pulmonaryhypertension images

Discover Best pulmonaryhypertension Images of World

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six months with you, my soldier Nuh🫶🏼 and how half a year has flown by yet, with everything we’ve been through, the day you were born seems like a lifetime ago🥺 may our Lord keep you strong, healthy and happy and grant you the ultimate forms of shifaa.🤍 aameen. - #byummenuh #fiftythousandyears #cdh #cdhawareness #cdhwarrior #cdhsurvivor #cdhawarenessday #pulmonaryhypertension #nicu #nicugraduate #nicubaby #nicuwarrior #cardiac #respiration #congenitaldiaphragmatichernia

4/27/2024, 7:46:30 PM

There are multiple ways to volunteer your time and support the PH community. Learn about PHA’s various volunteer opportunities and fill out our volunteer application to get involved. Link in bio. . . . #pulmonaryhypertension #PH #PHAssociation #PHA #raredisease #hope #volunteer

4/27/2024, 7:01:07 PM

The unfortunate realities of PAH … having to miss the lacrosse game you’ve looked forward to all season. UNC vs Duke. The truth is, we are so grateful that when Noah is healthy he’s able to run around and enjoy himself at school and with friends. But, sometimes his this means unexpected site changes are needed. And with site changes comes pain. Remodulin and Treprostinil are very potent subcutaneous medications that bring on what the PAH community calls “hell week”. Sometimes this can last up to 10 days. We’re letting Noah take the lead, and he just didn’t feel like he could navigate the walking, jumping with excitement, and cheering from the sidelines today. One of the best parts of Noah is he makes the best of all situations. So here we sit (and lay) cheering on our @uncmenslacrosse guys from home. We 🩵 you, seniors! 🐏 #unclacrosse #teamimpact #pulmonaryhypertension #pulmonaryarterialhypertension #idiopathicpulmonaryarterialhypertension #pah #PHighter #PHearless #livingPHearlessly #remodulin #treprostinil #subcutaneous #subq #lungdisease #invisibleillness #invisiblecondition #raredisease #tarheeltrooper #tarheelphighter #medicaljourney #medicalfamily #medicalmom #nevergiveup #giveeverythingbutup

4/27/2024, 6:39:37 PM

I can hide my pain and other symptoms like a champ. Before I was diagnosed with PH, when I was literally dying, no one had a clue that I couldn’t walk across a room without almost passing out because I refused to let anyone see me on the days that my symptoms were at their worst. It’s amazing how much pain and illness we can hide behind a smile. I don’t hide my pain because I’m embarrassed or anything like that. I honestly just hate the extra attention that gets put on you when people can see you struggling. Do you feel like you are constantly hiding your pain? . . . . . . ChronicIllness #chronicPain #ChronicFatigue #InvisibleIllness #InvisibleFight #ra #ChronicallyIll #RheumatoidArthritis #RheumatoidDisease #autoimmuneDisease #Arthritis #Fibromyalgia #Osteoarthritis #DegenerativeDiscDisease #Scoliosis #RareDisease #livingwithchronicillness #invisibleillnessawareness #mentalhealth #PulmonaryHypertension #PAH #Spoonie #SpoonieLife #SpoonieSupport #ButYouDontLookSick #ChronicPainWarrior

4/27/2024, 3:45:00 PM

As part of my birthday presents from my wonderful daughter @hollyd2317 @theo11ydiaries was this donation for the charity too 😍😍. #pulmonaryhypertension #pulmonaryhypertensionawareness #pulmonaryarterialhypertension @nickidisney @pha_uk_insta

4/27/2024, 2:05:30 PM

Celebrating TEN years of us and SEVEN years of marriage! ❤️ #tntjewson Follow me 👉 @phightertess Pulmonary Hypertension (PH for short) is a #serious #condition that causes high #blood #pressure in the blood #vessels connecting the #heart and #lungs (pulmonary arteries) #phighter #pulmonaryhypertension #NoCureAlwaysHope #ph #chronicillness #invisibleillness #oxygen #heart #lungs #breath #breathe #health #awareness #marriage #husbandandwife #anniversary #firstdate #tinder #onlinedating #married #copperanniversary

4/27/2024, 8:45:23 AM

For the first time in as long as I can remember I’ve come away from my annual PAH review/ medical with a less than favourable report. Much can be mitigated due to a lack of exercise and conditioning due to my workload at work/ the band and kids, and from having a gnarly chest infection throughout Jan and most of Feb, but for the first time I’ve been asked to go back in 6 months rather than 12 months to check that it was due to the above and not due to the PAH starting to progress and slowly suffocate me. So I’ve 6 months to get back into the zone and PHighting fit. “I’ve better things to do tonight than die- (Springer- transformers the movie 1986) #phighter #pulmonaryhypertension @thegymgroupleyland

4/26/2024, 3:44:27 PM

Before I got sick I thought that getting a diagnosis was just like on Greys Anatomy. I thought a team of doctors would work tirelessly to diagnose and treat me. Reality turned out to be a stark difference from that picture I had in my head. I had PH symptoms for years. Mild ones, but they were there. And no doctor even wanted to investigate those symptoms until they were so severe I was dying. It’s a tough reality, but it’s one we all live in. How long did it take you to be diagnosed? Were you surprised it took so long? . . . . . . #ChronicIllness #chronicPain #ChronicFatigue #InvisibleIllness #InvisibleFight #ra #ChronicallyIll #RheumatoidArthritis #RheumatoidDisease #autoimmuneDisease #Arthritis #Fibromyalgia #Osteoarthritis #DegenerativeDiscDisease #Scoliosis #RareDisease #livingwithchronicillness #invisibleillnessawareness #mentalhealth #PulmonaryHypertension #PAH #Spoonie #SpoonieLife #SpoonieSupport #ButYouDontLookSick #ChronicPainWarrior

4/26/2024, 3:30:00 PM

It took over three years from the onset of Marcie McGregor’s symptoms to receive her PH diagnosis. After learning people don’t usually live that long without treatment, Marcie promised herself to say “yes” to any opportunity to help others, including becoming a PHA support group leader. “The reason I continue to volunteer as a leader are many such as, empowering patients with the information I wish I had right after diagnosis, being a part of the moment a patient realizes they aren't alone in this journey, being a safe place when it all gets to be too much, encouraging people with PH to see all of the good that's still there, and so much more.” Learn the benefits of becoming a support group leader and how to start a group in your area. Link in bio. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #volunteer

4/26/2024, 3:01:39 PM

🔥тα¢кℓє_нєαт🔥 with 𝙃𝙀𝘼𝙇 𝘽𝙍𝙀𝘼𝙏𝙃𝙀 Precautions & Treatments 🫁 FOR MORE INFORMATION OR ANY PULMONARY COMPLICATIONS 📲 Call us NOW Thanks and Regards Team Heal Breathe ❇️ Contact us at : 9874 9864 88/89 ❇️ Like and share us on Facebook : https://facebook.com/healbreathe ❇️ Visit us on Instagram: https://instagram.com/healbreathe ❇️ Visit our Website : https://www.healbreathe.com #healthyliving #healthyhabits #healthandwellness #covid. #COVID19 #airpollution #pulmonaryhypertension , #rehabilitation , #pulmonary, #rehabilitation , #Safeguard , #psychiatry, #smog , #breathe , #breathless #chestpain , #cough , #chestpain #nasalcongestion , #copdawareness , #asthma #asthmaawareness , #asthmaattack , #asthmarelief , #Fibrosis , #oxygen , #covid #lungs. #LungHealth , #heat #stroke #sunstroke Swapnamoy Ghosh

4/26/2024, 8:14:50 AM

Holy broken heart 💔❤️‍🩹💔 My heart rhythm 🎶 is abnormal and causing me significant issues. We have documented over 4 thousand palpitations and arrhythmias a day, just over 8 thousand in the 2 days! My heart literally feels like it will explode. I just need to buy some more time before I see the rare PH clinic. So I called my GP asking if I could safely increase my calcium channel blocker to see if we could stop it 🛑 She said sure, but geez it doesn’t feel right she states! I tell her, that book is not made for rare patients. I have to try. So tonight I doubled. We shall see. The counter effect will be I can’t move tomorrow because I tanked my blood pressure and heart rate and will be fainting. Yay! Fun! #pulmonaryhypertension #pulmonaryembolism #hypertension #lungdisease #heartdisease #phassociation #pah #pahassociation #pulmonaryarterialhypertension #raredisease #rarediseases #rareillness @phassociation #hypertensionawareness #bradycardia #palpitations #svt #heartproblems @pulmonaryhypertensionnews @rarepatientvoice

4/26/2024, 5:02:10 AM

Did you know that the Fashion Show is a popular feature of PHA’s biannual International PH Conference and Scientific Sessions? It is a tradition that began at PHA 2002! Leave your mark at this year’s show and sign up to participate in the Fashion Show today. Link in bio. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #PHA2024 #StrongerTogether

4/25/2024, 8:01:22 PM

Maybe my voice is like a grain of sand in the vast desert. But if even one person finds it along their journey, then it’s worth sharing. Your journey matters too. Your journey is worth sharing. It matters every bit as much as the person with 1,000,000 likes and comments. If you are feeling discouraged I want to encourage you to keep moving forward. Don’t give up. Stay the course if you are able. We all have something valuable to contribute to the larger conversation. If you have an account that you want to share , please link us to it in the comments below. I’ll follow you. I would encourage any of my IG friends to do the same. Simply put, social media is way more fun and beneficial to us all when there is more conversation. Let’s all help each other out and strengthen the chronic illness community with a follow and some interaction. If there is a good response for this, I will do it weekly. Thank you for being you and for sharing your story. You are making a difference. You are inspiring. You are helping others through their own battles. That is invaluable and the world is better with people like you in it. Xoxo #spoonie #spoonielife #truth #morespoons #spoonieliving #itsmylife #keepgoing #keepmoving #beautifuldisaster #pulmonaryhypertension #heartfailuresurvivor #faith #chronicillnesscoach #yourstory #mystory #speakyourtruth #rise #raiseyourvoice #overcomer #helpothers #supporteachother #chronicillnesscommunity #mypeople #kindness #womensupportingwomen #spooniessupportingspoonies #terminalillness #follow #shareyourlife #lifestyle

4/25/2024, 6:43:11 PM

Creeping closer to 150 days of this admission and no sight of home... as if NICU wasn't long enough of a journey🤦🏻‍♀️ #24weekpreemie #micropreemiestrong #micropreemie #babyboy #greysonsjourney #hospitalvisits #pulmonaryhypertension #pahawareness #nicubabymiracle #picubabymiracle

4/25/2024, 5:17:55 PM

The best thing is to get into a support group. That really helped me, being around other people that have the same disease. PH Patient, Joellen Brown phaware® podcast ep 465 Like, Subscribe and Follow. Scan QR Code to LISTEN NOW. Link in bio. #phaware #pulmonaryhypertension #podcast #lungs #pah

4/25/2024, 5:00:38 PM

For volunteer week, Lexington, Kentucky, PHA support group leader Evelyn Mitchell shares what being a support group leader means to her. “I enjoy being a PHA Support Group Leader because it’s a way to give back to my community. Bringing our group together helps us all with the opportunity to share and learn together.” Learn the benefits of becoming a support group leader and how to start a group in your area. Link in bio. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #volunteer

4/25/2024, 3:01:28 PM

Marry someone who will bring you flowers, but more importantly those oranges you really really like. #pvod #pulmonaryhypertension

4/24/2024, 6:39:53 PM

Good Days, a nonprofit dedicated to providing assistance and awareness for chronic illnesses, has opened its PH fund to help with copay assistance. Medicare or military insurance recipients are eligible. Learn more about the eligibility criteria and apply online now. Link in bio. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #Medicare

4/24/2024, 6:02:56 PM

Expert care for your family's health needs. From routine checkups to specialized care. Tel: 626-859-2249 https://bit.ly/3RHxWS3 #physiciansofsoutherncalifornia #southerncaliforniaphysician #medicalpracticesoutherncalifornia #PrimaryCareSpecialist #Healthcare #FamilyMedicine #FamilyDoctor #Womenhealth #Hypertension, #Diabetes #Vaccination #pulmonaryhypertension

4/24/2024, 5:02:37 PM

Watch the first episode in PHA Support Group 101, a series designed to help answer questions about PHA support groups. Abby Sickles, manager of patient and caregiver programs at PHA, shares the importance of PHA support groups and insights about what support groups offer to patients, caregivers and parents of children with PH. Support group leaders of local communities share their favorite part about being a support group leader. Watch now to learn more about support groups and how to become a support group leader. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #volunteer

4/24/2024, 5:02:34 PM

Here we go. This is what #rare looks like. Yes we CAN be young! #pulmonaryhypertension #pulmonaryembolism #hypertension #lungdisease #heartdisease #phassociation #pah #pahassociation #pulmonaryarterialhypertension #raredisease #rarediseases #rareillness @phassociation @pulmonaryhypertensionnews @rarepatientvoice

4/24/2024, 4:32:11 PM

📢🌐🙌With so much in store for the upcoming World Pulmonary Hypertension Day, PHA Europe remains committed to all PH patients globally. Through our online presence on social media, websites, and our new virtual conference platform, Bel Air Center, we aim to foster stronger connections within our global PH community. Bel Air Center is tailored specifically for PH patients and stakeholders, offering numerous features to easily explore rich content and materials. Join us for free and mark your calendar for the upcoming webinar on all non-PAH forms of PH by world-renowned expert Prof. Ardeschir Ghofrani, broadcasting live from our Bel Air Center on May 5 at 16:00 CET. Let's celebrate this World PH Day by coming together in unity for the global PH community! 🙏💪⤵️ ➡️www.belaircenter.info ➡️www.worldphday.org ➡️www.phaeurope.org #PHAEurope #patients #patientempowerment #awareness #phositivity #raredisease #pulmonaryhypertension #respiratoryhealth #breathing #patientrights #WordlPHDay2024 #Webinar #PH ‏‏‎ ‎‏‏‎

4/24/2024, 4:00:33 PM

If you have PH and struggle with worry and anxiety, our free self-help programme could spark changes for you too. Based on cognitive behavioural therapy (CBT), it's been developed with psychologists and is proven to make a difference. Find out more or order it for yourself by clicking the link in our bio or visiting www.bit.ly/OvercomingWorryAndAnxiety ------ Recent feedback from a PHA UK member: "𝘐'𝘮 𝘩𝘢𝘱𝘱𝘪𝘦𝘳, 𝘮𝘰𝘳𝘦 𝘳𝘦𝘭𝘢𝘹𝘦𝘥 𝘢𝘯𝘥 𝘮𝘰𝘳𝘦 𝘤𝘰𝘯𝘧𝘪𝘥𝘦𝘯𝘵 𝘴𝘪𝘯𝘤𝘦 𝘥𝘰𝘪𝘯𝘨 𝘵𝘩𝘦 𝘱𝘳𝘰𝘨𝘳𝘢𝘮𝘮𝘦 𝘢𝘯𝘥 𝘱𝘶𝘵𝘵𝘪𝘯𝘨 𝘵𝘩𝘦 𝘱𝘳𝘪𝘯𝘤𝘪𝘱𝘢𝘭𝘴 𝘪𝘯𝘵𝘰 𝘱𝘳𝘢𝘤𝘵𝘪𝘤𝘦 𝘢𝘯𝘥 𝘮𝘢𝘬𝘪𝘯𝘨 𝘵𝘩𝘦𝘮 𝘱𝘢𝘳𝘵 𝘰𝘧 𝘮𝘺 𝘦𝘷𝘦𝘳𝘺𝘥𝘢𝘺 𝘭𝘪𝘧𝘦. 𝘛𝘩𝘢𝘯𝘬 𝘺𝘰𝘶!" ------ #anxiety #worry #cbt #healthanxiety #selfhelpprogramme #breathlessnotvoiceless #togetherforthejourney #togetherforph #pulmonaryhypertension #pulmonaryarterialhypertension #ph #pah #CTEPH #phauk #strongertogether #nhs #pulmonaryhypertensionassociationuk #chronicillness #chroniccondition #longtermillness #longtermcondition #lifewithPH

4/24/2024, 2:42:30 PM

Quick update… sometimes extra transfusions, infusions etc, don’t always help everyone. My symptoms are pretty much the same, but I’m coping and taking it day by day. I will give a full update when feeling stronger. Thanks to those who have reached out, I’m grateful to receive your support 💜 Follow me 👉 @phightertess Pulmonary Hypertension (PH for short) is a #serious #condition that causes high #blood #pressure in the blood #vessels connecting the #heart and #lungs (pulmonary arteries) #phighter #pulmonaryhypertension #NoCureAlwaysHope #ph #chronicillness #invisibleillness #oxygen #heart #lungs #breath #breathe #health #awareness

4/24/2024, 9:16:07 AM

昨日は1ヶ月ぶりの検査の日🏥🩺 お薬で何とか検査結果も横ばいで安定。 でも肺高血圧症は病名ではなく進行性の深刻な疾患の事なので治る事はない。 親は元気な君の笑顔を見ていると、検査の度につい 「きっと少しは良くなっているのでは…」 「またお出かけしたり、お友達と遊んだり出来るのでは…」 と期待してしまうけど… 先生とお話する度に、本当にこうして毎日一緒にいられる事がまず感謝するべき事なのだ…と再認識します🙏 さぁ!また気を引き締めて💪 毎日楽しく過ごそうね、ちゃぁくん💕💕💕 #norfolkterrier #chatarou #chaakun #norfolkterriersofinstgram #instadog #14yearsand7months #pulmonaryhypertension #ノーフォークテリア #茶太朗 #ちゃぁくん #犬 #わんこ #インスタドッグ #14歳7ヶ月 #肺高血圧症

4/24/2024, 4:41:50 AM

If you have not been with a Taurus ever in your life, you have not truly lived life. It's our season, freaky side is out and our libido is really up there!!! It's whatever now😉 #loveeverywomen #respectwomen #thetruemystique #purpleforlupus💜 #purpleforroyalty💜 #purplemadness💜 #mommygogetter #hustletilithurts #melanin #melaninbeauty #lupuswarrior #alllivesmatter #lupussurvivor #lupusawareness #lupusfighter #livingwithlupus #lupus #ctlfa #autoimmunedisorder @lupus.org @lupus.fighters #pulmonaryhypertension #thyroid #yesILikefemalestoo

4/24/2024, 3:07:16 AM

Ladies hop on board and sail away with me. Celebrating 16 months (yesterday) was just late to the party. As I’m traveling in nautical miles 😅 these past few weeks have been non stop back to back admissions due to viral illnesses. Haven’t caught a break at all from pneumonia, norovirus, and most recently a upper respiratory virus. We’re hoping as winter leaves so do the illnesses. Matheo’s heart works extra hard when sick which isn’t good. Thankful to be home again. We are praying once he fully recovers his heart returns back to normal function. We are fighting for so many things right now. for his health, his cares, all his development services and so forth. This journey isn’t for the weak ones. It’s a constant reminder that not many of us know. You are never heard enough, as much as you speak up for your kids half of your concerns are often dismissed. Never give up! You are your kids voice. #16monthsold #sailorman #24weekermicropreemie #advocatelikeamother #pulmonaryhypertension #pulmonaryveinstenosis

4/24/2024, 12:10:30 AM

Welcome to a community of people who know what it's like to live with and manage cardiovascular disease. ⁠ ⁠ Share your story, make a meaningful connection, and get help from people who understand. The Link in Bio has more...

4/23/2024, 11:00:32 PM

It’s been 5 months since our girl passed, and one week from today she would have turned 28. Please consider a gift in her name for this memorial birthday, so that others may get the help they need dealing with #pulmonaryhypertension @phassociation A big thank you to all who have joined in this celebration. ❤️‍🩹 Link to event is in my Profile.

4/23/2024, 7:53:58 PM

It’s been 5 months since our girl passed, and one week from today she would have turned 28. Please consider a gift in her name for this memorial birthday, so that others may get the help they need dealing with #pulmonaryhypertension @phassociation A big thank you to all who have joined in this celebration. ❤️‍🩹 Link to event is in my Profile.

4/23/2024, 7:49:37 PM

My poor heart and lungs. My heart rate as been so low and my oxygen is playing games. 88% is Hospital. I’m jumping between 78% and 99% Tomorrow is the big day for my VQ scan for pulmonary hypertension clarification. The test itself is fine, but I’m a mess as I’m so scared what it’s going to say. #pulmonaryhypertension #pulmonaryembolism #hypertension #lungdisease #heartdisease #phassociation #pah #pahassociation #pulmonaryarterialhypertension #raredisease #rarediseases #rareillness @phassociation @pulmonaryhypertensionnews @rarepatientvoice

4/23/2024, 4:56:47 PM

This #TrainingTuesday inspiration comes from all our teammates who lost their breath over the weekend for those who fight #pulmonaryhypertension ⚡ Learn more about our #LetMeBeYourLungs program and how you can be part of it at letmebeyourlungs.org.

4/23/2024, 3:52:54 PM

When Missy Storm was first diagnosed with CTEPH, she was amazed by the lack of information about the disease and treatment options. She vowed to do whatever she could to raise CTEPH awareness and offer support to others. For volunteer week, the virtual CTEPH support group leader shares why volunteering is important. “Volunteering allows me to connect with a community of others diagnosed with CTEPH or with their families to best support them. Posting or commenting on Facebook, responding to a question or moderating a monthly Zoom meeting may seem like small things, but helping others with information, offering a listening ear or sharing an encouraging word can make a real difference to someone feeling pretty discouraged or frightened. I’ve now realized that volunteering has provided a way for me to heal and to make something positive out of a difficult period in my own life. It has also given me the opportunity to work with a team of other devoted volunteers and so many wonderful participants, many of whom have become dear friends.” Learn about PHA volunteer opportunities and how to get involved with the PH community. Link in bio. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #volunteer

4/23/2024, 3:01:27 PM

#goodPHnews from Ukraine (PHURDA) 🙏👏💪 𝗣𝗛𝗨𝗥𝗗𝗔 𝗥𝗲𝗰𝗲𝗶𝘃𝗲𝘀 𝗢𝘅𝘆𝗴𝗲𝗻 𝗖𝗼𝗻𝗰𝗲𝗻𝘁𝗿𝗮𝘁𝗼𝗿𝘀: 𝗔 𝗟𝗶𝗳𝗲𝗹𝗶𝗻𝗲 𝗳𝗼𝗿 𝗣𝘂𝗹𝗺𝗼𝗻𝗮𝗿𝘆 𝗛𝘆𝗽𝗲𝗿𝘁𝗲𝗻𝘀𝗶𝗼𝗻 𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀 "The Charity Foundation "Sisters Dalila," PHURDA, has received oxygen concentrators, vital for patients with pulmonary hypertension (PH). These portable concentrators operate independently of electricity, ensuring reliability during difficult conditions in Ukraine. PHURDA expresses gratitude to donors and partners for their support. This is a step forward in providing the highest level of care and comfort for PH patients in Ukraine." ➡️Read original post here: https://shorturl.at/bAEMT ➡️Support PHURDA: https://www.phaslovakia.org/ ➡️Read more about PHA Europe's initiative: www.phaeurope.org 👉For more inspiring stories and valuable information about pulmonary hypertension, join our Bel Air Center community today. Gain access to a wealth of resources and connect with others who understand your journey. Register for free at: https://belaircenter.info/registration #PulmonaryHypertension #CharityFundSistersofDalila #PulmonaryHypertensionAssociation #PHURDA #PHAEurope #Ukraine #patientemowerment #awareness #oxygenconcentrator #PAH

4/23/2024, 3:00:30 PM

Las personas con hipertensión pulmonar somos cebras médicas, este término se utiliza en medicina para referirse a una condición rara.Cuando oímos un galope pensamos en caballos, pero a veces, galopan la cebra. Los pacientes con HP a menudo escuchan comentarios desconsiderados como. "No pareces enfermo". Los tratamientos de HP, como los vasodilatadores, pueden provocar un engañoso rubor en la tez e imitar un color de piel saludable. Las cebras parecen caballos con rayas. Aunque no parecen intimidante, al igual que HP, pueden ser agresivos e impredecibles. Continuamos mostrando nuestras rayas y deslumbrando al mundo con la conciencia de Hipertensión Pulmonar. ¡Viviendo Un Día A La Vez! #ATP #AtodoPulmon #Venezuela #RareDisease #PulmonaryHypertension #EnfermedadesRaras #HipertensiónPulmonar #undiaalavez #vivesinmiedoalahp #coalicionhplatam #somospacientes

4/23/2024, 2:34:57 AM

🎬 𝐍𝐄𝐖! 𝐇𝐞𝐚𝐫 𝐟𝐫𝐨𝐦 𝐭𝐡𝐞 𝐞𝐱𝐩𝐞𝐫𝐭𝐬 𝐛𝐲 𝐥𝐢𝐯𝐞𝐝 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞... (Link in bio) The people who understand #PulmonaryHypertension best are those who live with it themselves, and in our new short film, PHA UK members share their words of wisdom to help others adjust to a diagnosis. Click the link in our bio to watch it, or head to www.bit.ly/4d0j0YL. ------ We are grateful to everyone who has contributed to this video resource. Remember, you're not on your own. ------ #wordsofwisdom #togetherforthejourney #togetherforph #breathlessnotvoiceless #pulmonaryhypertension #pulmonaryarterialhypertension #ph #pah #CTEPH #phauk #strongertogether #nhs #pulmonaryhypertensionassociationuk #chronicillness #chroniccondition #longtermillness #longtermcondition #lifewithPH

4/22/2024, 4:13:57 PM

‼️ As inscrições fecham hoje ‼️ Preparados para um fim de semana de convívio, de sensibilização e de partilha? Pois é isto mesmo que estamos há meses a preparar para vós! Gostávamos muito que fosse um verdadeiro fim de semana em família APHP para comemorar o dia mundial da Hipertensão Pulmonar mas também os 20 anos da APHP. Contamos convosco?! Inscreva-se no link abaixo e garanta já a sua presença! https://forms.gle/YE5iu6nea9Ayn2rx5 Nota: por questões logísticas as inscrições efetuadas após o dia 22 de Abril serão aceites mas não conseguimos garantir o acesso aos kits de participação! Inscreva-se hoje ainda para o garantir! #worlphday #aphp #pulmonaryhypertension #pulmonaryhypertensionawareness #20anosarespirarpelahipertensaopulmonar #getbreathlessforpulmonaryhypertension

4/22/2024, 3:38:12 PM

Join us this Wednesday April 24th @ 3pm PT for the BC Better Breathers Club! This support group is online and open to those living with chronic lung conditions in BC and their caregivers. Connect with others (including Respiratory Therapists), as we explore safe ways to clean and declutter this Spring season, to improve our breathing and mental health! Link in bio!⁠ #COPD #Asthma #ILD #IPF #Bronchiectasis #Alpha1 #PulmonaryHypertension #NTM #CyssticFibrosis #betterbreathersclub #bclung #poplarpulmonary #bestlunglife

4/22/2024, 3:36:14 PM

💨🌬️Don't take breathing for granted. Consider this: each day, we take approximately 20,000 breaths, totaling about 7.5 million breaths each year. Most of the time, we don't even consciously think about breathing. Now, imagine what it's like for a pulmonary hypertension (PH) patient who not only thinks about each breath but fights for it. Learn more about pulmonary hypertension, a serious condition affecting the lungs and heart, on our website: www.phaeurope.org ➡️Register for free and join the global PH community at Bel Air Center: https://belaircenter.info/registration/ ‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎ #PHAEurope #patients #patientempowerment #awareness #phositivity #raredisease #pulmonaryhypertension #respiratoryhealth #breathing #patientrights ‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎ ‎‏‏‎

4/22/2024, 3:10:13 PM

For volunteer week, Twin Cities, Minnesota, support group leader Alice Yount shares what she loves most about being a leader. “I like to bring hope and encouragement to anyone with PH. Along the way, I have become good friends with some truly wonderful people. Being a support group leader has been a real blessing.” Learn the benefits of PHA support groups and how you can start one in your area. Link in bio. . . . #pulmonaryhypertension #PH #PHA #PHAssociation #raredisease #hope #volunteer

4/22/2024, 3:02:50 PM

Motivo de consulta: Palpitaciones con PVCs alta carga originada en VD con eco tt disfunción sistólica VD + PSAP 56mmHg: TEP Bilateral 🫁🫀 #pulmonaryembolismsurvivor #pulmonaryhypertension #cardiolovers #nuclearmedicine💉☢️

4/22/2024, 2:54:30 PM

Very exciting news! ‘Get Me To 21 - The Jenna Lowe Story’ has just been selected (out of hundreds of documentaries) for entry into the Toronto Documentary and Short Film Festival ... no awards given yet but even to be selected is a huge honour! Congratulations to our Executive producer Gabi Lowe, Director Adele Joy Lucas, Editor Mary Berry and Director of Photography Steve Berry! If you havent watched it yet it is still available for viewing on Showmax Africa. May Jenna’s legacy and our work The Jenna Lowe Trust continue to make a difference ❤️ #jennalowetrust #getmeto21 #documentary #award #nominee #documentary #showmax #southafrica #inspire #pulmonaryhypertension #awareness #organdonation

4/22/2024, 12:17:24 PM

22nd April WORLD EARTH DAY🌎 Say no to Plastic Bags, Protect our planet from Green House Effect. 🫁 FOR ANY PULMONARY COMPLICATIONS 📲 Call us NOW Thanks and Regards Team Heal Breathe ❇️ Contact us at : 9874 9864 88/89 ❇️ Like and share us on Facebook : https://facebook.com/healbreathe ❇️ Visit us on Instagram: https://instagram.com/healbreathe ❇️ Visit our Website : https://www.healbreathe.com #covid. #COVID19 #airpollution #pulmonaryhypertension , #rehabilitation , #pulmonary, #rehabilitation , #Safeguard , #psychiatry, #smog , #breathe , #breathless #chestpain , #cough , #chestpain #nasalcongestion , #copdawareness , #asthma #asthmaawareness , #asthmaattack , #asthmarelief , #Fibrosis , #oxygen , #covid #lungs. #LungHealth , #tuberculosis #noplastic #nopollution #greenhouse #plants #planttrees Swapnamoy Ghosh

4/22/2024, 9:58:07 AM

Risk factors for pulmonary hypertension (PH) include genetics, age (especially in older adults), gender (more common in women), smoking, obesity, chronic lung diseases (like COPD), heart conditions, connective tissue disorders, liver disease, HIV infection, exposure to toxins, and high altitudes. Managing these factors is key in PH prevention and care. #paartivlungcarecenter #lungcare #lungcarecenter #pulmonaryhypertension #genetics #gender #obesity #chroniclungdisease #copd #heartdisease #connectivetissuedisease #liverdisease #hivinfection #interstitiallungdisease #sleepapnea #portalhypertension #highaltitude #toxin #lunghealth

4/22/2024, 9:12:30 AM