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There will be a Fundraising Golf Day at Umdoni Park Golf Club on 2nd June 2024. If you are a golfer or not or a company or know of a company that would like to be part of my journey to raise funds to be able to walk again, please come join usšŸ’œ #spreadawareness #raisingfundsandawareness #septicshocksurvivor #isurvivedsepsis #meandmyscars #anotherdayinthelifeofshan #sepsisalliance #nevergiveup #amputee #sepsissurvivor #quadrupleamputee #willtolive #journeytowalkagain #onestepcloser #fightforsurvival #knowthesigns #postsepsissyndrome #sepsisawareness #sepsiswarrior #sepsis #askifitcouldbesepsis

5/3/2024, 9:05:18 AM

ā¤ļøBlessingā¤ļø Challenged Athletes Foundation approved Beaudenā€™s grant for a hand bike! šŸ˜­šŸ™šŸ»šŸ¤ Itā€™s not even the fact that he can now keep up with his sisters, or the bike is his favorite color blue, or the fact that this incredible organization gives big. Itā€™s that CAF LOVES BIG! Their passion in helping others through spectacular events, awarding grants, cheering each other on, giving back to their community & making authentic connections is what theyā€™re all about. With THE biggest heartfelt thank you @cafoundation , Beauden is so blessed šŸ™šŸ»šŸ¤ #Gratitude #WeLoveCAF #SepsisSurvivor #Amputee

5/3/2024, 4:32:07 AM

Kennedy is going to be on @wxyzdetroit tonight at 6 pm!!! I asked her several times if she was okay with it, if she wanted to be on camera, including her whole face, and she didnā€™t hesitate to say yes!!! She made me so freaking proud. It was really hard to hold back all the tears watching her speak. She continues to be so brave and so resilient and I canā€™t believe I get to be her mama. @sarahmichals thank you so much for coming and spending your afternoon with us! Iā€™m so excited you got to meet Kennedy and bond over golden retrievers. šŸ’› #kennedywarriorprincess #sepsis #sepsisawareness #sepsissurvivor #necrotizingfasciitis #necrotizingfasciitissurvivor #necrotizingfasciitisawareness

5/2/2024, 10:01:09 PM

So... I am doing my wing walk NEXT MONTH šŸ„“šŸ˜¬ To read my full story/share/donate click the link in our bio šŸ˜˜ @thewingwalkcompany #wingwalk #fundraiser #just4children #littlewarrior #gbssurvivor #meningitissurvivor #sepsissurvivor #hydrowarrior #hydrocephalus #braininjury #hie #hopeforhie #visuallyimpaired

5/2/2024, 9:29:59 PM

#soitsmybirthday Once again... I've had a terrible feeling all day It's hard to explain If you ask me It's just a feeling that won't leave Not today anyway Maybe it will have When I wake up tomorrow As it did last year . . . . . . . . . . . #mybirthday #itsmybirtday #sepsishjƤrna #sepsis #sepsisawareness #postsepsissyndrome #selfportraitphotography #selfie #selfportrait #blackandwhitephotography #blackandwhitephoto #blackandwhite #bnwphotography #instablackandwhite #bnw_greatshots #selfimageissues #sjƤlvportrƤtt #monochrome #monochromephotography #withgalaxys20ultra #withGalaxy #memyselfandi #intheshadows #darkmind #sepsissurvivor #badass_bnw

5/2/2024, 8:35:33 PM

Itā€™s official! Our wonderful Governor Wes Mooreā€™s office has issued a proclamation designating May as Ehlers-Danlos Awareness Month in Maryland. It just arrived in the mail! We are #zebrastrong when we all work together. šŸ¦“ā™„ļø Thank you @iamwesmoore . #ehlerdanlossyndrome #ehlersdanlosawareness #ehlersdanlossyndromes #hypermobility #hypermobilityspectrumdisorder #invisibleillness #invisibledisability #sepsissurvivor

5/2/2024, 8:17:45 PM

Can you spare a few minutes to make a difference by sending an email? Visit our website for instructions on how to email this poster to your school leadership. Awareness saves lives! #endsepsis ___ . . . . #sepsis #sepsisawareness #sepsissurvivor #doctors #nurses #pediatrics #education #schoolnurse

5/2/2024, 8:08:37 PM

Feeling grateful everyday for beating the odds and being alive for my family. #gratitude #dailyreminders #glow #glowonstrong #sepsissurvivor #amputee #author #motivational

5/2/2024, 5:35:00 PM

Iā€™ve been speaking to a lot of Sepsis Survivors recently and one thing Iā€™ve noticed is that a lot of the signs and symptoms of one thing can be the same as another, and sometimes we focus on just one thing when thereā€™s possibly lots going on. Remember: youā€™re not just a Sepsis Survivor, youā€™re a human. You can have more than your ā€˜recoveryā€™ going on. šŸ„— Maybe youā€™re not eating right and thatā€™s causing some symptoms to become worse. šŸ˜¢ Maybe youā€™re isolating and the lack of human connection / fresh air / sunlight / movement is making things more difficult to deal with. šŸ§¬ Maybe your hormones have taken a hit and you just canā€™t be bothered keep up with self care ā€¦ or your anxiety is so bad that you canā€™t think straight. šŸ¦  Maybe the infection that caused the sepsis is still there and causing you problems. Keep an open mind, and keep up with your self care šŸ˜ Me: āœ… Septic shock survivor šŸ¤’ āœ… PTSD šŸ˜± āœ… Post Sepsis Syndrome šŸ˜” āœ… Recovering from QFever and Rickettsia šŸ¦Ÿ āœ… Peri-Menopausal šŸ§¬ #septicshockawareness #sepsis #sepsisawareness #sepsissurvivor #septicshock #septicshocksurvivor #qfever #rickettsia #rmsf #menopause #postsepsissyndrome #pss #ptsd #recovery #sepsisrecovery #autoimmunedisease #depression #nutrition #sepsiscoach #lyme #lymedisease #tenerife #lifeaftersepsis #sepsiskills #sepsisresearch #rockymountainspottedfever #spottedfever #typhus #wellness #wellnesscoach

5/2/2024, 2:25:54 PM

I want to spread awareness of sepsis everywhere! Before I contracted sepsis I never thought it could be anything like Iā€™d experienced. I had ALL of these symptomsā€¦. I always felt cold (I was in full blown hypothermia when the paramedics got to me), I had a urine infection, I could see paper birds on a string on my window (which werenā€™t there), I felt so so tired like Iā€™d never felt such tiredness before, I couldnā€™t look after my daughter, but because I was so confused I didnā€™t even think this was sepsis, I was in excruciating pain in my joints and my head, I also was short of breath and only had 15% of one lung working. I then went into multi organ failure. My pancreas, lungs, kidneys and liver. My heart also started failing and my feet were mottling. I was so close to death. They had to intubate me in the house due to my breathing being so shallow. I was placed into an induced coma while they pumped me full of god knows what meds (cancer meds also) to try and save me. I had a treatment called ECMO which essentially saved my life but had to be transferred to Bristol for this and then they didnā€™t know if I would survive the journey. I woke up and couldnā€™t move one finger. I had to stay on the ventilator with a tracheotomy in my throat. I couldnā€™t speak and couldnā€™t move. How frustrating this was I couldnā€™t begin to tell you. Even if I manage to help one person, that makes me happy because nobody deserves to go through this. Please share and make people aware of the real dangers of sepsis. #SepsisAwareness #sepsissurvivor #sepsis

5/2/2024, 9:37:51 AM

Day 1 Post a Selfie šŸ¦“ Maryland girl here. My name is Jackie and Iā€™ve had hEDS all my life but didnā€™t get diagnosed till my daughters did. When I was 54. Better late than never I guess. šŸ˜‚ I also have POTS, Crohnā€™s, osteoporosis (Prednisone didnā€™t help- I told my doctors no more steroids. Iā€™m done!) Hashimotoā€™s thyroiditis, dental problems, and half a colon. The other half was removed during an emergency surgery 3 years ago after my colon ruptured from undiagnosed diverticulitis and sent me into septic shock. I was intubated and flown to Baltimore for life saving surgery. I was in respiratory failure and heading into heart failure as they wheeled me into the OR. Sepsis almost destroyed my lungs, and half my hair fell out. I lost iron and need dental work to repair the damage. I had to learn to walk again. I used to use a wheelchair and scooter from 2014-2021, somehow losing half my colon and intensive rehab both in patient and out patient, has helped me walk better and longer. Weird huh? As if my doctors didnā€™t have enough to scratch their heads about me. šŸ˜‚šŸ˜‚šŸ¤£šŸ¤£ I am a true zebra through and through. šŸ¦“ I work part-time as a journalist, Iā€™ve written for the Washington Post, AARP, and Readerā€™s Digest. My most recent article came out in Costco Connection today, on Ehlers-DanlosšŸ¤—. I love to swim, for pain relief. And I work out to strengthen my muscles to help with the POTS and EDS. As I get older, neither one gets better. So Iā€™m trying to do my best to stay upright and keep both feet on THIS planet šŸ˜‚ Iā€™ve been disabled since 2012. ā™æļøšŸ’ŖšŸ» Iā€™m also a sepsis advocate and an Ehlers-Danlos advocate. Iā€™m raising my voice this month for EDS Awareness. #ehlersdanlossyndrome #zebrastrong #ehlersdanlosawareness #sepsissurvivor #halfacolonstillrollin #invisibledisability #invisibleillness

5/2/2024, 5:14:09 AM

Itā€™s okay to not be okay. This has been our mantra these past few days as Kennedy has started to understand what happened to her. Her bandages came off on Monday, and itā€™s the first time sheā€™s seen the right side of her face since the necrotizing fasciitis started. As you can imagine it has lead to some pretty heavy conversations and emotions. I think a person, especially a child, can only put on a brave face for so long. And thatā€™s okay. Weā€™re going to feel all the feels we need. Thatā€™s part of the healing process. ā™„ļø While itā€™s been a tougher week emotionally, weā€™re trying to celebrate all the wonderful moments weā€™ve had. One moment in particular happened today that I cannot WAIT to share with you all. Hereā€™s a hintā€¦ šŸ’™ šŸ¦ šŸ¤ #kennedywarriorprincess #necrotizingfasciitissurvivor #sepsis #sepsissurvivor #sepsisawareness #necrotizingfasciitisawareness #necrotizingfasciitis

5/2/2024, 3:58:02 AM

Exciting news! Our Sepsis in Schools Education Campaign is live, and we need your help! Are you aware that every year, 75,000 children are hospitalized due to sepsis? Shockingly, around 7,000 of them lose their lives, while 38% of survivors endure lifelong disabilities. Awareness can make all the difference, which is why we've initiated a campaign aimed at providing vital sepsis education to classrooms, school administrators, and nurses. Getting involved is simple ā€“ visit our site (link in profile) Our newly launched Sepsis in Schools Education page has all the tools you need, including: - A customizable letter to the principal explaining your concerns and sharing the available resources - A Signs of Sepsis in Children poster for display in school nursesā€™ offices - Access to our comprehensive K-12 curriculum, Signs of Sepsis animated video and Ouch, I Got a Cut, our picture book on infection prevention for young readers. Head to our website now to get started. Thank you for joining us. Letā€™s help our schools be smart about sepsis! ___ . . . . #sepsis #endsepsis #education #schools #publichealth #sepsisawareness #sepsisalliance #sepsisrecovery #sepsissurvivor #infections #doctors #nurses #cdc #schoolnurse #teachers

5/1/2024, 7:51:47 PM

Is this a joke? šŸ˜€ No, you see it well. the silicon pad is outside the šŸ§¦ sock now, fixed with adhesive tape ā€¦ This really looks so stupidšŸ˜‚ After a few days testing, I couldnā€™t bear it, my foot was burning of the touch of the silicone šŸ”„ And because in theory itā€™s a good idea, to release pressure, I put it outside the sock , and I went down to the hospital to see Sonia yesterday, as she was not in on Friday. (The vascular wound specialist) She already knew I was not happy with the silicone, but looked at this invention and didnā€™t laughā€¦ checked the wound, cleaned it and then taped back onto the sock. ā€œIf it works like this, itā€™s okayā€. She seemed to have a good day, and had 2 assistants with her. She told me thereā€™s something else sheā€™s waiting for to come, that might help ā€¦ (oh my god, I thought, itā€™s a never ending story with the fixtures šŸ˜‚). I appreciate her dedication really. But I emphasized again I have no fear of anything more drastic. She said: ā€œ We still owe you some solutions ā€œ And me : ā€œNo, please, you donā€™t owe me anything, you have done so much for me ā€œšŸ™šŸ» Itā€™s true, I never blame them or anything like thatā€¦ (I was just thinking about it these days, I hope they donā€™t think Iā€™m not content because it doesnā€™t seem to work out well in the end how they did the surgery 4 years ago. No. We wanted to save this foot as much as possible. Lastly she said there might be already a specialists meeting in a few weeks time, where I would be invited for a joint evaluation šŸ™šŸ» that would be great. I know nothing will happen before summer, itā€™s too late and this process is rather slow. But I hope the decision will be taken. Meanwhile I continue to invent strange and stupid orthopedic solutions šŸ˜€ (Tbc , today I had a private traumatologist visit šŸ‘ ) . . . . #vascularsurgery #amputeelife #amputeeproblems #amputeestrong #sepsissurvivor #orthopedics #footproblems #slowlifediary #disability #discapacidad

5/1/2024, 12:47:41 AM

And just like that, Isaacs back in hospital 39.4 temp, leg pain and extremely tired. One day after heā€™s finished antibiotics. This is the second time in a row now heā€™s left hospital, finished his oral antibiotics and then gone in the next day. Please just let our boy stay out of hospital šŸ™šŸ¼šŸ˜« #hospital #antibiotics #leukemia #sepsis #childcancer #accutelymphoblasticleukemia #ALL #leukaemia #cancer #piccline #sepsisawareness #sepsissurvivor #amputee #disabled #amputation #greatormondstreet #greatormondstreethospital #GOSH #lymphaticmalformation #lymphaticsystem

4/30/2024, 10:10:21 PM

Ne rien lĆ¢cher šŸ’ŖšŸ¼ Quand chaque jour, chaque nuit, devient un combat pour survivre. Une lutte sans rĆ©pit contre la maladie. Encaisser, affronter, supporter lā€™insupportable devient question de survie. . Tenir bon quoiquā€™il arrive, pas par choix nan, mais pas obligation pour vivre. Se battre ou mourir, yā€™a pas dā€™autres options, alors tu te bats. Parce que tu sais que si tu baisses la garde cā€™est foutu. La maladie nā€™a jamais de pause. Si elle te met au sol, tu te relĆØve pas. Alors tu te rĆ©pĆØtes Ā«Ā on lĆ¢ches rienĀ Ā» . Sā€™accrocher Ć  lā€™amour des siens pour pas sombrer. Tenir bon pour eux mais aussi grĆ¢ce Ć  eux ā¤ļøā€šŸ©¹ Lā€™amour comme arme face Ć  la maladie, lā€™amour comme force, lā€™amour comme raison de vivre šŸ™šŸ¼ On lĆ¢che rien šŸ‘ŠšŸ» . . . #crohn #maladiedecrohn #rch #rectocolitehĆ©morragique #afacrohnrch #ileostomy# #ostomate #ostomy #surgery #ibd #crohnwarrior #scoliosis #sepsissurvivor #heartsurgery #mici #reeducation #onlacherien

4/30/2024, 6:13:59 PM

April is Limb Loss and Limb Difference Awareness Month.šŸ’™ According to the @amputeecoalition, there are approximately two million people in the United States who have an amputation, and an estimated 185,000 amputations take place each year. AND an average of 38 amputations A DAY are a result of SEPSIS.šŸ˜­ We are so thrilled to announce BAFā€™s new Amputee FundšŸ’™ If you or someone you know would like to apply, please visit patientadvocate.org/financialaid or call (855)824-7941 šŸ’™ #sepsissurvivor #sepsisawareness #sepsis #sepsisawareness #limblossawareness #limbloss #limblossandlimbdifferenceawarenessmonth #llldam #amputee #amputeelife #amputeestrong #infectionprevention #infectiousdisease #publichealth

4/30/2024, 5:15:33 PM

šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”April is Amputee/LLLDAM Awareness month. Today as the month comes to a close hereā€™s a message from my husband Greg. He makes this new normal look easy every day and I so appreciate his positive attitude and he willingness to live every day, stay active and be his best self. Thank you to Medical Center Orthotics & Prosthetics for all you do for Greg and to the Amputee Coalition for surrounding this cause. šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§”šŸ§” #amputeelife #LLLDAM #sepsissurvivor

4/30/2024, 4:04:42 PM

Isaac is now out of his cast and into his splint! Itā€™s now just waiting for his prosthetic appointment to get it made and then hopefully for his birthday heā€™ll be walking šŸ„° This is the first time Isaacā€™s worn shoes since his first sepsis episode ā¤ļø #leukemia #sepsis #cancer #childcancer #sepsisawareness #sepsissurvivor #amputee #amputation #legamputee #ALL #accutelymphoblasticleukemia #greatormondstreet #greatormondstreethospital #GOSH #splint #Cast #disabled #wheelchair #lymphaticmalformation #lymphaticsystem

4/30/2024, 3:25:37 PM

Leo has gone to residential with his school today. Heā€™s never been away from home without me šŸ˜­ He was a little emotional last night and this morning but as soon as he got to school he zoomed off without even looking back at me ! I know heā€™ll have the best time but I canā€™t wait to pick him up on Friday šŸ„°šŸ„° #cerebralpalsy #cerebralpalsykids #cerebralpalsyawareness #disabilityawareness #disabilityblogger #mylife #sepsissurvivor #wheelchair #electricwheelchair #birmingham #suttoncoldfield

4/30/2024, 1:32:58 PM

With just 24 hours to go until the start of my @sepsisresearch 29032 ft challenge, let's just call this #acclimitisation šŸ˜‚ #everest #equivalent #dreich #weatherwindow #sepsis #sepsisawareness #sepsissurvivor #hope https://www.justgiving.com/page/dee-thomas-1712678838420?utm_source=IG

4/30/2024, 10:21:28 AM

Neonatal sepsis, or newborn sepsis, is a serious condition characterized by a systemic infection in newborns less than 28 days old. Symptoms may include fever or hypothermia, lethargy, poor feeding, respiratory distress, jaundice, and abnormal heart rate or breathing patterns. Additionally, affected infants may exhibit signs of irritability, abdominal distension, or vomiting. Since neonatal sepsis can progress rapidly and lead to severe complications, prompt medical attention is crucial. To Consult Dr.Arindam Butt, Pediatrics, West Bengal Visit: http://www.drbuttsclinic.com/ or Call us at 08972482698 #DrArindamButt #WestBengal #NeonatalSepsis #SepsisAwareness #NewbornHealth #SepsisTreatment #SepsisSupport #Neonatology #SepsisPrevention #NeonatalCare #SepsisAwarenessMonth #BabyHealth #Pediatrics #InfectionControl #SepsisFight #Healthcare #NewbornCare #SepsisSurvivor #NeonatalHealth #InfantHealth #EarlyDetection

4/30/2024, 8:41:28 AM

šŸŒŸ Celebrating Patient Success: Jill Anderson šŸŒŸ Jill never expected to spend months in the hospital battling for her life. But that's what happened after she was diagnosed with septic shock, double pneumonia, and kidney failure. On her journey back home to her husband and three boys, Jill spent time at Vibra Hospital of Fargo, where she worked hard to regain her ability to walk, eat, and care for herself. Congratulations, Jill! We're so proud of you! Read Jill's inspirational story by visiting the šŸ”— link in our profile or heading to vhfargo.com . . . #fargo #fargond #northdakota #patientsuccess #successstory #sepsis #sepsissurvivor #respiratorytherapy #criticalcare #healthcare #ltach #ltac #healing #inspiration #mompower

4/30/2024, 2:07:29 AM

šŸŒŸ Celebrating Patient Success: Jill Anderson šŸŒŸ Jill never expected to spend months in the hospital battling for her life. But that's what happened after she was diagnosed with septic shock, double pneumonia, and kidney failure. On her journey back home to her husband and three boys, Jill spent time at Vibra Hospital of Fargo, where she worked hard to regain her ability to walk, eat, and care for herself. Congratulations, Jill! We're so proud of you! Read Jill's inspirational story by visiting the šŸ”— link in our profile or heading to vhfargo.com . . . #fargo #fargond #northdakota #patientsuccess #successstory #sepsis #sepsissurvivor #respiratorytherapy #criticalcare #healthcare #ltach #ltac #healing #inspiration #mompower

4/30/2024, 2:07:29 AM

šŸŒŸ Celebrating Patient Success: Jill Anderson šŸŒŸ Jill never expected to spend months in the hospital battling for her life. But that's what happened after she was diagnosed with septic shock, double pneumonia, and kidney failure. On her journey back home to her husband and three boys, Jill spent time at Vibra Hospital of Fargo, where she worked hard to regain her ability to walk, eat, and care for herself. Congratulations, Jill! We're so proud of you! Read Jill's inspirational story by visiting the šŸ”— link in our profile or heading to vhfargo.com . . . #fargo #fargond #northdakota #patientsuccess #successstory #sepsis #sepsissurvivor #respiratorytherapy #criticalcare #healthcare #ltach #ltac #healing #inspiration #mompower

4/30/2024, 2:07:29 AM

According to the @amputeecoalition, there are approximately two million people in the United States who have some sort of amputation, and an estimated 185,000 amputations take place each year. This includes sepsis survivors like Don, who lost seven of his toes after a group A strep infection rapidly progressed to life-threatening sepsis. Click the link in our bio to learn more about sepsis and amputations.

4/28/2024, 11:28:02 PM

La sepsis es una urgencia mĆ©dica y si no se diagnostica y trata de forma temprana, puede ocasionar daƱo irreversible a los tejidos, shock sĆ©ptico, insuficiencia orgĆ”nica mĆŗltiple y muerte. ā€¢Por lo mencionado, partĆ­cipe por streaming del World Sepsis Congress Spotlight, organizado por la Global Sepsis Alliance y la Physician-Patient Alliance for Health & Safety bajo el lema ā€˜Necesidades no satisfechas en el diagnĆ³stico y terapia de la sepsisā€ #survivorsepsis #sepsissurvivor #educaciĆ³ncontinua #medicine

4/28/2024, 3:46:42 PM

Update on our Tiniest Sir, James and I: We are home now. Adjusting to life outside of the hospital, and no sleep. We want to thank every single one of you that raced to our aid, with prayers, thoughts, special messages, cards and donations. It has meant so much to us, and I'm so grateful for everyone single one of you. Even to the ones that didn't reach out to us directly but to our family. Also to the ones that asked about our oldest boys and Deej. This has affected our whole entire family to our core. We have so many amazing people in our lives and we do not take any of you for granted. We are taking this time to adjust and just love up on each other, so we can heal as a family. Today, James is a NICU graduate and is 9 weeks old today. If I was still pregnant we would be 38 weeks gestational. And thank you so much again. James and I are so grateful to be alive today. #blackmaternalhealth #blackmaternalmortality #nativeamericanmaternalhealth #nativeamericanmaternalmortality #sepsisawareness #sepsissurvivor

4/27/2024, 11:21:07 PM

I don't think we can decorate my tree much more today.

4/27/2024, 9:13:40 PM

We will never be able to thank @alfies_wish enough for the smiles and memories theyā€™ve given us as a family by getting us to WWE Money in the Bank. Today we sat down with Alfieā€™s Wish and spoke about Isaac and his journey. They were so lovely and comforting. To talk so openly with someone who knows what weā€™re going through made it so much easier and relaxing. The passion Charlotte has for this charity is amazing and hearing her talk about her incredible Alfie was a pleasure. He would be so proud of the joy his mum has given to all the children this charity has helped ā¤ļø We will forever be in your debt ā¤ļø #charity #alfieswish #cancer #childcancer #leukemia #leukemiaawareness #cancerawareness #ALL #sepsis #sepsisawareness #sepsissurvivor #lymphaticmalformation #disabled #amputee #amputation #wheelchair #piccline #greatormondstreet #greatormondstreethospital #GOSH

4/27/2024, 6:30:20 PM

šŸ§”šŸŽ—ļøSome days Iā€™m fine. Other days Iā€™m staring at the shoe organizer filled with Charlotteā€™s old shoes for Sophie to grow into, and notice Charlotteā€™s dirty little footprints still imprinted on her flip flops. The last remaining evidence of her tiny little toes. Itā€™s just not fair. Sheā€™s here and thatā€™s all that matters, thank God. But it still hurts. And we still mourn what we did lose. #LLLDAM #charlottestrong #quadamputee #childamputee #sepsissurvivor #ecmosurvivor #tinytoes #griefisnotlinear #rainbows

4/27/2024, 2:48:55 PM

Popeye Ć©pisode 1999999 šŸ˜… AprĆØs quelques jours de fiĆØvre et Ć©tat gĆ©nĆ©ral bien faible ā€¦ Ce que je craignais est arrivĆ©ā€¦ DĆ©shydratation sĆ©vĆØre avec forte suspicion de pyĆ©lonĆ©phrite šŸ˜† je suis en attente de rĆ©sultats šŸ™šŸ¼ . En attendant il etait urgent de dā€™hydrater, je commenƧais Ć  avoir du sang dans les urines šŸ˜Ŗ et je me sentais vraiment pas bien. . Mais forcĆ©ment avec mon capital veineux quasiment nul et nā€™ayant plus de voie veineuse centraleā€¦ la derniĆØre solution etait lā€™hydratation en perfusion sous cutanĆ©e depuis hier soir et pendant 7 jours šŸ’ŖšŸ¼ Ƨa va retaper Popeye ! . Merci Ć  tous pour vos messages de soutien encore šŸ™ŒšŸ¼ā¤ļøā€šŸ©¹ on lache rien ! . . . #crohn #maladiedecrohn #rch #rectocolitehĆ©morragique #afacrohnrch #ileostomy# #ostomate #ostomy #surgery #ibd #crohnwarrior #scoliosis #sepsissurvivor #heartsurgery #mici #reeducation #onlacherien

4/27/2024, 12:40:57 PM

šŸ–¤ @_noweightsnodates_ @clublandevents @arenanewcastle @_inner_glow_ #skin #skincare #beautytherapist #youonlyliveonce #newcastle #couple #girlwithtattoos #sepsis #sepsissurvivor #burtonontrent

4/27/2024, 6:50:48 AM

For those of you who saw my stories, will know I'm due to have major surgery on the 24th of June... I've waited over 12 months for this, but now I have the date I'm starting to feel really anxious šŸ˜Ÿ šŸ˜° and if you know my story, you'll know I'm an old timer at this surgery thing ha ha as this will be number 22 surgeries I've had in the 8 years of this awful illness šŸ˜– A lot of people tend to think or say "Oh at least with all them surgeries under your belt, you'll be used to what happens and used to going under, ect, but no, I will never get used to this ever! I don't think anybody would, to be honest... I wanted to come on and thank everyone on here, so thank you for all your support up until this moment. It's very much appreciated šŸ‘šŸ» but if you could stick by me a little longer, I'll take you all with me on this major surgery journey... #majorsurgery #surgerylife #surgerychangedme #painteam #operations #strength #warrior #lookingforsupport #iwillneedhelp #nervepain #neuropathicpainawareness #nephrectomysurvivor #onekidneywarrior #urologylife #urologyissues #isurvived #sepsissurvivor #ivebeenthroughhellandback #ivehadalotofsurgery #pleasesupportme #thankyouforreading #wishmeluck #hiddendisabilitylife #disabilitiesawareness #disabledandproud #supportchronicillnesses

4/27/2024, 6:02:26 AM

Did a young person in your life survive sepsis? We recognize that hospital discharge doesnā€™t signify the end of medical challenges for many pediatric sepsis survivors and their families. If youā€™re navigating hospital readmissions, cognitive challenges, or other obstacles in post-sepsis life, you are not alone. Access free educational resources for survivors and their families by visiting PediatricSepsisWeek.org.

4/26/2024, 11:45:04 PM

During #SepsisSurvivorWeek, we honor the 1.4 million Americans who survive sepsis every year, this includes the tiniest patients! Is your #NICUWarrior a #SepsisSurvivor? Share your story and bring hope to other NICU parents. https://page.prolacta.com/en/share-your-nicu-story

4/26/2024, 3:00:24 PM

Neonatal sepsis, or newborn sepsis, is a serious condition characterized by a systemic infection in newborns less than 28 days old. Symptoms may include fever or hypothermia, lethargy, poor feeding, respiratory distress, jaundice, and abnormal heart rate or breathing patterns. Additionally, affected infants may exhibit signs of irritability, abdominal distension, or vomiting. Since neonatal sepsis can progress rapidly and lead to severe complications, prompt medical attention is crucial. To Consult Dr. Kritika Tiwari, Consultant Pediatrician & Adolescent Health Specialist, West Mumbai, Maharashtra Call: 9920313039 #DrKritikaTiwari #Maharashtra #NeonatalSepsis #SepsisAwareness #NewbornHealth #SepsisTreatment #SepsisSupport #Neonatology #SepsisPrevention #NeonatalCare #SepsisAwarenessMonth #BabyHealth #Pediatrics #InfectionControl #SepsisFight #Healthcare #NewbornCare #SepsisSurvivor #NeonatalHealth #InfantHealth #EarlyDetection

4/26/2024, 10:21:05 AM

First fit check of this @handspunhope cotton knit top took place today in the hematology ward at #mayoclinicmn . Eric wanted to see it. I intended to add sleeves and maybe a big loose cowl neck but he likes it like this. Whatā€™s your vote??? : : : : : : : : : : : #reywafibers #leukemiawarrior #leukemiasurvivor #sepsissurvivor #mnsmallbusiness @melialness #knitweardesigner #handknits #laceknitting #sweaterknitting #sweaterknittersofinstagram #sweaterknitter #laceknittersofinstagram #mnknitters

4/26/2024, 1:56:54 AM

This Pediatric Sepsis Week, weā€™re recognizing the experiences of sepsis survivors like four-year-old Aurelia. Last summer, Aureliaā€™s mother, Laci, took her daughter to two separate pediatric urgent care centers for symptoms that included coughing, vomiting, and a fever. Doctors at both facilities reassured Laci that it was likely just a virus. She recalls, ā€œBy that point she was already showing signs of sepsis (lethargy, rash on her chest, high fever, etc.), but I am not a medical expert and trusted the advice being given to me. That night I just had a bad feeling, so I slept in the bed with my daughter.ā€ In the middle of the night, Laci rushed Aurelia to the ER when she noticed her daughterā€™s lips had turned blue and she was having trouble breathing. In the emergency room, staff immediately recognized Aureliaā€™s sepsis symptoms and worked to stabilize her so she could be transported to the nearest childrenā€™s hospital. Doctors told Laci that if she had not brought Aurelia in that evening, she likely would not have survived until morning. Laci shares, ā€œAll told, we spent 35 days in the PICU. Eventually, we found out that the cause of all of this had been a simple strep infection.ā€ Click the link in bio to read more of Aureliaā€™s story. To learn more about the symptoms of pediatric sepsis, visit PediatricSepsisWeek.org.

4/25/2024, 10:43:13 PM

Retour sur une matinĆ©e chaotiqueā€¦ Malheureusement, jā€™ai eu des complications suites Ć  la pose de sonde de Jeudi dernier Ć  Lyon. Des douleurs atroces et des saignements incessantsā€¦ et pour finir un abcĆØs dans le nez. Jā€™ai dĆ» retirer la sonde 5 jours aprĆØs la pose malheureusement. . Pour mā€™Ć©viter un Ć©niĆØme aller retour Ć  Lyon, mon mĆ©decin rĆ©fĆ©rent a contactĆ© le CHU le plus proche de chez moi pour faire poser une sonde lĆ -bas. Sauf que rien ne sā€™est passĆ© comme prĆ©vueā€¦ . Plus de 30 min en enfer, jā€™ai vĆ©cu un calvaireā€¦ une infirmiĆØre complĆØtement perdu qui mā€™a clairement demandĆ© comment poser la sonde car elle savait pas šŸ˜… Quand je lui ai dis quā€™elle prenait une sonde bcp trop Ć©paisse par rapport aux miennes. Elle nā€™a pas voulu mā€™Ć©couterā€¦ Ć©videmment elle mā€™a forcĆ© dans la gorge Ć  3 reprises sans arriver Ć  passer la sonde. . Puis un infirmier est intervenu, et finalement rĆ©ussi Ć  passer la sonde. Mais qui a pas tenu longtemps car mal posĆ©ā€¦ Pour finir, jā€™ai souffert atrocement, je suis complĆØtement blessĆ© dans le nez et la gorgeā€¦ pour rien puisque je nā€™ai plus de sonde. Leur incompĆ©tence me dĆ©sespĆØreā€¦ . Bref, je me retrouve Ć  nouveau sans nutrition, Je vais devoir retourner rapidement Ć  Lyon reposer une sondeā€¦ On essaye de faire une pause pour que ma gorge et mon nez cicatrisent avant dā€™en remettre une. . En attendant je suis en mode survie, Ć  essayer de me nourrir de complĆ©ments hypercaloriques, en espĆ©rant que le poids et la force de sā€™Ć©croulent pas šŸ™šŸ¼ On lache rien šŸ’ŖšŸ¼ . . . #crohn #maladiedecrohn #rch #rectocolitehĆ©morragique #afacrohnrch #ileostomy# #ostomate #ostomy #surgery #ibd #crohnwarrior #scoliosis #sepsissurvivor #heartsurgery #mici #reeducation #onlacherien

4/25/2024, 7:57:07 PM

(I lost the whole text on my previous post the other day.. so hereā€™s explanation) Last Friday I decided to go to the hospital as I didnā€™t get any news from the vascular. I hate complaining, pushing people, but the truth is if you donā€™t do it nothing happensā€¦ I entered the hospital and was wondering what the hell I should do, who to talk toā€¦ I tried to move my appointment from June to earlier but they said it was not possibleā€¦ sure. I was standing there like a dumb, when a door opened and Sonia the vascular assistant appeared and was SMILING at me! (I thought she would get pissed why Iā€™m there). ā€œZsu!! Do you read my mind??? I was just going to call you because at noon I receive something which might help, so I was to tell you to come on Monday! Itā€™s great you came in!! ā€œšŸ˜…šŸ™šŸ» I also did a doppler test to check circulation in foot, which was OK. Then Sonia tried on this special silicon pad, which helps to absorb pressure, used as a cushion in the shoe. We could hardly tuck in the foot into the shoe because we put two layers. It felt a bit better but I knew it was not going to be a final solution. But she said meanwhile the process (the doctors discussing my case) is ongoing itā€™s a bit of pain relief. I had to go back on Monday, and honestly on the weekend I didnā€™t walk that much so it was not hurting so bad. However this week I did more activity, exercise etc, and I started to have more and more calluses everyday. Yesterday I was outside the whole day, and it got really bad, it was burning. My skin is so sensitive, and all the tissues inside the foot that it canā€™t bear this thing overtime. My general pain (and phantom pain) worsened so I wonā€™t use it anymore.šŸ„² tomorrow I have to go back, I will explain itā€™s not working unfortunately. I must make them aware, I need a final solution no more experiments. Itā€™s hard for me to advocate for myself, itā€™s so tiringā€¦ So please wish me luck they understand my suffering and I donā€™t have to keep complaining. Otherwise Iā€™m so fine and happy! I just want to solve this once and for all šŸ™šŸ»šŸ¤āœØšŸŒøšŸŒŗ

4/25/2024, 3:49:14 PM

Identifying signs of urosepsis is crucial, as it can be life-threatening. Symptoms may include low blood pressure, rapid breathing, and breathing difficulties. On the other hand, paying attention to urinary tract infection (UTI) symptoms is essential for early treatment. UTI signs encompass painful urination, frequent urination, and the presence of blood in the urine. Timely recognition and medical intervention are vital for both conditions to prevent complications. To Consult Dr. Yogesh Swami, Urologist, Andrologist & Kidney Transplant Surgeon, Palanpur, Gujarat Visit - https://drswamiurology.com or Call us at 8401645696 or WhatsApp at 9104293674 #DrYogeshSwami #Palanpur #Urosepsis #SepsisAwareness #UrinaryTractInfection #SepsisPrevention #KidneyInfection #SepsisFighter #UTIComplications #SepticShock #KidneyHealth #UrologyCare #InfectionPrevention #SepsisSurvivor #SepsisAware #SepsisSupport #UrologyAwareness #UrologyTreatment #UrologicalHealth #UrologyIssues #KidneyInflammation #UrinaryHealth

4/25/2024, 2:27:11 PM

Did you know that ANY infection can trigger life-threatening sepsis in babies and children, just as it can in adults? Whether the result of a common virus like the flu, or a bacterial infection like group B strep, sepsis is the leading cause of death in young children and babies worldwide. The list above highlights some common causes of sepsis in babies, but itā€™s important to monitor your child for sepsis symptoms if you think that any type of infection may be present. Remember, if you suspect your child has sepsis, seek emergency care immediately and say, ā€œI suspect sepsis.ā€ Take the time to learn the signs this Pediatric Sepsis Week. Visit PediatricSepsisWeek.org to learn more.

4/25/2024, 12:00:33 AM

Neonato pretermino, 30 semanas de gestaciĆ³n, 10 dias de vida extra uterina, 14.445, Hemorragia intraventricular derecha Papille IV, plaquetopenia 9 mil, sepsis neonatal. #ray_anestesio #yotecuidoyoteprotejoyoteanestesio #rayanestesio #AnestesiologĆ­a #lavidadelanestesio #anestesiapediatrica #anestesiageneral #neonato #neonate #sepsissurvivor #sepsisneonatal

4/24/2024, 10:10:05 PM

Continuing Pediatric Sepsis Week, a week to raise awareness of the signs and symptoms of sepsis in children. A week to acknowledge the 75,000 children who develop sepsis each year in the U.S., along with the 7,000 who tragically lose their lives to sepsis annually. With early recognition and treatment, most of these deaths could have been prevented. Here are some key sepsis facts. Learn more on our site, endsepsis.org ___ . . . . #ENDSEPSIS #sepsisawareness #doctors #Pediatrics #Infections #publichealth #Sepsis #SepsisSurvivor #PediatricSepsisWeek #CDC #medicalemergency #healthmatters #SepsisAwareness #grief #nurses

4/24/2024, 8:24:52 PM

Captain Awesome isnā€™t being so awesome-here we go again with these #sepsis shenanigans. Another scary hospital stay. SEVEN episodes of sepsis in the last year! Starting to worry I wonā€™t wake up next time. To top it off, my surgery to place my #SuprapubicCatheter , who Iā€™ve named Captain Awesome, is on hold because I just found out I have fu@%ing #HeartFailure ! šŸ˜± As if all this other šŸ’© isnā€™t enough to deal with already. Iā€™m really not liking the steady stream of bad news I keep getting. Not even enough time to process it before the next set comes alongā€¦Bruhā€¦ #EDS #POTS #zebrastrong #SepsisSurvivor #ChronicIllnessWarriors #CHF #FrequentFlier #FoleyCatheter #HospitalAdmitsSuck #SevereAsthma #gastroparesis #RecurrentUTI

4/24/2024, 2:25:15 PM

No one likes waking up at 5am to go to @greatormondst for a Lumbar Puncture, but stuff like this and seeing how excited Isaac gets makes it all seem worth it ā¤ļøā¤ļø #greatormondstreet #greatormondstreethospital #GOSH #stormtrooper #stormtroopers #starwars #ghostbusters #hospital #piccline #lumbarpuncture #sepsis #leukemia #leukemiaawareness #leukemiawarrior #cancer #disabled #amputee #amputation #lymphaticmalformation #lymphaticsystem #sepsisawareness #sepsissurvivor

4/24/2024, 12:12:54 PM

Today is St George (the dragon and St. George) , here in Catalunya is an important festivity. The tradition is to give a single rose to the girls, and a book to the boys. šŸŒ¹ Ā  Today is also World Book Day. šŸ“ššŸ“š You know I love reading, so I thought I would tell you about one of my favorite books: Xiaolan Zhao - Traditional Chinese Medicine for Women (Reflections of the Moon on Water). Ā  One day in the library in the alternative medicine section I found this book and I fell in love with it. I think all women should read it, ( and also men, to understand women! :), and teach it to our daughters, itā€™s so enlightening and beautiful. Xiaolan Zhao is from China and was a general surgeon,Ā  she had also studied traditional Chinese medicine. In the 90Ā“s she moved to Canada where she started to treat women based on TCM once she experienced how Western culture makes women sick, struggling with fatigue, depression, menstrual difficulties, infertility, chronic pain and cancer. Quotes from the Foreword written by Carolyn DeMarco, MD: ā€œIt is a compelling look at the stages of a womanā€™s life and includes a wealth of practical suggestions for living them in harmony with natureā€™s rhythms to maintain health and prevent disease. In Western medicine we have medicalized the natural and healthy stages of a womanā€™s life. We over-prescribe birth control pills, hormonal medications, tranquilizers, antidepressants, and many other medications, much to the detriment of womenā€™s health. In contrast, in Chinese medicine, the stages of a womanā€™s life are honoured and celebrated. Menstruation is referred to as Heavenly Water, pregnancy is called Ripening the Fruit, postpartum is known as Golden Month, and menopause is called Second Spring.ā€ ā€œThe ancient traditions of Chinese medicine are needed more than ever in our society where women are increasingly pressured to be superwomen and are fatigued, stressed and sleep-deprived beyond endurance, and breast cancer and heart disease, autoimmune diseases in which the body attacks its own tissues, are all on the increase.ā€ ā€œThis book will enable you to care for and thoroughly enjoy the body that youĀ“re in.ā€ šŸ‘‡šŸ¼šŸ‘‡šŸ¼šŸ‘‡šŸ¼more

4/23/2024, 11:20:26 PM

Have you checked out PediatricSepsisWeek.org? Weā€™ve created a collection of free downloadable resources to help you raise awareness and share more about the leading cause of death in children worldwide. Throughout the week, weā€™ll be focusing on different aspects of pediatric sepsis. Can we count on you to join us in this effort? Visit PediatricSepsisWeek.org to download infographics, fact sheets, printable posters, and educational videos to educate the parents and caregivers in your life.

4/23/2024, 10:52:48 PM

Me ha resultado difĆ­cil entrar en el jacuzzi y ha sido peor salir, nos hemos asustado un poco. En las redes sociales no es todo lo que parece. #jacuzzi #amputee #amputation #sepsis #sepsissurvivor #disable #discapacidad

4/23/2024, 4:05:31 PM

Early recognition and treatment of sepsis can increase a childā€™s chances of survival and improve their recovery. Do you know how to spot the signs? Share this infographic with the parents and caregivers in your life and learn more about the symptoms of sepsis by visiting PediatricSepsisWeek.org.

4/22/2024, 10:24:35 PM

Another successful Sepsis 911 presentation this morning at Homewood in Williamsport, MD. Attendees were raptly engaged and focused on the topic at hand - sepsis, our stories, and the medical facts, statistics, and what we can do to reduce the number of deaths each year (1.7 million in the U.S. are affected by sepsis each year, resulting in 350,000 deaths). There are many of us, survivors, heartbroken families who lost a loved one, like losing our amazing 5 year-old Lochlin to flu and sepsis, and caretakers of those who've survived sepsis and suffered catastrophic injuries and amputations. We are much bigger than the numbers, we are all human beings with names, faces, and families, forever connected by this dreadful, lethal syndrome. https://www.instagram.com/loveforlochlin/ As usual, our presentation was interactive and lively. We received lots of questions from attendees and talked with them afterwards. We're being asked to extend beyond our home state and head into neighboring Virginia, Pennsylvania, and West Virginia, to spread the word. When sepsis quits, then we'll quit. But we all know that sepsis isn't giving up, so we're not giving up either. I'm so lucky to have met Brooke and work with her on these presentations. The @loveforlochlin foundation, which Brooke founded, provides vital help to our communities. Brooke is a total sweetheart, a kind, caring and patient nurse, and she's incredibly strong and relentless about protecting people from sepsis. I'm honored to know her and to work with her.ā¤ļø Next Thursday, April 18, we'll be at the Lunch and Learn at 11:30 am at the @natellifamily_ymca and the week after that we were invited to speak online on Steve Gurney's Positive Aging Community platform on Wednesday April 24, at 11:30 am EST. Also, on Thursday, April 18 at 2 pm EST, I was invited to speak online to offer tips for sepsis advocacy through storytelling on the @sepsisalliance platform. Go to www.sepsis.org to register for this interesting and informative talk, if you are looking for ways to share your sepsis story and advocate for awareness. I hope to see you there! #sepsis #sepsissurvivor

4/22/2024, 6:26:45 PM

This week is Pediatric Sepsis Week, dedicated to raising awareness about the signs and symptoms of sepsis in children. Here are some facts: - Pediatric sepsis is the leading cause of death among children and infants worldwide. - In the United States, more than 75,000 children will develop sepsis each year and - over 7,000 will tragically lose their lives to it. - The mortality rate for pediatric sepsis is higher than for pediatric cancer. Learn more at endsepsis.org ___ . . . . #PediatricSepsisWeek #Sepsis #Pediatrics #publichealth #sepsisawareness #doctors #Infections #sepsisalliance #ENDSEPSIS #SepsisSurvivor

4/22/2024, 5:56:48 PM

Our face-to-face #sepsis support group is running in Surrey again this week. Facilitated by our wonderful volunteers, the group is for anyone who has survived sepsis at any stage of their recovery ā€“ offering advice, comfort and a friendly ear from those with shared experiences. This weekā€™s group is running on Wednesday 24th April at 6.30pm, at the United Reform Church, 906 Brighton Road, Purley, CR8 2LN. Thereā€™s no need to register ā€“ just turn up! For more on our range of support options, see the link in our bio #UKST #SepsisSupport #SupportGroups #SepsisSurvivor #SepsisRecovery #PostSepsisSyndrome

4/22/2024, 3:02:47 PM

Refuelling after 600 ft of 1200ft training todayšŸ˜® #sepsissurvivor #Maychallenge #mounteverest #Scotland @justgiving Read my story!@sepsisresearch https://www.justgiving.com/page/dee-thomas-1712678838420?utm_source=IG

4/22/2024, 10:23:34 AM