids helping kids!

4/22/2024, 8:58:46 PM

Meet Maya!⁠ ⁠ ⁠ Hope session by @sherrycomella_photography

4/22/2024, 6:01:51 PM

as some of you may know today (september 1st) is the first day of childhood cancer awareness month. the pictures above me are of childhood cancer fighters/survivors some are also friends. around year ago i got more passionate about advocacy and raising awareness, and exactly a year ago i created this account. if you aren’t aware children with cancer get less and 4 percent of funding and research compared to adult cancers. one in 43 children will be diagnosed with cancer and out of those one in 43 the majority of them even if they survive will have long lasting health problems in life. many people aren’t even aware that this month exists. please help spread awareness this month if it’s telling a friend, or reposting something, or changing your pfp anything helps. #livelikelily #gogold #childhoodcancer #childhoodcancerawareness #pediatriccancer #gogold #cancer #dipg #leukemia #cancersupport #morethan4 #bonemarrowtransplant #sarcoma #childhoodcancerawarenessmonth #all #c #braintumor #aml #gogoldinseptember #su #cancersucks #bonemarrow #ewingssarcoma #ewing #rhabdomy #gogoldforme #kidsgetcancertoo #stopquarantine #quarantine #notallcancerispink #kidswanttogrowuptoo

4/22/2024, 3:50:32 PM

Everly’s scans came back and showed a brain tumor. Unfortunately the brain tumor is what is causing her brain bleed. They were told that they don’t know how much more time she has left. They are praying chemotherapy will respond to her cancer, and her team is already planning for radiation next week. WE STILL NEED YOUR HELP ‼️ I am still collecting donations for her happy bundle. I have not went shopping for her yet because I have been so busy personally. If you’d like to still donate our donation information will be below. I would love to get her happy bundle done and sent asap. She doesn’t have many toys in the PICU and I wanna make sure she has many! PayPal: [email protected] Venmo: @hannahshappybundles Cash App: $hannahshappybundles Please note “Everly” in the comment section of your donation. We will be going shopping for her soon and I plan on spoiling her, so the more we raise the better. 🫶🏻 #helpingonechildsmileatatime #hannahshappybundles #childhoodcancer #kidsgetcancertoo #morethan4 #neuroblastoma #kidscancer

4/22/2024, 7:25:26 AM

Today is world Acute Myeloid Leukemia Awareness day. Signs of blood cancer typically include night sweats, paleness, fatigue, and bruising. But for Addi it was a lump on her leg, some bruising and overall feeling blah. I’ll never forget the call we received on June 15, 2021 at 1:36 pm. “Chris and Staci, can you hear me?” “Yes we can hear you”. “I have really hard news, Addi’s blood work is back, she has leukemia, you need to get her to the hospital right now”. These words and the words that will follow that day of the results, the prognosis the fight we would begin would rattle around in my head like an echo I can’t ever silence. Her life on earth ended 10/12/2022 but her legacy lives on, thru us and thru everyone who loved her. Please today and everyday advocate for your kids. Their life depends on it. We had to fight for simple labs for 2 1/2 weeks before they decided to do them. Had we waited any longer she may not of even been here to fight and to show us a world of pediatric cancer! The ugliness of this disease would take your breath away. We fight for you, for the kids we have lost, for the kids who are fighting and for the kids yet to be diagnosed. Please on World Acute Myeloid Leukemia day give to LLS on behalf of Team Addi, bring dinner to a friend battling, reach out and let your people know you’re here and if nothing else just show up!! To all the ones who showed up for us we are forever grateful for your love, support and sacrifice. We couldn’t of fought as hard as we did for Addi and now for all the kids without you! 🧡🦋🎗😭🙏. #teamaddi #morethan4 #addisblanketsoflove #grief #LLSOCIE #lls #aml #leukemiaawareness #leukemia #visionaryoftheyear #cancer #childloss #memories #beach #fyp

4/22/2024, 7:24:43 AM