There will be a Fundraising Golf Day at Umdoni Park Golf Club on 2nd June 2024. If you are a golfer or not or a company or know of a company that would like to be part of my journey to raise funds to be able to walk again, please come join usš #spreadawareness #raisingfundsandawareness #septicshocksurvivor #isurvivedsepsis #meandmyscars #anotherdayinthelifeofshan #sepsisalliance #nevergiveup #amputee #sepsissurvivor #quadrupleamputee #willtolive #journeytowalkagain #onestepcloser #fightforsurvival #knowthesigns #postsepsissyndrome #sepsisawareness #sepsiswarrior #sepsis #askifitcouldbesepsis
ā¤ļøBlessingā¤ļø Challenged Athletes Foundation approved Beaudenās grant for a hand bike! ššš»š¤ Itās not even the fact that he can now keep up with his sisters, or the bike is his favorite color blue, or the fact that this incredible organization gives big. Itās that CAF LOVES BIG! Their passion in helping others through spectacular events, awarding grants, cheering each other on, giving back to their community & making authentic connections is what theyāre all about. With THE biggest heartfelt thank you @cafoundation , Beauden is so blessed šš»š¤ #Gratitude #WeLoveCAF #SepsisSurvivor #Amputee
Kennedy is going to be on @wxyzdetroit tonight at 6 pm!!! I asked her several times if she was okay with it, if she wanted to be on camera, including her whole face, and she didnāt hesitate to say yes!!! She made me so freaking proud. It was really hard to hold back all the tears watching her speak. She continues to be so brave and so resilient and I canāt believe I get to be her mama. @sarahmichals thank you so much for coming and spending your afternoon with us! Iām so excited you got to meet Kennedy and bond over golden retrievers. š #kennedywarriorprincess #sepsis #sepsisawareness #sepsissurvivor #necrotizingfasciitis #necrotizingfasciitissurvivor #necrotizingfasciitisawareness
So... I am doing my wing walk NEXT MONTH š„“š¬ To read my full story/share/donate click the link in our bio š @thewingwalkcompany #wingwalk #fundraiser #just4children #littlewarrior #gbssurvivor #meningitissurvivor #sepsissurvivor #hydrowarrior #hydrocephalus #braininjury #hie #hopeforhie #visuallyimpaired
#soitsmybirthday Once again... I've had a terrible feeling all day It's hard to explain If you ask me It's just a feeling that won't leave Not today anyway Maybe it will have When I wake up tomorrow As it did last year . . . . . . . . . . . #mybirthday #itsmybirtday #sepsishjƤrna #sepsis #sepsisawareness #postsepsissyndrome #selfportraitphotography #selfie #selfportrait #blackandwhitephotography #blackandwhitephoto #blackandwhite #bnwphotography #instablackandwhite #bnw_greatshots #selfimageissues #sjƤlvportrƤtt #monochrome #monochromephotography #withgalaxys20ultra #withGalaxy #memyselfandi #intheshadows #darkmind #sepsissurvivor #badass_bnw
#feltcutemightdeletelater šššš #suchatart #cheflife #interestingtimesahead #chefsofinstagram #goinggrey @tomford #watchthisspaceš #sepsissurvivor #sepsisawareness
Itās official! Our wonderful Governor Wes Mooreās office has issued a proclamation designating May as Ehlers-Danlos Awareness Month in Maryland. It just arrived in the mail! We are #zebrastrong when we all work together. š¦ā„ļø Thank you @iamwesmoore . #ehlerdanlossyndrome #ehlersdanlosawareness #ehlersdanlossyndromes #hypermobility #hypermobilityspectrumdisorder #invisibleillness #invisibledisability #sepsissurvivor
Can you spare a few minutes to make a difference by sending an email? Visit our website for instructions on how to email this poster to your school leadership. Awareness saves lives! #endsepsis ___ . . . . #sepsis #sepsisawareness #sepsissurvivor #doctors #nurses #pediatrics #education #schoolnurse
Feeling grateful everyday for beating the odds and being alive for my family. #gratitude #dailyreminders #glow #glowonstrong #sepsissurvivor #amputee #author #motivational
Iāve been speaking to a lot of Sepsis Survivors recently and one thing Iāve noticed is that a lot of the signs and symptoms of one thing can be the same as another, and sometimes we focus on just one thing when thereās possibly lots going on. Remember: youāre not just a Sepsis Survivor, youāre a human. You can have more than your ārecoveryā going on. š„ Maybe youāre not eating right and thatās causing some symptoms to become worse. š¢ Maybe youāre isolating and the lack of human connection / fresh air / sunlight / movement is making things more difficult to deal with. š§¬ Maybe your hormones have taken a hit and you just canāt be bothered keep up with self care ā¦ or your anxiety is so bad that you canāt think straight. š¦ Maybe the infection that caused the sepsis is still there and causing you problems. Keep an open mind, and keep up with your self care š Me: ā Septic shock survivor š¤ ā PTSD š± ā Post Sepsis Syndrome š” ā Recovering from QFever and Rickettsia š¦ ā Peri-Menopausal š§¬ #septicshockawareness #sepsis #sepsisawareness #sepsissurvivor #septicshock #septicshocksurvivor #qfever #rickettsia #rmsf #menopause #postsepsissyndrome #pss #ptsd #recovery #sepsisrecovery #autoimmunedisease #depression #nutrition #sepsiscoach #lyme #lymedisease #tenerife #lifeaftersepsis #sepsiskills #sepsisresearch #rockymountainspottedfever #spottedfever #typhus #wellness #wellnesscoach
I want to spread awareness of sepsis everywhere! Before I contracted sepsis I never thought it could be anything like Iād experienced. I had ALL of these symptomsā¦. I always felt cold (I was in full blown hypothermia when the paramedics got to me), I had a urine infection, I could see paper birds on a string on my window (which werenāt there), I felt so so tired like Iād never felt such tiredness before, I couldnāt look after my daughter, but because I was so confused I didnāt even think this was sepsis, I was in excruciating pain in my joints and my head, I also was short of breath and only had 15% of one lung working. I then went into multi organ failure. My pancreas, lungs, kidneys and liver. My heart also started failing and my feet were mottling. I was so close to death. They had to intubate me in the house due to my breathing being so shallow. I was placed into an induced coma while they pumped me full of god knows what meds (cancer meds also) to try and save me. I had a treatment called ECMO which essentially saved my life but had to be transferred to Bristol for this and then they didnāt know if I would survive the journey. I woke up and couldnāt move one finger. I had to stay on the ventilator with a tracheotomy in my throat. I couldnāt speak and couldnāt move. How frustrating this was I couldnāt begin to tell you. Even if I manage to help one person, that makes me happy because nobody deserves to go through this. Please share and make people aware of the real dangers of sepsis. #SepsisAwareness #sepsissurvivor #sepsis
Day 1 Post a Selfie š¦ Maryland girl here. My name is Jackie and Iāve had hEDS all my life but didnāt get diagnosed till my daughters did. When I was 54. Better late than never I guess. š I also have POTS, Crohnās, osteoporosis (Prednisone didnāt help- I told my doctors no more steroids. Iām done!) Hashimotoās thyroiditis, dental problems, and half a colon. The other half was removed during an emergency surgery 3 years ago after my colon ruptured from undiagnosed diverticulitis and sent me into septic shock. I was intubated and flown to Baltimore for life saving surgery. I was in respiratory failure and heading into heart failure as they wheeled me into the OR. Sepsis almost destroyed my lungs, and half my hair fell out. I lost iron and need dental work to repair the damage. I had to learn to walk again. I used to use a wheelchair and scooter from 2014-2021, somehow losing half my colon and intensive rehab both in patient and out patient, has helped me walk better and longer. Weird huh? As if my doctors didnāt have enough to scratch their heads about me. ššš¤£š¤£ I am a true zebra through and through. š¦ I work part-time as a journalist, Iāve written for the Washington Post, AARP, and Readerās Digest. My most recent article came out in Costco Connection today, on Ehlers-Danlosš¤. I love to swim, for pain relief. And I work out to strengthen my muscles to help with the POTS and EDS. As I get older, neither one gets better. So Iām trying to do my best to stay upright and keep both feet on THIS planet š Iāve been disabled since 2012. āæļøšŖš» Iām also a sepsis advocate and an Ehlers-Danlos advocate. Iām raising my voice this month for EDS Awareness. #ehlersdanlossyndrome #zebrastrong #ehlersdanlosawareness #sepsissurvivor #halfacolonstillrollin #invisibledisability #invisibleillness
Itās okay to not be okay. This has been our mantra these past few days as Kennedy has started to understand what happened to her. Her bandages came off on Monday, and itās the first time sheās seen the right side of her face since the necrotizing fasciitis started. As you can imagine it has lead to some pretty heavy conversations and emotions. I think a person, especially a child, can only put on a brave face for so long. And thatās okay. Weāre going to feel all the feels we need. Thatās part of the healing process. ā„ļø While itās been a tougher week emotionally, weāre trying to celebrate all the wonderful moments weāve had. One moment in particular happened today that I cannot WAIT to share with you all. Hereās a hintā¦ š š¦ š¤ #kennedywarriorprincess #necrotizingfasciitissurvivor #sepsis #sepsissurvivor #sepsisawareness #necrotizingfasciitisawareness #necrotizingfasciitis
Exciting news! Our Sepsis in Schools Education Campaign is live, and we need your help! Are you aware that every year, 75,000 children are hospitalized due to sepsis? Shockingly, around 7,000 of them lose their lives, while 38% of survivors endure lifelong disabilities. Awareness can make all the difference, which is why we've initiated a campaign aimed at providing vital sepsis education to classrooms, school administrators, and nurses. Getting involved is simple ā visit our site (link in profile) Our newly launched Sepsis in Schools Education page has all the tools you need, including: - A customizable letter to the principal explaining your concerns and sharing the available resources - A Signs of Sepsis in Children poster for display in school nursesā offices - Access to our comprehensive K-12 curriculum, Signs of Sepsis animated video and Ouch, I Got a Cut, our picture book on infection prevention for young readers. Head to our website now to get started. Thank you for joining us. Letās help our schools be smart about sepsis! ___ . . . . #sepsis #endsepsis #education #schools #publichealth #sepsisawareness #sepsisalliance #sepsisrecovery #sepsissurvivor #infections #doctors #nurses #cdc #schoolnurse #teachers
Thereās just no stopping Isaac. Weāre so excited to get his prosthetic šš #hospital #antibiotics #leukemia #sepsis #childcancer #accutelymphoblasticleukemia #ALL #leukaemia #cancer #piccline #sepsisawareness #sepsissurvivor #amputee #disabled #amputation #greatormondstreet #greatormondstreethospital #GOSH #lymphaticmalformation #lymphaticsystem #legamputee #amputation #prosthesis #prosthetic
Is this a joke? š No, you see it well. the silicon pad is outside the š§¦ sock now, fixed with adhesive tape ā¦ This really looks so stupidš After a few days testing, I couldnāt bear it, my foot was burning of the touch of the silicone š„ And because in theory itās a good idea, to release pressure, I put it outside the sock , and I went down to the hospital to see Sonia yesterday, as she was not in on Friday. (The vascular wound specialist) She already knew I was not happy with the silicone, but looked at this invention and didnāt laughā¦ checked the wound, cleaned it and then taped back onto the sock. āIf it works like this, itās okayā. She seemed to have a good day, and had 2 assistants with her. She told me thereās something else sheās waiting for to come, that might help ā¦ (oh my god, I thought, itās a never ending story with the fixtures š). I appreciate her dedication really. But I emphasized again I have no fear of anything more drastic. She said: ā We still owe you some solutions ā And me : āNo, please, you donāt owe me anything, you have done so much for me āšš» Itās true, I never blame them or anything like thatā¦ (I was just thinking about it these days, I hope they donāt think Iām not content because it doesnāt seem to work out well in the end how they did the surgery 4 years ago. No. We wanted to save this foot as much as possible. Lastly she said there might be already a specialists meeting in a few weeks time, where I would be invited for a joint evaluation šš» that would be great. I know nothing will happen before summer, itās too late and this process is rather slow. But I hope the decision will be taken. Meanwhile I continue to invent strange and stupid orthopedic solutions š (Tbc , today I had a private traumatologist visit š ) . . . . #vascularsurgery #amputeelife #amputeeproblems #amputeestrong #sepsissurvivor #orthopedics #footproblems #slowlifediary #disability #discapacidad
And just like that, Isaacs back in hospital 39.4 temp, leg pain and extremely tired. One day after heās finished antibiotics. This is the second time in a row now heās left hospital, finished his oral antibiotics and then gone in the next day. Please just let our boy stay out of hospital šš¼š« #hospital #antibiotics #leukemia #sepsis #childcancer #accutelymphoblasticleukemia #ALL #leukaemia #cancer #piccline #sepsisawareness #sepsissurvivor #amputee #disabled #amputation #greatormondstreet #greatormondstreethospital #GOSH #lymphaticmalformation #lymphaticsystem
Ne rien lĆ¢cher šŖš¼ Quand chaque jour, chaque nuit, devient un combat pour survivre. Une lutte sans rĆ©pit contre la maladie. Encaisser, affronter, supporter lāinsupportable devient question de survie. . Tenir bon quoiquāil arrive, pas par choix nan, mais pas obligation pour vivre. Se battre ou mourir, yāa pas dāautres options, alors tu te bats. Parce que tu sais que si tu baisses la garde cāest foutu. La maladie nāa jamais de pause. Si elle te met au sol, tu te relĆØve pas. Alors tu te rĆ©pĆØtes Ā«Ā on lĆ¢ches rienĀ Ā» . Sāaccrocher Ć lāamour des siens pour pas sombrer. Tenir bon pour eux mais aussi grĆ¢ce Ć eux ā¤ļøāš©¹ Lāamour comme arme face Ć la maladie, lāamour comme force, lāamour comme raison de vivre šš¼ On lĆ¢che rien šš» . . . #crohn #maladiedecrohn #rch #rectocolitehĆ©morragique #afacrohnrch #ileostomy# #ostomate #ostomy #surgery #ibd #crohnwarrior #scoliosis #sepsissurvivor #heartsurgery #mici #reeducation #onlacherien
April is Limb Loss and Limb Difference Awareness Month.š According to the @amputeecoalition, there are approximately two million people in the United States who have an amputation, and an estimated 185,000 amputations take place each year. AND an average of 38 amputations A DAY are a result of SEPSIS.š We are so thrilled to announce BAFās new Amputee Fundš If you or someone you know would like to apply, please visit patientadvocate.org/financialaid or call (855)824-7941 š #sepsissurvivor #sepsisawareness #sepsis #sepsisawareness #limblossawareness #limbloss #limblossandlimbdifferenceawarenessmonth #llldam #amputee #amputeelife #amputeestrong #infectionprevention #infectiousdisease #publichealth
š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”April is Amputee/LLLDAM Awareness month. Today as the month comes to a close hereās a message from my husband Greg. He makes this new normal look easy every day and I so appreciate his positive attitude and he willingness to live every day, stay active and be his best self. Thank you to Medical Center Orthotics & Prosthetics for all you do for Greg and to the Amputee Coalition for surrounding this cause. š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§”š§” #amputeelife #LLLDAM #sepsissurvivor
Isaac is now out of his cast and into his splint! Itās now just waiting for his prosthetic appointment to get it made and then hopefully for his birthday heāll be walking š„° This is the first time Isaacās worn shoes since his first sepsis episode ā¤ļø #leukemia #sepsis #cancer #childcancer #sepsisawareness #sepsissurvivor #amputee #amputation #legamputee #ALL #accutelymphoblasticleukemia #greatormondstreet #greatormondstreethospital #GOSH #splint #Cast #disabled #wheelchair #lymphaticmalformation #lymphaticsystem
Leo has gone to residential with his school today. Heās never been away from home without me š He was a little emotional last night and this morning but as soon as he got to school he zoomed off without even looking back at me ! I know heāll have the best time but I canāt wait to pick him up on Friday š„°š„° #cerebralpalsy #cerebralpalsykids #cerebralpalsyawareness #disabilityawareness #disabilityblogger #mylife #sepsissurvivor #wheelchair #electricwheelchair #birmingham #suttoncoldfield
With just 24 hours to go until the start of my @sepsisresearch 29032 ft challenge, let's just call this #acclimitisation š #everest #equivalent #dreich #weatherwindow #sepsis #sepsisawareness #sepsissurvivor #hope https://www.justgiving.com/page/dee-thomas-1712678838420?utm_source=IG
Neonatal sepsis, or newborn sepsis, is a serious condition characterized by a systemic infection in newborns less than 28 days old. Symptoms may include fever or hypothermia, lethargy, poor feeding, respiratory distress, jaundice, and abnormal heart rate or breathing patterns. Additionally, affected infants may exhibit signs of irritability, abdominal distension, or vomiting. Since neonatal sepsis can progress rapidly and lead to severe complications, prompt medical attention is crucial. To Consult Dr.Arindam Butt, Pediatrics, West Bengal Visit: http://www.drbuttsclinic.com/ or Call us at 08972482698 #DrArindamButt #WestBengal #NeonatalSepsis #SepsisAwareness #NewbornHealth #SepsisTreatment #SepsisSupport #Neonatology #SepsisPrevention #NeonatalCare #SepsisAwarenessMonth #BabyHealth #Pediatrics #InfectionControl #SepsisFight #Healthcare #NewbornCare #SepsisSurvivor #NeonatalHealth #InfantHealth #EarlyDetection
š Celebrating Patient Success: Jill Anderson š Jill never expected to spend months in the hospital battling for her life. But that's what happened after she was diagnosed with septic shock, double pneumonia, and kidney failure. On her journey back home to her husband and three boys, Jill spent time at Vibra Hospital of Fargo, where she worked hard to regain her ability to walk, eat, and care for herself. Congratulations, Jill! We're so proud of you! Read Jill's inspirational story by visiting the š link in our profile or heading to vhfargo.com . . . #fargo #fargond #northdakota #patientsuccess #successstory #sepsis #sepsissurvivor #respiratorytherapy #criticalcare #healthcare #ltach #ltac #healing #inspiration #mompower
š Celebrating Patient Success: Jill Anderson š Jill never expected to spend months in the hospital battling for her life. But that's what happened after she was diagnosed with septic shock, double pneumonia, and kidney failure. On her journey back home to her husband and three boys, Jill spent time at Vibra Hospital of Fargo, where she worked hard to regain her ability to walk, eat, and care for herself. Congratulations, Jill! We're so proud of you! Read Jill's inspirational story by visiting the š link in our profile or heading to vhfargo.com . . . #fargo #fargond #northdakota #patientsuccess #successstory #sepsis #sepsissurvivor #respiratorytherapy #criticalcare #healthcare #ltach #ltac #healing #inspiration #mompower
š Celebrating Patient Success: Jill Anderson š Jill never expected to spend months in the hospital battling for her life. But that's what happened after she was diagnosed with septic shock, double pneumonia, and kidney failure. On her journey back home to her husband and three boys, Jill spent time at Vibra Hospital of Fargo, where she worked hard to regain her ability to walk, eat, and care for herself. Congratulations, Jill! We're so proud of you! Read Jill's inspirational story by visiting the š link in our profile or heading to vhfargo.com . . . #fargo #fargond #northdakota #patientsuccess #successstory #sepsis #sepsissurvivor #respiratorytherapy #criticalcare #healthcare #ltach #ltac #healing #inspiration #mompower
Family + beautiful weather = the perfect day š #sepsis #sepsisawareness #sepsissurvivor #necrotizingfasciitis #necrotizingfasciitisawareness #necrotizingfasciitissurvivor #kennedywarriorprincess
According to the @amputeecoalition, there are approximately two million people in the United States who have some sort of amputation, and an estimated 185,000 amputations take place each year. This includes sepsis survivors like Don, who lost seven of his toes after a group A strep infection rapidly progressed to life-threatening sepsis. Click the link in our bio to learn more about sepsis and amputations.
WHO SENT YOU?!?! #randombruise #neuropathy #feetpic #writer #chronicpainwarrior #chronicillness #sepsissurvivor #chronicpain #bruised
La sepsis es una urgencia mĆ©dica y si no se diagnostica y trata de forma temprana, puede ocasionar daƱo irreversible a los tejidos, shock sĆ©ptico, insuficiencia orgĆ”nica mĆŗltiple y muerte. ā¢Por lo mencionado, partĆcipe por streaming del World Sepsis Congress Spotlight, organizado por la Global Sepsis Alliance y la Physician-Patient Alliance for Health & Safety bajo el lema āNecesidades no satisfechas en el diagnĆ³stico y terapia de la sepsisā #survivorsepsis #sepsissurvivor #educaciĆ³ncontinua #medicine
Update on our Tiniest Sir, James and I: We are home now. Adjusting to life outside of the hospital, and no sleep. We want to thank every single one of you that raced to our aid, with prayers, thoughts, special messages, cards and donations. It has meant so much to us, and I'm so grateful for everyone single one of you. Even to the ones that didn't reach out to us directly but to our family. Also to the ones that asked about our oldest boys and Deej. This has affected our whole entire family to our core. We have so many amazing people in our lives and we do not take any of you for granted. We are taking this time to adjust and just love up on each other, so we can heal as a family. Today, James is a NICU graduate and is 9 weeks old today. If I was still pregnant we would be 38 weeks gestational. And thank you so much again. James and I are so grateful to be alive today. #blackmaternalhealth #blackmaternalmortality #nativeamericanmaternalhealth #nativeamericanmaternalmortality #sepsisawareness #sepsissurvivor
We will never be able to thank @alfies_wish enough for the smiles and memories theyāve given us as a family by getting us to WWE Money in the Bank. Today we sat down with Alfieās Wish and spoke about Isaac and his journey. They were so lovely and comforting. To talk so openly with someone who knows what weāre going through made it so much easier and relaxing. The passion Charlotte has for this charity is amazing and hearing her talk about her incredible Alfie was a pleasure. He would be so proud of the joy his mum has given to all the children this charity has helped ā¤ļø We will forever be in your debt ā¤ļø #charity #alfieswish #cancer #childcancer #leukemia #leukemiaawareness #cancerawareness #ALL #sepsis #sepsisawareness #sepsissurvivor #lymphaticmalformation #disabled #amputee #amputation #wheelchair #piccline #greatormondstreet #greatormondstreethospital #GOSH
š§”šļøSome days Iām fine. Other days Iām staring at the shoe organizer filled with Charlotteās old shoes for Sophie to grow into, and notice Charlotteās dirty little footprints still imprinted on her flip flops. The last remaining evidence of her tiny little toes. Itās just not fair. Sheās here and thatās all that matters, thank God. But it still hurts. And we still mourn what we did lose. #LLLDAM #charlottestrong #quadamputee #childamputee #sepsissurvivor #ecmosurvivor #tinytoes #griefisnotlinear #rainbows
Popeye Ć©pisode 1999999 š AprĆØs quelques jours de fiĆØvre et Ć©tat gĆ©nĆ©ral bien faible ā¦ Ce que je craignais est arrivĆ©ā¦ DĆ©shydratation sĆ©vĆØre avec forte suspicion de pyĆ©lonĆ©phrite š je suis en attente de rĆ©sultats šš¼ . En attendant il etait urgent de dāhydrater, je commenƧais Ć avoir du sang dans les urines šŖ et je me sentais vraiment pas bien. . Mais forcĆ©ment avec mon capital veineux quasiment nul et nāayant plus de voie veineuse centraleā¦ la derniĆØre solution etait lāhydratation en perfusion sous cutanĆ©e depuis hier soir et pendant 7 jours šŖš¼ Ƨa va retaper Popeye ! . Merci Ć tous pour vos messages de soutien encore šš¼ā¤ļøāš©¹ on lache rien ! . . . #crohn #maladiedecrohn #rch #rectocolitehĆ©morragique #afacrohnrch #ileostomy# #ostomate #ostomy #surgery #ibd #crohnwarrior #scoliosis #sepsissurvivor #heartsurgery #mici #reeducation #onlacherien
š¤ @_noweightsnodates_ @clublandevents @arenanewcastle @_inner_glow_ #skin #skincare #beautytherapist #youonlyliveonce #newcastle #couple #girlwithtattoos #sepsis #sepsissurvivor #burtonontrent
For those of you who saw my stories, will know I'm due to have major surgery on the 24th of June... I've waited over 12 months for this, but now I have the date I'm starting to feel really anxious š š° and if you know my story, you'll know I'm an old timer at this surgery thing ha ha as this will be number 22 surgeries I've had in the 8 years of this awful illness š A lot of people tend to think or say "Oh at least with all them surgeries under your belt, you'll be used to what happens and used to going under, ect, but no, I will never get used to this ever! I don't think anybody would, to be honest... I wanted to come on and thank everyone on here, so thank you for all your support up until this moment. It's very much appreciated šš» but if you could stick by me a little longer, I'll take you all with me on this major surgery journey... #majorsurgery #surgerylife #surgerychangedme #painteam #operations #strength #warrior #lookingforsupport #iwillneedhelp #nervepain #neuropathicpainawareness #nephrectomysurvivor #onekidneywarrior #urologylife #urologyissues #isurvived #sepsissurvivor #ivebeenthroughhellandback #ivehadalotofsurgery #pleasesupportme #thankyouforreading #wishmeluck #hiddendisabilitylife #disabilitiesawareness #disabledandproud #supportchronicillnesses
Did a young person in your life survive sepsis? We recognize that hospital discharge doesnāt signify the end of medical challenges for many pediatric sepsis survivors and their families. If youāre navigating hospital readmissions, cognitive challenges, or other obstacles in post-sepsis life, you are not alone. Access free educational resources for survivors and their families by visiting PediatricSepsisWeek.org.
Easy, peasy, salty & greasy!! ššššš āØ Have a great weekend everyone x āØ #ulcerativecolitis #ileostomy #ostomyawareness #ostomate #ibdawareness #incisionalhernia #parastomalhernia #osteoarthritis #seronegativearthritis #fibromyalgia #fibrowarrior #bursitis #jointpain #chronicpain #chronicillness #spoonielife #sepsissurvivor #addisonsdisease #adrenalinsufficiency #onsteroids #autoimmunedisease #tmjdisorder #anaemia #irondeficiency #irondeficiencyanemia #hearingloss #bronchiectasis #butyoudontlooksick #invisibleillnessawareness #noteverydisabilityisvisible
During #SepsisSurvivorWeek, we honor the 1.4 million Americans who survive sepsis every year, this includes the tiniest patients! Is your #NICUWarrior a #SepsisSurvivor? Share your story and bring hope to other NICU parents. https://page.prolacta.com/en/share-your-nicu-story
Neonatal sepsis, or newborn sepsis, is a serious condition characterized by a systemic infection in newborns less than 28 days old. Symptoms may include fever or hypothermia, lethargy, poor feeding, respiratory distress, jaundice, and abnormal heart rate or breathing patterns. Additionally, affected infants may exhibit signs of irritability, abdominal distension, or vomiting. Since neonatal sepsis can progress rapidly and lead to severe complications, prompt medical attention is crucial. To Consult Dr. Kritika Tiwari, Consultant Pediatrician & Adolescent Health Specialist, West Mumbai, Maharashtra Call: 9920313039 #DrKritikaTiwari #Maharashtra #NeonatalSepsis #SepsisAwareness #NewbornHealth #SepsisTreatment #SepsisSupport #Neonatology #SepsisPrevention #NeonatalCare #SepsisAwarenessMonth #BabyHealth #Pediatrics #InfectionControl #SepsisFight #Healthcare #NewbornCare #SepsisSurvivor #NeonatalHealth #InfantHealth #EarlyDetection
First fit check of this @handspunhope cotton knit top took place today in the hematology ward at #mayoclinicmn . Eric wanted to see it. I intended to add sleeves and maybe a big loose cowl neck but he likes it like this. Whatās your vote??? : : : : : : : : : : : #reywafibers #leukemiawarrior #leukemiasurvivor #sepsissurvivor #mnsmallbusiness @melialness #knitweardesigner #handknits #laceknitting #sweaterknitting #sweaterknittersofinstagram #sweaterknitter #laceknittersofinstagram #mnknitters
This Pediatric Sepsis Week, weāre recognizing the experiences of sepsis survivors like four-year-old Aurelia. Last summer, Aureliaās mother, Laci, took her daughter to two separate pediatric urgent care centers for symptoms that included coughing, vomiting, and a fever. Doctors at both facilities reassured Laci that it was likely just a virus. She recalls, āBy that point she was already showing signs of sepsis (lethargy, rash on her chest, high fever, etc.), but I am not a medical expert and trusted the advice being given to me. That night I just had a bad feeling, so I slept in the bed with my daughter.ā In the middle of the night, Laci rushed Aurelia to the ER when she noticed her daughterās lips had turned blue and she was having trouble breathing. In the emergency room, staff immediately recognized Aureliaās sepsis symptoms and worked to stabilize her so she could be transported to the nearest childrenās hospital. Doctors told Laci that if she had not brought Aurelia in that evening, she likely would not have survived until morning. Laci shares, āAll told, we spent 35 days in the PICU. Eventually, we found out that the cause of all of this had been a simple strep infection.ā Click the link in bio to read more of Aureliaās story. To learn more about the symptoms of pediatric sepsis, visit PediatricSepsisWeek.org.
Retour sur une matinĆ©e chaotiqueā¦ Malheureusement, jāai eu des complications suites Ć la pose de sonde de Jeudi dernier Ć Lyon. Des douleurs atroces et des saignements incessantsā¦ et pour finir un abcĆØs dans le nez. Jāai dĆ» retirer la sonde 5 jours aprĆØs la pose malheureusement. . Pour māĆ©viter un Ć©niĆØme aller retour Ć Lyon, mon mĆ©decin rĆ©fĆ©rent a contactĆ© le CHU le plus proche de chez moi pour faire poser une sonde lĆ -bas. Sauf que rien ne sāest passĆ© comme prĆ©vueā¦ . Plus de 30 min en enfer, jāai vĆ©cu un calvaireā¦ une infirmiĆØre complĆØtement perdu qui māa clairement demandĆ© comment poser la sonde car elle savait pas š Quand je lui ai dis quāelle prenait une sonde bcp trop Ć©paisse par rapport aux miennes. Elle nāa pas voulu māĆ©couterā¦ Ć©videmment elle māa forcĆ© dans la gorge Ć 3 reprises sans arriver Ć passer la sonde. . Puis un infirmier est intervenu, et finalement rĆ©ussi Ć passer la sonde. Mais qui a pas tenu longtemps car mal posĆ©ā¦ Pour finir, jāai souffert atrocement, je suis complĆØtement blessĆ© dans le nez et la gorgeā¦ pour rien puisque je nāai plus de sonde. Leur incompĆ©tence me dĆ©sespĆØreā¦ . Bref, je me retrouve Ć nouveau sans nutrition, Je vais devoir retourner rapidement Ć Lyon reposer une sondeā¦ On essaye de faire une pause pour que ma gorge et mon nez cicatrisent avant dāen remettre une. . En attendant je suis en mode survie, Ć essayer de me nourrir de complĆ©ments hypercaloriques, en espĆ©rant que le poids et la force de sāĆ©croulent pas šš¼ On lache rien šŖš¼ . . . #crohn #maladiedecrohn #rch #rectocolitehĆ©morragique #afacrohnrch #ileostomy# #ostomate #ostomy #surgery #ibd #crohnwarrior #scoliosis #sepsissurvivor #heartsurgery #mici #reeducation #onlacherien
Here's a #dailyreminder for my #glowgetters! āØ #gratitude #amputee #amputeelife #SepsisAwareness #sepsissurvivor
(I lost the whole text on my previous post the other day.. so hereās explanation) Last Friday I decided to go to the hospital as I didnāt get any news from the vascular. I hate complaining, pushing people, but the truth is if you donāt do it nothing happensā¦ I entered the hospital and was wondering what the hell I should do, who to talk toā¦ I tried to move my appointment from June to earlier but they said it was not possibleā¦ sure. I was standing there like a dumb, when a door opened and Sonia the vascular assistant appeared and was SMILING at me! (I thought she would get pissed why Iām there). āZsu!! Do you read my mind??? I was just going to call you because at noon I receive something which might help, so I was to tell you to come on Monday! Itās great you came in!! āš šš» I also did a doppler test to check circulation in foot, which was OK. Then Sonia tried on this special silicon pad, which helps to absorb pressure, used as a cushion in the shoe. We could hardly tuck in the foot into the shoe because we put two layers. It felt a bit better but I knew it was not going to be a final solution. But she said meanwhile the process (the doctors discussing my case) is ongoing itās a bit of pain relief. I had to go back on Monday, and honestly on the weekend I didnāt walk that much so it was not hurting so bad. However this week I did more activity, exercise etc, and I started to have more and more calluses everyday. Yesterday I was outside the whole day, and it got really bad, it was burning. My skin is so sensitive, and all the tissues inside the foot that it canāt bear this thing overtime. My general pain (and phantom pain) worsened so I wonāt use it anymore.š„² tomorrow I have to go back, I will explain itās not working unfortunately. I must make them aware, I need a final solution no more experiments. Itās hard for me to advocate for myself, itās so tiringā¦ So please wish me luck they understand my suffering and I donāt have to keep complaining. Otherwise Iām so fine and happy! I just want to solve this once and for all šš»š¤āØšøšŗ
Identifying signs of urosepsis is crucial, as it can be life-threatening. Symptoms may include low blood pressure, rapid breathing, and breathing difficulties. On the other hand, paying attention to urinary tract infection (UTI) symptoms is essential for early treatment. UTI signs encompass painful urination, frequent urination, and the presence of blood in the urine. Timely recognition and medical intervention are vital for both conditions to prevent complications. To Consult Dr. Yogesh Swami, Urologist, Andrologist & Kidney Transplant Surgeon, Palanpur, Gujarat Visit - https://drswamiurology.com or Call us at 8401645696 or WhatsApp at 9104293674 #DrYogeshSwami #Palanpur #Urosepsis #SepsisAwareness #UrinaryTractInfection #SepsisPrevention #KidneyInfection #SepsisFighter #UTIComplications #SepticShock #KidneyHealth #UrologyCare #InfectionPrevention #SepsisSurvivor #SepsisAware #SepsisSupport #UrologyAwareness #UrologyTreatment #UrologicalHealth #UrologyIssues #KidneyInflammation #UrinaryHealth
Did you know that ANY infection can trigger life-threatening sepsis in babies and children, just as it can in adults? Whether the result of a common virus like the flu, or a bacterial infection like group B strep, sepsis is the leading cause of death in young children and babies worldwide. The list above highlights some common causes of sepsis in babies, but itās important to monitor your child for sepsis symptoms if you think that any type of infection may be present. Remember, if you suspect your child has sepsis, seek emergency care immediately and say, āI suspect sepsis.ā Take the time to learn the signs this Pediatric Sepsis Week. Visit PediatricSepsisWeek.org to learn more.
Neonato pretermino, 30 semanas de gestaciĆ³n, 10 dias de vida extra uterina, 14.445, Hemorragia intraventricular derecha Papille IV, plaquetopenia 9 mil, sepsis neonatal. #ray_anestesio #yotecuidoyoteprotejoyoteanestesio #rayanestesio #AnestesiologĆa #lavidadelanestesio #anestesiapediatrica #anestesiageneral #neonato #neonate #sepsissurvivor #sepsisneonatal
Continuing Pediatric Sepsis Week, a week to raise awareness of the signs and symptoms of sepsis in children. A week to acknowledge the 75,000 children who develop sepsis each year in the U.S., along with the 7,000 who tragically lose their lives to sepsis annually. With early recognition and treatment, most of these deaths could have been prevented. Here are some key sepsis facts. Learn more on our site, endsepsis.org ___ . . . . #ENDSEPSIS #sepsisawareness #doctors #Pediatrics #Infections #publichealth #Sepsis #SepsisSurvivor #PediatricSepsisWeek #CDC #medicalemergency #healthmatters #SepsisAwareness #grief #nurses
#100monkeys #bilateralstrong #amplife #sepsis #baka #amputee #nolegs #sepsissurvivor #sepsissucks #nolegsnolimits #badass #inspiration
4 years of hard work. Tron and Titan 11.0. #picasso #hangerclinic #bilateralstrong #amplife #sepsis #baka #amputee #nolegs #sepsissurvivor #sepsissucks #nolegsnolimits #badass #inspiration
Captain Awesome isnāt being so awesome-here we go again with these #sepsis shenanigans. Another scary hospital stay. SEVEN episodes of sepsis in the last year! Starting to worry I wonāt wake up next time. To top it off, my surgery to place my #SuprapubicCatheter , who Iāve named Captain Awesome, is on hold because I just found out I have fu@%ing #HeartFailure ! š± As if all this other š© isnāt enough to deal with already. Iām really not liking the steady stream of bad news I keep getting. Not even enough time to process it before the next set comes alongā¦Bruhā¦ #EDS #POTS #zebrastrong #SepsisSurvivor #ChronicIllnessWarriors #CHF #FrequentFlier #FoleyCatheter #HospitalAdmitsSuck #SevereAsthma #gastroparesis #RecurrentUTI
No one likes waking up at 5am to go to @greatormondst for a Lumbar Puncture, but stuff like this and seeing how excited Isaac gets makes it all seem worth it ā¤ļøā¤ļø #greatormondstreet #greatormondstreethospital #GOSH #stormtrooper #stormtroopers #starwars #ghostbusters #hospital #piccline #lumbarpuncture #sepsis #leukemia #leukemiaawareness #leukemiawarrior #cancer #disabled #amputee #amputation #lymphaticmalformation #lymphaticsystem #sepsisawareness #sepsissurvivor
Today is St George (the dragon and St. George) , here in Catalunya is an important festivity. The tradition is to give a single rose to the girls, and a book to the boys. š¹ Ā Today is also World Book Day. šš You know I love reading, so I thought I would tell you about one of my favorite books: Xiaolan Zhao - Traditional Chinese Medicine for Women (Reflections of the Moon on Water). Ā One day in the library in the alternative medicine section I found this book and I fell in love with it. I think all women should read it, ( and also men, to understand women! :), and teach it to our daughters, itās so enlightening and beautiful. Xiaolan Zhao is from China and was a general surgeon,Ā she had also studied traditional Chinese medicine. In the 90Ā“s she moved to Canada where she started to treat women based on TCM once she experienced how Western culture makes women sick, struggling with fatigue, depression, menstrual difficulties, infertility, chronic pain and cancer. Quotes from the Foreword written by Carolyn DeMarco, MD: āIt is a compelling look at the stages of a womanās life and includes a wealth of practical suggestions for living them in harmony with natureās rhythms to maintain health and prevent disease. In Western medicine we have medicalized the natural and healthy stages of a womanās life. We over-prescribe birth control pills, hormonal medications, tranquilizers, antidepressants, and many other medications, much to the detriment of womenās health. In contrast, in Chinese medicine, the stages of a womanās life are honoured and celebrated. Menstruation is referred to as Heavenly Water, pregnancy is called Ripening the Fruit, postpartum is known as Golden Month, and menopause is called Second Spring.ā āThe ancient traditions of Chinese medicine are needed more than ever in our society where women are increasingly pressured to be superwomen and are fatigued, stressed and sleep-deprived beyond endurance, and breast cancer and heart disease, autoimmune diseases in which the body attacks its own tissues, are all on the increase.ā āThis book will enable you to care for and thoroughly enjoy the body that youĀ“re in.ā šš¼šš¼šš¼more
Have you checked out PediatricSepsisWeek.org? Weāve created a collection of free downloadable resources to help you raise awareness and share more about the leading cause of death in children worldwide. Throughout the week, weāll be focusing on different aspects of pediatric sepsis. Can we count on you to join us in this effort? Visit PediatricSepsisWeek.org to download infographics, fact sheets, printable posters, and educational videos to educate the parents and caregivers in your life.
Me ha resultado difĆcil entrar en el jacuzzi y ha sido peor salir, nos hemos asustado un poco. En las redes sociales no es todo lo que parece. #jacuzzi #amputee #amputation #sepsis #sepsissurvivor #disable #discapacidad
Early recognition and treatment of sepsis can increase a childās chances of survival and improve their recovery. Do you know how to spot the signs? Share this infographic with the parents and caregivers in your life and learn more about the symptoms of sepsis by visiting PediatricSepsisWeek.org.
Another successful Sepsis 911 presentation this morning at Homewood in Williamsport, MD. Attendees were raptly engaged and focused on the topic at hand - sepsis, our stories, and the medical facts, statistics, and what we can do to reduce the number of deaths each year (1.7 million in the U.S. are affected by sepsis each year, resulting in 350,000 deaths). There are many of us, survivors, heartbroken families who lost a loved one, like losing our amazing 5 year-old Lochlin to flu and sepsis, and caretakers of those who've survived sepsis and suffered catastrophic injuries and amputations. We are much bigger than the numbers, we are all human beings with names, faces, and families, forever connected by this dreadful, lethal syndrome. https://www.instagram.com/loveforlochlin/ As usual, our presentation was interactive and lively. We received lots of questions from attendees and talked with them afterwards. We're being asked to extend beyond our home state and head into neighboring Virginia, Pennsylvania, and West Virginia, to spread the word. When sepsis quits, then we'll quit. But we all know that sepsis isn't giving up, so we're not giving up either. I'm so lucky to have met Brooke and work with her on these presentations. The @loveforlochlin foundation, which Brooke founded, provides vital help to our communities. Brooke is a total sweetheart, a kind, caring and patient nurse, and she's incredibly strong and relentless about protecting people from sepsis. I'm honored to know her and to work with her.ā¤ļø Next Thursday, April 18, we'll be at the Lunch and Learn at 11:30 am at the @natellifamily_ymca and the week after that we were invited to speak online on Steve Gurney's Positive Aging Community platform on Wednesday April 24, at 11:30 am EST. Also, on Thursday, April 18 at 2 pm EST, I was invited to speak online to offer tips for sepsis advocacy through storytelling on the @sepsisalliance platform. Go to www.sepsis.org to register for this interesting and informative talk, if you are looking for ways to share your sepsis story and advocate for awareness. I hope to see you there! #sepsis #sepsissurvivor
This week is Pediatric Sepsis Week, dedicated to raising awareness about the signs and symptoms of sepsis in children. Here are some facts: - Pediatric sepsis is the leading cause of death among children and infants worldwide. - In the United States, more than 75,000 children will develop sepsis each year and - over 7,000 will tragically lose their lives to it. - The mortality rate for pediatric sepsis is higher than for pediatric cancer. Learn more at endsepsis.org ___ . . . . #PediatricSepsisWeek #Sepsis #Pediatrics #publichealth #sepsisawareness #doctors #Infections #sepsisalliance #ENDSEPSIS #SepsisSurvivor
Our face-to-face #sepsis support group is running in Surrey again this week. Facilitated by our wonderful volunteers, the group is for anyone who has survived sepsis at any stage of their recovery ā offering advice, comfort and a friendly ear from those with shared experiences. This weekās group is running on Wednesday 24th April at 6.30pm, at the United Reform Church, 906 Brighton Road, Purley, CR8 2LN. Thereās no need to register ā just turn up! For more on our range of support options, see the link in our bio #UKST #SepsisSupport #SupportGroups #SepsisSurvivor #SepsisRecovery #PostSepsisSyndrome
Refuelling after 600 ft of 1200ft training todayš® #sepsissurvivor #Maychallenge #mounteverest #Scotland @justgiving Read my story!@sepsisresearch https://www.justgiving.com/page/dee-thomas-1712678838420?utm_source=IG
šø: gloomingup #sepsis #sepsissurvivor #sepsisawareness #goshfailedyou #goshsafety #mps #childloss #alwaysalice #hydrocephalus #alicerareandamazing #loveyoutothemoonandback #aspergillus #surgery #teamalice #bonemarrowtransplant #patientsafety #justiceforalicehobbs #covid #grief #chronicillness #hospital #amputee #hurler #septicshock #medicine #siblingloss #groupbstrep #groupbstrepawareness #invasiveaspergillosis #infection