I promise you this… one voice can change things for an entire school. Mine just did. I’m an Autism mom and have had to advocate for my son and his schooling since he was young. I wasn’t always a strong advocate or a loud voice. It took many situations over the years for me to find my strength and voice. My son is now 20 and I am still fighting - and mostly winning - for all of us. I saw a major issue at Brandon’s school today and because I spoke up, there is action. My husband said to me today, “why can’t someone else have done the work?” I think there are many reasons. Sometimes parents don’t know that they are equal team members. Sometimes schools don’t treat parents as equal team members. Sometimes parents are too exhausted to fight. Sometimes we don’t know what to fight for. I’m here. Fighting for all of us and I invite you to join me on your local level. One voice can move mountains. . . . . #autismadvocate #autismadvocacy #autismschool #autismeducation #autismeducators #autismparents #specialneedsparents #advocatelikeamother #autismafter18
Check out this article I wrote for Blue Mind’s blog. Carolina used to work with William and is very passionate and dedicated to her work. Link in Bio #autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabled
Came across this today and it gave me so many feels. My buddy isn’t a baby anymore and how blessed are we for finding such a village of people who help him everyday be his own person in a safe and accessible home of his own, learning life skills and soon job skills. I couldn’t have given him what he needs to thrive as an adult and his want for independence. I had to let his hand go so he would grow into his own manhood. #severeautism #profoundautism #advocate #selfinjuries #communityliving #grouphome
Can you relate? 😂 Credit: Facebook - Autism Odysseys #autism #autismawareness #autismawarenessmonth #severeautism #severeautismawareness #profoundautism #funny #meme #autismparenting #autismparents #autismmom #autismcommunity #autismlife
4 week post stem cell treatment update: Mood: OSCAR IS SO HAPPY 🥹🫶🏼🤍 - not sure how to accurately describe this category other than mood. Prior to treatment Oscar seemed so upset and frustrated all the time 😔. I’m so happy to report that he is way happier & more bubbly now than he was before. Behaviorally: Oscar has been less hyperactive & seems to be in a regulated state more often than not. Prior to treatement, it seemed like we were wrestling an alligator 24/7 everyday while he desperately tried to fill the never ending sensory needs he would experience. He was constantly running, climbing, stimming, dumping, spitting, etc before treatment. Now it is common for us to see Oscar casually sitting down for meals, watching television, sitting down to play with figurines, etc. Socially: Oscar is a lot more open to being near others. I distinctly remeber last summer when neighborhood kiddos would come jump on our blowup slide, Oscar would scream at the front door beacuse he didn’t want anyone even remotely near his space. It was so heartbreaking but now not only is he allowing others into his space, he’s also showing interest in playing with peers at therapy. Communication: Today (Friday) his tech who is only on his case twice a week & was gone all of last week said shes noticed a huge change in the last week. She said that Oscar randomly says unprompted words to her which is HUGE! Unprompted words / communication is a huge step in being considered verbal. Thank you all who are following along on our journey with @oscar.hamblin 🫶🏼 can’t wait to keep seeing how long this newly found progress continues. 🤍 #stemcells #stemcellsforautism #stemcelltherapy #stemcelltherapyforautism #asd #severeautism
Every day, we entrust our precious child to others. It's not easy—it's a leap of faith. We believe they'll care for our little one with the same love we do. But sometimes, we're let down. 💔 Yet, we keep trusting. Because trust isn't about perfection; it's about believing in the goodness of hearts. We're warriors of silent courage, holding onto hope even when words fail us. 🙏 #samisjourney #autism #nonverbal #nonverbalautism #nonspeaking #learningdisability #severeautism #severelearningdisabilities #autismjourney #autismreality #TrustInOthers #ParentingJourney #SilentStrength #LoveUnspoken #HeartfeltTrust #SometimesWeFall #NeverStopBelieving #family #autismacceptance #autismawareness #son #autismparents #specialneedsparenting #hiddendisability #SpecialNeedsFamily #trust #reality #explore # #instadaily
Safe Place Beds are inflatable safety beds designed just for children with additional needs. Lightweight, compact, and easy to set up, they inflate to a tent shape, and are then strapped on top of a stationary bed. Thick material and wide welds make the bed robust, and a watertight floor makes the bed easy to clean. It also has zipper locks for added security. Get peace of mind that you can have a safe sleeping environment anywhere. Children between 3-13 years with Autism, Angelman Syndrome, Smith Magenis Syndrome, Cerebral Palsy, Epilepsy etc. 30-day satisfaction guarantee. @safeplacebedseu #Autism #angelmanSyndrome #severeautism #nonverbal #downssyndrome #syndromewithoutaname #rarechromo #safeplacebedseu #safeplacebed #autismfamilylife #disabledtravel #autismacceptance #specialneeds #specialneedsparenting #cerebralpalsy #syndrome #medicallycomplex
Calling all special needs moms and medical moms around the world! Come connect with other moms who understand. Situation Mama meets LIVE ONLINE TOMORROW morning at 10am. Comment “YES” and we will send you the zoom link. #specialneeds #specialneedsmom #medicalmom #heartmom #heartbaby #cerebralpalsy #downsyndrome #adhd #severeautism #autism #autismmom #autismfamily #neurodivergent #momcommunity #momsconnect #mom #specialeducation #situationmama
I feel very strongly about this one, friends. The divide needs to end in this community. Autism, on either side of the spectrum, has challenges but we all have very unique and individual stories and circumstances that deserve to be heard. I share about severe, nonverbal autism because that is OUR story. It’s extremely difficult, overwhelming, maddening, heartbreaking and one of the hardest roads one can walk. We didn’t choose it but here we are. So we make the best with our circumstances and share our journey to let you know you aren’t alone. ❤️ and share, my friends. All of our stories deserve to be heard and understood. . . . . #severeautism #nonverbalautism #nonspeaking #autismwarrior #autismmomlife #autismrecovery #autismdiets #autismhealing #autismparents #autismparenting #nonspeakingautism
These questions are okay but I prefer questions you would ask about any kid- what does he like to do? How does he like school/ his program? What is he into right now? #Morethesamethandifferent, #autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence
Posted @withregram • @life_with_severe_autism ❤️❤️❤️ #autism #autismawareness #autismawarenessmonth #severeautism #severeautismawareness #profoundautism #specialneeds #specialneedsparenting #intellectualdisabilities #autismcommunity #autismparents #autismparenting #autismmom #autismacceptance
Autism is a spectrum disorder. “On one end of the spectrum are college-bound kids who have unusual talents and abilities. At the other are kids who are intellectually disabled, nonverbal, and in need of intensive, lifelong support.” Potential supports those on the entire spectrum through three programs: Intensive Behavioral Health Services-Applied Behavior Analysis (IBHS-ABA), Springtime School, and Adult Services. To learn more, visit https://potentialinc.org/services/. Miller, Caroline. "What is Profound Autism" Child Mind Institute. Accessed on April 17, 2024. https://childmind.org/article/what-is-profound-autism/ #autismspectrum #profoundautism #severeautism #supportservices #ASD #ABA #ABAservices #autism #autismcommunity #autismawareness #autismacceptance
Calling all special needs moms and medical moms around the world! Come join us and feel all the feels with moms who understand. Our weekly meetings are ONLINE every Thursday at 10am Pacific Time. Comment “YES” and I will send you the zoom link. See you there! #autism #autismmom #nonverbalautism #severeautism #neurodivergent #mom #orangecountymoms #chocchildrens #specialneeds #specialneedsmom #medicalmom #momcommunity #momsconnect #momsupportingmoms #momsupport #situationmama
💜 I am an epilepsy warrior.💜 Ich hatte an Ostern den Typ Anfall bilaterale Tonisch-Klonisch. Das ist der typische Krampfanfall. Bis jetzt hatte ich keinen großen Anfall mehr seit ich das neue Medikament habe. Ich bekomme einen Termin beim Epileptologen (den kenne ich auch, und Biene war auch bei). Ich hoffe die Anfälle werden jetzt besser... ____________ #tonischklonischeranfall #lennoxgastautsyndrome #krampfanfälle #therapieresistenteepilepsie #drugresistantepilepsy #refractoryepilepsy #intractableepilepsy #seizuredisorder #epilepsyawareness #epilepsy #epilepsie #anfälle #seizurewarrior #seizuressuck #seizurealertdog #assistenzhund #nonspeaking #nonspeakingautism #nonverbal #nonverbalautism #severeepilepsy #severeautism #frühkindlicherautismus #level3autism #gtubelife #gtube #intellectualdisabilities #geistigebehinderung #epilepsiewarnhund #anfallswarnhund
#autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabled
Is autism linear? Is there such a thing as "severe" or "mild" autism? Is it more a collection of linear spectra? Scroll through to see my take on it. What do you think? Let me know your opinion in the comments. Am I talking a load of rubbish? Do you agree? If you're new to my content, my name is Tobias, and I'm An Autie Boy. I have Autism Spectrum Condition and very likely Attention Deficit Hyperactivity Disorder. I'm currently on a 2.5-year waiting list for an autism assessment, and will be sharing why I self-diagnosed, what my experience of autism and the challenges of being undiagnosed are, my reactions to misconceptions about autism, and how my logical brain sees things in daily life. Please follow me, like, comment, share and save the post! They're all free ways to help me! Go to TobiasBradley.com to find out more and go to DestinationsByStephen.com to book your next getaway, vacation, experience, and to find links to essential travel services. Please don't repost or use my content without prior permission from me. All content © Tobias W. N. Bradley. #autistic #actuallyautistic #autism #neurodiversity #neurodivergent #autismacceptance #autismawareness #asd #asdawareness #asdacceptance #autisminfo #autisminformation #mildautismspectrum #severeautism #autismspectrum #onthespectrum #opinion
My son has hypontonia and low muscle tone and he disnt let it stop him so proud of him autism is not a limitiation he can do this and allot more he loves his alejandro hes been a awesome piece to his life he was a physical therapist before he came to work with my son #severeautism #severeautismawareness #severeautismx3 #severeautismparents #severlyautistic #level3autism #level2au #pandassyndrome #pandasawareness #pans #lyme #lymedisease #lymeawareness #pandasucks #pandaspans
#somedayssuck 😞😪... but my family is still there❣️... __________________ #sadsongs #sad #autismfamily #severeautism #level3autism #nonverbal #nonverbalautism #nonspeaking #nonspeakingautism #gtube #cerebralpalsy #syngap1 #hospital #childrenshospital #klinik #krankenhaus #frühkindlicherautismus #geistigebehinderung #intellectualdisabilities #sensoryprocessingdisorder #adhd #adhsbeimädchen #autismusspektrumstörung #autismusbeimädchen #infantilezerebralparese #autismoinfantil #dysphagia #dysphagie #epilepsie
Simon & Ezra's 1st Time Skiing! Someone wrecked! #mildautism #severeautism youtube.com/@7Aheadfamily
William has always loved reading and we still go to Barnes & Noble on a regular basis. Since he was little he has always acted out the parts. If a character gives a hug or kiss he gives me one - lucky mom that I am. He is acting out a character pouting here. #actor #autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook
Without at-home carers, this country would collapse. FACT. Do the Government look after us? Do they heck. . #carer #iamacarer #autism #autismmum #nonverbal #asd #asc #sen #specialneeds #severeautism #level3autism #differentnotless #disability #disabledkids #additionalneeds #toryscum #behindcloseddoors #athomecarers
#mylittlebigfella and the #rugrats spending the day together, as they don't spend as much time together as they used too! #sensession #gravityhull #asd #severeautism #gdd #dayout trampolines #fun #laughter #friends
Ein neuer Lebensabschnitt❣️ Seit gestern habe ich eine Picc-line. Alle Ärzte die mich behandeln (und natürlich auch mein gesetzlicher Betreuer) haben zugestimmt. Es ging einfach nicht mehr anders. Mein Port ist derzeit nicht verfügbar und kann auch nicht erneuert werden (durch eine Nierenerkrankung) es wäre zu hoch die Infektionsgefahr. Mal sehen wie es wird in der Zukunft... _____________________ #piccline #gtubelife #gtube #nonspeaking #nonspeakingautism #nonverbal #nonverbalautism #neurodivergent #sensoryprocessingdisorder #adhd #krankenhaus #klinik #kinderklinik #frühkindlicherautismus #level3autism #severeautism #epilepsie #epilepsyfighter #lennoxgastautsyndrome #intractableepilepsy #refractoryepilepsy #drugresistantepilepsy #geistigebehinderung #intellectualdisabilities #syngap1 #syngap1research #syngap1awareness
Autism acceptance and awareness is both needed. Both because autism isn’t known in other countries, and more. You need to be aware of these people to accept them. That’s just how the world works. #autismawarenessmonth #autismawareness #autismacceptance #autismacceptancemonth #highsupportneeds #mediumsupportneeds #nonverbal #nonspeaking #intellectualdisability #severeautism
Level 3 autistic people are everywhere. On the internet, off the internet, in group homes, assisted living, residential, institutions, and so on. There’s even some here on instagram! Find them. Talk to them. Interact with their posts. I am not level 3 autistic, but I will continue to support them. Edit: in the last slide, I meant instagram and Tumblr. #autism #autismawareness #autismacceptance #highsupportneeds #mediumsupportneeds #level3autism #severeautism #profoundautism #fyp #fypシ #nonspeaking #nonverbal
Autism has a look for many autistic people, especially those who are low masking and higher support needs. We can’t erase them. We can’t say that autism doesn’t have a look. I look autistic. I am a visibly autistic person, and I’m ok with that. We can’t ignore the ableism we face, how society treats us, and how our world works. Stop trying to erase visibly autistic people. We are here. #lowmaskingautism #lowmasking #autism #autismawareness #highersupportneeds #highsupportneeds #mediumsupportneeds #visiblyautistic #severeautism #profoundautism #autismacceptance
❌There are no objective scales to determine your level of autism. Yes, there are diagnoses from the DSM V (Diagnostic and Statistical Manual of Mental Disorders) Where autism is categorized by severity... but how accurate is this?🤔 🗣️ In our latest article, Abraham Ros from @asperger_y_mi_yo reflects on how this diagnosis of "mild autism" often ends up being more painful than severe autism because they receive less attention or because they are expected to perform better. 🌟What Abraham proposes is super interesting and invites reflection. Thank you for your constant contribution to the community! 🙌🏼Read the full article on our website divershines.com #mildautism #severeautism #dsmv #autism #autismsupport
Guess who is 90 pounds the boy who was faliure to thrive and was gonna be a feeding tube child and we said no to doctors and under the growth chart for weight height and picky eater and now eating better then ever and hes wearing 14-16 in clothes now and hes 14 years old 💙🙆♀️🤦♀️ what you see if a very healthy boy growing up great #severeautism #severeautismawareness #severeautismx3 #severeautismparents #severlyautistic #level3autism #level2au #pandassyndrome #pandasawareness #pans #lyme #lymedisease #lymeawareness #pandasucks #pandaspans
After another battle to secure a sedation dental appointment, Neil had his IV sedation dental appointment this morning. Getting coverage for sedation for adults with Intellectual and Developmental Disabilities who have the dual insurance, Medicare/Medicaid is next to impossible. We had an appointment set up, but it was canceled because the anesthesia group pulled out. We decided to go with a private dentist who contracts with an anesthesia group. They did a fantastic job! Thank you Jesus!🙏🏼🦷💙 Neil had to have a back molar pulled because of non-restorable decay and it was getting dangerously close to his nerve. It definitely was the best decision to pull it because of his history of aggressive behaviors with tooth pain. I’m having a VERY difficult time celebrating Autism acceptance and awareness month when it is a constant battle for even basic services to keep our kids healthy and safe. Families of children with severe autism grow up to be adults with severe autism. We need support and services for our kids!! So many adults with I/DD suffer needlessly because they can’t get coverage for sedation dental care, and they can’t afford to pay out of pocket. It should not be this damn hard every time we need to have a service for our kids!! 😥🧩💙🦷 #ilovemysonwithautism #adultservices #sedationdentalservices #severeautism #nonverbalautism #advocatelikeamother #sedationdentaltaskforce
To all my warrior moms and caregivers, I see you. I am you. ❤️ and share with an Autism mom who needs this today. . . . . #asdsupport #asdcommunity #autismparenting #specialneedssupport #severeautism #nonverbalautism #nonspeaking #spellers #autismwarriors #autismwarriormom #autismmoms #caregiversupport
April is Autism Acceptance Month. Remember to check out my podcast merch page listed in my links, to get your mugs and pillows with the podcast logo! You can check my FB page for a deeply discounted (FREE) tracking unit from AngelSense for the month of April. I haven’t yet figured out how to share it to this post 🤷🏻♀️ Also, I just dropped a new episode 👏🏻👏🏻 Please follow me here and share my posts/reels/stories to help me grow my followers🙏🏻🙏🏻 #severeautism #podcasters #caregiversupport #parentingsevereautism @angelsensegps
My son is verbal but not conversational. A lot of what he says is scripted. If someone asks “how are you?” he knows the appropriate answer is “fine how are you?”. But he has a hard time putting words together to make sentences, though we’ve been practicing for years. Today I asked him “what am I doing?” His answer - “ Mom is nailing the polish.” So close…..🤣 #autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabled
Heute war ein Tag mit gemischten Gefühlen 📈📉📈... Erst einmal zu den positiven Dingen: Meine Tante war da. Wir waren 3std lang draußen und haben den Silberreiher gesehen. Im Teich waren auch Frösche und das Wetter war der Hammer. Wir haben uns verschiedene Arten der Bäume angesehen. Wir haben schöne Tiere gesehen. Und morgen wenn alles gut geht kommt Biene mit meiner Tante nochmal und meine Mama schließlich auch dann noch 💟. Die negativen: Das Medikament geht immer mehr raus . Das spüre ich natürlich im Körper. Ich habe einen schweren Harnwegsinfekt. Etwas wurde bei mir im Ultraschall entdeckt. Ich hatte ein Meltdown (wegen Schmerzen und Überreizung). Mir ist oft langweilig. Und die Therapien sind für mich anstrengend. (und ja' ich weiß es ist kein Urlaub aber es kommt dann einfach alles zusammen) ____________________ #chronicillnessawareness #childrenshospital #kinderklinik #krankenhaus #gtube #assistenzhund #epilepsie #nonspeaking #nonspeakingautism #nonverbal #nonverbalautism #lennoxgastautsyndrome #syngap1 #syngap1 #drugresistantepilepsy #therapieresistenteepilepsie #intractableepilepsy #refractoryepilepsy #severeautism #level3autism #frühkindlicherautismus #autismusspektrumstörung #adhs #adhskinder #adhs #geistigebehinderung #unterstützekommunikation #aacdevice #augmentativeandalternativecommunication #autismandadhd #feedingtube
Heres a back story to my son days in getting hair cuts i had to straddle him down and at times took 2 to 3 people help me and his aba therapists aswell but now he is 14 hair cuts looks like this he has come very long way dont stop believing #severeautism #severeautismawareness #severeautismx3 #severeautismparents #severlyautistic #level3autism #level2au #pandassyndrome #pandasawareness #pans #lyme #lymedisease #lymeawareness #pandasucks #pandaspans
O Allah, our hearts reach out to You, filled with love for all children with disabilities, especially those whose voices are unheard. Wrap them in Your warmth, let Your light guide their steps, and fill their silent world with Your boundless peace. Grant the parents of these special soul, the mothers and fathers who navigate life's storms with dedicated devotion, a pillar of strength. May they find solace in Your presence, patience in each trial, and joy in their child's every achievement. Bless these families with a network of support. Let them feel the embrace of a community that sees not the disability, but the heart, the spirit, and the potential within. Teach us all to listen with our hearts to the silent stories of these children. In their eyes, we glimpse a world of wisdom; in their smiles, a universe of hope. Remind us that in their unique challenges lie extraordinary lessons of courage and love. Bestow upon these children a language beyond words, a connection that speaks through the touch of a hand, the sparkle of an eye, a language that sings of their inner beauty and strength. And to the special needs parents, those guardians of gentle warriors, shower them with Your grace. May they feel Your comforting hand in moments of despair, Your guiding light in times of darkness, and the shared joy of a community that stands with them. For in the quiet resilience of these children and their families, we find the purest expressions of Your love. They teach us the true meaning of gratitude, the power of a hopeful spirit, and the infinite value of a loving heart. Bless them, O Allah, with Your protective grace, and let Your mercy flow through their lives like a tranquil stream. Ameen. ❤️ #samisjourney #autism #nonspeaking #nonverbalautism #severeautism #severelearningdisabilities # #autismjourney #dua #lasttendayaoframadhan #Ramadan #lastjummahoframadan #SpecialNeedsFamily #ChildrenWithDisabilities #ParentingWithLove #EmpathyInAction #InclusiveCommunity #StrengthInDifferences #SupportingEachOther #UniqueAbilities #HeartfeltConnections #JoyfulMoments #CourageousHearts #EmbracingDiversity #EmpoweringParents #InspirationalChildren #muslimmama
#autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabled
I shared this last year and it still applies💙 The moments I see him smile it’s like a rainbow after a thunderstorm. He has the most contagious laugh. I love seeing the things he enjoys. Other times autism feels like a nightmare I can’t wake up from. I dream of a life where he isn’t trapped in his body, where he plays and has friends and plays sports and goes to school. I think of the life we could provide for him, the things he’d enjoy and the memories we’d make if autism wasn’t our reality. At the end of the day I would still choose this thunder over anyone else’s sunshine. I will be his voice until my last breath and do anything to help him. My angel, my darling, my star - my love will find you wherever you are. In a hundred lifetimes, in a hundred worlds, in any version of reality, I’d find you and I’d choose you. #nooneistalkingaboutthis #autism #autismawareness #autismacceptance #autismreality #autismfamily #autismlife #autismwarrior #autismmom #nonverbal #severeautism #lowfunctioning #highsupport #abatherapy #thunder #nightmare #livinganightmare #idchooseyou #myangel #motherson #memories #lightitupblue #advocate #autismadvocate #advocatinglikeamother #momlife #boymom #tellyourstory #speakyourtruth #inclusion
#autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabledartist
Tío Héctor birthday party 🤘rock style 🎸 #autismrocks #autismfamily #rockmusic #inclusion #autismafter21 #outandabout #severeautism
🎉🎈Happy 1️⃣2️⃣th Birthday My Darling Sami! 🎈🎉 As the calendar turned to the 30th of March, we found ourselves celebrating a milestone that filled our hearts with joy. It was on this day, twelve years ago, that our beautiful boy Sami came into our lives, bringing with him a light that has only grown brighter with each passing year. Each day, I watch in awe as you grow, your strength and spirit shine through without a word. This journey isn't easy, the path sometimes is unkind, but the love I have for you is fierce and unwavering. Sami, you may not speak, but your smile speaks volumes. Your laughter is the music that fills our home, and your contentment is my life's purpose. You've shown me the depth of courage and the power of hope and you've taught me the true meaning of strength and perseverance. Sami, you are my heart, my soul, and the very essence of my life, my inspiration in every breath. Despite the struggles, you make every moment worthwhile. Your presence gives meaning to my days and fills them with laughter and love. I am ever so proud of you, and I promise to be by your side, always and forever. Here's to celebrating you, My Beautiful Sami, your unique and beautiful life. May your days be filled with joy, love, and endless possibilities. 💙 Love Mummy❤️ #samisjourney #UnconditionalLove #ProudMom #SamiTurns12 #autism #severeautism #learningdisability #nonverbal #nonspeaking #nonverbalautism #severelearningdisabilities #birthday #12thbirthday #birthdayboy #marchbaby #Indian #birthdaycelebrations #autism #autismreality #autismlife #motherandson #AutismAwareness #autismacceptance #inclusionmatters #babyboy #son #muslimfamily #happiness #joy #livelife
#autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabled
Being an autism sibling can be challenging. There’s nothing “normal” about our home. We have therapists, caregivers, aunts, uncles, and friends in and out all day every day. When Asher has a hard time going to sleep, the girls have to go to bed with blasting music in the other room so that Asher can regulate. When he gets up in the night, they often hear that, too. They rarely get a special bedtime story or tuck in because Asher requires our full attention. When we need help getting a diaper or setting up the bath, the girls are quick to get everything. When we are in the middle of listening to their stories, they don’t always have our full attention because one eye must be on their brother for the sake of his safety. The house is loud—all the time. Multiple TVs run with different songs or shows to help keep Asher regulated most days. And that’s in addition to the blasting songs we often play on Alexa to keep Asher happy. The girls are used to helping clean up all the oranges and pears that end up on the floor each night. Or putting the sofa back together each time their brother takes it apart and piles all the cushions on himself. They know that big family trips are rare for us, and they also know that spontaneous family outings are few and far between. And with all the differences and challenges that we face as an autism family, I am continuously blown away by the fierce love and loyalty these siblings have for each other. Everyday these girls want to chase and tickle their brother. And he LOVES it. When he’s struggling, they try all the things to comfort him. When he seems frustrated, they try to talk for him. When he does something new out of the blue like wave hello, the girls erupt with joy and cheer for their brother. And when he sits and sad cries occasionally, they sit on each side of him and hold his hands. I never would have picked an autism family life for our girls. But the love, acceptance, compassion, and joy that our Asher brings to our family makes me especially grateful for the exact life Gd gave all of us with our special boy. #autism #autismawareness #autismsiblings #autismfamily #severeautism
For #autismacceptanceday my wish is that people remember that the spectrum is freakin huge and it can sometimes be a very lonely place for people with "high supports" or "high needs" autism. The people with lower supports have a lot to say and there are a lot of them, and sometimes it can feel like nonspeakers are on mute trying to get "seen." Also some families live 24/7 with behaviors- such as aggression, or self injury, sleep disturbances, fecal smearing, PICA and more. The behaviors a person with autism has are not a direct result of how hard they or their parents or providers have worked to get them help. Sometimes it just IS how it IS and therapies and supports aren't successful. Be kind. #autismawareness #autismacceptance #autism #severeautism #profoundautism #nonspeakingautism #proudautismmom #specialneedsmom #worldautismday #worldautismacceptanceday
We’ve reached the point where Charlie’s autism is no longer an invisible disability. It’s reasonable for anyone who sees a 10 year-old at the grocery store hysterically jumping, squealing, and flapping his hands, to stare. I don’t blame them — it’s human. A couple of times, in response to Charlie’s intense stimming, I heard a little kid ask their parents what was wrong with Charlie or why he was doing that. Every single time, the parent was embarrassed and told their child not to be rude. I don’t find it rude. And you don’t have to be embarrassed if your child has questions. Normalize it. Teach them about stimming. Explain that some children show their feelings differently. Don’t make it awkward! Non-harmful stimming shouldn’t be discouraged. We should strive to teach more kids about the different types of expression they’ll encounter in the world 💙
Happy world autism awareness day💟 #frühkindlicherautismus #nonspeaking #gtube #autismusspektrumstörung #autisticgirlsofinstagram #severeautismawareness #severeautism #nonverbal #nonverbalautism #nonspeakingautism #intellectualdisabilities #syngap1 #syngap1awareness #lennoxgastautsyndrome #lennoxgastautsyndromewarrior
Do me a favor and please stop saying we have enough awareness. Until you have been ignored, blamed or disregarded by your pediatrician when you bring up delays and milestones not being met Until you’re worried about bringing your child in public or to the park or museum Until you’re worried about putting your child into school even with an iep or 504 Until you’ve had to call every single medical provider, specialist and dentist to ask them if they’re experienced with autistic children before an appointment Until you’ve had to reschedule appointments because said medical providers are not experienced to work with your kid Until you’ve had to deny bloodwork or scans that could help because there’s no support for your child Until you’ve been denied speech services and communication devices to your non verbal child because “maybe they’ll talk later” Until you’ve cried that you can never take your child on an airplane or on a vacation Until you’ve been afraid of getting into a car accident because firefighters, emts and police officers probably wouldn’t know what to do with your kid in the event of an emergency Until you’ve feared your child not responding to verbal commands from an officer and it becoming a dangerous situation Until we can stop putting literal labels on our kids seatbelts and windows to make YOU aware of them Until you’ve prayed your child never breaks a bone or needs stitches because you’re scared to ever take them to the hospital because they probably won’t understand him Until you’ve picked your child up from school abused from the adults that were supposed to protect him and teach him with stories changing and adults being protected Until your biggest fear in life is you dying before your child because no one could physically, mentally, properly, and safely care for your child without you Please stop saying we have enough awareness. We absolutely do not. People are pushing for acceptance and inclusion which is beautiful but to do those things we need PROPER awareness which as a society we simply do not have. Continued in comments
It’s World Autism Awareness Day! My son Gunner is 12 years old. He has severe, non-verbal autism. He is affectionate, sensitive, sweet, and he makes me laugh every day. I love him so much and I dream of a world where he is treated with respect and kindness. 💙💙💙 #autism #autismawareness #worldautismawarenessday #autismawarenessmonth #severeautism #severeautismawareness #profoundautism #specialneedsparenting #intellectualdisabilities #autismcommunity #autismparents #autismparenting #autismmom #advocate #kindness #rword
Today is World Autism Awareness Day. So much has changed since we started our journey on this path called Autism. And one thing that the world needs to understand is there are so many different faces to that one word. Many different needs. Many different traits. So with awareness we need acceptance. We also need proper care and resources for those who NEED it. Profound Autism like DJ’s is a lifetime of needing care and help. We as a society need to do better. #AutismAwareness #AutismAcceptance #Autism #ProfoundAutism #SevereAutism
Today is World Autism Awareness Day. So much has changed since we started our journey on this path called Autism. And one thing that the world needs to understand is there are so many different faces to that one word. Many different needs. Many different traits. So with awareness we need acceptance. We also need proper care and resources for those who NEED it. Profound Autism like DJ’s is a lifetime of needing care and help. We as a society need to do better. #AutismAwareness #AutismAcceptance #Autism #ProfoundAutism #SevereAutism
#autismawareness #autism #autismacceptance #severeautism #autismmom #autismfamily #autismmomslife #autismmommy #asd #specialneeds #autismlife #autistic #autismsupport #autismspectrum #autismo #autismspectrumdisorder #adhd #autismparents #autismdad #disability #differentnotless #disabled #neurodiversity #autismadvocate #inclusion #autismcommunity #autismparent #autismbook #presumecompetence #differentlyabled
Sushi 🍱 dinner with family #familytime #autismfamily #myautism #sushi #sushitime🍣 #severeautism #autismafter21 #autismblogs
Starting off Autism Awareness Month! 😁 #autism #autismawareness #autismawarenessmonth #severeautism #severeautismawareness #profoundsutism #nonverbal #nonverbalautism #autismcommunity #autismparents #autismparenting
It hasn’t been an easy journey to learn as a mother of letting go and letting your young adult child experience this big old world that can be mean sometimes,but also be just as nice, it’s just finding your place in it. I knew I had to for Cayden because I knew my own s selfish feelings of wanting to keep Cayden in a bubble and safe,well he wouldn’t ever blossom and grow. I am so blessed to have been given the chance to watch Cayden do things I never thought he would do and watching him explore his community with others, his village. I will always be is number one advocate and making sure he is being taken care of but I know in my heart if I left this world tomorrow he’s going to make it without me, isn’t that what every mom wants to feel. Give people the chance to love your child, take a step back with eyes open and just watch. The only way for people to know how to help our loved ones is to let them. Happy Easter y’all! #severeautism #grouphomelife #specialneedsmom
Happy Easter! ✝️🐣 #autism #autismacceptance #autismawareness #profoundautism #severeautism #level3autism #nonverbal #autismservicedog #servicedog #servicedogsofinstagram #labradoodle #labradoodlesofinstagram #easter #happyeaster