The results of my pelvic MRI came back in the post- I was so happy that only 2 weeks had gone by since the MRI- everything felt like it was moving along quickly without prolonged delays… Result 1: “significant endometriosis of the pelvis” and “features of endometriosis” within my left ovary, close to my large bowel AND close to the uppermost part of my v*gina (explaining why my CA-125 level is above normal)* Result 2: the letter also said my dermoid cyst (a benign type of ovarian cyst) was on my RIGHT ovary (after my ultrasound 2 months prior, I was told it was on my LEFT ovary)… Overall, it recommended I have surgery for my endometriosis as it was deep/significant *My blood test tested my CA-125 level to assess my ovarian cysts to determine their nature and significance Lots to chew on in that letter, but I was so grateful to have the MRI results in my hands! This is part 6/9 of my #endometriosisjournal so far... Let me know your experience with endo!
#ehlersdanlos #eds #edsawareness #chronicpain #invisibleillness #dysautonomia #zebrastrong #fibromyalgia #potssyndrome #gastroparesis #chronicfatigue #hypermobility #spoonielife #disability #mixedconnectivetissuedisease #marfansyndrome #ehlersdanlossyndrome #ehlersdanlos #chronicallyill #enoughisenough #longcovid #autism #instagram #zinc #aneurysm #hypermobility #autismawareness #genetics #cancer #instagram #lupus #hypermobilitysyndrome
HOW TO TELL IF YOU'RE READY TO MAKE THE LEAP:⤵️ If you have autoimmune symptoms and aren’t getting the support you need from your doctors, take this quick quiz to find out if now is THE TIME to take the leap into autoimmune healing: 1️⃣ Are you too stubborn to believe your doctor when they say nothing can be done to improve your autoimmune symptoms? 🐂 2️⃣ Do you believe that diet and lifestyle matter when it comes to your autoimmune health? 🍎 3️⃣ Do you feel like you’ve tried everything under the sun to feel better without much to show for it? ☀️ 4️⃣ Are you curious what your poop can tell you about your health? 🤔 𝐈𝐟 𝐲𝐨𝐮 𝐬𝐚𝐢𝐝 𝐘𝐄𝐒 𝐭𝐨 𝐚𝐧𝐲 𝐨𝐟 𝐭𝐡𝐞𝐬𝐞 𝐪𝐮𝐞𝐬𝐭𝐢𝐨𝐧𝐬… 𝐭𝐡𝐞𝐧 𝐲𝐨𝐮’𝐫𝐞 𝐫𝐞𝐚𝐝𝐲 𝐭𝐨 𝐦𝐚𝐤𝐞 𝐭𝐡𝐞 𝐥𝐞𝐚𝐩! Autoimmune healing is yours for the taking. Consider this your permission slip. 🗒️👍 And if you want or need a little help getting started… 𝐈'𝐦 𝐠𝐢𝐯𝐢𝐧𝐠 𝐚𝐰𝐚𝐲 𝐟𝐫𝐞𝐞 𝐢𝐧𝐭𝐫𝐨 𝐜𝐨𝐚𝐜𝐡𝐢𝐧𝐠 𝐬𝐞𝐬𝐬𝐢𝐨𝐧𝐬 𝐢𝐧 𝐭𝐡𝐞 𝐦𝐨𝐧𝐭𝐡 𝐨𝐟 𝐀𝐩𝐫𝐢𝐥 (time’s running out, so grab yours now!) ⏰⏰ So if that sounds like you, I’d love to help you start feeling better! Grab your free intro coaching session with the link in my bio or go to www.talktoclarissa.com to learn more! Talk to you soon. Your Partner In Health, ~Clarissa
Sunrise and Silent Strength Living with someone who has an invisible illness has taught me the profound depths of quiet resilience and unconditional love. Each morning, like the sun that rises without fail, she confronts her hidden battles with a grace that humbles me. In the serene moments we share, like watching a sunrise together, I am reminded of the constant ebb and flow of her strength and struggles. Her condition is invisible, but its impact is as palpable as the ocean waves that retreat from the shore but always return. Her journey is one of silent battles, but together, our support for each other is loud. My role is not to fix the unfixable but to hold her hand through every high and low, ensuring she never faces the tide alone. As we stand side by side, the dawn light reminds us that there is hope and beauty in persistence, and in the power of facing each new day together. To those men who share this journey, know that your steadfast presence is a beacon of strength and comfort. Let us continue to walk together, finding solace in shared silence and strength in mutual support. #invisibleillness #fibromyalgia #endometriosis #chronicillness #chronicpain #chronicillnessandcouples #chronicillnessandrelationships
Feeling inspired by the London Marathon but wanting hit the roads for a shorter distance? The ASICS 10k is for you! This race boasts a flat and fast course through the closed off streets of central London, perfect for first timers or PB chasers. Cross the finish line knowing you're making a difference in the lives of people affected by MS. Visit the link in our bio to sign up today! #MS #MultipleSclerosis #MSAwareness #MultipleSclerosisAwareness #InvisibleIllness #ChronicIllness #Health #AutoImmune #AutoImmuneCondition #Fundraising #Fundraiser #AccessibleFundraising #FundraisingEvent #MSTrust #ASICS #ASICS10K
Gosh this weekend was so much more than we could’ve ever hoped or imagined. 🥹 Our goal for the event was to raise $15,000 - which felt pretty impossible since we only raised $6,000 last year. But God showed up in crazy kind ways and I’m beyond excited to share that we raised almost $37,000 through Cereal de Mayo this year!!! 😭😭 That’s 7 more recipients who lives will be transformed through @beingpositioned ✈️ Thank you SO much to the incredible team at @cadystudios for hosting our event and helping us transform your beautiful space into a crazy Cinco de Mayo themed cereal bar! 😅 A huge thank you to every single friend, volunteer, and vendor who generously donated their time and talents to make this event possible. And to the biggest MVP - who didn’t make it in this photo because he was off doing one of the millions of things he did this weekend to hold the event together - my incredible husband, @cardinmenke 😘 We are truly blown away by the amazing community that God is building for us here and just in awe of all of the beautiful ways He has blessed us through me having NF2. ❤️🩹 Save the date for next year — Cereal de Mayo will be on April 26, 2025 🥣🌮
Today is my two year anniversary of when I received my stent to help control my IIH. I am so grateful for my neurologist who recommended me as a candidate for the surgery due to both of my transverse sinuses being severely narrow, and my surgeon who did the stent placement. And I can’t forget to mention the amazing nursing staff and techs that I had. I will forever be grateful for the opportunity to get the stenting surgery. Never in my wildest dreams did I think that 24 years after being diagnosed with IIH, that a fix for the problem was possible. To my IIH Warriors that have been recently diagnosed or awaiting your surgery date I’m still here in the trenches with you. I’ve enjoyed being able to speak to those of you from all around the world, answering questions you have and calming your fears surrounding surgery. This is why I share my story. Keep fighting Warriors 💙💚💙💚💙💚💙💚💙💚💙💚💙💚💙💚💙 #iihwarrior #invisibleillness #chronicillness #blessed #stented #diagnosis
Today, April 19th, is Undiagnosed Day. A day for everyone living with an undiagnosed illness. Because even with no diagnosis yet, it’s so important to know that you matter. You deserve a day while you’re in diagnosis limbo. There is enormous pain in living with debilitating symptoms and being shoved around from doctor to doctor, only to start to feel like maybe it’s in your head. So many of us have been there. We know what it feels like. Longing for answers, proper treatments, and a more specific community to find people to relate with. So let’s take this day to lift up all of our undiagnosed friends. To remind them they’re valid, and to let them know that we’re standing with them in their search for answers. To anyone with an undiagnosed illness, you are not alone 🫂💛 🤍
She was always fighting a battle, but her smile would never tell you so 💜 Last week, I had my treatment, and I am SO thankful to my nurse for always getting me in and getting it done! And also for Tenley keeping me going and always helping! She gives me strength. I didn't even know I had 💜🩷 Don't forget the Gutsy Walk coming up!! Join and/ or donate to help us warriors find new treatments and maybe even a cure!!! 💜💜💜 Link in Bio! #crohnsmom #colitismom #stelara #ulcerativecolitismom #ibdmom #ibdfam #ibdcommunity #warrior #fighter #treatment #treatmentday #momselfie #momsofinstagram #ibdsuperheroes #crohns #colitis #IBD #invisibledisease #invisibleillness #ibsawareness #gutsy #ihateneedles #ivegotthis #tellyourstory #inspireothers #mamashelper #mamasladybug #strong #brave #gutsy #myreasontofight
I love sharing wins!! 🎉 One of my ADHD clients, let's call her "Sara" has been struggling with PMDD for so long. When it came time for the disruptive part of her cycle she had it on lock! She took CARE of herself, requested the time she needed away from Loved ones, and was still able to enjoy the moments with her Littles that she cherishes. We worked out a schedule for self-care ahead of time, she purchased nourishing things for herself, took the supplements she knows help her feel her best, thought through symptoms ahead of time, worked on emotional regulation and on boundaries. She couldn't believe how well it worked and how much easier & peaceful the week and a half was despite being snowed in for 4 days with family, her family getting sick, and the emotional dysregulation. This was all while in a FULL MOON ECLIPSE! No matter the symptoms of your autoimmune diseases or chronic illnesses you can live the life that you desire too! If you're just like Sara and you don't want your disease to hold you back anymore, drop a 💗 in the comments!! #womanentrepreneur #reikihealing #autoimmuneprotocol #fibromyalgia #invisibleillness #momlife #healthyrelationships #selfcare #healthywomen #mentalhealth #autoimmunewellness #spoonie #reiki #businesschick #chronicpainwarrior #womencommunity #chronicfatigue #womenshealth #mompreneurlife #chronicillness #aip #aipdiet #healthylifestyle #paleo #autoimmunewarrior #autoimmunediseases #hoshimotosthyroiditis #goals #women #momsofinstagram
Does anyone else feel this?💔 When you speak to someone who doesn’t suffer with chronic pain and remember that the normal amount of pain to be in constantly is NO PAIN it blows my mind and breaks my heart all at once, because I don’t know that I will ever not be in pain again😣 I don’t remember the last time I had a pain free day & that scares me. I am in struggle town at the moment with my endo as things seem to be getting progressively worse and new (horrible) symptoms are appearing so my mental health isn’t so great. But I keep hoping for that surgery date to be confirmed so I can FINALLY get some much needed relief🫶🏼 I hope everyone has managed to make it through Monday as best they could, I know it’s hard✨ Much love, Lil💛 #endo #endometriosis #endowarrior #endobelly #chronicillnessawareness #chronicpainawareness #chronicpelvicpain #adenomyosis #adenowarrior #adenough #uterus #pain #endometriosisuk #endoawareness #chronicpainwarrior #invisibleillness #spoonielife #chronicwarrior
#chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #mecfsawareness #myalgicencephalomyelitis
Fend for yourself kind of night #fybrolife #invisibleillness #pain #mumlife
🖤Friendly reminder that just because you think something doesn’t make it true! 🖤Sending love to all my anxious overthinkers dealing with intrusive thoughts today. 💜💚 🖤Follow for more relatable and inspirational mental health content! 🪲✨ Cr: @thecodependentperfectionist . . . . . #MentalHealth #motivationmonday #mentalhealthwarrior #anxietyanddepression #relatable #invisibleillness #selflove #iykyk #anxiety #depression #keepgoing #introvert #mentalhealthmotivation #millennial #mentalhealthandwellness #emotions #youarenotalone #homebody #mentalhealthawareness #inspiration #mentalhealthadvocate #anxiousthoughts #intrustivethoughts #iridescentscarab
Photographed by: geetaweedingfilms Book your Big Day Soon.... 7757926544 @ifwe.love @thoughtcatalog @fearlessly_authentic_photos @fearless_portraits @random.thinking.official @vogueweddings @vintageefeeling @wellwedmagazine @voguemagazine #love #vintage #aesthetic #mumbai #mumbailife #feeling #real #lookslikefilm #artwork #minimalim #neutralstyle #blackandwhite #loveislove #invisibleillness #connection #thisweekoninstagram #ringceremonyphotography #preweddingideas #thailand #monochromatic #wild
It's infusion day!! 6 weeks sure goes by fast!! Grateful for this as I was feeling it. I do a good job not showing it uh?? 🤷♀️🥰 Gotta just keep moving everyday!! 💯💯 #chronicillness #invisibleillness #ulcerativecolitis
Lowering the risk of inflammation through dietary changes is a powerful step towards better health. By making mindful choices about what we eat, we can support our bodies in reducing inflammation and promoting overall wellness. 🌱 _____ #Dubailifestyle #AbuDhabi #Dubailife #Mydubai #Lebanon #Beirut #Amman #Jordan #Qatar #Doha #autoimmunedisease #autoimmune #autoimmunediet #autoimmunehealing #lupus #ImmuneHealth #ImmuneSupport #FunctionalNutrition #WellnessCoach #Invisibleillness #WellnessJourney #Alternativemedicine #FunctionalMedicine #HolisticWellness #inflammationrelief #FunctionalHealth #inflammationdiet #inflammatory
Daily affirmations ♥️♾️🎧 #autism #autismawareness #disabilityawareness #disabilityrights #adhd #adhdawareness #adhdwomen #neurodivergent #womensupportingwomen #dyspraxia #mentalhealthawareness #meantalhealth #inclusion #recovery #recoveryjourney #occupationaltherapy #invisibleillness #invisibledisability
Hopefully something on this list can help bring ease and a feeling of comfort to your day. Read more 👉 https://lttr.ai/ASALZ #Disability #InvisibleIllness #ChronicIllness
[🌸Chou Cream Sakura (P)Ink🌸] Time for the annual 5 minutes shooting with the sweet 📷 @chubbycoon 🦝 at 📍@rouentattoofestival ! Pink everything, everywhere 🤌🏻🌸💕 Couldn't be more in the @rouentattoofestival theme ! Even my 3 days pass bracelet was pink 🥲 Coming to say hello to my Rouen/French/Worldwide artists - more than 80 have been inking me across the years and it's not the endddd ! #tattoocollector Also remembering the time I was their guinea pig to practice 🤣 (I'm corporate #rouennaise , also the 2019 @misstattoofrance "Miss Tattoo Normandie" 🤣) Had a new baby tat' by Senpai @issauniquehorn ! 🦄💕 Hope you all enjoyed the way I walked after 4 hours in heels with my old #ehlersdanlos body under an #endometriosis crisis *priceless* 🥲 📣 And remember : #beoriginalbeyou #showmustgoon 🤘🏻🦄✨️ - 👗💕 Dress by my wonderful @nippynamite - 👠 Heels @melissashoesfrance @viviennewestwood - • • • • #rouentattoofestival #rouentattooconvention #rouentattoo #dresscodepink #japaneseoutfit #japanesegirl #inkedgirl #tattooedgirl #girlwithink #girlwithtattoos #pinkoutfit #irezumitattoo #tattoocollector #sakurapink #bubblegumbitch #pinkismysignaturecolor #rouentattoofestival #wantedmodels #castingoffice #disabledmodel #curvymodel #altmodel #rouentattoo #fullpink #notyourbarbiegirl #notyourdoll #invisibleillness
☀️ 🌊 🏖 Ｚｏｎ， ｚｅｅ ｅｎ ｚａｎｄ Gelukt! #myhappyplace #strand #zon #zee #zand #genietenvandekleinedingen #enjoythelittlethings #grootsgenieten #happylittlethings #vertrouwen #trust #beetjeleventussenhetziekzijndoor #leven #vandaagisvandaag #watkanerwel #kleinleven #onzichtbaarziek #invisibleillness #chronischziek #LongCovid #postcovidsyndroom #LongCovidLife #LongCovidAwareness #ruim3jaarziek #genietmomentje #lichtpuntje #blijheidsboost #sparkles #glimmers
Happy Monday everyone. I have been going over in my mind how many times I posted about my chronic illness the last week or so, and I want to apologize. I sometimes use this forum to vent because I have to get out the frustration I feel. Since it seems to be something that people don’t understand, I am officially going into my quiet era. I can’t keep trying to explain what it is like to live with something people don’t or won’t try to understand. Life is fleeting and I have to just keep going. I will try to refrain from posting my frustrations about living with a chronic illness. “Chronic illness, you don’t get it until you get it”. I hope everyone has a wonderful Monday and blessed and fulfilling week. Love and light. #dermatomyositis #chronicillness #invisibleillness #raredisease #tiredofexplaining #quietphase #educateyourself
If You Start Today, Then Less Than 1 Month From Today You Could Be Free To Enjoy Life, Free From Worries About Heart Attacks, Strokes, Alzheimer’s Disease, And Blindness… 👉 Click the link in bio @curediabete_
IT'S A GLORIOUS DAY!!! Been having a really rough few weeks flare up wise but when the sun is out it lifts my spirits ten fold. Being disabled isn't the end of living, on the days I can get out it makes everything worth it. Xx - - - - - - - - - - #redhairdontcare #redhead #redhair #curlyhair #curlyhairstyles #curvygirl #curvywomen #selfie #selfcare #selfhealing #selflove #disability #invisibledisability #invisibleillness #edsthings #edsawareness #fnd #functionalneurologicaldisorder #potssyndrome #potsawareness #pots #disabledandcute #posturalorthostatictachycardiasyndrome #alternative #alternativefashion #alternativeartist #alternativewomen #tattooedgirls #tattooedwomen #alternativewoman
Tag someone who needs to see this.🥰 - 📸 Via 📷: Unknown, tag to credit! - Tag someone who needs to see this💙 - 👉𝓣𝓪𝓹 𝓵𝓲𝓷𝓴 𝓲𝓷 𝓸𝓾𝓻 𝓑𝓲𝓸 𝓽𝓸 𝓸𝓻𝓭𝓮𝓻👆🏻 - - - - #rheumatoidarthritis #osteoarthritis #rheumatology #jointpain #arthritisrelief #arthritis #chronicpain #spoonies #rawarrior #juvenilearthritis #arthritiswarrior #inflammation #invisibleillness #invisiblediseasewarrior #rhuematoidarthritisawareness #rheumatoidarthritisfighter #rheumakinderev #rheumatoidarthritisawarness #rheumatologyaustralia #rheumatoiddisease #arthritisproblems #rasymptoms #rheumaesgibtkeinzujung #arthritispain
Today, I walked 5 more minutes than I could yesterday! WIN! It's hard to set goals when you live with an invisible illness. Never knowing when you'll be in too much pain to work towards a goal and dealing with setbacks are all part of the journey with chronic pain. Here's the key I've found: setting realistic and adaptable goals that prioritize my health and well-being. Getting my mind right every day, no matter what my body can or cannot do. (And this takes daily practice!). Instead of having a goal of continuing to up my mileage walking or go for more minutes each day, my goal has been to get in some form of daily movement every day. Today, that means walking longer than I did yesterday. Another day, that may mean a 5 minute stretch. It's all in the perspective shift. Remember, you are not defined by your pain. You are a warrior, capable of achieving incredible things, one goal at a time. Let's support each other on this journey of empowerment and growth!
No caption needed. Health 🧠 Health 🧘🏻♀️ Health life.
I have a lot of chronic illnesses/diseases/disorders that science has not yet determined causes for, in general and for me in specific. So, to give me something to attach it to - and because many things are hereditary or affected by trauma - can I just blame those on my narcissistic mother? ¯\_(ツ)_/¯ #me #mecfs #myalgicencephelomyelitis #fibro #fibromyalgia #chronicpain #chronicillnesses #invisibleillness #rls #plmd #anxiety #depression #gerd #migraine #pem #postexertionmalaise #autoimmunedisease #immunocompromised #disabled #invisibledisability #spoonie #spoonielife
This is a bit different from our normal aesthetic posts BUT Get to know us a little better ➡️➡️ 🧡The story of me and Lexies friendship🧡 Me and Lexi became friends at the beginning of her freshman year and my sophomore year! We met a homecoming dance that I got invited to and we clicked so fast. We exchanged all socials that night and kept in touch until the text dance rolled around! We only saw each other at school events but we absolutely love FaceTiming all the time and talking. The more we talked the closer we became and a new set of best friends were created so fast!! We slowly opened up to each other about some problems we had mentally and physically and realized we had LOTS in common which caused up to start thinking of ways to spread awareness and create a understanding to people who don’t have these problems. That’s how The Seen Projectt was founded!!! 🧡🩷🩵 #mentalhealth #mentalhealthawareness #anxiety #depression #mentalhealthmatters #metalhealthstigma #mentalhealthstruggles #motivation #invisibleillness #speakup #endthestigma #teenmentalhealthawareness #teenmentalhealth #teenmentalhealthmatters #teenmentalhealthsupport
CLC MEMBER FEATURE: Hi, my name is Audrey Tabor, I’m 17 years old, and I live in Dallas, Texas! I am an inclusivity advocate. I share my story, so others are more aware, more accepting, and know how to assist, essentially being more inclusive. I want to encourage others to share their stories or disabilities and differences also in order to make the world a more inclusive place. I have never been able to jump, skip, run, or do cartwheels. I lost the ability to climb stairs and get up off the ground independently around 5th grade. I was 6 months old when my pediatrician noticed my low muscle tone and squishy skin. My mom was told it was benign hypotonia until about the age of 3. At this point, we were told maybe it was cerebral palsy. At the age of 8, it was recommended I started seeing a neurologist specializing in muscle disease. She did a biopsy and diagnosed me with muscular dystrophy of an unknown type. Muscular Dystrophy is a progressive muscle disease where my muscles get weaker over time and there is currently no cure. At the age of 9 I was also connected to the National Institute of Health (NIH). This is where I was genetically diagnosed with Bethlem Muscular Dystrophy. Bethlem Muscular Dystrophy is a defect in the Collagen 6 gene, specifically in my Alpha 3 part of the gene. Today, I am thriving. I am a very active high school student participating in a rigorous IB academic program, cheer, a Muscular Dystrophy Association (MDA) Ambassador and Miss America pageants within the Miss Texas Scholarship organization. I love being a Titleholder and an ambassador for MDA for many reasons, one of which is to have a platform to share my story through my Service Initiative - Share if you Care. Living with a disability has its challenges for sure but mine does not define me, it drives me!
I’m really struggling with this lately. I have all of these thoughts of things I want to accomplish, but my body says otherwise. It’s one of the most frustrating parts of being chronically ill. . . . . . . . . . #chronicpain #chronicillness #chronicpainwarrior #chronicpainawareness #fibromyalgia #fibromyalgiawarrior #pots #potssyndrome #chronicmigraine #chronicheadache #newdailypersistentheadache #chronicfatigue #chronicallyill #fibro #invisibleillness #invisibleillnessawareness #chronicfatiguesyndrome #spooniesupport #spoonielife #dysautonomia #spooniewarrior #chronicpainlife #chronicillnesswarrior #multiplesclerosis #longcovid #lupus #crohns #ehlersdanlossyndrome #rheumatoidarthritis #endometriosis
Here are some tips that I would give individuals that have just been diagnosed with any chronic illness. I know these are some things that I wish I knew when I had first been diagnosed! What do you wish you had been told when you first got diagnosed? #endo #endosistersforever #endometriosistips #endowarrior #endometriosis #chronicillness #chronicpainwarrior #chronicillnessawareness #chronicallyill #chronicallyill #invisibleillness #adeno #adenomyosis #adenomyosisawareness #women #womenempowerment #womensupportingwomen #womenempoweringwomen #womenshealth #healthcare #womeninspiringwomen
MECFS - CANT GO FROM SEDENTARINESS TO MARATHON IN A DAY BECAUSE YOU " FEEL " OKAY-ISH. KEEP GENERALLY TO THE USUAL ROUTINE ON BETTER DAYS TO AVOID FLARES AND PEM. CAN EXCHANGE CERTAIN ACTIVITY FOR OTHER SIMILAR ACTIVITY BUT TAKE CARE NOT TO GO OVER BOARD ITS SUPER EASY TO DO #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #mecfsawareness #myalgicencephalomyelitis
If you can't manage something today, try again tomorrow 😊 and if it's too hard tomorrow, then try the next day 💛🌞 Quote by Dylan Thomas 🏴 Cymru am byth ❤️ . . . . . . . #chronicillness #chronicpain #invisibleillness #spoonie #as #autoimmunedisease #spoonielife #chronicfatigue #chronicillnesswarrior #mentalhealth #anxiety #butyoudontlooksick #chronicpainwarrior #health #chronicallyill #disability #chronicillnessawareness #pain #pots #depression #dysautonomia #autoimmune #flareup #survive #positivemindset #poet #dylanthomas #dylanthomaspoetry #cymru
When you're depressed, the desire to isolate can be s overwhelming. However, being alone with your depressed thoughts is not generally helpful. You can obsess, ruminate, and jump to irrational conclusions. You need other people to help reality test your thoughts. A depressed brain just can't do that. When you're in a major depression, you need to reach out, not in. For more about bipolar and isolation, read this: https://bit.ly/bipolar_isolation (Live link in stories.) #itsokaynottobeokay #survivingbipolar #survivingbipolardisorder #survivingmentalillness #mentalillness #bipolardisorderawareness #bipolar #mentalhealthadvocate #mentalhealth #mentalhealthawareness #bipolarlife #bipolardisorderawareness #majordepression #survivingdepression #chronicillness #invisibleillness #spoonielife #spoonie #depressedlife #sicknotweak #isolation
Regular exercise contributes to overall well-being by promoting a healthy lifestyle, reducing the risk of chronic diseases, and increasing longevity, leading to a happier and more fulfilling life. Incorporating regular exercise into your routine can have profound benefits for your mental health. Follow us for more related content! 🌐 www.curabh.com 📧 [email protected] 📞 (213) 933-8988 #cura #curabh #curabehavioralhealth #invisibleillness #pain #adhd #mentalhealthwarrior #mentalillness #depression #help #mentalhealthawareness #depressionawareness #selflove #anxiety #therapeuticjourney #mentalhealthadvocate #empoweryourmind #love #mentalhealthcare #disorder #selfcare
Each day you remain standing, despite the pain, is a small victory worth celebrating 🎉 #chronicillnesswarrior #Supportandempathy #supportingeachother #chronicpain #chronicpainsucks #chronicpainsurvivor #chronicillness #chronicillnesscommunity #spoonie #spoonielife #fibromyalgia #invisibleillness #Fibroflare #flareup #Chronicfatigue #EDS #CFS #MECFS #POTS #MCAS #Endometriosis #Endo #Migraine #invisibleillnessawareness #mentalhealthawareness #chronicpainlife #spooniesupport #mondaythoughts
🫶 During Parkinson’s Awareness Month, we’re shining a spotlight on the care partners who so selflessly give their time and effort to enhance the lives of their loved ones living with PD! Being a care partner can be demanding and challenging, but there are many tips that can help along the way. 👉 Read more about how to be an effective care partner at the link in bio. Thank you, care partners!
#POTS #dysautonomia #chronicillness #potsinformation #chronicpain #invisibleillness #potssyndrome #chronicfatigue #posturalorthostatictachycardiasyndrome #dysautonomiaawareness #mcas #chronicillnesswarrior #butyoudontlooksick #tachycardia #chronicallyill #autonomicdysfunction #potsawareness #longcovid #exercise #healthandfitness #medicagaslighting #brainfog #healthyeating #holistichealth #chronicillnesshumor #butyoudontlooksick
Are you a sufferer? I'm not...that word is not a part of my vocabulary! #survivor #GGPain #advocate #chronicpain #invisibleillness
#MentalHealthAwareness #EndTheStigma #BreakTheSilence #YouAreNotAlone #MentalHealthMatters #DepressionStruggles #AnxietyWarrior #TalkAboutIt #SupportAndUnderstanding #TherapyIsNormal #MentalIllnessIsReal #SelfCareIsImportant #ItsOkayToAskForHelp #MindfulLiving #MentalHealthJourney #InvisibleIllness #HealingAndRecovery #StrongNotWeak #BipolarAwareness #SchizophreniaAwareness #ComplexPTSD #ItsOkayToNotBeOkay #YouMatter #SuicidePrevention #KeepTalkingMH #BeKindToYourMind #MentalWellness #UnderstandingMentalIllness #ReducingStigma #FindYourSupportSystem
Our team at MIND recognizes the individuality of each person and provides tailored support and interventions to address their specific needs. 💙 _____ #Mindinstitute #autism #autismawarenessmonth #autismawarenessday #autismawareness #autismspectrum #disabilityawareness #invisibleillness #specialneeds #neurodivergent #speechtherapy #occupationaltherapy #sensoryintegration #Qatar #doha #multidiscplinary #multisensory #قطر #الدوحة #رعاية_خاصة #احتياجات_خاصة #التوحد #طيف_التوحد #دمج #التكامل_الحسي #صعوبات_تعلم #ذوي_الإحتياجات_الخاصة #شهر_التوحد #علاج_طبيعي
Recently diagnosed with POTS, OH, or another form of dysautonomia? Not sure where to start? DSN is here to support you and provide resources to help you THRIVE! Visit our website in Linktree! You may find the following helpful as you begin this journey: -Dysautonomia handout -Symptoms, diagnostic process, treatments -Healthcare provider directory -Lifestyle management techniques -Community support groups #Diagnosis #InvisibleIllness #MedicalMonday #Selfadvocacy #DidYouKnow #Education #Healthcare #Medical #DysSupport #DSN #Dysautonomia #POTS #LiveYourBestLife
Celebrating the small wins and recognizing the little improvements you have made in your healing journey is so important. #chronicpain #chronicpainwarrior #chronicpainmanagement #chronicpainawareness #chronicpainrelief #painmanagement #painrelief #neuroplasticity #nervoussystemregulation #nervoussystem #nervepain #healingchronicpain #smallwins #healthandwellness #fibrowarrior #crps #arthritis #fnd #cancerpain #multiplesclerosis #spoonie #invisibleillness
Yearly follow up Last week I had my yearly follow up. I head to the multi-disciplinary clinic where I meet with cardiology, hepatology, and respiratory. Cardiology🫀 My heart remains stable. My echo is unchanged. Dilated single ventricle with overall mildly reduced function, mild to moderate AV valve regurgitation and unobstructed Fontan and Glenn flow (these are all relatively normal findings for a Fontan of my age). My doctor has no concerns and neither do I. Hepatology 🩺 My hepatologist is happy with me. My liver numbers have gotten better since surgery and back to my normal. Although some of my blood work is elevated this is expected in a Fontan liver and it is functioning well. I have an ultrasound in June to assess my liver and my known nodules, but for now everything is stable and well. Respiratory 🩻 My pulmonary function test went well. I am not back to where I was pre surgery, but I am doing very well. She expects my lungs to get even better as I continue to work on my cardiovascular health. I am very lucky to remain stable and “healthy” for a Fontan in my 30s. I’ll see my doctors again in a years time, provided things remain status quo. #fontan #adultfontan #fontanadult #chd #adultchd #chdadult #chdaware #chdandcdh1 #dilv #fontanassociatedliverdisease #invisibleillness #spoonie #yearlyfollowup #cardiology #hepatology
THE MONTH OF MAY IS ONLY 2️⃣ DAYS AWAY‼️ 💜 🦋 ▪️The Month Of May Is Fibromyalgia Awareness Month! ▪️ May 12th Is International Fibromyalgia Awareness Day ▪️ The Awareness Color For Fibromyalgia Is Purple 💜 ▪️ The Awareness Symbol For Fibromyalgia Is The Butterfly 🦋 ▪️Promoting Fibromyalgia Awareness Helps Empowers Patients, Increases Understanding, And Provides Added Support For Those Living With This Illness! ▪️It’s Time To Get LOUD For Fibromyalgia!!! 🗣️ 📣 #FibromyalgiaAwareness #Fibromyalgia #Awareness #SupportFibro #Empowerment #Empowering #Patients #Support #ForYou #InThisTogether #TrendingTopic #Veteran #InvisibleIllness #CultivatingCommUnity #fyp #Cultivating #Discussion #CommUnity #Unity #StrongerTogether #Purple #Butterfly #Mariposa #GoTeam #Vets4Fibro #TeamFibro
… If movement is medicine, then let me introduce to you what I like to call ‘Movement Microdosing’. Movement Microdosing = Engaging in movement sessions that are smaller than the ‘norm’ but will still allow us to tap into the body’s abilities to heal without producing unwanted side effects like fatigue, discomfort, and/or post-exertional malaise. ⭐️Microdosing movement can allow for greater consistency and comfort while still getting the benefits of more traditional exercise or physio sessions. ⭐️Microdosing movement can help us avoid big dips or flares and get out of a boom & bust cycle. ⭐️Microdosing movement can enable us to better identify our baseline activity levels and feel more confident in what we’re doing. ⭐️Microdosing movement can leave us with spare energy for the body to heal and adapt so that we can become stronger rather than weaker. ⭐️Microdosing movement can allow us to simultaneously start to expand other life activities like self-care, chores, socializing, work, etc. If I’ve had the privilege of working with you through 1:1 Coaching, then YOU have already been microdosing- at least at the beginning! I’ve found this process to be very safe and highly effective for individuals living with energy-limiting illnesses like ME/CFS and Long COVID. In addition to consistently incorporating and eventually expanding intentional movement, we are able to establish a general strategy that can be used to begin expanding other life activities… because life isn’t all about movement! Remember that what counts as a ‘microdose’ for one person might be a full dose for someone else, so try to avoid making comparisons. Thinking of adding a new activity to your routine? Whether it’s intentional movement or a household chore, start small- smaller than you think. You should finish feeling like you could have done it twice, and you should wake up the next day feeling like you could perform the same activity, or something similar, all over again. The goal is to have an overall positive experience with the activity so that your body, brain, and nervous system feel safe and comfortable doing it on a regular basis.
Quote of the Week: Number Eight 🧠🐆 @alanna_wong #migraine #notjustaheadache #vestibularmigraine #chronicillness #migrainewarrior #migrainehope #migraines #chronicmigraine #invisibleillness #dynamicdisability #migrainelife #migrainecommunity #migraineawareness #migraineproblems #migrainesupport #migrainesufferer #migraineattack #migrainetreatment
8 years ago I was dying 109 lbs, orange skin, anxiety, depression, mood swings, fatigue beyond belief, unexplainable pain, never full despite eating all day yet unable to digest food, no cycle for years and the constant echo of doctors insisting it was all in my head Despite all the red flags, we couldn’t figure out what was happening to my body I was an active yogi, full fledge Autoimmune Paleo follower, meditating heavily, hiking and swimming daily and trying so deeply to emerge myself into a state of stable health Despite what every medical professional was saying, I knew something wasn’t right I had to become my own advocate, researcher, doctor and health support system On April 29, 2016, 20 days after our wedding, I was finally diagnosed with Addison’s Disease This one diagnosis transformed my entire life, and has now shifted everything I do from moment to moment, trying to keep Addison’s at bay and avoid a crisis I share my story because I never saw my symptoms talked about by anyone We didn’t know the warning signs, what Addison’s was or even what an Adrenal Gland did - so I hope to prevent others from struggling, going so long without a proper diagnosis and possibly save lives April is Adrenal Disease Awareness Month, today is my diagnosis anniversary and this is my story 💙 #addisonsdisease #addisonsdiseaseawareness #chronicillness #invisibleillness #adrenaldisease #thisisaddisonsdisease #adrenalinsufficiency #addisonsdiseaseawarenessmonth #spoonie #spoonielife #diagnosisjourney #diagnosisanniversary
Stay with us for more! 💙 Follow us @rheumatoidarthritisaction for more! DM us for credit/removal From @ . . . #rawarrior #chronicillness #spoonie #spoons #spoonies #invisibleillness #chronicpain #autoimmune #autoimmunedisease #RAsucks #spoonielife #joints #jointpain #rheumatoidarthritis #injection #flare #steroids #flareups #arthritis #rheumatology #rheumatologist #symptoms #triggers #pain #rheumatoiddisease #butyoudontlooksick #RAsymptomss
#chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #mecfsawareness #myalgicencephalomyelitis
I really miss the predictability of life when you’re healthy. I miss knowing I’ll feel well enough to do what I want and/or need to do. I wish I didn’t have to just do the “necessities.” I wish I could do what I need to do AND what I want to do all in the same day. But my body doesn’t typically work that way. My body is very limited energy-wise. My battery is easily drained. I have to pace myself. And what doesn’t drain me fast one day may drain me really quickly the next day, which is confusing because then how am I supposed to plan or know how to pace myself…? Just some thoughts about predictability and unpredictability on a Monday morning. Let me know your thoughts on this in the comment section! . . Disclaimer: I am not a medical or mental health professional. For any sort of medical emergency or mental health issue, consult with a medical and/or mental health provider. If you are in immediate danger, call 911 or 988 (crisis hotline). . . #ourchronicillnesstribe . . . #chronicillnessawareness #chronicillness #chronicillnesssupport #chronicillnesswarrior #chronicallyill #dysautonomia #dysautonomiaawareness #dysautonomiawarrior #chronicfatigue #chronicfatiguesyndrome #cfs #mecfs #mecfsawareness #chronicmigraine #migraineawareness #chronicillnesslife #invisibleillness #invisibledisability #invisibleillnessawareness #disabilityawareness #disabilitypride #disabled #chronicillnesslife #migrainelife #dysautonomialife #pots #posturalorthostatictachycardiasyndrome #potsawareness
The face behind the camera 📸 . For those that don't know me, my name is Matt and I started this small business as an outlet for a passion I've discovered in photography! . For the last 10 years I've been fighting multiple chronic autoimmune conditions, and recently things have gotten worse. With multiple emergency hospitalizations and surgeries, I needed something to help me mentally through my recovery. . The support I've received for my small business has been amazing, and I can't thank everyone enough! Supporting my business gives me purpose, allows me to share my passion with the world, and helps me financially to continue making my increasingly difficult life just a little bit better! . I have not been at this very long but cannot wait to show everyone even more amazing photos of my little country life I've created for myself! Thank you to everyone again!! ♥️🤷🏼♂️ . . . . . . #countryphotography #horsephotographers #smallbusinesssupport #kelownabc #followme #like #comment #amateurphotographer #amateurphotography #amateurphotos #amateurphoto #countryliving #countrylife #chronicillnessawareness #chronicillnesswarrior #invisibleillness #butyoudontlooksick #arthritis #arthritisrelief #chronicpainwarrior #ylw #vernonbc #okanagan #yycliving
"COULDN'T ??? WITHOUT YOUR COMFIZZ?" carrying out everyday tasks can be safer and more comfortable with the right support wear. #chronicillness #autoimmune #ibs #stoma #supportwear #invisibleillness #spoonie
The path towards healing is not always easy. But so worth it. - 📲Follow @thrivingca for more information about mental health and thriving. - #chronicillness #happiness #wellbeing #art #ocd #cbd #depressed #adhd #chronicpain #positivity #mindset #inspiration #bpd #socialanxiety #memes #depressionhelp #anxietysupport #depressionawareness #suicideprevention #stressrelief #suicide #fitness #hope #help #positivevibes #support #healthylifestyle #mentalhealthsupport #fear #invisibleillness
Not how they will sit in the quilt too but after re cutting the fabric thanks to @lisasew Cotton and Steel scraps, these are the U.K. Cross blocks from the Long Time Gone quilt. After a weekend out of the house and sewing, lots of brews and amazing company, my body as per usual has hit back. So I am in bed in agony, I will save you the details, but it’s not fun at all today. So my plans of sorting out the sewing room to possibly look at starting to record and post on Youtube will have to wait, and probably a good while, but the plans are there it’s just when my body can do it. #invisibleillness #crohns #lupus #autoimmune #notalldisabilitiesarevisible #crafttherapy #aurifilthread #aurifil #janome #janomemakes #sewing #sewn #longtimegone #jenkingwell #cottonandsteel #fabric #cotton #quilt #unionjack #cross #scrappyquilt
Eighty percent of rheumatoid arthritis (RA) patients experience chronic fatigue, a prevalent and overwhelming symptom that significantly impacts their quality of life. Often, patients cite it as more challenging to manage than the joint pain associated with the condition. #doctorarthritis #drarthritis #chronicdisease #chronicillness #chroniclife #invisibledisease #invisibleillness #spoonie #spoonies #spoonielife #health #rheumatoidarthritis #ankylosingspondylitis #psoriaticarthritis #osteoarthritis #arthritis #arthritissucks #arthritisinspiration #arthritiscommunity #inspirationalquote #juvenilearthritis #RAwarriors #OAwarriors #arthritiswarriors
#chronicillness #happiness #wellbeing #art #ocd #cbd #depressed #adhd #chronicpain #positivity #mindset #inspiration #eatingforhealth #socialanxiety #memes #depressionhelp #anxietysupport #depressionawareness #suicideprevention #stressrelief #metabolicpsychiatry #fitness #hope #help #positivevibes #integrativepsychiatry #healthylifestyle #mentalhealthsupport #nutritionalpsychiatry #invisibleillness
Community Care Rx-LTC Pharmacy is delighted to sponsor the Casino Royale for United Cerebral Palsy of Long Island at Monte Carlo to help support their mission to advance the independence, productivity and full citizenship of people with disabilities. @ucpoflongisland #pharmacy #seniorcare #seniorcaretips #communityservice #community #longtermcare #medicine #rehab #nursinghome #health #support #life #care #healthheroes #healthcare #2024vision #facility #goals #achievements #collaboration #partnership #resources #nonprofit #management #invisibleillness #humanity #treatment 💊
With chronic illness, we have enough to cope with without adding our own shame to anything. It can be tempting to entertain thoughts like, "Why am I still sad about this?" or "Others don't seem to struggle as much as I am," but remember- there's no normal for grief or a timeline. Chronic illness is a huge, life-changing experience, and it's okay to process it as you need to. #chronicillness #chronicpain #invisibleillness #chronicillnesshumor #autoimmunedisease #painmanagement #chronicallyill #chronicallysick #chronicallyawesome #chronicallyillmom #foodrestrictions #gutissues #glutenfree #dairyfree #sugarfree #fodmapfree #chronicillnesswarrior #chroniccommunity #chronicillnesssucks #silentillness #hiddenillness #grief
🎉Share this post to spread awareness about Lung Disease! ❤ #LungDisease #LungHealth #BreatheEasy #RespiratoryHealth #ChronicLungDisease #InvisibleIllness #COPD #Asthma #PulmonaryFibrosis #Emphysema #LungCancer #LungDiseaseWarrior #LivingWithLungDisease #WeCanFightLungDisease #CureLungDisease #YouAreNotAlone #KnowYourLungs #LungScreening #HealthyLungs #QuitSmoking #CleanAirMatters #AmericanLungAssociation #LungWalk #MyLungDiseaseJourney
"Pop icon Queen Gaga speaking truth on the seriousness of chronic pain. Buy your merchandise here:- https://www.latostadora.com/web/lady_g_with_phoenix/14127481 💪🎤 #love #foryou #lifestyle #challenge #fibromyalgia #chronicpain #health #invisibleillness #warrior #awareness #support #fighter #pain #relax #wellness #selfcare #meditation #LadyGaga #ChronicPainAwareness #Empowerment #Inspiration #SpeakYourTruth
They whispered to her "you cannot withstand the storm." She whispered back, "I AM THE STORM." . . . . 💪🦋🥄🧡🎗💜🎗💙🥄🦋💪 . . . #multiplesclerosis #selfcare #msawareness #rrms #curems #mswarrior #msstrong #trigeminalneuralgia #autoimmunedisease #chronicillness #chronicfatigue #invisibledisease #chronicpain #spoonie #spoonielife #mssociety #inspiration #invisibleillness #inspiring #msfighter #bepositive #sjogrenssyndrome #msjourney #msfamily #shareyourstory #inspirationalquotes #findyourself #rest
I can make life so complicated when it's really not. All I want, all I need, all I see, is God. Everything else are just blessed additions. All I want is God. The good, the bad, the pain, goodness, the pain, it's all pale in comparison to the presence of God and the strum of a guitar.
Undiagnosed Disease Day celebrates the patients and families living with chronic illnesses without answers. Every day they inspire us to continue our work at the UDNF making resources available to all undiagnosed families. Learn how you can get involved using the link in our bio! #undiagnosed #chronicillness #invisibleillness #inspirehope
I was listening to the We Can Do Hard Things (@glennondoyle) podcast this morning and it was their latest episode titled “Laziness does not exist” with Devon Price, and wow. If there was anything that was hyper relatable…this episode hit me like a ton of bricks. The way @drdevonprice has articulated what it is to grow through what you go through in such an insightful way that encourages you to just BE is now something I will be forever grateful for. Thank you. We can all learn from his words.
RESHARING #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #invisibleillness #invisibledisease #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #chronicpain #chronicpainawareness #chronicillness #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #painproccessing #nervepain #allodyniaawareness #allodynia #hyperalgesia #constantsymptoms #constantpain #chronicillness #chronicillnesscommunity #spooniewarrior #spooniesupport #spooniecommunity #spoonillicious #sickpeopleproblems #invisibleillness #stigmatizedillnesses #youngandsick #autoimmunedisease #flare #fibromyalgiaawareness #centralsensitizationsyndrome #centralnervoussystemdisorder #paindisorder #mecfslife #mecfswarrior #mecfsawareness #myalgicencephalomyelitis