Feeling overwhelmed by managing your health? There's an app for that (or several actually)! ๐๐ฑ Drowning in appointment reminders and struggling to keep track of medications? You're not alone. But what if there were tools to simplify healthcare and put you in control? ๐ค This blog post dives into the world of patient power apps. We'll explore a variety of apps designed to help you schedule appointments, manage medications, track symptoms, connect with doctors virtually, and access valuable health resources. ๐๐ป Ready to level up your health game? Let's find the perfect apps to empower you on your wellness journey! โก๏ธhttps://q.uick.team/MGKL
๐ซ Episode 45 is live! Join Catherine Seo, PhD, as we unveil the world of Lipoedema management. Empowerment and expert advice await! Tap into our live panel discussion and expand your wellness toolkit. ๐๏ธโจ #LymphCast #EmpowerYourHealth #LipoedemaAwareness #PatientPower #HealthPodcast #WellnessJourney #ExpertAdvice #LipoedemaManagement #TakeCharge #YourHealthYourWay #LipoedemaSupport #EmpowermentTalk #HealthEducation #InspiringHealth #ListenAndLearn
@croiheartstroke and its patient network, Heart & Stroke Voice Ireland (HSVI), were delighted to support The Irish Association of Heart Failure Nurses (IAHFN) for their #BumpUpThePump campaign during European #HeartFailure Awareness Week 2024 last week โค๏ธ. Galway Bay FM broadcaster Ollie Turner teamed up with the IAHFN to use his #PatientVoice and has gone public with his own heart health journey to raise awareness of heart failure, a common condition which will affect 1 in 5 of us in our lifetimes. If you are living with heart failure, we would love to hear from you. Share your #PatientVoice to help others, please complete the form on our website and our team will get in touch ๐ www.heartandstrokevoice.ie ๐ธ From left to right: Dr. John Barton, Consultant Cardiologist, Heart Failure Clinic, Galway University Hospitals; Ollie Turner, Galway Bay FM broadcaster; Annie Costelloe, Heart & Stroke Voice Ireland Development Lead; Emer Burke, PRO IAHFN/Advanced Nurse Practitioner (Heart Failure), Galway University Hospitals. Photo courtesy of Ray Ryan. #PatientAdvocacy #PatientPower #DetectTheUndetected #HFAwareness #HighlightHeartFailure #HeartFailure2024 #HFAW2024 #25in25
The Integrative & Personalised Medicine 2024 Congress @ipmcongress is just 4 weeks away and Iโm thrilled to announce that Iโll be presenting alongside my colleague and fellow practitioner Clare Grundel @integralnutrition.cg Join us for an insight into the ways nutrition practitioners such as ourselves are engaging #GPs and seeking collaborative ways of working to enhance patient experience and health outcomes. Weโll be presenting on day one, Whole-Person Health Conference - Thursday 6th June 2024 at 12:15. View the full programme here: https://www.ipmcongress.com/conference/2024-3-days For more about us: https://www.ipmcongress.com/speakers/claire-sambolino https://www.ipmcongress.com/speakers/clare-grundel #NutritionalTherapy #Integrativehealthcare #Nutrition #LifestyleMedicine #Collaborativewaysofworking #NHSPrimaryCare #GPEngagement #PatientPower #patientagency #ipmcongress
Josephine Anne Luevanoโs life was cut short due to HDFN that tragically went undiagnosed and untreated, depriving her of the blood transfusions she needed to survive. On June 21st we are honoring Josieโs life and raising awareness about HDFN for her first heavenly birthday with our first ever Allo Hope Blood Drive in Atlanta, Georgia. Stay tuned to find out how you can participate in the blood drive and honor Josie's legacy with us. #WeLoveYouJosie #AHFBloodDrive #AlloHope #BloodDrive #DonateBlood #alloimmunization #highriskpregnancy #hemolyticdisease #antibodiesinpregnancy #hemolyticanemia #HDFN #AntiD #hdfnawareness #rhincompatibilty #redcell #empoweringpatients #patientpower #AlloimmunizedWomen #AlloMom #raredisease #maternalantibodies #advocatelikeamother #rhdisease #blood #CompassionateCommunity #MaternalAlloimmunization #MFM #stillbirth #HOPE #redcellantibodies
Heart & Stroke Voice Ireland, as a member of @fh_europe, is supporting their first-ever #HoFHAwarenessDay today to spread awareness of #FH - #HoFH. HoFH is the rare and severe form of Familial Hypercholesterolemia (FH), a genetic lipid condition that causes high cholesterol. It is estimated that HoFH affects 1 person in 300,000 people around the world. HoFH happens when a child inherits two copies of an altered gene that causes FH, one copy from each parent. Due to its rarity, the situation of people with HoFH is often overlooked, which does not do justice to the gravity of the condition and the challenges patients with HoFH and their families face. There is an urgent need for a screening programme to allow early diagnosis, preventive treatment and improved cardiovascular health outcomes for people with #HoFh and their families. If you are aware that you have #FH - #HoFH, we would love to hear from you. Share your #PatientVoice to help others, please complete the form on our website and our team will get in touch ๐ www.heartandstrokevoice.ie #PatientAdvocacy #PatientPower #Unite4HoFH #RareDisease #UseHeart to #KnowHoFH #FindHoFH #maythe4thbewithyou
Join our list of world-class speakers for the opportunity to present at a patient advocacy workshop in 2024 and beyond! If you have expertise to lend in advocacy, marketing, social media, or something else, apply to be added to our speaker database! Link in bio. #publicspeaking #publicspeakers #speakingopportunities #keynotespeaker #patientvoice #patientadvocacy #patientpower #advocacymatters #healthadvocacy
Remember to keep stretching those necks! #gohealthclinic #osteopathy #spinalcare #painrelief #backpain #jointpain #musclespasm #muscleinjury #exercise #wellness #wellbeing #healthcare #corestrength #posture #posturalcorrection #nervepain #patientpower #patientgoals #relief #mindandbody #ligamentstretch #traction #healthyliving #orthotics #biomechanics #rehab #rehabilitation #repetitivestraininjury #RSI #recovery
Before her diagnosis, we would travel twice a year to take our kids to the ocean. Since her diagnosis, we have been home and always within proximity to the hospital in case of emergency (which has occurred many times). We finally got clearance to travel with Chana. This is the first time we are leaving our home since our daughterโs diagnosis. We would love beach photos to celebrate this occasion!โ โ โ Hope session by @darcygrafphoto
We were back at @bangor_university this week to talk about our Patient Passport Application. Anyone with a health condition can use the Patient passport. @careandrespond Thank you to @chrissubbe for inviting me back #patientadvocate #patientsafety #chdawareness #cardiology #longtermhealthconditions #mitralvalvereplacement #openheartsurgery #atrialseptaldefect #atrialfibrillation #advocacy #autonomy #hospitalcare #patientpoweredsafety #patientpower https://www.careandrespond.com/passport/
It is Lesbian Visibility day today! We want to celebrate and amplify the voices of queer individuals and couples in the fertility community, and beyond! ๐ Thank you to the wonderful @sofieinswitzerland, @babybaileymamadrama and founder of @connectingrainbowsorg, @genajaffe, who shared their stories in this article, illuminating the path for others to follow. To read the full article visit the link in our bio! ๐
Everything has changed. Being that we spend 4 to 5 weeks living at the hospital, we donโt get to create new memories or start new traditions with our daughter. Her diagnosis has also paused us to continue to grow our family. While we should be taking the time to focus solely on her, both Dad & I still need to work to pay our regular bills & now the additional medical expenses that we never anticipated.โ โ Chemo has dimmed so much of her positive light. She used to laugh & smile all the time, but now we fight just to get a smile out of her. Adelina loves her cousins, and whenever she sees them โ she lights up and laughs at everything. She loves to climb & explore, absolutely loves the outdoors, she enjoys playing with toys that she can pull apart or build back up. More than anything, she loves water! But because of her broviac, she canโt get wet. She loves to play guitar like her dad and sing, even though we have no clue what sheโs saying.โ โ โ Hope session by @eganeyesphotography
Shoutout to our Meadowside Patients for taking their fitness above and beyond! ๐โโ๏ธ๐โโ๏ธ Massive congratulations to Sarah and Toby for conquering the London Marathon @londonmarathon last weekend! ๐ ๐๐ช Super proud of your incredible efforts. Time for some well-deserved rest and maybe a little osteopathy for those tired legs! ๐ Thinking of running a marathon? We can help, contact our lovely front of house Team on 01252 449435 or book a free 15 minute consultation with one of our osteopaths and embark on your journey to a pain-free, more active life! The Meadowside Team ๐ #LondonMarathon #YouGotThis #PatientPower #MeadowsideFamily #meadowsideosteopathy #osteopathy #physiotherapy #osteopath #health #physio #physicaltherapy #massage #backpain #manualtherapy #osteopathyworks #physiotherapist #osteopathicmedicine #wellness #therapy #fitness #rehabilitation #sport #healthcheckup #healthcare #health #healthyliving #meadowsideosteopathy #checkup #osteopath #wellness #preventivehealthcare #lasertherapyclinic #LondonMarathon #Legends
Celebrating Our Marathon Heroes Now the dust has settled on the streets of London and, hopefully, the muscles have begun to recover, we want to take a moment to reflect on the incredible journey our runners embarked upon. ๐โโ๏ธ๐โโ๏ธ Rosie G., Henry, Rachel, Rosie W., and Robyn, you crossed the finish line on Sunday, but the impact of your strides continues to resonate within the hearts of everyone at #TeamMPNVoice. Your unwavering commitment has not only raised awareness but also vital funds for those affected by myeloproliferative neoplasms. Your dedication is more than just inspirational; it's transformational. And for that, we are immensely grateful. ๐ To our supporters, especially Debbie, who cheered from the sidelines - your encouragement fueled our runners' spirits every step of the way. Let's continue championing this cause together; every step taken is towards hope and healing. If you feel inspired and want to get involved in next year's marathon or something less energetic, please drop us a line... #londonmarathon2024 #RunForACause #PatientPower #myeloproliferativeneoplasm #polycythemiavera #essentialthrombocythemia #myelofibrosis #mpnvoice #bloodcancerawareness #rarecancer #chronicillness #chronicallyawesome
Thank you to all the patient advocates who contributed to the launch of @croiheartstroke and HSVI's new policy #ManifestoForChange and the urgent call to the government to implement a national #CardiovascularHealth strategy. Photographed are patient advocates Siobhan Cunningham, Thomas Hynes, Heidi Kingston, Teresa Keogh, alongside Annie Costello, Croรญ Head of Patient & Community Engagement and HSVI Development Lead, and Dave Kelly, HSVI Chairperson and Patient Advocate. If you would like to join the HSVI alliance and share your experience to help others, please complete the form on our website and our team will get in touch ๐ www.heartandstrokevoice.ie Please visit croi.ie/manifesto to view the full document. #PatientVoice #PatientPower #HeartStrokeVoiceIreland #PatientAdvocacy #CarerVoice
Dive into the facts โ every year, navigating healthcare bills adds unnecessary complexity for patients. But that's not the full picture... Countless hours and resources are spent in confusion, often leading to financial strain and avoidable stress. We're challenging the status quo with a vision for change. At Quest MBS, we: โ Illuminate every aspect of your healthcare billing. โ Empower you with knowledge and clarity. The benefits are immediate. Patients feel confident, healthcare becomes more accessible, and the mystery of medical billing is unraveled. Remember, understanding your healthcare spending is not just about numbersโit's about taking control of your health and peace of mind! Together, let's light the way to a brighter future in healthcare spending. Take the first step towards financial innovation. ๐ Discover more at www.questmbs.com ๐ Get in touch at (732) 520-8877 ๐ง Reach out: [email protected] #questmbs #HealthcareTransparency #BillSimplicity #PatientPower #ClearBilling #EmpowermentThroughUnderstanding #NoMoreBillingSurprises #FinancialHealth #SmartHealthcareSpending #NavigatingHealthcare
Thank you to Heidi Kingston, Patient Advocate and Stroke Survivor, for sharing your story and being a #PatientVoice at the launch of @croiheartstroke's new policy manifesto, "The Future of #CardiovascularHealth in Ireland." Heidi spoke about her experience of Stroke at the age of 32, her recovery journey, and the importance of early detection, appropriate treatment and the urgency needed in implementing a Cardiovascular Health Plan. Croรญ and its patient network, Heart and Stroke Voice Ireland, have called for the urgent implementation of a national strategy to tackle cardiovascular health. This call to action follows an extensive cross-community consultation, highlighting the need for immediate and comprehensive measures. Please visit croi.ie/manifesto to view the full document. #ManifestoForChange #PatientPower #HeartStrokeVoiceIreland #PatientAdvocacy #CarerVoice
Because of treatment, she canโt go to school, no family visits, we canโt do activities with others, she canโt play with other kids, and no traveling.โ โ When she started treatment, the arts & crafts were her escape materials to enjoy her time at the hospital or home. She started building her first LEGO during her first month at the hospital, by then she was able to build advanced levels of LEGO for adults and now she has a big collection!โ โ โ Hope session by @sherrycomella_photography
Thank you to @thomashynesgranard, Patient Advocate and Former Operation Transformation Leader, for sharing your story and being a #PatientVoice at the launch of Croรญ's new policy manifesto, "The Future of #CardiovascularHealth in Ireland." Thomas also contributed to the community consultation roundtable event in which this manifesto was developed. @croiheartstroke and its patient network, Heart and Stroke Voice Ireland, have called for the urgent implementation of a national strategy to tackle cardiovascular health following this cross-community consultation. Please visit croi.ie/manifesto to view the full document. #ManifestoForChange #PatientPower #HeartStrokeVoiceIreland #PatientAdvocacy #CarerVoice
Introducing our new Meadowside App - Coming soon! ๐งโ๐ป๐ฒ Stay on Track with your Fitness Journey! ๐ช๐ผ๐โโ๏ธ We are thrilled to announceย the Meadowside App is on itโs way, designed to enhance your fitness experience and help you stay on track with your wellness goals. This user-friendly app is your ultimate companion for achieving your optimal physical health!ย Whether youโre a seasoned fitness enthusiast or just starting your wellness journey, the Meadowside App is here to support you and help you stay accountable, every step of the way. Some exciting features of the app include:ย ๐โโ๏ธPersonalisedย Exercise Plans: Access a wide range of individualised workout routines tailored to your fitness level and goals. From strength training, to cardio and yoga, our app offers a variety of exercises to keep you engaged and challenged. โ๏ธProgress Tracking:ย Easily track your progress and monitor your achievements. Set goals, record your workouts, and track your stats to stay motivated and see your improvement over time. ๐Exercise Library: Explore our extensive exercise library with video instructionsย to help you learn good form and technique (without the need for weekly PT sessions). Whether youโre a beginner or advanced, our app provides valuable resources to help you perform exercises correctly and safely. ๐Book Online: Schedulingย appointments, has never been easier, the Meadowside app offersย a quick experience for any users on the go. For more information, contact our lovely front of house Team on 01252 449435 or book a free 15 minute consultation with one of our osteopaths and embark on your journey to a pain-free, more active life! The Meadowside Team ๐ #LondonMarathon #YouGotThis #PatientPower #MeadowsideFamily #meadowsideosteopathy #osteopathy #physiotherapy #osteopath #health #physio #physicaltherapy #massage #backpain #manualtherapy #osteopathyworks #physiotherapist #osteopathicmedicine #wellness #therapy #fitness #rehabilitation #sport #healthcheckup #healthcare #health #healthyliving #meadowsideosteopathy #checkup #osteopath #wellness #preventivehealthcare #lasertherapyclinic
๐โโ๏ธ๐ Good luck to our Marathon Heroes! ๐ ๐โโ๏ธ Today is a big day for #TeamMPNVoice as five of our incredible runners take on the streets of London in the iconic marathon! A huge shout-out to Rosie G., Henry, Rachel, Rosie W., and Robyn - your determination and hard work inspire us all. Your efforts to raise awareness and funds for MPN Voice are truly commendable. Every step you take today makes a difference in the lives of those affected by myeloproliferative neoplasms. Weโre all cheering for you from the sidelines (look out for Debbie along the way)! Go out there, give it your all, and remember - no matter how tough the journey, youโre not running alone. Weโre with you every step of the way. Thank you for your dedication, and may your miles be as rewarding as the cause youโre championing. ๐งก #londonmarathon2024 #RunForACause #PatientPower #myeloproliferativeneoplasm #polycythemiavera #essentialthrombocythemia #myelofibrosis #mpnvoice #bloodcancerawareness #rarecancer #chronicillness #chronicallyawesome
The right fertility clinic for one person might not be the best choice for the next, because people pick their clinic based on many different reasons. Some people prioritise a lower price point, whilst others may require a more personalised approach to their care, which can increase the overall cost of treatment. Thatโs why our community reviews are so helpful - they provide diverse and unique insights ๐. Thank you to this kind reviewer.
Last year, we asked our GBM community about their treatment experiences. The findings were shocking... More than half of those who filled out our survey did not feel that their medical team had given them the information and education they needed to make informed decisions. The findings were so alarming that we are now conducting a comprehensive survey across the United States to identify disparities in care and contribute to improving treatment outcomes. ๐ Read the full article in @Forbes at the link in our bio! #glioblastoma #glioblastomaawareness #glioblastoma4 #braincancer #cancer #GBM #GBM4 #braintumor #braincancerresearch #cancerresearch #patientpower #patientpoweredresearch #braintumor #braintumour #UK #NICE #NHS
Amid boundless uncertainty, DJ has plans for tomorrow, for 10 days from now, for next month, next year; for 10 years from now. Because living a โnormalโ life makes him want to keep living a normal life. He hears โlive like youโre diagnosedโ, and responds, โlive like youโre living.โ Read the full article at the link in our bio! #glioblastoma #glioblastomaawareness #glioblastoma4 #braincancer #cancer #GBM #GBM4 #braintumor #braincancerresearch #cancerresearch #patientpower #patientpoweredresearch
A recent example of an amazing patient panel - hearing lived experience regarding CLL and SCI (spinal cord injury) ๐คฉ โข โข โข โข #patientadvocacy #CLL #sci #spinalcordinjury #patientpower
Tyler is strong, a literal angel! He is my Christmas baby and the best present Iโve ever received. Heโs courageous and sweet.โ โ Tyler was diagnosed with ganglioglioma on 2/26/2020. Before diagnosis, he had unusual eye movements.โ He has had chemotherapy, surgery, targeted therapy, EKG, and EEGS. Weโre limited on travel based on how much oxygen he needs. He uses oxygen 24:7 and is currently bipap most of the day.โ โ Tyler has younger siblings and his sister is realizing he canโt play like her cousins can. His dad and I live in worry, but it changed us positively too, weโre happy to have spent and continue to spend every day with Tyler. heโs amazing!โ โ Hope session by @oliveandgracephoto
Stay empowered! โจ๐ Orthopedic care embraces 3D printing for personalized joint solutions! ๐ก๐ฉบ Explore the possibilities and stay informed on your orthopedic journey with advanced technology! ๐ Dr. Vikrant Khanna is not just a doctor; he's your partner in orthopedic wellness. Book your appointment for personalized care. ๐Call +91 9899225244 #DrVikrantKhanna #OrthoCare #HealthTech #3DPrintOrtho #PersonalizedJoints #OrthoWellness #OrthoExpert #MedInnovation #PatientPower #OrthoJourney #EmpowerHealth #OrthoTech #OrthoSpecialist #OrthoConsult #AdvancedOrtho
Thank you Aetna and Cigna patients! So many of you called your insurance company to report your frustration at losing your pediatrician because of Aetna and Cignaโs low payments, that *both* companies have now started negotiating to prevent Gallagher Pediatrics from dropping their plans. Well done. Weโll have an answer on this issue by June 2024. Families in this country are charged too much for insurance and in obtuse ways for access to primary care doctors who are underpaid and so trying to see too many patients just to keep the lights on. Yet you have more power than you realize!
The way we are having children, and with whom, is changing. Since 2000, advancements in fertility treatments and changing social attitudes towards parenthood has facilitated an almost 9-fold increase in people having children independently ๐๐งก We would love to hear from people who have gone down this route of parenthood, your reasons why and your experience so far! Send us a email at [email protected] โ๏ธ
Prostate cancer patients and the power of their collective voices took center stage at Europeโs biggest urological event. This morning, we stood with our partners at @pfizerinc and dukehealth to accept an award from the European Association of Urology! The honor was based on a collaborative survey of more than 900 prostate cancer patients who provided valuable insights for improving patient care. We share this award with all of you! ๐ฅ๐ฌ๐ #ZEROProstateCancer #PatientPower #ProstateCancerAwareness #EAU24 #Healthcare
Season 3 of The Allo Podcast will be here before you know it and it is packed full of patient stories, provider interviews, vital information on alloimmunization and HDFN, and best of all, HOPE for those affected by this condition. We'll also include some fun stuff like what to pack in your hospital bag and parenting cฬดhฬดaฬดoฬดsฬด advice from Molly and Bethany. For families who have experienced alloimmunization/HDFN, we need your help! We would love to share your story on The Allo Podcast. Stay tuned to find out more details on how to share your story. #AlloHope #AlloPodcast #HDFN #MaternalAlloimmunization #Rhincompatibility #hemolyticanemia #antibodiesinpregnancy #hemolyticdisease #alloimmunization #antibodies #highriskpregnancy #Rhdisease #PatientStories #patientpower #raredisease #maternalantibodies #AlloPodcast3
Fertility Mapperโs review of the week from @londonwomensclinic Cardiff clinic! Fertility treatment isnโt successful for everyone. Many people will go through multiple rounds before having a child. People deserve to feel supported by their clinic whatever their treatment outcome ๐งก
#PatientPower means living a "normal" life with a glioblastoma (GBM) diagnosis. @djaystewart spoke with us for @forbes about how even when GBM tried to end his world, he continued on living. Read the full article at the link in our bio! #glioblastomaawareness #glioblastoma4 #gbm #gbmwarrior #braincancer #gbmsurvivor #gbmsurvivors #patientpower #terminaltotreatable #cancer #braincancerresearch #braincancersurvivor #tumor #braintumor
There have been days when I have felt overly worn out and desperate to give up on everything. I then looked more closely at the life statement and deeply into myself. Then I saw the answer: "Never give up, never give in."โ โ Learn more about maintaining a strong will to live with the Linkin Bio.
Melissa was diagnosed this year on January 20th with Leukemia, at the Emergency Room, but was later described as having High Risk Acute Myeloid Leukemia. โ โ Melissa donated blood at her schoolโs campus before and in January it would be her second time and she was super excited since she would be earning a chord for her graduation gear. She completed the donation on a Wednesday and by Friday she got a call to immediately for to the ER because they were worried her labs came back with cancerous levels. โ โ Symptoms were not noticeable and the only one she could think of was being extremely tired, but she shrugged it off since she was working a lot. But once getting information on other mild symptoms she checked off a lot of them.โ โ She has gone through 3 rounds of harsh chemo with every cycle being around a month in-patient. However since she was considered high-risk, her only option for cure was a bone marrow transplant. Thankfully her brother was a perfect match and we have had a lot of ups and downs but weโre happy that we are together as a family finally. But we have faced a lot of difficulties with me and Melissa having to give up our jobs losing a source of income and the distance to the hospital being large so gas has always been our issue.โ โ We were separated for months at a time but we have all been so much closer, closer than ever we donโt want to miss a single second and we all love to have fun, especially with the new addition to our family, my first granddaughter, Mila.โ โ โ Hope session by @joraemiphotography
Did you know you donโt have to wait in a waiting room when youโre in pain? With the AthenaPatient app, manage your doctor's appointments hassle-free. Schedule, check-in, and consult virtuallyโall from your phone. Efficient care, at your fingertips. Download now for empowered wellness! ๐ฑ๐ฉโโ๏ธ #AthenaHealth #PatientPower #VirtualHealthcare
April is Adenomyosis Awareness month. Not many people know about Adenomyosis, a condition that affects an estimated 1 in 10 people with wombs in the UK. Whether youโre yet to be diagnosed, have been living with it for a while or youโre on a complex fertility journey affected by Adenomyosis, know that youโre not alone ๐
She did it! On Sunday Emma Sue completed her Miles For Myeloma UK Challenge. Each day in March Emma Sue managed to walk 10 miles a day every day navigating busy work schedules and family commitments in rain or shine!โ โ We're thrilled to announce her efforts have raised ยฃ3,296 so far for Myeloma UK.โ โ Myeloma UK have been a great support to Emma Sue and her family in this difficult time and fund research into finding a cure. โ โ Please continue to support and stay tuned for Emma Sue's next challenge - swimming 50 lengths a day!โ โ โ #cancer #cancersucks #multiplemyeloma #patientpower #letsfightcancer #conquerthepatientvoice #cancefight #patientwithcancer #thisiscancer #instacancer
Thank you to everyone who participated in @kateeluevano and @katieshanahan12's blood drives this past weekend. This is what Allo Hope is all about- our community of loved ones, providers, and even strangers coming together to support and improve care for families affected by HDFN. This is what hope looks like. #AlloHope #PassionateCommunity #HDFN #MaternalAlloimmunization #DonateBlood #BloodDonation #Donorblood #redcellantibodies #OBGYN #MFM #Rhincompatibility #advocatelikeamother #AlloMom #patientpower #AntiKell #AntiE #AntiD #AntiC #hdfnawareness #hemolyticanemia #antibodiesinpregnancy #hemolyticdisease #antibodies #alloimmunization #highriskpregnancy
In the UK 1 in 10 women have Endometriosis, a condition that can affect your ability to conceive. So itโs not surprising that 1 in 10 of our community also told us that they have Endometriosis. We know that every fertility journey is unique, and that conditions such as endometriosis will impact the type of care you need, and the experience you have in a clinic. Thatโs why our community tags their reviews with underlying conditions such as Endometriosis, to help you understand what a clinic experience might be like for you specifically - informed by people who walked a similar path. A big shoutout to everyone so far who has left a review and shared their diagnosis - it will help so many people to find the right clinic for them ๐งก
Emma Sue only has a few days left of her challenge! Please do keep donating โค๏ธ๐ Myeloma is a rare form of cancer affecting the bone marrow and blood. There are often no symptoms. Emma Sueโs husband is one of 24,000 people living my with myeloma in the UK. In this time, @myelomauk have been a great support to Emma Sue and her family. To show her appreciation and to fund research to finding a cure, Emma Sue is trying to raise ยฃ10,000 for the charity. She is walking 10 miles each day in March and is near the end so please help us with this final push! #cancer #cancersucks #multiplemyeloma #patientpower #letsfightcancer #conquerthepatientvoice #marathon #cancefight #patientwithcancer #running #thisiscancer
Emma Sue is into her final week of her Miles for Myeloma challenge โค๏ธ๐๐โ โ Emma Sueโs husband Nick was diagnosed with Myeloma at the end of last year. Myeloma UK have since been a great support to the family and fund research into finding a cure for the blood cancer. โ โ Emma Sue has been walking 10 miles each day throughout March battling the weather to raise donations. This month is particularly busy for 7 Skills For the Future and Emma Sue is preparing for training videos to be filmed in San Fransico in April on top of her family commitments. โ โ Please do keep donating, it is a big motivator. Tap the link in bioโ โ โ #cancer #cancersucks #multiplemyeloma #patientpower #letsfightcancer #conquerthepatientvoice #marathon #cancefight #patientwithcancer #running #thisiscancer
Patient Power Tip: To expedite reimbursement for motor vehicle accident medical expenses, keep detailed records of all medical-related expenses. From hospital bills to therapy sessions, meticulous documentation is key. At MatchRite Careโข, we're here to support you through the process. Learn how we can help by visiting the link in bio. #PatientPower #MedicalExpenses #PatientTips #PatientPortal #KnowYourPortal
Today, let's celebrate the quiet strength of patience. You have the vision of who you want to become, and the unwavering belief that it will happen. That's the magic ingredient, the X factor that fuels your journey. So trust the process, and believe in the extraordinary you that's waiting to blossom. Take a moment to connect with us. ๐ต๐๐๐ฝ๐://๐๐๐ฎ๐ฟ๐๐ฝ๐๐๐ฐ๐ต๐ถ๐ฐ๐.๐ฐ๐ผ๐บ Signup for our monthly newsletter to WIN a FREE tarot reading: ๐ต๐๐๐ฝ๐://๐น๐ฝ.๐ฐ๐ผ๐ป๐๐๐ฎ๐ป๐๐ฐ๐ผ๐ป๐๐ฎ๐ฐ๐๐ฝ๐ฎ๐ด๐ฒ๐.๐ฐ๐ผ๐บ/๐๐/๐ต๐จ๐น๐๐ฌ๐ซ๐/๐๐ฝ๐ฟ๐ถ๐ป๐ด Tap the Link in Bio to visit our website. #PatientPower #BecomingYou #TrustTheProcess #XFactor #BloomBoldly #UnleashYourPotential #starzpsychics #psychicadvisors #psychicreadingsonline #psychicsofinstagram #onlinepsychic
Let the wisdom of Gabor Mate, from his book โWhen the Body says No- The Cost of Hidden Stressโ sink in deep: we hold the reins of our health destiny. It's not merely about receiving treatment, but about actively participating in our wellness journey. When we're unwell, it's essential to step into our power as active participants. Our medical system may sometimes falter in fostering this collaborative approach. Doctors may be experts, but they're not the sole authority. YOUR experience, YOUR insights, YOUR needs matter. Advocate for yourself. Speak up. Be heard. Your health journey deserves your active participation. Taking ownership of your health isn't just empoweringโit's liberating. That means following through when it gets hard, creating the healthy habits, and making the chances needed to be well. It's a testament to your strength and resilience. As a united team of patient and practitioner, we can rewrite the script. ๐ Let's reclaim your voice and agency in your healing process. Together, let's embrace the journey toward optimal well-being. . . . #HealthEmpowerment #PatientAdvocacy #HolisticHealing #PatientFirst #NaturopathicHealth #NaturopathicDoctor #DrWendyDavisND #SaskNaturopath #CanadianNaturopath #HolisticHealth #MedicalGaslighting #PatientPower #HarmonyHealthClinic #ArtOfBeingWell #SelfHealers #GutFeelings #LifetimeOfWellness #HealthAndWellness
๐ ๐๐ข๐จ๐ง๐๐๐ซ๐ข๐ง๐ ๐๐๐ซ๐ญ๐ง๐๐ซ๐ฌ๐ก๐ข๐ฉ ๐๐จ๐ซ ๐๐ฎ๐๐ฅ๐ข๐ ๐๐๐๐ฅ๐ญ๐ก The Information Systems for Health (IS4H) Bahamas initiative is targeted to address the evolving needs of modern healthcare and revolutionize the way health information is managed and shared in The Bahamas. ๐๐๐ฒ ๐ ๐๐๐ญ๐ฎ๐ซ๐๐ฌ ๐จ๐ ๐๐๐๐ ๐๐๐ก๐๐ฆ๐๐ฌ: IS4H will increase access to care through a flexible, intuitive and comprehensive online appointment scheduling system! Patients and their healthcare providers will be able to schedule and manage appointments with ease. IS4H will also increase patient access to results from laboratory, medical imaging, medical records, X-ray and other services. It will also increase the speed and security with which clinicians and providers access this data as well. The reduction in paperwork and elimination of duplication of efforts and wastage will make the healthcare system safer and more efficient. IS4H will feature an intuitive and comprehensive patient portal where patients will be able to manage all aspects of their healthcare, communicate directly with healthcare providers for non-urgent inquiries or follow-ups, securely view and manage payments for healthcare services. Tying it all together will be the electronic health record. This will be a paradigm shift in Bahamian healthcare. Implementation of an EHR system will be a quantum leap forward in ensuring the best healthcare for everyone in The Bahamas healthcare system. #IS4H #IS4HBahamas๐ง๐ธ #BetterHealthBahamas #PatientPower
Hendrix was diagnosed with Wilmโs Tumor in December 2021. My husband and I noticed bloating in his tummy and his belly button protruding more than normal. For a couple weeks, we didnโt think much of it, until the swelling increased mainly on his right side. He had fevers on and off but we attributed the fevers to him recently starting Kindergarten and being exposed to lots of germs at school. He never complained of any pain!โ โ Hendrix underwent 7 days of proton radiation therapy to his abdomen and pelvic area, and 6 months of chemotherapy. He had surgery to remove the 17cm tumor from his right kidney. They removed his right kidney as well since it was too involved. He also had to get a bronchial procedure done to test the lymph nodes in his lungs, which thank God were non-cancerous. He is one year in remission and was recently declared cancer-free at his 1 year CT scan and check-up.โ โ The cancer diagnosis changed everything and for the better! What the enemy meant for evil, God used it for our good and we can testify to that! We are healthier now physically, mentally and spiritually. We take care of our bodies and what we put in and on them. We cherish every moment and are thankful always.โ โ Hendrix was so strong throughout this whole journey! You look at him now and you would never know he went through something so traumatic. He is my hero! He would get chemo and come home to play with his little brother like nothing happened!โ โ โ Hope session by @t.w.gallopphotography
Thank you @plantpurpose.life for your compassionate and supportive words about the work of the IACM Patient Council. As you quite rightly point out: it is indeed the patients who started this movement - and we must be kept front and centre at every point in the evolution of the medical cannabis industry. Check out the blog post about when Plant Purpose met the IACM Patient Council: https://plant-purpose.org/uncategorized/exploring-barcelonas-cannabis-conferences/ #wethepatients #activism #patientpower #cannabis #advocacy
๐บ Self-confidence is a superpower, especially when managing a chronic health condition or autoimmune disorder. Believing in yourself empowers you to advocate for your health needs and become an active participant in your wellness journey.๐ช๐พ You know yourself better than anyone else. Do your research and question procedures and doctors if youโre uncomfortable. The Practical Patient Medical Planner can be your sidekick in this process! This planner provides tools to track your symptoms, appointments, medications, and more, giving you the confidence to speak up and ask questions.๐ Start your week strong by believing in yourself and taking charge of your health!๐ฉบโค๏ธโ๐ฉน ๐ท #chronicillness #autoimmunedisease #selfadvocacy #patientpower #PracticalPatientPlanner**
Ensure your filler appointment success through preparation and knowledge. The power for incredible results lies with you, the informed patient. Educate yourself for the best outcomes. #FillerSuccess #PatientPower #PreparationIsKey
Today Emma Sue has completed her 10 mile walk for Miles for Myeloma UK across London! โ โ She set off first thing this morning from Waterloo station to our session with the University of Arts staff at their Chelsea College Campus. From there we headed to Bills for a quick bite to eat before venturing to Borough Market via Buckingham Palace. โ โ Her next stop was Trafalgar Square before an event at The Royal Society. โ โ After a long busy day Emma Sue's final leg took her back to Waterloo station.โ โ 10 miles complete! Please do keep donating to support Emma Sue's journey and raise vital money for Myeloma UK to find a cure. โ โ โ #londonlife #thisislondon #uk #cancer #cancersucks #timeoutlondon #england #multiplemyeloma #visitlondon #patientpower #letsfightcancer
Today I wear purple in remembrance of my babies. I miss you so much my little angels! In honor of the second annual World Alloimmunization and HDFN Awareness day, I wear purple! @allohopefoundation #empoweredinpurple #AlloHope #empoweredinpurple #HDFNAwarenessDay #AlloimmunizationandHDFNAwarenessDay #MaternalAlloimmunization #HDFN #advocatelikeamother #patientsupport #hope #rhdisease #redcellantibodies #rhincompatibilty #raredisease #Hope #patientpower #worldalloimmunizationandhdfnawarenessday #redcell #blood #antiD #GetYourRhogam #highriskpregnancy
๐ฉโ๐จCALL OUT FOR MAD ART CLUB ARTISTS!๐งโ๐จ to celebrate one year of Mad Art Club, we are organising a one night exhibition featuring work made in Mad Art Club (or started in, adapted from, work made from a chat you had there etc etc!) in the run up, we will have at least one MAC session dedicated to finishing exhibition pieces & feel free to bring your work-in-progress to any session for feedback from Mad comrades. if youโd like to submit your work, please DM us a short description of the work, the name youโd like to use in the exhibition, your pronouns, and an optional bio! we also need !!EXHIBITION HELPERS!! please get in touch if you can help with installation & postering!! weโre so excited about this & we hope you can be a part of it!!! exhibition details ๐ monday 27th may โฐ 5pm - late ๐the field #madartclub #cpa #campaignforpsychiatricabolition #psychabolitionnow #madliberation #madpride #madcommunity #madartist #madart #disabilityart #cripart #southlondonart #radicalart #madstudies #madpride2024 #exhibition #abolitionnow #acab #abolishpsychiatry #bethlemmuseumofthemind #patientpower