Hi, I’m Skylar. This is me, some days are good, most days are bad. I’ve struggled for years with my health. At times, I feel like it’s consumed me. Sometimes, I don’t even feel human. I’ve felt alone and unseen, but I’ve also grown and am lucky enough to have lots of supportive people in my life. I used to be a social butterfly and worked in customer service. At my core, I know I want to help people. If I can make even one person feel understood, that would make me so happy. I have been diagnosed with Crohn’s Disease and Endometriosis. I am working with a urologist and waiting on referrals to other specialists. There are so many shared experiences among those with any physical or mental health issues. Comparison is the thief of joy, but community and relatability can strengthen us. Even if two people are diagnosed with the same condition, presenting the same way, every journey is different. Your pain is valid, your experiences are real, and I believe you. I hope you have the best day you possibly can. Some days are good, most days are bad, this is me. #chronicillness #chronicpain #autoimmune #spoonie #crohns #Endometriosis #bladderpain #me #mood #portrait #skeleton #altgirl
I wish I knew this 25 years ago. After spending a lifetime of: ✨ hating my body ✨ manipulating it to try and look different ✨ changing who I was to be someone different ✨ extreme dieting ✨ over-exercising ✨ and punishing myself when my body wouldn't respond the way I wanted it to It finally dawned on me: the body only has two modes of being: fight/flight, or rest and digest. And hate, self-loathing, and shame live in the fight or flight state. Change, evolution, love, and healing cannot happen in the fight or flight state. For years, I was stuck in a cycle that ultimately resulted in a huge health crash. So now I'm here to share the message AND the tools to help you move from fight or flight to rest and digest so your body can do what it needs to do, which is: 💫 digest food 💫 get all the nutrients it needs 💫 release anger 💫 grow stronger, healthier cells 💫 live in a calm and collected state of being 💫 feel like a good and safe home to live in Are you ready to get move out of barely surviving and into thriving? Comment APP and we'll send you a link. Sending you big ol' hugs if this resonates with you. 🧡 -Shawna #StressRelief #MindBodyConnection #SomaticTools #selfcare #selflovetips #healingabodyyouhate #somatichealing #somatictherapy #healthcoach #chronicfatigue #chronicillness #autoimmunewarrior #lupuswarrior #psoriaticarthritis #depressionhelp #healingjourney #bodypositivity #smalldailyhabits #polyvagaltheory #healingdepression #healingjourney #bodyacceptance #selflovejourney #lupusfighter #rheumatoidarthritiswarrior #hashimotosdisease
Please please can everyone fill out the govt consultation for fit notes https://www.gov.uk/government/calls-for-evidence/fit-note-reform-call-for-evidence my answers are here in the photos. The govt is just chipping away, getting rid of human rights, getting rid of the nhs, getting rid of benefits - refusing to tackle the housing crisis the financial crisis- literally anything. Having just had me PIP atos assessment by a completely unqualified 20 year old who kept repeating “again I have to ask you this” and who made every effort to completely ignore the existence of twenty years worth of consultant evidence because she is incentivised to cancel claims wherever possible (even the London center was set up to make most fail with no parking, nowhere near public transport, no signage on the buildings, no dropped curbs, not accessible in any way - and cameras filming you the entire time)…. These people care about their jobs, their pay and their bonus they do not care about the person and the disabled person is treated as barely human. #disabled #disability #disabilityrights #benefits #pip #fitnotes #mentalhealth #chronicillness #chronicpain
I have a double World Champion for a brother..🤯🥹 I have had so many feelings on this trip and then from last night. I have being crying on and off since last night. My heart is so full of love. I am so grateful and thankful to have had this opportunity to get to watch my brother finish his final year of All Star Cheer. He did himself good, taking a gold win for the last time🥹 ♥️Thank you so much to all who donated, shared my story, or just being supportive and kind! I had the best time here and I am so glad I was able to get to be with my brother while he is on his amazing journey. I love you all so much💜💜 #fnd #tourettessyndrome #chronicillness #chronicpain #travel #thankyou #support #disability #worldchampion #babewithamobilityaid #soproud #cheer #journeyofillnessme
Which of these emotional roots to adrenal fatigue resonates the most for you? What are you looking to shift? If you deal with adrenal fatigue, utilizing metaphysical healing and emotional release work is TRANSFORMATIVE for seeing resolve in symptoms. Comment ADRENALS to get my comprehensive adrenal support guide to address physical AND emotional support for FREE ✨✨ • • Holistic healing Metaphysical healing Mind body spirit Health and Wellness Feminine Release Transform Lifestyle Chronic Illness Adrenal Fatigue
Do you take time for self care? Self-care has always been a struggle for me. I gravitate towards helping others and putting my needs on the back burner. I have learned that you cannot be the best version of yourself if you don't take care of yourself! What can you do today to take care of yourself? #relax #wholefoods #nutritionfacts #selfcarefirst #selfcaretips #food #positivemindset #motivationmonday #anxiety #anxietytips #mindset #selfcare #brainfog #empowered #sleep #chronicillness #smile #smilemore #smilechallenge #depression #mentalhealth #mentalhealthmatters #mentalhealthtips #emotions #emotionalhealth #emotionsupport
"Stell dich nicht so an", "Ich hab auch manchmal Kopfschmerzen" - viele Betroffene von Migräne und anderen "unsichtbaren" Erkrankungen kennen solche Sprüche. 😢 Habt ihr auch solche Erfahrungen gemacht? Seit 15 Jahren lebt @phia_quantius mit schwerer #Migräne. Sie wünscht sich mehr Verständnis für die Erkrankten. ➡️ Die ganze Podcast-Folge könnt ihr hier anhören: https://kurz.sr.de/Schicksal! 🤗 Foto: Maria Westkämper #chronicillness #chronicpain #emetophobie #migränespritze #bombenkopf #migränemitaura
Hope you are having a good start of this new week? Today I am taking some rest because that last weeks were busy. So it's time to hit the breaks and listen to my body today. #myhome #thrifted #interiorstyling #interiordesign #interior #thrifthaul #vintagedecor #vintage #thirftshop #thrifting #stainlesssteel #plantsmakepeoplehappy #plantsofinstagram #houseplants #houseplantsofinstagram #chronicillness
Took this morning off work and got a nice run in with the sun out. It was hot but I showed up. Very rarely do I get to run without a place to be after. Today I was able to do the run, take a cooldown walk, talk to neighbors and pet dogs. It was amazing. #showup #msrelay2024 #msruntheus #orangearmy #multiplesclerosis #mswarrior #chronicillness #msfighter #fundraiser #mssociety #ms #mssupport #ultrarunner #ultrarunning #running #runner
A new video drops tomorrow! Visit our website tomorrow to learn more about SJ's story and how she has navigated learning to advocate for herself as a patient! (link in bio) . . . #chronicallyinformed #chronicillness #chronicallyill #health #healthcare
As an Ehlers-Danlos zebra, I have experienced what it feels like to be a medical mystery. It didn't always encourage my sparkle. 🫏 I experienced darkness and self-doubt as medical teams ignored and misjudged me. Now as a healer, I embrace my unique gifts and physical challenges. ✨ This weekend, in honor of Ehlers-Danlos and Hypermobility Awareness Month, I offer a FREE Virtual Circle for all Chronic Thrivers who feel alone and discouraged. Join our growing community for support, education, and empowerment. 💚 @ehlers.danlos Hypermobility and Ehlers-Danlos Clinic @fasciainstitute @fox8nola @insideneworleans #ehlersdanlos #hypermobility #zebra #ehlersdanlosawarnessmonth #ehlersdanlosawareness #chronicillness #chronicpain #mom #physician #womeninmedicine #integrativemedicine #insideneworleans #localfirst
It's infusion day!! 6 weeks sure goes by fast!! Grateful for this as I was feeling it. I do a good job not showing it uh?? 🤷♀️🥰 Gotta just keep moving everyday!! 💯💯 #chronicillness #invisibleillness #ulcerativecolitis
Never forget! ☝🏼🫶🏼 - - - - - #chronicillness #chronicallyill #chronicallyawesome #chronicallyfabulous #chronicillnesswarrior #chronicillnesswarriors #chroniclife #chronicillnesssupport #chronicillnessfighter #invisisibleillness #spoonie #spoonielife #spoonies #spooniesupport #youareenough #youarenotalone #youarebrave #youareunique #youareloved #youmatter #youarestrong #enfermedadcronica
Yesterday was a rough one. 🚑 🚨Fainted three times, hitting my head on the floor twice. Usually, Taylor helps me out of my my fainting episodes, but this time, I was unresponsive and not breathing well. 911 had to be called. In the ER, they actually listened and took great care of me—IV fluids, meds, EKG, and Head CT. Turns out, it’s a concussion. Living with POTS and EDS is tough, especially when managing chronic illnesses becomes a constant ER visit cycle. Frustrated doesn’t even begin to describe it. I need a better treatment plan and doctors who truly listen and work with me as a team. #chronicillness #pots #eds #ervisitagain
Hopefully something on this list can help bring ease and a feeling of comfort to your day. Read more 👉 https://lttr.ai/ASALZ #Disability #InvisibleIllness #ChronicIllness
We often get asked if it’s worth raising awareness on social media and as you can see more and more are using the internet. Even if it just reached one person it would be worth it. Awareness saves lives. Our Facebook support groups have over 20k members and our awareness accounts/pages help thousands. Many message, phone and email for one to one help so without this many more would be struggling alone. Help us reach many more by sharing our infographics on our grid. Like 💜 Share 💜Save #awareness #awarenesssaveslives #socialmedia #internet #raiseawareness #cancer #autoimmune #chronicillness #lichensclerosus #menopause #vulvalcancer #vulvarcancer #vulva #checkyourvulva #research #support #supportgroup #lichensclerosusnetwork #strongertogether #fyp #fy #instagram #help #hope
As some of you may already know, I have accepted a new job that I will start full time in August but am currently consulting for a few hours a week. I have decided to take a break from teaching, maybe forever, maybe not, but definitely for now. I am working for an EdTech company, where I will be in charge of content writing. In other words, I get to write copy directly to teachers for their marketing department. I have a lot to say about why I am leaving teaching, but for now I am going to talk about why I am switching to remote work. There is so much to process, leaving a career I have been so passionate about. Spoiler alert, it has nothing to do with the ability to travel, since I already do that more than enough. Ever since I was diagnosed with cancer, I have felt that teaching has become more of a challenge for me. Mostly because I have no energy outside of work to do anything for myself. The fatigue is real. And this makes it harder to not resent work, and to continue to feel the passion for it anymore. I was thinking about some of the reasons why remote work is something that I need for the current state I am in, as a cancer survivor, and how it may relate to others out there. I know I am a few years out of active treatment now, but that doesn’t mean it still doesn’t affect me every day. If you can relate, I am sorry. But I also hope that you are able to find a remote job that works for you, so you can combat fatigue, feel comfortable, or just be able to go to all your appointments /•/
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The British mind could never comprehend this Video Credit: @trusted.finance #nmo #autoimmunedisease #antibodyinfusion #nmosd #chronicillness #neuromyelitisoptica #chronicallyawesome #expensive #breakingbad #neuromyelitisopticaspectrumdisorder #chronicallyfabulous #sail #awolnation #freehealthcare #unitedstates #unitedkingdom #healthcare #money #priorities #baby #trex
Happy Monday everyone. I have been going over in my mind how many times I posted about my chronic illness the last week or so, and I want to apologize. I sometimes use this forum to vent because I have to get out the frustration I feel. Since it seems to be something that people don’t understand, I am officially going into my quiet era. I can’t keep trying to explain what it is like to live with something people don’t or won’t try to understand. Life is fleeting and I have to just keep going. I will try to refrain from posting my frustrations about living with a chronic illness. “Chronic illness, you don’t get it until you get it”. I hope everyone has a wonderful Monday and blessed and fulfilling week. Love and light. #dermatomyositis #chronicillness #invisibleillness #raredisease #tiredofexplaining #quietphase #educateyourself
Some things doctor said to me before being diagnosed with stage 3 endometriosis😅 #endometriosis #chronicillness #adeno #adenomyosis #endowarrior #endo #endometriosisawareness #pmdd #endowarrior #menstrualhealth #pcos #chronicpain
Ovulation = hell At least the sun is glorious today 🐈🌞🐈⬛ #chronicpain #ibs #ivf #freesanitaryproducts #cats #anaemia #costocondritis #infertility #endometriosis #endo #chronicillness #ivf #ovulationpain #embryoloss #pelvicpain #backpain #1in10 #ovariancyst #genderhealthgap #anxiety
Kisses my loves 💋💋 #foreverstrong #disabledlife #hairgrowth #chronicillness #degenerativediscdisease #babewithamobilityaid #surgeryscars #pacemaker #scifilover #spinalfusion #cervicalfusion #backsurgery #disabled #fibromyalgia #ofbabe #spoonielife #blonde #yoga #staystrong #laminectomy #sleepy #youcanheal #chronicpain #of #sunshine #grounding #loveyourself #curlyhair #healing
Are you having trouble sleeping? Let's talk Insomnia. Insomnia is a sleep disorder in which a person has difficulty falling or staying asleep. As many as two-thirds of adults live with the symptoms of insomnia Symptoms of Insomnia: To be diagnosed with insomnia, a person must have both nighttime and daytime symptoms. 🌚Difficulty falling asleep 🌚Difficulty staying asleep through the night 🌚Waking up too early ☀️ Daytime sleepiness ☀️ Fatigue ☀️ Diminished motivation ☀️ Irritability or other mood changes ☀️ Difficulty concentrating, remembering, or paying attention ☀️ Worrying about sleep loss Click the link in bio to learn more about how insomnia can affect you. #insomnia #anxiety #sleep #depression #mentalhealth #wellness #tired #diabetes #chronicillness #healthylifestyle #sleepwell #ptsd #sleepless #relax #stressrelief #cantsleep
Thanks to the cloning of the recombinant human factor VIII gene, its production became possible. 🧬 Years later (1990) two pharma companies obtained the license to produce the recombinant factor to treat Hemophilia A. 🩸 Do you know any other Bleeding Disorders facts? Share them with us! #Microhealth #HemoFacts #Hemophilia #Haemophilia #HemophiliaAwareness #VonWillebrand #VonWillebrandDisease #BleedingDisorder #BleedingDisorders #DigitalHematology #Hematology #DigitalHealth #Healthcare #RareDisease #ChronicIllness
Anderen geht es noch viel schlechter. Andere leiden unter dem, was ich fühle nicht so. Andere schaffen das ja auch… Nix da! Was du fühlst ist echt. Wenn es für dich schlimm ist, dann ist das die Wahrheit. #migräne #chronicillness #selfcare #selflove #allfeelingsarevalid
MANTRA MONDAY 🌙 “My health waits for no one.” 💪🏽 Your health first, everything else second. No excuses. No ifs, ands or buts 🙅🏽♀️ Hustle culture has glorified us pushing past our limits. But as we run on autopilot, our subconscious is bearing the burden. Our body is bearing the burden. Without boundaries, self-care, and rest, are nervous system becomes dysregulated ✋🏽 We need to consciously put our health above everything. Our health will not be on the back burner. Our health will not wait until someone else gives us permission. No. Our health comes first and it’s waits for NO ONE 🧘🏽♀️🩵✨ • • • • • • #chronicpain #chronicillness #migrainewarrior #chronicmigraine #mentalhealthmatters #healingjourneys #healingchronicpain #nervoussystemregulation #neuroplasticpain #healingtrauma #brainretraining #mindfulness #mindbodysyndrome #holisticrecovery #mantramonday #meditation
Adventuring with you is my favourite thing to do 🥰🌲🍄 - Happy #mamaandmemondays 💗 Nanny snapped these pics last week of me having a ride on Mama’s knee when I was tired 🤣 I loved looking at all the trees and looking out for my ducky friends 😍🌲🦆 - - - - - #mamaandme #mamaandmemonday #centerparcs #adventure #forest #sherwoodforest #chronicillnessawareness #chronicillness #hiddenillness #cavapoochon #cavapoochonsofinstagram #cavapoochonuk #dogs #cavapoochonclub #cavapoochonlife #cavapoochonlove #puppiesofinstagram #puppygram #dogdaily #doglife #happypuppy #dogsofinstagram #petsofinstagram #cutedogs #doginfluencers #doginfluencer
Trauma affects us all differently but here's some ways it might be affecting you Wishing you a week of peace and acceptance ✨️ Lindsey x . . . #Traumawork #Sarno #Nervoussystemregulation #CFS #Healingtrauma #Anxietyrecovery #Mindbody #Anxietysupport #Spiritualhealing #Backpain #Chronicillness #Trauma #mindbodyconnection #BLASTtechnique #SIRPA #OldPain2Go #BeliefCoding #paincoach
This Friday! 🌙 The Art of Tarot at @electra_gallery So many amazing pieces exploring tarot - I can’t believe my newest piece will be a part of it 🔮 come out and see 🥰 #disability #disabledartist #nonormal #disabilityawareness #disabilityadvocate #chronicillness #pulmonaryhypertension #science #research #medicine #centralline #tarot #magic #newmexico #newmexicoartist #watercolor #shopsmall #smallartist #shoplocal #landofenchantment #disabledartist #originalart #artistsofinstagram #art #taos #santafe #albuquerque
Grand Rising beautiful warriors. This is just a little reminder for you this week 😊☺️ Sending good vibes your way ❤️💛💚 #motivationalquotes #motivationalmonday #mindsetiseverything #hswarriors #chronicillness #hscommunitysupport
“Endometriosis is not just a period problem. It’s a whole life challenge. But remember, you are stronger than the pain it brings.”🩷 #endowarrior #endometriosiswarrior #endometriosis #endometriosisawareness #endometriosissupport #endosisters #endostrong #endobelly #endojourney #womenshealth #chronicillness
All it takes is a healthy-looking person with a stupid smile on their face holding literally *anything* and I’m ready to buy it now like a dog after a chew toy hoping it will make an impact on my health. And Instagram knows it! 😂 Look, another Vagus Nerve stimulator, maybe this one works! Oooooh look a device that puts pressure on your inner ear and eliminates migraines. oooh! A grounding mat that sounds like it would help me! Buy it all now! 😂 And then go back to feeling sick 😂 #stupidconsumer
Beans is ready for graduation 🥰 — #goldenretriever #futureservicedog #puppies #Clemson #mentalhealth #ClemsonSDiT #BattleBuddiesCarolinas #goldenretrieverpuppy #puppy #suicideprevention #ClemsonBattleBuddies #servicedogintraining #servicedogtraining #BattleBuddy #ptsd #puppyraiser #BattleBuddies #chronicillness #psychiatricservicedog #servicedogteam #dogs #dogtraining #servicedog #workingdog #BattleBuddiesCarolinas #assistancedog #puppy #dog #servicedoggear #medicalalertdog
Dizzy Heather…at the dentist? It’s true - I hadn’t been for 9 years. I just went Friday. I have dental insurance, it’s just that lying on my back for that long is a vertigo nightmare. Or rather, it WAS a vertigo nightmare. This cleaning and exam had me on my back for 45 minutes…and I was ok!! 🙌🏻 My 3 migraine preventive medications are the main reason I could do this. Vestibular therapy and lots of cleaning up my mental health came in for the assist. Next challenge: getting my first ever cavities filled. I am *very concerned* about the vibration of the drill! For years I was EXTREMELY sensitive to any vibration, but with current improvements the plan is to try numbing and drilling the easiest cavity. If I can’t tolerate that, we can talk drugs. Lol Any dental work suggestions from my dizzy friends? #dizzydentist #dizzyatdentist #dizziness #vertigo #migraine #vestibularmigraine #mecfs #chronicillness #disability #invisibledisability #disabilityawareness #migraineawareness #cgrpinhibitor #cgrpmeds #chronicfatiguesyndrome
In my last newsletter, I wrote about how "confidence comes from doing" about this race. The way to show up to the start line with a ounce of confidence about your goals is to train and practice over and over again. Which is what I did and for the most part it paid off! The night before the race was my first real night of sleep that week. No insomnia, no tossing and turning, I was grateful! When the race started, I tucked behind the 2:10 pacers (my original goal, a 7min PR) & we were off. As soon as I crossed that started mat though, I also had to use the bathroom. We flew through the first half slightly ahead of pace but circling the target nonetheless. My sole focus was staying tucked in and trusting that my body would hold these paces even though by now I desperately had to go to the bathroom but I told myself if the line was too long, I would keep running. The aid station just before mile 7 was in disarray and that's when I got separated from the pacers. I ran ahead, hoping that the next set of bathrooms would be clear & that somehow I would bank some time. To my luck, there was an open port-o-potty at the next station. I dashed in and out as quickly as I could and resumed the race at a near sprint. I didn't know if the pacers had passed by or were still a bit behind but I tried to hold it down - this was still ahead of schedule. Unfortunately, around mile 8.5 things started to get difficult. My left hip was dull with pain which I ignored until it was too difficult not too a mile later. My pace slowed by 30 seconds but I was determined to run until I really couldn't. The last 5k of the race was completely by a run/walk and shuffles up the hills of downtown which felt torturous at the moment. I knew the 2:10 finish was out of reach at this point but I could still come in a PR. So, I used whatever speed I had left and came in at 2:15! I leave knowing what weaknesses I need to work on (hip) but mostly knowing how far I've come almost a year after the huge setback of a Lupus flare. From a 2:27 finish in SF, last summer down to a 2:15. And the way I could hold 9:30 for 8 miles tells me the next half PR is right around the corner!
It’s time for the first Chronic Health Chronicles Story Time! Today, I’m talking about mobility aids. I have ME/CFS, POTS, Fibro, etc. After having Covid x3, my health is on a downward slope, and I’ve recently realized that I need a mobility aid if I’m going to leave my house and, you know, do things. As someone on disability with a fixed income, I am dependent on disability to pay for this. Recently, I took the first step in this process by having an assessment with a physiotherapist to determine what I will need. For weeks leading up to the appointment, I worried about it - what if the therapist thought I was a hypochondriac? What if they said there was nothing wrong with me and I didn’t need help? The imposter syndrome was running strong, and I felt almost powerless, resigned to the fate of someone who absolutely would not be taken seriously, regardless of how I experience my life and disability. The assessment was the most validating medical appointment I have ever had. While it was an unpleasant reality check with regards to my health, it was also so empowering. To have a medical practitioner listen to me, fully, and take what I said about how I experience life into consideration was such a rush of validation that I had big emotions after the appointment. Initially, I was resistant to the idea of using a mobility aid, but I’ve come around. I don’t want to spend the rest of my life unable to leave my house because I think I don’t need or DESERVE to have access to life. I know that the times I’ll be able to get out may be limited, but honestly, it will be better than where I’m at now. I will continue to post progress updates as I navigate this journey! #wheelchair #wheelchairlife #wheelchairuser #mecfsfighter #mecfslife #mecfsrecovery #mecfswarrior #mecfsawareness #mecfs #disabilitypride #disabilityinclusion #disabilitysupport #disability #chronichealthchronicles #chronicillnessproblems #chronicillnesses #chronicillnesscommunity #chronicillnesshumor #chronicillnesssupport #chronicillnesslife #chronicillnessmemes #chronicillnesswarrior #chronicillnessawareness #chronicillness #DisabilityCommunity #disabilitylife #disabilityrights #disabilityawareness
Hozier 4/28/2024 💚🖤 This was my very first time going to a big show by myself, and quite frankly it will also most likely my last that I try to tackle solo (except for someone like Florence. I'd crawl across broken glass for Florence 🤣). In this season of breaking and rebuilding, I'm learning my limits on what I can do independently and what I can't. So, while I had to leave the concert early last night, I'm still grateful for the learning experience. I'm even more grateful that I got to catch the one song that I was desperately hoping to see before leaving 💚 Unknown has been the song that has been my tether and anchor for the past few months. Being able to see Hozier perform it live while I sobbed uncontrollably was absolutely worth every moment of pain, frustration, and discomfort that I experienced this evening. #chronicillness #chronicillnesswarrior #disabledlife #disabled #concert #hozier #unrealunearth
Confesiones de una mujer con #vulvodinia 🧡 Mías y de las miles de mujeres que me escriben todos los días. Lo más importante que tenemos que tener presente es que todos estos sentimientos son normales, son válidos, pero mo necesariamente son ciertos porque el dolor no nos define. Déjalos entrar, reconócelos, y déjalos salir por donde entraron. No estás sola! Con cariño, Pame 🧡 #vulvodynia #chronicpain #chronicillness #awareness #chronicpainwarriors #womenshealth #peacewithpain #pelvichealth #pelvicpain
Lupus Awareness Month is a few days away. How are you advocating for Lupus Awareness in your community!? If you are available, please join us as we celebrate and honor Lupus warriors and thank those who stand in support with us! 💜 #LupusAwarenessmonth #Lupus #youGotThis #Chronicillness #survivor
Good sleep Sleep hygiene plays a crucial role in overall health, as it improves sleep quality, supports tissue repairing, enhances cognitive abilities, reduces stress, regulates hormones and reduces risk of chronic diseases. Join us to adopt healthy sleep patterns. http://bit.ly/3xgFhBz @everyone #goodsleep #goodsleeping #goodsleephabits #goodsleepmatters #goodsleepgoodlife #goodsleepchangeseverything #sleep #sleeping #sleepy #sleeptips #sleepwell #sleephealth #sleephygine #sleephygiene #sleephygeine #sleephygiene😴 #sleephygienetips #sleephygienegoals #regularsleep #regularrest #regularsleeppatterns #sleeppattern #sleeppatterns #sleepschedule #sleepschedules #SleepScheduleMatters #chronicdisease #chronicillness #chronicillnessawareness #chronicdisease
After three long years, one major change, various dr visits, and new diagnoses, I’ve finally graduated as a member of class 2024!!!!! It’s surreal being able to walk away from College with two degrees, two certifications, and friendships that’ll transcend lifetimes. It’s heartbreaking leaving the little family I have made, but I’m excited to tackle this next part of my life. To all my friends and family who have supported me, showed me unconditional love, thank you❤️ I couldn’t have done it without y’all. Also congratulations to my fellow graduate @mikayla_brucie_3!!! #jugrad #classof2024 #graduation #chronicillness #potssyndrome #ehlersdanlossyndromeawareness #fibromyalgiaawareness
Do you wish you were a better version of yourself? ============================ 👉 Instead of continuing to punish yourself by ignoring your poor sleep, untreated tongue tie, digestive issues, mouth breathing, snoring, anxiety, headaches, tension or chronic fight or flight…let us help you find root cause resolution. Just because it’s common in your life, doesn’t mean its normal. 😴 Our myofunctional therapy programs are changing lives. 👉 Comment GETTING STARTED to get the Getting Started Guide. Learn about Impact Myofunctional Therapy and how we can help you! We are ready when you decide that YOU’RE the priority! ============================== #health #chronicillness #wellness #tired #mentalhealth #sleep #sleeping #dentist #healthcare #snoring #apnea #snore #sleepbetter #sleepapnea #apnea #bettersleep
There are other things I do every day that I wanted to share. In addition to The Big 6 Lymphatic Massage by Dr. Perry Nickelston(look it up on YouTube) I stand on my Life Pro vibrating plate every day. I usually do neck and shoulder exercises while on it since my neck and shoulder are probably affected by connective tissue issues the most and it reduces my pain and injury by strengthening those areas daily. The vibrating plate has reduced my pain a lot. It helps get the lymph system moving and reduce stagnation. If it doesn’t flow you will know, because you will have pain. Sharing this shows how much I love you all and how much I want others to get better too-because this video is not flattering haha But honestly, who cares? When I die will anyone say,”she was awesome but did you see the way her chin jiggled when she stood on the vibrating plate?” I sure hope not😂 #healing #inspiration #heal #healinginspiration #health #wellness #healthandwellness #foodismedicine #plantbased #chronicillness #lifechangingfoods #liverrescue #celery #celeryjuice #celeryjuicebenefits #celeryjuiceheals #cleanse #cleansing #detox #detoxing #cleansetoheal #brainsaver #brainsaverprotocols #medicalmedium #medicalmediumcommunity #ehlersdanlos #middleage #tinnitus #breastimplantillness #BII
غير مؤلمة، و لكن قد تكون مؤلمه حسب الحالة وشدتها. بعض المرضى قد يشعرون بألم أو انزعاج نتيجة للتورم والضغط الذي يتسبب به تراكم السائل. في حالات أخرى، قد تكون الاحساس بالثقل أو التعب في الطرف المتأثر دون ألم حاد. الألم يمكن أن يزداد في بعض الحالات بسبب العدوى أو التهاب الشديد الأنسجة المصابة، العلاج المبكر والمناسب قد يساعد في تقليل مخاطر حدوث مضاعفات، مثل الألم والعدوى، وتحسين جودة الحياة للمصابين بهذه الحالة. #Lymphedema #kuwait #cancer #edema #physiotherapist. #treatment #chronicillness #kuwait #physiotherapy #breastcancer #prostatacancer #cancer #cervicalcancer.
!! REMEMBER THIS when you don’t feel you can go on !! Which a lot of people do. You mean a lot in this world and to the people that love you 😌 ily my babes! #mentalhealth #mentalhealthawareness #mentalhealthadvocate #mentalhealthsupport #cute #moomins #cutesaying #pink #pinktheme #cptsd #trauma #traumahealing #chronicillness #ptsd #lifestyle #trauma #instagram #art #peace #support #mentalwellness #yourself #growth #hope #gratitude #awareness #beauty #suicideprevention #recovery #wellbeing
Our #CreakyChats community offers tips on managing spring cleaning and organizing with chronic illness. Head over to @creaky_joints profile page and tap the link in bio to read more. ID: On a green and red background, text at the bottom reads " #CreakyChats: Springing Forward: Balancing Tasks and Energy with Chronic Illness" and the image above shows the promo image for CreakyChats.
I FINALLY HAVE A SURGERY DATE!! 🎉🎉 I have been waiting for over 2 years for my surgery. In December 2022 during another appointment with my endometriosis specialist, he informed me that he was going to request I be moved to his priority surgery list as my symptoms and the flare ups I was experiencing had gone from bad to worse. My understanding of being put into a “priority surgery list” was that I would be having my surgery as soon as possible, hopefully in a matter of months - Fast forward 2+ years I have finally been called for my surgery. I am still experiencing a mix of emotions towards this surgery - on one hand I am glad and relieved to finally be having the surgery and the other hand I am nervous and scared. I can’t shake the fear and thought of ‘how bad will it be when they finally get in there after waiting for so long’. However, I keep reminding myself that it has been a long time coming and from this surgery I will finally have better clarity on my life & future. #blacklivingwithendo #endowarrior #chronicillness #endouk #endosisters #endometriosisuk #painispain #invisibledisability #invisiblepain #nocure #endoawareness #endometriosis #1in10 #endosymptoms #chronicpain #endosupport #endometriosissucks #endoblack #endoblogger #chronicfatigue #hearmypain #dearendo #endometriosisinblackwomen #endothestigma #endosurgery #chronicillness
. During mold exposure: 🚩Dark under eye circles (covered by lots of makeup in first photo) 🚩I would wake up with really puffy eyes (I had to do lots of lymph work daily) 🚩Dramatic weight loss (I lost 30lbs within a couple of months! Mold exposure can cause weight gain or weight loss.) 🚩Sunken eyes 🚩Chronic sinus pressure 🚩Thinning hair 🚩Major hair loss 🚩Skin was so dry and tight (despite moisturizing multiple times a day) that my smile wouldn’t expand as wide. After remediation: I didn’t change a single thing about my diet or calories consumed, I didn’t add any new healing tools or change anything about my lifestyle. The only thing that changed was mold remediation! 🙌🏼 The dark eye circles went away 🙌🏼 No more daily facial lymph work to combat eye puffiness 🙌🏼 I gained my weight back 🙌🏼 No more sunken eyes 🙌🏼 No more chronic sinus pressure 🙌🏼 I decided to get a hair cut to get rid of the incredibly thin hair at the bottom and start fresh. I’ve experienced an abundance of healthy new hair growth. 🙌🏼 My skin is no longer dry and my smile can expand as wide as it wants to. The body always lets you know when something is wrong. Listen. Support. Heal. Repeat. . . . #mold #moldexposure #wellness #healthcoach #mindbodywellnesscoach #health #healthylifestyle #chronicillness #rootcausehealing
Are there areas on your face where acne, inflammation or irritation frequently pop up? Face mapping is an ancient healing tool still used today to help identify possible root causes. Connecting ongoing inflammation on the face with corresponding organs within the body. Let’s go one step deeper! Here are correlating emotions: small intestine: sadness, vulnerability bladder: fear, control, impatience heart: guilt, unsafe, family line liver: unhappiness, anger, resentment kidneys: fear, criticism, shame, failure stomach: self doubt, fear of unknown large intestine: resistance in flow of life lungs: grief, depression, loss reproductive system: mistrust, unsafe, scattered, lack of unconditional love The body communicates through symptoms. Listen. Support. Heal. Repeat. . . . #facemapping #wellness #healthcoach #mindbodywellnesscoach #health #healthylifestyle #chronicillness #rootcausehealing
CLC MEMBER FEATURE: Hi, my name is Audrey Tabor, I’m 17 years old, and I live in Dallas, Texas! I am an inclusivity advocate. I share my story, so others are more aware, more accepting, and know how to assist, essentially being more inclusive. I want to encourage others to share their stories or disabilities and differences also in order to make the world a more inclusive place. I have never been able to jump, skip, run, or do cartwheels. I lost the ability to climb stairs and get up off the ground independently around 5th grade. I was 6 months old when my pediatrician noticed my low muscle tone and squishy skin. My mom was told it was benign hypotonia until about the age of 3. At this point, we were told maybe it was cerebral palsy. At the age of 8, it was recommended I started seeing a neurologist specializing in muscle disease. She did a biopsy and diagnosed me with muscular dystrophy of an unknown type. Muscular Dystrophy is a progressive muscle disease where my muscles get weaker over time and there is currently no cure. At the age of 9 I was also connected to the National Institute of Health (NIH). This is where I was genetically diagnosed with Bethlem Muscular Dystrophy. Bethlem Muscular Dystrophy is a defect in the Collagen 6 gene, specifically in my Alpha 3 part of the gene. Today, I am thriving. I am a very active high school student participating in a rigorous IB academic program, cheer, a Muscular Dystrophy Association (MDA) Ambassador and Miss America pageants within the Miss Texas Scholarship organization. I love being a Titleholder and an ambassador for MDA for many reasons, one of which is to have a platform to share my story through my Service Initiative - Share if you Care. Living with a disability has its challenges for sure but mine does not define me, it drives me!
ADVOCATING FOR YOURSELF The pediatrician room is cold. My feet hang over the floor and the paper of the exam table crunches with the slightest movement. The nurse asks me and my mom questions like: “When did it start?”, “Where does it hurt?” Between the pain and my anxiety, I let my mom take the lead. The older lady, with glasses and wrinkles, frowns and takes notes. She radiates as much warmth as this sterile room. Then it’s over. We’re given pieces of paper and we return to the car. As I buckle in, I’m not sure what happened. Are they going to help me? Do they have any idea what’s wrong? My mom is furious. I quickly discover the paper is a psychological evaluation. The nurse didn’t believe my pain was real. And that was only the beginning. As we continued to look for help, we faced various doctors who didn’t want to bother with us. It was much easier to suggest a “might-help” medicine, “take some tests”, “maybe try this” and send us off. No one took what I was going through seriously. It was up to us - really my mom at the time - to advocate for me. That was eight years ago. Sadly, the need for advocating for yourself hasn’t gone away. Whether that’s for chronic health conditions, or mental health related challenges. Advocating for yourself is not something that comes naturally to everyone. It’s often something you have to learn and practice. And I’m on that learning journey. While my mom has been an amazing advocate for me (and still is), that ability is something I need to develop and practice myself. Self-advocating is important, and it extends to more than medical-related challenges. Likely, there will be other situations where you’ll need to stand up for yourself, or maybe for others - like my mom had to. Instead of disheartening you, I hope this encourages you to stand up for yourself (or for someone else who needs it), and reminds you that your experiences—or what you’re going through right now—matter. 💛 Do you have anything to add to the topic of advocating? Or a different perspective?
Do something new day 4673. Paris with the family and today we each had our own adventures. I met with Estelle to go to the Musee Cluny and see the Van Eyck exhibition and the glorious unicorn tapestries about the senses. Then we went to the amazing the musée du quai Branly which. exhibits art from Africa, the Americas, Asia and Oceania. Stunning building and installations by architect Jean Nouvel and opened in 2004. I was enthralled with the African, Dogan collections and so much more. A day of endless art experiences and all new. The family toured Sacre Coeur and climbed to the top for great vistas. David and Clark explored the catacombs while Ali and Franny shopped. Everyone had a day of new experiences in Paris! #musee #museecluny #museequebranly #janvaneyck #artlover #art #observation #sacrecoeur #explore #exploreparis #catacombs #dosomethingnew #trysomethingnew #somethingnew #newday #newexperience #newadventures #chronicillness #chronicpain #happyday #happylife #joyful
I’m really struggling with this lately. I have all of these thoughts of things I want to accomplish, but my body says otherwise. It’s one of the most frustrating parts of being chronically ill. . . . . . . . . . #chronicpain #chronicillness #chronicpainwarrior #chronicpainawareness #fibromyalgia #fibromyalgiawarrior #pots #potssyndrome #chronicmigraine #chronicheadache #newdailypersistentheadache #chronicfatigue #chronicallyill #fibro #invisibleillness #invisibleillnessawareness #chronicfatiguesyndrome #spooniesupport #spoonielife #dysautonomia #spooniewarrior #chronicpainlife #chronicillnesswarrior #multiplesclerosis #longcovid #lupus #crohns #ehlersdanlossyndrome #rheumatoidarthritis #endometriosis
Mark making with an empty pill package 💊
We are celebrating another year around the sun with T1D. We understand living with T1D can be challenging, and with proper care, monitoring, and lifestyle adjustments, it can lead a fulfilling life. We acknowledge all those on the journey with T1D. We want to remember that you’re not alone in this journey. Today marks 8 years for @teamlondont1d with T1D. The great family support and active lifestyle keep things in check. We are glad to have cross paths and can bring some joy with our donuts! 🍩 Follow @teamlondont1d for a community that supports those with T1D 💖 #t1d #type #diabetes #d #diabetic #dlookslikeme #diabetesawareness #insulin #typeonediabetes #diabetestype #diabadass #insulindependent #dexcom #warrior #insulinpump #typeone #dawareness #diabeteslife #dlife #diabetescommunity #g #dexcomg #omnipod #dwarrior #diabeticlife #cgm #freestylelibre #chronicillness #bloodsugar #beyondtype1
Mom says I’m such a good boy! We went to Costco and I did great! Even with a “service dog” in a cart barking it’s head off at me. 🤪
Diktet har jeg fått lånt av fine gode Camilla @ordfratanker Livet / speilbildet / livet 💗💗💗 Tom for energi Tom for krefter Tom for ord Rett og slett tomt #Kronisksyk #kronisksykdom #Spoonielife #Meforeningen #Millionmissing #MEAction #livetmedme #forgetmenot #Millionmissingnorway #PEM #Myalgiskencefalopati #serikkesykut #gåenderullestolbruker #Fibromyalgi #Pots #potsawarness #dysautonomia #dysaotonomiawarness #kvinnehelse #begrensninger #takknemmelig #kronikerlivet #livet #åpenhet #raushet #forståelse #pwme #myalgicencephalomyelitis #chronicillness
CELERY JUICE IS VITAL FOR BRAIN HEALTH The mineral salts specifically in celery juice are instrumental in the electricity that governs the body—they’re building blocks for neurotransmitter chemicals, they ignite electrical impulse activity, and they support neuron function. A brain with weak electrical impulses and weak neurotransmitters shuts down and goes into “low battery” mode—which makes celery juice, a battery charger for the brain, an answer to stop this from happening. Mineral salts keep the heart pumping and create the neurotransmitters needed to take information from point A to point B, that is, from neuron to neuron. (Picture a thought as a boat and mineral salts as the ocean: if the ocean dries up, the boat can’t go anywhere.) #celeryjuicebenefits #celeryjuiceheals #celeryjuice #medicalmedium
The newest branch 🕊️ ⚕️WT Healthcare 💚 @wikipedia definition; Healthcare | Health care, or healthcare, is the improvement of health via the prevention, diagnosis, treatment, amelioration or cure of disease, illness, injury, and other physical and mental impairments in people. ⚕️We will create innovations that are not only affordable, effective, and palatable but REAL solutions to prevent #chronicillness, #disease and #violence in our most vulnerable communities around the world 🌎 ⚕️ We will also provide a #bridge 🌁 for these forgotten individuals and #underprivileged communities to #TRUSTED sources of #healthcare and professional services. #healthiswealth #media #medicine #wassupte