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Story by @itspopstar 💜 don’t let the darkness of the disease block the light of all the love • • the love is there and it will guide you through even the darkest of days • • • #endalzheimers #alzheimersawareness #earlyonsetalzheimers #alzheimerssucks #alzheimercaregiver #dementia #dementiaawareness #dementiasucks #caregiver #ENDALZ #womensalzheimersmovement #alzheimercaregiversupport #youngonsetalzheimers #alzheimersstories

5/1/2024, 6:41:11 PM

Story by @posityve__ 💜 Yes, no doubt it’s horrible to see your mum loosing her capabilities she just had few months ago, few years ago... 🌱 my mum got diagnosed with Alzheimer at the age of 58. Now at the age of 65 she lives in a dementia dormitory and can hardly say a sentence. But still she is my mum; she has taught me a lot and yes, is still teaching me so many things about life! This is incredible! Today I tell you one thing: 🌱 every time when my mum sees herself in the mirror or on the cellphone she is smiling. every time my mum walks past the mirrors in her corridor and her bathroom she stops and looks at her reflection, then out of nowhere blows herself a few kisses or is dancing and clapping.... she is just incredibly happy to see herself. The same when we want to take a selfie with her 😁 🌱 Nowadays it’s very often that I look deep in my eyes and just watch the colour of my eyes. It calms me down 👀😊 🌱 How do you look in the mirror? Do you really see yourself? With love, gratefulness, acceptance, forgiveness? Or is it a judgmental look? It doesn’t matter in which situation you are, look in your mirror image and be happy. You have always yourself. You are always surrounded by yourself, so make your mirror image to your best loving buddy. When you have a good communication to yourself, it’s easier to have it to everyone else. So enjoy your day with every mirror you pass by and give yourself a kiss, a wink, a smile or even a dance. 🌱 “I’m starting with the man in the mirror, I’m asking him to change his ways...” 😉 #michaeljackson 🌱 I wish you a wonderful day💖 #spreadlove #awareness #mirrormirroronthewall #communication #with #yourself #happyweekend #positivevibes #posityvelife #peace #alzheimersstories

4/30/2024, 2:01:08 AM

Did you know that Ronald Reagan; the 40th USA president had Alzheimer’s in the last 10 years of his life ? 🙏🏻 Watch the video to know more about his story.💜 #alzheimers #alzheimersawarness #alzheimersstories #celebrities #politicians #ronaldreagan #usa #nancyregan #elderlycare #memoryloss #brainhealth #dementiaawarness #stress #stresslife #cortisol #reducerisknow #healthylifestyle #abeermemorycafe #memorycafe_dubai #memorycafe #عبير_ميموري_كافيه # ميموري_كافيه_دبي #الزهايمر #خرف #رعاية_كبار_السن #نمط_حياة_صحي #توعية #توعية_صحية #ميموري_كافيه

12/8/2023, 8:04:22 AM

“Alzheimer’s Stories: A cantata about love, memories, music and more.”   The Oratorio Society of Minnesota will present this meaningful, magnificent concert on Sunday, Nov. 19, at 3 pm at Roseville Lutheran Church.   And I couldn’t be more delighted to emcee… adding my voice, albeit only a speaking one, to this lovely orchestra and choral ensemble.   I have no doubt it will be beautiful, as we share the stories about love, memories, music and more.   Please join us… Learn more and get tickets at the link in my IG story. 💜   #AlzheimersStories #SoManyGoodbyes #Alzheimers #dementia #Caregivers #AlzheimersSupport #ENDALZ #DementiaSupport #AlzheimersFamily #DementiaFamily #AlzheimersDaughter

11/9/2023, 2:15:28 AM

“Alzheimer’s Stories: A cantata about love, memories, music and more.”   The Oratorio Society of Minnesota will present this meaningful, magnificent concert on Sunday, Nov. 19, at 3 pm at Roseville Lutheran Church.   And I couldn’t be more delighted to emcee… adding my voice, albeit only a speaking one, to this lovely orchestra and choral ensemble.   I have no doubt it will be beautiful, as we share the stories about love, memories, music and more.   Please join us… Learn more and get tickets at the link in my IG story. 💜   #AlzheimersStories #SoManyGoodbyes #Alzheimers #dementia #Caregivers #AlzheimersSupport #ENDALZ #DementiaSupport #AlzheimersFamily #DementiaFamily #AlzheimersDaughter

11/9/2023, 2:14:48 AM

Robert S. Cohen's composition "Alzheimer's Stories" is inspired by lived experiences with Alzheimer's disease. It has had a profound effect on both performers and audiences, who often claim that the piece has changed their view of the disease and their perception of how music can help Alzheimer's sufferers. Read more and listen to the song on our website. Link in bio. #dementiaspring #dementiaartsspotlight #robertscohen #alzheimersstoriesrobertcohen #AlzheimersStories #Alzheimer #caregivers

10/10/2023, 5:49:26 PM

It's the @wichitasymphonychorus's time to shine on @radiokansas TONIGHT. Sing Anything features #twitterlieder: 15 tweets in 3 acts by James Eakin III and Alzhemier's Stories by Robert S. Cohen. This concert was originally performed on May 6, 2023 in Mary Jane Teall Theater. Set your dial to 90.1 FM (Hutchinson-Wichita), 89.5 FM (Salina-Manhattan), or 90.9 FM (Great Bend-Hays) OR stream the concert online at the link in bio. #wichitasymphony #radiokansas #wichitasymphonychorus #alzheimersstories #alzheimersstoriesrobertcohen #twitterlieder #chambermusic

9/22/2023, 4:00:06 PM

I’ll be running a poetry workshop for Sutton library Poetry Festival in September, responding to the film POETRY - I’m passionate about #dementiastories #dementia #alzheimersstories #alzheimers #braindisease #cure #dementiatherapy #alzheimersawareness #missyoudad #mixeddementia #brainhealth #dementiacare #memoryloss #earlyonsetdementia #earlyonsetalzheimers @inspireculturenotts @vicky.mcclure #dementiachoir #poetry #poetrycommunity #writers

8/4/2023, 1:42:10 PM

We are thrilled to partner with the Alzheimer's Association of WNY on our upcoming "This is Our Story" concert on March 19. Get your tickets today. #thisisourstorybpc #alzheimersdisease #alzheimersstories #bpchorus

2/15/2023, 4:00:10 PM

Join us in spreading awareness and make a difference by sharing your Alzheimer's story. Visit www.voicesofad.com #AlzheimersSupport #alzadvocate #alzawareness #dementia #caregivers #earlyonsetalzheimers #curealz #endalz #VoicesofAlzheimers #agingcare #alzheimersstories

2/14/2023, 4:00:27 PM

Review - STILL ALICE by Lisa Genova. Genova self published this debut novel in 2007 and it was picked up in 2009 by Simon & Schuster. I have had a copy since it went to paperback and I just never got to it. This book was an introduction into what it is like to observe a person during the onset of Alzheimers. There has been a film version released in 2014 with a stellar cast and a strong performance by actress Julianne Moore. It illustrates the effects Alzheimers has on the person and on the relationships she holds dear. The writing is rather raw and basic and the characters are not developed much. But, it is emotional and heart wrenching to follow a rather young woman, with superior intelligence in her field, succumb to the ravages of this awful disease. It is harrowing to follow her as she mentally fights to find ways to stay connected and grounded in the memories and the people in her life even as connection slips from her on a daily basis. This story is one that affirms what it means to be truly alive and how important it is that we do not take a day, hour or even minute for granted. It illustrates the value of giving ourselves to human relationships with all their ebbs and flows and how sometimes love is the only thing that tethers us to a life we are no longer connected to. I would imagine that this would be gut wrenching and relatable to anyone who has been touched by this disease even though it just begins to detail the journey. 3 style ⭐️⭐️⭐️stars and 4 ⭐️⭐️⭐️⭐️overall for the value of lessons gleaned. Happy Life Affirming Reading All!📚❤️ #stillalicebook #fiction #fictionbooks #alzheimersbooks #alzheimersstories #fictionreads #bookstomovies #bookstofilm #bookstagrammers #bookreviewsofinstagram #bookreview #bookaddicted📚 #bookloversofinstagram #ilovebooks📚 #lovereadingbooks❤️📚 #bookstack #books

1/25/2023, 2:05:38 PM

Happy to host our 2022 AWARE Table Hosts for a pre-event get-together this evening 💜 And yes, I’m using my ALZ library for part of my table decor… nothing like reality to keep us motivated in this battle to #endalz 🙏 #togetherwecan #alzheimersstories #memoriesmatter #aware

10/12/2022, 12:01:42 AM

The Katy walk to end Alzheimers is coming up. It will be held at La Centerra on 24 September. Ceremony starts at 7:30am and walk at 8:30am. Come join me or contribute to the Alzheimers. Im not running the Houston Half this year, so I wont be hitting you up for both like in the past. Want to know why I walk? Click on link in my bio. I’m a purple flower holder and past yellow flower holder. @alztex @alzassociation #endALZ #EndAlzheimers #alzheimersAssociation #AlzheimersStories #HoustonHalfMarathon #Aramcohalfmarathon

8/22/2022, 11:28:06 PM

Grief is a tricky enemy. Never mind what you hear, there are no stages. For months you're humming along, and BAM💥, brain and heart conspire and a sudden undercurrent throws you into the depths of a deep, black ocean of pain and sadness. I never thought losing Mom would be so hard. Her 76th birthday was the last day I spent with her in this photo, just before the Covid lock down. Literally. It was March 7th. 8 mos later she died in an oh-so sterile hospital bed the following Thanksgiving. Ironic. After years of slow brain decay, in one swift week she suffered a horrible death. Covid finished what Alzheimer's had yet to take. I hated Covid. I hated how I couldn't visit her during the lock down. I hated that the hospital only allowed 30 minutes to say goodbye and I hated that l didn't have the chance to hold her hand until she passed. Most of all, I hated myself for not making a scene to demand that I stay. Mom would not have been so weak. When she died, I scoured the endless videos I possessed. Searching. But there were none of her telling me "I love you". I regretted that. Always, take those photos and videos. Always! But, alas, the heart will always remember what the mind forgets and I believe that some heart-souls are connected forever and there is just no video that would ever substitute that kind of love. Yet, in some aspects, Alzheimer's gave me the mom I didn't have as a child. The mom who would never say I love you had magically appeared with this fatal disease. Ironic. It slowly stripped away the bitter, jagged edges and revealed the softness I've always yearned for- she just didn't have the ability to show the parts that were surprisingly there. All along. I was able to be myself around her without her constant criticism and she would, in turn, affectionately say those 3 words I longed to hear. In a way, Alzheimer's was no longer the be all end all, which in retrospect is much easier to accept. Much easier. It's like drifting on calm, healing blue waters on a sunny day easier. It IS the ultimate trade off. #alzheimers #grief #alzheimersawareness #healing #alz #caregivers #iloveyou #thelongestday #alzheimersassociation #alzheimersstories

8/13/2022, 8:49:15 PM

Barnaby Bones giving notes at our sound spot session. Wine, Women, and Dementia is sounding like a real documentary! #caregivers #caregiving #caregiver #alzheimerssucks #alzheimers #dementia #alzcaregivers #alzheimersstories #dementiastories #documentary #filmmaking #indiedoc

7/8/2022, 2:45:02 AM

Our first day of sound spot! Wine, Women, and Dementia is sounding like a real documentary! #caregivers #caregiving #caregiver #alzheimerssucks #alzheimers #dementia #alzcaregivers #alzheimersstories #dementiastories #documentary #filmmaking #indiedoc

7/8/2022, 2:42:32 AM

Join me tomorrow night at No Label Brewery in Katy. $25 donation gets you an End Alz mug and filled with your favorite beverage. @nolabelbrew @alztex @alzassociation #endALZ #EndAlzheimers #alzheimersAssociation #AlzheimersStories

6/29/2022, 1:30:31 AM

June is almost over...it's been a wonderful month to promote Alzheimer's and Brain Awareness 💜 ✔️ Quilt Retreat with @quilt2endalz ✔️ The Longest Day ✔️Go Purple with @alzoklahoma ✔️ Sharing Sadie & Sam's Alzheimer's story in Book 1 I'm not giving up until we have a treatment and a cure. For now, we have hope 🙏 #endalz #quilt2endalz #thelongestday #alzheimersstories #dementia #hope #love #support #care #education #reserach #advoacy #fundraising #gifts #quiltfiction #amwriting #amquilting #amworking2endalz

6/25/2022, 1:40:56 PM

I'm often asked which scene was my favorite to write 🧐 That's a tough question to answer! I love Maree and Rhys's love story, and I had a blast writing their happily ever after ❤️ Having said that, I think my favorite parts of Book 1: Grocery Girl were the parts where Maree shows her abundance of strength without ever losing her kind and empathetic nature. She's an incredible character, and I truly enjoyed discovering her gifts and her immense capacity to love. #maree #thedavenports #book1 #grocerygirl #greenhillsseries #virginiadelesmith #wholesomeandheartfelt #sweetandclean #romance #smalltown #lovestories #quiltfiction #alzheimersstories #endalz #abam #june #gopurple #quilt2endalz #quiltpatterns #amwriting #amquiltting #amfightingtoendalz

6/12/2022, 5:29:35 AM

//_Forgetting you.... _// Here's a confession I can't confess yet    I have a disease, wherein someday I shall begin to forget all our dates   Wherein I shall forget everything we are And one bitter day I will ask, "Who are you?" You'll say I am just pulling your leg   But it will happen again and again and again You are a doctor yourself, wife O' mine   You will soon realize this horrible truth That no matter whatever you do   I will never again remember you... I was always poetic, you always miss practical,    I recall the first time we met, in your hospital Where I was supposed to recite for all your kids   After hearing my rhyme, all clapped, you did not You just rolled your eyes, but a tear fell from your eyes blue   You didn't smile but frown, yet I fell for you    The rest is history, but we were never really apart   How I was a pain in your neck, then a sweet ache in your heart Since then to our wedding day to the day you gifted me two little angels    To the day one of them went back to heaven There were moments we shed tears of death    Where I couldn't do anything for us and you I beg you to forgive me for all that, coz    I shall forget all the mistakes I did Also, I thankyou for everything you did for me   For all the happy tears and lame jokes Thankyou for loving my silly poems, & me    I ask again to forgive me, I shall forget you   I won't perhaps be there to hold your hand So when you feel like you can't take it anymore   Open the diary you still hide behind your heart's door It has all the poems I have written, for tomorrow     Where you will find me always, in every sorrow I know you won't leave, care for me as always   But, please, don't stay just for looking after me Stay as my wife, not as my doctor   Stay out of love & faith, not sympathy nor duty If I give you even a little hard time, I want you to leave me I am sorry again, I am forgetting you    But I hope you don't forget me But if you decide to, can you just remember?    To remember that I always have & shall love you... ~Varsha Tags: #poemsoftheday #poemsofindia #poemsofinstagram #writersday #alzheimersstories #poetsoul #lovestory💕 #alzhemiers

5/25/2022, 12:38:54 PM

I received this review in an email, and it brought tears to my eyes. I'm a writer, and yet I struggle to put into words how I feel when I hear that my novel brought joy to someone. Knowing that a reader felt connected to the Alzheimer's story that I weave into each novel makes it even more special. My heart breaks for every family that goes through ALZ with a loved one, and I am so glad that I can offer a friendly hand, a connection of empathy and understanding through my writing 💜 Remember friends, you are not alone! #endalz #alzheimersstories #hope #healing #love #lovestories #family #thedavenports #greenhillsseries #wholesome #heartfelt #sweetandcleanromance #book1 #grocerygirl #sadieandsam #amwriting #amquilting #authorlife #advocatelife #quiltinglife #together #letsendalz

4/19/2022, 4:00:19 PM

After 771 days, we’re back at @carnegiehall ! #alchemyofhope #carnegiehall #nationalconcerts #suffragecantata #alzheimersstories #nationalconcertchorus

4/9/2022, 1:30:09 PM

checking something else off my choral bucket list ✅ #howdoyougettocarnegiehall #practicepracticepractice #andthenpracticesomemore #alzheimersstories

4/8/2022, 12:21:47 AM

What a journey it’s been getting to today. Performing #alzheimersstories with my brothers in percussion, Steve Nyquist & Todd Miller, along with a tremendous orchestra and the Saginaw Choral Society under the direction of Jeremiah Kraniak. This piece is heavy and beautiful in all the right ways. #keepfaithsinganything 💜

3/27/2022, 9:58:36 PM

Please join us at Carnegie Hall on April 9th for Robert Cohen's ALZHEIMER'S STORIES, an epic choral work about the disease that affects more than 6 million Americans. Led by Bruce Rogers and endorsed by the Alzheimer's Association, this performance is not to be missed! #nationalconcerts #carnegiehall #alzheimersstories #ENDALZ

3/17/2022, 12:00:45 PM

Yikes!! Spring Break hit and I fell behind on my daily posts for #igquiltfest2022 😬 Let's catch up on catching up... Our #Day13 prompt was "Sewing Friends" and this is a very special one to me! Three years ago, I merged my love of all things quilt-y with my passion to create a world withOUT Alzheimer's disease to launch a 501(c)(3) nonprofit called @quilt2endalz and since then, I have been building a community of sewing friends, families touched by ALZ, and others who also hate this disease. I've had the opportunity to speak to quilt guilds across the United States, zoomed with people in Canada and the UK, and cultivated sewing friends all over the world. My Q2EA family is a tremendous source of encouragement and support for one another as well as for me 💜 #Day14 was #PiDay (3.14...remember, I am a proud number's nerd at heart 🤓) AND "Recent Finish" day for #igquiltfest 🪡 The last quilt I had loaded on Lucey (my @apqsquilting long arm machine) was Quilt #70: Christmas Ginger Snaps. It's a fabulous pattern by @quilt2endalz designer @_xoxo_clara_ that uses positive and negative space to create a very eye-catching layout. I love it in the original kit fabrics ( #ginghamgardens by @mymindseyeinc for @rileyblakedesigns), and I'm very pleased with this Christmas version in red, green, and white🎄 And for today, the prompt is "Best Tip Ever" which is an easy one for me... In the second beginner quilt class that I took back in 2008, my instructor Gloria showed me how to pin joints so that they sandwich together just right to make perfect crosshairs when sewn together. I don't always get it as precisely as I'd like, but for the most part, I am always very pleases with how my seams come together 🥰 Well, now we are caught up on catching up and learning new things about new friends while connecting quilters. See y'all tomorrow! #igquiltfest22 #connectingquilters #newfriends #behindthescenes #quitingtomentthemind #quilt2endalzpatterns #amquilting #amwriting #quiltblogger #quiltfiction #virginiadelesmith #wholesomeandheartfelt #sweetromance #quiltstories #lovestories #alzheimersstories #quiltromance #authorsofinstagram #authorlife #gettoknowme

3/16/2022, 1:16:20 AM

Good visit with Mom today after being way for a month. I’m always a little nervous after a long time apart. I never know if she’ll know me. At first she called me Polly, the name of an old friend, so I said ok. A few minutes later she called me Kathy, Bingo❣️ • • • • • • #walkingwomyn #takingcareofmom #alzheimers #alzheimersstories #dementia #sundayswithmom #vasculardementia #vasculardementiaawareness #loveyoumom #parentingparents #thisis91

3/7/2022, 1:40:39 AM

@taylorswift_as_books is such a cool platform with a super phenomenal author series! Check out this upcoming event with the resplendent @marionagnew. ✨ . . Posted @withregram • @marionagnew I’m going to be part of an awesome LIVE reading here on Instagram next month—details to come!!—so it’s time to start practicing. It’s been a while since I’ve read. But two-plus years since my book’s release, and two-plus decades since my mother died, I still audition essays to see what I can read without crying. That sounds maudlin but it feels like a good thing. I’m excited! It will be fun to share stories of my mother during Women’s History Month. ♥️ #reverberations #adaughtersmeditationsonalzheimers #amreadingpersonalessays #amreadingnonfiction #amwritingpersonalessays #amwritingnonfiction #Canadianauthors #signatureeditions #alzheimersdaughter #alzheimersawareness #alzheimer #taylorswiftasbooks #alzheimersstories #womenshistorymonth2022 #remarkablewomen #womeninmathematics #northwesternontarioauthor #readthenorth #authorreading

2/23/2022, 3:11:25 PM

I’m going to be part of an awesome LIVE reading here on Instagram next month—details to come!!—so it’s time to start practicing. It’s been a while since I’ve read. But two-plus years since my book’s release, and two-plus decades since my mother died, I still audition essays to see what I can read without crying. That sounds maudlin but it feels like a good thing. I’m excited! It will be fun to share stories of my mother during Women’s History Month. ♥️ #reverberations #adaughtersmeditationsonalzheimers #amreadingpersonalessays #amreadingnonfiction #amwritingpersonalessays #amwritingnonfiction #Canadianauthors #signatureeditions #alzheimersdaughter #alzheimersawareness #alzheimer #taylorswiftasbooks #alzheimersstories #womenshistorymonth2022 #remarkablewomen #womeninmathematics #northwesternontarioauthor #readthenorth #authorreading

2/22/2022, 9:44:46 PM

I’m ready for Sunday! Everything is in place except for physical ability and eagerness to face the weather.🥶 Want to know why I run? Click on link in my bio. I’m a purple flower holder and past yellow flower holder. @chevronHoustonMarathon @alztex @alzassociation #endALZ #EndAlzheimers #alzheimersAssociation #AlzheimersStories #HoustonHalfMarathon #Aramcohalfmarathon #runforareason

1/15/2022, 2:13:40 AM

Spent the week watching down the footage we shot during production. Thank you, Best Beth for hosting me this week and helping me plot out our tale. Now time to get a paper edit pulled together for our editor! Our dementia family caregiver stories are taking shape. Hot damn. We're making a movie. #dementia #alzheimers #caregiver #caregiving #caregiverstories #dementiaawareness #alzheimerssucks #alzheimersstories #alzsucks #makingamovie #documentary #filmmaking

12/17/2021, 9:52:56 PM

Spent the week watching down the footage we shot during production. Thank you, Best Beth for hosting me this week and helping me plot out our tale. Now time to get a paper edit pulled together for our editor! Our dementia family caregiver stories are taking shape. Hot damn. We're making a movie. #dementia #alzheimers #caregiver #caregiving #caregiverstories #dementiaawareness #alzheimerssucks #alzheimersstories #alzsucks #makingamovie #documentary #filmmaking

12/17/2021, 9:52:09 PM

This is huge news. And once again, a huge thank you to Biogen for believing in us! Posted @withregram • @usagainstalz UsA2 applauds Biogen for speeding up follow-up trials for #Aduhelm, in hopes of completing them in 2026. The company's decision comes on the heels of UsA2 applying pressure to speed up the process. Read the full statement at the link in our bio. #sponsors #takeearlyaction #memorypower #dementia #alzheimers #alzheimersfight #support #caregiver #caregiversupport #patientcare #drugtrials #newmedicine #biogen #documentary #takeaction #patientadvocate #patientcenteredcare #takeactionnow #testearly #earlytesting #alzheimersstories #alzheimersdisease

12/16/2021, 11:44:18 PM

Heading to L.A. to meet the post production team for our little documentary! This party's getting started! Wine, Women, and Dementia: Until there's a cure, there's community. Follow us on www.winewomenanddementia.com #caregiver #caregiving #dementia #dementiastories #caregiverstories #alzheimerssucks #alzheimersstories #alzheimers #documentary #makingamovie #familycaregivers @stumpedtowndementia

12/13/2021, 8:10:20 PM

After a long drought due to Covid, the Saginaw Choral Society has announced a season of goodies. Tickets are not on sale yet but put these on your calendar. It got cut off due to Instagram size limits. Ah Tempo! concert is at 7pm Friday, May 13, at the Court Street Theater. #artssaginaw #saginawchoralsociety #josephandtheamazingtechnicolordreamcoat #membersrecital #alzheimersstories #ahtempo #choralmusic #saginaw #saginawmichiganhair

12/4/2021, 12:25:18 AM

Nov. 28th, 2019. Time marches on. You passed away a year later, now 1 year ago, over the Thanksgiving weekend. You are missed. #alzheimers #alzheimerscare #alzheimersfamilies #alzheimerssucks #alzheimersawareness #alzheimersstories #alzheimerscaregiver #dementia #dementiaawareness #dementiasucks #covid #covidsucks

11/29/2021, 9:28:04 AM

A LOST FUTURE Today I was thinking about not what Rich and I have lost but the life he had with his children, Brock and Teagan. I think in some ways it is worse for them. They are adults, but young adults and started losing their dad 6 years ago. Brock was only 20, Teagan 24. They lost the connection they had with their dad. he used to do all kinds of things with them; bike rides, boat, ski, build things, joke with them. It's especially difficult for a son who was on the cusp of becoming a young man. To not have the mentor and father to talk to, work with, develop life skills with. Now the son is the caregiver helper and it's hard. I cannot imagine the loss he feels- I did not lose my dad until I was in my forties. My son lives with us. He is a rock! He does not get enough acknowledgement and he deserves it. I love you Brock and appreciate so very much that you are here with me as we walk this journey. I love you, Teagan and I am so grateful you are tender with your Dad. I know its hard for you to understand the changes but you love your Dad just the same. These memories will carry us through. Whenever you're feeling down, look at these memories and remember all he has done for us. #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #musictherapy #fightlikeawarrior #memoryloss#Dementia #Alzheimers

10/21/2021, 5:53:57 PM

I just had this random thought: I don't remember the last time Rich and I had a real meaningful conversation. It's been many years. Maybe 5-6 years. But I don't really remember what our last conversation was about. Are you still able to have conversations with your loved one with Alzheimer's? Is it meaningful? Or is it just words here and there? I miss that the most, reciprocal conversation #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #MixedDementia #DementiaTLC #DementiaSupport #DementiaWisdom

10/19/2021, 4:46:28 AM

There are no real rules on how to navigate this journey. Suggestion and support from others but NO ONE is in YOUR shoes living your life. So let that sh*t go. This is not my story, but I love it. ♥️ RUN THE DISHWASHER TWICE. When I was at one of my lowest (mental) points in life, I couldn’t get out of bed some days. I had no energy or motivation and was barely getting by. I had therapy once per week, and on this particular week I didn’t have much to ‘bring’ to the session. He asked how my week was and I really had nothing to say. “What are you struggling with?” he asked. I gestured around me and said “I dunno man. Life.” Not satisfied with my answer, he said “No, what exactly are you worried about right now? What feels overwhelming? When you go home after this session, what issue will be staring at you?” I knew the answer, but it was so ridiculous that I didn’t want to say it. I wanted to have something more substantial....(finish story in comments)

10/6/2021, 6:55:36 PM

This is about the best explanation I've ever read and mirrors the experience with my mom through the years before she passed with Covid. It's really difficult to explain what we, as family and caregivers, go through to people that don't understand: "No one can ever begin to understand the challenges of a caregiver of someone diagnosed with Alzheimer's. In the beginning you know something is not right, however, you just continue on. As this disease progresses Doctors identify it as Alzheimer's. Family is in denial and diagnose it as depression leaving the caregiver to figure it out one day at a time under great stress and guilt. You no more have a handle on it when it manifests itself to a different level. The patient becomes a victim of this disease and acts out with anger and violent outbursts directed at their caregiver. It can also evolve to actual physical danger for the caregiver. The patient is so confused yet has times of rationale which becomes less and less. Long term memory will amaze but wouldn't be able to remember what they had for breakfast. The caregiver is accused of the most outrageous things and called the most outrageous names. Must always remind yourself that this is the disease, not the person. Hard to keep that in perspective when you are the sole caregiver, however, prayer and medication will give you the strength. Pulling strength from family and friends is very important to assure you are doing everything you can to care for the patient. There will be times when you are so overwhelmed you believe you just can't go on any longer. Then you look at your loved one and think what they must be going through. Most of the mind is confused yet a portion has yet to be affected. Eventually that portion becomes confused as well. There is no perfect diagram for the progression of a Alzheimer's patient even though there are common denominators. This disease will eventually render the patient completely unable to do anything for himself/herself. As a caregiver of someone you spent the majority of your life with and love very much, you hang in there. Believing no one can take care him/her better than you. You will know when you no longer have anything

10/1/2021, 3:48:31 PM

This guy, still cracking me up 35 years long. Sun Glasses indoors while watching TV. Got in bed fully dressed with a smile. And dancing away with his AliveInside.Org headphones. He's happy. That's all I can ask for. Grateful for small blessings and looking for silver linings. #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #musictherapy #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #MixedDementia #DementiaTLCW

9/28/2021, 2:19:07 AM

Losing our step. Motor planning loss and Alzheimer's. Today was a tough day. I've noticed some significant differences in his cognitive abilities. He didn't answer to me when I called out to him multiple times. He is having great difficulty getting dressed, moving about and small tasks. When I try to guide him by physically nudging him he pulls back opposite of everything I try to do. I don't think it's on purpose. Neurologist said it's an automatic nervous system response- he can't not pull back. It just happens. But it makes it VERY difficult to help him dress, brush teeth, shower snd move about. It's not just memory loss that's difficult. This locomotor skill loss is very hard. I need to adjust my expectations but it's so hard. I keep thinking the old Rich is going to walk through the door and be all full of energy and ready to go. I keep wanting to wake up from this horrible nightmare but it's not a dream it's real and it's getting more real every day. We will keep on keeping on and look for silver linings. HeidiToyne-Rich Bonnett #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #musictherapy #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #MixedDementia #DementiaTLC

9/23/2021, 4:40:23 AM

To some it may seem obvious 👉 Alzheimer's is a disease and not a characteristic of aging 👈 but not everyone knows it! ⠀ The largest research ever conducted on dementia shows that there is still much ignorance and that it is necessary for each of us to talk more about it. ⠀ It is true that Alzheimer's disease is a condition that still has no cure and is more widely known for being a "disease of the elderly", but this is because almost all people who develop it are in this stage of life (or they discover it at that stage) which does not mean that all older adults will have Alzheimer's. ⠀ 💙 Let's talk to the professional colleague, the neighbor, and even the taxi driver or the building doorman. In the face of all the ignorance about aging, we must be prepared to say: Alzheimer's is a disease! ⠀ And it needs to be treated. And the caregiver for this person with Alzheimer's also needs care. ⠀ So, let's take advantage of this #WorldAlzheimersMonth to talk more about the subject and bring all the awareness we can to every person we reach 🙌 ⠀ ⠀ ⠀ ⠀ ⠀ ⠀ #alzheimersawarenessmonth #worldalzheimersmonth2021 #alzheimersawareness #alzheimers #alzheimersdisease #strongertogether #aging #mentalhealth #dementia #caregiver #familycaregiver #seniorcare #alzheimerssuck #endalz #alzheimersstories #alzheimerssupport #alzheimerscare #alzheimersassociation #dementia #alzheimerscaregiver

9/22/2021, 8:03:18 PM

I came upon creative rejuvenation brought upon by rearranging furniture and sweet nostalgic finds, left unused as memory faded. Thankful travel isn’t the only thing that keeps me creatively inspired. Finds like this tea pot, and a stack of books all from my grandma, she wrote her name along the fore edge of each one. Among those books I’ve stumbled upon what I think is gold… Hand written report cards of all her children as far back as secondary school. And the pictures, every photo I find more often than not is dated at the back w a little description, in my grandfathers handwriting. It makes me think about how does this parallel in a world w digital technology at its forefront. I also came upon a cake pan that I’m so excited to use, it’s got the base that separates from the sides, it’s circular and I’m guessing I can make something out of it: cake and some flowers, comes to mind. I think I don’t need a thing else to make that happen. Y’all may know living in a small studio open floor plan space its easy to get overwhelmed by clutter and being creatively energized by natural light hitting (lights are switched off during the day and at night I’m mostly use life giving romantic and cozy light seeping under and through lamp shades) negative space, lots of negative space by design preferred. So light and negative space around me, quite ironic as I’m not the neatest tool in the shed, and challenged w putting things back… but alas I’ve grown to accept myself. My shelves are spilling over w books even after doing two or three decluttering, gifting sessions over the last year and I here I am, couldn’t bare to leave behind these gems I came upon with the name in the fore edge, I’m still challenged w more books, than I ever care to have here in this modest space. But these new additions are so special they r mostly w my grandmas name on the fore edge and all the genre of calm, spirituality and peaceful reads. I wonder oh wow what a woman either she’d been all that and more or was desperately seeking all that and more. I look at the books on my book shelf and think about the ones gifted and given away already and I am certain it’s a mix of both. Continued 👇🏽…

9/17/2021, 4:11:49 PM

Entertainment-Laughs What is your loved ones favorite tv show or movie to watch? For Rich it's Christmas Vacation or Elf for movies. His favorite TV show is Impractical Jokers. He was quite the funny guy before Alz. Always pulling funny pranks on friends. Maybe that's why he enjoys these slapstick humor shows. How many times does your loved one watch the same show? His_alz_brain #silverlingings #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #DementiaTLC @thevitalsapp #thevitalsapp #vitalsawareservices #vitalsawa

9/13/2021, 1:22:24 AM

THE LONGEST DAYS Its been a long week. Hasn't been hard, never easy but its been long. Things have been progressing in terms of his symptoms. Still waiting to hear from neurologist on MRI results. Since seizures I can see he has lost more of himself to this horrible horrible disease. Unable to dress himself, bath, shave, practically almost all things he needs assistance with. Speech is lost to mumbled words and yes and no's. Celebrated his birthday and I don't think he even knew what it was about. He looks at me with those quizzical eyes. I wonder what he's thinking? I wonder what he would say if he could? I wonder what is going on in his mind? I will never know. The sad truth is there are so many things we will never get to share with one another again and I grieve that daily. HOWEVER, I will still try to find the silver linings in all we do. Everyday there is something to be grateful for. Today I am grateful for the rains that came for this first time in 6 months. The fresh air we have to breathe. Mostly, I am grateful he is still with me-it's in those eyes I see him and I can imagine what he would say if he could. Forever and Always my dear-I love you. His_alz_brain #silverlingings #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #DementiaTLC @thevitalsapp #thevitalsapp #vitalsawareservices #vitalsawa

9/10/2021, 8:02:08 PM

Special thanks to the @ALZAssociation for sharing our story with the world! In this new blog post, Braden and Hunter discuss their passion to #EndALZ and reflect on special memories of their mom Suzy who passed away on October 5, 2019. “Embrace your loved one with fresh eyes, because they aren’t the same person they were. Learn to fall in love with who they’ve become.” (Braden on advice to families facing Alzheimer’s and other dementia). Catch the full article at www.4MOM.org/Press #4MOM #ALZAssociation #AlzheimersAssociation #FightToEndALZ #AlzheimersAwareness #AlzheimersDisease #ALZ #AlzheimersStories #AlzheimersCare @bradenbishop1 @hbishop4 @thebigrandall @team_morrison2

9/10/2021, 7:39:56 PM

In today's adventures... Big appetite deserves a big breakfast Monterey Bay Aquarium visit A walk on the beach and just chilling watching the waves. A few whales off in the distance breached and sprayed-couldn't see much just the spray. More kite flyers And a big nap with the slider wide open to listen to the waves crashing outside our room. Peaceful His_alz_brain #silverlingings #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #DementiaTLC @thevitalsapp #thevitalsapp #vitalsawareservices #vitalsaware

8/31/2021, 5:49:46 AM

SOMETIMES YOU JUST NEED TO BREATHE I always get anxious getting us ready to go anywhere for and overnight. It's filled with trying to remember if I have everything necessary to make it a successful trip, is he calm, confused or resisting the journey? How do I make sure he feels safe in a new environment? Will there be family bathrooms along the way or will I have to take him into the woman's room and feel all the odd stares? I am trying to continue to take us on small trips to savor every moment we can, because you never know when we won't be able to anymore. Sometimes I wonder if even these small trips are too much. He gets confused sleeping overnight somewhere new. He misses his dog, Blaze. Today was a successful trip. So we will relish it while we can. The air where we live is in the dangerous zone from all the wildfires. So we went to the beach. It did not disappoint !! Fresh air! Cool breezes! Just delightful. Listening to the ocean waves lull us into a peaceful slumber. Just breathe! #silverlingings #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #musictherapy #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia #MixedDementia

8/30/2021, 5:58:02 AM

THE SILENCE IS DEAFENING. What I miss most of all is the conversations we used to have. It's been so long now since we have had a meaningful conversation, over 5 years. I cannot even remember what his voice sounds like in conversation. I miss his jokes, laughs and just daily chatter of good mornings and how was your day kinda of stuff. I know some folks with loved ones with Alzheimers say their loved one just keeps saying the same thing over and over and they sometimes wish they would stop talking. I long for his voice. He can speak but cannot find the words to express his thoughts. It's all jumbled up and most the time does not make sense. he struggles to express himself and usually doesn't try. I miss his voice. He is right here with me and I miss him as if he is gone. THE SILENCE IS DEAFENING. #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver #ucsfmemoryandagingcenter #ucdavismindinstitute #brainillness #drbrucemiller #wifeofalzheimers #earlyonsetalzheimers #musictherapy #fightlikeawarrior #memoryloss#Dementia #Alzheimers #VascularDementia @thevitalsapp #thevitalsapp #vitalsawareservices #vitalsawareservice

8/25/2021, 10:28:52 PM

Why do bad things happen? In a world of good and bad stuff, I often find myself asking why. Why did this happen to Rich? Why do babies and innocents get cancer? Of course, I do not find any answer to this satisfying. A friend recently sent me the book, “ When Bad Things Happen to Good People” by Harold S. Kushner. (Thanks David Weber). I just finished reading it and I have to say I have a different perspective on how to face that question. There are no answers that will satisfy my questions, nor give me a reason why bad stuff happens. However, I can now move on and address HOW I/we will deal with the hand that has been dealt to us. I really have been doing just that, but still, often, in my moments of anger, frustration and tiredness, I ask WHY? I won’t anymore. Sometimes bad stuff just happens. It’s not because we didn’t pray hard enough, or to the right saint, or because we did something in our past to deserve it (I don’t believe in karma). Not everything happens for a reason. If that were so then tell me what reason is there for a baby to be born with a brain tumor? A child to be killed in a drunk driving accident? And so many more examples you can imagine. There is no REASON for it. Tragedies are not there to TEACH us something. Don’t trivialize/dismiss tragedy with the response, there’s a lesson to be learned or if it doesn’t kill you it makes you stronger, or God gave it to you because he knew you could handle it. I really do not like hearing that. It dismisses everything we deal with as though it was supposed to be this way and puts pressure on me to be ‘strong’ and handle it all. Even the strongest of us break sometimes from the weight of it all......keep reading in my comment below..... #endalz #walk2endalz #alzheimers #alzheimerssupport #alzheimersawareness #dementia #earlyonsetalzheimers #grief #vitalaware #projectlifesaver #loss #alzheimersassociation @his_alz_brain @soulshinebali @michaelfranti

8/18/2021, 5:13:19 AM

Mother of 6 finds note her husband wrote before Alzheimer’s took his ability to communicate. 💜 . . . . . #alzheimersstories #alzheimersstory #Repost #the_mommy_talks with #make_repost

8/17/2021, 7:06:08 PM

Preparing for the Walk to End Alzheimer’s on 25 September at #LaCenterra . Too many purple flowers. We need to reverse that trend. What to Walk? Click on the 1st link in my bio to sign up for walk. #endalz #endalzheimers #walktoendalzheimers #elyson #teamelyson #alzheimersstories

8/13/2021, 4:29:32 PM

Lost and Found Wandering and getting lost are quite common in Alzheimer's persons. Rich was lost at one time for over 4 hours on bike trails near home. After calling the police department and a search was set out, he was found with some minor scrapes and bruises and dehydrated. We are lucky it ended well. After that event the City of Folsom Police Department hooked us up with two programs they use: Project Lifesaver and Vitals Aware. Both programs use small device the person carries by wristband *Rich does not like the wristband and he carries his on a keychain in his pocket. If the person is lost or wandering while wearing the Project Lifesaver fob, first responders can come out with a radio antena and locate him using radio frequency. It is usually very quick and much easier to locate the person than just searching on foot. In addition he carries the 'tile' for Vitals Aware. When he comes within 80' of a first responder using the app, the first responders phone alerts them he is near. It brings up vital information on their phone to inform them of his important concerns, such as how to talk to him, his picture, his dog's name his interests, medical information and more. It has the ability for me to record a video for them to show Rich of me talking to him to help calm him of agitated. Many times people with Alzheimer's do not appear to have a cognitive deficit and sometimes are mistaken for unruly or inebriated persons. If a first responder knows they are with cognitive deficit then they can respond to their needs better. This is true for person with developmental disabilities like Autism as well. I am so grateful for this added piece of protection for my husband. Folsom was the first city in the state of California to use Vitals program. Much thanks to our dispatcher, Elva Valasek, for writing the grant to fund these programs. #thevitalsapp #projectlifesaver #foslompolicedepartment #endalz #walk2endalz #alzheimerssucks #alzheimers #alzheimersblog #raiseyourvoice #warrior #blogger #alzheimersstories #alzheimersblog #alzheimerssupport #alzheimerscare #alzheimersawareness #alzheimersassociation #dementia #alzheimerscaregiver

8/12/2021, 2:13:00 AM

It's important to redefine the narrative surrounding mental health. It's not something to look down upon, or to be used as an excuse. Rather it's reason to be empathetic towards those around you. . Let's break the stigma surrounding dementia, by educating others about it. . #BhoolNaJana #RememberMe #AlzheimersPakistan #AlzheimersAwareness #AlzheimersFacts #AlzheimersStories #Dementiacare #psychology #interview #Alzheimerspatient #dementiafriends #mentalhealthmatters #mentalhealthawareness #letstalkaboutdementia #dementia #Alzheimersdisease #dementiasupport #mentalhealth

8/11/2021, 11:58:53 AM

Ever wondered why we often forget stuff like our keys, bottle, important deadlines etc? Watch Lizette explain the difference between being forgetful and short term memory deficit. Let's find out when does this issue get ALARMING. . #BhoolNaJana #RememberMe #AlzheimersPakistan #AlzheimersAwareness #AlzheimersFacts #AlzheimersStories #Dementiacare #psychology #interview #Alzheimerspatient #dementiafriends #mentalhealthmatters #mentalhealthawareness #letstalkaboutdementia #dementia #Alzheimersdisease #dementiasupport #mentalhealth

8/10/2021, 6:08:04 PM

Let’s get to know about Dementia (Alzheimer's) with Lizette Cloete and how her journey began from being an occupational therapist by profession to being a certified dementia caregiver by choice! . #BhoolNaJana #RememberMe #AlzheimersPakistan #AlzheimersAwareness #AlzheimersFacts #AlzheimersStories #Dementiacare #psychology #interview #Alzheimerspatient #dementiafriends #mentalhealthmatters #mentalhealthawareness #letstalkaboutdementia #dementia #Alzheimersdisease #dementiasupport #mentalhealth

8/10/2021, 2:51:58 PM