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Extremely excited and honoured to partner with @boomerangplaycentre for the launch event of “No Labels Here: A day-to-day guide for parenting children with neurodiverse needs” We wanted to create an environment where parents could come and discuss the book but also feel safe and comfortable to bring their children and know they are in a safe and inclusive space. Please email or message for a link to the booking page (this is a free event - booking is to manage numbers) So excited! See you all soon! Eve 🥰🎉 #neurodiversity #Neurodiverse #ADHD #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #autismcommunity #autismawareness #autismacceptance #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #parentingbook #bookinsta #booktok #fyp #foryou #foryourpage

This child’s literal thinking wins too many arguments 😂 . . . . . . #neurodiversity #Neurodiverse #ADHD #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #autismcommunity #autismawareness #autismacceptance #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #parentingbook #bookinsta

Swipe >>>> #WorldAutismAwarenessDay #AutismAwareness #AutismAcceptance . . . . . . . . . . . #neurodiversity #Neurodiverse #ADHD #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #autismcommunity #autismawareness #autismacceptance #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #parentingbook #bookinsta

Living his best life at the Easter Bonnet parade >>> swipe to see how it ended when he didn’t win 😂😩🐰🐣 . . . . . . . . . . . . . . . . #neurodiversity #Neurodiverse #ADHD #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #autismcommunity #autismawareness #autismacceptance #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #parentingbook #bookinsta

Beautiful flowers from my beautiful sister @ninawallacexx for my book being printed! 🌷 📕 . . . . . . . . . . . . . #neurodiversity #Neurodiverse #ADHD #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #parentingbook #bookinsta

It’s really important to remember when you’re going to appointments and assessments - you are the experts on your child. You know them best. You have the lived experience. You are the expert. Drs and therapists can be great for advice and understanding but don’t ever let them stop you from advocating for your child. You know what they need. #BeStrong . . . . . . . #neurodiversity #Neurodiverse #ADHD #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #parentingbook #bookinsta

Just me and my book up at the Lake District enjoying a (somewhat) calm weekend away with family 🥰 Available for pre order now from Amazon (and other book stores) No Labels Here: A Day-to-day Guide for Parenting Children with Neurodiverse Needs https://amzn.eu/d/3t1RjVz . . . . . . . . . . #neurodiverse #neurodiversity #book #booksofinstagram #bookrelease #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #ADHD #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #Fyp #foryourpage

‼️ Out May 21st ‼️ Available to pre-order internationally through all good stockist! . . . . . . . . #neurodiversity #neurodiverse #adhd #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger #book #bookrecommendations #bookstagram #bookrelease

#ARFIDAwareness Today we made pita pizzas! Pringle has been asking to cook allot more which I love considering all the issues he has with food. He knows he would like food and he enjoys cooking and the making and preparation of food - particularly the mechanics of putting it together. But he won’t touch the food with his fingers and he most often won’t eat the food. So when he said he wanted to make pizza this weekend I was all for it. He won’t have cheese on it because he’s got allergies to dairy and he won’t have dairy free cheese because of the texture, so really he’s just has tomato puree on bread - but that’s a start! So we made our pizza and when they were ready he tried a bite of it! It’s small but it’s something - it’s definitely something! Next month he will be fitted with a PEG tube (Percutaneous endoscopic gastrostomy - PEG) to help him gain weight and become healthier. By doing this we can make sure he’s getting all the nutrients he needs and is nourished right whilst we continue on our journey of trying to get more foods into his diet as he matures. It’s not an easy journey and it’s been years coming and fighting for it but with the steps he’s taking and the PEG, we hope his future with food will be better ❤️ . . . . . . #ARFID #arfidawarenessuk #eatingdisorder #eatingdisorderawareness #autism #asd #asc #autismspectrumdisorder #autismspectrumcondition #SPD #sensoryprocessingdisorderawareness #sensoryprocessing #SENDparenting #SENDparent #SENDblog #parenting #parentingblogger

Last week me and Isla were invited by Short Breaks @northlincolnshirecouncil to attend a sensory show by @concrete_youth. I didn’t know what to expect but I have to say we were both absolutely blown away. Firstly the whole show took place in what looked like a massive igloo. The show was amazing, full of loads of songs which Isla loved. The group used makaton all the way through their production which was amazing and the sensory experiences they offered the children were brilliant. Isla particularly loved the planets and fairy lights spinning around her and smelling the moon cheese. Isla was even tired at the end thanks to the relaxing music and lavender spray, leaning on my shoulder all chilled out and we’d have quite happily stayed there all day. If you ever get invited to attend anything where concrete youth are performing make sure you attend, they are phenomenal! #sendblog #autismblog #shortbreaks #northlincolnshire #concreteyouth #sensoryactivity #sensoryproduction

Introducing the SEND Teach blog, where you’ll find information and strategies to support children with Special Needs. Head to my website to find out how to empower children with Speech and Language needs! #speechandlanguage #specialneeds #communication #senblog #sendbloggersuk #sendblog

#BAPSawards Bloody Awesome Parents; Last night was absolutely amazing. Although we didn’t come home with an award, I still can not believe that we were in the finals and to me that is an absolute win/win. Huge congratulations to the winners; Kirsty Green - SNAP The Long Chain - Journey’s end @letstalkautismpodcast @storiesaboutautism @our_life_loving_lucas @cameronssmile @pdaparenting @kids_on_tour_awl @guabwolves @operationdiversity And thank you @wearemfon and all those amazing sponsors for such an amazing night. I’ve had the best experience and met some amazing people. And thank you to Mathew Horne who was fantastic at hosting the night 🤍 #BAPSawards #SENDparenting #IAmAwesome #SENDblog #SENDblogger #blogwiththebiggestimpact #bestuseofmedia #truthaboutsend #newcomer #bloodyawesomeparents #educatingeducation #travelandaccessibility #babesthatdream #championingsend #communitysupport #makingadifference #boohoo #awardsceremony #thankyou #nominees #finalists #winners

I saw a post recently about how some women (and I’m sure men too) have intrusive thoughts when they have a baby and it made me think how for many of us this never stops - especially if you have a child who is extremely vulnerable. Those that know me know that I’m an anxious person. I worry and I overthink. Citalopram helps. Sometimes. My brain is particularly on fire at the moment and even my dreams are filled with missed exams and trains, accidents, weird childhood memories, teeth falling out and plane crashes (I know). My head doesn’t give my head a break and it’s really annoying because it feels so unnecessary and unstoppable. Intrusive thoughts are a horrible thing to have. They make you feel slightly bonkers even though they’re quite common for people who have anxiety. And so many of us do. Imagining scenarios like leaving the door open, letting go of the buggy, crashing the car…usually - for me - when I’m trying to switch off and go to sleep. When I’m at the peak of feeling this way, little silly things feel completely overwhelming. Like a telephone call or having unticked things on a to do list. And that’s me at the moment. I’m going to take a deep breath, try and get the balance back and probably speak to my GP again. If you feel the same way, sending you some solidarity and the message that maybe you should too. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #mentalhealth #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #anxiety

Today’s news: Cow sparks joy. 🐮❤️ #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

A few weeks ago Brody’s speech & language therapist gave him an iPad with a talking app on it. We put on it specific things he can select and have started with some activities, places, people and food choices. So far he is using it to request cheese and monster munch (A LOT lol) and what he wants to watch on tv (and this can change by the millisecond as he’ll pick something else almost instantly) but I think, with time, it could be amazing for us all. He’s running off to the fridge at the end - I feel the same way about cheese to be fair 🤣 Happy Friday. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

“The most important thing in communication is to hear what isn't being said.” (Peter Drucker). Love needs no words. It needs understanding, patience, kindness, acceptance and inclusion. These two have it in oodles for one another. Pure and simple. And for that - and all that they’ve taught me and continue to do so - I’m one lucky mum. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

The nice paediatrician looked me straight in the eyes yesterday and said “He will change your life you know? He will”. It’s something that I of course already know, but coming from a health professional that I’d just met for the first time - and someone who had just told me was essentially walking a very similar, but more experienced path - it really meant something. He meant it sincerely, from lived experience and in a positive way. And I heard him completely. We all know that this journey isn’t easy but we also know that our kids have changed us in so many ways for the better. The way we see the world. The way we communicate with one another. The way we advocate and use our voices. The way we value community. The way we appreciate small things. Things we once would have thought were insignificant but now know are not. We know to appreciate and soak in the good stuff. And we celebrate all of the wins - big and small. I’m keeping hold of that moment. That reassurance. I hope I can pay it forward to someone else one day. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Thanks for the solidarity earlier ❤️ Minus the wheelchair, parking and ability to parent my child fail, I left the appointment sweaty but feeling pretty good thanks to the staff there. For the first time ever - they must have sensed my fear lol - they offered us a side room whilst we waited (this one isn’t a children’s hospital - the children’s one is always a bit more equipped that way). It was a lot easier in the side room courtesy of a Dyson fan, which blasted my sweaty brow and a sink, which Brody used to pass some of the time (and soak himself - but hey ho, whatever works). This was the first time I’d met this particular paediatrician and he was so lovely. Icing on the cake was him telling me he has an adult daughter with similar needs to Brody. As soon as someone tells me something like that I want to instantly high five them and become their friend 😂 So it wasn’t all bad. And next time I won’t be without his wheelchair. (I mean it this time 🙈) Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Back to schooooooooool! 🎉❤️🥰🙌🏻 P2 and P5 (😭) here we come. Be kind to my babies. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Today I think I may have peaked. Brody got his hair cut *and* we went swimming. This was the first time I’ve taken them both since the restrictions ended and I can confirm the obvious - it’s a lot trickier when it’s busier. I think when you care for someone who is disabled you can at times feel like you should shut up and be grateful for what you can get when somewhere is actually pretty accessible. And I am so so grateful that our local swimming pool has a Changing Places toilet. But the truth is we could do with several. Those that use it take a lot longer to get changed than muggles do for a variety of reasons. So when it’s busy, there is a queue. And I don’t have a child that will wait. So we made do in a cubicle, which can be a bit hard. That was followed with me trying to hold Brody and use a locker, both kids falling on the way into the pool and Sydney freaking out at the wave machine. I went with my best friend and her kids who reminded me of one of our favourite sayings, ‘if you didn’t laugh, you’d cry’. And that we do. We almost always laugh. We came, we saw, we semi conquered - and no one was seriously injured. That’ll do. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human #changingplaces

If you missed my post the other day, Brody is the first brand ambassador for @diversifiedukonline, which is just 😍😍😍 and was set up by the amazing Kaydi. Kaydi is neurodiverse and through Diversified wants to raise money for charity and help others who have had similar difficult experiences to her (loveeee 👏🏻❤️). We received a package today with some great sensory items from her for B boy. Firm favourites from both Brody and Syd included a sensory stretch pop tube (£1.99), a giggle stick (£1.49), a sensory scarf (£1.49) and LED glitter shaker (£6.99). All of the stuff we received was great and it is so reasonably priced. You know what it’s like - usually anything labelled ‘sensory’ isn’t! If you have a sensory seeker and are looking for some new things or even thinking ahead about stocking fillers (it’ll be here before we know it 😉), I recommend checking out her site. They even have various ‘poppits’, which are really popular at the moment. www.diversified.org.uk #Gifted #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human Xx

I love these two more than life itself but I’m looking forward to them going back to school on Wednesday. We’ve had some great times this summer, but I’m at the point where I’m definitely missing the headspace and routine. I’m not one of the mums who feels it’s gone too quick 👀🙈 I’ve eaten my way through the holidays as usual and what I really need is a good kick up the arse, some willpower and a bit of organisation in my life. Send some my way (and salad *sniff*). Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Brody has become a brand ambassador for @diversifiedukonline - please check them out and give them a like. Diversified was founded by Kaydi who is 15. She fundraised during lockdown and whilst being out of a school for over two years because of her additional needs. Kaydi wanted to do more to give back to the community that had supported her through her difficulties with school. She also wanted to support others going through the same situation that she had been through ❤️ She sells a large variety of sensory toys and sensory boxes through her page and website. All profit from Diversified is donated to charities that support neurodiverse young people and children with additional needs. To date she has raised and donated over £1500 for various charities. Next year she hopes to become a formal social enterprise and help tackle social isolation in the neurodiverse and additional needs community. What a total superstar ❤️ Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Much better day today. We went on a trip to the zoo with other families from our local children with disabilities team. Yesterday I wasn’t sure if I had the confidence to go but I’m glad I did. We went with my friend Laura and Brody’s friend Tom. When we got there I lucked out and was given help from a support worker - the lovely Orla. Having someone there to help was an absolute god send and I’m so grateful. The kids had a great time, fairly minimal drama, and the sun even decided to shine. McDonalds on the way home. Now pooped. Thanks for all being so kind with my overshare yesterday. I’m lucky to have you. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

We had a little party today for my brothers 40th and my parents hired the kids a bouncy castle. It was a lovely day and we were so lucky with the weather because rain was forecast. Also I managed to get this beeeaut of a photo without falling on top of the kids and causing serious injury (to them and me)👌🏻 Brody’s favourite thing is to sit at the back of bouncy castles and have someone put their hand through the small holes in the corners. My sister in law earned some serious aunt points having her hand stuck through them half of the day. We ended the day with B boy sticking a fecking peanut up his nose just before bed and I am now officially knackered from the pressure of getting that bad boy out (and the fear of a night sat up at A&E). Success finally came from me pinching the peanut free nostril and blowing in his mouth (an experience), which made him laugh and it shot out on to his dad’s arm. If you didn’t laugh eh? Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Always grateful for my friends but particularly so when I’m going through a bit of head fog. That includes you guys. Thank you. I feel like lately I’ve posted a lot of the harder stuff and although I know you know it’s not all sunshine and rainbows, I don’t want to come across as a complete whinge bag. I’m sorry if I do. Equally I suppose I want to be honest - it can be bloody hard - and this page is such a great outlet for me to offload my brain farts. I find sometimes I go through stages where everything builds up and it all feels a little overwhelming but it’s a time to time thing and the majority of the time (I think) we do okay. Here is Brody playing with one of his best buddies Rory today and an accurate visual of the brains of his (brilliant) mum Karen and I reaching the last few weeks of the summer holidays 🙈😂 Thank you for sticking with me. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

Do you ever have times when you just need a good old cry to get stuff out of your system? I think that’s where I am this week. B boy has been a little bit difficult to predict and quite hard to keep happy. He is pinching and biting me and hitting his head a lot. I am trying to get it right but failing miserably and it sucks because, well - who doesn’t want their kid to be happy? By the time we went swimming this afternoon I was already hanging on by a thread so when the guy asked me ‘what the issue was’ when I asked to use the Changing Places toilet I’m surprised I managed a polite response. Also very annoyed that I didn’t reply with half of the cracking responses I’ve thought of since lol. When we left my lovely friend told me that I was doing a good job and that was it, my eyes began to annoyingly leak. Then I took a breath and sucked it in because I feared the floodgates would open in the car park. But I know I need I need a good old cry or a good old shake to get it out of my system so I can just get on with it. Send chirpy vibes. (And chocolate). X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

It’s really hard to trust people to look after your child when they have a learning disability and are unable to talk to you. It’s not that you don’t want to trust them, it’s just that you know how vulnerable they are, all of their different needs and how tricky this can be to balance. How can you expect someone else to know? With Brody the most terrifying thing is that he has zero danger awareness. He would walk in front of a car without a second thought. He would put his hand into a flame. He would walk into water. He would let himself fall from a great height. You get the idea - and if you can relate I empathise. It perhaps the hardest thing about looking after him. Switching off for a second could be fatal. Then there are other things that all add up and build up your anxiety. The little ways that your child communicates with you that only you understand. Personal care needs - feeding, changing, toileting. Behaviour - throwing, lying down and refusing to move, hitting, kicking, making noises. Sensory issues - sight, hearing, taste and touch. Medical needs - Brody gets sore legs and has epilepsy. It’s hard to manage all of these things with your child when you understand and anticipate them all - let alone expect someone else to roll with it. Because of this, there are very few people we can leave Brody with. When Brody first started to go to his summer activity scheme I used to cry after I left him because I was so nervous. It was really hard to relax. Now when I take him it’s a weight off. He claps and gets excited when we drive in and I know how much he loves it. And most importantly I know he is looked after and that I can trust that he will be okay. For this I am *so* grateful. The whole team are worth their weight in gold. I know as he gets older we will continue to face these feelings. It started with nursery, then the school taxi and then school. It’s one of those things that I will always find hard. But when it goes right, it’s so wonderful - for all of us. Xx (Photo that they sent me today on his last day there ❤️)

Just popped up on my memories. Not sure who created this but it made me chuckle. I mean I know it comes from a good place but if that’s the case me and God need to have words 🙈😂 X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

We’re about to enter the 6th week of the summer holidays up here in Scotland. Brody goes back on the 18th August (and typically now has a hospital appointment on the 19th). When I look back at all of the things we’ve done in July we’ve really done quite well. I’ve got some amazing photographs showing happy moments and for each and every one of them I am b.l.o.o.d.y g.r.a.t.e.f.u.l. But I am admittedly frazzled. My anxiety is a bit annoying and won’t let my brain relax during the moments that it can. My patience is a bit crap too. It’s the classic summer holiday slog and I’m sure you know it all too well too. But you know - it sucks a little. Hope you’re surviving ✌🏻 Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

“One of the most beautiful qualities of true friendship is to understand and to be understood.” – Lucius Annaeus Seneca This sums up Brody and Tom quite well. Friendship doesn’t require speech or hearing (Tom is profoundly deaf) - it requires a special bond. Our boys are happy just to be in one another’s company. It’s that simple and it’s because of the bond that they share. They can completely ignore one another but just knowing the other one is there is enough. And if you really think about it, that’s exactly what friendship is all about. X #friendshipday #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human

“The siblings of special needs children are quite special. Absolutely accepting and totally loving, from birth, someone who is different mentally, and has a different way of seeing the world, is a wonderful trait. It's a trait I wish there was another way of getting, but there isn't. And it does involve a degree of not having it fantastically easy”. - Sally Phillips (@sallysmack) Love wins. Always. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human #siblings #sister #brother #biglittlesister

Brody is unable to talk but his body language often speaks volumes. This. Is. Happy. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Just what we needed today. There’s just something about the sea. Even though it requires an off the scale level of parenting - it is almost always worth it. “Smell the sea and feel the sky, let your soul and spirit fly” – Van Morrison Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #epilepsy #asd #carer #carers #human #siblings #sister #brother #biglittlesister

Brody had his activity scheme today and it was much needed for all of us. He loves the independence and had a lovely time going on a bus to a petting zoo. He came home happy and content and I am so grateful. Sydney and I went to soft play with her cousins. It was lovely to just sit down whilst she played and admittedly a complete breeze. There was another mum there with a son similar to Brody and I couldn’t resist going over to her as I just wanted her to know how bloody well she was doing and that I ‘got it’ and had a similar child. I really hope she didn’t think I was a complete patronising weirdo but seeing her and just having Sydney with me really brought it all home - it isn’t easy. Taking Brody to soft play is the complete opposite of a breeze. Thanks for the lovely messages yesterday. I hope my honesty doesn’t make me sound like I don’t appreciate my blessings and how amazing my boy is because I really do. It’s just, you know - the summer holidays 🙈 (and a full moon for good measure apparently). X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Struggling a bit with my head this week. I know it will pass and it’s just a little blip. It happens from time to time and I’m sure I’m not alone. Brody has been tricky to predict and it’s hard when he is unhappy not to get consumed in guilt, feelings of failure or sadness and comparing (complete thief of joy). All that said, he’s had a good day today on the whole. The only thing for it is the trusty ‘one day at a time’ and ‘whatever works’ SEN parent mottos - usually consisting of a lot of screen time, endless snacks, deep breaths and swearing ✌🏻 Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

I wish I could read your mind sometimes. And I bet you wish I could read it too. Sometimes I think about how much your sister talks and what you would say if you could. 9 years of things you haven’t been able to say. How that must feel. An itch you can’t scratch. What you want to watch on TV. What you want for Christmas or your birthday. When you’re too hot or too cold. When you feel sad or annoyed. When you feel unwell. When you want to tell me something that happened at school but you can’t. All we can both do is try. And we do. Makaton. Pointing. Smiling. Laughing. Clapping Blowing raspberries. Crying. Throwing. Tipping. Hitting. Kicking. Pinching. Biting. Refusing to move. Lying down on the floor. Not all easy methods of communication for either one of us but I can only imagine how it must feel when your mum doesn’t understand what you want. And for all of those times I am so sorry. We’ve had a lot of frustration today and I can’t figure out why. But I will never stop trying. There are so many things we don’t need words for and for that I’m so grateful. But I wish I could read your mind sometimes. And I bet you wish I could read it too. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

A year ago today this advert came out. I know this isn’t the solution for everyone who can’t access the continence service or who need to top up what they get, but I really hope that they help some people out there. I’ve been talking to Tesco since Brody was 4 and they’ve been so fantastic. I’m proud of Tesco Junior Nappies and grateful that they saw the demand and didn’t use a disability price tag. This isn’t the end of our relationship and hopefully there will be more good stuff to come 🤞🏻 If you think they might help someone please share. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #tescojuniornappies #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #continence #epilepsy #asd #carer #carers #incontinence #nappies #tescohealth #tescohealthnappies

I struggled to find my inner zen today (not sure I’ve ever found it to be fair lol). Sydney had her friend over, which was so lovely for her but Brody was a bit of an annoying brother. She was really good about it on the whole but I felt totally stressed. In reality, some of the time he was just wanting to join in but other times he was 100% being a pickle. Standing in their way when they were dancing on a Switch game. And then when they wanted to go down a water slide mat thing I bought he would sit on it and refuse to move. Gone are the days I could pick him up and then distract him - and today my distract skills were not on point enough to convince him to move. Anyway, in reality none of it was a big deal at all. It was just one of those couple of hours where it all built up, it was hot and I felt more out of control than normal. And for that I was a huge grump of a mum. Sometimes you just lose your shit I guess. It’s not always possible to find the mental balance so the scales don’t tip. See the mischief in those eyes? 🙈😂 Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Sometimes the summer holidays are a reminder of how life is a little less straight forward when you’re on this journey. Social media is always good at putting it right there in front of your face. Photos of parents not being absolute helicopters. Feet up in the garden or at the beach whilst their kids play. Day trips or simple visits to the park. Activities that work for the majority of families but not for yours. It can’t be completely sugar-coated. Holidays are bloody hard. It’s okay to wish it was easier sometimes. I know I do. But try to remember social media is just a highlights reel. We’re all guilty of posting the happy photos. And remember to hang in there because I promise you this - you are not alone. Xx Image: @toyoufromsteph #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

For the past 18 months I’ve tried my hardest not to mention Brody’s friend Tom’s name. I made the mistake during the first lockdown and he ran to the window excited. Sometimes he would take me to the kitchen and point to his photo. And if we drove anywhere near his house he’d start clapping thinking we were going there. I felt so sad for him. Covid and life has meant we’ve not had a chance to meet for bloody ages but today our boys were finally reunited. Tom has been a constant friend in Brody’s life since he started nursery. They just love being near one another. Here’s to more of this. Xx PS Brody tipped the cup shortly after lol 🙈 #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Today is Changing Places toilet awareness day and so-called Freedom Day. The irony hasn’t been lost on many of us. Although there has been so much positive change in the last few years, going to the toilet is still a basic human right that so many disabled people are denied. The campaign has been a big part of my life for the past 5 years when my super friends and I (hello Peas! @adventuresofthepeas) first met with our local authority, which at the time had no facilities but now has 5 (and more in the pipeline) and a steering group. Since then I’ve sat on a toilet in Baker Street (thanks Brizzers), took part in a round table event with Rishi Sunak MP, been to Scottish parliament and landed a role as Changing Places Campaign Coordinator in Scotland for PAMIS. It’s been such a journey and the best part has been the people I’ve met and friends that I’ve made. People driven by love and their passion for change and inclusion. Campaigners and the guys who work for PAMIS & MDUK (the Changing Places toilet consortium) are a force for good. I am so grateful for all that they’ve done and continue to do. So many people are blissfully ignorant of our situation. That children and adults are changed on dirty toilet floors or are unable to go out for a day because of a lack of facilities. That entire families are isolated. It’s easy to be unaware when you are unaffected. But we can all do our bit to change this. If it doesn’t affect you now remember this - disability is unpredictable and can happen to anyone of us at anytime. Maybe not today but tomorrow it could be you or your child on that toilet floor. Xx (Image description: Brody & Sydney at our local swimming pools Changing Places toilet, which means we can go swimming). #CPAD2021 #changingplaces #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

The two men in the distance of this photograph saved my bacon today when a metal part on the belt strap on Brody’s wheelchair got stuck in the wheel. It happens quite a lot and drives me insane. Does it happen to anyone else with an Action Junior and any tips to resolve it? I had to take him out of the chair because the wheel wouldn’t move and it was a struggle to pull it out and keep hold of him - until they kindly offered to help. It took them a good 5 minutes so I’d have been in trouble without them. The kindness of others really does make such a difference. I was dreading today’s appointment because Brody was on fire this morning being a pickle. He threw his video monitor out of the window and broke it. Pulled the carpet up at the bottom of the stairs. And managed to get hold of the sun cream and have some fun with that all before 10am. When the wheelchair thing happened I thought for sure it was going to go to shit - but actually it wasn’t too bad (minus him hitting the orthotics lady a few times 🙈and my severe mask sweat lol). Grateful for the kindness of strangers and a relatively smooth appointment. Another win to be thankful for. Happy Friday. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

One of the tricky things with the warmer weather is knowing what to put Brody in at night. He has never been able to regulating his temperature well. In the day if he is running about or it’s warm he can turn a shade of beetroot very quickly. Besides the fact no parent wants added crappy sleep factors to worry about when putting their poor sleeper to bed, temperature spikes can also increase the risk of seizures. Ding ding ding - an added head F! It’s an ongoing dilemma as I worry about him overheating but also being too cold. Much like you do when your child is a newborn (just stretch that period to 9 and a half years). He rarely keeps a duvet on him and he wears an all in one, zip up the back number to bed. I’m not sure they’ll ever be an definitive answer to this particular dilemma until he can tell me whether he’s too hot or too cold. But it’s one of those little things that can be a real pain in the arse. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Have you been over to my website yet? I write about family life raising an autistic child. The aim is to create more understanding and acceptance of autism. I also offer support and advice for anyone on a similar journey. Click on the link in my bio! #autism #autismblog #autismuk #mummyofasquarepeg #raisingawareness #autismacceptance #autismunderstanding #autismfamily #mumblogger #sendfamily #sendblog

We went for a steam train ride today and it was a success 🎉 (minus a packet of beef Monster Munch making its way out of the window - could have been worse, he once threw my phone off of the balcony at a shopping mall). You never quite know how these things will pan out so it always feels like we’re winning when they do. Yesterday we drove to take Brody for a walk somewhere he usually loves and he kicked, hit and refused to get out of the car. But this boy does love a train and it was just the right amount of people and time for it all to work out. Brilliant. Celebrate the wins. X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Brody went to a summer activity club today. We were lucky to get 4 sessions over the summer holidays. I feel so fortunate because he absolutely loves it and it gives him some independence and fun and us a little respite. He had such a lovely day. The staff are always amazing and so kind. Here he is playing ‘battles’ with a foam pole. Lol. It meant I got to meet a lovely mummy friend and Sydney’s bestie and go for ice cream. The internet has been a tough place today. I think between football and COVID related stuff it will probably continue to be for a while. I hope you’re hanging in there. Xx #siblings #supersiblings #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

There were so many moments when we were away where Sydney showed how great she is with her brother. I’m glad to have captured some memories to look back on. Back home now. Washing done. Chinese has arrived. Just need to get them to bed 😅 but they’ll be no falling out of bed tonight and reliable WiFi in the morning so looking forward to those wins 🙌🏻 Feel lucky to have had a successful week away from our safety net. Xx #siblings #supersiblings #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Because of you, I will always have a friend… 😩❤️ took this one today too. Thanks for loving my babies. Xx #siblings #supersiblings #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Last day of our holiday and I captured this beauty of my two little favourites. If this pops up on your timeline, I just wanted to say thank you for being there. I love having this page. It’s been a lifeline for me being able to offload my brain farts, speak to people ‘in the know’ and post kid spam. It’s so therapeutic to have a place where I don’t have to overthink boring family and friends - just you guys (ha! 😅). Thank you, thank you, thank you for being there for me. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Please can I pick your brains? Sometimes Brody cries for no apparent reason and it can come from nowhere. He generally isn’t a child that cries (thank god because it breaks my heart). Sometimes it’s like an extreme of emotions. He’s laughing his head off like today and then he bursts into tears and it can last on and off for quite some time. Does anyone have any idea why and does anyone else have a child who does this? I don’t think anything has upset him. My thoughts vary between it being a neurological thing / seizure activity / some kind of overload / ADHD? Answers on a postcard and thanks ❤️ Xx PS this video isn’t a great example but a tiny snippet. Sydney was trying to make him laugh. Also if I ask if he’s sad when he’s like this he usually reacts with more tears. #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Anyone else getting Lion King / Rafiki presenting Simba vibes? 😂☀️❤️ #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

It’s been another good one on the whole 🙌🏻(minus a can of coke incident this morning and a hairy 10 minutes in a cafe when Brody wasn’t happy). We went to a farm park and I bumped into a lovely mum and her daughter who recognised Brody (and hopefully didn’t think I was weird when I gave her a hug 🙈). And we went to the beach again where Brody enjoyed the waves and swallowed half of the sea. Kid and animal spam overload in my stories. Not even sorry. X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

The face of a boy who just sat and flapped his happy arms to his hearts content in the sea enjoying the waves. Day absolutely made. His and mine ❤️ Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Thank you to my new followers on here - it’s great to connect with the amazing #sencommunity A little bit about me and my book: 🌸🌿 Day by Day: Emotional Wellbeing in Parents of Disabled Children 🌸🌿 As a parent carer and psychologist I wanted to write a book that supported parent carer wellbeing. I have been researching emotional well-being for the last four years, and considering parent carers’ mental health since my son was born 14 years ago. I felt the wellbeing of parent carers was rarely considered by professionals, society or even the parents themselves. I wanted to share what I’ve learnt along the way to: 🌿 ensure no one felt alone in their struggles 🌿 give voice to the many difficult emotions Parent Carers can experience, often all at the same time. It really is a rollercoaster 🌿 share tips and strategies that other parent carers find useful 🌿 bring the research, which is often inaccessible, to parents 🌿Provide advice and elicit understanding more broadly from professionals and services that support families with a disabled child I’m delighted to have received lovely feedback from parents, family members, professionals and services that the book has offered them insight and helped parents feel seen and heard. Thank you 😊💕 The book can be ordered via Amazon in my bio 👆 Jo #parentcarers #parentcarerwellbeing #specialneedsparents #specialneedsparenting #carers #caregivers #caregiversupport #familycaregiver #familycaregivers #senparents #caregiverburnout #caregiver #autismmoms #autismmums #autismdads #specialneedsmom #caregiversupport #carer #carework #psychologistsofinstagram #socialworkersofinstagram #physiotherapists #occupationaltherapists #speechandlanguagetherapy #specialneedsblogger #SENDblog #autism #globaldevelopmentaldelay #sendcommunity #parentingautism

Sleeping beauty is asleep (he’s been up since 4 this morning and quite active so he bloody well should be lol). Usually when we’re away from home we push a bed against the wall and sleep with him but there isn’t the option of moving the bed here. So it’s pillows on the floor and a camera at the side of the bed until one of us joins him. When we’re on holiday we always miss his bed at home. It’s been one of the most helpful bits of equipment we own (funded through Newlife). It has literally changed our lives. He is so settled in it. There is no risk of him falling out. No risk of him hurting himself. No worries about him leaving his room without us knowing (zero danger awareness). I recently applied for funding for a travel bed system. I don’t think we’ll get it because let’s face it, it’s a bit of a luxury - but at £4630 it’s worth a punt. We constantly hear that things are priced so high because disability is a niché market and there is so much research and development needed in order to make things to help our community. The truth is they rely on funders ‘paying up’ and providing us with grants and/or our sheer desperation (and magical pockets). Then when our disabled kids become disabled adults the funding streams disappear completely. Bit shit innit? Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human #disabilitypricetag

We’re on holidaaaaaay (which means 4am starts, sitting / crawling in the sea come rain or shine and copious amounts of snacks/caffeine/alcohol). So far so good ❤️ Here’s Brody signing ‘pig’ because I was trying to make him smile for a photo and went for a pig noise when a raspberry didn’t work 🤣 Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

All about the uncontrollable excitement ❤️ (and making me say “sit down” over and over again). #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Thomas Land done ✔️ CBeebies Land tomorrow. Not going to lie, absolutely knackered after a dodgy night, early start and the constant helicopter level of supervision lol but totally worth it when you get this level of happy ❤️ Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Does @premierinn’s good night guarantee include sleeping with this guy in your room? Asking for a friend… 🥴 #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Just following on from last nights post - just back from a walk and when a lady stopped to talk to us briefly the first thing she said when looking at Brody in his buggy was… “Ooh big baby” She didn’t mean any harm but honestly 🙈 Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Someone posted something a few days ago and it went along the lines of “what’s the worst thing anyone has ever said to you when pregnant?” It took me back to being pregnant with Sydney. On two separate occasions I was asked whether we knew if she would be disabled (a midwife and a nurse). When I replied one said “oh well it’s in there now!” and another said “well it’s too late now anyway”. One of the times my other half (aka super dad) was with me and we kind of just sat in disbelief. I don’t know if I’ve ever shared that with you all, but it’s just utter madness. We’ve had some rude comments over the years. I imagine you all have too. “Is he a cripple?” “I don’t charge the handicapped” (I took her up on that - free teacup rides!) “He looks so normal / handsome - you’d never know”. “What’s wrong with him?” @islas_voice posted about this recently - it’s one of those things - think about how you phrase things e.g. does he have a diagnosis is much better. “I wish we got free nursery hours”. This journey has taught us a lot. That there are a lot of amazing, wonderful, thoughtful people. For the most part it’s taught us that. But also it’s taught us that we really do have such a long way to go. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Photo of a 6 year old girl getting over her first experience of kids taking the mickey out of her brother. Gah! I tried to tell her that sometimes this will happen because others don’t always understand and when people don’t understand they can say silly things or be silly. And we can teach them so that they don’t. They didn’t say anything particularly bad. Apparently they asked why does he always hit (🙇🏼‍♀️🤦🏼‍♀️) and were asking if his name was something silly (which was the main thing that upset her). I felt so sad for her. Mainly because I know this wont be the last time she experiences it. I can’t stop it. But I wish I could. X #sibling #supersibling #sister #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Although we didn’t know what to expect when we had a family, the journey hasn’t been quite what we imagined. Worries that only the tribe can relate to, appointments, health professionals, diagnoses (and lack thereof), changing nappies and personal care…I can say with confidence was not what this guy envisaged nine and a half years down the road. Yet he does it all so easily you’d think it was. He is the best dad and best example. We are so lucky to have him. Happy Fathers Day one and all. X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human #FathersDay #Dad

Brody has a thing for dogs at the moment. I think it started when a lovely friend of mine let him hold her dogs lead when he was in his buggy last year. He’s been obsessed with ‘how much is that doggy in the window’ and dog is one of his only clear signs. A really kind stranger let him hold his dogs when we were out for a walk tonight and throw the ball for them. His wee face 😭😍 pure happiness. I posted on a local group to say thanks and so many people have offered their dogs for a pet including the guy we bumped into. It’s a nice reminder that there are some kind people out there. X #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human

Ignore the mess and the fact that the seat is too low but if anyone wants a converter to make their swing spin check out Amazon. £17 compared to TFH’s £61. Same thing. Here’s a link: Lanbowo Swing Swivel 30 KN Pulley Safest Rotational Device Hanging Accessory for Swing Setting Aerial Dance Children Swing New https://smile.amazon.co.uk/dp/B07VMSF7CL/ref=cm_sw_r_cp_api_glt_fabc_AW6BFMDNH1QNZ0VB9N2T?psc=1 I don’t gain anything from this other than the satisfaction of beating the disability price tag. And seeing this face smile. Xx #SENBlog #SENDBlog #SEND #SEN #GDD #undiagnosed #GlobalDevelopmentDelay #pblogger #specialneeds #specialneedsparenting #specialneedsparent #autism #autismawareness #epilepsy #undiagnosed #love #parenting #specialneedsblogger #specialneedsjourney #disability #acceptance #inclusion #disabilityacceptance #showyourrare #epilepsy #asd #carer #carers #human