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Feeling overwhelmed by managing your health? There's an app for that (or several actually)! ๐Ÿ’Š๐Ÿ“ฑ Drowning in appointment reminders and struggling to keep track of medications? You're not alone. But what if there were tools to simplify healthcare and put you in control? ๐Ÿค” This blog post dives into the world of patient power apps. We'll explore a variety of apps designed to help you schedule appointments, manage medications, track symptoms, connect with doctors virtually, and access valuable health resources. ๐ŸŒŸ๐Ÿ’ป Ready to level up your health game? Let's find the perfect apps to empower you on your wellness journey! โžก๏ธhttps://q.uick.team/MGKL

5/11/2024, 3:02:39 PM

๐Ÿ’ซ Episode 45 is live! Join Catherine Seo, PhD, as we unveil the world of Lipoedema management. Empowerment and expert advice await! Tap into our live panel discussion and expand your wellness toolkit. ๐ŸŽ™๏ธโœจ #LymphCast #EmpowerYourHealth #LipoedemaAwareness #PatientPower #HealthPodcast #WellnessJourney #ExpertAdvice #LipoedemaManagement #TakeCharge #YourHealthYourWay #LipoedemaSupport #EmpowermentTalk #HealthEducation #InspiringHealth #ListenAndLearn

5/9/2024, 12:30:30 AM

Talk to Tony about hope and realistic expectations with the Linkin Bio.

5/8/2024, 8:10:16 PM

@croiheartstroke and its patient network, Heart & Stroke Voice Ireland (HSVI), were delighted to support The Irish Association of Heart Failure Nurses (IAHFN) for their #BumpUpThePump campaign during European #HeartFailure Awareness Week 2024 last week โค๏ธ. Galway Bay FM broadcaster Ollie Turner teamed up with the IAHFN to use his #PatientVoice and has gone public with his own heart health journey to raise awareness of heart failure, a common condition which will affect 1 in 5 of us in our lifetimes. If you are living with heart failure, we would love to hear from you. Share your #PatientVoice to help others, please complete the form on our website and our team will get in touch ๐Ÿ‘‰ www.heartandstrokevoice.ie ๐Ÿ“ธ From left to right: Dr. John Barton, Consultant Cardiologist, Heart Failure Clinic, Galway University Hospitals; Ollie Turner, Galway Bay FM broadcaster; Annie Costelloe, Heart & Stroke Voice Ireland Development Lead; Emer Burke, PRO IAHFN/Advanced Nurse Practitioner (Heart Failure), Galway University Hospitals. Photo courtesy of Ray Ryan. #PatientAdvocacy #PatientPower #DetectTheUndetected #HFAwareness #HighlightHeartFailure #HeartFailure2024 #HFAW2024 #25in25

5/7/2024, 4:28:07 PM

The Integrative & Personalised Medicine 2024 Congress @ipmcongress is just 4 weeks away and Iโ€™m thrilled to announce that Iโ€™ll be presenting alongside my colleague and fellow practitioner Clare Grundel @integralnutrition.cg Join us for an insight into the ways nutrition practitioners such as ourselves are engaging #GPs and seeking collaborative ways of working to enhance patient experience and health outcomes. Weโ€™ll be presenting on day one, Whole-Person Health Conference - Thursday 6th June 2024 at 12:15. View the full programme here: https://www.ipmcongress.com/conference/2024-3-days For more about us: https://www.ipmcongress.com/speakers/claire-sambolino https://www.ipmcongress.com/speakers/clare-grundel #NutritionalTherapy #Integrativehealthcare #Nutrition #LifestyleMedicine #Collaborativewaysofworking #NHSPrimaryCare #GPEngagement #PatientPower #patientagency #ipmcongress

5/7/2024, 1:38:09 PM

Josephine Anne Luevanoโ€™s life was cut short due to HDFN that tragically went undiagnosed and untreated, depriving her of the blood transfusions she needed to survive. On June 21st we are honoring Josieโ€™s life and raising awareness about HDFN for her first heavenly birthday with our first ever Allo Hope Blood Drive in Atlanta, Georgia. Stay tuned to find out how you can participate in the blood drive and honor Josie's legacy with us. #WeLoveYouJosie #AHFBloodDrive #AlloHope #BloodDrive #DonateBlood #alloimmunization #highriskpregnancy #hemolyticdisease #antibodiesinpregnancy #hemolyticanemia #HDFN #AntiD #hdfnawareness #rhincompatibilty #redcell #empoweringpatients #patientpower #AlloimmunizedWomen #AlloMom #raredisease #maternalantibodies #advocatelikeamother #rhdisease #blood #CompassionateCommunity #MaternalAlloimmunization #MFM #stillbirth #HOPE #redcellantibodies

5/4/2024, 3:32:48 PM

Heart & Stroke Voice Ireland, as a member of @fh_europe, is supporting their first-ever #HoFHAwarenessDay today to spread awareness of #FH - #HoFH. HoFH is the rare and severe form of Familial Hypercholesterolemia (FH), a genetic lipid condition that causes high cholesterol. It is estimated that HoFH affects 1 person in 300,000 people around the world. HoFH happens when a child inherits two copies of an altered gene that causes FH, one copy from each parent. Due to its rarity, the situation of people with HoFH is often overlooked, which does not do justice to the gravity of the condition and the challenges patients with HoFH and their families face. There is an urgent need for a screening programme to allow early diagnosis, preventive treatment and improved cardiovascular health outcomes for people with #HoFh and their families. If you are aware that you have #FH - #HoFH, we would love to hear from you. Share your #PatientVoice to help others, please complete the form on our website and our team will get in touch ๐Ÿ‘‰ www.heartandstrokevoice.ie #PatientAdvocacy #PatientPower #Unite4HoFH #RareDisease #UseHeart to #KnowHoFH #FindHoFH #maythe4thbewithyou

5/4/2024, 11:00:12 AM

Itโ€™s been the hardest 2+ years but Jackson's been a resilient happy boy!โ  โ  โ  Hope session by @sacred_sage_photography

5/3/2024, 6:01:32 PM

Join our list of world-class speakers for the opportunity to present at a patient advocacy workshop in 2024 and beyond! If you have expertise to lend in advocacy, marketing, social media, or something else, apply to be added to our speaker database! Link in bio. #publicspeaking #publicspeakers #speakingopportunities #keynotespeaker #patientvoice #patientadvocacy #patientpower #advocacymatters #healthadvocacy

5/1/2024, 3:01:39 PM

Learn more about Diane's untold stories with the Link in Bio!

5/1/2024, 12:10:10 AM

Before her diagnosis, we would travel twice a year to take our kids to the ocean. Since her diagnosis, we have been home and always within proximity to the hospital in case of emergency (which has occurred many times). We finally got clearance to travel with Chana. This is the first time we are leaving our home since our daughterโ€™s diagnosis. We would love beach photos to celebrate this occasion!โ  โ  โ  Hope session by @darcygrafphoto

4/30/2024, 6:01:33 PM

We were back at @bangor_university this week to talk about our Patient Passport Application. Anyone with a health condition can use the Patient passport. @careandrespond Thank you to @chrissubbe for inviting me back #patientadvocate #patientsafety #chdawareness #cardiology #longtermhealthconditions #mitralvalvereplacement #openheartsurgery #atrialseptaldefect #atrialfibrillation #advocacy #autonomy #hospitalcare #patientpoweredsafety #patientpower https://www.careandrespond.com/passport/

4/27/2024, 9:06:00 PM

Finding a clinic partner that you feel safe with is so important. We are so happy to read reviews from people who felt that way like this one at @theevewell ๐Ÿงก Leave your anonymous clinic review today ๐Ÿ”—

4/27/2024, 1:23:20 PM

It is Lesbian Visibility day today! We want to celebrate and amplify the voices of queer individuals and couples in the fertility community, and beyond! ๐ŸŒˆ Thank you to the wonderful @sofieinswitzerland, @babybaileymamadrama and founder of @connectingrainbowsorg, @genajaffe, who shared their stories in this article, illuminating the path for others to follow. To read the full article visit the link in our bio! ๐Ÿ”—

4/26/2024, 6:40:36 PM

Everything has changed. Being that we spend 4 to 5 weeks living at the hospital, we donโ€™t get to create new memories or start new traditions with our daughter. Her diagnosis has also paused us to continue to grow our family. While we should be taking the time to focus solely on her, both Dad & I still need to work to pay our regular bills & now the additional medical expenses that we never anticipated.โ  โ  Chemo has dimmed so much of her positive light. She used to laugh & smile all the time, but now we fight just to get a smile out of her. Adelina loves her cousins, and whenever she sees them โ€“ she lights up and laughs at everything. She loves to climb & explore, absolutely loves the outdoors, she enjoys playing with toys that she can pull apart or build back up. More than anything, she loves water! But because of her broviac, she canโ€™t get wet. She loves to play guitar like her dad and sing, even though we have no clue what sheโ€™s saying.โ  โ  โ  Hope session by @eganeyesphotography

4/26/2024, 6:01:35 PM

Shoutout to our Meadowside Patients for taking their fitness above and beyond! ๐Ÿƒโ€โ™‚๏ธ๐Ÿƒโ€โ™€๏ธ Massive congratulations to Sarah and Toby for conquering the London Marathon @londonmarathon last weekend! ๐Ÿ… ๐ŸŽ‰๐Ÿ’ช Super proud of your incredible efforts. Time for some well-deserved rest and maybe a little osteopathy for those tired legs! ๐Ÿ˜‰ Thinking of running a marathon? We can help, contact our lovely front of house Team on 01252 449435 or book a free 15 minute consultation with one of our osteopaths and embark on your journey to a pain-free, more active life! The Meadowside Team ๐Ÿ #LondonMarathon #YouGotThis #PatientPower #MeadowsideFamily #meadowsideosteopathy #osteopathy #physiotherapy #osteopath #health #physio #physicaltherapy #massage #backpain #manualtherapy #osteopathyworks #physiotherapist #osteopathicmedicine #wellness #therapy #fitness #rehabilitation #sport #healthcheckup #healthcare #health #healthyliving #meadowsideosteopathy #checkup #osteopath #wellness #preventivehealthcare #lasertherapyclinic #LondonMarathon #Legends

4/26/2024, 12:33:45 PM

Celebrating Our Marathon Heroes Now the dust has settled on the streets of London and, hopefully, the muscles have begun to recover, we want to take a moment to reflect on the incredible journey our runners embarked upon. ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™‚๏ธ Rosie G., Henry, Rachel, Rosie W., and Robyn, you crossed the finish line on Sunday, but the impact of your strides continues to resonate within the hearts of everyone at #TeamMPNVoice. Your unwavering commitment has not only raised awareness but also vital funds for those affected by myeloproliferative neoplasms. Your dedication is more than just inspirational; it's transformational. And for that, we are immensely grateful. ๐Ÿ™ To our supporters, especially Debbie, who cheered from the sidelines - your encouragement fueled our runners' spirits every step of the way. Let's continue championing this cause together; every step taken is towards hope and healing. If you feel inspired and want to get involved in next year's marathon or something less energetic, please drop us a line... #londonmarathon2024 #RunForACause #PatientPower #myeloproliferativeneoplasm #polycythemiavera #essentialthrombocythemia #myelofibrosis #mpnvoice #bloodcancerawareness #rarecancer #chronicillness #chronicallyawesome

4/25/2024, 9:49:25 PM

Thank you to all the patient advocates who contributed to the launch of @croiheartstroke and HSVI's new policy #ManifestoForChange and the urgent call to the government to implement a national #CardiovascularHealth strategy. Photographed are patient advocates Siobhan Cunningham, Thomas Hynes, Heidi Kingston, Teresa Keogh, alongside Annie Costello, Croรญ Head of Patient & Community Engagement and HSVI Development Lead, and Dave Kelly, HSVI Chairperson and Patient Advocate. If you would like to join the HSVI alliance and share your experience to help others, please complete the form on our website and our team will get in touch ๐Ÿ‘‰ www.heartandstrokevoice.ie Please visit croi.ie/manifesto to view the full document. #PatientVoice #PatientPower #HeartStrokeVoiceIreland #PatientAdvocacy #CarerVoice

4/25/2024, 1:13:16 PM

Dive into the facts โ€“ every year, navigating healthcare bills adds unnecessary complexity for patients. But that's not the full picture... Countless hours and resources are spent in confusion, often leading to financial strain and avoidable stress. We're challenging the status quo with a vision for change. At Quest MBS, we: โœ… Illuminate every aspect of your healthcare billing. โœ… Empower you with knowledge and clarity. The benefits are immediate. Patients feel confident, healthcare becomes more accessible, and the mystery of medical billing is unraveled. Remember, understanding your healthcare spending is not just about numbersโ€”it's about taking control of your health and peace of mind! Together, let's light the way to a brighter future in healthcare spending. Take the first step towards financial innovation. ๐Ÿ“ Discover more at www.questmbs.com ๐Ÿ“ž Get in touch at (732) 520-8877 ๐Ÿ“ง Reach out: [email protected] #questmbs #HealthcareTransparency #BillSimplicity #PatientPower #ClearBilling #EmpowermentThroughUnderstanding #NoMoreBillingSurprises #FinancialHealth #SmartHealthcareSpending #NavigatingHealthcare

4/25/2024, 5:46:03 AM

Thank you to Heidi Kingston, Patient Advocate and Stroke Survivor, for sharing your story and being a #PatientVoice at the launch of @croiheartstroke's new policy manifesto, "The Future of #CardiovascularHealth in Ireland." Heidi spoke about her experience of Stroke at the age of 32, her recovery journey, and the importance of early detection, appropriate treatment and the urgency needed in implementing a Cardiovascular Health Plan. Croรญ and its patient network, Heart and Stroke Voice Ireland, have called for the urgent implementation of a national strategy to tackle cardiovascular health. This call to action follows an extensive cross-community consultation, highlighting the need for immediate and comprehensive measures. Please visit croi.ie/manifesto to view the full document. #ManifestoForChange #PatientPower #HeartStrokeVoiceIreland #PatientAdvocacy #CarerVoice

4/24/2024, 3:50:27 PM

PSA testing! What are your thoughts? โ  โ  Come connect with the community about this hot topic; follow the Linkin Bio!

4/24/2024, 12:25:16 AM

Because of treatment, she canโ€™t go to school, no family visits, we canโ€™t do activities with others, she canโ€™t play with other kids, and no traveling.โ  โ  When she started treatment, the arts & crafts were her escape materials to enjoy her time at the hospital or home. She started building her first LEGO during her first month at the hospital, by then she was able to build advanced levels of LEGO for adults and now she has a big collection!โ  โ  โ  Hope session by @sherrycomella_photography

4/23/2024, 6:01:35 PM

Thank you to @thomashynesgranard, Patient Advocate and Former Operation Transformation Leader, for sharing your story and being a #PatientVoice at the launch of Croรญ's new policy manifesto, "The Future of #CardiovascularHealth in Ireland." Thomas also contributed to the community consultation roundtable event in which this manifesto was developed. @croiheartstroke and its patient network, Heart and Stroke Voice Ireland, have called for the urgent implementation of a national strategy to tackle cardiovascular health following this cross-community consultation. Please visit croi.ie/manifesto to view the full document. #ManifestoForChange #PatientPower #HeartStrokeVoiceIreland #PatientAdvocacy #CarerVoice

4/22/2024, 4:17:33 PM

Introducing our new Meadowside App - Coming soon! ๐Ÿง‘โ€๐Ÿ’ป๐Ÿ“ฒ Stay on Track with your Fitness Journey! ๐Ÿ’ช๐Ÿผ๐Ÿƒโ€โ™‚๏ธ We are thrilled to announceย the Meadowside App is on itโ€™s way, designed to enhance your fitness experience and help you stay on track with your wellness goals. This user-friendly app is your ultimate companion for achieving your optimal physical health!ย  Whether youโ€™re a seasoned fitness enthusiast or just starting your wellness journey, the Meadowside App is here to support you and help you stay accountable, every step of the way. Some exciting features of the app include:ย  ๐Ÿƒโ€โ™‚๏ธPersonalisedย Exercise Plans: Access a wide range of individualised workout routines tailored to your fitness level and goals. From strength training, to cardio and yoga, our app offers a variety of exercises to keep you engaged and challenged. โŒ›๏ธProgress Tracking:ย Easily track your progress and monitor your achievements. Set goals, record your workouts, and track your stats to stay motivated and see your improvement over time. ๐Ÿ“šExercise Library: Explore our extensive exercise library with video instructionsย to help you learn good form and technique (without the need for weekly PT sessions). Whether youโ€™re a beginner or advanced, our app provides valuable resources to help you perform exercises correctly and safely. ๐Ÿ›œBook Online: Schedulingย appointments, has never been easier, the Meadowside app offersย a quick experience for any users on the go. For more information, contact our lovely front of house Team on 01252 449435 or book a free 15 minute consultation with one of our osteopaths and embark on your journey to a pain-free, more active life! The Meadowside Team ๐Ÿ #LondonMarathon #YouGotThis #PatientPower #MeadowsideFamily #meadowsideosteopathy #osteopathy #physiotherapy #osteopath #health #physio #physicaltherapy #massage #backpain #manualtherapy #osteopathyworks #physiotherapist #osteopathicmedicine #wellness #therapy #fitness #rehabilitation #sport #healthcheckup #healthcare #health #healthyliving #meadowsideosteopathy #checkup #osteopath #wellness #preventivehealthcare #lasertherapyclinic

4/22/2024, 12:25:00 PM

๐Ÿƒโ€โ™‚๏ธ๐Ÿ… Good luck to our Marathon Heroes! ๐Ÿ…๐Ÿƒโ€โ™€๏ธ Today is a big day for #TeamMPNVoice as five of our incredible runners take on the streets of London in the iconic marathon! A huge shout-out to Rosie G., Henry, Rachel, Rosie W., and Robyn - your determination and hard work inspire us all. Your efforts to raise awareness and funds for MPN Voice are truly commendable. Every step you take today makes a difference in the lives of those affected by myeloproliferative neoplasms. Weโ€™re all cheering for you from the sidelines (look out for Debbie along the way)! Go out there, give it your all, and remember - no matter how tough the journey, youโ€™re not running alone. Weโ€™re with you every step of the way. Thank you for your dedication, and may your miles be as rewarding as the cause youโ€™re championing. ๐Ÿงก #londonmarathon2024 #RunForACause #PatientPower #myeloproliferativeneoplasm #polycythemiavera #essentialthrombocythemia #myelofibrosis #mpnvoice #bloodcancerawareness #rarecancer #chronicillness #chronicallyawesome

4/21/2024, 5:00:21 AM

Brennan has been in chemotherapy treatment for over two years and he finished treatment in February of this year. He will be a cancer survivor!โ  โ  โ  Hope session by @littledarlingsphotography_tn

4/19/2024, 6:01:40 PM

The right fertility clinic for one person might not be the best choice for the next, because people pick their clinic based on many different reasons. Some people prioritise a lower price point, whilst others may require a more personalised approach to their care, which can increase the overall cost of treatment. Thatโ€™s why our community reviews are so helpful - they provide diverse and unique insights ๐Ÿ“. Thank you to this kind reviewer.

4/19/2024, 5:49:50 PM

Last year, we asked our GBM community about their treatment experiences. The findings were shocking... More than half of those who filled out our survey did not feel that their medical team had given them the information and education they needed to make informed decisions. The findings were so alarming that we are now conducting a comprehensive survey across the United States to identify disparities in care and contribute to improving treatment outcomes. ๐Ÿ—ž Read the full article in @Forbes at the link in our bio! #glioblastoma #glioblastomaawareness #glioblastoma4 #braincancer #cancer #GBM #GBM4 #braintumor #braincancerresearch #cancerresearch #patientpower #patientpoweredresearch #braintumor #braintumour #UK #NICE #NHS

4/19/2024, 4:55:41 PM

Share your experience with GBM care and treatment in the US. By participating in our survey, you can help us identify disparities in care and contribute to improving treatment outcomes. Survey LINK IN BIO! Survey Link: https://bit.ly/OBBsurvey Shares are appreciated โค๏ธ

4/17/2024, 9:19:05 PM

Amid boundless uncertainty, DJ has plans for tomorrow, for 10 days from now, for next month, next year; for 10 years from now. Because living a โ€œnormalโ€ life makes him want to keep living a normal life. He hears โ€œlive like youโ€™re diagnosedโ€, and responds, โ€œlive like youโ€™re living.โ€ Read the full article at the link in our bio! #glioblastoma #glioblastomaawareness #glioblastoma4 #braincancer #cancer #GBM #GBM4 #braintumor #braincancerresearch #cancerresearch #patientpower #patientpoweredresearch

4/17/2024, 5:20:40 PM

Some people experience mild pain and discomfort. Others find the procedures to be more painful. Research suggests that those with lower prostate-specific antigen (PSA) scores experience more pain during a biopsy. โ  โ  Read more with the Linkin Bio!

4/17/2024, 12:15:11 AM

A recent example of an amazing patient panel - hearing lived experience regarding CLL and SCI (spinal cord injury) ๐Ÿคฉ โ€ข โ€ข โ€ข โ€ข #patientadvocacy #CLL #sci #spinalcordinjury #patientpower

4/16/2024, 10:56:45 PM

Tyler is strong, a literal angel! He is my Christmas baby and the best present Iโ€™ve ever received. Heโ€™s courageous and sweet.โ  โ  Tyler was diagnosed with ganglioglioma on 2/26/2020. Before diagnosis, he had unusual eye movements.โ  He has had chemotherapy, surgery, targeted therapy, EKG, and EEGS. Weโ€™re limited on travel based on how much oxygen he needs. He uses oxygen 24:7 and is currently bipap most of the day.โ  โ  Tyler has younger siblings and his sister is realizing he canโ€™t play like her cousins can. His dad and I live in worry, but it changed us positively too, weโ€™re happy to have spent and continue to spend every day with Tyler. heโ€™s amazing!โ  โ  Hope session by @oliveandgracephoto

4/16/2024, 6:01:32 PM

Stay empowered! โœจ๐Ÿš€ Orthopedic care embraces 3D printing for personalized joint solutions! ๐Ÿ’ก๐Ÿฉบ Explore the possibilities and stay informed on your orthopedic journey with advanced technology! ๐Ÿ” Dr. Vikrant Khanna is not just a doctor; he's your partner in orthopedic wellness. Book your appointment for personalized care. ๐Ÿ“žCall +91 9899225244 #DrVikrantKhanna #OrthoCare #HealthTech #3DPrintOrtho #PersonalizedJoints #OrthoWellness #OrthoExpert #MedInnovation #PatientPower #OrthoJourney #EmpowerHealth #OrthoTech #OrthoSpecialist #OrthoConsult #AdvancedOrtho

4/12/2024, 7:38:17 AM

Thank you Aetna and Cigna patients! So many of you called your insurance company to report your frustration at losing your pediatrician because of Aetna and Cignaโ€™s low payments, that *both* companies have now started negotiating to prevent Gallagher Pediatrics from dropping their plans. Well done. Weโ€™ll have an answer on this issue by June 2024. Families in this country are charged too much for insurance and in obtuse ways for access to primary care doctors who are underpaid and so trying to see too many patients just to keep the lights on. Yet you have more power than you realize!

4/11/2024, 3:56:11 PM

Dennis shares how important PSA testing has been for him in his cancer journey. โ  โ  Share about your PSA experience by following the Linkin Bio!

4/10/2024, 8:10:14 PM

The way we are having children, and with whom, is changing. Since 2000, advancements in fertility treatments and changing social attitudes towards parenthood has facilitated an almost 9-fold increase in people having children independently ๐Ÿ“ˆ๐Ÿงก We would love to hear from people who have gone down this route of parenthood, your reasons why and your experience so far! Send us a email at [email protected] โ˜Ž๏ธ

4/9/2024, 11:19:44 AM

Prostate cancer patients and the power of their collective voices took center stage at Europeโ€™s biggest urological event. This morning, we stood with our partners at @pfizerinc and dukehealth to accept an award from the European Association of Urology! The honor was based on a collaborative survey of more than 900 prostate cancer patients who provided valuable insights for improving patient care. We share this award with all of you! ๐Ÿฅ๐Ÿ’ฌ๐Ÿ“š #ZEROProstateCancer #PatientPower #ProstateCancerAwareness #EAU24 #Healthcare

4/6/2024, 1:05:14 AM

Season 3 of The Allo Podcast will be here before you know it and it is packed full of patient stories, provider interviews, vital information on alloimmunization and HDFN, and best of all, HOPE for those affected by this condition. We'll also include some fun stuff like what to pack in your hospital bag and parenting cฬดhฬดaฬดoฬดsฬด advice from Molly and Bethany. For families who have experienced alloimmunization/HDFN, we need your help! We would love to share your story on The Allo Podcast. Stay tuned to find out more details on how to share your story. #AlloHope #AlloPodcast #HDFN #MaternalAlloimmunization #Rhincompatibility #hemolyticanemia #antibodiesinpregnancy #hemolyticdisease #alloimmunization #antibodies #highriskpregnancy #Rhdisease #PatientStories #patientpower #raredisease #maternalantibodies #AlloPodcast3

4/5/2024, 7:23:40 PM

Fertility Mapperโ€™s review of the week from @londonwomensclinic Cardiff clinic! Fertility treatment isnโ€™t successful for everyone. Many people will go through multiple rounds before having a child. People deserve to feel supported by their clinic whatever their treatment outcome ๐Ÿงก

4/5/2024, 5:54:49 PM

#PatientPower means living a "normal" life with a glioblastoma (GBM) diagnosis. @djaystewart spoke with us for @forbes about how even when GBM tried to end his world, he continued on living. Read the full article at the link in our bio! #glioblastomaawareness #glioblastoma4 #gbm #gbmwarrior #braincancer #gbmsurvivor #gbmsurvivors #patientpower #terminaltotreatable #cancer #braincancerresearch #braincancersurvivor #tumor #braintumor

4/4/2024, 5:52:59 PM

There have been days when I have felt overly worn out and desperate to give up on everything. I then looked more closely at the life statement and deeply into myself. Then I saw the answer: "Never give up, never give in."โ  โ  Learn more about maintaining a strong will to live with the Linkin Bio.

4/3/2024, 8:15:10 PM

Melissa was diagnosed this year on January 20th with Leukemia, at the Emergency Room, but was later described as having High Risk Acute Myeloid Leukemia. โ  โ  Melissa donated blood at her schoolโ€™s campus before and in January it would be her second time and she was super excited since she would be earning a chord for her graduation gear. She completed the donation on a Wednesday and by Friday she got a call to immediately for to the ER because they were worried her labs came back with cancerous levels. โ  โ  Symptoms were not noticeable and the only one she could think of was being extremely tired, but she shrugged it off since she was working a lot. But once getting information on other mild symptoms she checked off a lot of them.โ  โ  She has gone through 3 rounds of harsh chemo with every cycle being around a month in-patient. However since she was considered high-risk, her only option for cure was a bone marrow transplant. Thankfully her brother was a perfect match and we have had a lot of ups and downs but weโ€™re happy that we are together as a family finally. But we have faced a lot of difficulties with me and Melissa having to give up our jobs losing a source of income and the distance to the hospital being large so gas has always been our issue.โ  โ  We were separated for months at a time but we have all been so much closer, closer than ever we donโ€™t want to miss a single second and we all love to have fun, especially with the new addition to our family, my first granddaughter, Mila.โ  โ  โ  Hope session by @joraemiphotography

4/3/2024, 6:01:31 PM

Fertility treatments are complex and multistep processes, and their variable success rates mean that people often need multiple cycles to be able to conceive. How many years did you go through treatment for? ๐Ÿค”

4/3/2024, 3:37:01 PM

Did you know you donโ€™t have to wait in a waiting room when youโ€™re in pain? With the AthenaPatient app, manage your doctor's appointments hassle-free. Schedule, check-in, and consult virtuallyโ€”all from your phone. Efficient care, at your fingertips. Download now for empowered wellness! ๐Ÿ“ฑ๐Ÿ‘ฉโ€โš•๏ธ #AthenaHealth #PatientPower #VirtualHealthcare

4/2/2024, 9:17:10 PM

April is Adenomyosis Awareness month. Not many people know about Adenomyosis, a condition that affects an estimated 1 in 10 people with wombs in the UK. Whether youโ€™re yet to be diagnosed, have been living with it for a while or youโ€™re on a complex fertility journey affected by Adenomyosis, know that youโ€™re not alone ๐Ÿ’œ

4/2/2024, 10:53:53 AM

She did it! On Sunday Emma Sue completed her Miles For Myeloma UK Challenge. Each day in March Emma Sue managed to walk 10 miles a day every day navigating busy work schedules and family commitments in rain or shine!โ  โ  We're thrilled to announce her efforts have raised ยฃ3,296 so far for Myeloma UK.โ  โ  Myeloma UK have been a great support to Emma Sue and her family in this difficult time and fund research into finding a cure. โ  โ  Please continue to support and stay tuned for Emma Sue's next challenge - swimming 50 lengths a day!โ  โ  โ  #cancer #cancersucks #multiplemyeloma #patientpower #letsfightcancer #conquerthepatientvoice #cancefight #patientwithcancer #thisiscancer #instacancer

4/2/2024, 9:55:21 AM

Thank you to everyone who participated in @kateeluevano and @katieshanahan12's blood drives this past weekend. This is what Allo Hope is all about- our community of loved ones, providers, and even strangers coming together to support and improve care for families affected by HDFN. This is what hope looks like. #AlloHope #PassionateCommunity #HDFN #MaternalAlloimmunization #DonateBlood #BloodDonation #Donorblood #redcellantibodies #OBGYN #MFM #Rhincompatibility #advocatelikeamother #AlloMom #patientpower #AntiKell #AntiE #AntiD #AntiC #hdfnawareness #hemolyticanemia #antibodiesinpregnancy #hemolyticdisease #antibodies #alloimmunization #highriskpregnancy

4/1/2024, 7:44:45 PM

Juliana is more than cancer. Sheโ€™s incredibly smart (way wiser beyond her years), kind, and strong. We are so proud to be her parents.โ  โ  โ  Hope session by @noemibinagatanphotography

3/29/2024, 5:01:35 PM

In the UK 1 in 10 women have Endometriosis, a condition that can affect your ability to conceive. So itโ€™s not surprising that 1 in 10 of our community also told us that they have Endometriosis. We know that every fertility journey is unique, and that conditions such as endometriosis will impact the type of care you need, and the experience you have in a clinic. Thatโ€™s why our community tags their reviews with underlying conditions such as Endometriosis, to help you understand what a clinic experience might be like for you specifically - informed by people who walked a similar path. A big shoutout to everyone so far who has left a review and shared their diagnosis - it will help so many people to find the right clinic for them ๐Ÿงก

3/29/2024, 3:11:36 PM

Emma Sue only has a few days left of her challenge! Please do keep donating โค๏ธ๐Ÿ™ Myeloma is a rare form of cancer affecting the bone marrow and blood. There are often no symptoms. Emma Sueโ€™s husband is one of 24,000 people living my with myeloma in the UK. In this time, @myelomauk have been a great support to Emma Sue and her family. To show her appreciation and to fund research to finding a cure, Emma Sue is trying to raise ยฃ10,000 for the charity. She is walking 10 miles each day in March and is near the end so please help us with this final push! #cancer #cancersucks #multiplemyeloma #patientpower #letsfightcancer #conquerthepatientvoice #marathon #cancefight #patientwithcancer #running #thisiscancer

3/28/2024, 2:49:41 PM

Emma Sue is into her final week of her Miles for Myeloma challenge โค๏ธ๐Ÿ‘Ÿ๐Ÿƒโ  โ  Emma Sueโ€™s husband Nick was diagnosed with Myeloma at the end of last year. Myeloma UK have since been a great support to the family and fund research into finding a cure for the blood cancer. โ  โ  Emma Sue has been walking 10 miles each day throughout March battling the weather to raise donations. This month is particularly busy for 7 Skills For the Future and Emma Sue is preparing for training videos to be filmed in San Fransico in April on top of her family commitments. โ  โ  Please do keep donating, it is a big motivator. Tap the link in bioโ  โ  โ  #cancer #cancersucks #multiplemyeloma #patientpower #letsfightcancer #conquerthepatientvoice #marathon #cancefight #patientwithcancer #running #thisiscancer

3/27/2024, 12:09:54 PM

Have you considered talking to AI about your cancer? โ  โ  Bobby has, and he shares his conversations and thoughts with the community! Follow the LinkIn Bio for more.

3/26/2024, 11:15:11 PM

Patient Power Tip: To expedite reimbursement for motor vehicle accident medical expenses, keep detailed records of all medical-related expenses. From hospital bills to therapy sessions, meticulous documentation is key. At MatchRite Careโ„ข, we're here to support you through the process. Learn how we can help by visiting the link in bio. #PatientPower #MedicalExpenses #PatientTips #PatientPortal #KnowYourPortal

3/26/2024, 3:57:48 PM

Thank you to this honest reviewer at @bournhallfertilityuk Cambridge clinic, talking about their experience as an NHS-funded patient ๐Ÿงก

3/26/2024, 10:19:25 AM

Today, let's celebrate the quiet strength of patience. You have the vision of who you want to become, and the unwavering belief that it will happen. That's the magic ingredient, the X factor that fuels your journey. So trust the process, and believe in the extraordinary you that's waiting to blossom. Take a moment to connect with us. ๐—ต๐˜๐˜๐—ฝ๐˜€://๐˜€๐˜๐—ฎ๐—ฟ๐˜‡๐—ฝ๐˜€๐˜†๐—ฐ๐—ต๐—ถ๐—ฐ๐˜€.๐—ฐ๐—ผ๐—บ Signup for our monthly newsletter to WIN a FREE tarot reading: ๐—ต๐˜๐˜๐—ฝ๐˜€://๐—น๐—ฝ.๐—ฐ๐—ผ๐—ป๐˜€๐˜๐—ฎ๐—ป๐˜๐—ฐ๐—ผ๐—ป๐˜๐—ฎ๐—ฐ๐˜๐—ฝ๐—ฎ๐—ด๐—ฒ๐˜€.๐—ฐ๐—ผ๐—บ/๐˜€๐˜‚/๐—ต๐—จ๐—น๐—˜๐Ÿฌ๐—ซ๐—–/๐˜€๐—ฝ๐—ฟ๐—ถ๐—ป๐—ด Tap the Link in Bio to visit our website. #PatientPower #BecomingYou #TrustTheProcess #XFactor #BloomBoldly #UnleashYourPotential #starzpsychics #psychicadvisors #psychicreadingsonline #psychicsofinstagram #onlinepsychic

3/25/2024, 11:19:09 AM

Let the wisdom of Gabor Mate, from his book โ€œWhen the Body says No- The Cost of Hidden Stressโ€ sink in deep: we hold the reins of our health destiny. It's not merely about receiving treatment, but about actively participating in our wellness journey. When we're unwell, it's essential to step into our power as active participants. Our medical system may sometimes falter in fostering this collaborative approach. Doctors may be experts, but they're not the sole authority. YOUR experience, YOUR insights, YOUR needs matter. Advocate for yourself. Speak up. Be heard. Your health journey deserves your active participation. Taking ownership of your health isn't just empoweringโ€”it's liberating. That means following through when it gets hard, creating the healthy habits, and making the chances needed to be well. It's a testament to your strength and resilience. As a united team of patient and practitioner, we can rewrite the script. ๐Ÿ“ Let's reclaim your voice and agency in your healing process. Together, let's embrace the journey toward optimal well-being. . . . #HealthEmpowerment #PatientAdvocacy #HolisticHealing #PatientFirst #NaturopathicHealth #NaturopathicDoctor #DrWendyDavisND #SaskNaturopath #CanadianNaturopath #HolisticHealth #MedicalGaslighting #PatientPower #HarmonyHealthClinic #ArtOfBeingWell #SelfHealers #GutFeelings #LifetimeOfWellness #HealthAndWellness

3/24/2024, 4:51:30 PM

๐€ ๐๐ข๐จ๐ง๐ž๐ž๐ซ๐ข๐ง๐  ๐๐š๐ซ๐ญ๐ง๐ž๐ซ๐ฌ๐ก๐ข๐ฉ ๐Ÿ๐จ๐ซ ๐๐ฎ๐›๐ฅ๐ข๐œ ๐‡๐ž๐š๐ฅ๐ญ๐ก The Information Systems for Health (IS4H) Bahamas initiative is targeted to address the evolving needs of modern healthcare and revolutionize the way health information is managed and shared in The Bahamas. ๐Š๐ž๐ฒ ๐…๐ž๐š๐ญ๐ฎ๐ซ๐ž๐ฌ ๐จ๐Ÿ ๐ˆ๐’๐Ÿ’๐‡ ๐๐š๐ก๐š๐ฆ๐š๐ฌ: IS4H will increase access to care through a flexible, intuitive and comprehensive online appointment scheduling system! Patients and their healthcare providers will be able to schedule and manage appointments with ease. IS4H will also increase patient access to results from laboratory, medical imaging, medical records, X-ray and other services. It will also increase the speed and security with which clinicians and providers access this data as well. The reduction in paperwork and elimination of duplication of efforts and wastage will make the healthcare system safer and more efficient. IS4H will feature an intuitive and comprehensive patient portal where patients will be able to manage all aspects of their healthcare, communicate directly with healthcare providers for non-urgent inquiries or follow-ups, securely view and manage payments for healthcare services. Tying it all together will be the electronic health record. This will be a paradigm shift in Bahamian healthcare. Implementation of an EHR system will be a quantum leap forward in ensuring the best healthcare for everyone in The Bahamas healthcare system. #IS4H #IS4HBahamas๐Ÿ‡ง๐Ÿ‡ธ #BetterHealthBahamas #PatientPower

3/22/2024, 7:40:25 PM

Hendrix was diagnosed with Wilmโ€™s Tumor in December 2021. My husband and I noticed bloating in his tummy and his belly button protruding more than normal. For a couple weeks, we didnโ€™t think much of it, until the swelling increased mainly on his right side. He had fevers on and off but we attributed the fevers to him recently starting Kindergarten and being exposed to lots of germs at school. He never complained of any pain!โ  โ  Hendrix underwent 7 days of proton radiation therapy to his abdomen and pelvic area, and 6 months of chemotherapy. He had surgery to remove the 17cm tumor from his right kidney. They removed his right kidney as well since it was too involved. He also had to get a bronchial procedure done to test the lymph nodes in his lungs, which thank God were non-cancerous. He is one year in remission and was recently declared cancer-free at his 1 year CT scan and check-up.โ  โ  The cancer diagnosis changed everything and for the better! What the enemy meant for evil, God used it for our good and we can testify to that! We are healthier now physically, mentally and spiritually. We take care of our bodies and what we put in and on them. We cherish every moment and are thankful always.โ  โ  Hendrix was so strong throughout this whole journey! You look at him now and you would never know he went through something so traumatic. He is my hero! He would get chemo and come home to play with his little brother like nothing happened!โ  โ  โ  Hope session by @t.w.gallopphotography

3/22/2024, 5:01:45 PM

Thank you @plantpurpose.life for your compassionate and supportive words about the work of the IACM Patient Council. As you quite rightly point out: it is indeed the patients who started this movement - and we must be kept front and centre at every point in the evolution of the medical cannabis industry. Check out the blog post about when Plant Purpose met the IACM Patient Council: https://plant-purpose.org/uncategorized/exploring-barcelonas-cannabis-conferences/ #wethepatients #activism #patientpower #cannabis #advocacy

3/21/2024, 3:31:21 PM

๐ŸŒบ Self-confidence is a superpower, especially when managing a chronic health condition or autoimmune disorder. Believing in yourself empowers you to advocate for your health needs and become an active participant in your wellness journey.๐Ÿ’ช๐Ÿพ You know yourself better than anyone else. Do your research and question procedures and doctors if youโ€™re uncomfortable. The Practical Patient Medical Planner can be your sidekick in this process! This planner provides tools to track your symptoms, appointments, medications, and more, giving you the confidence to speak up and ask questions.๐Ÿ“” Start your week strong by believing in yourself and taking charge of your health!๐Ÿฉบโค๏ธโ€๐Ÿฉน ๐Ÿ˜ท #chronicillness #autoimmunedisease #selfadvocacy #patientpower #PracticalPatientPlanner**

3/18/2024, 3:48:43 PM

Ethan had his routine MRI on October 18th, 2023 and he had clear scans! He had another clear scan on Jan 17, 2024! His type of cancer is very aggressive and there is a high chance of relapse, so this is amazing news!โ  โ  โ  Hope session by @ashleyshippyphotography

3/15/2024, 5:02:01 PM

Ensure your filler appointment success through preparation and knowledge. The power for incredible results lies with you, the informed patient. Educate yourself for the best outcomes. #FillerSuccess #PatientPower #PreparationIsKey

3/14/2024, 2:17:34 PM

Today Emma Sue has completed her 10 mile walk for Miles for Myeloma UK across London! โ  โ  She set off first thing this morning from Waterloo station to our session with the University of Arts staff at their Chelsea College Campus. From there we headed to Bills for a quick bite to eat before venturing to Borough Market via Buckingham Palace. โ  โ  Her next stop was Trafalgar Square before an event at The Royal Society. โ  โ  After a long busy day Emma Sue's final leg took her back to Waterloo station.โ  โ  10 miles complete! Please do keep donating to support Emma Sue's journey and raise vital money for Myeloma UK to find a cure. โ  โ  โ  #londonlife #thisislondon #uk #cancer #cancersucks #timeoutlondon #england #multiplemyeloma #visitlondon #patientpower #letsfightcancer

3/13/2024, 7:01:11 PM

Today I wear purple in remembrance of my babies. I miss you so much my little angels! In honor of the second annual World Alloimmunization and HDFN Awareness day, I wear purple! @allohopefoundation #empoweredinpurple #AlloHope #empoweredinpurple #HDFNAwarenessDay #AlloimmunizationandHDFNAwarenessDay #MaternalAlloimmunization #HDFN #advocatelikeamother #patientsupport #hope #rhdisease #redcellantibodies #rhincompatibilty #raredisease #Hope #patientpower #worldalloimmunizationandhdfnawarenessday #redcell #blood #antiD #GetYourRhogam #highriskpregnancy

3/13/2024, 6:01:32 AM

"With my newfound reflection, Iโ€™ve also compiled a list of things to consider before making a treatment decision." -Gogs โ  โ  Talk with Gogs more about decisions with the Link in Bio

3/12/2024, 11:10:27 PM

๐Ÿ‘ฉโ€๐ŸŽจCALL OUT FOR MAD ART CLUB ARTISTS!๐Ÿง‘โ€๐ŸŽจ to celebrate one year of Mad Art Club, we are organising a one night exhibition featuring work made in Mad Art Club (or started in, adapted from, work made from a chat you had there etc etc!) in the run up, we will have at least one MAC session dedicated to finishing exhibition pieces & feel free to bring your work-in-progress to any session for feedback from Mad comrades. if youโ€™d like to submit your work, please DM us a short description of the work, the name youโ€™d like to use in the exhibition, your pronouns, and an optional bio! we also need !!EXHIBITION HELPERS!! please get in touch if you can help with installation & postering!! weโ€™re so excited about this & we hope you can be a part of it!!! exhibition details ๐Ÿ—“ monday 27th may โฐ 5pm - late ๐Ÿ“the field #madartclub #cpa #campaignforpsychiatricabolition #psychabolitionnow #madliberation #madpride #madcommunity #madartist #madart #disabilityart #cripart #southlondonart #radicalart #madstudies #madpride2024 #exhibition #abolitionnow #acab #abolishpsychiatry #bethlemmuseumofthemind #patientpower

3/12/2024, 11:04:00 AM