I LOVE the water; swimming is one of the only times I am relatively pain-free. After doing some research & speaking with my Pain Management Team, I now understand why.. The buoyancy of water reduces pressure on your joints as well as your nerves. Swimming can also help to strengthen the muscles around the affected nerves. I have recently joined Aqua Aerobic classes & I'm excited to see the benefits of this form of exercise for me & my chronic pain. I am still keen to try more open water swimming too. Last Summer I swam in the sea, where I overcame my initial fear of the cold water; it's definitely a case of mind over matter with this for me! I've learnt that cold water swimming has so many incredible health benefits. Research shows that the stress reaction caused by cold water triggers an increase in white blood cell production, which provides a natural boost to your immune system & these endorphins can act as a natural pain relief while also improving your mood. However, I know I have to be mindful as my body naturally tenses up when I'm cold & the pain this can then cause my body as I begin to warm up & relax is excruciating. Now, off in search of my mermaid tail so I can live happily pain-free in the water 👀🧜🏻♀️😅 #endometriosis #endometriosisawareness #endowarrior #fibromyalgia #fibromyalgiaawareness #fibrowarrior #dysautonomia #ADHD #invisibleillness #invisibleillnessawareness #chronicpain #chronicillness #disability #invisibledisability #hiddendisability #worry #anxiety #grief #fight #nevergiveup #wholebodypain #positive #mindfulness #strong #listentoyourbody #water #aquaaerobics #exercise #healing #myendostory
Chronic fatigue and fatigue from chronic illnesses are so much more than just being “tired.” The fatigue from chronic health conditions is all encompassing. Let us know in the comments what you wish others knew about chronic illness fatigue? . . Disclaimer: I am not a medical or mental health professional. For any sort of medical emergency or mental health issue, consult with a medical and/or mental health provider. If you are in immediate danger, call 911 or 988 (crisis hotline). . . #chronicillnessawareness #chronicillness #chronicillnesssupport #chronicillnesswarrior #chronicallyill #dysautonomia #dysautonomiaawareness #dysautonomiawarrior #chronicfatigue #chronicfatiguesyndrome #cfs #mecfs #mecfsawareness #chronicmigraine #migraineawareness #chronicillnesslife #invisibleillness #invisibledisability #invisibleillnessawareness #disabilityawareness #disabilitypride #disabled #chronicillnesslife #autoimmunedisease #autoimmunelife #pots #posturalorthostatictachycardiasyndrome #potsawareness #ourchronicillnesstribe
I promised to be transparent when I started this page, and I promised to take you all with me on my journey to get my endometriosis operation. Well… I had a flexible sigmoidoscopy as part of the preparation for the operation in July. I had a new bowel consultant who wanted to check for rectal endometriosis to know if he needed to do a bowel resection from the get go because I had cyclical bowel bleeding when I had my period. Luckily no endometriosis visualised today, doesn’t really explain the bleeding but does mean I don’t need a bowel resection which I am super happy about! And I don’t care what they say the tea and biscuits they give you post procedure taste like heaven lol ! #ankylosingspondylitis #ankylosingspondylitisawareness #chronicillness #chronicpain #chronicillnessawareness #chronicpainawareness #invisibleillness #invisiblepain #invisibledisability #invisibledisease #endometriosis #endometriosisawareness #fibromyalgia #fibromyalgiaawareness #hidradenitissuppurativa #adenomyosis #adenomyosisawareness #hidradenitissuppurativaawareness #invisibleillnessawarness #invisiblepainawareness #invisibledisabilityawareness #invisibledisabilityawareness #spoonie #spoonielife
Multiple sclerosis (MS) presents a complex array of symptoms, with chronic pain being among the most significant. This pain may manifest as sharp, stabbing neuropathic sensations or persistent musculoskeletal discomfort, profoundly impacting daily life and overall well-being. Studies indicate that approximately two-thirds of individuals with MS identify pain as a major symptom, underscoring its profound effect on those managing the condition. Understanding and managing this pain involves a multi-pronged approach. Ergonomic adjustments help alleviate physical strain during everyday activities, while targeted physical therapy and medication are crucial for direct pain relief. Lifestyle changes, including regular exercise and stress management, play a vital role in maintaining physical health and managing symptoms. A comprehensive look into these pain management techniques underscores the importance of personalized strategies to enhance the quality of life for those battling MS. Each individual's journey with MS is unique, requiring tailored solutions that address their specific needs and challenges. -- Learn more about effective pain management strategies in MS here: https://www.mytraxel.com/forum-1/chronic-pain-ms/essential-pain-prevention-strategies-for-managing-ms ---------------- #multiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness #multiplesclerosisfoundation #mssocietyuk #nationalmssociety #mssupport #invisibleillness #mscommunity #MSwarrior #LivingWithMS #MultipleSklerose #MSstrong #traxel #mytraxel #CureMS #MSAware #EndMS #mssocietyofcanada #msconnection #autoimmunedisease #mslife #chronicillnesses #chronicdisease #invisibledisability #msawareness #fums #endMS #painmanagement #chronicpain
Dr: “If you wanted to get better, you’d be better.” Me:............. . . . . . . #Disabled #DynamicDisability #DisabilityAwareness #InvisibleDisability #DisabledLife #NotAllDisabilitiesAreVisible #DisabilityJustice #DisabilityPride #DisabilityPrideMonth #DisabilityInclusion #DisabilityIsNotInability #AbleismIsTrash #Ableism #DisabledAndProud #JustSayDisabled #DisabilityAndInclusion #InclusionRevolution #InclusionMatters #DisabilityAdvocate #Accessibility
What is IH? Idiopathic means doctors don’t know what causes it. We believe that the cause may be unknown, but our sleepiness is real. Idiopathic Hypersomnia Day (IH Day) is devoted to informing and acknowledging idiopathic hypersomnia on a global scale. IH Day mobilizes the IH community to raise awareness, educate, and uplift the voices of those living with idiopathic hypersomnia. To participate in IH day initiatives, go to - https://www.hypersomniafoundation.org/ihday/
I am registered blind and this is my guide dog, @ziggy_guidedog I’m often asked if I’m training Ziggy because I ‘don’t look blind’ (that’s another post altogether!), but do you know how to spot a working guide dog from a dog in training? Working guide dogs have white harnesses with yellow flashes (some have red flashes to indicate that their owner also has hearing loss). Puppies in training wear a blue coat and guide dogs in the latter stages of their training wear brown harnesses. This is the information for guide dogs trained by @guidedogsuk There are other charities who train guide dogs who have different practices. Photo shows Ziggy, a yellow Labrador retriever, sitting on a path. She is wearing her white and fluorescent yellow Guide Dog harness. She is yawning! . . . . . . . #MumsOfInstagram #TheMumEdition #UKMums #MumsSupportingMums #BlindMum #BlindSoprano #FirstBlindFemaleTVJudge #RetinalDystrophy #RetinitisPigmentosa #RetinitisPigmentosaAwareness #RPAwareness #Sightloss #SeeDifferently #SightlossAwareness #InvisibleDisability #ChangingPerceptions #Visionloss #BlindArtistsWW #ZiggyTheGuideDog #TheBlondeLeadingTheBlind #TheBlondeLeadingTheBlonde #GuideDog #GuideDogs #LabradorRetriever #DogsOfInstagram #GuideDogsOfInstangram
Vandaag heb ik de mogelijkheid gehad @reshma_1403 te interviewen en te fotograferen voor mijn project over onzichtbare ziektes. - - - #invisibleillness #invisibledisability #photography #photooftheday #photo #photograph #photographer #naturalightphotography #photographystudent
Aaron Grossman sustained a TBI in 1999. Click the link in our bio to read about his brain injury journey of support and acceptance. . . . #braininjury #braininjuryawareness #braininjuryrecovery #braininjurysupport #braininjuryresearch #braininjurywarrior #braininjuryadvocate #braininjurymatters #traumaticbraininjury #tbi #stroke #acquiredbraininjury #overdose #carcrash #invisibledisability #chronicillness #disabilityawareness #disabilityadvocate #braininjuryassociationofamerica
Having any disability can come with a lot of challenges but living with an invisible disability can bring on a very specific set of challenges around lack of awareness and understanding from others. Break through the stigma by listening to a lived experience! Watch or listen: thinkchange.info/InvisibleDisabilityPODVOD (link in bio) #Disability #DevelopmentalDisabilities #InvisibleDisability #Autism #ASD #AutismAwareness #AutismAcceptance #DisabilityServices #EmotionalRegulation #Triggers #SchoolSupport #UseYourVoice #SocialSupport #CelebratingDifference #ThinkChange #ThinkChangeTraining Image description: A silhouette of four heads that decrease in visibility right overlapping each other, with a black microphone and three green sound lines. Text reads Invisible Disability. In the top corner is the Think Change Podcast Vodcast album cover. At the bottom are the logos for Apple Podcasts, Spotify, and iHeart Radio.
Mental health can be impacted greatly when dealing with Chronic Illness, always put yourself first and talk to someone if you can 🫶🥄❤️ Credit to: @calmkabira @dr.0fa @selfcare.recipe #chronicpainsurvivor #chronicpain #invisibleillness #chronicpainawareness #invisibledisability #mentalhealthmatters #mentalhealth #mentalhealthawareness #depressionhelp #chronicillnessgrief #chronicillness #invisiblefight #chronicallyillmum #chronicpainsucks #chronicillnessawareness #butyoudontlooksick #constantpain #chronicallyill #chronicillnessburnout #autoimmunesupport #ankylosingspondylitis #arthritis #spoonie #spoonielife #managingchronicillness #chronicpaindepression #butyoudontlooksick #depression #medicalgaslighting
Today is National Sarcoidosis Day! Sarcoidosis is an inflammatory disease that causes the immune system to overreact and make lumps called granulomas. These granulomas are an area of inflammation that is made up of white blood cells and other tissue. Granulomas can be caused by many things such as an infection or a foreign body, such as stitches. In the case of Sarcoidosis the cause of granulomas is unknown. In people with Sarcoidosis the granulomas are most commonly found in the lungs and lymph nodes, but can also affect the skin, heart, eyes, and other organs. Symptoms of Sarcoidosis depend on where the granulomas are; some people may not experience symptoms. Those who have symptoms may have fatigue, swollen lymph nodes, weight loss, and pain and swelling in joints. Sarcoidosis can also have long-term complications that are also based on what organs are affected. The cause of Sarcoidosis is unknown, but we do know what risk factors can increase the risk of someone having sarcoidosis. Age: Sarcoidosis is more common between the ages of 20 and 60; Sex: Women are slightly at an increased risk; Race: people of African or Northern European descent are at a higher risk, and those with a family history are at a higher risk. Sources: ClevlandClinic.Org, Lung.Org, MayoClinic.Org and MedlinePlus.Gov [Image Description: A purple background, white text, and a purple awareness ribbon. The text reads “April 30th, 2024” and “National Sarcoidosis Day”.]
Here is our schedule for May! We will be covering chronic illnesses and their impact on mental health, specifically generalized anxiety disorder (GAD), Depression, Anxiety, Post-traumatic stress disorder (PTSD), and Medical Trauma/PTSD. We have meetings on May 7th and May 21st, both at 8:00 PM EST on Zoom (link in bio). On May 7th, we will be presenting on these topics, and on May 21st, we will have guest speakers. The zoom link is in our bio! [Image Description: A green background with black text. The title reads “Invisibly Aware Series May Schedule”. The subtitle reads “Chronic Illnesses And Their Impact On Mental Health”. Below is a bullet point list that reads “May 7th at 8:00 PM EST, on Zoom; An educational presentation on this topic” and “May 21st at 8:00 PM EST, on Zoom; Guest speakers talk about their experience with chronic illness and mental health”.]
After some awful comments from a certain UK politician, I wanted to comment ‼️ What is being suggested and discussed is undeniably awful and scary, do I think it'll actually happen? Honestly, no, I believe this is an extreme attempt to win over a certain portion of the voting public 🙄 But whether it happens or not doesn't take away from the fear, anxiety and stress these types of suggestions being plastered over the news and social media can do to a vulnerable community 👏 Mental health can be disabling, disabled people need their payments and not a one-off grant or coupons, and we should be taking care of vulnerable members of our communities 💯 It is horrifying, and yet sadly not shocking, that this government and this man are making these sorts of comments, and so disheartening to be reminded how far we still need to come in disabled education and advocacy 😪 I'm sending all my fellow UK people all the peace and love in the world, these are scary times so do what you can to switch off and relax where you can ❤️ #Access - Em, a fem white person with long light brown hair, is sitting on their bed wearing a white t-shirt with a green shirt over. They look into the camera, first with a soft smile, then shrugging, then looking serious. Text reads: It's not OK to suggest taking disabled people's limited resources away. Even if it's just a last-ditch attempt to score some voters. This is real people's lives you're discussing, and it can be terrifying. #DisabledCreator #DisabledPeopleAreHot #YouDontLookSick #InclusionMatters #ChronicallyIll #Fibromyalgia #FibromyalgiaAwareness #ChronicIllnessLife #ChronicPainWarrior #DisabilityInclusion #DisabilityPride #SpoonieLife #InvisibleDisability #InvisibleDisability #Neurodivergent #ADHD #MentalHealth #AnxietyAndDepression #DisabilityBenefits
ᴄᴀʀɪɴɢ ꜰᴏʀ ꜱᴏᴍᴇᴏɴᴇ ᴡɪᴛʜ ᴀ ᴍᴇɴᴛᴀʟ ɪʟʟɴᴇꜱꜱ ʜᴏᴡ ᴄᴀɴ ɪ ʜᴇʟᴘ ꜱᴏᴍᴇᴏɴᴇ ᴡɪᴛʜ ᴀ ᴍᴇɴᴛᴀʟ ɪʟʟɴᴇꜱꜱ ɪɴ ᴀ ᴘʀᴀᴄᴛɪᴄᴀʟ ᴡᴀʏ? As someone who knows them well, you can play an important role in the person’s care. Here are some ways you can support them: 🫶Ask your loved one if you can come to their medical appointments. As well as providing emotional support, you can provide another perspective about their illness and treatment. Having another person at appointments can also help them recall what was discussed. 🫶If your loved one is receiving treatment in a hospital or mental health facility, help them make plans for when they go home. Ask if you can attend a discharge planning meeting (with their consent). 🫶Be aware of the warning signs that your loved one is becoming unwell. A mental health safety plan including these details can be very helpful. If your loved one has made a safety plan, keep it somewhere that’s easily accessible. 🫶Offer practical help such as preparing meals, shopping or cleaning, since some people recovering from a mental illness will find everyday tasks overwhelming. But eating well and living in a pleasant environment can aid their recovery. #ndis #risefamilysupport #and #adhd #family #support #invisibledisability
I used to be someone who *needed* to post every week, multiple times a week. Because if I didn’t, I was being a “bad” “ig therapist”. I used to check instagram every day, multiple times a day, because I *needed* to be in the know; because I needed inspiration for new content; because I *needed* to be up date with everyone in my life. . And ever since my surgery, and probably even before, I’ve noticed that the things that once felt important and mandatory to me, have shifted. I’ve noticed that my capacity to constantly be on and engaged and give and give and give to people until I’m empty, doesn’t exist anymore. A lot of this has to do with post surgery complications and constantly living in survival mode/ having so little capacity in general. And, I think living in survival mode has also made me realize what is truly important to me, and what isn’t. . And when I get quiet and lean into myself, what’s important is rest. What’s important is self-care and ease and making sure I can breathe. What’s important is being present in my life and attending to what’s in front of me, rather than living vicariously through other people’s lives and consuming content that makes me feel like I need to be anywhere other than where I currently am. What’s important to me is slowing down. My connections with friends and family and people who make my heart feel less heavy. What’s important is joy, and these days, I don’t get to experience a lot of it, so I feel particularly protective of my time and capacity and energy. . I don’t know what I want my relationship with instagram to be moving forward, but once my internship is over and I have more space to breathe, I know I want to show up here in a way that is raw and honest and vulnerable and flexible, and honors my self-care and what feels important to *me* to share, rather than what will be “good” or “popular” or “consistent”. . Hoping you all can give yourselves permission to do less if and when you need to, to shift as your values shift, and to show up in ways that honor what you currently need, knowing that it’s all allowed to change as we grow and change 💌 . Image descriptions will be included in the caption below.
Thinking about taking part in the 2025 London Marathon (www.tcslondonmarathon.com) – there’s a whole year before the 27 April event next year. Drop us an email to tell us your story and why you’d like to run for the charity – we’re keen to work alongside all next year’s runners, through wind and rain, and cheer you on along the whole journey to the finish line. Limited Stickler Syndrome UK places are managed by www.crunch.org.uk where you can register your interest in applying. #sticklersyndromeawareness #sticklersyndrome #sticklersydrome #sticklersyndrome #raredisease #rarediseases #invisibledisability #invisibledisabilities #londonmarathon #londonmarathon2024 #londonmarathon2025 #londonmarathontraining #marathontraining #marathon #fundraising #marathontraining
There is nothing like the spring sun to make me want to dance ☀️🧚 Cossing my fingers the flowers I planted this year will come up stronger after we composted the beds. I'm looking forward to seeing some bright coloured flowers this year. I don't know what it is, but the water butt my fiancé bought is so much easier to use for refilling me watering can than the outdoor tap. #Spring #Garden #Gardening #Sun #Sunshine #DisabledJoy #DisabledFashion #BuildALadder #InvisibleDisability #InvisibleIllness #MyalgicEncephalomyelitis #MECfs #ChronicFatigueSyndrome #ChronicIllness #ChronicFatigue #CFS #Planting
Anonymous Writer "Misconception. My husband is disabled. He has been disabled for the past 18 years! This happened in the workplace. He also has other debilitating medical issues. We have run across many misconceptions. When you see my husband, he looks like a normal functioning person. Here are a few things that we deal with. I can recall a few years ago I went into the city hall to fill out paperwork because the city was having there city clean up day and for those who were disabled or elderly they would come and pick up items at your residence. I filled out the paperwork and handed it to the clerk, and then they proceeded to look it over and said to me that it's for people who are disabled or elderly and you don't fit in any of those areas. I was embarrassed and felt defeated. I started to cry and told the clerk not everyone who disabled looks disabled. This was a hard time in our life, and his health was not in a good place. We have dealt with comments of people telling my husband he is lazy because im the one doing the harder labor work. I feel like I have to explain myself all the time and be an advocate for him." -- Thank you for this story. I'm sorry you had to experience that. You shouldn't judge people by the way they look because there is always more going on. -- #projectmisconception #misconceptions #disability #idontlookdisabled #invisibledisability #shareyourstory #storytime
The Circle of Health. This right here is the map to your Whole Health journey. And my personal favorite part is that we are at the middle! Because seriously, how often in a doctor’s office do you feel like you are actually the one at the center? First of all, I am a visual learner and I love a good graphic organizer. But I’ll admit this threw me a bit the first time I saw it as I didn’t understand how to read it. However, it quickly became a tool I referenced often during my training. The second thing that I didn’t realize, or perhaps had never actually stopped to even consider, is how I defined health. To me I assumed it was fairly straightforward-physical, mental, and emotional. But then I listened to the explanation of the concept of a circle of health and how all these smaller inner circles really made up my whole health. And it slowly started to make sense how my brain injury was more than just a physical injury. My brain injury was impacted by or impacted all of these areas of my health and I don’t know that I even really had a clue. Some areas were more obvious, like my energy, but I didn’t really consider how my relationships were being impacted. And I certainly didn’t consider how that was impacting my overall health. Once I started to piece together all of the different aspects that really went into defining health, I found that I started to understand my brain injury journey better. I had spent so much time focusing on just the physical and the mental aspects of my recovery without realizing I was neglecting all of these other realms. I actually recently was assessed by a naturopathic doctor and it was amazing how he touched on more of these aspects of health in one single visit than any “typical” Western medical doctor I have ever seen. We all know medicine and our patient experiences with it have a long way to go. But the social worker in me is so excited to see that there are shifts starting to be made, even if they are small ones. We really deserve to be at the center of our own care. I wish I had been more of the time as I think my journey would have taken a different path. What about you?
Ziggy takeover, 1st edition: Mom has been teaching me a balance task without a harness! That thing gets really sweaty sometimes and makes my tongue hang low. She holds this strap she has me wear and I’m learning to move in the opposite direction of the pressure she applies. Mom almost fell backwards on an escalator the other day. My new strap should help in times like those. She said to make sure I tell everyone that in times like those, if using a strap like this, that it’s important to pull up to keep me safe. Not sideways or backwards. She keeps telling me we are moving somewhere. She’s been looking at her phone a lot. Something called “homes for sale”. I just hope there’s cookies there too. And I hope mom is happier there. People here always try to walk in between me and mom. She said my new strap helps with that too. People also try to pet me all the time. Mom always says no if they ask. I like when she says no. I don’t like pets on my head while I’m working. They are itchy. I shake my whole body off after. Anyways, it’s getting hot here in NYC and here are some selfies of me walking and chillin in the #subway with my mom. The last video is of me doing one of my favorite things…carrying my bully stick home from the pet store. It’s so crunchy and delicious. I wish I had one everyday. #veteranservicedog #servicedog #mobility #servicedogssavelives #invisibledisability #mobilityaid #disabledveteran #labrador #labsofinstagram #workingdogsofig #assistancedogs #dontpetme #subwaydogs
Our April newsletter is here, and we have some amazing updates to share with you! This month, we have been listening to your feedback and putting it into action. Our online chef Kay, will be starting in mid-May with all recipes uploaded on our YouTube channel. 🍽️ Ten pamper hampers 🎁 were carefully wrapped yesterday, and will be sent out tomorrow (Wednesday). Most importantly, we have teamed up with Ruils, an amazing charity dedicated to supporting individuals with disabilities and offering a range of services. For more information, visit www.ruils.co.uk to see how they can help. Stay tuned for more exciting news next month! Stay Marvellous 🦋 From all of us at Chronically Marvellous. #ChronicallyMarvellous #SupportingDisabilities #RuilsCharity #invisibledisability #chronicillness
ID: Your plan - A straight route to the finish line. Reality - All the ups and downs and challenges you might be faced with on your journey to your end goal. Does this feel familiar? When living with disability or a chronic illness you may have to navigate many barriers, problems, issues, and challenges that you may not expect to. Sometimes this can be stressful, upsetting, anxiety provoking, and emotionally, mentally and physically draining. Do you relate? It can take its toll at times. If you need support get in touch! www.emotionalrespite.co.uk Appointments Available! #OnlineCounselling #Challenges #BreakingBarriers #Plan #Goals #CounsellingServices #DisabilitySupport #DisabilityAwareness #DisabledLife #InvisibleDisability #InvisibleIllness #ChronicIllness #MentalHealth #EmotionalHealth #MentalHealthMatters #Therapy #DisabledTherapist #DisabilityAdvocate #TherapySessions #Counselling #UK #DisabledCounsellor #DisablilityLed #NothingAboutUsWithoutUs
Positive neurodivergent quote of the day 🤍♾️🎧 #autism #autismawareness #disabilityawareness #disabilityrights #adhd #adhdawareness #adhdwomen #neurodivergent #womensupportingwomen #dyspraxia #mentalhealthawareness #meantalhealth #inclusion #recovery #recoveryjourney #occupationaltherapy #invisibleillness #invisibledisability #dailyaffirmations #retreat #selflove #positive
This #TerminologyTuesday do yourself a favor by learning your directions prefixes, so you can "navigate" your health care. Gone are the days when you scrambled to look up medical terms in the doctors' office, so you could know what to ask. Health literacy gives you more control over your own health care. Test Yourself! In the comments, define the following words by breaking down the word into it's parts (without looking them up): 1. (Blood) Transfusion 2. Epidural Comment below the answers to the following questions: 3. Where in the knee is the posterior cruciate ligament (PCL)? 4. Where in the knee is the anterior cruciate ligament (ACL)?
Living with chronic illness often means facing changes in our bodies that are beyond our control. Whether it's weight fluctuations, scars, or physical limitations, these changes can challenge our sense of self-worth and body image. But here's the thing: our bodies are resilient, beautiful, and deserving of love and acceptance, no matter their shape or condition. Embracing body acceptance on the journey of chronic illness is not only possible but essential for our mental and emotional well-being. Instead of fixating on what our bodies can't do or how they've changed, let's focus on what they can do and the strength they possess. Our bodies are incredible vessels that carry us through life's challenges, and they deserve our gratitude and appreciation. Body acceptance isn't about denying the realities of chronic illness or pretending everything is okay. It's about embracing our bodies with kindness and compassion, honoring them for all they've been through and continue to endure. So today, let's make a commitment to ourselves: to treat our bodies with the love, respect, and acceptance they deserve, despite the changes brought about by chronic illness. Let's celebrate our bodies for their resilience, beauty, and unwavering strength. Together, let's embark on a journey of body acceptance and self-love. How are you going to show yourself some love today? #chronicillness #fibromyalgia #celiacdisease #flareup #shortonspoons #spoonie #chronicdisease #invisibleillness #chronicpain #anxiety #invisibledisability #support #ms #lupus #fibro #spoonielife #mentalillness #chronicillnessawareness #chronicillnesswarrior #fibromyalgiaawareness #chronicpainawareness #selflove
Today's #TuesdayTip post is the continuation of my post from April 16, 2024. I'm sharing five more ways to help you deal with brain fog. -Puzzles, reading, word searches, etc.: These activities can help your mind stay active. There are a variety of print and online/app options for this. There are so many options that there's likely to be something you'll enjoy. -Organize your workspace, home, wherever!: Perhaps you're familiar with this quote from Benjamin Franklin: "A place for everything, and everything in its place." Well, there's a lot of truth to that. Keeping things as organized as possible, and keeping items in the same place when possible, can eliminate the need to waste spoons looking for where you left your work projects, remote, etc. By doing this, you'll know where to look for your regularly used objects vs. spending hours wandering around your house or office looking for them. -Music (especially music with binaural beats): Music is so powerful, in many ways. Binaural beats have been shown to increase focus, help with sleep, improve memory, lower stress, and boost creativity, among other things. But even "regular" music can be beneficial. -Do what you can to reduce stress.: Reducing stress can help with focus, as well as help us stay "in the moment" vs. going down the rabbit hole of "what-if" thoughts, which rarely serve any positive purpose. -Don't push through it.: Some people believe this is the way to proceed, but it's not. In fact, it just makes things worse. Brain fog is one of the many ways your body may be telling you that you need to take a break and rest. So be sure and listen to your body. Do you have any other tips that you find helpful when dealing with brain fog? If so, please feel free to share them. I wanted to let you know that during the month of May, I will not be posting any #TuesdayTip posts or the Friday #Lifewithchronicpainandillness posts. I will still be around and posting, but right now, I need to conserve my. Sorry for any inconvenience this may cause. I hope you have a low-pain day. Gentle hugs your way 🤗
Revolutionaries Press and Shining Light Arts is proud to present: When The Invisible Becomes Visible 24 pages $7 Free to people with invisible disability . My first real zine is finished and for sale! . From the back cover: “when the invisible becomes visible is a zine about invisible disabilities, what they are, struggles for recognition, and against ableism for those that have them, information on service dogs for people with invisible disabilities and an ableism quiz to help the readers own awareness around some of the issues and needs of people with invisible disabilities.” 🙏🏽🙏🏽🙏🏽 If you would like to buy one, DM me your address and I will send you the Venmo info. $7 for non-disabled people, free to those with disability/disabilities. Sales go to supporting free copy giveaways. 🎁🕊✍️🕊🎁✍️🎁✍️🕊 #invisibledisability #invisibleillness #invisibleillnessawareness #servicedog #servicedogsofinstagram #servicedogintraining #zine #giveaway #artishealing #writingtoheal #writingheals #artheals #zines #zinester #zineart #zinemaker #supportartists #disabilityawareness #ableism #overcomingableism
Infusing your core values into every aspect of your business is transformative, especially as a business owner with a chronic illness. It goes beyond the immediate—impacting suppliers, partnerships, and the social good we strive to achieve. Living these values out loud helps me manage my health and lead a business that’s not just profitable, but powerful. This journey isn’t just about operations; it’s about pioneering change and showing that success doesn’t have to come at the cost of well-being. As someone navigating chronic illness, I believe our businesses can be reflections of our resilience and dedication to integrity. Join me in making our businesses not just successful, but significant. Let’s lead by example, integrating our values daily, and watch as our enterprises embody our deepest beliefs, attracting both prosperity and fulfillment. Let’s show the world what we’re made of! #empowerher #invisibledisability #chronicillnesslife #creativeentrepreneurship #femalentrepreneur #settingthestandard #doingbusiness #successmyway #businessmyway
… Rest is a necessary part of any effective and sustainable movement plan, as this is what allows the body to recharge, adapt, and grow stronger after periods of increased physical activity. Rest should be PROACTIVE, but it might also need to be REACTIVE. So, what’s the difference? PROACTIVE rest is planned and happens before you feel noticeable signs of fatigue. It is usually fairly comfortable and allows for faster recovery times. Because you’re taking control and embracing the opportunity to relax, it is easier to be viewed as a success surrounded with positive emotions. Think of this as a way to save up the mental and physical energy needed to keep moving forward while giving your body extra support to adapt and grow stronger. REACTIVE rest is unplanned but crucial when experiencing signs of high fatigue or acute illness. Reactive rest can be more uncomfortable- both physically and mentally. Rather than only needing one day to recharge, continuing to push and trying to keep up with all of your usual activities will ultimately prolong the recovery time to several days or even weeks. It’s not entirely avoidable, but having a plan that includes plenty of proactive rest can help to limit these potentially frustrating and uncomfortable periods. No matter what type it is, resting can be hard, especially when you’re feeling quite well (relatively), so remember this: The sooner you surrender to your body’s need to rest, the sooner you will get back to doing more things that are enjoyable, productive, and beneficial for your body as you work hard to expand your strength, fitness, and capacity. By failing to rest, we push our goals further away and can miss out on seeing our body’s full potential. Resting too much can also cause some issues, but if regular rest days are not part of your plan, then this is a friendly nudge to reevaluate things!
💙🩵💙Apraxia Awareness month officially starts tomorrow. Last year Aleia’s teacher asked us if we had anything to share with Aleia’s class so the children could understand what Apraxia is & how Aleia feels so I chatted with Aleia’s incredible SLP Kendra & she made this video explaining it in simple terms & Anaiya who is Aleia’s big sister narrated it. The video link is in our bio 💙🩵💙 #aleiasaim #apraxia #verbaldyspraxia #cas #childhoodapraxiaofspeech #apraxiaofspeech #apraxiaawareness #invisibledisability #enhancinglearning #apraxiakids #apraxiawarriors
I love sunflowers 🌻. They are my favourite flower. They face the rising sun and for a while that’s something I couldn’t do. I was so lost and confused. I was misdiagnosed so many times that it left me feeling alone and without any explanation of why I wasn’t getting better. Until I received my Autism & ADHD diagnosis. Suddenly the world started to make sense, with support I started working with an OT who was amazing. I accepted who I was and realised that things in life might look different for me but that is okay. It’s been many years now since my Autism diagnosis and I finally feel happy, brave and outspoken. I wake up in the morning and face the sun and step outside my door. Something that seemed so very difficult for such a long time. ♾️🎧🤍 #autism #autismawareness #disabilityawareness #disabilityrights #adhd #adhdawareness #adhdwomen #neurodivergent #womensupportingwomen #dyspraxia #mentalhealthawareness #meantalhealth #inclusion #recovery #recoveryjourney #occupationaltherapy #invisibleillness #invisibledisability #dailyaffirmations #retreat #selflove #positive
Go show Tuesday and brain injury who is boss! #brainstormforbraininjury #braininjury #braininjuryawareness #braininjurycaregiver #braininjurysurvivor #braininjurylife #braininjuryproblems #invisibledisability #braininjuryresilience #greenribbon #bully #tuesday #tues
I've had to lower my expectations for what I want to achieve in my life now, mostly to avoid more disappointment and loss. I've learnt not to expect to be able to do all the things I used to be able to do. I've chosen acceptance rather than hoping that I'll recover, which is very unlikely. #MeAwareness #MECFS #MyalgicEncephelomyelitis #ChronicFatigueSyndrome #InvisibleDisability #pwME #MillionsMissing #InvisibleIllness #ChronicIllness #Spoonie #SpoonieLife #SpoonieCommunity #ChronicallySick #MigraineAwareness #MigraineLife #MigraineCommunity
Some people with chronic illnesses may sadly be able to relate https://x.com/emmaketchup7/status/1361899938599243776?s=20
From @whitneydafoe https://twitter.com/dafoewhitney/status/1576240524805042177
@how.u.feeling --- All I want is relief. It’s sometimes hard for others to understand the choices of the chronically ill. We didn’t choose this life and all we want is to feel better. Follow us @how.u.feeling for more post about living with a chronic o - 📸 Via how.u.feeling @how.u.feeling - Tag someone who needs to see this💙 - 👉𝖄𝖔𝖚 𝖈𝖆𝖓 𝖔𝖗𝖉𝖊𝖗 𝖎𝖙 𝖔𝖓 𝖙𝖍𝖊 𝖑𝖎𝖓𝖐 𝖒𝖞 𝖍𝖔𝖒𝖊 𝖕𝖆𝖌𝖊🛍️ - - - - #invisibleillness #spoonie #chronicillnesswarrior #invisibledisability #remission #disabled #rheuma #rheumatoid #butyoudontlooksick #chronicfatigue #chronicallyill #invisibleillnessawareness #rawarriors #rheumakind #rheumatoidarthritisawareness #flareups #spooniesoftiktok #rasucks #kneearthritis #invisiblediseaseawareness #rheumatologist #rheumatoidarthritisdisease #rheumatoidarthritissupport #arthritisfighter #rhuematoidarthritislife
I actually have to have a written script in front of me before a call. Even simple things like my name and birthday because when asked I often freeze up and forget suddenly what to say. My husband even knows to write down the simple stuff for me if he's preparing me for a call to make an appointment or whatever. 55: Scripting Photo Description: Panel 1: In a floral field under a daytime sky, which is light blue with purple and pink clouds, flies a hummingbird. He is speaking to himself, "Hi! I am Macaron!... No, that sounds strange..." Panel 2: He continues practicing but flipped to the other side of the page, "Macaron here!...Maybe I shouldn't start with my name..." Panel 3: He's on the other side again. "Wait, I got it!" Panel 4: Flipped again, and this time has a phone in his wing to his ear. The phone has a progress flag case. "We've been trying to reach you about your car's extended warranty!" #ActuallyAutistic #ActuallyOwltistic #AutismAcceptance #Autistic #Autism #Neurodivergent #RedInsteat #IdentityFirstLanguage #PeopleNotPuzzles #BoycottAutismSpeaks #AutisticAdults #AutisticPride #LGTBQIA #LGTBQArtist #AutisticWomen #InvisibleDisability #webcomic #Scripting #phonecalls #queerartist
To the mama of a kiddo with invisible special needs… I know it feels like you aren’t doing enough. I know it feels like you’re “making another excuse” for them. I know it feels like the worry will never leave. I know it feels like it’s so unfair. I know it feels like you need to explain _______. I know it feels like today’s hard, will be forever. I know it feels like your parenting is in question. I know it feels like the world is against you and them. I know it feels like it’s SO HEAVY and you’re breaking. I know it feels like there are a million eyeballs judging. I know it feels some days like it’s all in your head. I know it feels like you’ll never sleep a full nights sleep again. I know it feels like you’re all alone. I know it feels like you’re so unqualified… …and they may all be true feelings right now… One truth I know for sure, is that there’s a reason they were gifted with you as their momma. You have everything they need right inside of yourself. And about those feelings…the only way that they can remain true in your heart, is if you let them in. And you have WAY TOO LARGE of a heart full of LOVE to let anything else in. You’ve got this momma. In the hard. In the unknown. In the messy. In the meltdown. In the waiting room. In the chaos. In the questioning. In the doc office. In the scary. You’ve got this. And if right now, you don’t feel like you do…I know you do. Let me remind you. 🫶🏼 “I can do all things through Him who strengthens me” - Philippians 4:13 Sending you the biggest hug and high five because we know that no matter what…we ride at dawn or maybe 3am…😅 Either way, we saddle up. 👏🏼♾️ #autismom #neurodivergentfamily #adhd #anxiousmoms #pathologicaldemandavoidance #specialneedsfamily #specialneedsmom #encouragementformoms #highlysensitive #sensoryprocessingdisorder #spdawareness #anxiouskids #mentalwellnessformoms #dailyencouragement #stressedmom #invisibleillnessawareness #invisibledisability #highmaskingautism
Credit: Daughter of the Most High King. ‘When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown. When you walk through the fire of oppression, you will not be burned up; the flames will not consume you. Isaiah 43:2 Amen 💕’
Credit: JARS of JOY
Credit: Christian Life Ministry. ‘“This I declare about the Lord: He alone is my refuge, my place of safety; he is my God, and I trust him.” Psalm 91:2 NLT’
This post is intended to communicate and highlight how complaints from non-spoonies can come across to us. But what can we actually do in this situation? 👉 It can help to remember that the other person doesn't have the same comparison points that we have 👉 Sometimes, it's easier to let it go 👉 Decide what you're happy using your energy to hear and what you're not… 👉And where you're not, think about ways you'd be comfortable to move the conversation on. You could simply change the subject rather than acknowledging what's been said, or you may prefer to show your anger or frustration, "I wish that was my biggest issue," for example. Have you experienced this recently? What happened, and what did you do? Sending love, light, and spoons 💙🌻🥄 Holly x (Post description in comments) 🥄🌻🥄🌻🥄🌻🥄🌻🥄🌻🥄 If you'd like a sense of community, come along to my free guided relaxation meditation sessions every Sunday at 5pm BST. The link is in my bio 💙 . . . . . #butyoudontlooksick #fibromyalgia #longcovid #cfs #cfsme #mecfs #spoonielife #spooniestrong #spoonie #spoonies #spoons #spooniecommunity #chronicallyill #chronicillness #chronicfatigue #chronicillnesswarrior #chronicallyfabulous #fatigue #chronicfatiguesyndrome #youareloved #youareenough #anxiety #recovery #invisibledisability #invisibleillness #covidisntover #fibro . .
I want to be happy. How about you? Queens of Moxie is all about crushing burnout with joy, purpose and community. Want to learn more? Reach out! I provide two keynote speeches and training programs: Reclaim Your Moxie Executive to Disabled #InvisibleDisability #Joy #Purpose #Community #Listening #Moxie #Speaking
For once, a large projected experience was soothing and not stressful. Being sensitive to loud noise and bright lights can make it difficult to enjoy the modern art world as we introduce more cinematography. In the past, I've struggled to enjoy experiences like this one with the fear of being overstimulated and a seizure occurring. The number of people who were asleep in the beanbags was a comforting sign. There is no man more iconic to be part of this experience than David Attenborough. His voice is a comfort that echoed around the exhibition. "An understanding of the natural world is a source of not only great curiosity, but great fulfilment." 📍BBC Earth Experience, Melbourne, Australia #davidattenborough #fyp #melbourne #australia #bbc #earth #nature #green #animal #wildlife #melbourneconventioncentre #travel #travelwithme #sensorysafe #relax #travellingwithadisability #fnd #art #video #documentary #foryoupage #photo #smallcreator #legacy #experience #adventure #exhibition #invisibledisability
Suprise! 🥴 I can always feel it coming, and yet I still act like this a shock when it happens, anyone else the same? ▪️ ▪️ ▪️ ▪️ ▪️ #flareup #flareday #suprise #flaredayssuck #thisishard #chronicallyill #chronicillness #invisibledisability #invisibleillness #pain #dizzy #tachycardia #humor #chronicillnessawareness #fatigue
We’ve had a busy few days! Friday Maggie was groomed and then we went training with @caninepawsacademy which we loved and can’t wait to do more with. Maggie did really well, especially with another dog barking a lot, which would usually unsettle her or make her bark too, but she kept her focus surprisingly well. We’re also looking forward to starting Hoopers with them soon, and taking her swimming in their pool @kentcanineswim . On Sunday we went to Starbucks and Maggie did really well being asked to settle there. She’s settled outside coffee shops before but never inside so I’m happy with how hard she tried. She was a little distracted by people walking past the window but she ignored all the loud noises of the coffee machines and people talking, and also enjoyed her first Pup Cup! We only had one issue which is when a delivery driver came in wearing a motorcycle helmet, and then was waiting to pick up the order with it on, which made her bark quite a bit and prompted a man to say “not exactly an assistance dog then” when her vest clearly says “in training”! But regardless, she did well and settled back down quite quickly given that she’s wary of new things and has never seen someone walk past her with a helmet on (I wanted to expose her to it from the start but don’t know anyone with a bike helmet and never seem to see anyone with one if they’re just walking). Either way she did well, and kept her focus most of the time. Then last night we went to our normal training class where she was perfect as normal! Good puppy🫶🏻 • • Vest & lead slip: @goldens_gear • • #dogtraining #doghandler #doglover #assistancedog #assistancedogs #assistancedogintraining #assistantdog #assistantdogs #assistantdogintraining #servicedog #servicedogs #assistancedoguk #dog #dogs #puppy #puppies #cockapoo #cockerpoo #poodle #ilovedogs #dogsofinstagram #autism #adhd #autismawareness #adhdawareness #ehlersdanlosservicedog #chronicpain #hypermobility #wheelchair #invisibledisability
W is for.. why’d you only ever call me when you’re high. . . A most satisfying experience in art making and a most satisfying song to sing as an ode to old friends and people I don’t want to see again.
If you've been following along for the past month (psst, if you needed the reminder, April is #adenoawarenessmonth 🤫) you'll know by now that there's more to adenomyosis than painful periods. Like many other conditions that impact women and people assigned female at birth, there's an extreme lack of awareness and education surrounding adeno, and we're not cool with that. While some folks living with adeno will experience little to no symptoms, others may be left feeling completely debilitated by lesser-known symptoms, like severe pelvic pain and heavy periods. Save this post for later or share with someone you think needs to see it 💌
We're happy when our community members are happy! Here's what one of ours had to say about the group. If this sounds like it's for you? Come and join us! Link is in the bio! #disabilityawareness #disabilityrights #disabilitypride #disabilitysupport #disabilityinclusion #invisibleillness #invisibledisability #chronicillnessawareness #community
Today I added another F'n diagnosis to my collection. Along with all of my other conditions, I also have Functional Neurological Disorder, or FND. FND is caused by a problem with the functioning of the nervous system. It's like a “software” issue of the brain which is glitching, and not the hardware (as in stroke or MS). For the last few years, I have felt that there was always something else that was yet to be diagnosed, and with the recent worsening of my mobility with tremors in my leg and drop foot while walking, it was good to finally get some answers. April is also FND Awareness Month, so if like me you don't know alot, or have no idea about FND, I encourage you to learn more about this rare disease 🧡 Also, I knew I found the right neurologist when she asked me where I got my amazing pants from, and when I told her that it was from @proudpoppyclothing she immediately wrote it down in her diary! Outfit details: Top @proudpoppyclothing Pants @kasey.rainbow x @proudpoppyclothing Sneakers @@dianaferrariofficial from @williamsshoes Specs @oscarwylee Walking stick @neowalksticks Image description: Michelle is standing in front of a monstera plant wearing a turquoise tshirt, blue/green pants covered in brightly coloured leopard print, white sneakers with rainbow soles, and turquoise framed glasses. She is leaning on her turquoise walking stick. #fnd #fndawareness #functionalneurologydisorder #fibrowarrior #fibromyalgia #fibromyalgiaawareness #plussizefashionblogger #proudpoppyclothing #plussize #disabledfashion #disabledandcute #whatiworetoday #plussizedfashion #curvystyle #babeswithmobilityaids #babewithamobilityaid #brandambassador #chronicillness #chronicpain #disabledinfluencer #notalldisabilitiesarevisible #invisibleillness #invisibledisability #invisibledisabilityawareness #disabilityvisibility #representationmatters #inclusivefashion #disabilityinclusion #mobilityaid #mobilityaidsarefreedom
Some skills unique to us spoonies 😂 What else would you add to the list? 🥄 #fromsurvivingtothriving #fromsurvivetothrive #surviveandthrive #wellnesscoaches #wellnesscoaching #wellnesscoachforwomen #butyoudontlooksick #invisibledisability #invisibledisease #spoonies #spooniefamily #invisibleillnessawareness #invisibleillnesswarrior #invisibleillnessawarness #invisibleillnesses #invisibleillness #disabilityadvocate #disabilityawareness #DisabilitySupport #disabledlife
Attending. Papering. Covering. With drawing. Restructuring. Support. Director’s temporary wrap @bryony.graham - two month surgery sabbatical. Micro shows and project planning ongoing, light touch and behind the scenes in plain sight. Concealing. Revealing. * * * #microinstallations #temporary #temporaryinstallation #publicart #microartspace #invisiblesupporrt #invisibledisability #invisibleillness #reconstruction #rebuilding #recover #pacing #painmanagement #artaspainmanagement #microwithmacroambition #concealing #revealing
Sometimes we need someone to simply be there. Not to fix anything or do anything in particular, but just to let us feel we are supported and cared about. 🧡🧡🧡 ° Share, but please credit us 🌱 ° Link to our MS UK Facebook Support Group ⬇️ www.facebook.com/groups/MSUK1 ° #msuk #chronicillness #multiplesclerosis #MS #disabled #disability #spoonielife #mswarrior💪 #chronicpain #mswarrior #spoonie #spooniesupport #chronicfatigue #mswontstopus #msuksupportgroup #incurable #incurabledisease #invisiblesymptoms #invisibledisability #spooniecommunity #spooniequotes #invisibleillness #thereisnocure #chronicquotes #msquotes #beafriend #holdyourhand #letstalk #imhereforyou
Waking up poorly one day & never getting better has always been the most difficult part of being diagnosed with a chronic illness to comprehend for me; "you will never get better, there is no cure." 🥺 The second most difficult part is my illness being invisible where, unless you look closely, it's easily hidden behind a smile. I find myself constantly having to explain everything my body has been through & continues to battle; it's tiring feeling like I have to justify everything all of the time because I look "fine". The anxiety that comes with a new diagnosis or new found pain is ridiculously high; I look in the mirror at my scars & question how much more my body can physically take as I watch it deteriorating before my eyes. Emotionally I am drained; I step out with a smile & "I'm doing okay!" answers to how I am because there's nothing more I feel I can do right now.. & it's much easier to perform than be vulnerable. Every day I have either a call from the hospital, my Doctors surgery, or a letter through the door with my next appointment; it's no joke when you hear "a chronic illness is a full-time job!".. but I gently remind myself of a time when there was little to no support. I look back at where I started on this journey & the fight I had to be heard to where I am now with a large, supportive team of medical professionals around me who are all working tirelessly together to give me the quality of life I deserve. I am incredibly blessed to have this & I never take them for granted as I am scarred by the time I didn't have anyone but my husband listening to me. I guess where there is fear there is always hope &, although I lose that hope at times, my journey is proof that it is there & in abundance.. just don't give up looking for it 🎗️🏵️💛 #endometriosis #endometriosisawareness #endowarrior #fibromyalgia #fibromyalgiaawareness #fibrowarrior #dysautonomia #ADHD #invisibleillness #invisibleillnessawareness #chronicpain #chronicillness #disability #invisibledisability #hiddendisability #worry #anxiety #grief #fight #nevergiveup #wholebodypain #positive #mindfulness #strong #listentoyourbody #hope #fear #healing #myendostory
On January 18th, 2021 at about 1:30 pm, I went to my usual weekly non-stress test at my OBGYN in town. To our shock, we discovered that Owen was in distress. I had not felt him move much that day, which explained why. Dr. Wilson consulted with my Maternal Fetal Medicine doctor in Dallas, and they both agreed that Owen need to be delivered in Texarkana instead of Dallas, which was our original plan. Owen wouldn’t have survived waiting that long. I remember the walk across my OBGYN’s office to the hospital with my nurse and calling Garrett to tell him to immediately leave work. Covid protocols were still in place, so my husband was the only one allowed to be with me. Once he arrived and they had me prepped, I had an emergency cesarean. It was my first. Owen was born at 4:20pm, weighing only 2 pounds and 8 ounces. At this point, we still did not know if he would be failure to thrive or by some miracle, defeat all odds and survive. Let me tell you, he was a fighter since the day he was born. When he was born, they labeled him “limp” and had an apgar of 2. This score is based on a baby’s color, heart rate, reflexes, muscle tone, and respiration. Normal scores are considered to be a 7-10. Having such a low score, there were extra measures to be taken. He needed suctioning of the airways & the nurses attempted to intubate him. When this happened, he fought them off, only having to wear a c-pap machine after that. 😅🙌🏻 I gave birth to him at 33 weeks and 5 days. Normally, babies would weigh more than only 2.8 pounds at that time, but since I had intrauterine growth restriction, his growth had slowed. This would be the start of our amazing NICU journey with our fiesty baby boy 🥰 #owensadventure #invisibledisability #preemiestrong #mountainmover #sahm #nicumama #followingjesus #familyfirst
Hey Genyuses, Wanna Hear The Latest?! GET YOUR GENYUS ROUND UP NEWSLETTER! What to Expect: - Inspiring Success Stories - Community Spotlights - Tips for a More Empowered YOU Subscribe via 🔗 Link in Bio: Round Up (E-Newsletter) → • • • • #StrokeSurvivors #Stroke #StrokeRecovery #StrokeRehab #BrainInjury #YoungStrokeSurvivor #BrainInjurySurvivor #TraumaticBrainInjury #TBI #StrokeSurvivorsNeverQuit #TBISurvivor #TraumaSurvivors #LifeAfterStroke #Community #OccupationalTherapy #PhysicalTherapy #Aphasia #Rehabilitation #AVMSurvivor #Disability #Physiotherapy #ChronicIllness #BrainInjuryRecovery #TBIAwareness #StrokeWarrior #CerebralPalsy #InvisibleDisability #MentalHealth #StorySharing #genyusnetwork
Another chaotic photo dump for Lyra’s birthday this year; we were supposed to take her on a hike for her birthday this year because it’s her favorite things to do. But she injured her paw pads while playing a couple of days ago so she has been taking it easy. She has been doing a lot of nothing which means she’s been so bored but she’s been eating a ton of delicious birthday snacks most of them courtesy of @brooklyns.finest.heroes and as you can tell Lyra devoured everything. 😂 I can’t believe it’s been 4 years already since Lyra’s birth and it just feels like time has flown by. 🥹 Happy 4th Birthday to my little firecracker. 🩷 . . . . . . . . . . #mondayfunday #birthdaygirl #servicedogsofinstagram #servicedog #photogenic #doodlesofinstagram #ilovemydog #goldendoodle #workingdog #lyra #servicedogteam #invisibledisability #birthdaycelebration #😂 #goldendoodlesofinstagram #dogswithstyle #fourthbirthday #servicedoghandler #tasktrained #medicalalertservicedog #🥹 #photodump #happybirthday #🩷
#chronicillness #chronicpain #invisibleillness #invisibledisability #chronicillnesswarrior #chronicallyill #spoonie #spoonielife #spooniesisterhood #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalitis #mecfs #endmecfs #longcovid #longcovidrecovery #tachycardia #ist #pots #millionsmissing #iamworthy #stillsickstillfighting #fibromyalgia #ibs #disability #disabled #undiagnosed
Skidboot is ready for another busy day! "What's the holdup Mom?" #servicedoglife #servicedog #assistancedog #servicedogs #lifewithaservicedog #servicedogteam #servicedoghandler #workingk9 #BritishColumbiaservicedog #albertaservicedog #canadianservicedog #servicedogsofinstagram #bordercollieservicedog #workingdog #bordercollieofinstagram #dogswithjobs #disability #chronicillness #invisibledisability #disabilityawareness #vestibulardisorder #braininjury #headinjury #TBI #postconcussionsyndrome #orthostaetichypotension
Hubby & I got away for the weekend. I mostly rested, but we did play Bingo & I enjoyed dinners with the family. A change of scenery is always good for the soul. I rode my scooter again (didn’t wait long to get back on the horse), which isn’t the easiest with one arm, but I took it really slow. #mecfswarrior #interstitiallundisease #autonomicneuropathy #spoonie #youdontlooksick #myalgicencephalomyelitis #Dysautonomia #youareenough #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens
Did you know? 🧐 #NDIS #Inspiration #Empowerment #CareInEveryStep #SupportCarer #TogetherWeThrive #EmpowermentJourney" #ndis #ndisprovider #ndisregisteredprovider #ndisregistered #disability #disabilityawareness #invisibledisability #disabilityrights #disabilitypride #abilitynotdisability #disabilityadvocate #learningdisability #disabilitysupport #disabilityinclusion #disabilitylife #disabilitysport #disabilityisnotinability #disabilityarts #disabilityblogger #disabilityservices #hiddendisability
Our visual food sheets are a great way to promote not just speech and language, but also confidence. By placing the visual on your fridge you are encouraging your little one to communicate with you on their terms, helping build their confidence and providing a sense of empowerment. #SensoryActivity #SensoryRegulation #KiwiKids #NZKids #ParentingNZ #DisabledParenting #InclusionMatters #Communicate #Connection #VisualCommunication #VisualStim #Stimming #Neurodiversity #AutismParenting #InvisibleDisability #Autism #AutismMum #NeurodiversityParenting #tiktokmums #SensoryToys #SensoryJoy #NZBusiness #Disabled
Slide to first 3 photos; my old self - I competed in body building 2005-2017, including 6 Pro shows in the USA. I was in control of my body, I’d gain fat in off seasons & I’d allow 16-20 weeks to get leaner for the stage. I had no problems being higher Bodyfat as it was a choice & part of the process. 4th photo; Even when I was competing I did experience horrendous bloating, but nothing like as often as these days. 5th photo; celiacs symptoms set in & I lost weight & muscle & struggled to maintain 47/48kg. I got used to being small. 6th + 7th photos; both taken this year the photos on each side were the same day. The latter recently. These days I’m almost always horrendously bloated to the point I look pregnant. I’ve been on a couple of meds that have seen me go up by 5-9kg. Having my body change so much when I can’t control it really bothers me. I don’t have the option to change my diet as I only eat solid food once a day & prescribed liquid nutrition isn’t high in protein & has more sugar than I’d choose to eat. Body image since have my ACE placed has been a rough ride. I struggled far more than I expected to, partly because I was pretty misinformed about what life would look like with the tube. One of the biggest effects was having no confidence to attempt to have any intimacy in my life, for 2 years. It was one of the harder & most isolating factors. Discovering @dansac_ostomy stoma caps was a game changer on the intimacy front. I do really wish the surgeon or nurses had made me aware they were an option before I found them online 2.5yrs into my journey. I still hold resentment at my surgeon for failing to refer me to a stoma nurse pre surgery meaning I lacked understanding of the surgery I consented to. I’d like to think I can work on getting back to a better place but I think it’s still going to take some time & will require patience. There’s several types of stomas/ ostomies. It can be common for people to struggle with mental health, confidence/ body image & intimacy after having your body change so much. I really wish there was more support emotionally for ostomates & their partners & families 🩶 continued in comments…
Feeling FOMO on all the genyus vibes? DON'T SWEAT IT! OUR NEW ONLINE SPACE IS LIT. WE'RE TALKING INSIGHTFUL CHATS, EPIC SUPPORT, AND A COMMUNITY THAT GETS YOU. It's your one-stop shop for unlocking your inner genyus - come on in! Join via 🔗 link in Bio: Genyus Mighty Network (New) → • • • • #StrokeSurvivors #Stroke #StrokeRecovery #StrokeRehab #BrainInjury #YoungStrokeSurvivor #BrainInjurySurvivor #TraumaticBrainInjury #TBI #StrokeSurvivorsNeverQuit #TBISurvivor #TraumaSurvivors #LifeAfterStroke #Community #OccupationalTherapy #PhysicalTherapy #Aphasia #Rehabilitation #AVMSurvivor #Disability #Physiotherapy #ChronicIllness #BrainInjuryRecovery #TBIAwareness #StrokeWarrior #CerebralPalsy #InvisibleDisability #MentalHealth #StorySharing #genyusnetwork
Nate Sheets is an international behaviour consultant and trainer who specializes in Fetal Alcohol Spectrum Disorders (FASDs)*, which is estimated to impact 5% of the population and 70% of the children in foster care. Nate helps: Parents Foster providers Therapists Teachers And anyone else working with the FASD population to understand their brain differences and the support that they need. 📚If you would like to learn a little more from Nate, check out his book “Essential FASD Supports, Understanding and Supporting People with Fetal Alcohol Spectrum Disorders.” #fasd #fetalalcoholspectrumdisorders #fasdawareness #fasdsupport #invisibledisability *Nate Sheets uses this language. The USA makes FASD plural. In Canada, we do not. Canada has FASD as the diagnosis, while the USA has it as an umbrella term with a diagnosis under it.
When there is nothing more you can do, just smile! 😁😁😁 #dumpsterfire #chronicillness #chronicpain #comorbidities #spoonie #invisibleillness #invisibledisability #disabled #givingup #surrender #whiteflag
incase you wanted to see the gear wall.
Although I was on cloud 9 this weekend I also had moments that were taken over by my disability. We went on a hike the day after hiking to the falls and my ankles and knees kept buckling. My ankles could not handle the uneven trails my heart was racing and I was significantly slower than everyone else. There were points where I just wanted to give up and just stay in the woods until a rescue team could carry me out. Even though I was on cloud 9 I was holding back tears. Tears because of how bad my symptoms were getting and tears for grieving the body I once had. I know I have so much to be grateful for but i miss my old body. #invisibledisability #invisibledisabilityawareness #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #eds #heds #ehlersdanlos #ehlersdanlosawareness #ehlersdanloswarrior #ehlersdanlossyndrome #ehlersdanlosyndromeawareness #ehlersdanlossyndromes #chronicillness #chronicpain #chronicillnessawareness #chronicillnesswarrior #chronicpain #chronicpainawareness #chronicpainwarrior #ehlersdanlossyndromeawareness #chronicpaindisorders #hipproblem #hippain #neckproblems #backproblems #chronicfatigue #chronicfatiguesyndrome #jointpain #jointinstability
IM A FIANCÉ!!! ❤️❤️❤️ #invisibledisability #invisibledisabilityawareness #invisibleillness #invisibleillnessawareness #invisibleillnesswarrior #eds #heds #ehlersdanlos #ehlersdanlosawareness #ehlersdanloswarrior #ehlersdanlossyndrome #ehlersdanlosyndromeawareness #ehlersdanlossyndromes #chronicillness #chronicpain #chronicillnessawareness #chronicillnesswarrior #chronicpain #chronicpainawareness #chronicpainwarrior #ehlersdanlossyndromeawareness #chronicpaindisorders #hipproblem #hippain #neckproblems #backproblems #chronicfatigue #chronicfatiguesyndrome #relationshipgoals #couplegoals #myperson