Endo Warriors, family, and friends, we are THRILLED to announce that LFE has received the Prudential Community Grant for the second year in a row! We are honored and can't wait to roll out more amazing programs! #endowarrior #endowillnotwin #squeezinglemonaid
Thank you 4imprint for the One by One Grant. We are so excited to use our new signage. We can't wait to show it off this Saturday at the Summit hosted by South Ward Environmental Alliance - SWEA 💛 #endowarrior #1in10 #endowillnotwin
In honor of the last day of Endometriosis Awareness Month, here is a little letter that I have for my body. . . #endo #endometriosis #endowillnotwin #endobelly #endowarriors #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabilityrightsarehumanrights #disabilityawareness #disabilityrights #spoonie #spoonielife #spooniesupport #spoonies #spooniewarrior #spooniecommunity #invisibleillness #invisibledisability #invisibleillnessawareness #pain #chronicpain #chronicillnessproblems #chronicillnessawareness
Person of the day: @doc.talks.detox! I am OBSESSED with Dr. Caitlin’s account. Even though she is not focusing on Endometriosis, the advice she gives to help your body, helps with Endometriosis. Throughout this ENTIRE month, everyone has been stating that Endometriosis is a full body disease. I have been doing the castor packs, every night. I have been trying to keep up with the lymphatic drainage. Please go check out her page. . . #endo #endowillnotwin #endowarrior #endostrong #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #pain #chronicpain #chronicpainwarrior #chronicpainawareness #spoonie #spoonielife #spooniesupport #spooniewarrior #spooniecommunity #spoonieproblems #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabilityawareness
Person of the day: @the__endo__space!! The community that they have created has truly been amazing. Finding a safe community is so important and this is a page that shows it. They share important ACCURATE information about endometriosis! So go give them a follow. . . . #endo #endowillnotwin #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #pelvicpain #invisibleillness #invisibledisability #invisibledisease #spoonie #spooniesupport #spooniecommunity #spooniecommunity #chronicpainwarrior #chronicillnessawareness
I am tired of doctors telling people that when they have their period that being in debilitating pain is normal. IT IS NOT NORMAL. We need to change the narrative. There may be underlying issues going on including a potential diagnosis of Endometriosis. Doctors need to listen to patients instead of saying , “take Tylenol”. . . . #endo #endowillnotwin #endodoesnotdiscriminate #endohasnocure #endostrong🎗 #endowarrior #endoswareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #period #periodproblems #periodpain #invisibleillness #invisibleillnesswarrior #invisibledisability #disability #disabilityawareness #spoonies #spoonielife #spooniesupport #spooniewarrior #womenshealth #pelvicpain
Person of the day: @surviving.endometriosis ! Sometimes there are no amount of words to describe what it is like living with Endometriosis. @surviving.endometriosis illustrations truly show what it is like to live with Endometriosis. . . . #endo #endostrong🎗 #endodoesnotdiscriminate #endowarrior #endowillnotwin #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #pain #invisibleillness #invisibledisability #invisibleillnessawareness #chronicpainwarrior #chronicillnessproblems #chronicdisease #chronicpainawareness #invisibleillness #invisibleillnessawareness #invisibledisability #spoonie #spoonielife #spooniecommunity #spoonieproblems
Person of the day: @endometriosisem ! I really love following her because not only does she post a ton of informative content about Endometriosis but also her content about what it is like living with Endometriosis. I HIGHLY recommend following her. . . . #endo #endowillnotwin #endodoesnotdiscriminate #endowarrior #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #invisiblewomen #invisibleillnesswarrior #invisibleillness #invisibledisability #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #spoonie #spoonieawareness #spoonielife #spooniesupport #spooniesofinstagram
What are some of y’all’s essentials? . . . . #endo #endowillnotwin #endowarrior #endohasnocure #endostrong🎗 #endoawareness #endoawarenessmonth #chronicpainwarrior #chronicillnessawareness #chronicallyawesome #invisibleillness #invisibleillnesswarrior #invisibledisability #spoonie #spoonielife #spooniesupport #spoonies #spooniewarrior #spooniecommunity #chronicillnessproblems #disability #disabilityawareness
Your pain IS real! #endo #endowillnotwin #endowarrior #endohasnocure #endostrong🎗 #endowarrior #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #spoonie #spoonieawareness #spooniesupport #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #invisibleillness #invisibledisability #invisibledisabilityawareness
Person of the day: @chronically.illustrated !! If you have not heard about @chronically.illustrated …. You have now! Her illustrations are beautiful and shows what it is like living with endometriosis. Go follow her! Highly recommend! . . . #endo #endowillnotwin #endodoesnotdiscriminate #endowarrior #endohasnocure #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #spoonie #spoonielife #spooniesupport #spooniewarrior #spooniecommunity #chronicpainwarrior #chronicillnessawareness #chronicdisease #chronicallyawesome #invisibleillness #invisibledisability #invisibleillnessawareness #disabilityawareness #disability
Person of the day: @chrissy_eucatastrophe12 ! I recently found her page and honestly, I am so happy I did. Her page is INCREDIBLE! I learn a lot about Endometriosis through her. . . . #endo #endowillnotwin #endodoesnotdiscriminate #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #chronicallyawesome #spoonie #spoonieawareness #spoonielife #spooniesupport #spooniewarrior #spooniecommunity #spooniesisters #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicpainrelief #chronicillnesssupport #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabilityawareness
Creer en el mito de la “menstruación retrógrada” y que solo es una enfermedad que se encuentra en el útero puede provocar diagnósticos errados así como el atraso del tratamiento adecuado. Recuerda que esta enfermedad puede agravarse. Por eso es de vital importancia que ante mínima sospecha, acudir a los verdaderos expertos/as. Si tienes alguna experiencia por compartir, déjala en comentarios. Te leemos. Comparte/etiqueta a quienes deban saberlo. 💛🫶🏼 Nos encontramos en 📍CDMX-Morelia-Tijuana, escribe “consulta” si deseas seguimiento. 📨 #endowillnotwin #Endometriosis #Endowarrior #endobelly #Endometriose #Health #womenhealth #enfermedades #InstitutoDoyenne #Healing #healthylifestyle #viral #Hospital #Doctors #Doctora
Person of the day: @the_endo_funnies ! One of my FAVORITE accounts ever. This account is so relatable but also so funny. I highly recommend following her account. . . #endo #endowillnotwin #endowarrior #endostrong🎗 #endoawareness #endoawarenessmonth #endowarriors #endometriosis #endometriosisawareness #endometriosisawarenessmonth #spoonie #spoonieawareness #spoonie #spoonielife #spooniesupport #spooniecommunity #spooniewarrior #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #chronicillnesshumor #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabilityawareness
Am I the only one that goes through these? . . #endo #endowillnotwin #endowarrior #endodoesnotdiscriminate #endohasnocure #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endoawarenessmonth #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabilityawareness #spoonie #spoonieawareness #spoonielife #spooniesupport #spooniecommunity #spooniewarrior #spoonieproblems #disabilityawareness #disabilityrightsarehumanrights #disability
Person of the day: @endo.jorja! If you just want someone whose posts are extremely informative but also vulnerable follow this page! I love all the posts that they do, so give them some love! . . . #endo #endowillnotwin #endodoesnotdiscriminate #endowarrior #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #chronicallyawesome #invisibleillness #invisibledisability #invisibleillnessawareness #disabilityrights #disabilityawareness
Person of the day: @endometriosissummit ! When I first started my spoonie journey on Instagram, this account popped up. I followed for support but every time I logged on, there were videos that validated all the feelings I had. The videos posted had me not feeling so alone. So I want to share this page with you. It is truly incredible. . . . #spoonie #spoonies #spooniesupport #spooniewarrior #spooniecommunity #spooniesisterhood #endowarrior💛 #endoawarenessmonth #endowillnotwin #endodoesnotdiscriminate #endohasnocure #endometriosis #endometriosisawareness #endometrosisawarenessmonth #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #chronicillnesssupport #chronicpainmanagement #invisibleillness #invisibledisability #invisibleillnessawareness
PERSON OF THE DAY: @letstalkperiodau ! This was one of the very first accounts I followed when I decided to make my spoonie account. If you want to follow someone who is extremely educated about Endometriosis but also is sweet and kind and empowering, follow @letstalkperiodau . . . #endo #endowillnotwin #endodoesnotdiscriminate #endowarrior #endostrong🎗 #endometriosis #endoawareness #endoawarenessmonth #endometriosis #endometriosisawareness #endometriosisawarenessmonth #spoonie #spooniesupport #spoonieawareness #spoonieproblems #spooniecommunity #endocommunity #spooniewarrior #spooniefamily #chronicillnessawareness #chronicpainwarrior #chronicpainawareness #chronicillnesssupport #invisibleillnessawareness #invisibleillness #invisibledisability #disabilityrights #disabilityawareness #disability
Endometriosis is a FULL BODY disorder. We need to treat Endometriosis as a full body disorder instead of just a disorder that is around the uterus. . . #endo #endowillnotwin #endodoesnotdiscriminate #endowarrior #endoawareness #endoawarenessmonth #endowarriors #endohasnocure #endometriosis #endometriosisawareness #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #pelvicfloor #pelvicpain #pelvichealth #pain #invisibleillness #invisibledisability #invisibleillnessawareness #disabilityrightsarehumanrights #disabilityawareness #disability
Person of the day @rana.theartist ! I found Rana through RedBubble because I was looking for spoonie stickers. Rana’s artwork is gorgeous and represents what it is like being a spoonie. Please go give her a follow and support! . . . #spoonie #spoonielife #spoonieartists #spooniesupport #spoonies #spooniewarrior #spooniecommunity #spoonieproblems #spooniesisters #chronicpainwarrior #chronicillnessawareness #chronicpainawareness #chronicwarrior #endo #endowillnotwin #endowarrior #endoawareness #endoawarenessmonth #endometriosis #endometriosisawarenss #invisibleillness #invisibledisability #disability #disabilityawareness
The ladies of Zeta Phi Beta Sorority, Inc.- @newjerseyzetas are trailblazing and helping to shine a light on this debilitating disease. March is Endometriosis Awareness Month. Zeta Phi Beta Sorority, Incorporated recognizes the significant impact of this debilitating disease on those who battle it. We are committed to raising awareness about endometriosis through advocacy and research efforts. Our mission is to empower our sisters to prioritize their health by fostering understanding and encouraging them to ask questions. Through the Power of S.H.E. (Social, Health and economic Justice), we aim to promote global awareness and knowledge about endometriosis. For further information, https://www.who.int/news.../fact-sheets/detail/endometriosis #ilovemysorors #EndoWarrior #endowillnotwin
We need to acknowledge that men and trans men and nonbinary people ALSO suffer from Endometriosis. . . #endo #endostrong🎗 #endowarrior🎗 #endowillnotwin #endodoesnotdiscriminate #endohasnocure #endobelly #endowarriors #pain #chronicpainwarrior #chronicillnessawareness #invisibleillness #invisibleillnessawareness #invisibledisease #lgbtq #lgbtqcommunity
We need to remember the women, trans men and non binary people in Gaza. We need to acknowledge that they are suffering every single day. They are not only being murdered by Israel but they are also suffering internally due to Endometriosis. There is barely any medication in Gaza. The pain that we have all felt during our flares, that is the pain they are experiencing but in worse conditions. It’s important to be mindful of the luxuries that we have at this time. Free Palestine ✊🏽 . . . #freepalestine #freepalestina #palestinewomen #palestine🇵🇸 #palestine #palestinewillbefree #pain #endo #endowillnotwin #endowarrior #endodoesnotdiscriminate #endohasnocure #endostrong🎗 #endoawareness #endoawarenessmonth #endometriosis #endometriosisadvocacy #endometriosisawareness #spoonie #spoonielife #spooniesupport #spoonies #spooniewarrior #spooniecommunity #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicillnessproblems #chronicpainawareness #pelvicfloorhealth
These thoughts are not normal when someone thinks about going to the ER. And yet these thoughts are normal for people who have Endometriosis. . . #endo #endowillnotwin #endowarrior #endodoesnotdiscriminate #endowarrior🎗 #endohasnocure #endobelly #endometriosis #endometriosisawareness #endoawarenessmonth #spoonies #spoonielife #spooniewarrior #spooniewarrior #spooniecommunity #spoonieproblems #endoprobs #invisibleillness #invisibledisability #invisibleillnessawareness #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicwarrior #disabilityrights #disabilityawareness #disabilityrightsarehumanrights
Person of the day: @uhjeeze ! If you want another persons accurate depiction of what Endometriosis is… follow them. When I look at their images, I feel seen. . . . #endo #endoawarenessmonth #endowarrior💛 #endostrong🎗 #endowillnotwin #endohasnocure #endometriosis #endometriosissufferer #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicpainawareness #invisibleillness #invisibleillnessawareness #spoonielife #spooniesupport #spooniesisterhood #spooniestrong #invisibledisability #disability #disabilityawareness
El día de ayer asistimos para presentar por primera vez en la Ciudad de México, “Below the belt” en @uanahuacnorte con Patricio Cohn, su productor de @endowhat 👏🏼 🎥 Contamos con la presencia de @ramcabreramd @rembis.urologia @drederrivera @nutriologa.ariadnalopez quienes son parte fundamental del equipo multidisciplinario de endometriosis en el Instituto. Gracias a la Dra. Sylvia @sylvia_salmun y @samed23.24 por el apoyo. 🙌🏼 ¡Gracias a ti por asistir y unirte a la causa! Tu interés así como la creación de espacios en donde se concientice es el cambio paulatino que estamos buscando. ¡Vamos por más! Hoy, toca la presentación en @senadomexico ¡Queremos leyes! 🙌🏼💛 . . . #Endometriosis #EndoWarrior #Endometriose #EndoSurgeon #nutrition #endowillnotwin #Surgery #Doctors #Anahuac #CiudadDeMéxico #México
Hi! My name is Jordan and I am #1in10 with endometriosis 🎗️ Exciting update: I just submitted my paperwork and medical records to an endometriosis surgery center!! What a journey it’s been to find a qualified excision surgeon 😮💨 I will still have to travel to see this surgeon, but I’m feeling really hopeful for my consultation next month 🤞🏻 Let me explain a few of the barriers to endometriosis excision surgery: 👉 Um hi, I live in America, and healthcare is ungodly expensive. Need I say more? 🇺🇸 👉 Many doctors don’t receive adequate education on endometriosis in medical school, in large part because there is little research and a lot of misinformation about this condition. This can lead to procedures that cause more harm than good. 👉 Similarly, many surgical practices are outdated from this lack of understanding and education. I’ve heard from too many patients that their doctor recommended a hysterectomy as a cure for endometriosis—which is NOT true 🤦🏼♀️ The surgeons I’ve previously spoken to are still utilizing ablation methods for removing endo, which is proven to cause further inflammation and pain post-op. Endometriosis is also notoriously difficult to spot, so you really want a skilled, experienced surgeon! 👉 Can’t forget ✨medical trauma✨ and the deep reluctance and fear I have in placing my trust in doctors. Surgery has always felt like my “last resort” option, and I’m feeling so emotional over finally making taking that jump. 💛 If you haven’t gone through this process, it’s hard to convey how emotional and overwhelming this feels! Can anyone else relate or has felt similar things leading up to endo excision?
Person of the day: @drendometriosis ! I think that it is so important to follow doctors that specialize in Endometriosis. . . #endo #endowillnotwin #endodoesnotdiscriminate #endowarrior #endohasnocure #endostrong🎗 #endoswareness #endoawarenessmonth #chronicpainwarrior #chronicillnessawareness #chronicdisease #chronicpainawareness #chronicpainrelief #invisibleillness #invisibledisability #invisibleillnessawareness #spoonie #spoonielife #spooniesupport #spoonies #spooniewarrior #spooniecommunity
Person of the day: @drmamawahbourque ! As I have said before, the pelvic floor is extremely important in general but especially when you have endometriosis. One thing I have noticed on this endometriosis journey is that I do not see enough BIPOC doctors and people discussing endometriosis and your pelvic floor. That is why I think this page is so important! . . #endo #endometriosis #endodoesnotdiscriminate #endowarrior #pelvicfloor #pelvicpain #pelvicfloorhealth #endohasnocure #endostrong🎗 #endobelly #endowillnotwin #endometriosis #chronicpain #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicallyawesome #endoawareness #endoawarenessmonth #spoonie #spoonielife #spooniesupport #spooniecommunity #spooniewarrior #spoonies #disability #disabilityawareness
Person of the day: @jen.dometriosis! Jen not only talks about Endometriosis but also Adenomyosis! Her page has taught me so much about my uterus. I trust her over any health teacher discussing pelvic health. . . . #endometriosis #endo #endowarrior #endowillnotwin #endodoesnotdiscriminate #endohasnocure #endostrong🎗 #endowarriors #endobelly #endoawareness #endoawarenessmonth #endometriosis #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicpainawareness #invisibleillness #invisibleillnessawareness #invisibledisease #disability #disabilityrightsarehumanrights #disabilityrights
Person of the day: @therebelliousuterus ! . . I found her page a month or so ago and I am kicking myself for not finding her sooner. Her page is extremely informative but in a way that makes sense and not doctor jargon. . . #endo #endometriosis #endowillnotwin #endowarrior #endodoesnotdiscriminate #endostrong🎗 #endometriosis #endometriosisstrong #spoonie #spoonielife #spooniewarrior #spooniecommunity #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicillnessawareness #chronicpainawareness #invisibleillness #invisibledisability #invisibleillnessawareness
Happy International Women’s Day! I want to shout out all the women who suffer every day with the terrible disease, Endometriosis. I want to acknowledge that even though we celebrate women today, we need to recognize the women suffering in Gaza due to the genocide that Israel is causing. Women in Gaza deserve to be free. We are not free until EVERYONE is free. . . #endo #endowillnotwin #internationalwomensday #endowarrior #endodoesnotdiscriminate #endoawarenessmonth #endohasnocure #endostrong🎗 #chronicpainwarrior #chronicpainisnotnice #chronicdisease #chronicpainawareness #chronicillnessawareness #invisibleillness #invisibleillnesswarrior #invisibledisability #spoonie #spoonielife #spooniesupport #spooniewarrior #spoonies #spooniewarrior #spooniecommunity #spooniesisterhood
Person of the day: @chelsandhealth . . Following her is a MUST! She discusses Endometriosis and the impact it has on her life and she has documented her journey with looking at her eggs. Incredibly brave and I just appreciate how @vulnerable she is with us! . . #endo #endowillnotwin #endowarrior #endohasnocure #endodoesnotdiscriminate #endostrong🎗 #endometriosis #endometriosisawareness #endoawarenessmonth #chronicpainisnotnice #chronicillnessproblems #chronicpainwarrior #chronicillnessawareness #spoonie #spoonielife #spoonies #spooniesupport #spooniecommunity #spoonieproblems #disability #disabilityawareness #disabilityrights
Company of the day is @bien.aus ! This is one of my favorite pages because they show you exercises to help relax and/ or strengthen your pelvic floor. I have learned so much about the pelvic floor because of this page. The pelvic floor is extremely important and not enough people talk about it. No one talked to me about the connection between endometriosis and the pelvic floor. I highly recommend going to a pelvic floor physical therapist. . . #pelvicfloor #pelvicpain #pelvichealthphysio #pelvicfloordysfunction #endo #endowillnotwin #endowarrior #endodoesnotdiscriminate #endohasnocure #endostrong🎗 #endometriosis #spoonielife #spooniesupport #spooniecommunity #spooniewarrior #spoonieproblems #chronicpainwarrior #chronicpainawareness #chronicpainmanagement #disability #disabilityawareness
Behind the smile . . . #endo #endowarrior #endodoesnotdiscriminate #endostrong🎗 #endowillnotwin #endodoesnotdiscriminate #endostrong #endometriosis #endoawareness #endoawarenessmonth #endowarrior #endometriosisawareness #spoonie #spoonielife #spoonielife #spooniewarrior #spooniecommunity #spooniesupport #spooniecommunity #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicdisease #invisibleillness #invisibledisability #invisibleillnessawareness #disability #disabilityawareness
One of my favorite accounts ever is @endometriosis_surgeon . Learning about Endometriosis from a doctors lense is so fascinating to me. I love this account because we hear a doctor validating people who have Endometriosis and for most of us, that’s a rare experience. If you haven’t heard of @endometriosis_surgeon , PLEASE go follow him. . . #endo #endowarrior #endowillnotwin #endodoesnotdiscriminate #endostrong🎗 #endometriosis #endometriosisawareness #endoawareness #endoawarenessmonth #endoaware #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicdisease #chronicpainawareness #invisibleillness #invisibledisability #invisibleillnessawareness #invisibleillnesswarrior #spoonie #spoonielife #spooniesupport #spooniewarrior #spooniecommunity
@spooniesaga just recently got their official diagnosis for Endo 👏🏽👏🏽👏🏽👏🏽 I found their page a couple of weeks ago and I have been absolutely obsessed. HIGHLY RECOMMEND FOLLOWING THEM! . . . #spoonie #spoonielife #spooniesupport #spooniewarrior #spooniecommunity #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicpainisnotnice #chronicpainawareness #invisibleillness #invisibledisability #invisibleillnessawareness #endo #endostrong🎗 #endoawarenessmonth #endometriosis #endowillnotwin #endodoesnotdiscriminate #endowarrior
Your pain matters. Your pain is not defined by the stage of Endometriosis you have. No one knows why people’s pain is different but that is what makes this disease so hard to manage. . . #endo #endowarrior #endowillnotwin #endodoesnotdiscriminate #endowarrior #endohasnocure #endostrong🎗 #spoonie #spoonieawareness #spoonielife #spooniesupport #spooniecommunity #spoonieproblems #chronicpainwarrior #chronicillnessawareness #chronicpainrelief #invisibleillness #invisibleillnesswarrior #invisibledisability
Myth buster Monday: ❌ endometriosis symptoms are limited to the week of menstruation ❌ This is what my OBGYN told me when I brought up my chronic daily pelvic pain. For years, doctors told me that endometriosis does not cause symptoms outside of my period. ✅ Endometriosis is a full body disease. Although the worst symptoms are typically associated with menstruation, endometriosis can cause pain and symptoms throughout the month. Symptoms can also flare up in response to stress, exercise, diet, sleep, etc. leading to chronic inflammation and irritation of endometriosis adhesions. ❔ Have you ever heard this endo myth?
@freshlypeeledorgans is one of the most talented artists that show an incredible depiction of what it’s like to have Endometriosis. I love her page so much. . . . #spoonies #spoonielife #spooniesupport #endo #endowillnotwin #endowarrior #lestatestafinendo #endometriosis #invisibleillness #invisibledisability #invisibleillnessawareness #endoawareness #endoawarenessmonth #disability #disabilityrightsarehumanrights #disabilityawareness
“No one ever told me that grief felt like fear.” - C.S. Lewis I feel this today. I was 11 yrs old when I met Dr Redwine. He operated on a family member and I wanted to know everything about this disease that had ravaged someone I loved. Soon after meeting him I decided to write him a letter and ask for whatever information he had because I was doing a paper and presentation on endometriosis. The letter (shown in 2nd image) is exactly the kind of surgeon, fiery advocate… human he was. The 3rd image is the packet of articles and studies he compiled. Almost 15 yrs later he reviewed my own case. He believed me. He didn’t blaspheme my previous surgeons, he stuck to the facts. He meticulously addressed every point in my letter. I wasn’t just a patient, I was a human. I wish I’d trusted my gut and gone to Bend. Might have saved me several surgeries and organs. Hearing of Dr Redwine’s passing, my grief immediately felt like fear. I fear: 🎗️we lost a voice who never backed down - not to pharma, not to sharers of misinformation… we already have so few 🎗️further divisiveness in our community 🎗️despite his enormous amount of work / accomplishments so few have had the same amount of courage as Dr Redwine to generate greater change… we will still have much work to do. I hope we take a moment to sit with that grief that might feel like fear a moment. And that it lights a fire in us to explore and decide what kind of advocates for change we want to be. We all bring so many gifts to this community. We need advocates who are loud, we need advocates who listen, we need advocates who build bridges, and we need advocates who make the tools so bridges can be built. It doesn’t matter how large or small the tasks… we need them ALL. We lost a giant in our endometriosis community today. A giant who took the time to write a shy 11 yr old because he understood that truthful knowledge is power. Let’s not stop advocating with or fighting for the truth. One of the best ways to honor his legacy. Holding all who worked alongside him so close to my heart. Much love, Rosemarie #endowillnotwin #excisionsurgery #endoawareness #endoadvocate #endowarrior
This is the heartbreak of endometriosis, of chronic illness. 🎗️I’ve had 13 surgeries 🎗️I’ve almost died… twice 🎗️I’ve lost multiple organs 🎗️I’ve felt a burden (and sometimes still do) 🎗️I’ve been gaslit and even lied to by healthcare providers 🎗️I’ve been forced into resilience most of my life But this picture of the shirt they cut open to save my life means something even more. Endometriosis has also 💛 taught me to love hard, each moment 💛 grounded me in WHO I AM (after a lot of work!) 💛 shown me that I can do hard things again and again 💛 brought me deep connection not only in this community but in my relationships as I learned to be vulnerable, to ask for help This is what it means for joy and pain to coexist without minimizing each other. This is my life well-loved. Endo will not win. #endowillnotwin #endometriosispain #endometriosiscommunity #endometriosisawareness #endometriosisawarenessmonth #endoawareness #endoadvocate #endometriosissupport #endowarriors #endostrong #resilience #resiliencequotes #neardeathexperience #chronicillnessawareness #spooniesupport #certifiedlifecoach #icfcoach
From the ground up 📶💪🏼 6 weeks post #endometriosis excision and complete hysterectomy for adenomyosis. Ready to conquer the next stage of this ride we call life 💛
Can’t wait to start #summitsundays again!! #mountains #recovering #endometriosis #endowarrior #endosurgeryrecovery #summitview #canada #summerdays #missingsummer #endometriosisawareness #missingmountains #endowillnotwin #banffnationalpark #rockymountains #canadianrockies
And we’re off!! ✈️ The last few days I have been reflecting on the fact that’s this is actually happening. So may family and friends have supported me beyond belief to make the decision to leave the country for surgery. Understanding that my quality of life was suffering with no end in sight and I was needing more help. I am forever grateful to everyone that has supported me in all the ways! Hugs, vent sessions, crying session (LOTS OF THEM!), donations, phone calls, cards and messages, and everything else! You guys have helped me stay sane though this process and know that I’m making the right decision 🤞🏼 🥰 Forever grateful 🥹
It’s going to be okay, as cliche as that sounds. But not okay in any way, shape, form, tone, hue, color you could imagine. And yet it really does become okay, in fact better than any okay you could’ve dream (speaking in cliches again). Yeah life really did fall apart; dreams, desires, beliefs got shattered and dropped along the way. There’s grief in that. I know that’s a feeling we fear most but we survive it, again. And reality begins to give way to the room that was made by the things that were shattered and dropped. You thought after excision you would get back to you to your life and the dreams that had always been. This getting back to, it’s a thing that plagues our society. A barrage of side- by- sides, then vs now, before and after’s. One deemed bad, the other aspirational. But time only moves in one direction and trying to get back somewhere is a destination that can never be reached. Waste of spoons and we all know those are way to precious to waste. So while excision surgery was more than necessary and some relief was found. The sooner you can stop trying to get- back- to the more life you’ll have to live. Endometriosis is incurable and it will do it’s best to remind you of that. I dare you to invite it in, invite it to live with you because it isn’t going to be the reason you stop living anymore. Remember how I said it would be okay, but it won’t be in the way you want it to be. It’ll take adjusting and grieving and letting go of and rebuilding and doing it all over again. There’s so much still to learn, about the disease and living with it. About ourselves and views on life. About love and a family without kids. Slowing down to succeed. Opting out so you can opt in to only what you really want. And it’s all so gut-wrenchingly worth it. As cliche as it sounds, it’s going to be okay. #endowarrior #livingwithendometriosis #spoonielife #endowillnotwin #chronicpainsurvivor #childlessnotbychoice #slowliving
This morning I was hungry. Now that might not sound like a big deal, but it is. It’s been months since I’ve been actually hungry. Fatigue, pain, my body unable to fight even the smallest infections all got in the way. I’ve had to force myself to eat - which took the joy out of cooking, trying new recipes… I had to schedule food. But this morning, I CRAVED berries and nuts with my coffee 🥹. It usually takes me 20-30 minutes of real motivation, of stretching, easing into being able to get out of bed. This morning? I was tired, but I just simply… got up. I can’t remember the last time I didn’t struggle with this simple act. 🥹 I was told it might take up to 6 months to start feeling better - IF immunoglobulin therapy would work and make me feel better. I’m entering week 3. AND IT’S WORKING. At home infusions are an adjustment, overwhelming even. But if this becomes my new normal? 🙏🏻🥹🥹🥹🥹🥹🥹🥹🥹❤️ Grateful doesn’t even describe how my heart feels. Recent years have been so hard. Keep going loves. You’ve been through fire. You’ve survived the unimaginable. You will again and again and again. Rest every moment you can. Nurture that heart of yours with tenderness ❤️🩹 Soak in the moments of relief, the pleasant unexpected. Allow them to wash over you, so that you can keep going. #iginfusion #donateplasma #plasmasaveslives #plasmadonation #immunocompromised #getbetter #endometriosiswarrior #antibodydisorder #endowarriors #immunology #gratefulmoments #morningmotivation #relationshipwithfood #autoimmunewarrior #spooniesupport #spooniecommunity #chronicillnesssupport #chronicillnesscommunity #chronicallyill #chronicallyawesome #endowillnotwin #myillnesswillnotwin #invisibleillness
New stickers!! What do you think? 🌈 DM if you’d like one ✌️
I did a small hike today, and it’s amazing being able to write that I haven’t flared up since returning back to the cottage. Physical activity is important for keeping your health in good check, but when you have chronic pain (or really any chronic illness) this can be a really arduous task. Celebrating success when you accomplish some physical activity, even if that’s just a short walk, is something you deserve to do. For me, being outside during fall is one of my favourite things. I love the smell and feeling of crisp air, seeing the colours of the trees as they’re changing colour, and experiencing the feeling of some endorphins after a good walk! I treasure times like this, when I’m able to do the physical activity I want to do. So today I am feeling thankful to my body and the earth, among other things 🧡 what are you thankful for today? Happy thanksgiving fellow Canadians! • • • • • • • • • • • • • • #endowillnotwin #endowarrior #chronicpain #chronicillness #thanksgiving #autumn #fall #muskoka #huckleberryrock #nature #fallvibes
What a special day 🥰 My heart is so full, finally being able to meet this beautiful soul and friend. I am incredibly grateful that such a daunting messy and unpredictable path led me to you. Thank you for being such a light in this world @lifeabove_illness Cheers to many more years of friendship 💛
Tomorrow is surgery day!! I have waited so long for a doctor that would actually hear me, would listen to my concerns.. and take action! Surgery is a big deal, don’t get me wrong… but I’m most concerned about after. How long until it returns again? Will my doctor be able to remove 100%? Will recovery be just as difficult as it was three years ago with my first surgery? The thing about #endometriosis is there is no cure! You can do things to slow progression, but the chances of it returning are so high, in fact.. most women have to have multiple surgeries and have terrible side effects from drugs like #lupron many many years later. #endometriosisawareness #endometriosis #endometriosissurgery #endometriosissurgeryrecovery #stage4endometriosis #stage4endowarrior #endometriosisjourney #myendostory #myendojourney #endowillnotwin #lupronsurvivor #endoflareup
Update!! 1. 2nd and 3rd opinions 2. Advocacy 3. Autoimmune connections 4. NPAF.org @patient_advocates 5. Support group - 5 ppl! #invisibleillness #chronicpain #endometriosis #mcas #pots #sick #ill #journey #science #research #opinion #medical #live #hope #endowillnotwin #endocommunity
I can feel it. 🙏🏼💛✨☁️ I spoke so much truth today. Truth to family and truth in my appointments. I have stood up for myself and others in different ways. I am damn proud of myself for this. This light coming down for a moment over the bridge felt like acknowledgement. Although it is so nerve wracking and uncomfortable to share when you have felt harsh treatment or not be seen by someone for who you really are, you have to push through. Find some way today that you can share your truth with family, friends, doctors or just yourself. You are brave and kind for showing up in all of these scenarios that life throws your way. We all need to remember that every human being comes with so many stories and branches. You could be that one human that sees someone else as more than just another number passing by. Be that for somebody today. And as many days as you can. Love and light, Lor #endometriosis #medicalptsd #ptsd #mentalhealth #chronicpain #mcas #pots #endowillnotwin #diagnosis #journey #human #imonlyhuman #light #love #healing #invisibleillness
Sometimes all we can do is just keep going. Keep advocating Keep pushing the status quo Keep listening Keep doing the tough inner work Keep giving of yourself for something greater than you Some of our path is chosen for us - chronic illness isn’t something we did to ourselves. What we put in our pack (the coping tools we collect over time), our openness to accept love and support, the connections we make here in the chronic illness and endo community who will have our backs when we don’t have the strength….. These things keep us going in the face of: 🎗a doctor not believing you 🎗a debilitating flare up 🎗when someone / something disappoints 🎗grieving what once was & what will be My path the past year has been filled with switchbacks, dead ends, and trudging through some sludge… maintaining a business while building one that is truly against the grain and a sole purpose of accessibility has not been easy. Then I get messages from you that this work is making a difference, that people are feeling seen and included…. And I keep going. 💛 Today was a little gem. Thank you Shoutout HTX for highlighting my work, and giving me an opportunity to show a little taste of what we chronically face AND are capable of, and some of my favorite spots in houston too. Check out the full article in my stories or profile! Swipe right for a sneak peek. I wouldn’t be here without my best friends Celeste and Sarah. Advocates @heatherg4321 @endogirlsblog @shercastellano The surgeon who changed my quality of life Dr Sinervo at @centerforendocare and my entire collaborative care team @hou2pdx @chewsfoodwisely @carissa.parish @honeycombclinic and especially @stronglikecrystal for nominating me 🥰 #myillnesswillnotwin #endowillnotwin #chronicillnesscommunity #spooniecommunity #spooniesupport #spooniewarrior #endometriosiswarrior #endoadvocate #adenomyosisawareness #pcosfighter #wellbeingcoach #icfcoach
There you are I found you I was searching In and out of every realm Though all the while you shine It’s not an ego trip Within me you hid Until the sun was free Not dividing in two Simply waiting to be seen Hide and seek no more Fly on and soar #findyourself #found #selfjourney #chronicillness #selflove #endowillnotwin #mcas #pots #invisibleillness #iamwoman #endometriosis #1in10
Emergency room stories and management. Support group in the works. Message if you want to join in on next week 🙏🏼💛🌼🌻✨☀️ Www.tmsforacure.org #endowillnotwin #ptsd #trauma #emergency #endometriosis #mcas #mastocytosis #mastcell #emergencymedicine #support #endocommunity #chronicillness #illness #community #hope
Proud of me. #endowillnotwin #mcas
I realized many things today. I’m worth all that I expect. My intentions and path have been clear. My purpose is wrapped up in helping others who suffer like me. I want to project these feelings and intentions as often as I can. On good days I am trying to hold myself accountable to these thoughts and feelings. And know that they are always there if I only tell myself that they are. Love and light all #endowillnotwin #endometriosis #selflove #intentions #worth #love #light #endocommunity #endometriosis #mcas #mastocytosis #chronicillness #truth
Welcome Friends… I don’t think I ever did a detailed or proper intro on here. And I have since had the pleasure of welcoming more humans into this space. This space is for support, love and joy. Yes it is centered on #endometriosis and #mcas with some mamahood, food and life style of chronic illness human beings. I try my best to keep that all focused but to be honest I like a little bit of everything mixed together… even with my food lol. There will be shifts of topic and sharing as my life shifts itself. I cannot always prepare for the organized IG image that so many of you beautiful souls create. My time is precious and it will be utilized in a real life setting at this point in time. #reallife I am an open and free flowing person on my good days. This illness has changed me in so many ways but overall I feel stronger as a person because of all these challenges. It has forced me to gain wisdom and perspective that others do not have the chance to achieve at this point in their lives. My superpower is being able to adapt, as the baby child that was what I knew. That can often present as a people pleaser as well so fight it as I may I want people to like me 🙏🏼. The work is happening and my self love and awareness it growing everyday. 5 things you may not know 1. I have an 11 year old 1/2 brother 💛 2. The ocean is my happy place, and yes I love to roll in sand (husband cringes) 3. Chocolate was my fav food and now it is any gluten free pasta with pretend cream sauce (macadamia nuts) oh and blueberries 4. I’ve always lived in Pennsylvania 5. My husband and I have been together for 18 years- met freshman year of college and married 2013 💛💛💛 Please share your fav place or food below! North Lake Tahoe is one of my favs ever! #endometriosisawareness #endowillnotwin #gettoknowme #love #joy #chronicillnessjourney #chronicillness #mcas #mastocytosis #family #ocean #chocolate #pasta #laketahoe #oceancitynj
I am taking this gorgeous natural light as a good sign. #somewhereovertherainbow #rainbow #loveandlight #endowillnotwin #beatmcas #mastocytosis #chronicillness #inspiration #nature #naturalbeauty #sign #aftertherain
#healwithfood #endowillnotwin #mcas #lowhistamine
#endometriosisawarenessmonth #endowillnotwin #mcas #advocateforyourself #endowarriors
Dear Nonna … mama… sister…wife…friend You are so many things to the people you love. Words cannot convey the love I feel from you and for you. There are many days when my illness takes up too much space in our world. It can suck the happiness from things in an instant. But somehow you still make me feel so special and important every time we are together. I will forever be grateful to you for the way you loved me. It has taught me so many things about the depth of love and how you retain it and deliver day in and day out. Thank you for helping us raise Finnigan and showing him the deep ways love can change your life. I love you always and forever. Happy birthday. Love, Me @dkeefer2004 #endowillnotwin #birthday #mamasofendo #mama #daughter #nonna #love #mamaslove #happybirthday
#safespace #endometriosisawareness #endometriosisawarenessmonth #scienceforendo #changetheguidelines #endowillnotwin #progressiveresearch @centerforendocare @ramcabreramd @endometriosis_surgeon @endometriosissummit @endogirlsblog @endohealthhub @rosemariepcoach @dririsorbuch @camrannezhatmd 💛🙏🏼🌻
Reposted from @rosemariepcoach This stranger’s sister didn’t have to die. 💔Surgery was too much a financial stretch. 💔She was gaslit; not believed. 💔She was given a drug with promises that couldn’t be kept. What she needed was a skilled excision surgeon. What she needed was to be believed. What she needed was emotional, medical, and financial support. Greed and ego - that’s what it comes down to, and the patient is the one who suffers. Make excision ACCESSIBLE. Our lives depend on it. Thank you to @fierce.fearless.apparel for making this shirt. Today you helped someone feel less alone, and feel like their sister’s life MATTERED. ✨Check out more shirts like this for #endowarriors and #spoonies alike. #excisionsurgery #endometriosisawarenessmonth #endoawarenessmonth #chronicillnesswarrior #chronicallyill #medicalgaslighting #obgyn #acog #endometriosissurgery #endowillnotwin #endo #endometriosis🎗 #endojourney #endoadvocate #spooniesupport #endocommunity #endosupport
How are you stoic or resilient on your 💛 journey? Comment or DM! I’ve learned that being an Endo Warrior doesn’t mean being strong because 'I Push through the pain and get on with life anyway'. Being Stoic hasn't helped my journey, only hurt it. Over 15 years of being in pain and going to work anyway, going to the party anyway, telling people “I’m Fine” anyway, eating the food & drinking the drinks that made my Endo worse anyway (k…. still a work in progress), but you get it. I thought to really be strong, to really fight, I had to be hard & not budge on anything. Just do the thing anyway, because I had to get on with life. I felt guilty for resting, stopping, saying ‘No’ or show any sign of weakness or I would fall apart, be judged, miss out on so much more. I was wrong. Wrong to my own detriment and now, even with all the progress I’ve made, I still have lots of work to do. Maybe more than I would've had if I'd known Endo Warriors are healthiest when they work on being Resilient. That’s where the strength is. Resilience is being honest with yourself about your limits and boundaries, being flexible, open-minded & willing to learn about tools to ease the mental impact, reaching out to others, to be strong because you’re willing to be vulnerable. It’s so much messier.. like I cry A LOT. If someone asked me 6 years ago, “Would you rather be pain-free or explain to someone what your needs are, be completely honest about what expectations of you are unrealistic and explain why, give up wine and get into yoga a shit ton more?” I would've picked the pain. Putting in the work to learn resilient tools & grow as a resilient person is harder for me than being in pain, but worth it A Million times over. So, what are some resilient skill sets? 💪Viewing change as a challenge or opportunity 💪Self-efficacy and self-awareness 💪Realistic Optimism 💪Sense of humour, finding joy 💪Patience 💪Inviting others to support 💪Flexitiby in thoughts and emotions 💪Finding meaning and purpose 💪Faith, Spirituality #endometriosis #endowarrior #endometriosisawarenessmonth #endometriosisawareness #resilient #endohealth #beopen #vulnerability #healinginspo #growing #endowillnotwin
Last night I sobbed. I made a beautiful video that set a timeline of my son growing into the little boy he is becoming each day. This evening I remembered the tears. You see each day can feel like an entire week when one is chronically I’ll and mothering, even just adulting to the max. I sometimes forget to give myself the time to reflect on it all. I haven’t gone into great depth about the pain I felt choosing a hysterectomy because it wasn’t just about me anymore. It was about our family. It was a decision that solidified the future even though there are always “options” but at that point I began to accept that I may always be I’ll. I will always be coping with things my body just allows me to do. And last night that surmounted into an explosion of emotion. My baby is not a baby anymore and I will never create life again. That will be accepted but it doesn’t have to be right now. I can fall apart and build myself back up again. It may happen for years. And the part I have finally realized is that is alright. I am so proud of myself and my emotional process. I do not deny myself the opportunity to feel the shaken earth beneath me. When the chance is presented I meet it with full intentions. And when Finny comes to me some day and asks for a sibling, I can again meet it with pure love and honesty. It is important to me that he knows we can cry together and connect in that emotion. For the first time in a long time I embrace that sadness. It isn’t worth fighting it off because it is the beautifully broken part of me that I will always love. Love and light #endometriosis #adenomyosis #endowillnotwin #acceptance #chronicillness #motherhoodandchronicillness #mcas #love #light #family
🎗March is Endometriosis Awareness Month 🎗 . If you’ve ever heard me speak of Endo, you know that the definition is VERY important…because unfortunately, even though this devastating disease affects 1 in 10 worldwide…the definition is still often wrong in a lot of places which can be dangerous & problematic in receiving proper treatment. . So, what is it?? Endometriosis is characterized by the presence of tissue SIMILAR to the lining of the uterus (endometrial-like) located outside the uterus. These fragments are different structurally, and behave differently, from the normal endometrium which is shed during a period. This tissue causes pain, inflammation, infertility, and organ dysfunction due to inflammation, invasion into structures in the body, and scar tissue. Endometriosis impacts approximately 1 in 10 individuals assigned female at birth and is rare in individuals assigned male at birth. Symptoms are often dismissed as “bad cramps” leading to an average 7-10 year delay in diagnosis. (Taken from Nancy’s Nook) for me, I wasn’t formally diagnosed until I was 28…I had already been suffering & been repeatedly dismissed for over 14 years. . I’ll be posting each day this month to continue raise awareness & spread of correct information on this devastating disease & share common myths & misconceptions that can be harmful in perpetuating misdiagnosis & treatment of Endometriosis. More research & more qualified care are desperately needed. . . I am 1 in 10 🎗 . #endometriosis #endometriosisawareness #endomarch #1in10 #endowarrior #endowillnotwin #endowarriors #endostrong #endosucks #endometriosisawarenessmonth #excision #chronicillness #chronicpain #pelvicpain #selfadvocacy #invisibleillness #invisibleillnessawareness #advocate #mentalhealth
🎗March is Endometriosis Awareness Month 🎗 . If you’ve ever heard me speak of Endo, you know that the definition is VERY important…because unfortunately, even though this devastating disease affects 1 in 10 worldwide…the definition is still often wrong in a lot of places which can be dangerous & problematic in receiving proper treatment. . So, what is it?? Endometriosis is characterized by the presence of tissue SIMILAR to the lining of the uterus (endometrial-like) located outside the uterus. These fragments are different structurally, and behave differently, from the normal endometrium which is shed during a period. This tissue causes pain, inflammation, infertility, and organ dysfunction due to inflammation, invasion into structures in the body, and scar tissue. Endometriosis impacts approximately 1 in 10 individuals assigned female at birth and is rare in individuals assigned male at birth. Symptoms are often dismissed as “bad cramps” leading to an average 7-10 year delay in diagnosis. (Taken from Nancy’s Nook) for me, I wasn’t formally diagnosed until I was 28…I had already been suffering & been repeatedly dismissed for over 14 years. . I’ll be posting each day this month to continue raise awareness & spread of correct information on this devastating disease & share common myths & misconceptions that can be harmful in perpetuating misdiagnosis & treatment of Endometriosis. More research & more qualified care are desperately needed. . . I am 1 in 10 🎗 . #endometriosis #endometriosisawareness #endomarch #1in10 #endowarrior #endowillnotwin #endowarriors #endostrong #endosucks #endometriosisawarenessmonth #excision #chronicillness #chronicpain #pelvicpain #selfadvocacy #invisibleillness #invisibleillnessawareness #advocate #mentalhealth