$5,000 raised for MND at this years walk!!! 🙌🙌🙌 We are so grateful and overwhelmed by the support we received on the Walk to D’Feet MND!! #walktodfeetmnd #motorneuronedisease #support #fundraising #dreamteam #servicesoffice #theparkbusinesscentre #perthisok #perthlife #raiseawareness #community #perthevents #perthtodo
Step into Anamica's caregiving journey as we confront the complexities of motor neurone disease (MND). Together, we embrace the highs and lows, finding strength and solidarity in her unwavering courage and resilience. 💜 #AnamicasJourney #MNDWarrior #CaregiverCommunity #motorneuronedisease #mnd #mentalhealth #caregivers #caregiver [Caregiver, Caregivers, Dementia, Motor Neurone Disease, Mental health, Support, Love, Care, Family, Caregiveshare]
May marks a significant time for honoring Asian Heritage and raising awareness for ALS in the USA (June in Canada). 🌏 Let's come together to celebrate the rich cultural tapestry of Asian communities and support those affected by ALS. 💙 #linkinbio #AsianHeritageMonth #alsawarenessmonth #ALS #LouGehrigsDisease #icebucketchallenge #findacure #MND #motorneuronedisease #cureALS #ALSawareness #ALSaware #ALSresearch #makeALShistory
If you volunteer, consider yourself a hero. If you volunteer for ALS Double Play, you're our hero! #motivationmonday #ALS #amyotrophiclateralsclerosis #MND #motorneuronedisease #LouGehrigsDisease #ALSawareness #EndALS #cureALS #makeALShistory
This year marks 10 years since the Ice Bucket Challenge which raised a massive sum of money for ALS/ MND research and to honour the 10 year milestone since the Ice Bucket Challenge, I will be doing a Dip a Day in May for @mndscotland where every day I will dip, dunk, or throw cold water over myself to raise money for Motor Neuron Disease. Want to join me in supporting a good cause? Your contribution will make an impact, whether you donate £5 or £500. Every little bit helps. Thank you for your support. https://www.facebook.com/donate/7773570392722508/?fundraiser_source=external_url I will be posting videos so you can watch me get soaked (and frozen 🥶) at home and some places that I will stop at around Scotland. #motorneuronedisease #mnd #als #icebucketchallenge #fundraising
Dag 11, een middag naar het vissersdorpje Alvor. Een jacket potato gegeten. #alvor #Algarve #Portugal #alsawareness #ALS #reizen #wheelchairlife #fightmind #motorneuronedisease #lougehrigsdisease #remedie #rayban #disabled #jackedpotato #Resmed
Hell of a lot training taking place over the bank holiday for the ladies ⛰️ From Pilates, holiday hiking, running, long walks and gym workouts. The hours are being put in by this team, you can’t say they haven’t given it absolutely everything to be ready 💪🏻 Less than 3 weeks to go; please sponsor the team for My Name’5 Doddie Foundation https://www.justgiving.com/team/24peaks (link in bio) MND isn’t incurable; it’s underfunded! Everyone can help change this 🫶🏻
— ROB BURROW MARATHON — Next Sunday myself and Justin Howells @atgtriclub_ will be taking part in the @robburrowmndfundraiser_ Leeds Marathon. Any support with a small donation would be much appreciated. 💙🧡💙🧡 (LINK IN BIO) #motorneuronedisease #RB7 #Leeds #Marathon #hogshead
This week is National Motor Neurone Disease (MND) Week 💗 This week is dedicated to raising awareness about MND with the hope of one day finding a cure, and also to celebrate the incredibly resilient MND community. Motor Neurone Disease (MND) is a condition that impacts the nerves that communicate between the brain and your muscles. Every day in Australia, two people are diagnosed with MND and two people die from the disease. Did you know: 🔸Currently, there is no known cure for MND, but ongoing research aims to find answers. 🔸It affects men more frequently than women 🔸 MND is most common in people aged between 50 and 70 years. Let’s take time to recognise those who live with MND and the people who support, love and care for them! #planhero #planmanagement #MNDWeek #MotorNeuroneDisease #MNDAwareness #MND
The @Lego shelf is finally complete! #motorneuronedisease #disability #disabled #disabilityawareness #terminalillness #mnd #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisease #mndassociation #nevergiveup #teammnd #mnda #makeeverydaycount #MoreNeedstobeDone #EndMND #bucketlist #samandthebucketlist
Dag 10, een dag door Lagos, met diner with a view en nog een kijkje bij de rotsen Ponta da Piedade #lagos #alsawareness #ALS #reizen #wheelchairlife #fightmind #motorneuronedisease #lougehrigsdisease #remedie #rayban #disabled #Portugal #Algarve #pontadepiede #rotsen #dinerwithaview #canelloni
#mnd #missyou #takentoosoon #missyoueveryday #motorneuronedisease #mamabear #loveyoumum #wouldlovetohearyourvoice #2020 #ripmum
Dag 9 een dagje rondgewandeld in Faro, en gezellig samen met Dean en Ezzie gegeten. #Faro #alsawareness #ALS #reizen #wheelchairlife #fightmind #motorneuronedisease #lougehrigsdisease #remedie #rayban #disabled #Portugal #sameneten #rayban #herinneringenmaken
Dag 8 hebben we rond gewandeld in Portimao terwijl Dean en Ezzie een boottocht door de grotten hadden #Portimao #alsawareness #ALS #reizen #wheelchairlife #fightmind #motorneuronedisease #lougehrigsdisease #remedie #rayban #disabled #Portugal #rayban #boottocht
Op de 6e dag van mijn reis, kwamen Dean en Ezzie aan in Albufeira, daar hebben we ze opgehaald. Dag 7 gingen we naar Sagres, cape St. Vincent. #albufeira #alsawareness #ALS #reizen #wheelchairlife #fightmind #motorneuronedisease #lougehrigsdisease #remedie #rayban #disabled #Portugal #Sagres #capestvincent
Vanuit Lourdes 1 nachtje in Arcones Spanje, en door naar ons eerste verblijf in Guia, Portugal, onderweg nog wat mooie dingen gespot. In Portugal aangekomen was daar vriend Edwin met zijn gezin als ontvangst comité. #alsawareness #ALS #wheelchairlife #motorneuronedisease #fightmind #lougehrigsdisease #remedie #Arcones #Spain #Guia #Portugal #roadtrip #vrienden #lapepihouse
An old student of mine from Nottingham has recently been diagnosed with Motor Neurone Disease. Dan is a young architect, husband and dad, who is looking to make changes to support him and his young family over the coming years. . Please read his story and if possible help his gofundme. https://gofund.me/5e9bc2ce . #gofundme #motorneuronedisease
🥂🍺🐨 #mnd #mnda #motorneuronedisease #motorneuronediseaseassociation #fightmnd #teammnd #teddy #tusky #teddyandtusky #teddyandtuskyontour #tuskany #teddybear #elephant #elephants #als #amyotrophiclateralsclerosis #doddieweir #doddie #myname5doddie #perchbeerfest #theperch #perch #oxford #binsey #travel
Training underway for the @great_run later this month!🏃♂️ 10k raising money for @mndassoc 💙🧡 Please share/donate if possible!🙏 (Link to donate in story) #MND #MotorNeuroneDisease #10k #GreatRun
May is ALS Awareness month! ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. For unknown reasons, veterans are more likely to develop ALS than the general population. May this be May an opportunity for the ALS community to work together to help educate people about this devastating disease and shine a spotlight on the impact ALS has on the families it touches. #als #everymomentmatters #amyotrophiclateralsclerosis #motorneuronedisease #alsgoldenwestchapter #ElyesGabel #helpfindacure
Next up, we have ALS Warrior Ms Sabrina Anis! 😋😋😋 It has been a year since Sabrina first went public with her diagnosis, as she shared on MNDa's socials for ALS Awareness Month 2023. Today, she's still going strong and strives to help other patients by serving in the Executive Committee of MNDa! 💪🏼 #alsawareness #hopeforacure #alsawarenessmonth #endals #motorneuronedisease #alsfighter #mndasg #wehavenotime #dignitycarehope #als #alswarrior #fightals #alsawarenessmonth2024 #alsstories #awarenessmonth #alslookslikeme #alsmndwithoutborders
Exciting news! In 2023, an unprecedented record-breaking amount was raised for the MND Association. Discover how funds were spent and hear firsthand accounts from people who were positively impacted by your fundraising on our website. THANK YOU 🧡 ______________________ #mnd #als #motorneuronedisease #awareness #fundraiser #impact #fundraising #fundraisingchallenge #charity #teammnd
Limmabas ti libot ti Virgen Milagrosa ditoy balay. Immay nagpalabas ti libot ni daddy. Amin nga parokya ti probinsya ket nakilibot. Ket nakilibot met dagitay papadi. Immuna nga napasungadan ni daddy dagitay college seminarians. Maysa maysa umay da agmano ken daddy. Mapan man tay sasangitan nan ta maragsakan la unay nga immasideg da kanyana. Saggaysa met nga umay umasideg dagitay papadi nu makabatog da ditoy balay. Immay da in-bless ken inkararagan ni daddy. Agmalmalanga dagitay nakilibot nu apay nga umay dagitay papadi ditoy balay. Uray ni mayor kenni gov ket dinamag da nu sinno ta umay da as-asitgan. Maragsakan kam la unay ta makita mi nga adu ti mangay-ayat ken mangi karkararag ken daddy. Naragsak nga pinag fiesta ti Virgen Milagrosa Ilocos Norte #wherethereislovetherearemiracles #ALSawareness #motorneuronedisease #AABPrayerWarriors
Heart Of Wales 30mile Ultramarathon with @pegasusultrarunning in honour of the late Alan Attwood and my late Nan. Pushed to the very end and set a Personal best of 7:22, 1hr 23 mins faster than last year. Finally feel like I'm worthy. I'll be running the @wildhorse200 next on 22nd May and I'll set up a just giving / give send go page for @motor_neurone_disease_uk to raise awareness for MND and carry on the legacy of Alan for his family. #MND #motorneuronedisease #MNDawareness #UltraMarathon #pegasus
May is Amyotrophic Lateral Sclerosis (ALS) Awareness Month, a month where we work to increase knowledge about and support those affected by the disease. ALS is a nervous system disease that weakens muscles and impacts physical function. Although the mean survival time with ALS is two to five years, some people live five years, 10 years and sometimes longer. The exact cause is still unknown which is why it's so important to continue research. Want to learn more? Visit ALS.org #als #alsawareness #mnd #lougehrigsdisease #amyotrophiclateralsclerosis #endals #ems #cancer #paramedic #diabetes #motorneuronedisease #bls #herpes #alssucks #emt #chronic #medic #ms #ambulance #copd #language #emergency #nurse #hiv #beingglobal #hope #s #antarlintassumatera #lougehrig #ouralscommunity
Save the Date - ticket & booking information being released shortly! Morse Funeral Services, Beaconsfield supported by @careresourcebureau present an intimate evening with Star of Stage & Screen and National Treasure, Anita Harris. A unique evening in aid of Motor Neurones Disease, set in the beautiful woodland at GreenAcres Chiltern. Anita, a multimillion single selling singer, star of Talk of The Town, Carry On films, 7 Royal Command Performances, working with legends Morecambe & Wise, Tommy Cooper & Sir Cliff Richard, will delight us through song & stories of a career celebrating 65 years in showbiz. #morsefuneralservices #herewhenyourfamilyneedsours #AnitaHarris @mnda_chiltern #eveningwith #charityevent #carryonfilms #greenacreschiltern #motorneuronedisease #mnd #fundraiser #Buckinghamshire #berkshire #wooburngreen #penn #amersham #highwycombe #farnhamcommon #stokepoges #gerrardscross #hedgerley #iverheath #iver #windsor #langley #greaterlondon #denham #chalfonts #beaconsfield #beaconsfieldoldtown #knottygreen
🏀🏀🏀 A2 sized, acrylic dm for enquiries or contact @artistsagainstmnd #mnd #motorneuronedisease #painting #acrylic #chicagobulls #lalakers #kobe #jordan
Our charity plant stall is ready! It will be open today and tomorrow from 10 til 2pm. All proceeds will be donated to Motor Neurone Disease Association. I'm so so glad the sun is shining! 🌻 #charity #plantsmakemehappy #plantstall #plants #perennials #cottagegardenstyle #motorneuronedisease #inapot
Dean & Christine met with Matt & Lisa Gallagher yesterday in Birmingham. Matt was diagnosed just a month or so after Dean late last year Dean shared this message about the meeting. ‘They say the MND (motor neurone disease) community isnt one you would want to join, but when you do, you won’t find a more inspiring, humble and supportive group of people anywhere.👌 That was never more true than today when we spent a fantastic morning with Matt and Lisa from @themattgallagherfoundation , such a wonderful couple who are also doing so much for MND awareness and those suffering in the West Midlands. Thank you for your time and advice and we look forward to seeing you again soon and thank you for the auction prize too 🙏🧡💙’ #MND #motorneuronedisease #community #TeamMND
Howum 30mile ultramarathon today, it's been a heavy week but I wouldn't miss this for the world. Haven't had time to set up a page yet but this is another race in Memory of Alan Attwood who died of Motor neurone disease recently while he was a patient of mine at Derby ITU. #MND #pegasusultrarunning #motorneuronedisease #howum
Diagnosed with MND at just 41 years old, Merissa immediately set out to create a chest-full of memories and letters for her daughter, Tori. Her goal? To make her presence felt at every key milestone. Sadly, she passed from MND four years later. Her legacy is one of immense love and care. It's also a powerful testament to the strength of those diagnosed with this devastating disease. Our mission is a future without the Beast, and that takes research. Join the fight by grabbing your Beanie in four days' time from Coles, Bunnings, selected Coles Express stores or online from May 8. 💙 #FightMND #MNDAwareness #MotorNeuroneDisease
Op bezoek bij Bernadette #lourdes #alsawareness #ALS #reizen #wheelchairlife #fightmind #motorneuronedisease #lougehrigsdisease #remedie #rayban #disabled #france
They say the MND (motor neurone disease) community isnt one you would want to join, but when you do, you won’t find a more inspiring, humble and supportive group of people anywhere.👌 That’s was never more true than today when we spent a fantastic morning with Matt and Lisa from The Matt Gallagher Foundation , such a wonderful couple who are also doing so much for MND awareness and those suffering in the West Midlands. Thank you for time and advice and we look forward to seeing you again soon and thank you for the auction prize too 🙏🧡💙 #MND #motorneuronedisease #community #TeamMND
Last weekend Kayleigh, Ashley and Kieran got just a little bit muddy when they smashed the 5k Wolf Run! The team took on the challenge in memory of Kayleigh's Mom, Dawn, who had MND. "Mom was my world and losing her was hard for all the family. She was the glue that kept us all together. She was very determined to raise money and awareness for MND, so we try our best to continue what she started." They raised over £500 for her Tribute Fund 💙 ______________________ #mnd #als #motorneuronedisease #awareness #fundraisers #charity #mndhero #wolfrun #tributefund #teamwork #challenge #fundraising #fundraisingchallenge #tcs #teammnd
We made a cheque presentation of the final amount raised from #100konknocknarea of €53,563 to Fidelma Rutledge from @imnda this morning. She assured us that this fantastic amount will make a big difference to those living with MND. Many thanks to the 755 people and groups who so generously donated to our fundraising drive. #sligo #motorneuronedisease
Our Beacon Youth Committee have been busy planning different ways they want to give back to their local community! 💪 Next up, they have decided to embark on a sponsored walk across the Lickey Hills to raise money for @mndassoc! Together, they have chosen this organisation as two of the young people who attend the group have lost a family member to the disease and wanted to give back and support other families affected by Motor Neurone Disease. 🤗 We would love for you to show your support by donating if you can ➡️ https://buff.ly/4ds8UQH (The link to donate is also in our bio!) #youthgroup #youthengagement #ymcaworcestershire #ymcaworcestershireyouthengagement #ymcaworcsye #youthwork #worcestershire #rubery #beaconchurch #beaconyouthcouncil #beaconyouthcommittee #sponsoredwalk #motorneuronedisease #motorneuronediseaseassociation #worcestershirehour
Jonathan Hogan is running the Regeneron Great Limerick Run 2024 in aid of Milford Care Centre. Milford have been a significant source of comfort to the Hogan family firstly in helping to care for their mother Phil during her long illness before she passed away November 2021. Since then Siobhan Hogan was diagnosed 1 year later with Motor Neurone Disease and she is in their hospice facility currently being cared for. 🙏❤️ Please support Jonathan in his fundraising at: eventmaster.ie/fundraising/pages/RG53504266 #limerick #limerickcity #lovelimerick #ilovelimerick #limerickandproud #greatlimerickrun #motorneuronedisease
Spending a few much needed days with my Dad this week. So things have been quiet on here and that’s because unfortunately my Dad hasn’t been very well. Anyone who knows me will know I am a Daddy’s girl and it was a shock to find out that whilst I myself was having major surgery giving birth to Ieuan, my Dad found out he had skin cancer and needed urgent surgery. We are still waiting for biopsy results and recently he also had to have major surgery on top of this. Many will know when I had my first son, my Dad found out only a few days before he tested gene positive. Cian’s birth also was very traumatic and my parents made the decision to not tell me until a few months after. So to hear my Dad’s cancer news resurfaced a lot of past trauma and panic that I needed to process and accept. Acceptance when it comes to our own and our family’s health can be very difficult, especially a diagnosis. There is never a set time or date you have to recover from that news and move on. Like grief, it will hit you at very different and sometimes random moments and putting yourself first and being kind is key. I wanted to post this not to explain but to highlight that life happens and often we can feel we need to put on a brave face. That isn’t always possible but what’s important is knowing in the darkest of moments, you are never truly alone. Thanks for sticking around and as always for the love and support. Feels so good to be back 🫶🏻💚💕 . . . . #youmeandhd #morethanafaultygene #youandhdstories #huntingtonsdisease #huntingtonsdiseaseawareness #cureHD #LetsTalkAboutHD #LetsTalkHuntingtons #HDSAFamily #HDA #raredisease #huntingtons #motorneuronedisease #dementia #alzheimers #endalz #parkinsons #neurodegenerativedisease #neurodegenerative #family #cancersucks #skincancer #cancer #DNA #journey #huntingtonsinthefamily #genetics
Probably the most powerful thing I've heard since being diagnosed 😳🖤❤️ I've said it so many times in my head since hearing it and everyday it has a different meaning. #MNDEFIANCE #MotorNeuroneDisease #awareness #powerful #positivity #als #alswarrior #nevergiveup #MNDAwareness #disability #disabilityawareness
Lets kickstart ALS Awareness Month with ALS Warrior Ms Cindy Tay! 🤩 Before ALS, Cindy was working as a Senior Director of Product Services. She was diagnosed in 2019 and joined us in 2023. Despite the loss of movement in her limbs and her reliance on her eyegaze device to communicate, she fights on, even travels to other countries 🤯, and keeps herself involved in the community. More often than not, you'll see her at our gatherings and events! She's definitely an inspiration and a reminder to live life to the fullest 🙌🏼 #alsawareness #hopeforacure #alsawarenessmonth #endals #motorneuronedisease #alsfighter #mndasg #wehavenotime #dignitycarehope #als #alswarrior #fightals #alsawarenessmonth2024 #alsstories #awarenessmonth #alslookslikeme
Thank you @trudi.laws for making us this very special @myname5doddie mascot for the 24 Peaks in 24 Hours challenge. Trudi very cleverly made this out of a Myname5doddie headband which her husband Jerry had from the men’s challenge last year. 🚲 The team will do their best to get a photo on all 24 peaks 📸 Jerry and Trudi have been so supportive throughout the preparation of this challenge as avid hikers in the Lake District they have been able to provide lots of advice and assistance to the team. Thank you guys 💙🥁
Reaching individuals and families who are battling MND/ALS is always the goal - to make them feel less alone. When Dad was diagnosed, my sister was 16 and I was 20. We were studying full time and let me tell you watching my online seminars in a hospice every week was no joke. Becoming a carer at any age is daunting. Crossing those boundaries and having to do a lot of the medical aspects of it means you alter your relationship with the person who is poorly. It’s invasive and can often be extremely uncomfortable for everyone involved. I was always told to rememberer that I am my dads child before anything else. I’d often revert back to my childhood ways and sense of humour to make him laugh in those serious moments of caring for him in ways I never thought I’d have to. If anyone is caring for a loved one and needs support, please reach out. There are so many people and resources available for you. 🤍☁️🕊️ #podcast #mentalhealth #mnd #motorneuronedisease #als #grief #parentloss
Sam has just received this certificate and letter from SITraN for March's fundraising #SITRaN #motorneuronedisease #sams11in11
As we age, our bodies undergo natural changes that can affect our physical abilities and communication. For individuals with Motor Neurone Disease (MND), also known as amyotrophic lateral sclerosis (ALS), these changes can be profound and life-altering. At Kapaya Care, we understand the unique challenges that come with MND and are committed to providing specialized care that supports individuals and their families every step of the way. Effective MND care includes: 👩⚕️ Multidisciplinary teams 🔬 Access to latest treatments 🛠️ Assistive technologies 🤝 Supportive services 🔄 Coordinated care among providers Explore specialised care options in your area. With the right support, individuals can maintain dignity, adapt, and thrive. 💙 #MotorNeuroneDisease #ALS #ChronicCare #KapayaCare
This month is our month. A month that we join together with those affected by Huntingtons Disease. Whether you are new to the community or have always known your family history, someone who is gene positive, tested negative or living at risk or in hope, yes we are connected by a faulty gene, but that does not define us. What defines us the words and actions we use to raise awareness, educate others and fight for a cure. This community is one that welcomed me with open arms back in 2019 and even 5 years on its still holds me together on the worse days and celebrates with me on my best days. To everyone I want to say make this month like everyday count, use your voice and pave the way for change. Every single one of you has a story and whether you choose to share it or reshare others, highlight research in science or even tell a stranger about HD, this all counts to helping our community feel listened to and more importantly understood. You are all incredible! Let’s do this 💚💕 . . . #youmeandhd #morethanafaultygene #youandhdstories #huntingtonsdisease #huntingtonsdiseaseawareness #cureHD #LetsTalkAboutHD #LetsTalkHuntingtons #HDSAFamily #HDA #raredisease #huntingtons #motorneuronedisease #dementia #alzheimers #endalz #parkinsons #neurodegenerativedisease #neurodegenerative #family #health #advocator #DNA #HDSpotlight #huntingtonsinthefamily #genetics
THANK YOU @leedsrhinos for the amazing welcome and pit stop! Nothing beats a hug from Ronnie the Rhino after 55k. Incredibly special to visit the club who do so much for @mndassoc and where legends #robburrow and #kevinsinfield played. Sian and team made this day an absolute highlight of the trip. And to top the visit off, @amohsmith was star struck when her netball hero @gevamentor stopped by to wish us luck. What a day! 🧡💙🧡💙 #motorneuronedisease #mnd #mnda #charity #mndcharity #mndassociation #als #teammnd #fundraisers
We are so proud to share that our first ever charity ball is sold out! With maximum numbers of tables available taken we are blown away by the support we have received 🥰 This will be a special night and we can’t wait to share it with you 💙🧡🎉 Keep your eyes peeled for our next event which we will be launching in the coming days….👀 #motorneuronedisease #ALS #deanfoxmndfoundation #mndawareness
Tshirts for a Cause Please support this fund drive for our Dad's (Albert Ballesteros) medical and care expenses. Order your #wherethereisLOVEthereareMiracles shirt. This will be a big help. Thank you in advance and may God bless you! #ALS #motorneuronedisease #alsawareness
Think first and then swipe left for the answer ➡️😊 📚 DOWNLOAD THE FREE EBOOK - link in bio 🌟🔥 ⬇️ Follow me for high yield flashcards to smash your MRCP exams 🧠🩺 @mrcpfacts @mrcpfacts @mrcpfacts ******************************** #mrcp #mrcpuk #mrcpfacts #mrcppart1 #mrcppart2 #mrcppaces #medicalexams #foamed #osce #spinalcord #internalmedicine #acutemedicine #spinalcordinjury #multiplesclerosis #motorneuronedisease #myasthenia #myastheniagravis #medicalmemes #guillanbarresyndrome #neuropathy #criticalcare #medicalexam #plab1 #plab2 #usmle #neurology #neuroanatomy #neurons #neuron #pathophysiology
As you may no my sisters husband was diagnosed a few months ago with MND it’s a cruel disease This is awesome that Cadbury and coles are getting behind The big freeze 10 to help find a cure for MND . Get your bars of chocolate in Cole’s Kimmy 💙. #mnd #thebigfreeze #thebigfreeze10 #coles #cadbury #motorneuronedisease #fightmnd #mndaustralia
First 22 lengths of the challenge completed 🏊🏼♀️ Only 218 lengths to go all for @mndassoc 🧡💙 . . . #caragetssleeved #gastricsleeve #gastricsleevecommunitysupport #gastricsleevecommunity #gastricsleeveturkey #bariatricsurgery #bariatricsleeve #bariatriccommunity #weightlosssurgery #weightlosssurgerycommunity #weightlosssurgeryturkey #apera #aperahealthgroup #gastricsleeveweightloss #mndawareness #mndassociation #motorneuronedisease #swimmingchallenge
Access to the most accurate and relevant information is pivotal in providing the best possible care and support to families impacted by MND 💙 Each month we host a variety of online and in person sessions for people with MND, their friends and families, carers and health professionals. Here are the upcoming education and carer support sessions for May 📝 If you have any further questions or would like to register, please contact our friendly team at [email protected] or call (03) 9830 2122. Head to our website to find out more 💻 #MNDVictoria #MotorNeuroneDisease #MND
What really boils my piss (excuse my French…) is the cost of disability. Whilst for many, not only are disabilities immobilising, it financially crushes many families. Unless we are sitting on a goldmine, we have to magic money out of thin air. Dependent on the needs at the time of diagnosis, some will need to access funding sooner than others. However, as the disease progresses it ultimately means there is more reliance on seeking financial help to lessen the financial burden it places on families. I work full-time still (and aim to work for as long as my body will allow) and once I have finished my day job, it is often my evening job of working through my ever increasing amount of personal emails that take a lot of time. Applications, assessments, referrals… You name it, everything has some form of administration attached to it. That coupled with the fact that many of the services have increasing waiting times really doesn't make for a positive experience when trying to live your best life whilst you still can. I don't often have a whinge but felt it was important to show just how tiresome living with the physical illness whilst trying to swim through a sea of emails, and trying to keep a float. We aim to forward plan because the reality is that there are so many hoops to jump through, things should just be that little bit easier to access. #motorneuronedisease #disability #disabled #disabilityawareness #terminalillness #mnd #als #alsawareness #amyotrophiclateralsclerosis #lougehrigsdisease #mndassociation #nevergiveup #teammnd #mnda #makeeverydaycount #MoreNeedstobeDone #EndMND #bucketlist #samandthebucketlist
Slowly getting round to telling everyone my health update. It’s exhausting just thinking about it, let alone explaining it to everyone. Roll on the 20th May when we see the MND neurologist. #motorneuronedisease #mnd #neuropathy #neuropathyuk #neuropathylife #livingwithneuropathy #peripheralneuropathy #peripheralneuropathyuk #nervepain #nervepainuk #lifewithneuropathy #motorneuropathy #motorbeuropathyuk #livingwithmotorneuropathy #livingwithmotorneuropathyuk #neuropathysupport #footdrop #footdropuk #walkingwithfootdrop #disabled #disableduk #disability #disabilityuk
ALL4MND are aiming to raise an incredible £400,000 by the end of 2025 for @myname5doddie 2023- the boys raised £190,000 2024 - the girls are currently over £30,000 2026 - pending @myname5doddie vision - A world free of MND!! 💙 The foundation is committed to helping improve the lives of those affected by Motor Neuron Disease. Their five main pillars are: Research, Support, Awareness, Sustainability, Love,Fun & Hope. This is why it’s so important the 24 Peaks challenge raises as much money and awareness as possible for the MND community. We want & need to help 🥁 This month we finally take on the enormous challenge of 24 Peaks in 24 hours with no sleep- you know what to do; tap and share the link in the bio 🙏🏻⛰️
Pt.2 Annual Newsletter - key updates of 2023 https://tinyurl.com/Newsletter-Jan-Dec2023 #als #ALSCareAndSupport #endALS #rarediseases #motorneuronedisease #neurology #HomelCU #criticalcare #ventilatorSupport #IAMALS #pmoindia #nitiaayog #nirmalasitharaman #ministryofhealth #ministry #2023
Pt.1 Annual Newsletter - Key updates of 2023 https://tinyurl.com/Newsletter-Jan-Dec2023 #als #ALSCareAndSupport #endALS #rarediseases #motorneuronedisease #neurology #HomelCU #criticalcare #ventilatorSupport #IAMALS #pmoindia #nitiaayog #nirmalasitharaman #ministryofhealth #ministry #2023
We are delighted to announce that the grand total from our Foundation’s Ball, with additional sponsorships and donations, comes to an incredible… £328,245.21 Thank you so much for your continued support! We are going to make a real difference💙 #mndawareness #mnd #themattgallagherfoundation #motorneuronedisease #ALS
Kom Maj, du søde milde. 1 Maj. Sikke et fantastisk vejr. Helt op på 24 gr celtus. Hjulpet det ældste familiemedlem med telefonkonsultation med lægen, hvilket gik rigtig fint. Alle prøver var fine og medicinen ligeså. Hunden og jeg drog på tur til Ladning Sø. Mindes strækningen som uendelig lang og streng, da der er grusvej dertil. I dag, til min store overraskelse, var gåturen kort. Og ikke nær så besværlig og hård. Det må være alle mine gåture, som gavner min gangfunktion. At jeg får trænet terræn og forskelligt underlag. Pollen sæsonen er startet. Mærkede lidt for få dage siden med hævelser i ansigtet. I dag er det ren hø feber med konstant snue. Allergi medicinen virker ikke tilstrækkeligt idag. #naturephotography #natur #ladningsø #naturglæde #hereditaryspasticparaplegia #hereditaryspasticparaplegia #mnd #motorneuronedisease #spastiskefødder #spasitet #gangfunktion #gåturmedhunden #dagliggåtur #1forårsdag #kjoledag #1maj #førsteforårsdag #godthumør #allergi #høfeber #springtimes #pollensæson #udatgå #rapsmarker #forårsdag #sjældnediagnoser #raredisease #beautifulday #godeben #glædeihverdagen
Our CEO Aisling will be taking on #3PeaksChallenge this May in aid of the mndassoc. Inspired by our colleague Caroline who was diagnosed with #MotorNeuroneDisease in 2022. https://www.justgiving.com/page/aisling-macgregor-1704472380504 #ForTheLifeYouWant #Certitude #autismawareness #supportworkers #charity #forthelifeyouwant #autism #mentalhealth #mentalhealthawareness #learningdisability #motorneuronediseaseawareness
PODCAST DROP Link in Bio Professor Chema is a retired Scientific Researcher. He is travelling around Australia raising awareness and funds for Motor Neurone Disease Association of Victoria What a champion 😍
Spread the word 🗣️🗣️🗣️ ✨ May is ALS Awareness Month! ✨ Catch us as we share our stories and facts about ALS across our socials this month. There will be stories from warriors, caregivers and volunteers! Do read and share as these individuals have bravely and selflessly shared their experiences 💪🏼 Swipe to the end of each post to see how you can support our community! ➡️ #alsawareness #hopeforacure #alsawarenessmonth #endals #motorneuronedisease #alsfighter #mndasg #wehavenotime #dignitycarehope #als #alswarrior #fightals #alsawarenessmonth2024 #alsstories #awarenessmonth #whateverittakes
Another year to walk the walk! 😊🏃🏽♀️👟 The Park Business Centre is again very proudly sponsoring our inaugural team participating in the Walk to D’Feet MND, Sunday 5th May 2024. The Park staff along with partners and families will complete the 5.5km walk together to honour family members lost and those still suffering from this cruel disease. Together we raised a total of $7,247 last year and placed third on the donation leaderboard. We would like to be able to do the same if not better this year and we would be grateful if you could donate to our cause. You can click on the link and donate directly 👇 https://www.mndawa.asn.au/my-fundraising/2866/the-park-business-centre For those that are blessed to not have been exposed to this tragic condition...below are just some of the disturbing facts about MND. 🫶 MND is a progressive, degenerative neurological condition 🫶 MND can strike anyone of adult age 🫶 There is currently no known cure & no effective treatment 🫶 Each day in Australia two people die from MND 🫶 Each day in Australia two people are diagnosed with MND 🫶 People with MND progressively lose the use of their limbs and ability to speak, swallow and breathe, whilst their mind and senses usually remain intact 🫶 Average life expectancy is 2.5 years* 🫶 More than 2,000 people have MND in Australia of whom 60% are male and 40% are female* 🫶 Approximately 200 people are living with MND in WA 🫶 Average time from onset to confirmation of diagnosis is 10 to 18 months* 🫶 Approximately 58% of people with MND are under the age of 65* 🫶 The total cost of MND in Australia was $2.37 billion in 2015. This equates to $1.1 million per person* 🫶 For every person diagnosed with MND it is estimated that a further 14 members of their family and their friends will live with the effect of MND forever Thank you for your support! #motorneuronedisease #support #fundraising #theparkbusinesscentre #perthisok #raiseawareness #community #perthevents #perthtodo #walktodfeetmnd #fightmnd #mnd
As with the previous run of Dimple Magician: Whimsical we will be raising funds for The MND Association on the night in memory of my late Father-In-Law, Kenny. This time these gorgeous homemade chocolate truffles (flavours will vary on the night as this was just a little trial run!) in these adorable handmade playing card boxes will be on offer for a donation! Last time we made around £150.00 for the charity, let’s see if we can beat that this time!! @mndassoc @mnd_awareness_fc #MND #MotorNeuroneDisease #Magic #Magician #DimpleMagician #MagicShow #Redcar #RedcarAndCleveland #NorthEast @coathammemorialhall
‘Little Cornflower’ has just been bought by one of my lovely newsletter readers. The Cornflower is the symbol of hope for Motor Neurone Disease because of its fragile appearance but resilient nature and I will be donating all proceeds from it’s sale to @mndassoc . If you would like to hear about new paintings, exhibition and workshop dates as well as offers just for you then head over to my website and sign up for my monthly newsletter. Many thanks x
Link to episode 1 is in my bio! Thank you for all of the amazing feedback so far 🥹🤍 #podcast #mnd #motorneuronedisease #mentalhealth #grief #parentloss
Bakermobile PB! 5.6km in 33 minutes That was hard going - I couldn't quite get up all the hills so did jeffed them but managed a solid 5:14 km going downhill 😅 A good training run 💪 *(The Bakermobile weighs a total of 80kg) 🥵 #mndcangetinthesea #delichon #delichondelta #motorneuronedisease @delichonltd @vectisoton @hampshireveganrunners @veganrunnersuk # #veganrunner #veganrunners #buggyrunning #buggyrunner #thebakermobile #bakermobile @challengingmnd #challengingmnd
PODCAST DROP Link in Bio Today season 16 of MasterChef starts on 10Play. It’s such an exciting day for the Levins who are a part of our MND family. Sofia Levin is one of the new judges on Masterchef and this week Sofia joins me on the podcast.