Have you got too many tabs open? If you have, and you want something to listen to as you close them all down then make sure to listen to Episode 14 of the Skies We’re Under Podcast. Rachel and Lucy are joined by Jo Holmes @mummyvsaac and talk all things meaningful connection. #podcastswelistento #tswupodcast #tswu #theskieswereunder #theskieswereunderpodcast #parentingpodcast #disabilityinclusion #disabilityawareness #disabilitypodcast #teamaroundthechild #complexneeds #complexneedsparent #complexneedsfamily #complexneedschild
UNIQUE ART 4 UNIQUE heARTs - we created this last week BUT as Joseph is on his Holly-bobs with his family I thought I’d save his fabulous heART today! Joseph I missed you - but WOW my favourite yet! Joseph’s heART was amazing and based on the book “The little ladybird with a big heart” Joseph absolutely loved all the art techniques and materials we used - he giggled his heART content We giggled soooo much, jiggled a lot & blew this one to the top of our ARTie list! 🫧Painting 🫧Teabag dying for our wax dots 🫧Flower picking 🫧Written words from the book - Love - Care - Magic 🫧Punched circles for her dots 🫧Trapped our flowers & words in wax for her spots! 🫧Wire twists for her glasses 🫧Old helium balloons for her tummy AND a lot of raspberry blowing along the way! @saradaviescc #livingwithcomplexneeds #specialeducationclassroom #specialeducationteacher #artforfamilies #artfordisabilities #complexneedsteacher #complexneedsfamily #arteducation #artfunding #rarediseaseawareness #raredisease #homeeducation #childrensbooks #inspirationfrombooks #childrenbookillustration @walkerbooksgift @walkerbooksuk @bloomsburypublishing #hobbycraft @hobbycrafthq @waterstonesmcr
UNIQUE ART 4 UNIQUE heARTs is such a special art programme I deliver to numerous charities and families living with rare and complex needs. Joseph’s heART was amazing and based on the book “The little ladybird with a big heart” Joseph absolutely loved all the art techniques and materials we used today! The textures I implement into the art classes so he can feel his heART, touch his heART and listen to the children’s stories we read to inspire our art work. We giggled & jiggled and blew this one to the top of our ARTie list! 🫧Painting 🫧Teabag dying 🫧Flower picking 🫧Write words from the book 🫧Punched circles 🫧Trapped our moments in wax 🫧Wire twists 🫧Old helium balloons AND a lot of raspberry blowing along the way! Joseph giggles so much when his Dad blows them and pretends they are trumps! So I joined in, and it felt so good being silly AND ultimately my heART smiled the largest smile at his beaming and happy face 🙂 Joseph your smile just lightens up my day when I’m with you 🫧 @saradaviescc #livingwithcomplexneeds #specialeducationclassroom #specialeducationteacher #artforfamilies #artfordisabilities #complexneedsteacher #complexneedsfamily #arteducation #artfunding #rarediseaseawareness #raredisease #homeeducation #childrensbooks #inspirationfrombooks #childrenbookillustration #hobbycraft @hobbycrafthq @jollyjosh1 @reubensretreat @officiallouistheroux @spencermatthews @voguewilliams @staceysolomon #workingwithcharities #supportcharities #supportcharitiesandcauses #charitywork
Do you work in a health, social care or SEND role? Are you a busy, stressed, hardworking and sometimes overwhelmed? Chances are you don’t have time to do more, but maybe you have the capacity to make what you do more effective and efficient. Founded on lived experience, Born at the Right Time’s ‘Introduction to Communication & Collaboration with Parents / Carers’ training is about getting it right first time. Accessing this e-learning at a time to suit you will help you create meaningful connections with parents and carers to deliver the best service for families using healthcare, social care and SEND. Visit our website to book your place: https://www.bornattherighttime.com/personalised_care_training/ #Introduction For enquiries about funded places, group discounts, or to book this training as a bespoke event for your team, department or hospital trust, please contact [email protected]. [Image description: Introduction to Communication and Collaboration with Parents/Carers. Healthcare Social Care SEND. 2-hours CPD certified e-learning course. Image of a red character wearing black outfit climbing stairs made of books.] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #SEND #healthcare #socialcare #SALT #specialistSALT
We had a meeting earlier in the week that was a shit show - instead of offering a family at crisis point some semblance of empathy and help, it did the opposite and left us exasperated, exhausted, and completely defeated. I fell into a deep, dark hole that I was worried I couldn't climb out of. More fighting, begging, and shouting loudly to get our voices heard. Light at the end of the tunnel? There’s not even a glimmer with this fight and the darkness is intensifying. Unsurprisingly, I walked into the next appointment with the gastroenterology consultant prepared for a negative outcome. But when we arrived at the hospital we were met with a bubbly, engaging, well-prepared doctor. We spent almost an hour with him, Tilly managing to spend the entire appointment with us (she is a STAR!) and discussed everything I would have hoped for and more. He took us and our daughter’s ongoing gastro pain and discomfort seriously. He wants to help and understands why we desperately need a gastro expert in her team. He has suggestions for things to try now, things to try in the future, and some other options. I feared we’d be shunned away, told there was nothing else they could do and to accept that this is just the way she is. But we left the appointment with an investigative plan, his email address, and a whole lot of hope. The fights are exhausting and we're often left feeling like we won't get anywhere - but sometimes we can win. #complexneeds #complexneedsmum #complexneedsparent #complexneedsfamily #disabledparenting #disabledparent #disabledparentpower #disabledparentsuk #med13l #med13lawareness #med13lwarrior #med13lsyndrome
Do you work in a health, social care or SEND role? Are you a busy, stressed, hardworking and sometimes overwhelmed? Chances are you don’t have time to do more, but maybe you have the capacity to make what you do more effective and efficient. Founded on lived experience, Born at the Right Time’s ‘Introduction to Communication & Collaboration with Parents / Carers’ training is about getting it right first time. Accessing this e-learning at a time to suit you will help you create meaningful connections with parents and carers to deliver the best service for families using healthcare, social care and SEND. Visit our website to book your place: https://www.bornattherighttime.com/personalised_care_training/ #Introduction For enquiries about funded places, group discounts, or to book this training as a bespoke event for your team, department or hospital trust, please contact [email protected]. [Image description: Introduction to Communication and Collaboration with Parents/Carers. Healthcare Social Care SEND. 2-hours CPD certified e-learning course. Image of a red character wearing black outfit climbing stairs made of books.] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #SEND #healthcare #socialcare #SALT #specialistSALT
March 2024 A month of up, up, ups and a big fat down! What’s Henry been up to this month? So much. He’s learnt how to use two different types of switches with both his hands and both of his feet! He’s learnt to make noises in response to his sister and ‘talk’ to her. He’s been to the Houses of Parliament. He’s had a 48 hour EEG. Many many swims in the bath tub. Lots of walks to local parks and he’s been on three different types of swings in his firefly seat too! Plus we got our preschool sling just in time! Our holiday at the end of the month was cancelled with an unexpected admission for rhinovirus (again) and rather than swimming in the hydro pool each day we cuddled in his hospital bed. The nurses love Henry though and look after him so well. Onwards to April…what will you bring? Hopefully no unexpected admissions and it’s now pretty much a done deal that there will be no heart op after his recent viral infection. #march #adventures #housesofparliament #sensoryplay #adaptedplay #firefly #playground #complexneeds #complexneedsfamily #kickingcask
Listen back to past episodes of "The Skies We're Under" podcast wherever you usually find your podcasts, via our website or click our LinkTree. "It's always funny, lighthearted and tackles serious issues in a sensitive way! A must for any family or professional supporting SEND young people!" [Image description: "It's always funny, lighthearted and tackles serious issues in a sensitive way! A must for any family or professional supporting SEND young people!" The Skies We're Under Podcast Listener Review - image of red character wearing black wearing headphones with screen showing rewind, pause and fast forward symbols.] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #disabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
Subconsciously I felt I could no longer be trusted. I would look back on the events leading up to my son’s birth, and later diagnosis of severe brain damage, and worry that I lacked a mother’s instinct. That I had failed. Or that the frail traits of maternal instinct I had, were ignored in favour of not making a fuss. I’m pretty sure that my relentless pursuit of doing everything I could – and more when I was able to squeeze it in – was (and is) a testament to this guilt laden perspective of failing to keep my baby safe. My talk to @JoannaGrace on this week’s podcast made me feel so seen and slightly undone as we discuss a parent’s instinct. It’s The Skies We’re Under Podcast so we also discuss titties, work life balance and more. Check out LinkTree in Bio To find out more, including how you can be a part of the skies we’re under please go our website. See you there, whatever the weather! #podcastswelistento #tswupodcast #tswu #theskieswereunder #theskieswereunderpodcast #parentingpodcast #disabilityinclusion #disabilityawareness #disabilitypodcast #teamaroundthechild #complexneeds #complexneedsparent #complexneedsfamily #complexneedschild #specialneedsparenting #specialneedspodcast #specialneedschildren #specialneedsfamily #trustandbelieve #trustyourheart #laughingisthebestmedicine #laughingishealthy #coproduction #livedexperience #livedexperiencematters #autismfamily #autismlife #autismparent
Do you work in a health, social care or SEND role? Are you a busy, stressed, hardworking and sometimes overwhelmed? Chances are you don’t have time to do more, but maybe you have the capacity to make what you do more effective and efficient. Founded on lived experience, Born at the Right Time’s ‘Introduction to Communication & Collaboration with Parents / Carers’ training is about getting it right first time. Accessing this e-learning at a time to suit you will help you create meaningful connections with parents and carers to deliver the best service for families using healthcare, social care and SEND. Visit our website to book your place: https://www.bornattherighttime.com/personalised_care_training/ #Introduction For enquiries about funded places, group discounts, or to book this training as a bespoke event for your team, department or hospital trust, please contact [email protected]. [Image description: Introduction to Communication and Collaboration with Parents/Carers. Healthcare Social Care SEND. 2-hours CPD certified e-learning course. Image of a red character wearing black outfit climbing stairs made of books.] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #SEND #healthcare #socialcare #SALT #specialistSALT
Looking back over these (tongue in cheek) Top Ten Advantages to Parenting a Disabled Child... Do you have any to add? https://www.bornattherighttime.com/2014/07/31/top-10-advantages-parenting-disabled/ #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #disabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
So..........St.Valentine's day. ❤️ I'm going to share some raw, honest vulnerability now. This day, 24 years ago, In the year 2000, St.Valentine's day, I was admitted to the Maudsley Hospital in London. This was my new millennium. After failing for two years to beat my extreme version of Obsessive Compulsive Disorder under the care of Portsmouth hospitals, it was clear that I needed more specialist treatment. I was too complex for Portsmouth. So, I was sent to the Maudsley as my last chance saloon. I left that hospital, after10 weeks, a very different person from the one who entered. Not completely recovered, but well on the path of my healing journey. I've been in full recovery since the end of 2000 I've achieved more than I ever dreamed possible in the years since. I could not have envisaged the hard work and determination I would have to draw on, but I've reached a place where I have a busy, fulfilled, and very happy life. I'm a single foster carer for children with complex additional needs, an author, and a small business owner. I have an amazing immediate and extended family. I have the best friends. And this year, St.Valentine's day 2024, I hear that I've been picked as a finalist from the nominees for an Inspirational Women of Portsmouth award. I am truly blown away. I shared my story, the full, raw account, in my book, Tug of Love. I did so to give Hope to others who suffer from mental health illness. I hope I've been a good mum and role model to my three young adults, my children, my grandchildren, and my foster children. We need to set our young people a good example. Our family moto is be kind. It's that simple. #mentalhealth #mentalhealthmatters #mentalhealthawareness #therapeuticfostercarer #complexneedsfamily #specialneedsparent #specialneedsfamily #fosterfamily #fostercarejourney #FosterCare #specialneedsparenting #therapeuticparenting #author #memoir #writer #smallbusinessbigheart #mentalhealthadvocate
Top 10 Disability Clangers This is an older blog so the list could be much longer now. Please read it and share what clangers you have heard. What advice would you give to those people? https://www.bornattherighttime.com/2014/05/09/top-10-disability-clangers/ - link can also be found in our LinkTree #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #disabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
Listen back to past episodes of "The Skies We're Under" podcast wherever you usually find your podcasts, via our website or click our LinkTree. "It's always funny, lighthearted and tackles serious issues in a sensitive way! A must for any family or professional supporting SEND young people!" [Image description: "It's always funny, lighthearted and tackles serious issues in a sensitive way! A must for any family or professional supporting SEND young people!" The Skies We're Under Podcast Listener Review - image of red character wearing black wearing headphones with screen showing rewind, pause and fast forward symbols.] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #disabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
The emotions of my son turning 18 have been BIG. I’ve been looking over my shoulder and reflecting on his life so far (and ours). It would be easy to fall down a rabbit warren of “what ifs.” To rehash the possible ways I could have done better – of which there are many, but I think I can be kind to younger Rachel. She really did do her best. However, this over shoulder gazing has also made me reflect on all the messages I have had as a woman and the mother of a disabled child which has framed my thinking and perspective. There are a lot. So many messages of shoulda woulda. So many subtle and unsubtle expectations. Take pain for example. There is no expectation that my other children will spend significant amounts of time in pain. Yet research from a couple of years ago shows that chronic pain in people with CP and Spina Bifida is the most common and least understood symptom (Petersen, 2021). That means pain is experienced most and yet without fully understanding it, surely that means it can’t be treated as well. I suspect there are many reasons for this but I wonder if the biggest elephant in the room is our ableist mind set which not only has lower expectations on the lives lived by disabled people but also what physical attributes quantify a good life. I know as the parent of a young man for whom walking was not an expected part of his future, standing frames and walkers were so important. I have swum in the soup of ableism for too long not to think that putting one foot in front of the other was more important than getting where you want to go. I was more zealous and vigilant about standing – even when it might be causing pain – than I was about lying support in bed and during the day. This is an uncomfortable perspective for me today. Yet, I did my best, I still do. And now I will continue to try and disentangle myself from the other ways ableism has warped my views of my son, his life and ours. #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #pmld #specialneedsparenting #learningdisability #cerebralpalsy #medicinelife #disabilitycommunity #parentsofspecialneeds
#respite #childrenshospice #specialneedsparents #complexneedsfamily #pmld #hospice So what did we get up to on our two days and three nights of respite?! 💤 26 hours of sleep 🛌 3 amazing lazy mornings without meds/nebs etc. 🎱 the @worldsnookertour #snookermasters 🧖♀️ a twilight spa session @champneysspas 🥩 2 delicious meals of steak, chips and wine! 😌 time to relax and be Liz & Matt again Thank you @demelzacharity for such a well needed break and to @mattday147 for being you 🧡
I’ve been looking at the numbers and I wonder whether the current deputyship application process is both ableist and discriminatory. For people with capacity, the process for Lasting Power of Attorney isn’t cheap but it is likely to be successful with only 2.4% of applications being rejected. For those who are most at risk – the small percentage of people who do not have capacity to apply for LPA – their loved ones go through the process of deputyship as there is no alternative process to enable them to be recognised by services as advocates and voices for their loved ones. But the Court of Protection rejects between 38 and over 70% of deputyship applications. So those people who require the greatest safeguarding measures (identified in CIPOLD, 2013 as having a person who loves them in their network advocating for them) are put at further risk by preventing them from having a key voice from someone who knows their context, aspirations and needs – doesn’t work 9-5, doesn’t have annual leave and doesn’t change role. Looking at any of the preventable death case reviews in recent years, communication, collaboration and a lack of understanding around the Mental Capacity Act frequently impacts the health and welfare of people with a learning disability. The current system doesn’t promote collaborative working, it disempowers the people most passionate about supporting people with complex neurodisabilities. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #dissabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
In an age where #co-production, #personalisedcare and understanding #livedexperience are at the heart of delivering good services, maximising interactions with family / #carers is essential. To help facilitate this, book our forthcoming online training ‘Essentials in Communication and Co-production with Parents/Carers’. This 4-hour virtual, CPD-certified training founded on lived experience, research and #bestpractice aims to equip anyone working in #health, #SEND or #socialcare, (whether a registered or non-registered) #practitioner to effectively #communicate and work in #collaboration with parent/carers of children/adults who have #disabilities. Click the link or visit the Born at the Right Time website to book. https://ow.ly/brp650Q7Un3 Image description in [Alt Text] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #teamaroundthechild #pmld #Paediatrics #Neonatal #bridgingthegap #personcentred #personalisedcare #personcentredcare #nhstraining #socialcaretraining #SENtraining #teachertraining
In Season 2, Episode 13 of ‘The Skies We’re Under’ podcast, Rachel talked to her brilliant friend, Rochelle @lifewithliseencephaly_rochelle The friends’ chat got serious quickly and disintegrated into laughter and mild chaos as fast. S2 | Episode 13 | The Skies I’m Under podcast Listen via our website, link in LinkTree Image description: A white lady with long auburn hair and blue eyes wearing a leopard print top and bright pink lipstick. #podcastswelistento #complexneeds #complexneedsfamily #carers #parentingpodcast #parentalsupport #disabilityinclusion #theskieswereunder #tswu #TSWUpodcast #valueofeveryone #disabilityawareness #inclusion #podcast #teamaroundthechild #pmld #specialneedsparenting #livedexperience #coproduction #blendeddiet #epilepsy #ketodiet #babyloss #lissencephaly #childloss #stillbirth #mumblogger #mumblog #parentblog #parentblogger
Festive greetings tis the season to – Go one week early to donate blood Accidentally send two Christmas cards to the same person Buy two of the same gifts (so niche not transferable) Have your 8-year share your bed because they are really unwell with tonsillitis and fevers – only for him to request a transfer at 2am because the snoring is so bad (eek 🙄) And when returning for blood donation discover Hb too low to donate meaning no freebie crisps or biscuit. In the next couple of weeks, we have greater expectations of fun, rest and more jobs to do with all the kiddos at home. For so many of us, Christmas is not how we would plan or expect it. It certainly isn’t the picture postcard version, but once you get over Jude Law not rocking up for a snog it can still be life with tinsel and bells and glimpses of joy and fun. Whatever it looks like for you – wishing you and yours a good festive period. [Image description - thermometer showing temperature of 40.1 degrees celcius] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #dissabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
In an age where #co-production, #personalisedcare and understanding #livedexperience are at the heart of delivering good services, maximising interactions with family / #carers is essential. To help facilitate this, book our forthcoming online training ‘Essentials in Communication and Co-production with Parents/Carers’. This 4-hour virtual, CPD-certified training founded on lived experience, research and #bestpractice aims to equip anyone working in #health, #SEND or #socialcare, (whether a registered or non-registered) #practitioner to effectively #communicate and work in #collaboration with parent/carers of children/adults who have #disabilities. Click the link or visit the Born at the Right Time website to book. https://ow.ly/wLoW50Q7U2E Image description in [Alt Text] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #teamaroundthechild #pmld #Paediatrics #Neonatal #bridgingthegap #personcentred #personalisedcare #personcentredcare #nhstraining #socialcaretraining #SENtraining #teachertraining
Join us December 6th from 2pm-7pm for a Free Public Event. Come have some fun, meet the New Owners and find out what is being offJoin us December 6th from 2pm-7pm for a Free Public Event. Come have some fun, meet the New Owners and find out what is being off #complexneedsparentingered for your family. #OkotoksLiving #connection #familytime #yyc #okotokslife #OkotoksEvents #yycmoms #localbusiness #okotoksbusiness #okotoksmamas #highrivermoms #southcalgary #foothillsliving #supportlocal #okotoksliving #thingstodoinokotoks #highriver #smallbusinessowners #community #connect #yycyouth #communityimpact #diamondvalley #complexneeds #complexneedsmum #complexneedskids #complexneedschild #complexneedsparent #complexneedsfamily #complexneedsparenting
The FINAL Episode of Season 2, ‘The Skies We’re Under’ podcast was a classic blend of rant, reality and inappropriate conversations. Sarah, Lucy & Rachel compare their current sh*t-o-meter readings while laughing, ranting and crying. They also talk about: • Their need for counselling (hint you can find therapists focused on parent carer well-being at @affinityhub.uk and @lapis_psychotherapy) • The awesomeness of Acute Liaison Nurses • The gap between our capability and capacity • … and how society’s ableist thinking is so ingrained we don’t even notice it Find us wherever you get your podcasts, and if you could spend four minutes liking and reviewing the podcast on whichever podcast platform you listen via, it all helps make Season 3 possible. If you can share an episode with a friend – that would be just as amazing. S2 | Episode 15 | Sh*t-o-meter and Camel Toe in LinkTree We know it has been months but we simply haven't got the finances together to pay production costs we really are working hard to make it happen. Any support in getting us back in your ears laughing, telling our stories and cheering each other on with valuable hints and tips would be most appreciated. #podcastswelistento #complexneeds #complexneedsfamily #carers #parentingpodcast #parentalsupport #disabilityinclusion #theskieswereunder #tswu #TSWUpodcast #valueofeveryone #disabilityawareness #inclusion #podcast #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproductio #laughingisthebestmedicine #parentwellbeing #parentalwellbeing #carerwellbeing #nursing #acuteliaisonnurse #acuteliasonnursing #ableism #ableistthinking
In an age where #co-production, #personalisedcare and understanding #livedexperience are at the heart of delivering good services, maximising interactions with family / #carers is essential. To help facilitate this, book our forthcoming online training ‘Essentials in Communication and Co-production with Parents/Carers’. This 4-hour virtual, CPD-certified training founded on lived experience, research and #bestpractice aims to equip anyone working in #health, #SEND or #socialcare, (whether a registered or non-registered) #practitioner to effectively #communicate and work in #collaboration with parent/carers of children/adults who have #disabilities. Click the link or visit the Born at the Right Time website to book. https://ow.ly/wLoW50Q7U2E Image description in [Alt Text] #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #teamaroundthechild #pmld #Paediatrics #Neonatal #bridgingthegap #personcentred #personalisedcare #personcentredcare #nhstraining #socialcaretraining #SENtraining #teachertraining
I’ve been wrestling with the word empowerment. I heard it first as a student nurse in the late 90’s. I knew we were supposed to empower our patients to look after their health where they can. I always hear it in my work with practitioners and use it in my training. But like a pesky strawberry seed firmly wedged between my gnashers, something has started irritating me. The tone of empowerment highlights a shift of power. A shift from the healthcare/social care professional or system to the person or family. But why do they have the power in the first place? As a parent, the responsibility and power over the details of my child’s life lies with me. Doesn’t it? No – clearly not. My son’s life is scrutinised, judged, measured and assessed. I don’t have the authority or power for my eldest son like I do for my other children. Services, systems and practitioners can only empower parents of children with disabilities if they first own up to pillaging that power when the child was first diagnosed. Empowerment is about a power shift. The fact that it is part of service-land lingo exposes how systems perpetually disempower people daily. #empowerment #ParentCarer #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #ICB #PersonalisedCare
We were delighted to welcome the infamous and formidable podcasters from down under, Kate Mulholland and Mandy Hose, on The Skies We're Under Podcast earlier this year. Their ‘Too Peas in a Podcast’ has over a million downloads, and you can understand why with their warm, insightful and hilarious tales of parenting twins with disabilities. @toopeaspod ‘The Skies We’re Under’ podcast | S2 | Episode 14 Available now wherever you usually listen to your podcasts. Link on our LinkTree #podcastswelistento #complexneeds #complexneedsfamily #carers #parentingpodcast #parentalsupport #disabilityinclusion #theskieswereunder #TSWUpodcast #valueofeveryone #disabilityawareness #podcast #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #laughingisthebestmedicine #mumoftwins #twinmums #toopeas #toopeasinapodcast #additionalneeds #twinswithdisabilities #twinstagram #lifewithtwins #speechtherapy #fraternalgirls
Dear Professionals I’m not sure where to start because so many of you have the opportunity to deliver personalised care. Maybe you’re one of the many therapists (Occupational Therapist, Physiotherapist, Speech And Language Therapist, to name but a few) who collude and agree when it’s best to meet and then ask that I adhere to ‘your’ agreed date and time. Please know I’m grateful for your input, skills and knowledge. I know you are busy doing your best but don’t forget I have a diary, too and am a vital contributor to any discussion about my child. And please don’t forget that personalised care is often about the little things … Read the rest of Rachel’s recently-updated blog ‘Dear professional’ on our website (bornattherighttime.com) Want to learn more about the little things that make so much difference? Our excellent CPD-certified training in Communication, Co-production and Personalised Care can be found on LinkTree Image description: A white woman with brown hair is leaning over her son. The young boy is lying down. He has brown hair and is wearing a grey, long-sleeved top. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #livedexperience #coproduction #bridgingthegap #personcentred #personalisedcare #personalizedcare #personcentredcare #alliedhealthcare #occupationaltherapy #speechandlanguagetherapy #physiotherapy #NHStraining #AHP #AHPtraining #parentalsupport #parentblog #mumblogger #disabilityblogger
You may have seen a sneak peek on our stories yesterday but we are excited to launch....The Skies We're Under Puddle Huddle! Maybe as a parent carer you’ve got those wellies on and you're learning to dance in the rain - or maybe you are sick of the grey clouds and require a snorkel for the deep water which is swirling around your neckline. Either way - grab a cuppa or a glass of wine and get together with fellow parent carers in The Skies We’re Under Puddle Huddle. You will find us online twice each half term for 1 hour - time is precious, so let’s be realistic about the margins we have. There will be one session with a morning start time and one with an evening which will cover the same topics, you are welcome to come to both or choose a session that suits you best. Wednesday 17th January (10am) and Thursday 8th February (8pm) - "A nodding dog to the system" - The hoops we need to jump through and the times we need to say NO! You might like to listen again to Season 2 Episode 3 and Episode 4 before the session. Please see the Parent Carer Resources section in our linktree for the booking page. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #medicinelife #disabilityblogger #disabilityvlogger #dissabilitycommunity #parentsofspecialneeds #parentsofdisabledchildren
‘The Cracks That Let the Light In’ by Jess Moxham cracked me open. Talking to her on The Skies We're Under Podcast was a delight. Our conversation prompted me to think more about how my relationship with my son is soaked in the ableism I’ve been brainwashed with since I was born. The conversation with Jessica Moxham (@jessmoxham) is brimming with a mother’s love and the transformation required when we become the parent of a child with #disabilities. Listen today on Podbean, Apple, Audible or wherever you usually download your podcasts. Image description: A drawing of a mother and child, both wearing red tops and black trousers, holding hands, looking out a window. #podcastswelistento #complexneeds #complexneedsfamily #carers #parentingpodcast #parentalsupport #disabilityinclusion #theskieswereunder #tswu #TSWUpodcast #valueofeveryone #disabilityawareness #inclusion #podcast #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #thecracksthatletthelightin #sonstoriesblog #carer #send #accessibility #accessibilitymatters #ableism
Popping on to give a wee nod to the shed loads of stuff we have to take everywhere to do anything. I know I shouldn’t use absolute language but it is always, everywhere, doing anything AT ALL. ALL THE TIME and it NEVER goes to plan. Well, it’s a miracle when it does and no doubt we make a post about it – or at least a wee jig. Here's a photo of us going for a swim at Center Parcs. The young man pushed in wheelchair. The toilet seat being wheeled across the dirt in the dark by his brother. The massive bag of swim stuff put in a trolley, hoist slings and floatation aids (and youngest brother). We may also be blasting out toons at top volume as we go. Because if we are going to stick out like a sore thumb, we may as well go big or go home. Do you have any tricks about the Tetris mission of packing the car (my husband’s job) or taking stuff out and about? #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap
Moments in my motherhood. I shared this image on my stories but felt a strong need to have it here too. Maybe as a reminder to myself, maybe an "I see you Mama" to those that needed it. You see this is how I spend 100% of my life. Especially times out of the house. Always making sure I can keep Li-Li as calm and as safe as I can. My time predominantly taken up by her. By her needs. My boys having infinite amounts of patience and understanding. Fyfe taking on that caring role for both Zephyr at the times I can't, and Lilac in the moments I simply don't have the strength to give her what she needs. Because that happens too. I'm only human. And having the levels of patience needed to be Lilac's carer 24/7 just isn't possible. There's times I simply....cannot. do. it. Leaving the house is a huge, massive task. We can't do things spontaneously. We can't just "nip" somewhere. And this is her universe. We simply live in it. And God what an honour that is. But truthfully? It's exhausting at times. And since her medication was abruptly stopped due to supply issues, we are simply surviving right now. In any way possible. Using every tool we have. And every resource we can. I wouldn't change a single thing about her. She's incredible. She is just one of the best people in this entire universe!! But it's killing me seeing the struggle she's going through daily without her medication. We will get through this. We always do. Because it's us. But are things tough right now? Yeah, they are a little.......❤️ #complexneedsfamily
#parentcarerawarenessday Today is the first parent carer awareness day created by @braveparents a phenomenal charity that I am proud to be patron of. If you don’t know who Brave Parents are please take a look at their IG page. They are a small charity run for parent carers by parent carers and some amazing people too. Brave Parents recognises the challenges that the parents of children with complex medical needs face and focuses on encouraging us to take time for our own mental health and wellbeing. From hospital boxes, to big night in boxes and wellness day retreats Brave is there to help. I first came across Brave Parents through another medical parent on IG. They were running a subsidised wellness retreat that I was so lucky to get a place on. I absolutely loved the day. It was the first time since Henry was born that I concentrated on my needs. I met other medical parents for the first time too helping me to see that I wasn’t alone and created a circle of people I could talk to at 3am whilst in hospital! It was the first time I met people who really ‘got it’. You might have seen that I’ve been trying to set aside an hour or two once a week for some me time. Mine happened to be on a Wednesday (as I don’t work Wednesday eves and Matt was able to look after Henry too). I’ve managed three consecutive weeks focusing on my mental health. Week 1: a VERY long bath, wine and a book. Week 2: the pub with a great friend of ours (more wine!) Week 3: yoga at a wonderful studio opposite the hospital we are currently in. It’s a small thing, but it’s helping. As winter approaches, the lives of parent carers get harder and more isolated. We avoid the Christmas gatherings (germ fests!) and many of us spend weeks in hospital with our little ones. Brave sends parents hospital boxes full of super useful things (eye masks, coffee, chocolate and dry shampoo!) and you could help to fill these too with a small donation. If this has touched your heart…please take a look here https://braveparents.co.uk/how-you-can-help/ Sending a big (germ free!) hug to all parent carers out there! #braveparents #complexneedsfamily #parentcarer #disabilityparenting #medicalmumma
We had some great submissions last week on social workers, thank you. So today... Tell us your #FantasyFictionFriday Tales all about EHCPs! Here's Rachels: "We requested an EHCP today and the council said they would do it." #SENparent #SENfamily #SENcommunity #specialneedsparenting #complexneedsfamily #complexneedsparent #complexneeds
This book by K. Jane Lee is the story of how a Paediatric ITU consultant found herself on the other side of the bed when her daughter was born with disabilities. I can both recommend you read and suggest you avoid at all costs. It’s an easy and thoughtful read. I devoured it in a few days and then stayed under a blanket for a few days more. It had far too many similarities which resulted in falling off that cliff edge of emotions. Like being back in those early days with the added bonus of questioning every decision we made or didn’t make. If you have the emotional capacity to feel seen – would recommend. #parentcarers #complexdisability #specialneedsparents #complexneeds #complexneedsfamily #parentalsupport #specialneedsparenting
Thank you for all your contributions to last week's Fantasy Fiction Friday. What is your Fantasy Fiction Friday for...Social workers? Here is Rachel's: The children with disability social worker called this morning, she wanted to make sure we were ok and offer help. She said there is a new short breaks offer opening which is suitable for the most complex children and she thinks my son would love it, with permission she will set up the funding. Contribute your #FantasyFictionFriday story below. #SENparent #SENfamily #SENcommunity #specialneedsparenting #complexneedsfamily #complexneedsparent
When I’m no longer here Who will understand you the way that I do? I have become your interpreter, your mind reader, your 9th sense. Who will guide you the way that l can? I am your biggest cheerleader, your navigator, your personal motivator. Who will fight for you the way that I do? I am your voice, your advocate, your mediator and your researcher. Who will protect you the way that I do? I am your eyes, your ears, your intuition, your bodyguard. Who will love you the way that I do? I am your friend, your companion, your number one fan. I am the person who will be by your side fighting for everything that you deserve for as long as I am on this earth. I am your mum and I love you. #complexneedsparent #complexneeds #complexneedsfamily #med13l #med13lawareness #autismfamily #learningdisability
Book your place on our "Parenting a Child with Complex Needs Workshop". This interactive, engaging and supportive workshop is for parents and carers of children with additional needs. Supporting a child with disabilities can feel like a whole other world. It is a unique kind of parenting rollercoaster which take us to higher highs and lower lows. 📅 Date: 1/11/23 and 8/11/23 ⏰ Time: 10.00-12.00 GMT To book your visit our LinkTree in bio. #parentcarerworkshop #parentcarers #specialneedsparents #parentcarerwellbeing #SEN #SENparent #senfamily #carersofinstagram #unpaidcarers #sencommunity #specialneedsparenting #complexneedsparent #complexneedsfamily
Next stop… @ridelondon ?! Matt and I would absolutely love to train and complete Ride London in 2024. We are crossing everything that @demelzacharity are given spaces for the event. We’d love to participate as parents of a complex needs child who benefits so much from their care. I’m not sure who would look after Henry during the ride but we’ll make that work somehow! If there is anyone reading this at #ridelondon please get in touch with your charity department and give #demelza as many spaces as you can for 2024. @mattday147 and I would love to put together a team of turquoise #demelzahospice warriors! Matt’s #specialized bike is already the right colour! If there are any other organisations out there reading this who would like to help us out too please get in touch!! #couplegoals #complexneedsfamily #kickingcask #hospice #hospicecareforchildren #cycling #cyclinglondon #livcycling #livcyclinguk @livcycling @specialized_uk @lecoluk @rapha_uk @kask.indonesia @hunt.road
Special needs parents needs a break, Bryan's Place needs you! Click on the link in our bio to donate and help us provide services and assistance to families of complex needs children & youths. It’s simple and quick! Receipts provided upon donation. #bryansplace #specialneedsfamily #complexneedsfamily #parenting #charitydonations #donatingiscaring
♡ E L L I E ♡ She deserves her own post today instead of sharing the limelight with her brother. On Friday night at Ameilas Young Highlanders awards. Ellie won Special Sibling Award. We actually never give her enough credit for what she does. She's emergency first aid trained, she can tube feed, she knows what to do in the event of a seizure and she is just the best big sister. She has spent so many nights not knowing what's going on while her brothers in hospital, so many times she's been passed from pillar to post while I've had to put Aaron first again, so many times we've had to cancel or change plans, all the times she's had to miss things or school because Aaron's needed hospital in Aberdeen or Edinburgh. The amount of times she's seen him been put in the back of an ambulance or me panic because his mini button has fell out his stomach 🤢 All the times when hes had seizures and I've been too scared to leave him alone so she sits with him so I can shower, or hoover. She reads to him and plays with him and all he does in return is try to bite her 🤣 She is my rock. The girl that gets me through. The girl that keeps me going. My ultimate best mate in the whole world. I am so so so proud of the girl she is. She deserves this so so much ❤️ #ameilasyounghighlanders #drummosiehotel #dan&grace #caleytimber #midgebitecafe #awardsnight #bestsister #specialsibling #complexneedsfamily #familylife
"I’m baffled that the chronological transition from age 17 to 18 means my son (who is entirely reliant on others for his safety, well-being, physical health and joy in his life) will no longer have the legal protection of a person who loves him advocating for him and coordinating his care – unless I go to court. It isn’t that I lose that right if there is a question that I don’t have his best interests at heart. It isn’t that if questions are raised about me dominating or limiting his choices or outcomes. It isn’t that suddenly services take responsibility for my son’s daily needs when it comes to safety, well-being, physical health or joy in his life – nope, that is still down to us. No. We no longer have the authority to fulfil our responsibilities …" RW Rachel’s latest blog “Deputyship: Another Disability Tax”, is online now. To read more, visit our website or click on the link in bio (Linktree) @bbc @bbcnews @bbcwomanshour @bbcnewsuk To learn how to protect a disabled person using specialist wills and trusts, join leading expert Philip Warford's FREE webinar. MD of Renaissance Legal (Brighton), Philip will explain how to safeguard means-tested benefits and how to provide financial security for your disabled loved one, as well as the rest of your family. For more info and to book see link in bio (Linktree) Image description: An image of a judge wearing red. Graphics read, ‘The fact we need to apply for this legal covering is both heartbreaking and unfair. It is fuelled by an institutional bias against parents’ #deputyship #disabilitytax #parentblog #disabilityblog #complexneeds #complexneedsfamily #carers #parentingpodcast #parentasupport #disabilityinclusion #theskieswereunder #tswu #TSWUpodcast #valueofeveryone #disabilityawareness #inclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #familylaw
I had a dear old friend with dementia who very often forgot what we had talked about. She forgot the words spoken between us, but she rarely forgot how it made her feel. She remembered the time we spent together by the feelings I left her with. The same is true for me when I'm navigating a complex system of SEN, health and social care whilst advocating for my child. Even when I don’t remember everything a professional says, I remember how they made me feel. Whether I felt my son was addressed as the person central to the conversation, whether I was engaged, heard and respected. Yes, there are a lots of more important things that will be said when we meet, but let’s not forget that the little things can make a big difference. In a sea of jargon and policies that perpetuate a sense of powerlessness, using a person’s name cuts direct to our shared humanity and helps me feel seen. Our wide range of CPD-certified training is founded on lived experience and fuelled by research to bring about positive and meaningful change with actionable next steps. Our next specialist course on Communication and Coproduction with Parents / Carers takes place on October 31st priced at £95 per person (booking fee may apply). To book and for more information, please see link in Linktr.ee in bio Image description: Graphic of a black woman with long hair and a white woman wearing a head covering sitting at a white table having a conversation. Both are wearing red tops. There is a speech bubble with a graphic of a black child with dark hair inside. The text reads, ‘In a sea of jargon and policies which perpetuate a sense of powerlessness, using a person’s name cuts direct to our shared humanity.’ #complexneeds #complexneedsfamily #parentalsupport #valueofeveryone #disabilityawareness # #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #communication #SEN #teachertraining #NHS training #NHS
"We were part of a game of pass the parcel but unfortunately the music never stopped. No-one was sure about the collective part they played and they most certainly underestimated the impact of their contribution to the bigger picture, ‘William’s life!’" Sharon Goddard I read an article in the CoLab newsletter from last year, and this quote jumped out at me. This. All of this. It's like the music isn't stopping and practitioners know this isn't the layer with the prize but rather the forfeit. So, as the music fills the air, the parcel is hurriedly thrown to the next person. Like a hot potato no-ones wants to be landed with. As ever, this doesn't reflect the people being asked to handle the parcel - who are invested directly in our lives. It is the impact of them not having the resources, authority or skills to support us within the current system. I had a meeting this week when the words, "It seems you have slipped through the net" was spoken again. It isn't the first and won't be the last. That flippin net and it's ruddy great holes. When is someone going to stop the music and take responsibility? When are we going to mend that net and close those ever-growing holes? #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap
Lazy Sunday or Hijacked by Parenthood? Listen to Rachel, Lucy and Sarah talk about how being the parents of people with complex needs has taken over – well everything. Go to Season 2 Episode 1 of The Skies We're Under Podcast * The emotional phases we go through – rage, resignation and resolve * Deputyship and power of attorney – who needs it and why? * Realising there isn’t such a thing as ‘it’ll be easier when...’ * How none of us are Mother Teresa incarnate * One of our biggest roles as parents is to enable our children to have fun and feel safe without us Listen wherever you get your podcasts, find links in our LinkTree #podcastswelistento #complexneeds #complexneedsfamily #carers #parentingpodcast #parentalsupport #disabilityinclusion #theskieswereunder #tswu #TSWUpodcast #valueofeveryone #disabilityawareness #inclusion #podcast #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #swearing #laughingisthebestmedicine @_ms_rachel_wright @mrsclyton76 @Luceparr
As parents, it is hard to think that simply because a person crosses a chronological threshold of eighteen years, they would legally no longer have their parents as their primary guardians acting to champion their unique and highly complex needs. Rachel’s blog “Deputyship: Another Disability Tax" can be read in our website's 'Supporting Families' section. (Link to website in bio). "It is hard to think that simply because a person crosses a chronological threshold of eighteen years, they would no longer have their parents as their primary guardians acting to champion their unique and highly complex needs. Instead, without intervention, this would fall to a faceless institution determined by budgets and targets, which is currently struggling to match the rhetoric of legislation with the reality of people’s lives. With time, our son’s needs will only increase. Knowing the finer details of his life, preferences, past and aspirations for the future will become more critical. It can only be fully provided by us, his parents. " With or without this deputyship, we will continue to be expected (and love) to provide for all of our son’s needs at home in his adulthood. All we are asking is that our daily responsibility be matched by the authority, agency and resources needed to carry it out. Without deputyship, local services with ever-changing transient employees would have the power to decide what is best for our son – without actually understanding or providing for those needs every day”. Image description: Graphic of a white male with short dark hair wearing a pale blue jumper and grey trousers sitting in a wheelchair. The text reads, 'Parents are asking that their daily responsibility be matched by the authority, agency or resources needed to carry it out'. #deputyship #disabilitytax #parentblog #disabilityblog #complexneeds #complexneedsfamily #carers #parentasupport #disabilityinclusion #valueofeveryone #disabilityawareness #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #familylaw #willsandtrusts #courtofprotection #youthdisability #childtrusts #childtrustfund #ministryofjustice
The biggest thank you to all of our wonderful friends for supporting us today and running/walking for #teamhenry We are so grateful to this bunch of amazing people who have had our backs since before Henry was even born and every single day since. You are our village and have helped us get through the last 19 months in so many different ways. From coffee and walks, to way too much wine, hugs and FaceTimes and of course visiting us in hospital. #thankyou so much. We’ve raised a massive £400 so far via the QR code for @caskresearch and a further £360 via the link on our profile page on IG. People’s generosity today was amazing. We had an incredibly smiley Henry this morning. Possibly the most we’ve ever seen him smile ever. Perhaps he knew that all the fuss was about him and his amazing CASK friends too. #kickingcask #medicalmumma #babyhenry #complexneedsfamily #charity @mattday147 @simonkidsley @this_sen_mom_likes_to_run @lizkidsley @amberrosekidsley @shazsarchamy @nazz_87 @alexandralucie78 @tim_keenoy
What is CASK? We’ve had so many new followers recently and lots of incredibly kind donations too. I thought it might help to explain a little bit about Henry’s condition. The CASK gene is responsible for brain development. Females have two CASK genes, males one. Henry’s CASK gene is a nonsense gene. So the way it is written doesn’t make sense. This means that his body and brain is unable to develop as it should do. So very little is known about CASK which was only discovered in 2008. In fact there are only around 200 diagnosed cases worldwide. About 10% of these are boys. Meaning that Henry is super rare! The impact of a CASK genetic mutation is different in every child. Some girls can walk, some can’t. Many boys aren’t able to sit up or roll or hold their heads up. But some can. Some girls are as badly affected as boys. There’s a lot that we don’t know about CASK and it’s effects. Generally, boys are much more affected than girls. Then there’s the epilepsy which affects many CASK children. This is the worst part for me. It’s scary, it’s horrible and every time Henry has seizures I panic. The reality is that they could kill him one day. I try not to compare Henry to other CASK children. He is who he is and he was meant to be this way. Since conception Henry has always had a nonsense CASK gene. It gives me some peace to know that it’s not our fault or my fault and that we didn’t cause him to have such a profound disability. As I’ve said before our lives have changed so much since Henry was born. Life is much harder but in many ways we have had some amazing opportunities and the way we look at life has changed profoundly. I’m really grateful for this if I’m honest. You may have noticed that we are fundraising right now for @caskresearch which is the UK charity for Henry’s condition. As a family we will be running a #raceforresearch on Saturday 15th July alongside lots of our friends in Crystal Palace park. Please join #teamhenry and run or walk or ride a 5k on Saturday if you can. Use the two hashtags above ⬆️ so that we can repost too! If you can donate please do! #kickingcask #medicalmumma #5k #running #parkrun #epilepsy #complexneedsfamily
As a parent carer, I am placed at the centre of a network of professionals. Having sat down one day in 2020, I worked out exactly how many people that included. It amounted to over eighty practitioners, professionals, therapists, administrative staff and engineers. Eighty!!! This is why I firmly believe that Co-production Week and training practitioners in communicating and working well with families is the single most powerful training they can experience. Read more of Rachel’s blog ‘with’ not ‘to’ by visiting the website (www.bornattherighttime.com) or see Linktr.ee in bio. Image description: A web of practitioners surrounding a white woman holding her son who looks a little too big for cuddles (he's 14 years old). #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #teamaroundthechild #personalisedcare #withnotto #coproductionweek #coproductionweek2023
It was a privilege to spend the evening with fellow Parent Carers at our workshop on Tuesday Night. The topic was 'Making Complaints, Working Together and Not Losing Your S**t'. Why do I think not losing your cool is important? Because we need to be nice? Because we should trust the system? Because it's unladylike? Heck no. It is good not to lose our shit when complaining about poor services primarily because we are worthy of not being emotionally traumatised by advocating for our child. Secondly, too often, big emotions are used as another excuse to minimise our experiences and the value of our voices. Not losing our cool is as much about looking after ourselves as protecting the practitioners who work in a challenging system. That doesn’t mean I don’t think we shouldn't be emotional or explain our feelings. Rather we must do it in a way that isn't weaponised against us. As Brené Brown says 'Clear is kind'. Remember: Strong back, soft front, wild heart. Know our expertise and knowledge. Be open to different points of view, and the possibility of having our minds changed. Find an alternative way. The out-of-the-box, creative, off-piste option. 'Be kind and take no shit.' (Taken from Cassandra Speaks by Elizabeth Lesser) Image description: Graphic of a black woman with black hair up in a bun wearing a red short-sleeved cropped top and black leggings. She is sitting cross-legged on the floor. The text reads, ‘Be kind. Take no shit.’ #complexneeds #complexneedsfamily #disabilityinclusion #valueofeveryone #disabilityawareness #teamaroundthechild #pmld #specialneedsworkshop #disabilityworkshop #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #parentworkshop #parentalsupport #complexdisabilities #parentmentalhealth #parentcarer #caregiversupport #unpaidcarers #specialneedsparenting #senfamily #sencommunity #parentingspecialneeds #carersupport #bekindtakenoshit #elizabethlesser #emotionaltrauma #disabilityadvocate
“Gradually, I discovered a new way of looking at my son. With time, I stopped … wanting the weather to change or the view to be different. Instead, I prepared to dress more appropriately and appreciate where I was. I began to love the skies I was under. I had been so consumed with a sense of being restricted and tied down that I was missing the charm of where I was. With time, I began to breathe in the beautiful vista before me as I tried to stop hankering after the scenery of my dreams.” What happens when life falls apart? What do you do with the broken pieces of your dreams? To read more of Rachel’s beautifully written and honest account of how life was turned upside down when she became the parent of a baby with complex disabilities, visit our website (www.bornattherighttime.com) or see Linktr.ee in bio (READ the BOOK ‘The Skies I’m Under’) Image description: Teenage boy with short brown hair wearing a red T-shirt and blue sunglasses in a wheelchair. The sky behind him is bright blue with occasional white clouds. #theskiesimunder #childrenshealth #complexneeds #booksilove #booksforparents #pmld #complexneedsfamily #familycare #familycaregivers #rachelwright #selfpublishing #selfpublishedauthor #selfpublished #whenlifefallsapart #mustreads #mustreadbooks #mustreadlist #complexneedsparent #parentingbooks #rachelwright #whenlifefallsapart #bridgingthegap #collaboration #coproduction
“When my son was born, my husband and I found ourselves transformed from healthcare professionals (GP and nurse) to ‘Dad’ and ‘Mum.’ The transition was instantaneous. The gap between each version of ourselves, however, felt vast. In the intensive care unit, watching my son not breathe, I glanced fearfully at the monitors. I knew what they meant and silenced alarms when nurses didn’t come. I noticed how differently nurses spoke to my husband and I when they knew he was a doctor and I a nurse. It wasn’t so much that they used more medical jargon – although that did happen – it was the difference between being ‘spoken at’ and ‘worked with’. It is a pattern which has continued over the last eighteen years. And it’s why Co-production Week is now marked clearly on my calendar”. Read more of Rachel’s blog ‘with’ not ‘to’ by visiting the website (www.bornattherighttime.com) or see Linktr.ee in bio. Image description: Black and white photograph of a man bent over a wheelchair with a syringe in his mouth. He is attending to a young boy in the wheelchair. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #teamaroundthechild #personalisedcare #withnotto #coproductionweek #coproductionweek2023
Parent Carer workshop this Tuesday - Free if you need it to be. * Making Complaints, Working Together and Not Losing Your S**t * Tuesday, July 4th 19:30 → to 21:00 1. Is there way a good way to make complaints? 2. Working with rather than against practitioners 3. Looking after your own mental health at the same time (she finds this easier to talk about than do) Please share with anyone who might benefit from meeting others taking a similar route through life in a safe environment over a cup of tea or glass of wine. Usually the cost of each workshop is £20, but please click whichever ticket price option you are most comfortable with, no questions asked. Check out LinkTree or Born at the Right Time website Image description: A not so young white woman sitting at her desk with circular light, computer and microphone ready for on-line workshop with fellow parents. #complexneeds #complexneedsfamily #disabilityinclusion #valueofeveryone #disabilityawareness #disabilityinclusion #teamaroundthechild #pmld #workshopforparents #specialneedsworkshop #disabilityworkshop #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #parentworkshop #parentalsupport #complexdisabilities #parentmentalhealth #specialneedschildren #parentcarer #caregiversupport #unpaidcarers #specialneedsparenting #senfamily #sencommunity #parentingspecialneeds #carersupport
Less than two weeks left to book your place(s) at our next virtual live event. Difficult Conversations & Challenging Situations with Parents/Carers Monday, July 10th 2023 09:00 → to 13:00 £125 (booking fee may apply) Founded on lived experience, this 4-hour online course looks at the key factors which lead to a breakdown in relationships between parents/carers and practitioners. It explores how this understanding can inform ‘next steps’ and what meaningful connections between professionals and families might look like. Practitioners should come ready to be interactive and reflective and to learn from psychology, sociology and research into trauma-informed care. (Please note: We recommend that you have completed the 'Essentials to Communication & Coproduction with Parents / Carers' course before booking this course). For booking and more information please see the website (www.bornattherighttime.com) or Linktr.ee in bio Image description: A white female with long brown hair and a white male with short brown hair sit opposite one another in a hospital canteen filled with white plastic tables and green plastic chairs. The lady wears a dark grey jumper, blue denim skirt and grey tights. The man wears an orange sweatshirt and blue denim jeans. He holds a paper cup, and she is holding a can. There is a blue mobile phone and various other items on the table. #traumainformedcare #difficultconversations #challengingconversations #personalisedcare #collaboration #coproduction #complexdisabilities #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #livedexperience #coproduction #bridgingthegap #livedexperience #TransformativeCare #ParentPerspective #PersonCentred #BornAtTheRightTimeTraining #EffectiveCommunication
Are you a Speech & Language Therapist who is busy, stressed, hardworking and sometimes overwhelmed? Chances are you don’t have time to do more, but maybe you have the capacity to make what you do more effective and efficient. Founded on lived experience, Born at the Right Time’s ‘Introduction to Communication & Collaboration with Parents / Carers (Healthcare)’ training is about getting it right first time. Accessing this e-learning at a time to suit you will help you create meaningful connections with parents and carers to deliver the best service for families using healthcare, social care and SEND. Impact how you work today and gain 2 hours of CPD in the bargain. See website (www.bornattherighttime.com) or visit Linktr.ee in bio to book. Some fully-funded places for our training are available. For enquiries about funded places, group discounts, or to book this training as a bespoke event for your team, department or hospital trust, please contact [email protected]. Image description: Graphic of a white person with black hair wearing a grey top and black trousers behind a red speech bubble. The text reads ‘Are you a Speech & Language Therapist? #speechandlanguage #speechandlanguagetherapy #speechtherapy #SALT #specialistSALT #advancedspeechandlanguage #leadspeechandlanguage #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #SEND #healthcare #socialcare
Are you a registered or non-registered practitioner working in HEALTH, SEND or SOCIAL CARE? Then this online course founded on lived experience, research and best practice is for you! Essentials in Communication & Coproduction with Parents / Carers on 31 October will cover:- • Current context for families and practitioners • What is going on underneath the surface • Next steps to creating meaningful change Book today to equip yourself to effectively communicate and work in collaboration with parents/carers of children/adults who have disabilities. Want to save some training budget? Book places for you and/or your team before the end of July and receive an early booking incentive of 10% off when you use the code ‘Essentials10’ (Usual cost is £95 - a booking fee may apply) Can’t wait until October to get some CPD-certified training? You may still be able to book a place on the course running on 29 June. Please see our website (www.bornattherighttime.com) or visit the Linktr.ee in bio for more information. A limited number of fully-funded places for our training are available. For enquiries about funded places, group discounts, or to book this training as a bespoke event for your team, department or hospital trust, please get in touch with [email protected]. Image description: Graphic of a black male with short black hair wearing black trousers and a tunic holding a red speech bubble. A smaller grey speech bubble is underneath. #speechandlanguage #speechandlanguagetherapy #speechtherapy #SALT #specialistSALT #advancedspeechandlanguage #leadspeechandlanguage #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #SEND #healthcare #socialcare
‘At about ten months of age … I dared to face the nightmare that is the ‘Baby Weigh-in Clinic. On the whole, I found it best to avoid groups of ‘normal’ babies and health visitors. Both caused me a headache, and neither had anything sensible to say.' Rachel Wright Order your copy of ‘The Skies I’m Under’ to read more about Rachel’s journey of bringing up a severely brain-damaged child in her first book. See linktr.ee in bio for link [READ the BOOK 'The Skies I'm Under'] Image description: Graphic of a white woman with long black hair holding a baby in her arms. The woman wears a grey long-sleeved top, and the dark-haired baby wears a red Babygro. #theskiesimunder #childrenshealth #complexneeds #booksilove #booksforparents #pmld #complexneedsfamily #familycare #familycaregivers #rachelwright #selfpublishing #selfpublishedauthor #selfpublished #whenlifefallsapart #mustreads #mustreadbooks #mustreadlist #complexneedsparent #parentingbooks #rachelwright #whenlifefallsapart #babyclinic
We are excited to launch a brand new, 3-hour, on-demand course introducing parents and caregivers to 24-hour Postural Care. ‘Introduction to 24-hour Postural Care’ from Born at the Right Time and @simplestuffworks is engaging and informative training written for parents and caregivers BY parents of people with complex disabilities. Even if you have no previous experience, this course will help you learn more about 24-hour Postural Care, particularly lying support. We are offering a 48-hour flash sale of 25% off to celebrate the launch. To grab your bargain, book today using code ‘Flash25’ via the link in Linktr.ee in the bio. (Usual cost £36.56) If you have any questions about the course content, suitability or booking process, please get in touch with Rebekah via email, and she will be delighted to help you ([email protected]) Image description in [Alt Text] Image description: A white teenage boy with complex needs enjoying a wheelchair-adapted, accessible swing. He has short brown hair and wears a white T-shirt, blue shorts, black socks and leg supports. There is a green safety mat under the swing. #therapeuticpositioning #posturalcare #therapeuticpositioninggoals #passionateaboutposture #MultidisciplinaryTeams #IntegratedCareSystems #TransformativeCare #ParentPerspective #PersonCentred #BornAtTheRightTimeTraining #simplestuffworks #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #lyingposition
Ever feel like you are losing control? One of the first things to disappear when becoming the parent of a child with #SEN or complex medical needs is a sense of control. Some people live deluded that they are the master of their own destiny. But for parents of someone with #disabilities, the weeks ahead can be shaped by a growing list of professionals and their lengthening to-do lists. Born at the Right Time training always starts with talking about the experiences of becoming the parent of a child with complex needs. Lived experience is at our heart. The recent BBC series ‘Best Interests’ highlights the complexities of heart-breaking decisions from all perspectives. For parents like me, it can feel like we have fallen headfirst into a Vulnerability Labyrinth. This sense of losing control is universal to anyone hearing the well-crafted words of someone breaking bad news. It starts with a life-changing event - diagnosis, trauma or defining moment. The experience splits life into 'before' and 'after'; changing hopes, dreams and expectations for the future. In the midst of it all ... is a sense of losing control. Read more in my updated 'Losing Control' blog- see Linktr.ee bio for link. [READ the BLOG| Losing Control] Have you watched the BBC show Best Interests? What are your thoughts? Take care of yourselves, Rachel Image description: A lady wearing a grey jumper, blue denim skirt, black tights and brown boots is leaning over a hospital bed. A man with short brown hair and a red sweatshirt is on the other side of the bed. The hospital bed has blue patterned sides and white sheets. #bridgingthegap #cerebralpalsy #childreninhospital #complexneeds #complexneedsfamily #coproduction #disabilityawareness #disabilityblog #disabilityinclusion #disabilityparent #hospitaladmission #hospitalanxiety #hospitaltime #hospitalwaitinggame #learningdisability #livedexperience #losingcontrol #parentalsupport #parentingblog #personalisedcare #personcentred #pmld #sen #senblogger #send #specialneedsparenting #teamaroundthechild #valueofeveryone
Join us for a unique day of collaboration. Anyone interested in caring for children with medical complexity is welcome … families, people with lived experience and professionals of all disciplines. CoLab Conference 2023 Co-developing a toolkit for achievable incremental change This conference will focus on the small but essential changes in clinical practice that can be implemented easily without additional resources to make a real and positive difference to children and young people with medical complexity and their families. MORE INFO www.colabpartnership.org.uk/events/colab-2023 Supported by the Children’s Hospitals Alliance Image description: Dark green circular CoLab logo and the words 'Let's Sweat the Small Stuff, University of York, Wednesday 12 July' written in black and the red and black Born at the Right Time logo #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #collaboration #collaborativeworking #medicalconferene #medicalcomplexity #medicallycomplexchildren
Maybe YOU'RE the #teacher, school transport assistant, learning support worker, #SENCO or hearing impairment teacher who witnesses my frustration and tears? Please understand I’m determined to get the best for my child, even when I’m not articulate at showing it. I need to know that you want what’s best for him too. Effective communication between us is vital. … and so often, personalised care is about the little things ... Read more of Rachel’s recently-updated blog ‘Dear Professional’ on our webite or see link in bio. Want to learn more about the little things that make so much difference? Visit the website to see our catalogue of excellent CPD-certified training in Communication, Co-production and Personalised Care. (www.bornattherighttime.com) Image description: A young white teenager with complex needs sits in a minibus secured by a red seat belt. He has short brown hair and is wearing a grey top and grey bandana. #bridgingthegap #cerebralpalsy #complexneeds #complexneedsfamily #coproduction #deputyhead #disabilityawareness #disabilityinclusion #headteacher #learningdisability #learningsupport #LSA #livedexperience #parentalsupport #personalisedcare #personcentred #pmld #SEN #SEND #teachertraining #specialneedsparenting
DIARY DATES for two forthcoming ONLINE WORKSHOPS in July and October. * Making Complaints, Working Together and Not Losing Your S**t - Workshop * Tuesday, July 4th 19:30 - to 21:00 1. Is there way a good way to make complaints? 2. Working with rather than against practitioners 3. Looking after your own mental health at the same time (she finds this easier to talk about than do) * Parenting a Child with Complex Needs Workshop * 05/10/23 and 12/10/2023 10:00 – 12.00 (2 dates a week apart) • Holding complex emotions • Living in our own story • Dealing with difficult anniversaries • Changing relationships • Navigating the web of professional input • Communicating with practitioners • Being an empowered parent Please share with families you work with and other parents that you feel may benefit from meeting others taking a similar route through life in a safe environment over a cup of tea or glass of wine. Usually the cost of each workshop is £20, but please click whichever ticket price option you are most comfortable with, no questions asked. To book, please see our website (bornattherighttime.com) or click the link in the bio [ATTEND a parent / carer WORKSHOP] Image description: A young man with complex medical needs sitting in a wheelchair in a hospital setting. He has short brown hair, is wearing a green long-sleeved top, and is watching the TV show ‘Pointless’ on his iPad. There are doctors and nurses in the background. #complexneeds #complexneedsfamily #disabilityinclusion #valueofeveryone #disabilityawareness #disabilityinclusion #teamaroundthechild #pmld #workshopforparents #specialneedsworkshop #disabilityworkshop #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #parentworkshop #parentalsupport #complexdisabilities #parentmentalhealth #specialneedschildren #parentcarer #caregiversupport #unpaidcarers #specialneedsparenting #senfamily #sencommunity #parentingspecialneeds #carersupport
As part of our commitment to collaborative working, do you know about the upcoming CoLab Conference 2023? LET'S SWEAT THE SMALL STUFF Co-developing a toolkit for achievable incremental change University of York Wednesday 12 July 2023 This conference will focus on the small but important changes in clinical practice that can be implemented easily without additional resources to make a real and positive difference to children and young people with medical complexity and their families. Do join us for a unique day of collaboration. Anyone interested in the care of children with medical complexity is welcome … families, people with lived experience, and professionals of all disciplines. More info www.colabpanrtnership.org.uk Supported by the Children’s Hospitals Alliance Image description: A dark green circle with the word The CoLab written in brown, white and green letters with a face drawn in the letter O. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #collaboration #collaborativeworking #medicalconferene #medicalcomplexity #medicallycomplexchildren
Dear Professionals I’m not sure where to start because so many of you have the opportunity to deliver personalised care. Maybe you’re one of the many therapists (Occupational Therapist, Physiotherapist, Speech And Language Therapist, to name but a few) who collude and agree when it’s best to meet and then ask that I adhere to ‘your’ agreed date and time. Please know I’m grateful for your input, skills and knowledge. I know you are busy doing your best but don’t forget I have a diary, too and am a vital contributor to any discussion about my child. And please don’t forget that personalised care is often about the little things … Read the rest of Rachel’s recently-updated blog ‘Dear professional’ on our website (bornattherighttime.com) or see the link in bio. Want to learn more about the little things that make so much difference? Visit our bio for links to our excellent CPD-certified training in Communication, Co-production and Personalised Care Image description: A white woman with brown hair is leaning over her son. The young boy is lying down. He has brown hair and is wearing a grey, long-sleeved top. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #livedexperience #coproduction #bridgingthegap #personcentred #personalisedcare #personalizedcare #personcentredcare #alliedhealthcare #occupationaltherapy #speechandlanguagetherapy #physiotherapy #NHStraining #AHP #AHPtraining #parentalsupport #parentblog #mumblogger #disabilityblogger
ESSENTIALS IN COMMUNICATION AND CO-PRODUCTION WITH PARENTS & CARERS Covering: • Current context for families and practitioners • What is going on underneath the surface • Next steps to creating meaningful change This unique training is founded on lived experience, research and best practice to equip ANYONE working in HEALTHCARE, SEND or SOCIAL CARE to effectively communicate and collaborate with parent carers of children and adults with disabilities. Bookable via link in bio and via the Born at the Right Time website. (bornattherightttime.com) Image description: Graphic of a black woman wearing a grey top and black trousers with a red and a white speech bubble. Caption reads ‘Rachel is an amazing presenter - approachable, engaging and interesting, and the training was informative with lots of take-home messages!’ Specialist Speech and Language Therapist #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #personalisedcare #alliedhealthcare #speechandlanguage #physiotherapy #occupationaltherapy #podiatry #dietician #prosthetists #orthotists #radiography
A person who is a carer doesn’t always look like they’re caring ... just like It is widely accepted that a person who is disabled doesn’t necessarily ‘look’ disabled. This year’s Carers’ Week takes place from 5-11 June to support the millions of unpaid carers in the UK and to spread the word about the challenges they face throughout the year. This time last year, Rachel wrote a blog about the many hidden roles and the unseen toll of being a carer. And this is precisely why Born at the Right Time is passionate about supporting families by connecting them to their own stories, each other, their wider community and the practitioners commissioned to support them. Read the blog on our website www.bornattherighttime.com or by clicking on the link in our bio For more information on Carers’ Week www.carersweek.org Image description: A lady with mid-length brown hair wearing a blue jumper is hoisting a young man with complex needs using a blue hoist. #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #parentingbook #complexdisabilities #parentmentalhealth #specialneedschildren #parentcarer #caregiversupport #unpaidcarers #specialneedsparenting #senfamily #sencommunity #parentingspecialneeds #carer #parentcarer #carersweek #carersweek2023
Do you work in any of the following fields? Then this online course is for you! Essentials in Communication and Co-production with Parents/Carers Thursday, Jun 29th 09:00 → to 13:00 Founded on #livedexperience, research and #bestpractice, this course is aimed at anyone working in #healthcare, #SEND or #socialcare, whether a registered or non-registered #practitioner. Covering: • Current context for families and practitioners • What is going on underneath the surface • Next steps to creating meaningful change Delivered online, this course represents excellent value for money by bringing your professional education to you in your home or office - no need to spend additional time out of your day travelling to a venue. Meet other like-minded professionals and gain real-world skills for just £95 per person. Book via our website or via the link in bio. (BOOK 'Essentials in Communication & Co-production ' TRAINING [June]) Image description: Image of a white man wearing a grey top and black trousers holding a certificate. The text reads ‘Do you work in any of the following fields? Acute settings? Adult social care? Allied healthcare? Children’s social care? Day services? Hospice / palliative care? Learning Disabilities? Midwifery? Neonatal care? Paediatrics? Palliative care? Residential care? SEN? #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #disabilityawareness #inclusion #disabilityinclusion #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #livedexperience #coproduction #bridgingthegap #personcentred #personalisedcare #personalizedcare #personcentredcare #nhstraining #socialcaretraining #SENtraining #teachertraining
Volunteers' Week (1-7 June) is an annual celebration of the contribution millions of people make across the UK through volunteering in their communities. These wonderful volunteers much such a difference to the families like Rachel’s and the organisations they support and are all too often the lifeblood of those to whom they give their time, energy and commitment. Camp Jojo, an accessible camp, is just one example of what happens when wonderful people say ‘yes’ to helping others. You can read more about Camp Jojo in the link in our bio, but in the meantime, a massive THANK YOU from Born at the Right Time to everyone who gives up their time to volunteer in their community. Find out more about volunteering at volunteersweek.org Image description: A man with short brown hair wearing a red T-shirt and denim shorts is using a hoist to life a young man with complex needs out of his wheelchair inside a big white tent. #accessibilitymanager #accessibilitymatters #accessiblecamping #accessibleholiday #adventureforall #bridgingthegap #campingwithdisabilities #campjojo #complexneeds #complexneedsfamily #coproduction #disabilityawareness #disabilityinclusion #disabledcamping #disabledholidaysuk #disabledoutdoors #everybodycan #inclusivecamping #inclusivefun #livedexperience #merseaisland #parentalsupport #parentcarer #teamaroundthechild #valueofeveryone #volunteering #volunteerweek #volunteerweek23 #volunteerwork #wheelchairfriendly
In an age where #co-production, #personalisedcare and understanding #livedexperience are at the heart of delivering good services, maximising interactions with family / #carers is essential. To help facilitate this, book our forthcoming online training ‘Essentials in Communication and Co-production with Parents/Carers’ before the end of July for the offer price of just £89. This 4-hour virtual, CPD-certified training founded on lived experience, research and #bestpractice aims to equip anyone working in #health, #SEND or #socialcare, (whether a registered or non-registered) #practitioner to effectively #communicate and work in #collaboration with parent/carers of children/adults who have #disabilities. Simply enter code ‘EarlyBirdOct” for 10% off the October course. (Offer ends 31st July). Usual price £98.90. (Excludes booking fee). To book, see link in bio or visit the Born at the Right Time website. Image description: A black person wearing a dark grey top and black trousers is looking at a training diagram. The caption reads ‘Essentials in Communication & Co-production with Parents/Carers’ “Really enjoyable training, very eye-opening from a parents’ perspective. Powerful." #complexneeds #complexneedsfamily #parentalsupport #disabilityinclusion #valueofeveryone #teamaroundthechild #pmld #specialneedsparenting #learningdisability #cerebralpalsy #bridgingthegap #personcentred #personalisedcare #personcentredcare #nshtraining #socialcaretraining #SENtraining #teachertraining
Are you a MIDWIFE who is busy, stressed, hardworking, and sometimes overwhelmed? Chances are you don’t have time to do more, but maybe you can make what you do more effective and efficient. The Born at the Right Time course ‘Midwives Communication & Collaboration with Parents’ is about listening to and working with parents to deliver a family-centred service that works for those who unexpectedly find themselves in complex situations. Founded on lived experience and with 2 hours of CPD e-learning, this easily accessible course can impact how you work TODAY. Book your place via our link in bio. Are you a student midwife? To ensure our introductory courses on ‘Communication & Collaboration with Parents / Carers’ are accessible for everyone, we offer ALL STUDENTS the chance to book onto this online course for JUST £10. That’s a massive SAVING of £20 on the usual price of £30. Use code ‘Student10’ when booking your place to claim your discount. Unsure if this is the most appropriate course for you? Please get in touch with Rebekah for some informal and friendly advice [email protected] Image description: Graphic of a white and a black nurse, wearing red tops, trousers, and a white mask. There is an overly large tub of pills between them. The caption reads: Are you a Midwife? #midwife #midwifery #midwifes #midwifelife #midwifestudent #midwifetobe #midwifetraining #nhstraining #nhseducation #complexneeds #complexneedsfamily #disabilityawareness #teamaroundthechild #pmld #livedexperience #coproduction #bridgingthegap #collaborativeworking #personcentredcare #personalisedcare #neonatal #scbu #specialcarebabyunit #neonatal #neonatalcare #neonatalsupport #neonatalloss #neonatalnurse #neonataldoctor #neonatalintensivecareunit #neonatalnurse #neonatalnursing