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The band is back together for the weekend! Thanks for the on point tees @bcchf - we’re all in this together that’s for sure! 💙 #smallismighty #curemps #siblings #rmhbc

5/18/2024, 10:43:44 PM

Our @bcchf fundraising page for our Supers Take the Field event is live! Visit http://www.bcchf.ca/SupersTakeTheField or scan the QR code to donate online. See you on the field at @cityoflangford #starlightstadium on July 20. (More details on our FB page.) #superhero #superheroes #beasuperhero #superstakethefield #smallismighty #bcchildrenshospital #sickkids #yyj #yyjevents #victoriabc #langford #cityoflangford

5/17/2024, 7:14:53 PM

Thankyou @bcchf for the swag! Robyn was so excited to get this Huge for our project to have this support and promo materials to showcase our cause ❤️❤️❤️❤️❤️❤️ #smallismighty #nanaimo

5/17/2024, 5:01:02 AM

#HopeForJaeger + Friends, Family, and local peeps who would like to support Jaeger in his fight against Ependymoma (a recurrent type of cancer/tumor of the Central Nervous System). A gracious friend, @lemon_gelato_handmade has made us these lovely ‘Hope For Jaeger’ bracelets. She is willing to make more in exchange for a minimum $10.00 each donation to Jaeger’s Medical Journey. She would require your wrist measurement and color preference, (exact charm, bead choices not available). + #smallismighty #jaegersmedicaljourney #ependymoma #ependymomaawareness #braincancerawareness #braintumorawareness #HopeForJaeger #craniotomy #pediatricbraintumor #TurnMayGrey #bcchildrenshospital #rightfrontaltumor #brainsurgery #greymatter + Our Go Fund Me is: https://gofund.me/77d4d18c E-Transfer donations: [email protected]

5/16/2024, 8:35:49 PM

🌟 Small is Better at Utopia Realty, when It Comes to Selling Your Home! 🌟 Hi there, it’s Dallas from Utopia Realty! Are you thinking about selling your property? Let me tell you why our small, tight-knit team is your best choice: 🏡 Personal Touch: I personally handle every listing because I believe every home has its own story. With us, you're not just another listing; you're part of our family. 📸 Marketing Magic: Vernon, our website, drone and photography wizard, will showcase your property like no one else. His expert marketing skills mean your home will look spectacular in every shot, attracting the right buyers fast. 🔗 The Best of Both Worlds: While we cherish our close relationships and personalized approach, we also have all the big tools at our disposal. With access to MLS and Acobir, your property gets the wide exposure it deserves. 🤝 A Team That Cares: Our collaborative approach means we're all in this together. We work as one to focus deeply on selling your property, ensuring everything from pricing to promotion is perfectly aligned with your goals. Ready to sell with a team that treats your home with the care and strategic savvy it deserves? Reach out to us at Utopia Realty, where small means dedicated service and big results! #UtopiaRealty #SmallIsMighty #RealEstateSales

5/10/2024, 7:10:08 PM

Physio outside with water balloons! ☀️🎈💦🎈💦🎈💦☀️ #kidsphysio #curemps #smallismighty #doubleosteotomy #hippyhealth #disabilityadvocate

5/7/2024, 9:36:35 PM

Volvo EX30 Fully Electric กับข้อเสนอพิเศษ ผ่อนเริ่มต้นที่ 15,900 บาท ต่อเดือน* 1) รับฟรี ประกันภัยรถยนต์ชั้น 1 เป็นเวลา 1 ปี** 2) ฟรีบริการหลังการขายจากโรงงาน - บริการรับประกันคุณภาพ 3 ปี หรือ 100,000 กิโลเมตร (แล้วแต่ระยะใดถึงก่อน) - บริการให้ความช่วยเหลือ 24 ชั่วโมง เป็นเวลา 1 ปี 3) รับประกันคุณภาพแบตเตอรี่แรงดันสูง 8 ปี หรือ 150,000 กิโลเมตร (แล้วแต่ระยะใดถึงก่อน) อู๋ วอลโว่ บางนา นัดหมายทดลองขับ ปรึกษาการขาย —————————— Volvo Scandinavian Bangna อู๋ วันมงคล : 087-550-5553 What app : 0875505553 Line@ : https://line.me/ti/p/MmzzwSaY6y https://line.me/ti/p/MmzzwSaY6y https://line.me/ti/p/MmzzwSaY6y https://line.me/ti/p/MmzzwSaY6y #Volvorscandinavian #อู๋วอลโว่ #วอลโว่บางนา #volvothailand #Volvo #VolvoScandinavia #volvobangna #วอลโว่บางนา #volvoc40 #รถไฟฟ้าวอลโว่ #รถไฟฟ้า #ex30 #volvoex30 #ex30core #ex30ultrasingle #ex30ultratwin #volvo #volvoscandinavian #volvorecharge #volvoramintra #volvobangna #ศูนย์ซ่อมสีและตัวถัง #ศูนย์ซ่อมสีและตัวถังวอลโว่ #XC90 #XC40 #XC60 #V60 #S60 #S90 #VolvoCarsThailand #VolvoCarsThailand #SmallisMighty #VolvoEX30

5/7/2024, 10:49:03 AM

Join Team Simon at the RBC Race for the Kids on June 9th in Victoria, Vancouver or virtually! Help celebrate and support @bcchf BC Children’s Hospital and all the incredible work they do to support kids like Simon. Link in bio to join or support Team CureMPS for Simon. 💙🏃🏻‍♀️💙🏃🏻‍♂️💙🏃🏼💙 #smallismighty #bcchildrenshospital

5/6/2024, 9:49:02 PM

🚨BIG ANNOUNCEMENT🚨 Arcade on Wheels is joining forces with the Sunny Bear Birthday Club part of the Tribute Program at BC Children’s Hospital Foundation 🎉🐻 The Sunny Bear Birthday Club is a fundraising program for children 12 and under who either ask for donations in lieu of gifts or choose to donate their birthday money to BC Children’s Hospital. These donations will help fund some of the hospitals most urgent needs and help kids who need it the most. We are beyond excited to be a part of this amazing experience and give back to the patients and families at BC Children’s Hospital. We can’t wait to bring our video game experience to all the little birthday bears out there! 🎂🎈 To find out more check the link below: https://www.bcchf.ca/birthday-donations/ #arcadeonwheels #bcchf #makefamiliesmighty #smallismighty #bcchildrenshospital #bcchildrenshospitalfoundation #everymomentmatters #sunnybearbirthdayclub #partnership #vancouver #videogames #gametruckparty #birthdayparty #donations #arcadeonwheelsvancouver

5/3/2024, 3:06:44 AM

Infusion #274. Making slime and being mighty, just another day living in the hospital and juggling the complex norms of living with MPS. #smallismighty #vimizim #weeklyinfusion #curemps #morquio #biomarin

5/2/2024, 9:20:58 PM

Adventure walk with the DiddyDogz #smallismighty #diddydogs #adventurewalk #chihuahuafun

5/2/2024, 6:32:03 PM

Sneak peek from the Volvo EX30 Viewing Event. Our smallest ever SUV. Arriving at Volvo Cars Riverina soon! #VolvoCars #WaggaWagga #EX30 #smallismighty

4/30/2024, 3:42:59 AM

Who else is SUPER EXCITED?! Make sure you've got your phone on you, and if you see a call coming from BC Children's Hospital Foundation after 9:00 make sure you pick up! 🤣 #smallismighty #BCCHF #bcchildrens #bcchildrenslottery #bcchildrenshospital #healthcare #fundraising #vancouver #britishcolumbia

4/25/2024, 5:11:10 PM

Small steps make mighty strides. Join me and my team (Sophie's Story) at BC's largest family fun run on June 9th, where we'll be racing to support BC Children's Hospital. Link in bio for registration and team fundraising page. @rbc @bcchf #RBCRacefortheKidsBC #RBCRacefortheKids #bcchf #bcchildrenshospital #bcchildrenshospitalfoundation #smallismighty #helpingsickkids #sophiesstory #sophiesstorybooks #vancouver #vancouverbc

4/20/2024, 5:25:29 PM

After all the stress of the last blood draw, the sample did arrive in Vancouver on Friday. After the weekend, we got the results: Arends oxi burst testing his neutrophil function came back at 19%, previously at 20% (plus the extra 6% peak). There is not much to say about that result; and as the chimerisms take weeks to receive data, we won’t be able to relate this to much until the next oxi burst and chimerism test in a month from now. Here’s to hoping it is stabilizing and that there may be a chance of the donor myeloid cells re-populating his bone marrow over time, reaching a mixed chimerism and a higher, stable neutrophil function. Time will tell…. Thank you to everyone for the mass response and encouragement to report the phlebotomist and experience at NRGH last week. My sadness has turned to anger and I plan on filing a report as soon as I find the time & energy to write it out kindly and coherently. I’m glad to report he hasn’t shown signs of fever which hopefully means he hasn’t picked up a bacterial or fungal infection from the raw exposure. It’s only the trauma that has built up and he continues to speak about. #bonemarrow  #bonemarrowtransplant  #CGD #immunedeficiency #raredisease #rarediseaseawareness #medicalmama #blooddisorder #stemcelldonor #disability #SMALLISMIGHTY #mightyasamother #blooddonation #phlembotomists #blooddraw

4/16/2024, 8:28:49 PM

Day +407 (BMT), +271 (Boost) Our son has to push through such trauma it breaks my heart over & over again. In order to skip needing to travel over to Vancouver every month, our team arranged a blood draw at our local hospital on Vancouver island. We are giving it a go with hope the blood arrives in time. We arrived on time, waited forever for them to sort out their paperwork for this, and did the blood draw. Arend kept saying “I don’t want to do this” 💔 - how many times do I have to break his trust as I hold him down and tell him he is brave. The poke was quick and on point, no drama. As we drive off to get his favourite treat @burnt.honey , I get a call saying there was an error and we need to come back and do another blood draw. As we pull into the hospital again, he asks why are we back and went in to absolute hysterics asking WHY. Over and over. “Why mama? I don’t want to do it AGAIN”. Back in the hospital the nurse confirmed they used the wrong colour tube. They used an alcohol swab and before it could dry & disinfect, they poked the butterfly into his arm. They began DIGGING in his arm for the vein while Arend screamed. My eyes were glued to that needle as they moved it around and I wondered if it was painful. Their unkept & dirty looking fingernails were pressing around where the needle was inserted and I sat there wondering when I’ll speak up. I took a deep breath and politely asked they wear gloves. I absolutely hate that this is something I have to do. The blood draw was done and I managed to say thank you as we stormed out of there both crying. We sat together in the car bawling our eyes out. I haven’t cried in months, I’ve become so numb to the things I do not have control over. But this? This was human error. Negligence. Sloppy work. Our cheeks are salty as we try to move past another traumatic experience. As I try to convince myself Arend will forgive me for all this. I’m so angry that it has to be this hard. Now, we wait for the results…. #bonemarrow  #bonemarrowtransplant  #CGD #immunedeficiency #raredisease #rarediseaseawareness #medicalmama #blooddisorder #stemcelldonor #disability #SMALLISMIGHTY #mightyasamother #blooddonation

4/11/2024, 10:48:32 PM

Best tag line, I’ve seen in a while! #brooklyntechguy #apple #machelp #techsupport #brooklynbicycle #bikenyc #helpisontheway #SmallisMighty

4/11/2024, 8:09:07 PM

We did it! So happy to report that @bcchildrenslottery is now officially SOLD OUT. Big thanks to everyone who purchased a ticket in support of BC Children’s Hospital. Our Grand Prize Draw is coming up April 25th, so mark those calendars and cross those fingers and toes! I hope this green frock will be a lucky charm for all of you. 🍀 . #thanks #bcchlottery #bcch #lottery #ambassador #yvr #spokesperson #choiceslottery #winwin #smallismighty

4/10/2024, 11:50:14 PM

Your dreams can be reality 💰✨ It's not too late to win big with the @bcchildrenslottery! The final deadline to purchase tickets is coming up on April 12, so don't miss out on your chance to win 1 of 10 Grand Prize options including multi-million dollar dream home packages or a $2.3 million tax-free cash prize. To get your tickets, head over to @bcchildrenslottery! Your support can help shape the future of children’s health care #dailyhivevan #sponsored #BCCHF #SmallisMighty #BCChildrensHospital

4/9/2024, 12:01:36 AM

April 7th, 2014 Exactly 10 years ago, our lives changed forever. Living life after diagnosis, not knowing if Aivyn would even make it is the hardest thing you can experience as a parent. But he's here, the one kid who has made my heart hurt in ways I wouldn't want anyone to experience. It was so hard trying to be the best mom to both Aivyn and Avaiyah. But like I've always said, this has made me stronger as a mom! It is so fitting that Aivyn's Small is Mighty poster was used this year and is all over BC on the 10th year since diagnosis. It just shows that he survived one of the most rarest forms of ALL, and he is strong as hell 🎗 Love you all the sometimes, my handsome prince ❤️ #teamugotnothingonus #acutelymphoblasticleukemia #philadelphiachromosomepositive #monosomy7 #fcukcancer #smallismighty

4/7/2024, 6:57:41 PM

Day +401 (BMT), +265 (Boost) With less anticipation than previous BMT follow ups, I was able to meet with Arends team today to discuss the latest chimerism results. There truthfully isn’t much to say other than we need to wait and continue to gather data to see if his BMT engraftment/boost will stick. Will the functioning neutrophils from his donor remain at a percentage that we can successfully remove prophylactic medicines or enjoy life with less worries. He is currently holding two immune systems within his bone marrow. For inexplicable reasons, certain types of blood cells have inhabited pockets in the bone marrow, where other cells have chosen somewhere else to replicate. (Ref. Lymphoid vs myeloid cells) With a couple decades of Bone Marrow Transplants on CGD patients, BMT & Immunology teams internationally were able to find the long-term outcomes with intense chemotherapy regimens less desirable; as is living managing this awful disorder. In more recent years, they have opted for less intensive conditioning treatments to improve long term outcomes. This holds especially true for younger CGD patients that are within their developing years. In these recent years however, we have all seen the outcomes of less intensive regimens: GvHD, mixed chimerisms and graft failure. So this leaves the big looming question - what is the best treatment protocol for CGD patients? Is this the same for all patients, based on past infections, treatments and age? Then looking at the science - questioning gene therapy, where they gain the power to manipulate cells and re-infuse them into the patient; which has not shown much advancement or success for CGD. Or digging deeper to understand why and how stem cells engraft; where they choose to engraft & how their lifespans affect successful engraftment long-term. The chemo regimen that Arend received, did not empty his bone marrow completely. This is why he has mixed chimerisms. This was however, placing an importance on his life and future. I would not have wanted to give him a stronger regimen with adverse long-term outcomes; yet going through a BMT without near full success is gutting. (Continued in comments)

4/6/2024, 4:01:58 AM

We'll be tuning in tomorrow morning (around 8:20) when Erin walks Yvonne Schalle through our prize home in Langley on Global TV Morning News - how about you?? 🎉🤩 Get your tickets online if you already know which home you want: https://bcchildren.com/grand-prizes/langley/ Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

4/6/2024, 3:00:20 AM

Comment below and let us know just how much winning a new home (or $2,300,000 tax-free cash) change your life? Get your tickets today: https://bcchildren.com/grand-prizes/vancouver/ Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

4/6/2024, 12:00:14 AM

Time and tickets limited! >> https://bcchildren.com/grand-prizes/sooke/ Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

4/3/2024, 9:45:02 PM

BC Children’s is the only hospital in the province devoted exclusively to children. As one of the world’s top-ranked pediatric hospitals, it leads the way in confronting many of the most pressing health challenges facing kids today—from cancer to heart disease and brain health. Your support plays a pivotal role in accelerating the translation of these discoveries. And beyond propelling this work, your contribution also empowers researchers to dream even bigger. Thank you for shaping the future of children’s health care. Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

4/1/2024, 6:01:38 PM

¡Este año estamos de vuelta en @casacorperu después de 5 años! Un dato curioso es que nuestro estudio lo creamos en el año 2014, a raíz de la primera participación que tuvimos en Casacor. Ahora celebrando nuestros 10 años, volvemos llenas de energía y sobretodo agradecidas de poder hacer el espacio para @volvocarperu ✨ En dónde se presentará la nueva SUV EX30 #smallismighty 🌱 ¡Estamos trabajando de la mano con @olivosdelperu en un espacio lleno de naturaleza, tecnología y diseño! #BAUMSTUDIO #volvo #casacorperu

4/1/2024, 12:59:38 AM

Congratulations to the winner of our Appreciation Bonus draw, which was drawn yesterday morning! S. Prinz of Wasa, B.C. Tickets #: 3136502 Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/29/2024, 9:30:10 PM

Congratulations to the winner of our Appreciation Bonus draw, which was drawn yesterday morning! J. Dorgan of Mission, BC Tickets #: 3410816 Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/29/2024, 8:49:00 PM

🚨TIME'S ALMOST UP🚨 >> https://bcchildren.com/bonus/ #bonus4 Don't miss out – order your tickets before midnight tonight to win big in our $290,000 Early Bird draws. Plus, you'll be automatically entered to win $2.3 million cash! Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/28/2024, 4:00:26 PM

🚨LAST CHANCE🚨 >> https://bcchildren.com/bonus/ #bonus4 Don't miss out – order your tickets before midnight tonight to win big in our $290,000 Early Bird draws. Plus, you'll be automatically entered to win $2.3 million cash! Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/27/2024, 11:30:12 PM

Ready to hit the slopes and soak up in a hot tub with stunning mountain views? ⛷️🏔️ >> https://bcchildren.com/grand-prizes/big-white/ This incredible home at Big White Ski Resort has it all: ski-in/ski-out access, a short walk to the Black Forest Chairlift, and just minutes away from the tube park! Whether you're seeking adventure or a serene getaway, this $2.5M Grand Prize home package has endless options for both. Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/27/2024, 9:12:40 PM

“ To care for those, who once cared for us is one of the highest honours in life.” ~Tia Walker #therapyhorses #tiawalker #care #elderlylove #horsestagram #givingback #volunteer #pony #goodvibes #americanminiaturehorse #delta #tsawwassenbc #kinvillagedelta #elders #smallismighty #ponypower 🫶🦄🫶🦄

3/27/2024, 8:38:50 AM

Comment below and let us know just how much winning a new home (or $2,300,000 tax-free cash) change your life? Get your tickets today: https://bcchildren.com/grand-prizes/vancouver/ Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/25/2024, 8:31:32 PM

Make your dreams come true 💸🏡 Now's your chance to make a big impact on medical research and win 1 of 10 Grand Prize options including multi-million dollar dream home packages or a $2.3 million tax-free cash prize! Head to @bcchildrenslottery to get your tickets today #dailyhivevan #sponsored #BCCHF #SmallisMighty #BCChildrensHospital

3/25/2024, 6:02:59 PM

It’s been awhile… ✌🏼🙏🏼 “God’s plan is always the best. Sometimes the process is painful and hard. But don’t forget that when God is silent, he is doing something for you.” #lifelately #beyondblessed #trusttheprocess #godsplan #trusttheprocess #newchapter #newbeginnings #blessedwiththebest #mycircleissmall #smallismighty #embraceyourflaws #farfromperfect #greeneyedgirl #nofilter

3/24/2024, 9:38:22 PM

Update from Day 5 post-op (literally the longest 5 days of my life! 🥴) for anyone curious about what’s next for Si, here’s the general plan: 🚑 medical transport home in the next couple of days (once he’s having better pain control at night) 🛋️ 4 weeks of no moving - couch time at home! ⛴️ move back to Vancouver (BCCH Sunny Hill) for intense rehab for 6-8 weeks (duration still TBC) 📚 back to school before summer break 🧑‍🦽🤞🏻🤞🏻🤞🏻 #hospitallife🏥 #morquiosyndrome #mpsawareness #smallismighty #thisismighty #iammighty

3/24/2024, 6:07:05 PM

Zero Carbon รถไฟฟ้ารุ่นใหม่ใช้ ‘พลังงานสะอาด’ 🚗🔋 รถ EV เป็นส่วนหนึ่งของการเปลี่ยนแปลงวิถีชีวิตที่เป็นมิตรต่อสิ่งแวดล้อม และยังคงเป็นตัวเลือกที่น่าสนใจในการดำเนินชีวิตในอนาคต วันนี้ Stockholm Auto ชวนคุณไปรู้จักกับ Zero Carbon กันค่ะ ว่ามีประโยชน์กับโลกของเราอย่างไร และเกี่ยวอะไรกับรถยนต์วอลโว่ . For more detail, please contact Volvo Stockholm Auto ☎️ : 081-714-9919 IG: volvocars_phuket Line@ : @‌volvophuket ➡️ ​https://lin.ee/AbcfFJl 🌐 : ​http://www.stockholm-auto.com/ 📍Map: ​https://goo.gl/maps/DJFsvd2xZAa4dDFc7 ---- #VolvoEX30 #Smallismighty #StockholmAuto #StockholmAutoVolvo #VolvoPhuket #Volvo #VolvoCar #VolvoCars #VolvoCarThailand #VolvoCarsThailand

3/24/2024, 4:00:08 AM

Having trouble deciding which Early Bird option is your favourite - why not take the easy way out and start imagining what you could do with $200k tax-free cash?! 🤑 >> https://bcchildren.com/bonus/ #bonus4 Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/24/2024, 12:00:23 AM

Hello little mouse. This is why the fox, owl, and cats hang out in the yard. #mouse #deermouse #littlethings #smallismighty

3/23/2024, 9:44:53 PM

Feeling more human today! Shirt on, epidural out, Xbox on. Things are moving in the right direction. 💙 #smallismighty #thisismighty #curemps #doubleosteotomy #dwarfism #morquiosyndrome #hospitallife🏥

3/23/2024, 7:15:47 PM

Hurry, it's your last chance! ⏳ Don't miss out on our HUGE Early Bird draws ending this weekend. Grab your tickets now to be one of 51 winners, with $290,000 in total prizes: https://bcchildren.com/bonus/ #bonus4 Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/23/2024, 1:00:09 AM

🚙 ส่งมอบรถยนต์ Volvo EX30 Fully Electric รุ่น Ultra Twin Motor เป็นคันแรกของเกาะภูเก็ต 🏝 พร้อมพาคุณไปรับชมบรรยากาศส่งมอบรถสุดประทับใจที่โชว์รูม Stockholm Auto . เริ่มส่งมอบแล้ววันนี้ Volvo EX30 รถไฟฟ้าเต็มรูปแบบรุ่นใหม่ล่าสุดจากวอลโว่ มาด้วยกัน 3 รุ่น ได้แก่ Volvo EX30 Core Single Motor, Volvo EX30 Ultra Single Motor และ Volvo EX30 Ultra Twin Moto . เป็นเจ้าของรถยนต์ Volvo EX30 ได้แล้ววันนี้ และเตรียมฤกษ์รับรถเอาไว้ได้เลยค่ะ สามารถลงทะเบียนนัดหมายทดลองขับก่อนใครได้เลยที่ https://lin.ee/AbcfFJl . For more detail, please contact Volvo Stockholm Auto ☎️ : 081-714-9919 IG: volvocars_phuket Line@ : @‌volvophuket ➡️ ​https://lin.ee/AbcfFJl 🌐 : ​http://www.stockholm-auto.com/ 📍Map: ​https://goo.gl/maps/DJFsvd2xZAa4dDFc7 ---- #VolvoEX30 #Smallismighty #StockholmAuto #StockholmAutoVolvo #VolvoPhuket #Volvo #VolvoCar #VolvoCars #VolvoCarThailand #VolvoCarsThailand

3/22/2024, 4:00:19 AM

Well here we have it. What started as a growth (post-BMT) on Arends chest and lead to ultrasounds, MRI’s and this most recent surgery, we finally found out that the vascular growth is NON-MALIGNANT 👏🏽 Most of the history of this occurrence has been through photographs sent to doctors as Arend has been reluctant to show them for much longer than a split second. I even received a phone call moments after he was admitted to OR as the surgeon for the first time was able to look at it and needed further consent to remove a larger area. During my briefing about the surgery, which I did not know about until arriving in Vancouver, it was mentioned that this could be cancerous. Although the whole growth was to be removed, it left treatment plans very uncertain. We’ve been anxiously awaiting results and feared that he developed cancer after his BMT. This reality was devastating to me. I’ll rest my heart knowing he’s safe from this now. He is healing well, rather quite oblivious to the long incision, until we pick him up the wrong way and he cries. Another week of healing and he should be feeling much better. Go Arend go. Now show us that the boost worked too buddy! #bonemarrow  #bonemarrowtransplant  #CGD #immunedeficiency #raredisease #rarediseaseawareness #medicalmama #blooddisorder #stemcelldonor #disability #SMALLISMIGHTY #mightyasamother #blooddonation #cancer #pediatriccancer #oncology

3/22/2024, 1:44:11 AM

I had no idea today was world macaron day ! 😳😳😳😳😳 We got to visit Granville island today and had to buy macarons from my fav store 😛 We ended up getting a super special Children’s Hospital themed macaron! I already ate half of it before realizing that I needed to post of picture of it in order to win a free macaron workshop 🤣🤣🤣 Here is my very sad, half eaten macaron😂 • • • • #smallismighty #vancouverpastry #macaron #macaronstagram #bcchildrenshospitalfoundation #bcchf #bonmacronpatisserie #granvilleisland #vancouverbc

3/21/2024, 6:03:38 AM

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3/20/2024, 7:05:10 PM

Small is my favorite. These little snap pouches for rings are too cute for words. 🤭🪻 #thelilliput #smallismighty #maytreeark #ringholder #edc #madeinmaine #mainemade #mothermade

3/20/2024, 4:41:36 PM

BC Children’s is the only hospital in the province devoted exclusively to children. As one of the world’s top-ranked pediatric hospitals, it leads the way in confronting many of the most pressing health challenges facing kids today—from cancer to heart disease and brain health. Your support plays a pivotal role in accelerating the translation of these discoveries. And beyond propelling this work, your contribution also empowers researchers to dream even bigger. Thank you for shaping the future of children’s health care. Know your limit. Play within it. 19+ #smallismighty #BCCHF #bcchildrens #bcchildrenslottery

3/19/2024, 6:50:51 PM