Little fighters deserve all the love and support we can give. 💕 The McCheyne family is navigating through an incredibly tough journey with their newborn, born a micro preemie and braving heart surgery among other hurdles. After 131 days in the NICU, their baby girl is finally home but with continued needs for medical care. Kayla, a wonderful mom, has been out of work to provide round-the-clock care, and the mounting bills are becoming a challenge. This is our chance to make a difference. 🌈 Any contribution can help ease their burden, ensuring focus remains on the baby's health and happiness. And if donating isn’t possible for you right now, sharing their story can also create ripples of support. 🙏 GoFundMe link https://gofund.me/22d7a29f #preemie #micropreemie #24weeker
I wonder what in the world this frog is gonna cook up or burn in this book. Go listen and find out!!!@ #newbook #spotify #applepodcast #stitch #spotifypodcasts #childrensbooks #24weeker #33weeker #tuesday #funnybooks
We have a discharge date. I repeat, WE HAVE A DISCHARGE DATE! Clifford is tentatively coming home on June 7th 😭 To be honest, it doesn’t feel real. We have prayed for doctors to say those words for so long and have had to live in so much uncertainty. We’ve been dreaming of the day we get to bring our baby home and it’s finally within arms reach. There were moments we weren’t sure it would happen. But we never lost faith, and here we are. 🥹 Operation bring Clifford home is in full swing y’all! If you need us over the next month, we’ll be tackling trainings, building a care team, and preparing our home. The countdown is on ❤️ . . . #honestmotherhood #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama
My 2nd NICU Reunion and we got rained on #twice The weather definitely matched the Under the Sea theme 😂🤣 but all in all I got to see my NICU family. Unfortunately the rain kept us from taking all the pictures we wanted to take but there’s always next year. #NICUTy #Micropreemie #24weeker #NICUgraduate #mamasboy #21monthsold #UnderTheSea #NICUreunion2024 #NICUreunion #RainyDay
I am Masa 💎 (not Lulia) before I was discharged from the hospital my parents knew the problems that I will be facing but they had high hopes that everything will be fine! They knew that my brain scan wasn’t normal as I was diagnosed with PVL due to low birth weight ( you can look it up as it’s a long name) I also had chronic lung disease due to being on a ventilator for a long period of time, which explains the oxygen I have on! However my lungs 🫁 grew perfectly after 3 weeks of discharge when I started to gain weight more! I also had something ONLY premature babies get which is ROP retinopathy of prematurity! It’s an aggressive disease that hits the eyes .. will talk about it in another post So yeah 😊 let me know if you have any questions for me? See you tomorrow love you 🥰 أنا ماسة مش لوليا .. قبل ما أتطلع من المستشفى ماما وبابا كانوا عارفين بالمشاكل الي رح واجهها بس كان عندن امل كتير كبير♥️ كانوا عارفين انه عندي تلف بالدماغ من ورا صغر ورني وقت الولادة! وكمانه كان عندي مشكلة بالرواية لان طولت تحت التنفس الاصطناعي ورجعت على البيت مع اوكسيجين متل الصورة هاي بس مشي الحال بعد ٣ اسابيع لان زاد وزني منيح الحمدالله مش بس هيك اجاني مرض بالعيون خطير جدا بس بيجي للأطفال الي ولدوا بكير اسموا ROP مش كل الأطفال اكيد رح احكي عنوا بعدين ف هاي هي خبريني إذا عندك اسئلة الي بشوفكم بكرة بحبكم ♥️ . . #24weeker #premature #nicugrad #specialneeds #micropreemie
Taurus season! #micropreemie #preemie #24weekermicropreemie #24weeker #micropreemie #mambaprincess #preemiestrong💪
Fast forward the NICU life When I came home after 127 days at the hospital to meet my big sister Ruby … we are 3 years apart 🥰 هون وقت رجعت على البيت بعد ١٢٧ يوم بالمستشفى وتعرفت على اختي روبي .. الفرق بيناتنا ٣ سنين 🥰🥰 . . #24weeker #nicu #nicubaby #nicugraduate #preemie #sistergoals #family
Kobe turned 4! My rainbow 🌈 baby, my miracle the one who beat all@of the odds. HAPPY BIRTHDAY 🎉 #micropreemie #preemie #24weekermicropreemie #24weeker #micropreemie #mambaprincess #preemiestrong💪
I am Masa (not Lulia) 🤭 I was born on the 24th week of pregnancy! Because my mom got an infection that made her go into labor super early! At the hospital they tried to keep me in as long as possible, because to them an extra day in the womb counts But I couldn’t stay more than 3 days in! So I was born on 26 April 2016 in Doha Qatar. I was 700g in weight, 34cm in height… imagine how tiny! I had to stay in the hospital for 127 days .. it was a journey we will never forget as a family More details will be addressed later! Now tell me if you have any questions See you tomorrow ♥️ I love you!!! . . #24weeker #micropreemie #extremepremature #nicugraduate #tinymiracle #specialneedskids
#NICUTy #Micropreemie #24weeker #NICUgraduate #mamasboy #21monthsold #boyswillbeboys #cars #perfection #myson
GREAT QUESTION!!!💜 My son was born at 24’ weeks 3 days . He is going to be 1 year in June but corrected age he is going to a year in October . Do I celebrate when he was born ? Do I celebrate his corrected age birthday? I got 2 months and wanted to celebrate his year but for some reason Ive been having a hard time deciding when to do it . Any suggestions on how micro premmie parents did it would be great! #24WEEKER #MICROPREEMIE #PREEMIE #NICU #PREEMIEHOOD
Hi I am Masa, I will be sharing my journey here as a 24 weeker! You will be seeing me a lot as Lulia is not allowed to be on social media yet, she is still small! So I will be happy to spread awareness about everything I have been through and I will love your support … P.S. She is my fav therapist 😊 See you tomorrow.. love you 🥰 . . #premature #24weeker #prematurebaby #nicubaby #nicugraduate
Xander LOVES his swim lessons at @goldfish_okemos !! . . one of the best decisions for our superhero CP boy. his upper body strength is mind-blowing! and since he loves water, it was an obvious choice! . . Our preemie boy is finishing out 4 year old preschool at Red Cedar with the most fantastic teachers in his ECSE classroom and we decide next week what the summer and next year holds for him. 💚💪🏻💪🏻 . . #preemiestrong #xlstrong #xanderG #xmanlaskos #24weeker #CPstrong #NICUsurvivor
When we toured our new ward, Kobie only had one question for the NUM: “can I cuddle my sister here?” So good to see Tillie back in Kobie’s arms 🥰
Ryan and Oliver are two peas in a pod 🟢🟢💚 I'm so in love with them both 😍 💕 #dad #dadlife #dadsofinstagram #hotdads #park #spring #springvibes #sun #sunshine #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #miraclebaby #rainbowbaby #specialeducation
Screaming a very Happy Birthday to my son, Zaiden. You would never know by looking at him that he was born prematurely at #24weeks . He almost didn't survive. Now, he's a thriving, growing, sweet, handsome 9 year old! ✨️🎈 #premature #prematurebaby #24weeker #nicubaby #nicu #preterm #pretermlabor #autism #autistic
Bird art just dropped! He worked on Big Os and Little Os with his tutor 🖍 #tutor #tutoring #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #micropreemie #autism #developmentaldelay #disability #24weeker #miraclebaby #rainbowbaby #specialeducation
✨418 Day Home✨ As of today, Ellie has officially been home for one day longer than she was in the NICU. This feels like a huge milestone in our wild journey! We celebrated by doing all of Ellie’s favorite things to do at home: snuggle, play outside, harass the cat, and refuse to nap. We threw the routine trach and g-tube change in there too for good measure 😜
Holding your baby through countless tests, poking, prodding, and procedures never gets easier. And just when you think you have a grasp on it all, you’re facing a new challenge. The other night Clifford failed his “newborn” hearing screen. Yesterday we had more testing done by an audiologist and learned that Clifford has mild to moderate hearing loss. Basically, he can hear people talking but it’s very muffled and like the volume is turned down. Next week our strong little guy will be rocking a cool new hearing aid, and we can’t wait for him to hear our voices clearly for the first time. He’ll also be sporting a new helmet to correct his head shape. I’m so incredibly thankful for our medical team who continues to support us every step of the way and give Cliff the best care possible! My brave boy, your daddy and I are going to give you the most beautiful life. We got this Cliffy!! ❤️ . . . #honestmotherhood #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
Our little princess did sooo good at her CT scan today!!! Because of her age they sedate them so it’s a lot more complex and takes more prep than just the quick 3 min scan. Nothing like having to check in at 6:30am 😴 We won’t know the results right away but praying they see the artery growth needed so that the 2nd step can be done in the cath lab and not a 2nd open heart surgery. These tests and visits always raise my anxiety and I am relieved it went well and she was smiling when she woke up. #chdwarrior #nicubaby #24weeker #miraclebaby
My babies 🥰❤️ #archie #skylah #myworld #mybabies #iloveyous #blessedmumma #solucky #son #daughter #family #siblings #brotherandsister #theyarecute #familylove #asd #autism #autismfamily #minime #preemie #microprem #24weeker #preemiepower #perthisok #aboriginalandproud #kidsofinstagram #mumsofinstagram #kmart #beautifulkids #happykids #happylife
Recent Bird photo dump- from him enjoying the outdoors to him enjoying his new pea pod 🥰😍🤩 #spring #springvibes #smile #bigsmile #ribbons #sensorytoys #sensoryplay #peapod #pressure #birthday #birthdaygiftsforhim #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #miraclebaby #rainbowbaby #specialeducation
Clifford Brett, you continue to amaze me! Little man is rocking it, tolerating biweekly vent weans and crushing bottles like a champ. Keep going Cliffy, we can’t wait to bring you home ❤️ . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
Bird at the playground today 🌤 #Slide #playground #sunnyday #spring #springvibes #elmo #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
9 months old (5 months corrected) vs about 15 hours old💙 #nicubaby #micropreemie #prematurebaby #nicustrong #greysonsjourney #niculife #hospitallife #newbornvsnow #medicalbaby #24weekermicropreemie #24weeker
Happy birthday warrior princess 🌊 ! Three years old vs Three months old. #24weeker #preemiestrong 🧡
Sweet 24-weeker Xaylee 🥰 . . . @lil_bree88 #nicuphotography #nicuphotographer #nicunurse #preemie #kristaganttphotography #nicu #lifeinsidethenicu #charlottenewbornphotographer #24weeks #24weeker
Loves a selfie, just like his mama 🤭 Despite the smiles we’ve actually been struggling a lot lately, running on little to no sleep since 2023 is proving to take it’s toll on us all. I think the reality of it is more hard hitting than anything, that we are more than likely facing sleepless nights for the rest of our lives, it’s not something Abel will grow out of. It’s just one of the many side effects to neurological disorders that we have to accept, which we do, but it’s still a tough one to take! How Abel can smile through it all is absolutely beyond me, he definitely has his bad days where his mood takes over but always manages a giggle and a smile 🤍✨ #abel #24weeker #hydrocephalus #hydrocephaluswarrior #cardiomyopathysurvivor #dilatedcardiomyopathy #cp #quadcp #cerebralpalsy #cpwarrior #cerebralpalsywarrior #quadriplegic #quadriplegiclife #shuntlife #dystonia #epilepsy #tubielife #gastrostomy #tubefed #senmum #sen #disability #disabilityadvocate #senlife #specialneedsmum
This time three yeas ago, I worked a lovely shift with lovely people, I just over 23 weeks pregnant. I went home and my waters broke I went to hospital and the start of the worst and hardest six months of our families lives started. But I also find out how strong our little family unit is 💜🩷 And how many people will truly stay by our side and help. From the countess of chester after having steroid injections to Liverpool women’s to be given all the scary information I didn’t want to hear. The statistics that were less then poor And doing this alone because of COVID and my husband holding our family together at home. Birth trauma is real I’m not ashamed of what we went through or how I handled it. The depression was real The fear was real The pain was real If you didn’t get it back then try now 💜🩷 #birth #birthtrauma #lwh #prem #prembaba #prembaby #microprem #24weeker #baby #journal #listen #care #compassion #depression
My precious baby girl! 🥹 I can’t believe it’s really been 3 whole years that you came into this world with your sassy little attitude and contagious smile. Watching you grow into all of these “big girl” stages have been the most amazing thing. I am so proud to be your mom, and so proud of the amazing little girl you’re becoming. Keep blooming baby girl 🌸 #SelenaisTHREE 🎊🎈 #NICUbaby #24weeker
Ollie, Ollie, Ollie! 💙🐦 #easter #swing #spring #springvibes #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
Mommy teaching Ollie to do his "put ins" with his eggs 🥚 & Daddy pushing Ollie on the swing 🌞 #Easter #easterbasket #spring #springvibes #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
Happy 13th birthday to my incredibly sweet, kind and talented daughter. This picture looks like just a bowl of cereal... and it is! Sort of. It's actually a bit of milk and cereal on a frozen bowl of water with a spoon. Imagine my daughter's surprise as she sat down to a lovely 13th birthday breakfast to find frozen cereal. 🤣🤣🤣 Listen, when you show up at 24 weeks as an april fools joke to your parents, expect to get pranked every year. I also located these nested cardboard gift boxes. I filled the last one with a tiny pony and the were all turned different directions. Amazon for the win. #officialteenager #tradwife #micropreemie #24weeker #eclampsiaawareness #aprilfools #aprilfoolspranks #aprilfoolsbirthday
My miracle girl. ❤️ #noahgreystrong #24weeker #prematurebaby
About Resurrection Day. Started off at church, witnessed my cousin’s baptism, had a splash in the pool, opened a giant Easter egg, ate good, slept great. Wow!! What a day! Running around church is hard work but someone has to do it. 😂🤣 #NICUTy #Micropreemie #24weeker #mamasboy #20months #NICUgraduate #ResurrectionDay #EasterSunday #reels #reelsinstagram #reelsvideo #explore #Baby #babyinfluencer #explorepage
Sloanie is ONE tough cookie 🤎 It’s been a really emotional but exciting year! We are so so blessed to have Sloane in our lives. She is so sweet, just the right amount of sassy and so so funny. Thank you to everyone who helped us get through Sloane’s first year of life. To the NICU staff who saved her life, held us on our hardest days, celebrated with us on our best days and taught us how to care for our tiny baby - we love you and will never forget you. To our friends and family who held us up (literally and figuratively) this past year. We love you! The check-ins, the meals, the bedside books, the prayers, the encouraging words, the laughs, the cries… the love. We needed that so badly and you gave that to us… thank you! And to our amazing, merciful and powerful God… thank you for letting us be Sloane’s parents. Thank you for healing our baby girl. ♥️ #24weeker #micropreemie #mytinyhero #SloaneNoelle
Bird in his bird bath 🛁 Singing me the song of his people 🐦 #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
🤍🍼🥹🥲 I’m going to throw hands with the stork but they brought me a little miracle baby and finally made me apart of the cool moms club. 🪹🐦 #NICUbaby #24weekpreemie #24weeker #nicubabymiracle
Mr. Clifford tried purées for the first time today and loved it! Thankful for the awesome speech therapists at @childrensmn for working with Cliff to meet new milestones ❤️ . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
Indy I like to think your dad and I were grown before you arrived, but we weren’t. You’ve taught us so much about life, resilience and fighting against the odds… I pray you always see yourself the way I do. You’re my biggest accomplishment, I hope I live up to being your mama everyday #dearnicumama #micropreemiestrong #24weeker
❤️❤️❤️ #wcześniak #wczesniak #24weeker #24weekpreemie #ourlittlepreemie #jestembojestes #skrajnywcześniak #skrajnycud #preemiestrong #preemiesrock #preemiepower #coreczkamamusi #mummydaughter #5birthday
Spring days are swing days 🥰 #spring #springvibes #swing #sunshine #elmo #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #miraclebaby #rainbowbaby #specialeducation
Rosemary is 2! What a crazy couple of years. Rosie, thank you for always making me smile amidst all the trials of life. You are truly a joy and we are so so blessed to have you. We’ll never forget the miracle you are and how good the Lord has been to us. Keep thriving sweet girl. 🩷 #24weeker #micropreemie #nicugraduate
I asked "Ollie, can you smile for Mama?" 🤣🤣🤣🤣🤣🤣 #spring #springvibes #sunshine #swing #silly #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #miraclebaby #rainbowbaby #specialeducation
Zäme id Zuekunft luege… Egau was isch gsi, egau was isch und egau was chunnt… Mir schaffe aues zäme. Ds gröschte Gschänk, dini Mama dörfe dsi♥️ #miropreemie #preemie #24weeker #proudofyou #proudmommy #nicusurvivor #thankful #blessed #trachbaby #trachboy #tracheostomy
My bubbas surgery went good yesterday and he’s feeling a lot better today 🩵 Grey is a trooper after all he went thru hes my miracle baby being born a whole 16 weeks early and weighing 1 lb💪🏻🙏🫶🏻😇😘 #preemiebaby #24weeker I’m beyond blessed to be his mama he’s a mamas boy for sure 🥰
Photo dump pt2 #NICUTy #Micropreemie #24weeker #NICUgraduate #20monthsold #mamasboy #happy #reels #reelsinstagram #reelsvideo #explore #Baby #babyinfluencer #explorepage
Photo dump from Sunday, March 24th at the Strawberry Farm. #NICUTy #Micropreemie #24weeker #NICUgraduate #20monthsold #mamasboy #happy #reels #reelsinstagram #reelsvideo #explore #Baby #babyinfluencer #explorepage
More 6th bday pics 🥳🎊 #6thbirthday #happy #birthday #happybirthday #6 #birthdaydecoration #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
Small birthday set up 🎊🥳 @squishmallows @jazwares @sesamestreet #6thbirthday #party #happy #birthday #birthdayparty #happybirthday #6 #birthdaydecoration #elmo #squishmallows #jazwares #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
Family afternoon with the horses and Mia had her first ride on Domino 💖🐴 #firsthorse #firsthorseride #shetland #24weeker #prematurebaby #micropreemie #horseride #horserider #familyday #family #myworld
HAPPY 6TH BIRTHDAY TO OUR MIRACLE BABY 💝💝💝 #happy #birthday #birthdayboy #6 #6thbirthday #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation
What a week this little girl had! From birthday party with a special guest, Vovó came from Brazil, and then we went straight into our 5th NAPA intensive. During this intensive, we are doing a variety of things, feeding (because of course we have taken various steps back in our long journey of eating orally), communication using an eye gaze device (she is able to make choices on a tablet using her eyes), DMI and PT. A lot of the motor skills are focusing on continuous strength of her muscles, abs and transition between positions, as well as walking. Week 1 ✅ 2 more to go! #napacenter #dmi #24weeker #tubefeeding #complexkiddo
Clifford Brett is S E V E N months old — 3 months adjusted A few days late, but can you believe how big our little dude is?! The past month has been full of growth — so much progress, all the smiles, and a HAPPY baby! We’ve *slowly* been able to wean down Cliff’s vent settings, although he still has a ways to go, he is doing it!! He’s growing and getting stronger every day, and gets lots of compliments on his hair. He’s obsessed with his “binky”, eating his hands, kicking his legs and watching his mobile. He’s the biggest and oldest baby in the NICU and everyone knows him and stops to say hi. He’s become quite the popular guy! It feels like we can finally breathe a little easier these days, but it’s impossible to shake the fear that comes with this journey. But one thing is for sure, WE’RE DOING IT! We are so hopeful that Cliffy will get to come home this summer. If you could say some prayers that we continue to make progress, we sure would appreciate it. We know his sister is with him every step of the way. ❤️ “put the binky back in my mouth, please.” — Cliff probably . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
These two amazing little people love each other so much ❤️ #daughter #son #love #24weeker #happykids #siblings #family #micropreemie
3.1.24 💙 Hunter turned 6 years old! Making sure these memories live on my feed 🥰 The last year has been such a transformative one. He’s growing up so fast and I wish time would slow down. Hunter brings joy to everyone he encounters and he continues to amaze me with his wisdom, empathy, and determination. My biggest wish for him this year is that he continues to be unapologetically himself because he’s perfect ♥️ Hunter got to celebrate his birthday with family, friends, and a special family trip to Dallas to meet our surrogate and her family 😊 • • • #birthday #six #son #boymom #miracle #micropreemie #24weeker #rainbowbaby #ivfmiracle #kindergarten
BISMILLAHI MASHALLAH Thank you semua for your kind wishes, dua and presents. Salim loves youuuuuu! ❤️❤️❤️ #24weeker #micropremie #trachbaby
Makenna Grace💜 7 weeks old today (31 weeks adjusted) Here’s the rest of the gallery from yesterday’s shoot. I may be biased but she’s perfect and so strong. #oklahomaphotographer #nicuwarrior #24weeker #okc #photography
Becoming Clifford’s mama is my biggest accomplishment 🥹❤️ . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
"Our Sophia Ruth was born at 24 weeks and weighed 1lb 9oz. My water broke and had a breech delivery 48 hours later. The first two weeks were touch and go. My husband and I were able to hold her for the first time after 6 days and have held her everyday since. After two weeks, we were told the pharmacists may go on strike, so they transferred her to another hospital for 10 days, 60 miles away until the negotiations were resolved. The first two months of the NICU were numbing. We spent the holiday season from Thanksgiving through New Years in the NICU. I cried every day for a month. Sophia was and still is a fighter. Sophia Ruth kept the nurses and doctors on their toes by pulling out CPAPs, feeding tubes and at one point her PICC line. She also received 5 blood transfusions. The best advice I received was when I held Sophia to make sure I was at a resting heart rate. So, I started a gratitude journal, and daily meditation before holding her. I also created a playlist called Sophia's NICU to help me get through the hard times. Sophia Ruth is truly a miracle and was constantly beating the odds by breathing on her own at 32 weeks and bottle feeding at 36 weeks. Sophia Ruth was able to go home in 104 days, just shy of one week from her due date. One doctor said “Sophia is Valedictorian of the NICU.” I would not be able to get through this experience without my faith in God, my family, friends, colleagues, my NICU mentor, dedicated doctors and nurses. She is now 2 years old, a free spirit and fearless. Our warriors need you as much as we need them. Keep the faith!" NICU Mom, Judy Thank you so much @judy.smithson for sharing your NICU journey and sweet girl with our community! To share your story head to the blog link in our bio! #ProjectNICU #hopegrowshere #ProjectNICUcommunity #NICUstrong #24weeker #NICUgrad
*sings* ✨ I swear he is destined for the screen ✨ #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #eyelashes #lashesfordays #miraclebaby #rainbowbaby #specialeducation #vancejoy #riptide
We would like the introduce our miracle baby, Ryver Esme Jules to the world. We were able to bring our babygirl home after a long 133 days in the NICU. Ryver you are small, yet so mighty and filled with personality. We are excited to begin our journey as parents of our beautiful girl 🤍 🩷 #NICUbabygrad #Miraclebaby #GirlDad #Babygirl #Newborn #Preemie #24weeker #micropreemie #lifeafternicu #babiesofinstagram #babymodel
You are our little warrior. Seeing you fight at such a young age shatters our hearts, but your strength could move hills. We are so proud of you. The first of many photoshoots for Makenna💜 #okc #oklahomaphotographer #nicuwarrior #24weeker #photography
Follower share 💜💜 These pictures are exactly six months apart. We are far from out of the woods, but for all of you still pregnant and scared, still in the NICU, just getting home, and everything in between and after - there is so much hope. Being told time is the biggest factor is so disheartening (believe me, we’re still there) but please please hold on to every tiny bit of hope. 💜 #24weeker #micropreemie
Young artist at work 🖌🖼🎨 #art #youngartist #smartboard #school #sensoryroom #occupationaltherapy #occupationaltherapist #teacher #proudparents #survivor #preemiestrong #preemiesofinstagram #nicuwarrior #nicugrad #micropreemie #autism #developmentaldelay #disability #24weeker #miraclebaby #rainbowbaby #specialeducation
Dad’s first time bottling Cliff 🥲❤️ Clifford is still getting almost all of his food through his G-Tube but we have been working with speech therapy on learning to bottle and swallow with his trach. He is doing great so far! We’re starting to incorporate more bottles throughout the day to gradually increase his oral intake. 💪🏼 . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
On day 200 in the nicu we tried to take a family selfie and gave Cliffy a million kisses. 😘❤️ love these two more than anything. . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom
There is nothing worse than waking up in the middle of the night to a call from the nicu. Clifford had two episodes last night resulting in his sats and heart rate dropping and required emergency trach changes. Thankfully he is okay and he recovered well, thanks to the quick intervention of the medical team. Days like today are a reminder of the uphill battle we’re facing and the challenges that still lie ahead. Uffta, It’s been a tough 24 hours with little sleep. I know a lot of people ask when we’ll get to bring Clifford home, but the reality is that we have no idea. I know he’s in the right place to get the care that he needs, especially when emergencies like last night happen. You’d think this whole NICU journey would get easier, but as time goes on without an end in sight, it’s still just as tough. I always strive to stay positive and celebrate all of Cliff’s progress, but I think it’s important to also acknowledge the struggles. Some days feel impossible, but Clifford is teaching us how to be strong like him. We’re learning to cherish every moment with him, not getting caught up on how much longer we have to go. For now, Codey and I are dedicating our day to our baby boy and giving him lots of love and snuggles. One day all of this will be behind us, but until then, we will keep going until we bring our baby home. Clifford Brett, you are SO LOVED! . . . #cliffordstrong #nicu #nicubaby #24weeker #nicujourney #micropremie #premie #nicumama #premiestrong #trach #trachbaby #motherhood #mama #honestmotherhood #twin #survivingtwin #nicuwarrior #tubie #gtube #trachie #minnesota #minnesotalife #minnesotamom